Posted on December 24, 2020
As per tradition, here I am posting a list of things I’m grateful for on Christmas Eve. This year has obviously been very different to previous years and I think it’s fair to say that we’ve all had days where we’ve felt scared and angry and probably every negative emotion under the sun, making it difficult to feel grateful, but then it’s also reminded us of how many things we do have to be grateful for. There are many more things that could go on this list, but I’ll try to keep it as concise as I can. Otherwise, we’ll probably be here until next Christmas.
Family – I could not be more grateful for my family. I love them so much. So, so much. They do so much for me and all I want to do is make them proud. But this year, I’m especially grateful for their health and grateful to them for their care and caution during this time, for how sensible everybody has been despite how much we all want to be together. It’s been so hard not seeing so many of my extended (and even close) family members face to face for such a long time and I’m truly and deeply looking forward to seeing them all (and hugging the crap out of them) when it’s safe enough to do so.
Mum – Oh my god, my Mum. I love her so much. She is just incredible. This hellscape of a year has been so hard for me (as it has been for so many but in my case, it hammers right on my biggest autistic difficulties: uncertainty and anxiety) but she’d been completely solid throughout, always there for me when I needed her. She’s made this so much easier on me than it could’ve been and I’m so grateful for that. She’s handled everything with such grace; I’m truly in awe. I only hope that one day I will be as strong and capable as her. I’m probably going to have some separation issues whenever the world starts to function in a way that we’re more used to (I mean, we’ve been together almost 24/7 since March when I was usually in London a couple of days a week and she was in and out all day, out for full days, or even away for several days, etc so I’m very used to having her around and she’s become a bit of a touchstone when it comes to my anxiety) but I’m not going to think about that yet. It seems there’ll be plenty of time before that’s going to happen.
Friends – I am so grateful for my friends; I always am but I’m especially grateful this year. I have moments of being terrible at staying in contact and periods of being better (something that’s largely dependent on my mental health) but considering everything this year, I don’t think I’ve done too badly. I’ve been talking to and spending time with different friends in different ways: calling, messaging, video-chatting, watching movies together, a few socially distanced meet ups, etc. I’m really happy we’ve been able to stay in touch even if I do desperately miss spending time with them. They’ve been a real tether to ‘normal’ life and I’m more grateful for that than I can say. This year has also taught me (both as a result of the pandemic and not) what I need in my friendships (not that that’s all that matters but if neither of you are getting what you need most of the time, how are you supposed to make a friendship work?) and I really value that. It doesn’t automatically change anything but I think that knowing what is good for me in a friendship and what isn’t is really important and will only be helpful in the long run.
(There are a handful of people I wish I could include in this collage but don’t have pictures with, from this year anyway.)
Richard – I mean, where do I start? Generally, I’m of the opinion that the universe is completely random but something awesome happened that day six and a half years ago when I sat down next to him on our first day at university. I had no idea that I was meeting one of my best friends, most trusted collaborator, and creative partner. The Honest EP never would’ve happened without him. We worked on every aspect together and I can’t wait for whatever our next project turns out to be. This year has obviously been about as different as we could’ve ever imagined but he’s gone through every high and low with me and I couldn’t be more grateful. I’m so glad that we’ve been able to continue releasing the Honest EP and that we’ve been able to write together despite the pandemic, even if writing remotely isn’t as fun as writing face to face. I’ve missed just hanging out with him, with our friends, and actually doing things that don’t require a screen but I’m so grateful for what we’ve had and what we’ve been able to do despite the difficult circumstances. I don’t feel like I’m saying all of this as eloquently as I’d like to but what I’m trying to say is that I’m beyond grateful for Richard. I don’t know how I got so lucky with such an amazing friend.
All of the years I had with Lucky – January feels a bit like a lifetime ago; I can’t believe it’s only been eleven months since we said goodbye to our precious Lucky. It was one of the most painful experiences of my life but he was ready. I know people say that but you only had to look at him to know that it was the truth. But despite the pain and sadness of that twenty four hours (and obviously since), we had an amazing almost sixteen years with him. From meeting him when he was a few days old, to bringing him home, to teaching him to sit, to the hours we spent playing with him, to sneaking him onto the sofa with me when no one was home, to various people ‘sneaking’ him onto the sofa whenever everyone was in the room, to running around on the beach together, to watch him throw himself into hydrotherapy with such enthusiasm, to lying on the rug in front of the fire together… every second with him was a wonderful gift that I will forever be grateful for.
And while I will always wish to have had more time with him, I’m glad that he didn’t have to manage the pandemic and all the stress surrounding it. He was such a sensitive dog, especially in his old age, and I think it would’ve been really distressing for him. Saying goodbye to him was devastating enough as it was; I know that having him put down during lockdown would’ve been so much worse, especially as it’s likely that we wouldn’t have all been able to be there with him.
My cats – The family of cats have been a bit of a lifesaver to be honest. Early on in the pandemic, their complete obliviousness to the chaos in the world was very calming: they just continued with their lives and there was something very soothing about that. And just throughout the pandemic, the cuteness and silliness and playfulness have been a wonderful distraction or comfort on the more difficult days. On the whole, they’ve all become very snuggly with only me and my Mum around (they absolutely freaked out when they saw a new person for the first time in months) and now, nine months into the pandemic, I rarely go a day without having had at least two cats draped over me at some point. It’s all very cute and very much appreciated. I’m also really, really grateful for their health. I’m always aware of that but with Lucy having a health scare that resulted in two surgeries earlier in the year, I feel particularly grateful that all five of them are well and healthy.
