A Week In My Life (in Lockdown)

It’s been a while since I did a ‘week in my life’ post and I haven’t done one about lockdown, mainly because I feel like most of my days are incredibly similar, which wouldn’t exactly make for a scintillating post. But I saw the idea in my ‘blog ideas’ list and realised that over the last few weeks, I have managed to be a bit more productive (with my mental health fluctuating so wildly, it’s hard to really get into anything) and so each day is looking more like its own entity.

The week in this post started on Monday 22nd June and ended on Sunday 28th June.


MONDAY

Even though I don’t have anywhere to be, I’m still getting up relatively early, partly because I’m at my best mentally in the mornings (generally) and partly because we have five cats who are always very eager for breakfast. They’re actually really helpful when it comes to maintaining some kind of routine; sometimes I think it’s easier when there’s something external to build from, rather than trying to build it from nothing.

Cats fed, I settled on the sofa and replied to all the messages on my phone that were waiting for me. In times of mental distress (which there is a lot of lately), I tend to abandon my phone and withdraw from communications because it’s all just more than I can handle. However, it can then be a rather daunting task when I feel able to engage again. But I managed to reply to everyone and messaged some of my friends that I hadn’t checked in with for a while.

I spent the morning sorting through my tech box of electronics, my store of everything electronic, from spare pairs of headphones to camera equipment to cables I know longer own the devices for – I’m sorting through all of my possessions and this was next on my list. I went through it, throwing out the stuff that was damaged or so old that it was no longer useable, piling up some stuff to give away, and organising the remaining items by function. I certainly don’t need the big box anymore.

I didn’t stop there though. I went through all eight of the USB sticks I’d found, deleting the files I didn’t want and storing those I did. I now have multiple memory sticks empty and ready to go whenever I need them. And then I started on the hard drives, most of them assorted back ups of my laptop. That’s a job that’s going to take considerable time. But I’ve assigned each of them a function and started moving the relevant files. I can’t have done more than a quarter of the work and even that took most of the day.

Eventually I gave up, having spent so much time on it that I kept getting confused about which hard drive I was in. So I disconnected them, packed them away, and did a couple of hours work on my blog post for the kittens’ birthday post (here). Me and Mum had dinner together, continuing our rewatch of Nikita, and then I spent about forty five minutes at the piano, during which I recorded this:

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This song calms my soul ♥️ @sarabareilles

A post shared by Lauren Alex Hooper (@laurenalexhooper) on

Then we fed and settled the cats before going to bed.


TUESDAY

It was a quiet day. I spent most of it working at my laptop, finishing the blog post for the kittens’ birthday the next day and writing the one about coming off Pregabalin (here). I also planned out the next few as well, with sketches of the rough post structures. So it felt like a pretty productive day, which I was pleased with.

My Mum and I usually work pretty companionably since her desk is in the living room and I tend to work from the sofa (it’s better for the physical pain that I usually deal with to some degree or another – I need to get a specifically supportive desk chair but I’d have to go and try them out, something I can’t – and wouldn’t choose to – do until it’s safe). But recently she’s been working at the kitchen table, paper spread out around her as she transfers her accounts to a new system. It’s weird, going from being basically on top of each other to almost feeling like I’m alone in the house.

We reconvened in the evening, having dinner with several more episodes of Nikita, and then I sat at the piano, playing for almost an hour, methodically practicing each of the songs I’ve been learning recently. Thank god my neighbours are so easygoing and even supportive of my music because I usually ending up playing fairly late at night and even though I try to keep it as quiet as possible, some noise does drift through the walls.

I was just going to bed when I got a Twitter notification that Ingrid Andress is doing a virtual show on Tuesday 30th June. I love her and was supposed to see her live when I went to the US (before the trip was scuttled by the pandemic) so that was really exciting. I went straight to my computer to get a ticket and thank god I did because it was already difficult to get a ticket. I also managed to get a meet and greet, which should be fun; I have no idea how it will work online (plus it will be about 3am my time…) but it will be really nice to see her again. I’ve been going to her shows and chatting with her afterwards for the last several years so I’m glad that lockdown won’t prevent that.

(Note from present me to past me: it was an awesome show and I really enjoyed my chat with Ingrid.)


WEDNESDAY

It was the kittens’ first birthday so we didn’t delay in heading downstairs and presenting them with their present. They both had a go at it but it was Sweep that eventually managed to open it, revealing the birthday cake shaped toy. Despite not having had breakfast yet, they were both very excited and played with it enthusiastically. It remained in tact for about twenty minutes before Sooty managed to tear the felt flame of the candle off it… Sigh. Ah well. They don’t seem to mind.

