A Week In My Life (September 2023)

Somehow, getting a puppy has made my life both more and less busy. I’m constantly on the move – following her around, chasing her, playing with her – but my life is quieter – she’s so young and still getting settled so I don’t want to leave her – so I may have found a somewhat unusual way of doing less, out in the world at least. Having her around means that my day-to-day life ricochets from full on and exhausting to quiet and chilled out. It’s been a bit of an adjustment but I think it has given me a chance to recoup a bit. A bit. I’m still trying to get a lot done – I don’t think my relationship with productivity is particularly healthy – but Izzy comes first, especially while she’s so young, so this period of time with all of this change has been more than a little disconcerting. Izzy is, of course, worth it; it’s just taking me a while to adjust.

The week in this post started on Thursday 14th September 2023 and ended on Wednesday 20th September 2023.


THURSDAY

Since the arrival of Izzy, I’ve been brutally forced to become a morning person, having previously slept in until after nine (usually due to staying up far too late – Revenge Bedtime Procrastination is my nemesis). But Izzy is an early bird and takes great pleasure in waking me up at six thirty and trust me, if you’ve never had a young puppy, you need to get up and sort them out; she’s still learning to use the puppy pad and a few extra minutes with your eyes closed is not worth the potential clean up.

So I dragged myself up, took her downstairs, and gave her breakfast. I managed to inhale some fruit salad (my current hyperfixation food – something I’ve never experienced before) while she ate and then put down the cat food, removing myself and Izzy so that they could eat in peace: Izzy has a bad habit of bouncing up to them with great but apparently terrifying enthusiasm, which has them running for the cat flap; she’s desperate to play with them but I think they interpret that playful behaviour as scary and unpredictable so the bonding is going pretty slowly (one of the cats, our matriarch, does put her firmly in her place though – one down, four to go). Upstairs, I played with Izzy for a bit, letting her burn off some energy and then did my Duolingo practice and physiotherapy exercises.

Mum had taken Lucy to the vet for a check up post a small surgery she had a few weeks ago and she came back with a clean bill of health. We released her and then raced out of the door, got in the car, and headed for the hospital for my hydrotherapy appointment. The drive gave me the chance to just sit and reply to the various messages that needed responses; I feel like my brain has been so full recently that it’s been hard to focus on smaller tasks, like messages and emails. Maybe it’s an ADHD or Autism thing; given how close I’ve felt to burnout over the last few months, it wouldn’t surprise me.

I was a little late for the appointment because we couldn’t find anywhere to park, disabled space or not, until the last possible second and then, when we got in, we discovered that the towel was still at home, hanging on the radiator after swimming the night before. Fortunately, they were prepared for that eventuality. But apart from those few mishaps, it was a really good session. The exercises I got about eighteen months ago – between finding the right pool to work in and waiting for the follow up appointment, it’s taken this long to get to this point – have become easy so the hydrotherapist suggested a few ways to increase the resistance. Between those and the physiotherapy exercises, I’m working pretty much my whole body so we added a series of core exercises, given that that area of the body is a real weakness for people with Hypermobile Ehlers-Danlos Syndrome; it made sense to be putting extra work into those muscles. We ran through each of them in turn and the hydrotherapist (the same one I’d worked with last time) said how impressed she was at how hard I’d clearly been working, how committed I’ve been (apparently it’s not uncommon for people to just do the exercises a few times and then, unsurprisingly, not progress). That meant a lot to me because I have been working really hard over the last year, even when I didn’t want to. I obviously didn’t do it for the praise but it was really nice to have the work recognised and acknowledged by someone who knows what they’re talking about. With the new exercises under my belt, I feel really good about the work I’ve done so far and really motivated to keep going.

Back home, Izzy was delighted to see me, which was very sweet; she was positively trembling with joy. I let her out of her crate (we are attempting to crate-train her and she’s taking to it fairly well) and we played with various toys for a while before I crashed on the sofa and accidentally fell asleep; between the hydrotherapy and chasing after Izzy, I was exhausted.

I slept for a couple of hours and then dragged myself up for some food and caught the train to London. Barely a week earlier, I’d joined an online creative workshop run by the arts organisation, Magical Women (run by and for neurodivergent women and non-binary individuals). The atmosphere was really positive, everyone was really nice and supportive, and I felt really included, despite it being my first session. After that workshop, I got an invitation to the private view of the founder’s new exhibition, Biodiversity of Sites and Sounds by Elinor Rowlands. I didn’t have much experience of the organisation and the people involved but they felt like a group I wanted to be a part of so I rearranged my plans and hopped on a train to London.

The gallery was gorgeous. I love more abstract styles and pieces of art. I love how they’re completely open to your interpretation: what they are, what they mean, and what they make you feel. I really liked Elinor’s work and ended up pouring over the postcards, trying to not just buy one of each canvas.

I met some really lovely people too and it felt like a really safe space with pretty much everyone in attendance being neurodivergent. That was a nice ratio for a change. I was a little disorientated, having gotten lost on the way, and so I was struggling a bit with how to join in the socialising but fortunately everyone was really friendly and I was quickly included in multiple discussions. It was really, really nice and if I hadn’t had to catch a train back home, I would’ve liked to have joined them all in the pub after, most us having stayed until the exhibition closed.

And that was when it all went wrong (and becomes blurry, as meltdown and almost-meltdown experiences often become afterwards). I was standing at the lift with the last group of people when I realised I didn’t have my leather jacket, my favourite jacket and the one that I wear everywhere; it’s a deeply important and confidence-boosting piece of clothing. I retraced my steps and when I still couldn’t find it, I searched the whole floor, getting increasingly more panicked. Given how late it was, there was no one around and my group of people had already left so there was no one to ask. I called my Mum, sobbing and hyperventilating, and she tried to calm me down enough to make a plan, but then I was locked out of the building and I was overwhelmed with the feeling that my jacket was gone forever: I could’ve left it somewhere inside or on a wall during one of the many moments I’d stopped to check my map app. I was frozen: I couldn’t think and I was struggling to talk; I couldn’t take deep breaths so the hyperventilating continued; I couldn’t move but I was shaking; I felt completely overwhelmed by every light and every sound and every movement, like a car or a motorbike or a person, startled me, feeling so sudden and completely unpredictable and like I couldn’t keep track of them all; I felt extremely vulnerable; and I felt so ridiculous and stupid (I remember calling myself ‘a fucking idiot’ over and over again, for losing the jacket and for caring about it so much in the first place). I had to wait ages for a bus back to the station and despite the amount of people, no seemed to notice my trembling or hiccuping sobs.

Somehow I managed to get back to the station and catch a train home. Between the lack of jacket and the exhaustion of the almost-but-not-quite-meltdown, I was desperately tired and quickly got cold. The journey felt very long but eventually we pulled into the station and Mum was waiting for me at the barrier, Izzy bundled up in her blanket like a little puppy burrito. Despite everything, the picture brought a smile to my face.

Back home and snuggled up on the sofa with Izzy, I continued my New Tricks rewatch (an old favourite – although there are moments that would never have been written now) for an episode or so before going to bed; I just needed some time to decompress (and get warm) before I tried to sleep.


FRIDAY

I struggled up early and sorted out Izzy: she’s doing so well that I can’t really complain but I’m finding the aggressive shift from ‘late sleeper’ to ‘early bird’ pretty tough. Anyway, as I said, Izzy was really good, eating all of her breakfast out of her bowl (rather than refusing anything but hand-feeding) and using the puppy-pad perfectly. She’s such a good girl and she’s so adorable and happy when we praise her: she’s so pleased with herself.

I had a quick shower and then headed out for a meeting with a mentor I have as part of an organisation dedicated to supporting autistic individuals post-education. For a number of reasons, we’ve been very slow to get started but now we’re finally meeting on a regular basis. She’s really nice and because she’s neurodivergent with a lot of the same health problems as me, she understands me in ways that a lot of people don’t. I’m still not sure about how the sessions are supposed to help but we’re still getting to know each other and I guess it will become clear in time. This doesn’t really feel like the time or place to discuss the sessions, if only because we’re still so early in the process, but there was one thing I wanted to note: we’ve changed rooms and in this new room, there’s carpet on the wall – presumably for soundproofing – but it looks like grass, dark green and shag-like pile, and I was instantly compelled to touch it. There was just something so pleasing about it and when Mum picked me up at the end, I… expressed my desire to have a similar set up. Very enthusiastically. I do need to soundproof my space better to improve my vocal recordings after all… She’s unconvinced.