FaceTime, Zoom, Netflix Party, etc – I’m so grateful for the platforms that existed and have come to exist to help us connect with our friends and family (and continue with university) during this time. Yes, I’m sick of only seeing people via screens and I’m even more sick of my eyes always ending up on my own face and, as an autistic person, communicating feels ten times harder but I’m still so glad that we have them so that we can see and talk to and spend time with our friends and family. It’s not enough but it’s better than nothing and I’ll gratefully accept whatever way of connecting I can get.
TV and Film Streaming Services, eg. Netflix, Amazon Prime, etc – Having access to so much media to consume was a great way to escape everything at the beginning of the pandemic and throughout the first UK lockdown. I discovered some really awesome TV shows and movies (about which I’m going to post later this week). It was escapism, but it also kept my brain creative (filling it with stories and characters and ideas) even if I wasn’t able to express it for a long time. And now that I’m writing again, I have so many ideas and stories to tell.
Fanfiction – I mentioned Fanfiction in my Lockdown Favourites post and it’s definitely been one of the things that has helped me throughout the pandemic and lockdowns, especially early on when I was just paralyzed with anxiety. I’ve really struggled with reading during the pandemic; I just haven’t been able to concentrate enough to get into a novel, like there isn’t enough space in my brain for new characters, new worlds, and new storylines. But reading stories set in familiar worlds with characters that I love (Stargate SG-1, Sanctuary, Harry Potter, etc) feels much easier and really comforting, especially when my mental health is shaky. I’ve always found it to be a good form of relaxation and escapism; maybe one day I’ll post my absolute favourites because they’re just so good, so well written and quite possibly better than the originals. I do want to give a particular shout out to Annerb who has been my staple writer this year; I discovered her through her Stargate SG-1 stories and then fell in love with her Harry Potter epic, The Changeling, where Ginny is sorted into Slytherin. I’ve reread that particular story so many times. It’s absolutely incredible: she’s filled out the world of Harry Potter so beautifully, creating real depth to the different houses and characters, both canon and original. I mean, I could talk about it forever. It’s so freaking good.
My piano – My piano and I have been good friends this year, especially since the pandemic began. Between the nerve pain in my left hand that’s made guitar playing all but impossible and the soothing lower octaves of the piano, I spent more time at my piano this year than I probably ever have before. Between the calming sound and the concentration blocking out my anxiety, it’s been one of my favourite things to do. I’ve played so many songs and written quite a few too and it’s another of the things that have kept me going through the pandemic.
The music that got me through this year – I mentioned several songs in my 2020 in Songs post but those were my absolute favourite songs of the year. There were so many more songs and so many more albums that inspired me and encouraged me and helped me to cope with all of my emotions this year and I’m so grateful to every artist that gave me that gift. I’m going to write about a couple specifically but I also want to mention Sara Bareilles (both for seeing her in Waitress several times and for her new music), Halsey, Kelsea Ballerini, and Maren Morris for their various contributions throughout the year that made things just a little easier. I hope I’m not forgetting anyone but if I discover that I have, I’ll come back and add them.
Kalie Shorr – I am so grateful that I walked into that Tin Pan South/Song Suffragettes show in 2016 and saw Kalie play. There were so many shows I could’ve gone to and yet, somehow I ended up at that one and it has had such a big impact on my life. I mean, I wouldn’t have gotten to play at a Song Suffragettes show if I hadn’t gone to that show. But my point here is that I heard Kalie’s music for the first time that night and since then, she’s released the Slingshot EP, the Awake EP, her debut album, Open Book, and Open Book: Unabridged, a reissue of the album with four additional songs. Her artistry and songwriting got better with every project but each one still holds a special place in my heart. I love her music and I learn so much from her as a songwriter. She is one of my biggest musical inspirations and I hope that, at some point, I will develop as distinctive a voice as a songwriter and artist as Kalie has. So I guess that’s why I’m grateful for her in general but I’m also especially grateful for all she’s been doing this year. Throughout the pandemic, she’s done so many livestreams on various platforms, which has been really awesome. We’ve gotten interesting and funny stories, acoustic songs, previously unheard songs… it’s been great. And while I’m obviously still enjoying them, they were particularly important to me during the early days of the pandemic when my mental health was really bad; they really helped me keep going. She’s also been part of various other musical projects, puts out a podcast, is consistently hilarious on Twitter, and released the previously mentioned Open Book: Unabridged. I’d hoped to see her this year on my trip to Nashville but then said trip was cancelled by the pandemic. I’ve met her a handful of times and she’s so lovely. I wish I lived in Nashville; then at least there’d be a chance of us being friends and writing together. I’d love that. I admit that my insecurities do sometimes get the better of me and I struggle with, I guess, comparison anxiety (how well she’s doing vs. how I’m doing) just because I want to have a career in music so badly and have so many fears over why it won’t happen, but I’m still endlessly grateful for her and everything she does. Her music has changed my life for the better in so many ways and I appreciate that more than I can say.
Taylor Swift – Despite remaining largely out of sight during the pandemic, Taylor had a massive year and by extension of that, a massive impact on my year. Her documentary, Miss Americana, came out in January, of course, which was incredible; it felt like a great honour to be let into her life like that, especially during the moments that were really difficult and personal. She also released the City of Lover Concert on Disney+, which was really cool (although it was sad that her pre-Lover songs couldn’t be included); I’d so desperately wanted to go (especially since it was so close, considering that Taylor’s a US artist) but it was just too big a risk with my health and my finances as they were. So I’m really grateful that I got to see it in some form. Even though we got folklore and evermore out of the lockdown, I still want to mention the cancellation of Lover Fest. Even though it wasn’t unexpected, I was absolutely gutted; that and my Nashville trip were the top two most painful cancellations of the pandemic. I was so looking forward to it – the times I’ve seen Taylor live have been some of the bright spots over the last five or so really difficult years – and to have that ripped away was really hard (in a parallel year that I’ve daydreamed up, it still happened and it was glorious). But then we got folklore, folklore: the long pond studio sessions on Disney+, AND evermore, all in the space of about six months. I don’t know about anyone else but my head is still spinning. folklore and evermore are both incredible albums (I’m currently writing blog posts about them because I love them so much) with so many amazing songs that I’ve completely fallen in love with. They’ve also been hugely inspiring for me as a songwriter, which the long pond studio sessions only added to when Taylor talked about the songs from folklore and the processes behind the writing of them. She has just been a very inspirational figure for me this year (she always is but, again, this year has been a real example of that): as a songwriter and general creative person, handling the ongoing situation around her Masters with so much grace, speaking out during the US election and giving the Democrats her song, ‘Only The Young,’ to use in their campaign, being a really good example around safety during the pandemic… I’m so grateful for all she does, for how inspiring she is, for how much she CARES. I’m grateful to have her to look up to. I’m still hoping that I’ll get the opportunity to tell her that one day.
Agents of Shield – I was gutted to hear that this year’s season was going to be the last but damn, do they know how to go out with a bang. I wasn’t convinced about the time travelling element at first but I ended up really getting into it and I loved how, even though they stopped the Chronicoms each time, time still changed and they ended up in a drastically different present. Every episode was really, really good and a few of them were standouts of the entire show (7×09 – I’m just saying…). I loved the stories, I loved the development of the characters, and I loved the ending. It was perfect. I was sobbing throughout the last few episodes because it was so powerful and emotional. Daisy Johnson is my hero. I will love her forever. I will love this show forever. I’m so grateful to have discovered it, to have had it in my life, and to move forward with everything the show gave me. There may be no new episodes but that doesn’t mean it’s over; the impact it had on so many people will never be over.
The new swimming pool we found – Late in the summer, we found a swimming pool that was really strict about their safety guidelines and having not felt safe at my previous pool, I was so appreciative of that and so excited to get to swim again. It wasn’t as often as I would’ve liked but anything was better than nothing after months of not having access to a pool or not feeling like it was safe to be at a pool. It just felt so great to get proper exercise and really use my muscles again after not being able to since before the pandemic. I love this pool, especially when they turn the main lights off and the room is just lit by the underwater lights; it’s so soothing and just a really good atmosphere to exercise in. I always feel so good afterwards.
The benefits I receive – I am so unbelievably grateful for the benefits I get, more grateful than I can truly express. As a disabled person who struggles physically and mentally, I’m constantly worrying about money because my health is so unreliable and therefore steady work or a steady work flow can be really difficult or even, at times, impossible. So the financial support has been amazing and so important for my mental health, especially during this year of constant uncertainty.
The (medical) progress I’ve made despite the pandemic – Despite everything moving slowly due the pandemic (my rheumatology referral, for example, took about nine months), we’ve learned a lot about my body and my brain this year and we’re in the process of exploring the options, the avenues we have to choose from. I made medication changes, we chased more options for helping my CFS, was tested for a Vitamin D deficiency and given a high dose supplement to bring my levels up again, I was diagnosed with hypermobility, I finally had the rheumatology appointment and have been referred on to a handful of different departments. I’ve had a MRI, I’m due to have an ECG, and will hopefully start hydrotherapy as soon as it’s available, although I’ve already started doing the basic exercises I was given. And we’ll see what the other departments say. Oh, and I have another mental health evaluation coming up soon, which may give me some more information so, despite everything, we have made progress and progress that is hopefully leading to more progress. As hard as it can be day-to-day, I’m really pleased about that.
The result of the US Election – I mean, this one is pretty obvious. I was so terrified that Trump was going to get in and it was so scary to have no say or way to help. The days of waiting for the final result were agonizing and when I found out that Biden had won, I actually cried. No, he’s not perfect but he’s far, far better than Trump and I’m so grateful, in this regard at least, to finally have some hope rather than fear and horror and frustration.
My tutors – Of the two semesters I had this year, all of my tutors have been so, so good. And not just in the ‘being good teachers’ sense (you’d hope that was a given at Masters level) but they’ve all been so fantastic about working WITH me to make sure the classes and workload and assessments were as manageable as possible for me with my difficulties. They’ve been so open and supportive and they’ve made the semesters so much much easier; I mean, the work was still hard (but then it’s a Masters Degree so the work is supposed to be hard) but there wasn’t that unnecessary stress that there has been before. I’m still anxious about my grades but that’s practically a personality trait. Anyway, they’ve been absolutely wonderful and I so appreciate it.