Back home, I briefly caught up with two of my parents over FaceTime before having a lie down on the sofa, Izzy curled up with me. I was completely exhausted and the gentle, repetitive stroking of her soft puppy fur almost put me to sleep. I’d hoped to get some writing done before my friend, Dan, arrived but apparently I was just too tired. And Izzy is deeply distracting (which I’m sure she knows and relishes). But such is life. Izzy was delighted to see Dan and Dan was delighted to see Izzy; he really loves her and she really loves him. It’s very cute. They were instantly playing and it was very enjoyable to watch.

We’d had vague plans to continue our Fringe rewatch etc, but we literally ended up playing with Izzy and chatting. I’m not complaining though; it was really, really nice. Something that I love about our friendship is how we can just talk and talk about pretty much anything – from the newest odd facts we’ve learned to how our week has been to some of the deepest stuff possible – for hours and hours and while we can be deeply serious, we also laugh a lot. It’s really lovely and I’m so grateful for this relationship that we’ve built.

So it ended up being a very chilled out day. We dropped Dan off at the station early evening and then came home and stretched out in the living room. I was really tired but it was much too early to go to bed so Mum and I continued our New Tricks rewatch and I finally posted about Izzy on social media…

We had a particularly good fish and chips for dinner and although I tried to do some writing, I really didn’t achieve much. I couldn’t concentrate and I just couldn’t get comfortable; it certainly doesn’t help that the desk I use when sitting on the sofa has all but collapsed and basically pins me to the sofa. I need to get a new one but I haven’t found any that have adjustable legs, which is kind of key in my experience. Hopefully one will pop up in my searches soon.

Izzy did interrupt the peace of the evening when she swiped the kitchen roll off the sofa and proceeded to unroll it all over the carpet. It was very funny – she was clearly having an absolute ball – but it took ages to persuade her to let go and tidy it all up. Again, I can’t really complain: it was so cute and Izzy is so excitable and, on the whole, it wasn’t a huge hassle. It’s hard not to be touched by her innocent wonder and pure excitement about the world. Everything is fun; everything is an adventure or a game.

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She had a good ten minutes of zoomies, which is always very funny and very adorable. Having said that, it did then devolve into barking and nipping, which I was not pleased with, and I don’t enjoy telling her off, even though I know it’s what she needs to understand what she can and can’t do. I got ready for bed, letting her run and run and run – hopefully burning off the last of her energy (it’s not long until we can take her outside and to the park, thank goodness). I was in bed and finishing the last of my diary notes when she finally calmed down and came to me, asking to be lifted onto the bed. She wandered around for a little bit and then stretched out across my legs, falling sleep. Little weirdo. It looked so uncomfortable but she seemed perfectly content. Having her there was very comforting: I was feeling very overwhelmed and unprepared for everything coming up and her heartbeat, her breathing, and her warmth were very soothing. It didn’t solve anything – that would be a pretty big ask – but I did feel a little less panicked for her presence.


SATURDAY

Izzy got me up early, as is my new normal, and then we settled into the living room, where I threw toys for her for a little while. Then I got my new blog post up (Introducing Izzy!) and then had a shower and got dressed before taking Izzy out to the vet for her first vaccine. She handled it really well. The vet also advised that she get her microchip – in case she rushed out or got loose between the house and the car, for example – so we did that too. She wriggled a bit at that but it was a really big needle; it must’ve hurt! But she got lots of treats and attention and it wasn’t long before she’d recovered. They also weighed her and she’s only 1.4kg! She’s tiny! And with that, we headed out, buying her a new toy on our way: a dragon that may or may not be bigger than her.

Back home, I did some admin work, including posting about my upcoming gig, which I’m really excited about…

After a couple of hours, I had to stop and have a nap. I’m so tired at the moment that a middle-of-the-day nap is pretty vital in order to stay functional and, to be honest, I’ve been so tired that I don’t really have a choice in the matter. I can struggle to stay awake longer, not getting very much done, or I can surrender to sleep and hopefully wake up with a bit more energy to keep going. This started with Izzy’s arrival and I think the early mornings (and lack of change around going to bed late) has been catching up with me. I guess it’s fortunate that my life is generally flexible enough to accommodate that adjustment.

I spent the afternoon working on blog posts and then had an early dinner before signing in to the new Amanda Tapping livestream through The Companion – I’d like to write it up like I did the last one, but this post isn’t the place for that. It was as lovely an experience as it was last time: Amanda is such a warm, open person and such an engaging speaker, able to move seamlessly between funny and thoughtful. But most of all, she’s so honest and talks about really vulnerable moments and feelings, sharing them with such trust; it’s hard not to feel honoured and even a bit overwhelmed by that. The relationship she has managed to cultivate with her fans – over decades and through multiple different projects – feels so special and so sacred, one that she holds as much reverence for as we do. She and the host, Rebecca, talked for a while, about mental health and self care, Amanda sharing the story of her daughter leaving for university and her emotions around that, how much letting her friends be there for her has helped both her mental health and their friendships. She talked about crying a lot, mostly in positive terms, and how helpful it can be. But the thing she talked about that hit me hardest, that resonated most, was when she talked about self worth: she talked about how low her self worth had become and how she hadn’t felt worthy of taking care of herself, that she had had to work really hard to feel worthy of self care again. That made me very emotional: I hate the thought of her feeling like that but, again, I felt somewhat overwhelmed by the fact that she was sharing that experience with us. I feel very lucky to have found her all those years ago, to have such an amazing person to look up to.

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Then, in response to questions from people watching, she talked about various topics, including how she’s struggled with guilt as a mother, how she would – and sometimes still does – talk to her Mum as if they were talking on the phone when she misses her (she died in 2021), and how she practices self care. And then they were having to wrap things up. It went by so fast, everyone agreed – Amanda, Rebecca, and multiple people in the chat. But it was really lovely and really special and they’re planning to do another one soon-ish.

Having met Amanda pretty recently at London Film & Comic Con and having felt so buoyed by the experience, I couldn’t resist getting a meet and greet for after the livestream; the money was going to charity after all. So, after the livestream ended, everyone with a meet and greet (a short Zoom call with Amanda in groups of four) logged into Zoom to chat until our time slots. I’ve never done anything like that and I didn’t know how to make it work and I was starting to get really panicked about not being able to get into the call when I finally figured it out; once in, I had to just sit for a little while, trying to calm down and compose myself. I hadn’t known what to expect but (fortunately for my anxiety levels) it was really nice, everyone chatting and holding various pets up to the camera; there was something so communal and easy about it, all of us connected through our shared love of Amanda and her work. But then suddenly it was my group’s turn and I was overwhelmed by anxiety again. I didn’t know how it would work with four people, especially with so little time, and I didn’t want to ‘waste’ my opportunity to talk with her. I have such respect for her and she means so much to me that I really didn’t want to make a fool of myself or just say something completely forgettable. But fortunately, she always makes it so easy to be open, even though I was feeling so anxious and fragile; it’s the same on screen as it is in person. And having Izzy in my arms was both good for my anxiety and as a conversation starter: Amanda and I joked about the extremes of our dog owner experience, Amanda’s dog being a huge Bouvier mix and Izzy being a tiny Pomchi (Riley was apparently about 8.5kg at 8 weeks while Izzy was barely 1kg at the same age and likely won’t get bigger than 5.5kg). Very different experiences. We did talk about more than our dogs but I’m still turning the rest over in my mind. I don’t know how she does it but she manages to get everything else to fade away, making it so easy to talk to her, and it always feels like you have her complete attention, which is a bit overwhelming but also so moving and special. And then, all of a sudden, it was the next group’s turn. I knew the meet and greets weren’t long but it was pretty jarring, especially given the time it had taken me to get settled. But it doesn’t matter; I’m really grateful for the experience.

I have such intense anxiety when doing things like this that my adrenaline is sky high during the event and for a while after before crashing spectacularly. And even before that happened, I was exhausted. So I tried to be sensible and, instead of trying to keep working, I had some chill time in front of the TV and had a little scroll through social media. Having drastically reduced my time on it, I actually enjoy it more now, for the most part.