The experience of the Honest EP – The first track of the EP, ‘Bad Night,’ came out in 2019 but the other four came out this year, including accompanying music videos and additional content like remixes and behind the scenes for the songs and videos. Making and releasing and promoting all of that was often really stressful but so much of it was really fun too. The beginning of the year was really fun: releasing ‘Clarity‘ and see it do better than ‘Bad Night,’ doing several really fun gigs with really lovely people (there was a really awesome moment where everyone was waving their phones with the flashlights on and another where everyone got really into the song, dancing and even singing along despite it being the song’s first outing), playing my university’s songwriters’ circle, a weird and wonderful studio day… and then the pandemic hit. My mental health took a real dive but things kept moving. I released a remix of ‘Clarity’ with an accompanying music video, which was definitely a new experience. Then I released ‘Sounds Like Hope‘ along with the gorgeous music video animated by Lois de Silva. I saw myself on TV when the music video for my debut single, ‘Invisible,’ was played as part of Brighton’s virtual Disability Pride Festival. Richard and I managed to film and edit the music video for ‘Back To Life‘ (during a period when it was safe to do so – we were very careful about that) in time for the planned release of the song. Even though shooting that video was super stressful, I was still able to have fun: it’s such an upbeat song that it was really fun to prance around to and even though the sea was freezing and the pebbles were painful to stand on, messing around in the shallows was actually kind of joyful. So the song and video came out and then, at the end of October, the fifth and final track, ‘Honest,’ came out, which was really exciting. It did really well and Richard and I celebrated the day with a dance party and a shot (I can’t speak for Richard but I’m a lightweight). It was a really fun day. We put together a music video for it, using clips from this whole bizarre journey; it felt very fitting for a song called ‘Honest.’ And as of this moment, the EP has surpassed 35,000 streams on Spotify, which I’m both really proud of and really grateful for, grateful to everyone who took the time to listen to these little songs that I wrote. There have been so many beautiful moments during this journey and it’s not even over yet; there’s still more to do and more to come. It’s been incredibly stressful but I’ve never felt so strongly that I’m in the right place as when I’ve been working on this project and performing these songs. I’m so grateful to and for all of the wonderful people who’ve worked on this project with and supported me through it, especially Richard and Mum. I couldn’t’ve done this without them. I’ve learned so much and gained more than I could’ve imagined (not financially unfortunately but in so many other ways). This project has changed my life and I’m beyond grateful.
The ‘little’ things – There were just a handful of things that I wanted to mention that there wasn’t really enough to say about for each of them to have their own bullet point but I didn’t want to leave out: my neighbour rescuing my cat when she got stuck up a tree even though he later told us he was afraid of heights; my brother doing a gorgeous job on creating a brand new leg for one of the china horses I got from my Dad (we think it got broken when we moved house); my therapist; the new cat tree and how adorable it is when all of the cats curl up on it at once; Tin Pan South still going ahead, if virtually rather than physically; the concerts I got to go to pre-pandemic; being able to dye my hair at home… I’m sure there are more but these are the ones that are coming to mind as I write this. Again, if I remember any others, I’ll come back and add them to the list.
So there you have it. This ended up a whole lot longer than I meant it to be but I think I am just really grateful. This year has been horrible in so many ways but it’s just made it really clear to me how good the good things are. And, as always, there have been some unexpected surprises along the way, things I never could’ve seen coming. I’m sure there are more things I could add but I’m gonna stop and go and do my Christmas wrapping. I hope you all have the best Christmas possible under these weird, hard circumstances. I hope you feel the things you need to feel and do things that make you feel good. Life is hard right now and no one should have to pretend otherwise. So I hope you’re looking after yourselves and I’m sending you big, virtual hugs.
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Posted on September 20, 2020
Given how stressful I was finding the pandemic and the lockdown, I thought it might be helpful to keep a list of what I’d done (achieved, managed, spent time on – whichever word is most appropriate), whether it took a huge amount of effort or was simply something I’d wanted to do, just to remind myself that I was still doing things, that I was still capable of being productive during such a difficult time. Some of them are silly, some of them important, and some of them are just interesting. And I thought posting it would be a good record of sorts when it comes to looking back at this time.
I don’t consider us to be out of lockdown by posting this. It’s just that now I’m starting a new year at university – the second of my Masters Degree – so my life is going to change. I’m doing all of my classes online, rather than going in for half of the classes as is the current norm at uni; I’d be commuting and the risks still feel too high for just two hours a week. So in terms of leaving the house, not much is changing. But it’s a moment of transition in my life and so it seemed like a natural stopping point for this post. I may continue it as a series, depending on how things play out going forward but for now, this is what I did while in lockdown, from 13th March to 20th September 2020…
Films: Hot Fuzz, The Martian, Miss Congeniality, etc.
TV Shows: Episodes, Lucifer, and Nikita, etc.
This is something I did a lot of as a teenager but reverted to during my Masters as a form of stress relief: escaping into another world, a familiar and safe world. My most impressive achievements were reading all of the Ros Myers (Spooks) Fanfiction I could find and reading The Changeling and it’s three sequels (a Harry Potter alternate universe where Ginny is sorted into Slytherin, which totals nearly 600,000 words). Of course, there were more one off stories; these are just my greatest hits.
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I doubt I’ll ever be able to look back on this time positively (from a personal perspective – in the wider sense, it’s clearly been catastrophic) but there have been moments and experiences that I am grateful to have had. As I’ve said, I don’t consider lockdown to be over so this post may become a series but with my Masters to focus on, I will have significantly less time to dedicate to bigger projects like organising my photos or sorting through my possessions. So lockdown continues; I’m just entering the next chapter.
Category: animals, anxiety, autism, covid-19 pandemic, favourites, medication, meltdowns, mental health, music, therapy, university, video, writing Tagged: absentia, activism, agents of shield, anxiety, anxiety disorder, asd, autism, autism spectrum disorder, autistic, autistic adult, autistic meltdown, autistic meltdowns, back to life, back to life music video, baking, blogging, cat, cfs, chronic fatigue, clarity, clarity remix, clarity remix music video, concert, cowriting, daisy johnson, debut ep, decluttering, depression, diary, diary writing, digital decluttering, disability pride, disability pride brighton, disabled student allowance, dsa, ep, family, fanfiction, films, friends, guitar, hamilton, home recording, honest, honest ep, interview, lockdown, lockdown 2020, masters, masters degree, masters degree in songwriting, masters part time, meltdown, meltdowns, mental health, mental health in lockdown, mental illness, meteor shower, movies, music, music theory, netflix party, obsessive compulsive disorder, ocd, online concert, pandemic, pandemic 2020, pandemic anxiety, part time masters student, part time student, photo albums, piano, recording, remote writing session, research, research study, singersongwriter, songwriter, songwriting, sounds like hope, sounds like hope music video, student, taylor swift, therapy, tv show, uk lockdown, university, zoom, zoom calls
Posted on August 29, 2020
I hadn’t intended to do another of these posts so soon but again, when I looked back at my diary at the end of the week, it felt like another very different week in my experience of lockdown. I guess I’m just trying to represent my experience of this time – and the variation within it depending on both the internal and external circumstances – as accurately as possible, for myself as much as anyone else.
The week in this post started on Monday 3rd August and ended on Sunday 9th August.
I was up by eight thirty and already at work. I planned out my week and then more specifically my day in my bullet journal before clearing my email inbox of rubbish and attending to the rest.
Next, I got to work on the ‘Back To Life‘ music video. Richard had sent me the first draft and I went through it clip by clip, making notes on what I liked, what I didn’t, any changes I wanted to make, any suggestions I had (all against their time codes). It’s not the most fun job in the world: staring at your own face for hours can get pretty draining, whether you’re a self conscious person or not, but I got it done and sent my notes back to Richard.
My main plan for the day was a writing session with Richard but I had a bit of time before our start time so I did some work on my next blog post before setting up our Zoom meeting. We’re working on multiple projects at the moment and we’d planned to work on some of my stuff that day. There was one song we’ve been working on for a couple of sessions now but while I liked the sound of the production, it just didn’t feel like it was the right mood for the song. So I made the slightly terrifying suggestion of starting over and coming at it from a different angle. That’s what we ended up doing, using different reference tracks and instrumentation. It sounded so much better by the time we called it a day.
We also spent a bit of time working on a second song, creating the basic shape of the track and deciding what sort of instrumentation fitted the mood of the song. So it was a very productive session, a very productive four hours.
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We hung up and I stretched out on the sofa, exhausted. I love writing sessions, whether they’re focussed more on the song itself or the production, but I do find them tiring and especially so when we’re working over Zoom. It’s just that bit harder to translate your ideas to the other person when the time lag complicates your communication or you can’t point to something on their screen and so on. I’m grateful that we can have our sessions at all but I do find them harder than face-to-face sessions and greatly look forward to it being safe to have those again.
I spent the afternoon and evening working on various blog posts with the TV on in the background. It was nice and gentle but I was still being productive, which definitely helps with my mental health and in turn, my ability to manage this period of time in general. Then I did some catching up with my diary before getting ready for bed.
I was just finishing up when I got a text from Richard with an MP3 attached, the song we’d spent most of our session working on. After our initial struggle with it, I was amazed by how good it sounded, how perfectly the new production fitted with the song. I went to bed, excited and proud of what we’d achieved.
Me and Mum got up early and headed for the nearby woods for a dog walk with one of our friends. She’s just recently gotten a rescue puppy (who is utterly gorgeous) and as well as seeing each other and catching up, she wanted some advice from us as (previous) dog owners. I had been really looking forward to it but I was also anxious about going out (a constant anxiety still) and then I almost had a meltdown, triggered by difficulties with managing my mask and my glasses. I don’t know if any of you fellow glasses wearers have struggled with this but my glasses rest right where the wire of the mask is and I constantly battle with keeping them both functional and at least somewhat comfortable. I’ve since bought a mask that doesn’t have a wire as my glasses keep the top in place but for this particular walk, I ended up doing a lot of it without my glasses, which (had everything been normal, wouldn’t have bothered me all that much) just added another layer of stress because I really had to focus on where I was putting my feet – I’m so short sighted that even the ground is very blurry without my glasses.
I hate sounding so negative over what was a really lovely walk – it was just an unexpectedly difficult start. It was wonderful to see this friend again and it was so nice to have some dog time, especially puppy play and cuddles. I’ve missed our dog so much since we said goodbye to him in January but I doubt any of us will be ready for another dog for a good while so this was a nice compromise. My anxieties aside, it was a very pleasant way to start the day, although I was a bit knackered afterwards. Exercise is an area that’s really suffered for me throughout lockdown so I think it was a bit of shock to the system.
We came home and I ended up having a pretty quiet day. I mainly worked on catching up with my diary – my Moby Dick – and spending time with my Mum. We’re usually pretty independent during the day and then come together in the evenings but that evening I had a movie date with a group of friends.