Given how tired I was, I actually went to bed fairly early – for me, at least. Izzy was clearly having her nighttime zoomies and, no matter what I did, she couldn’t seem to stop running circuits around the living room. It’s very cute and very funny – she seemed to be having a ball, pun kind of intended – so I left her to it and got ready for bed by myself. It wasn’t long until she joined me and snuggled up as close as she could get, another adorable habit of hers. Soft and warm, she’s lovely to cuddle up with.

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Unfortunately, I couldn’t sleep and was still awake at two. I took a break from trying to sleep for a while, looking up poetry and writing challenges online for inspiration, and then eventually managed to drift off, dreading the early start.


SUNDAY

Izzy clearly hadn’t noticed my nighttime restlessness and was licking me awake just after seven. I struggled up and got her sorted with breakfast and a new puppy pad before we settled in the living room. We played for a while – she picked up ‘fetch’ so incredibly fast – and then she curled up for a snooze while I did my physio and Duolingo and other daily tasks before getting down to writing for a bit.

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Me and Izzy spent most of the day like that, taking breaks for meals and playtime. It was a nice quiet day, which I appreciated after the short night.

Late-afternoon-early-evening, I headed to the pool for a swim. Without too much effort, I managed to swim a kilometre – the longest I’ve swum in years – and do the hydrotherapy exercises that are possible in that pool. That was really invigorating and I was really proud of myself, especially for the kilometre: it’s really clear evidence of how hard I’ve been working over the last eighteen months and what a difference that work has made. So, similarly to how I felt after the hydrotherapy appointment, I feel really good about what I’ve done so far and really motivated to keep going.

Izzy was practically vibrating with joy when we got in and I released her from a crate. She’s so funny: she does actually like it and often takes herself off to sleep in there but god forbid someone shuts her in. She gave me and then Mum a hero’s welcome – which is more than a little bit ridiculous but I’m always happy to cuddle with her – before busying herself with one of her toys and I settled down on the sofa again. I put on The Lincoln Lawyer – what a lovely show it is and one of my favourite background noise soundtracks – and did some more blog writing before spending the rest of my evening practicing for my show on Wednesday. I know I’m practicing more songs than I need but there are just so many that I want to play; I’m going to have to make some very reluctant editing of my setlist at some point.

I went to bed feeling exhausted and sore: my knee was hurting after the swim and I was somewhat concerned I’d been a bit overenthusiastic when doing my hydro exercises. My tailbone was also hurting, which is apparently a very common problem with hEDS (the gift that keeps on giving, she says sarcastically). So I took some painkillers and went to bed, feeling less than optimistic about the night ahead. Both of those pain issues have been known to wake me up throughout the night.


MONDAY

As predicated, I slept badly, the pain in my tailbone or one of my knees waking me up every time I moved or rolled over. It was miserable: trying to get back to sleep each time was miserable and waking up completely exhausted in the morning was miserable. The only not-miserable thing about it was that I woke up before Izzy and managed to get some snuggles in while she was still warm and soft and floppy; those moments with her are especially lovely.

Mum was up early and offered to do ‘the morning shift’ and I accidentally went back to sleep, getting another three hours or so, which I definitely appreciated. Izzy greeted me with great enthusiasm when I managed to get up, still sore, and tried to help me with my physio exercises (reduced due to the pain), which – unsurprisingly – wasn’t particularly helpful. But it is always very cute. Then, after some breakfast for me, we snuggled up together while I caught up on some emails and messages. Izzy was getting sleepy, ready for her mid-morning nap, and was beyond adorable, curled up at my elbow. It was very tempting to just abandon my to-do list and cuddle up with her. It wouldn’t be the first time. But I resisted the urge and actually got some work done.

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When I reached a good stopping point, I went to have a shower, sticking my head into my Mum’s room as I passed. Four of the five cats were curled up on Mum’s bed. They love the waffle of my Mum’s duvet but I’m pretty sure the biggest draw is that it’s one of the few comfy places that Izzy can’t reach and so they can chill out undisturbed. I know it’s a process and that they will all get used to each other but I do miss them since Izzy is currently glued to me and they’re avoiding her. I’m also struggling with the fact that she’s obviously creating stress in their otherwise blissfully stress-free lives, the result of a decision I made. I know that it’s super early – too early – to be stressing about whether they’ll ever get along but I can’t help it. I’m trying not to but it still creeps in.

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Back in the living room, I logged into Zoom to attend a writing workshop, one of a series that I’ve been really enjoying lately. My absolute favourite workshop series ended a while back and I’m waiting for their next project to start but this one is really great too; it’s probably my second favourite of the ones I’ve done, certainly as a series of workshops (I’ve done some fun one off ones as well). These ones have more specific prompts but, if your writing wanders off in an unexpected direction that you’re really excited about, you’re encouraged to just go with it and see where it takes you. The overall prompt for this workshop was ‘door,’ which then became more specific after the opening exercises and free-writing. An idea came to me very quickly and the words just flowed so I just let the story happen. I feel like I’ve said this in another post recently but, as much as I love and feel connected to songwriting, I’ve been really enjoying dipping my toes in the fiction pond again.

When that finished, I had some lunch in front of The Lincoln Lawyer before moving to the piano. I spent several hours reworking an old song; everyone loves it and I do too but I just don’t think it’s saying what I want to say quite as well as it could. So I worked on refining it, making each line count and tie into the overall metaphor. I wrote the first draft several years ago now and I know I’m a better songwriter now; I’m confident that I can turn it into a stronger song.

My uni was hosting a songwriters’ circle that evening and although I really wanted to go – several people I really liked were playing – I just didn’t think I had it in me to go up to London again before the show on Wednesday; I needed to conserve my energy and chances were that the train journeys would trigger pain that I wouldn’t have recovered from in time. So I grudgingly gave up on that plan and stayed home, practicing my songs, eating dinner in front of Hijack with Mum, and snuggling with Izzy. She’d been quite hyper and destructive during the evening but when she finally calmed down, she was warm and soft and floppy in my arms. It was very cute and I couldn’t help laughing at the silly faces she made in her sleep…

I tried to get to bed while she was still sleepy but it didn’t work. She got the zoomies (plus she was biting a lot, which was exhausting) so I left her to it and did some diary writing while I waited for her to run out of energy and settle down for bed.


TUESDAY

I kept waking up throughout the night, my tailbone hurting every time I turned over. Every time, Izzy was snuggled up as close as possible, pressed into my neck, which was very cute. When I woke up for the final time, a little before my eight thirty alarm, she was still asleep and I was able to pull her into a sleepy cuddle, which was just too adorable for words. It was definitely a good way to start the day.

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When Izzy woke up properly, we went downstairs as per our morning routine. Then I did some blog writing before having a shower and some breakfast. I had a physiotherapy session at twelve and we went through my current exercises, cutting some, adjusting others, and adding new ones. My physiotherapist is great and really understands hypermobility, which is so helpful; that knowledge makes for a much more productive and motivating experience.

When I got home, I found two of the cats – Sooty and Tiger – curled up together on a chair. I swear they were giving me some serious side-eye over Izzy. While I do feel bad about the stress she causes them, they do seem to have bonded more closely since she arrived, which is really lovely to see: they hang out together, they snuggle up together, they back each other up when Izzy appears, they check in with each other… It is really sweet. Hopefully things will settle and we’ll find a new normal soon.

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I went to the pool mid afternoon and did my hydro exercises as well as managing a bit of a swim. I had a bit of a break when I got home, watching a film (Luckiest Girl Alive – I didn’t love it but I thought the performances from Mila Kunis and Chiara Aurelia were really good) and doing some blog post writing. Then, after an early dinner, I spent several hours practicing for the show and deciding which songs to play, which to hold in case there was time, and which to cut. I didn’t end up going to bed until after one; I’m very glad we don’t have neighbours on that side right now. But even that late, I couldn’t sleep; I think I eventually drifted off around three.


WEDNESDAY

Thank god for my Mum. She sorted out Izzy and let me sleep in (I’d texted her to let her know how much of a struggle it was to get to sleep and that it was making me anxious about managing the day and the gig) so that I would have enough energy for what was going to be a fairly strenuous day. I managed to sleep until almost eleven – which is unheard of these days – and I felt pretty good when I got up. I did some social media stuff and my morning habits and so on, trying to stay relaxed about getting to London and playing the gig – I was mostly excited but it’s also been a while since I’ve done a long set at a gig so I was nervous too. Finding the cats snuggled up together and having some time with them was a nice little break from everything….