At seven, we started our video call and ended up spending an hour catching up and just chatting, which was really lovely. It’s been a long time since our last date for various reasons so there was a lot to catch up on and I think we’d all just missed each other’s company. Speaking for myself, I know that I’d really missed them and was just delighted to see their faces again.
Eventually we stopped rambling and got into the movie. We’ve been binging the Studio Ghibli films and this time, we watched Laputa: Castle in the Sky. I absolutely loved it. I loved the story and it was just so beautiful – I mean, they’re all beautifully animated but this one seemed particularly stunning. It’s definitely at the top of my list of Studio Ghibli films. We talked about it a bit afterwards and while we’d had differing opinions on the last film (Kiki’s Delivery Service), we all really enjoyed this one.
When we said goodbye and hung up, it was getting pretty late so I started getting ready to go to bed. I’m not sure if I’ve mentioned it already but over the last couple of months, I’ve been struggling with really bad pain in my arms, from shoulder to finger tips. That night, my right arm and shoulder were really, really hurting and even though my Mum gave me a massage, it was still really bad and made it difficult to get to sleep.
I slept really badly because my shoulder was so painful. Every time I rolled over and put my weight on it, I woke up and had to readjust my position and then get back to sleep again. It wasn’t a restful night and I really struggled to wake up. As soon as my brain was fully awake, I felt the anxiety kick in; I just felt so overwhelmed by how much I feel like I have to get done before university starts, in whatever form that takes.
The pain in my shoulder only got worse as I used my arm so my Mum worked out a schedule of painkillers to keep the pain at a minimum and keep me using it so I wouldn’t seize up or start compensating with the other shoulder. It’s been a problem for a while but since it’s only getting worse, we decided to call my GP the next morning and try to get a Zoom appointment.
I did some admin for the upcoming release of my new single, ‘Back To Life,’ and then settled in to work on my photo albums. After finally finishing the organisation of my photo library, I’d selected the photos I wanted for my physical photo albums (which were about eighteen months out of date) and sent them off to be printed. They’d arrived that morning and so I went through them, slowly getting them in chronological order. It took all afternoon and I still had to put them into the albums but it was very exciting to be so close to finishing such a mammoth job.
Early evening, I did some more admin work, replying to some emails, and listening to some songs a friend had sent me to give feedback on. I’d left it a bit late in the day to do the whole lot but I managed to do an initial listen to all of them to get the overall vibe and an in-depth listen of a couple, making detailed notes of my thoughts and suggestions. So it was a productive evening.
Then me and Mum had dinner in front of The Mentalist, which we’ve been rewatching for a couple of weeks now. I love the show but I particularly love its second life, with the FBI team rather than the CBI team. *Spoiler Alert* We’d reached the episode where Vega dies, where they attend her funeral, and Jane and Lisbon discuss the future of their relationship when they work such dangerous jobs. It’s a heartbreaking episode and even though we’ve both seen it multiple times before, we both sat there with tears streaming down our faces. What can I say, I get attached to fictional characters. Like, very attached.
It had been pretty hot all day so it took me a while to get to sleep. I don’t do well in the heat so I was dreading the predicted heatwave.
One of my cats, Lucy (or Queen Lucy as we often call her due to her being the cat we’ve had the longest and therefore the cat that rules the house), woke me up at four, yowling loudly as she played with a toy. At almost any other time of day, it would’ve been very cute but at four am, not so much. It took me ages to get back to sleep.
I got up at nine and finished listening to the songs I’d started working through the night before. I wrote down all my feedback for the remaining songs and then listened to them all again to see if any new thoughts came to me. I also included questions about various lyrics and production choices, challenging the meanings and choices so that everything would be really tight and cohesive. I was deliberately picky, as my friend had asked me to be (sorry, I’m being deliberately vague about who it is because I don’t want to announce anyone’s project before they have). As good friends, they trust my critique, rather than feeling like I’m being critical; we’ve worked together a lot so we trust each other to just want the song to be the best song possible.
That done, I spent a couple of hours catching up with my diary (I’m just so behind at the moment) and then had my therapy session at four. We spent most of the hour just catching up on the week and talking about how I’d managed the challenges and the difficulties that had come up. With the pandemic, we’re doing A LOT of distress tolerance. I do wish we could move forward and work on some of my long standing issues but from past experience, I know that when you start to unravel some of those things, you often feel worse before you feel better and I just don’t think I can handle that right now. I’m just about managing to cope day to day and I really don’t want to make things worse for myself when I’ve worked so hard to even get to this point with the pandemic going on.
I FaceTimed with one of my parents while my Mum had the Zoom appointment with the doctor. I still struggle with talking to doctors, I’m still figuring out how to do Zoom meetings with new or less than well known people, and I struggle with communication in general. So me and Mum talked about everything we wanted the doctor to know and then she did the call. She was on the computer for a long time but when she came back, she did have some good news although a large chunk of the plan does involve waiting, which I’m not super thrilled about. But my doctor has adjusted the medication plan a bit (she’ll prescribe me something stronger if it continues to get worse but for now, we’re sticking with over the counter stuff to avoid extra side effects) and referred me to occupational rheumatology where they’ll probably fit me for support braces or refer me on to physiotherapy or both. But that’s unlikely to happen for a while. So pain medication, massage, and trying to build or improve habits that at the very least don’t make the pain worse. I’m limited exercise wise by not being able to swim but we’ve set up a rough badminton court in the garden to allow for some gentle exercise, especially for my arms and shoulders.
Me and Mum had an early dinner with The Mentalist. *Spoiler Alert* We’d finally reached the final episode where Jane and Lisbon get married and it’s so lovely to see them all so happy, especially Jane, after going through so much sadness and struggle. I wasn’t convinced by their relationship at first but then I fell in love with it and watching the wedding scene usually results with me grinning like an idiot or actually crying at how sweet it is.
I was just thinking about going to bed when Richard texted me to remind me that we were announcing the release of ‘Back To Life‘ the next day, which had somehow completely slipped my mind. I swear, the pandemic has completely messed with my head – life pre-pandemic feels a bit like a dream and the way we did things feels kind of hazy. So suddenly I was in a panic about what to say when I announced the release of the song, especially one with the title ‘Back To Life’ during a pandemic (something that’s been bothering me for a long time). So I ended up spending more than an hour (at least) figuring out how to say what I wanted to say and how to say it in the best way possible.
I finally got to bed around midnight but it was so hot that, even after I discarded my duvet, it still took me a long time to get to sleep.
Lucy was gracious enough to let me sleep until five this time before waking me up, chasing a toy around my room, and then I couldn’t get back to sleep as hard as I tried. It was very frustrating.
When Mum got up, we had breakfast and rewatched *Spoiler Alert* the wedding scene in the final episode of The Mentalist, grinning like the sappy idiots we are. No regrets. It was a nice, positive way to start the day, watching characters you love get their happily ever after.
I spent the morning working on my blog post about JK Rowling’s recent transphobic comments and how complicated it is to reconcile a childhood hero with the problematic person they are in the present. I’m absolutely not condoning what she’s said or making excuses for her – if you’ve read the post, you’ll know that I refuse to support her while she makes such insensitive, harmful statements – but I also wanted to comment on some of the other connected issues. While her transphobia is without question the most important issue here, there are multiple points within the overall problem, like how her prejudices may have bled into the books and how difficult it is to make sense of these two different versions of her. I wanted to explore as many of these thoughts as possible.
It was so hot by the middle of the day that I felt like I was melting; I didn’t want any part of my body to touch any other part. It was horrible. Thank god for the fan I bought a few years back. I was reluctant because it was pretty expensive but having had several unbearably hot summers in a row, it’s been amazing; I would’ve been unable to function without it. I’ve only just been functional with it.
Early afternoon, I had a Zoom session with Richard and we mapped out a more detailed plan for releasing all the content around ‘Back To Life‘ before working on some of his music. We’ve always been a well matched pair because while his strengths are more musical, mine are more lyrical and so we’ve always been able to support each other really well. That’s one of the things that’s always felt really special about our working relationship.
Eventually I got too tired to do much good, so we scheduled another session and I had a rest, doing some blog writing with the TV on in the background.
In the evening, one of my parents – who, I guess, is in our bubble – came over and, while I don’t think you have to social distance if you’re in a bubble, we had dinner and hung out, still keeping a certain level of distance. The three of us are continuing to remain pretty isolated but it still feels sensible to stay somewhat distanced for the most part.
At seven o’clock, my alarm went off and I posted my announcement on my social media accounts…
View this post on Instagram
The fourth single from the Honest EP, written with the amazing @scottcolcombe (and produced by @laurend_d and @richardmarcmusic, who are both incredible), will be released on the 14th August! SWIPE TO SEE THE TITLE ➡️ Given the difficult and often distressing times we’re currently experiencing, I seriously considered delaying the release of new music, especially as we reach the more upbeat songs on the EP. But I didn’t want to leave the story half told. This song represents the upward turn after a painful chapter of my mental health and it feels important to include because while there are brutal lows, there are also wondrous highs. They’re all important and all part of the journey.
A post shared by Lauren Alex Hooper (@laurenalexhooper) on
That done, I felt able to be more present and enjoy the evening and although I was really tired, it was really nice to hang out with my parents. With times such as they are, I never take those moments for granted, especially since I’m not able to see all of my parents yet, together or apart. We don’t have to DO anything in particular; it’s just so nice to be together and talk face to face. It’s still so ingrained in me to greet people with a hug or squeeze their hand that I have to actively struggle against those automatic motions but it doesn’t make me want to burst into tears anymore. I’m just really looking forward to being able to do it again.
When she left, me and Mum settled down with Rizzoli and Isles, another show we haven’t watched in years, and I did some blog post writing. I absolutely agree with the philosophy that our productiveness isn’t tied to our worth as people – I wouldn’t debate that for a second – but I’ve also discovered that being productive plays a massive part in managing my mental health, even if it’s as simple as watching a movie that I’ve wanted to watch for a while but not gotten around to doing so. I guess it just depends on your definition of being productive – I don’t necessarily equate it with ‘producing’ something; it’s just doing something that I intended to do. If I intend to have a quiet and restful day and I do, then I have been productive.
I woke up far too early, which was annoying because I was still tired and sleepy but I definitely enjoyed the cool and the quiet. It’s my favourite time of day – before the world wakes up and starts rushing around, making so much noise – and we were due for another really hot day so I relished the cool air.
I had as quick a scroll through my social media as I could manage, having not been on it for a couple of days (apart from posting about ‘Back To Life‘). As I’ve said previously – during this time – it’s been better for my mental health to stay away from social media but then I do miss seeing what my friends and family are up to. So I’m trying to find a balance and for the most part, I think I’m doing okay.
That done, I settled into the living room and got to work, putting Friends on low for background noise. I posted my blog post about exam results and then spent the rest of the morning working on other blog posts.