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I spent most of the day alternating between practicing and playing with Izzy. And sometimes I did both at the same time…

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She’s so adorable in her confusion over musical instruments.

And I got ready, of course. I had a shower and did my hair and make up. Getting dressed was not as straightforward though: the outfit that I’d decided on suddenly felt wrong and I got very upset, feeling fat and ugly and unfit to be perceived by anyone. I tried various different outfits and different combinations but the damage was already done and it took more energy than I thought I had not to crawl under my duvet and never come out, to get dressed anyway, and leave the house. It was horrible and it wasn’t a bad thing that I had a long drive in which to wall off all of those thoughts. For the night at least.

The drive was long and slow. It had been pouring with rain for most of the day and it just kept raining and raining and raining. It slowed us down on the motorway and caused heavy traffic when we finally got into London. Door to door, it took over three hours – much longer than usual – and even with the buffer we’d built in, I was late for my soundcheck. Fortunately Luce, organiser of the event and my very good friend, had everything under control and made it work (she was a lot calmer than I was when I finally arrived). I got a quick soundcheck in and then people started filtering in. Given how horrendous the weather was, I wasn’t sure how many people would show up but I was almost overwhelmed with joy when so many friends, family, and family friends came. Having some of my closest friends there, including one friend who was moving abroad in mere days, made it so special; I cannot articulate how much it meant to me.

Cora played the first set and it was really cool to see her perform again, to hear the growth in her songwriting, having not seen her play for a couple of years (the last time was, somewhat bizarrely, a show where we were both on the same bill as well). Her songs are beautiful but there was one in particular that I just fell in love with; Cora hasn’t shared it yet and it’s her story to tell so I won’t spoil it but should she release it, I’ll be sharing it everywhere because it was absolutely stunning.

The show went really well and it was so, so special. I’d spent a lot of time thinking about the songs I was going to play and ended up with a mix of old favourites and new ones that I’m really excited about. I got to play the piano for one of them and we even had a fun little sing-a-long at the end, which was so lovely. It felt so, so good to perform again, especially with such an engaged and receptive audience.

Luce was a great host and we had some great conversations about the songs, the writing process, the inspiration, songwriting in general, and so on. I always love to talk about songwriting but I feel like our discussions between songs were really rich and we found ourselves in really interesting places – likely due to our friendship, the long conversations we’ve had, and the stories (both joyful and difficult) that we’ve shared with each other. It doesn’t feel like a stretch to say that much of the audience listening felt the same way, given the vulnerable and touching comments in the review notebook.

You can probably tell from this video how much I love talking about songwriting, as I said a moment ago…

It was over much too quickly and I lingered for a while, packing up and talking to people and hugging friends and family goodbye. But eventually I had to accept that the night was over and that it was time to go home, especially since my Mum was ever so kindly driving me home; it wouldn’t have been fair to make her wait any longer. So we piled into the car and headed home. I had promised to keep her entertained in the car but the adrenaline crash hit me pretty quickly and we’d barely gotten onto the motorway when I fell asleep. I woke up as we drove into Brighton and dragged myself into the house; Izzy was delighted to see us, which was very sweet. I barely had the energy to get my make up off before crawling into bed, Izzy curled up beside me.


What a week… There were some really intense highs and really intense lows and I’m completely and utterly exhausted. I’m going to need some quiet time now, just to decompress and recharge my emotional and social batteries, let alone my physical one (not that that ever seems to charge properly).

NOTE: Considering the dates of this week, I know I’m very late in posting this. I’ve just had no energy and getting it finished and tidied up for posting seemed to take forever. But it has several moments that I really wanted documented, the good and the bad: the good being the Amanda Tapping livestream and playing such a lovely show; the bad being the meltdown and the body image stuff; as well as the normal of living with pain and managing hEDS with hydrotherapy and physiotherapy. So I wanted to get it finished and posted and I’m very glad to have finally managed that.

A Week In My Life (May 2023)

It’s been a long time since I did a Week In My Life post but I thought they’d be fun to revisit. I don’t really have typical weeks anymore – every single one looks different with all of the different things I’m doing and experiencing – but I thought that might add to what makes them interesting; the format remains the same but the contents will always be completely different. This was a super busy week because, on the Monday morning after it ended, I was flying out to Germany so I had to get a lot of stuff done; there could be no putting it off and my ADHD brain did not like that. So it was stressful and busy and chaotic but there were also some really cool, fun, joyful moments too. So it was an interesting one to record.

The week in this post started on Monday 22nd May and ended on Sunday 28th May.


MONDAY

I was up at eight thirty and pretty much straight out to the hairdressers to have my hair coloured in preparation for going to Germany (I’d had it cut the week before). I find it takes several days to settle, for the sharp lines to soften and the colours to blend together nicely. I get so used to seeing it faded (because it’s expensive to get redone – I often top it up out of a box but needed it to look particularly nice on this occasion so didn’t) that seeing it fresh and bold is shocking, in the best way. I love it; it looks amazing every time and I can’t believe that I ever considered doing something different with it (apart from wanting blue hair because who doesn’t). It makes me feel so much more confident; it makes me feel like me.

Back home, I got stuck into some admin work. It took a lot of effort because my brain really didn’t want to do it but I got the necessary emails sent, submitted my Amanda Tapping story for her livestream (which I wrote about in my last post in case you missed it), did some diary catch up, and worked on several upcoming blog posts. I feel like there is never any time to breathe anymore, like I’m always only just keeping up so there isn’t even a moment to stop and think before moving onto the next thing. It’s really stressing me out.

When I had a brief look at social media, Twitter specifically, because of it being Mental Health Awareness Week, all I saw were the usual vague platitudes, corporate statements that didn’t mean anything, and pictures of the royals going to various events. The whole thing infuriated me and I started ranting, tweet after tweet until the thread was barely coherent and I nearly posted it but then I stopped and thought about what I was doing. The thoughts were rushed and frustrated, it’s so easy be taken out of context when you have so few characters, and Twitter can be a pretty toxic place. So I saved the tweets and resolved to elaborate on the thoughts in a better medium, like this blog (which I did and it turned into this post.)

I spent the evening packing since I was going to London the next day and then went to bed relatively early for me, around midnight. But unfortunately, I couldn’t sleep, despite doing everything that usually helps (a routine I have long since refined); I couldn’t seem to relax, my whole body shaking. I was still awake at four, practically vibrating with tension even as I tried to relax enough to sleep. I’ve had sleep paralysis before and it wasn’t that so I don’t know what was going on; I just kept finding my jaw clenched, my hands in fists, and even my toes curled. It was hideous and exhausting.


TUESDAY

I struggled up at nine thirty, got myself showered and dressed, and settled on the sofa with my laptop. I had some more admin work to do, more emails to send, and so I worked through that list before taking a break and scrolling through social media for a little bit. Then I spent several hours working on blog posts and an academic paper about Taylor Swift’s songwriting that I had to submit before I left for Germany; the paper itself was already written but I had a list of edits to work on plus two re-recordings and a new album to integrate into the existing relevant parts of the paper. I don’t mean to be so cryptic but I don’t want to talk too much about the specifics of it until there’s more certainty surrounding the project; it still feels very up in the air, to me at least. But maybe that’s just because it’s the first time I’ve done anything like this.

Mid-afternoon, I had therapy. I don’t want to get too deeply into what we talked about; that is very personal after all. But we did talk about all of the things I had to do before leaving for Germany, as well as how I was going to handle the trip to Germany itself. Sometimes my therapist brings a friend’s dog with her, which is always a bonus. I love her and she loves me and we have some great cuddles, which are very good for balancing out some of the hard stuff we talk about. But no such luck that day (it’s fine though – it’s not like I go for the dog). We finished on time and I managed to get to the station in time to catch my train. It isn’t a long journey but I filled the time, working on blog stuff. I had to make every minute count with so much to do before the week ended and I headed off to Germany.