By the middle of the day, I was really struggling to do anything because it was just so hot. I felt like I was melting and my brain seemed to be functioning very slowly, not unlike my laptop, which was definitely overheating with the fan whirring loudly. So I decided to take a break and work on something that required much less movement and brain power: slotting my newly organised photos into my albums. I also used the time to watch a film from my To Watch list – one of my New Year goals was to consume more new content rather than just familiar favourites and the lockdown has a good time to do that. It’s been good for me in other areas too. I’ve been challenging my songwriting skills and trying to write from the perspectives of different characters instead of just from my own life experiences and finding new characters and stories that inspire me has made it a really enjoyable practice.
I ended up watching Fantasy Island (mainly because I love Maggie Q), where a group of people arrive on a tropical island after winning a competition, their prize being to have their greatest fantasy fulfilled. I’d seen quite a few negative reviews of it but personally, I really enjoyed it. It wasn’t life changing but it was interesting and the twists and turns were cool. It was good entertainment and made for a mentally restful afternoon.
In the evening, me and my Mum had dinner together with a couple of episodes of Rizzoli and Isles and I spent a couple of hours working on blog posts. As usual, I put off going to bed, partly because my room was so hot. Again, thank god for my fan.
I slept long and deep, a welcome experience after months of restless sleep at best. I did have some strange dreams, but not disturbing ones. One included a storm cloud on fire, which was incredibly beautiful – much better than some of my previous dreams. I didn’t get up until almost ten but then I dived into the day, intent on being as productive as possible.
I finished my previous week-in-the-life post and then had a music lesson with one of my parents. We worked on the chords for two of the songs I’m working on and then had a long conversation about reharmonisation and how that works. I learnt about that during my BA by only briefly and that was several years ago so, with the Musical Language module coming up, I definitely needed a refresher. We might need to go over it again just to give me a quick reminder but I feel like I’m pretty solid on the basic principles. So that was good to do.
By the time we finished, it was so hot that I didn’t want to move. I lay on the sofa and watched the second series of Liar. It had been airing when we went into lockdown and it just slipped my mind; it only came back to me a month or so later and by that time, it was gone from ITV On Demand. I’d resigned myself to never knowing how it ended but then it popped up on Virgin On Demand. So I watched that through the heat of the day. It wasn’t the best show ever – I felt like there were quite a few inconsistencies and plot holes – but I was glad to see how it ended. Plus I used the time to continue adding the captions to the photos in my albums. So, considering the heat, I feel like I was pretty productive. Oh, and I also posted the first teaser for ‘Back To Life‘ on my social media.
We ended up eating dinner outside on the deck in the cool darkness and then we went inside to watch Rizzoli and Isles with some much appreciated ice cream. I kept working on the photo album captions, making it to March 2020. I was almost giddy with glee at being so close to the finish line.
That giddiness shot through the roof when I checked Instagram to see how the teaser was being received and saw that Desmond Child (writer of Bon Jovi’s ‘Livin’ on a Prayer’ and Ricky Martin’s ‘Livin’ La Vida Loca’ to name just two of his more famous songs) had liked it. I have no idea how he found it but it all but short-circuited my brain. I mean, he’s in the Songwriters Hall of Fame! So that was very, very cool.
This is the screenshot I sent to Richard…
It took me a long time to come down from that high so I didn’t get to bed until midnight. I’m really not doing well with this whole go-to-bed-early plan.
I’m always hesitant to say stuff like this – probably because of a leftover childhood superstition that I’ll jinx things – but I do feel like I’m coping better mentally, that I’ve found a way of managing things day to day. I mean, I’m still not able to read or focus on anything involving big chunks of new information for extended periods of time but generally, I feel like I’ve found a routine that’s working for me. I’m still really struggling emotionally but I don’t think that’s really going to change until it truly starts to feel safe again. The fear and anxiety is just a constant presence in my life that I try to manage, to varying degrees of success.
Category: animals, anxiety, autism, covid-19 pandemic, emotions, meltdowns, mental health, music, sleep, therapy Tagged: a week in my life, actuallyautistic, anxiety, asd, autism, autism spectrum disorder, autistic meltdown, back to life, back to life music video, blog writing, blogging, castle in the sky, cat, cat family, coronavirus, covid-19, cowriting, dbt, degree, degree in songwriting, desmond child, dialectical behaviour therapy, diary, diary writing, distress tolerance, doctor, doctors, dog, dreaming, dreams, face covering, face coverings, face mask, face masks, facemask, facemasks, facetime, family, fantasy island, fatigue, film, friends, glasses, heatwave, indie artist, indie pop, indie release, jk rowling, journaling, laputa: castle in the sky, liar, liar season 2, lockdown, lockdown 2020, massage, masters, masters degree, masters degree in songwriting, masters degree year two, meltdown, mental health, movie, music lesson, music video, musical language, netflix party, new music, new music uk, new release, new single, pain, pandemic, pandemic 2020, pandemic anxiety, pet, photo albums, photo library, pop, production, productivity, reharmonisation, remote writing session, rescue dog, richard marc, richard marc music, richard sanderson, rizzoli and isles, self isolating, self isolation, singersongwriter, singersongwriter life, sleep, social distancing, social media, songwriter, songwriters hall of fame, songwriting, songwriting degree, studio ghibli, the mentalist, therapy, transphobia, tv show, unsigned, unsigned artist, video editing, week in my life, writing session, zoom, zoom calls
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.