I got off the train at Victoria station to a very strange sight. I’d paused several feet beyond the barrier to rearrange some of the stuff in my hands and pockets and saw a man standing with a wheelchair and a dog. As I stood there, he encouraged the dog into the wheelchair and it jumped up, turning around and sitting down like it knew exactly what to do. And then, out of his pocket, this man pulled a lizard – a bearded dragon, maybe – and placed it on the dog’s back. Again, it was like both of these animals had done this a hundred times and knew exactly what they were supposed to do. And off they all went, the man pushing the two of them in the wheelchair. It was so surreal to witness. I got the rest of my stuff rearranged and headed for the tube station, fascinated that nobody else seemed to have found this a strange moment to be present for. But then it is London, I guess; everyone is very ‘stay in your lane.’ The whole situation was just so bizarre and I was very aware that I was probably watching something that I’d never see again.

Usually I stay with one of my parents when I do an overnight in London but she already had someone staying so there wasn’t room for me. I ended up staying with family friends – as did my Mum actually since she was was working in a school in London, starting early the next morning – which was really nice because I hadn’t seen them for ages. So it was really nice to catch up. We were all tired and had early starts so we didn’t last long (and had to create a schedule to get everyone in and out of the bathroom in order for everyone to leave on time, which I don’t think I’ve had to do since I was a teenager in secondary school). It took me a while to decompress and go to sleep but it was still quite early by my standards, thank goodness.


WEDNESDAY

I had to get up at half six to get ready, which is most definitely the earliest I’ve had to get up in years. I had a shower, got ready, had some breakfast, and headed for the underground. An organisation I’m a part of, The F List, which supports female and gender minority researchers in music research, particularly research that supports gender equality in music and music research was holding an event, The F List Gender in Music 2nd Annual Research Hub Conference, at my university and I was keen to learn as much as possible – my brain finds learning new things positively addictive, something that I don’t think is uncommon for people with ADHD – even if I was a bit nervous about how long I could stay focussed for. But fortunately that wasn’t too bad and they’d made accommodations for anyone who needed them, although they were very neurodivergent sounding accommodations (as it turned out, there were so many neurodivergent people there that I was starting to wonder if we were all members of the club). As they said on their website: “The F-List Research Hub aims to expand and better introduce the existing feminist and interdisciplinary collective of researchers, dedicated to evidence-led activism which aims to create an environment in which women and gender expansive people in the music industries will be able to more successfully start and sustain their music careers for longer.” And the theme was ‘identity’: “Identity is a central theme in feminist research, which sees ‘who we are’ intimately entangled with ‘what we research.’ The definition above is deliberately broad and (we hope) inclusive to all who seek to research gender issues in music.

They ended up asking me to write the blog post for the event, which was really exciting. I would be taking notes all day anyway so I just added some extra notes about how the event worked, how everyone socialised, how things felt, in order to sum up the day accurately. We came up with a plan for what the blog would focus on and how long it would be and I played around with it in my head as I listened to the speeches and presentations.

Professor Sophie Daniels, one of the directors of The F List, the head of the songwriting program at ICMP, and my tutor for years, gave the keynote speech, which was really cool. This is what I wrote for the F-List blog because I’m not sure I could say it better: “After a bit of mingling, the day began with the Keynote speech from Professor Sophie Daniels, where she discussed, amongst other things, her career in the music industry, her founding of the songwriting program at ICMP, her artist project, Liberty’s Mother, and it’s associated advocacy work, as well as her research into why we write songs. I first met Sophie in 2014 and she was my teacher on and off for seven years while I studied at ICMP; so while I knew much of what she was sharing, it was really insightful to hear it presented this way, through the lens of feminism, particularly in the music industry and music education. Sophie has always inspired and supported me – as a songwriter, an artist, a researcher, a mental health and Autism advocate, and, ultimately, as a person – and so it was very special to watch her give the Keynote speech.” And it was: it was really special. I will never get tired of hearing ‘I Can Love You From Here.’ It makes my heart ache now just as it did when I first heard it eight years ago.

It was a lot of information but the presentations were short, about fifteen minutes each, which was the perfect length for my ADHD brain and each one was really interesting; I don’t know if it’s the neurodivergent brain but learning new things is always fun for me. The topics ranged from Trans and Non-binary inclusion in the music industry to support for those with ADHD in the music industry to exploring black feminism in the music industry to investigating the interwar generation of women composers at the Royal College of Music, as well as a conversation with the CEO of the Independent Society of Musicians. At one point, she talked about how badly the arts are treated and how they’re so important because they give life meaning: “They lie at the heart of what it means to be a human being.”

Oh, and I greatly enjoyed being introduced to this song…

I found all of it interesting – I really did – (although I did need some time in the quiet space because it was a lot of information and a lot of noise) but I think I was most engaged by the presentations on support for neurodivergent individuals in the music industry, by the one on the emerging trends in the careers of women in the music industry, and the one investigating the interwar generation of women composers at the Royal College of Music. I did wonder whether my Granny would actually be part of that group but when I worked it out, I realised that she wouldn’t have enrolled until after the end of the period of study. It would’ve been so bizarre if her name had appeared in that research.

When the presentations finished, we congregated in the attached cafe to socialise and network, which turned into a commemoration Tina Turner dance party, which was a fun if bizarre way to end the day. It was hard to leave: it was such a nice group of people plus I was dreading the long journey home. But it was a good day; I learned a lot, I fell into some really cool opportunities, and spent time with friends, old and new.

I did eventually make my way to the station and catch a train home. My Mum very kindly picked me up – I was beyond exhausted from so much standing and socialising and focussing all day – and when I got home, I went straight to bed. I had a look at social media for a while, decompressing from the outside world, before going to sleep around one, which isn’t bad for me at the moment.

One of the opportunities that came out of the day was the chance to do the write up – a blog post – of the day. You can find that here.


THURSDAY

I spent most of Thursday at my laptop, working on my Taylor Swift paper. I was really on a roll; I felt like the Kermit the Frog at a typewriter meme. I had already been writing and making progress with it but I hadn’t really managed to get on a roll until that morning and having finally hit my stride, I was having a blast. I was expanding on ideas already present in the paper and building in new ones; the only problem was that I was just increasing the word count and the task of cutting it down was looming. But I was enjoying the fun parts while they lasted and I vaguely resented being interrupted when I had to go out.

It’s been a really long time since I had my last appointment with my psychiatrist, although we’ve stayed in touch. He was in a new office – with a gorgeous view of both the Downs and the sea – and it was much nicer than the last one, which had felt incredibly medical and sterile. I like this one a lot more. And, in the waiting room, there was a painting that I instantly fell in love with: a seascape by a local artist called Sara Hill. I would love to own something like this, to get to look at it everyday. It was completely gorgeous and I found it very soothing to look at, which I suppose is fitting for a psychiatric office.

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The appointment went well. My psychiatrist and I talked through my experience with the Phenelzine and what has improved and what’s still a struggle. I’d wanted to discuss increasing the dosage, which we did. It had been too much last time – I felt very overstimulated all of the time – but I thought that, given that I’ve been trying to climb out of a deeper, darker place, a higher dose might be what I needed to make it that extra distance. We talked through that idea – and how much I want to write more again, which I just haven’t been able to – and he agreed. And, proving how well he knows me after all of this time, he suggested we judge the effectiveness by how much I’m writing. Sounds good to me.

Back home, I tried to re-harness my previous focus on my paper and while it wasn’t quite as effective, I did manage to get another good chunk of work done. I even had some time to do a bit of blog writing since I doubted I’d have much time to write while in Germany, I needed to have something prepared for the Saturday at the end of the trip. By the time I went to bed, I was completely exhausted and my brain felt vaguely like I’d put it in the microwave for too long.


FRIDAY

Despite going to bed so late, I was able to drag myself up early for a very important Zoom call. I don’t want to talk about who it was with and what it was about yet, not until things are more certain. But it was a very exciting call and, all being well, some awesome life things will come out of it. That’s all I’ll say for now.

I didn’t have long until my next Zoom call so I spent about ninety minutes or so working on blog stuff. I just needed some decompression time and I find blog post writing very soothing for some reason; I think it just allows my brain to turn over an idea, over and over and over until it makes sense, and getting the words into a satisfying rhythm.

I had a really nice Zoom call with one of my best friends and we ended up talking for about two hours. We can talk about anything, from movies to the really big stuff in our lives, and we can talk for days without needing a break; we can just go off on these tangents that go on for hours and then we eventually backtrack to our original conversation topic, only to go off on another tangent. We have a lot in common and we have so much fun together. At one point, we tried to figure out how we became friends – having met on the MA – but we couldn’t: it seems that we both thought we were already friends and just skipped the whole ‘becoming friends’ part of the friendship, which is actually pretty on brand for us now that we are really good friends. I have no idea if that makes any sense but that’s how it is.

We hung up so that I could get ready and go to therapy. Again, I don’t really want to talk in detail about what we discussed but, in general, we talked about going to Germany, the things I was anxious about, and how I might manage them. I wasn’t feeling too stressed (which turned out to be ridiculous because I found the whole trip incredibly stressful) so it wasn’t too bad.

When I came out of therapy and checked my phone, I saw that Taylor Swift had made an announcement, the release of Midnights (The Late Night Edition) and the new song, ‘You’re Losing Me.’ Someone had already shared it online. Had the song been released somewhere where I could listen to it legally where Taylor would get paid for my purchase or stream, I absolutely would’ve done so – I’ve always felt very passionate about that – but since it’s only available on a CD one can buy at tour dates, I don’t feel bad listening to it online. And what a song it is; it immediately joined my 2023 in Songs post because I love it so much, especially the lyrics. I’ve talked about it more there (I’ll add the link when that post goes up in December) but the ongoing medical imagery is heartbreaking, the way the bridge just keeps building is one of my favourite Taylor techniques, and the imagery in the lyrics all had me absolutely hooked (I particularly love “Remember lookin’ at this room, we loved it ’cause of the light / Now, I just sit in the dark and wonder if it’s time,” “And I wouldn’t marry me either / A pathological people pleaser / Who only wanted you to see her,” and “Do something, babe, say something / Lose something, babe, risk something / Choose something, babe, I got nothing / To believe / Unless you’re choosin’ me / You’re losin’ me”). It’s a gorgeous, gorgeous song and weeks later, I’m still listening to it over and over. So that was a moment to have missed because of therapy.

Back home, I went back to working on my paper. One of my parents stopped in for dinner and we had a good catch up before I got back to work. Then I had some decompression time, writing more of my Mental Health Awareness Week blog post before going to bed.


SATURDAY

I spent the morning working on my paper before catching a train to London. I used the trip to keep writing and then navigated the tube system to get to the Thin Air exhibition at The Beams near London City Airport. And it was absolutely stunning…

The exhibition was made up of several different rooms, designed by different artists or artistic collaborations. I didn’t like all of them but of the ones I liked, I absolutely loved:

  • The first was a hallway filled with moving lights and low frequencies. The lights were mesmeric and the low frequencies felt heavy in my chest, which was a weird feeling: on the one hand, it felt a little like my chest was about to implode but on the other, it was like I could feel every vibration in the room passing through my lungs. The description at the beginning of the piece read,”In Cleanse/Mantra, laser light travels down a corridor at 11o Hz per second, which is a wavelength of just under 3 metres. As visitors pass through the installation, their viewing distance is sliced into even sections. This creates a visual mantra: a repeated series of waves, which increase in amplitude. 110 Hz is known as the ‘human pitch,’ stimulating the right side of the brain, where art spirituality, and emotion are centred.” It was made by James Clar, an artist who works with light and technology with an interest in how new media technologies shape human behaviour. Many of his works play with perception using sculptural elements that appear to warp between dimensions, using a wide range of materials and systems, such as multi-channel video installations, lasers, LEDs, and 3D printed elements. He combines these elements to create complex narratives that reference mythology and global history, while questioning our engagement with digital culture.
  • The second one was a big, warehouse like room where red and white light seemed to flash sporadically, plunging you into darkness as sporadically. It played strangely with your vision and the same low, heavy frequencies pressed in on you despite the huge space; the contrast was very weird. I found it very compelling; I felt it drawing me in even as the pressure of the low frequencies began to hurt. The space was designed by404.zero, a collaboration between the artists Kristina Karpysheva and Alexandr Letsius. The duo specialises in real-time, generative, and code-based art, which is presented in large-scale installations, performance and music. They combine noise with randomised algorithms to stimulate visceral and awe-inspiring reactions. Through their use of digital technology, they question the power structures of the Anthropocene and global politics, revealing them as invisible yet impregnable environments of the contemporary condition. On their Instagram, they describe it by saying, “In our artistic installations, we endeavour to eschew narrative descriptions, encouraging individuals to introspect rather than rely on external interpretations. We challenge visitors to delve deeper into their own perceptions and explore the depths of their personal experiences!”
  • The third of the rooms was a similar warehouse-like room but with lines of lights across the ceiling, the lights speeding overhead almost like cars on a road at night or flashing on and off suddenly. It was beautiful, the colours changing; one of colour combinations stuck out in my mind because it reminded me of a lion fish. Around the room, there were big bean bags that you could sit or lie on and look up at the lights. We ended up staying there for ages, even though the low frequencies of the room were creating so much pressure in my body. While part of me liked that feeling, it did start to feel painful after a while; other than that, it was incredibly relaxing and I could’ve sat there for hours. It was called Lines, made by S E T U P, a studio founded by Znamensky Dmitry, Novikov Stepan, Zmunchila Pavel and Kochnev Anton in 2018, that works with light, programming and sculpture to create installations that sharpen physical perception, merging the lines between multimedia art, lighting & stage design, and performance programming.
  • The fourth room was much smaller with a screen on the floor that we all stood around and watched as the points of multiple lasers moved across the screen as if carving out pathways in a landscape; they’d follow the same route but always slightly different, like the erosion of rivers made from light. It was hypnotic and very soothing to watch; I could’ve watched it for hours had there been somewhere to sit. It was called ‘Phosphor’ by Robert Henke and the description read: “In Phosphor, an ultraviolet laser paints temporary traces, on a layer of phosphorus. Retained for just a moment, the lines are ever evolving, combining into marks that evoke natural patterns of erosion.” Ha, I’d forgotten it said that so the imagery it was trying to evoke definitely certainly worked. Anyway. Robert Henke is a digital artist who works with algorithmically generated images, laser installations and early personal computer hardware. Also a co-creator of the cult music software Ableton Live, Henke has redefined the way we create and experience electronic music.
  • And the last room that really inspired me was one full of red lasers that were aimed around the room. The shape of the space it created reminded strongly of being inside a circus tent. It was very surreal to move through it because you kept expecting to walk into a fence – which the lines of light looked very much like – and bounce back but then, of course, you moved through them. I had great fun pretending I had superpowers, pretending that I was creating the beams of light. It was created by Matthew Schreiber and the description read: “A site-specific light sculpture, Banshee 2023 responds to the volume of the room it inhabits. The precise placement of lasers produces a series of geometric patterns frozen in space. Evoking the tools of the entertainment industry and its production of spectacle, visitors are invited to move within a static light show, seeing it change as we shift our position in the room.” Matthew Schreiber is a multi-disciplinary artist best known for his large-scale laser light sculptures, such as this one and visitors are often invited to interact with his work. Interested in how physics, technology and perception can alter our experience of the world, he reimagines light and space to explore unseen forces.

It was really cool and I’m really glad we got to see it before it closed (while we were in Germany). I would’ve stayed longer if I could’ve but I still had so much to do and they do encourage you to keep moving through the rooms.

Then it was back on the train home and even though I was exhausted, I continued working on the paper and on the upcoming blog posts. I also managed to reply to some of the messages I’d been unintentionally procrastinating over, accidentally pushing them back in favour of getting more work done. So that felt like an achievement too. I was pretty much getting things done out of sheer willpower – something that absolutely does not always work but did this time for some reason – which I was very relieved by. Of course, so pleased to be on a successful streak and unwilling to break it, I ended up going to bed much too late.


SUNDAY

It was a very goal focussed day. I managed to get my blog post of the week – So That Was #MentalHealthAwarenessWeek… – done and published relatively early in the day and then I moved on to the piece about The F List conference. I had all of my notes from the actual day and I’d been making notes since then: thoughts that felt important to include, anecdotes that would make it more personal, and so on. I got that done mid afternoon, I think, and sent it off (they really liked it and it was published and shared a few days later).

Afternoon and evening, I packed for Germany. I was going to be there for a week but I am a terrible packer – I just find it really hard. I wonder if that’s an ADHD thing, given that it’s an organisation and planning based skill. Interesting; I’d never thought of that. I don’t know but possibly. I’ll have to do some research. Anyway, as I said, I’m a really bad packer (I once packed for five weeks in Australia two hours before I left for the airport – the dread and procrastination were so bad) so I struggled through that as a task. Eventually I got that done, with probably much more than I’d need.

I spent the rest of the evening trying to finish my Taylor paper. This edit was essentially finished – apart from one section, which I couldn’t work on until I got some of the literature they’d promised to send me (and now have sent me) – but it was way over the word limit and, as hard as I tried, I couldn’t get it down without cutting out significant parts of whatever point I was making or the evidence for it. But I kept trying and trying and trying, as well as tidying the whole thing up. In the end, around two in the morning, I decided that I would send it as it was and ask the organisers – all of them accomplished academics – for their advice on the word count. I’ve never done this before but they have; hopefully they can help me get it down to the required length without compromising the content on the next edit. So I stopped at two and went to bed, my laptop on the bedside table so that I could send it first thing in the morning.


It was a very anxious week: there was the pressure of trying to get everything done, the unknowns of the conference, and the anxieties around going to Germany. It was hard. But it’s also really nice to be productive again, to be working and producing, even if my mental health and neurodivergence do make that a struggle sometimes; over the last couple of years, I’ve been so paralysed by my mental health problems – by my depression and anxiety specifically – that I’ve barely been able to do anything. So just to do things at all, let alone the amount of things I’ve been doing, is kind of amazing to me.

Amanda Tapping: Embracing Mental Health as a Fandom (Livestream)

I have been a fan of Amanda TappingSamantha Carter in Stargate SG-1, Helen Magnus in Sanctuary, actor, director, and more – for years, since I was about fifteen or sixteen (so over a decade). She’s an amazing actor, a fantastic director, a deep and creative thinker, and an incredibly generous person: for years, she did – amongst other things – annual weekend-long charity events, each one raising thousands and thousands of pounds for charity. I’ve always loved her performances, especially as these two characters, (and her commitment to the integrity of the characters) and they had a huge impact on me; even after all these years, there are moments from the shows and from the audio commentaries (that I listened to obsessively) that I see show up in my life and my creative approach. They – and she – really did change my life.

Back in 2016, I had the opportunity to meet her at her annual GABIT event, AT9. This event involved several Q&A sessions when she not only answered questions but told stories from her life and acting experiences. Attendees also got to take photos with her and get her autograph, getting little pockets of time to talk to her. Meeting her was an amazing experience, even if I was so unbelievably nervous that I could barely talk. But she was so sweet, holding my hands the whole time and just pulling me out of myself, making it a little easier. She really is the loveliest human being.

A few weeks ago, I got an email from The Companion, a website focussed on sci-fi media with this goal: “To create the most special, fun, and welcoming place where as a geek, you can be yourself and bring you closer to the creators, actors, experts… and each other. We launched The Companion in October 2020 during lockdown on this shared belief: geeks deserve a high quality home just like fans of sports, fashion, music, and other ‘premium’ genres.” Their think pieces, character and episode analyses, behind the scenes articles and so on are all really interesting and their interviews with so many people involved with these shows are always fascinating and good fun. It’s a great site, even without events like these. Back to said email…

We’re absolutely thrilled to announce this very special event with Amanda Tapping – and all for a good cause. As one of our cherished Companion members, we wanted you to be the first in line for an opportunity to meet the legendary actor, director, and producer. Join us on June 3rd, 2023, for a live online interview with Amanda Tapping covering a subject close to her heart: mental health. Hear stories of how Stargate fandom saves lives and share some of your own. ‘As part of the sci-fi community, I’ve seen firsthand how we can all come together and support each other,’ says Amanda, ‘and I would like to extend that same compassion and understanding to issues around mental health.’

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So I love Amanda Tapping and mental health is a deeply important cause for me as well so this seemed like a gift from the universe. I bought a ticket straight away. There was also an opportunity to meet her online after the event but, as much as I would’ve liked to, I just felt like it wasn’t right for me. For one thing, it was in a groups for a short period of time and I know I wouldn’t have felt able to say anything I wanted to say with an audience. And it was just too expensive to justify, especially with that context. So I reluctantly clicked away and hoped I’d get another opportunity in the future.

We did, however, have the opportunity to share a story that would be passed on to her and I really liked that idea; it felt much less exposing, even if it did get shared during the livestream. So I wrote about how Sanctuary in particular got me through sixth form when I first started struggling with depression and anxiety; I had this fun little daydream about working on the set, working on the scripts for the show, and I probably spent more time in that world than I did in the real one (I swear, I had multiple cork boards with storylines planned out). I couldn’t have gotten through that period of my life without it, without her.


I really wasn’t sure what to expect from the livestream, how it would go, but it was highly enjoyable despite the emotional nature of it. Everyone was very thoughtful and heartfelt but still funny and ultimately hopeful. I won’t share everything because it was a unique and special experience that we all paid for but there are things that I think no one would mind if I shared because of how they could help people. And I wanted to share the experience of this livestream with someone I love and respect so much.

The first thing Amanda did, after being introduced, was lead everyone through a breathing exercise – breathe in for four, hold for four, out for four, hold for four – that she does with her daughter, Olivia, when she’s feeling “super anxious.” She clarified that she’s not an expert or anything but that she has been through “things” and that she’s maybe, as her daughter has said, a person who “feels things a little too much.” She feels it and she wants to help people who are also feeling it; that was a really nice way of putting it and it was nice to hear. She was pretty emotional from the start, telling us – and there were a lot of us, in the comments and just watching – that she was “really, really grateful that [we were] all [there].”

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I hadn’t forgotten how much I love her but seeing her again and hearing her voice, I was just overwhelmed by how much she means to me, how much she’s impacted my life. And I was just so, so pleased to see her. It was just pure, overwhelming joy. And from the look on her face, she felt the same way about being there, about connecting with everyone and being ‘together’ again. It was really sweet. And the first thing she shared felt very typically Amanda: it was the analogy of how we all carry bags of rocks, bags that only grow heavier over time, and how we all need to learn how to put them down now and then, take a breath, and just be, just be a person without that burden: “We all have our burdens but I think it’s really important to take a moment and put it down and just see what it feels like to not carry it around for a minute.” We’ll always carry those burdens and they help us to help other people but we need to look after ourselves too.

There was some significant discussion about COVID, both how she’d seen it affect other people (even in the way that people are driving more aggressively) and how she felt it had affected her. She talked quite a bit about her experience – about her family, about her fears, about her losses – more so than I would’ve expected. She’d felt isolated and scared and didn’t understand what was happening and why it was still going on; she had a lot of anxiety, especially watching her daughter go to high school in a mask every day (once schools opened again). And while it was, of course, so important to wear a mask, she talked about how hard it was to breathe with a mask and face shield for fourteen hours a day on a film set, getting home and feeling oxygen deprived. “It was easy to fall into isolation,” she said, “It was easy to go down the rabbit hole as I so often do,” and it took a while for her friends to pull her out of that. It’s amazingly comforting to hear someone you so admire and respect express the same feelings as you. It made me quite emotional to hear and even more so to think about what she was really sharing with us: these really personal details of her life. I’m always so touched when people, especially people like her with public profiles, share such personal details and trust us with them; it feels like an honour, a trust that feels really sacred.

Rebecca, the livestream host, asked her what had helped her that might help others and Amanda talked about several things, all good points and interesting insights into her life:

  • She talked about how she and two friends would meet over Zoom every week and have a cocktail hour together. She also did various other Zoom based socialising with other friends, her brothers, her family… The thing that really helped was connecting. (The video connection went out at one point and the screen went dark, which – as Amanda pointed out – was very ironic since there’d been so much talk of connection.) She did talk about how hard that can be though because you know you’ll get a response which you’ll then have to deal with and the whole thing can feel so draining; I can definitely relate to that.
  • She also talked about how important it is to share the load with your friends. It is, of course, important to be there for your friends but you also need to let them be there for you. People want to know how you are and they want to help; it can be hard to let them in but it can not only help your mental health but also strengthen your friendship.
  • She talked about how exercise makes her feel better and stronger, how it’s taken a long time to feel safe enough to go to the gym again post the height of COVID. She actually talked about having a less than healthy relationship with food during the lockdowns – “Certainly during COVID and everything that went on, I mean, I ate every single feeling I had” and “We ate our feelings, we ate our anxiety, we baked a lot of bread!” – which was very refreshing; so many of us shy away from those conversations but she shared those negative coping mechanisms and how they weren’t good for her and what she did to balance them out: she talked about how it sounds trite but “physical activity is key.” Even if you can’t go for a run, just getting outside is good. She started her day in the woods – her happy place – with Martin Wood (who she’s worked with for years and especially closely on Sanctuary – I cannot express how happy it makes me that they’re still such close friends and hang out regularly), walking their dogs. That was how she got herself mentally prepared for the livestream.
  • She said that she’s not good at stopping (somehow this did not surprise me) so she kept moving, getting better at baking and cooking and sewing just to keep herself busy, although she’s trying to get better at relaxing.
  • During one of the stories shared (they couldn’t share all of them obviously but they did share a few), the writer talked about rewatching, including a quote from the psychologist Pamela Rutledge: “It can become really therapeutic, especially if you are feeling anxious. Watching the same piece multiple times reaffirms that there’s order in the world and that it can create a sense of safety and comfort on a primal level.” I’ve always found rewatching to be both enjoyable and helpful to my mental health and Amanda clearly felt the same way, that there’s no shame in it and that people shouldn’t be so weirdly judgemental about it: “Whatever you need to put the blanket on yourself and feel safe, even if it’s just safe for an hour, even if it’s just to calm your breathing for an hour, do it… Like, absolutely.” She got visibly emotional again – “I’m gonna cry but…” – and talked about how anxious she had been about the livestream, whether she could actually do it and whether she could do it justice, and so she rewatched Downton Abbey with her daughter which is their thing, especially when one or both of them are anxious (I find it so comforting that we both do this, albeit with different shows). She said that, whatever it takes, we have to allow ourselves these comforts without shame or judgement, whatever it takes to get through. As I said, she was visibly emotional (to the point of actual tears and tissues) and it reminded me of just how much she cares; she cares so fucking much. She cares more than we could possibly imagine and that’s just so moving.
  • She and Rebecca discussed the idea of always appearing fine, of never letting people see when you’re struggling. Amanda said that, when she’s running a set, she’ll put on the mask and make sure everyone feels confident and feels like they can rely on her because that’s what they need but, when it’s safe, it’s so important to let it all go and not be okay if that’s what you need. The examples she gave were amazingly honest and, again, I was touched that she would share these things with us; She’s such an open, generous person and the fact that she trusts us with these parts of her life mean so much to me that it’s almost overwhelming. As she said, this idea of allowing yourself to be yourself and fully feel what you’re feeling isn’t new or groundbreaking but it is important and needs to continue to be part of the conversation. She said, “It will be okay and it will pass,” and it was hard not to feel her conviction even though I often don’t feel that way.
  • They also talked about social media and how often it can become the highlight reel of your life (I’ve always found this viewpoint really interesting because it never, ever occurred to me to use social media in that way and so I never have, which makes it fascinating to me that people do), which isn’t a new concept (family photo albums, for example) but has gotten out of control with social media. Amanda said that she noticed herself doing that on Instagram and that maybe she needs to post “the shit” more often. They also discussed how easy it is for people to send hateful messages through social media and Amanda said how hurtful it was – and still is – to read some of the awful messages about herself or the show she was in at the time, although the worst ones were when people attacked her appearance: “It killed me every time I read something crappy.” They talked about how one of the best ways to handle that sort of thing is to take it to a friend, to talk it through and even make fun of it to make it less painful.

Back to the stories for a moment. As I said, a handful of the stories submitted were shared over the course of the livestream. (Mine wasn’t one of them – I think it was probably too long and also didn’t serve as a jumping off point for more questions – but that was fine; they’re all being passed on to her so she will see it. That’s good enough for me. Apparently they were all really uplifting and just amazing examples of this fandom, that they reflect a deeply inspiring reality of how these fandoms have been so much more than just sources of entertainment for so many people: how they’ve provided solace, a sense of belonging, and even lifelines in the worst times, a description that was really moving to me.) There were lots of people saying that she and her work as various characters have saved their lives and you could see how much that meant to her. At one point, she used the word ‘verklempt’ (a word I’d never heard before but which means ‘overcome with emotion’ and you could really see that she was). One of the stories talked about fandom really well and what it means to people and Amanda was really taken with the description…

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“Wow, that’s beautiful put. Holy moly. And it’s true. I don’t know if I can add to that, that’s just very beautifully articulate.”

Rebecca talked about how, in researching for the stream, she found articles about how sci-fi and how the escapism it provides can be bad for your mental health and found that very surprising. That had surprised her because she’s personally always used sci-fi to get more in touch with the world around her. Amanda completely agreed and they talked about how that idea bothered them both – that the escapism of sci-fi is a bad thing – and why. Amanda talked about how sci-fi is so often maligned and characterised as the ‘geeky’ genre; I find it so heartening to know that she’s always been able to see what it could be. She talked about how she doesn’t think you can escape too far, that being able to escape is important: we can escape into the thing and then, through the internet, we can connect with people all over the world. A lot of people just don’t get that. And following on from that, she talked about how, in her experience, the Stargate fandom is full of really nice people and the Sanctuary fans were always so generous and kind, how she constantly sees fans supporting each other, online and in real life, and how fiercely they wanted to help with her charity, Sanctuary For Kids. She said that she’s observed a special and unique generosity from sci-fi fans, perhaps because so many people feel seen by the characters and shows in this genre.

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She talked about how hearing people’s stories means so much to her, how it’s had such a big impact on her. Apparently her favourite stories are the ones about what the characters mean to people and how those connections have made them feel stronger (she mimed hugging everyone, which was really cute). The number of stories like that was really moving but there were also so many stories about how people felt that Amanda herself had saved them and Rebecca asked her what that felt like. You could see how deeply that moved her – continues to move her – and she sniffed so I think it had actually moved her to tears. She could see how much Sam Carter meant to all of these people, especially young women and that felt like a huge sense of responsibility, that Carter was – and still is – this huge role model. She felt like she couldn’t let the show screw up her story so she would fight the writers on certain decisions despite not being a confrontational person. She’s talked about that a lot and it always makes me think how lucky we all were to have Amanda Tapping cast as Samantha Carter because someone else might not have pushed so hard for the character and for the audience.

The final story described Amanda as being “a light in the darkness” and she was clearly quite overwhelmed by that (something that I found both surprising and really touching, considering how often she must’ve seen messages like this over the years): “Wow, um, the only thing I can say to that is that, um, it works both ways and that, in my hours of darkness, the fandom has helped me see the light and feel okay. It’s not that you’re just helping each other, you’ve certainly helped me and I know a lot of other actors who go, ‘Oh, like, people do care and people do like us…’ And, for me, I…. It’s really important to me to connect to fans when I meet them… It’s given me a whole other world of experience. But it does, it goes both ways. It absolutely goes both ways. I’ve been lifted up out of fires more than you guys could possibly know, by your kindness and your generosity and your love.” She was visibly emotional again and I was practically weeping. It’s easy to think that we, as individuals, don’t affect her but clearly we do and that’s a lot of feeling that I’m not entirely sure what to do with.

Eventually they wrapped up the livestream and Amanda wished us all goodbye: “I love you all and it’s been a real honour to be a part of this fandom. It’s been such a huge gift in my life so thank you.” She blew us a kiss and then it was over. It was moving and thoughtful and considerate and generous and a really lovely experience. I really hope that they do do more of these conversations – Amanda said that she wants to revisit all of this, how this is just the start, just scratching the surface of a very big conversation – because it was very inspiring and I think they really could do good, even if none of us know what that looks like yet.


It was a lovely hour and I really hope that they continue to do these discussions. And seeing Amanda on my screen again, hearing her talk about all of these things that are so important to all of us, I would so love to see her again. I would have reversed my decision on the post stream meet and greet sessions on the spot. She’s visiting London for London Film and Comic Con in July and I’ve been going back and forth about going for months, even more so after the livestream. I would love to meet her again – so much has changed since the last time I saw her (not that I’d be filling her in on everything but I feel different and this me would like to meet her) – but conventions feel so scary and overwhelming, overstimulating on every level. But then I got an email that she was doing a talk too and, after a long conversation with my Mum, I’ve decided to try. There are other cool people there but I’m not going to try and take on too much, just going to Amanda’s talk and meeting her. Hopefully I will be able to handle it – the noise, the people, the anxiety – and have a good time; the tickets have been purchased and now I guess we just have to wait and see.