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Unfortunately, I ended up getting caught in a panic spiral about the loosening of lockdown (I know I’m not the only one who feels that the government cares more about the economy and their reputation than the lives of the British public) and the scientists declaring that they feel we’ll still be dealing with the pandemic next year, that a second wave is extremely likely. The idea of feeling so terrified and so unsafe and so worried for my loved ones (plus the uncertainty around my education and my career) for all that time is exhausting and makes me feel almost overwhelmingly sick.

In hindsight, it probably turned into a meltdown but I didn’t really process that thought at the time. The intensity of my emotions are so extreme at the moment that it can be hard to clearly identify them within the mess I’m feeling. In the end, I was so worn out that I fell asleep on the sofa and didn’t wake up for three hours, a common reaction to a meltdown, for me at least.

When I woke up, I didn’t feel better – that’s not how it works, at least for me – but my head was a little clearer. WordPress had been playing up on my laptop so I hadn’t been able to post the kitten birthday post but eventually I got it up, complete with a video of the kittens: one second a day everyday for the first year of their lives…

In the evening, I spent about an hour on FaceTime with one of my friends. We had a good moan about missing each other and the things we can’t do, drooled over the guitars we wish we could afford, made plans for the first time we can hang out properly again. It was fun and nice and as normal as you can get in a time like this. Mum had wandered in and out of the room during the conversation and commented that we sounded like we always do, hanging out as if we were on opposite ends of the sofa. That made me laugh.

We had dinner together and continued our rewatch of Nikita, staying up far too late.


THURSDAY

I’d struggled to sleep with the heat so I woke up, still tired and with a throbbing headache. Not exactly the greatest start to a day.

I sorted the cats and then spent some time tidying the living room and sorting out my space: it had gotten pretty chaotic with the various stationary and electronics that I always have within reach due to my frequent need for them. It’s definitely better and I’m always calmer and more productive in a tidy space.

I’d intended to do some more organising of my hard drives but the rising heat (over 30 degrees) was only making my headache worse. I ended up lying on the sofa with my eyes covered, waiting for the painkillers to kick in, except I accidentally fell asleep and didn’t wake up until about three hours later. Thankfully I slept through the hottest part of the day: I don’t cope very well in the heat. The cats were struggling too, poor babies, stretched out on the cool of the kitchen floor. I’ve never seen them look so flat.

I didn’t manage a huge amount because the headache never really abated but I did get a few bits and pieces done: some research for the blog, some blog writing, watching a bit of TV. But most of my energy was focussed on managing the headache; I spent a lot of time with my eyes covered, blocking out the light.

Mum and I kept to our evening routine of dinner and Nikita rewatch (we’ve just finished season two, which has such a great finale) and then, to finish off the evening, I listened to the two tracks that Richard (my writing partner) had sent me and gave him my feedback. I loved them: they’re both really cool but I had a handful of comments that can hopefully be of use. I also sent him a song of mine to listen to before we start work on the production.

That done, I went to bed but it was so hot and humid that I felt like I could barely breathe.


FRIDAY

It was so hot that I just couldn’t sleep. It wasn’t until about five am that I finally drifted off. It was uncomfortable and frustrating but as least I got to witness the incredible thunderstorm that started at about two. There was a lot of lightning and heavy rain, although not much thunder. I sat up and watched it for ages. I absolutely love thunderstorms; they’re my favourite kind of weather. The air just feels different and I feel lighter. Apparently thunderstorms create negative ions in the atmosphere and that’s where that feeling comes from (x).

I struggled up at eight thirty and managed to have breakfast and a shower in time to relax for a moment and collect my thoughts before my therapy session. It’s taken me a while to get used to therapy via Zoom and while I still think face to face is better (and I really miss it), I am really grateful for it. I know that going without therapy during this time would be incredibly damaging for my mental health. I think it’s probably fair to say that we’re not necessarily focussed on making progress right now, rather we’re focussing on managing my emotions and the things I’m struggling with in the present moment, like my overwhelming fear of going outside and my sudden inability to sleep properly to name a few. I mean, technically it all comes under distress tolerance, one of the fundamental areas of Dialectical Behaviour Therapy so I guess we are making progress in a sense. Anyway, we had a pretty intense session because of several tough things going on at the moment, not helped by my lack of sleep. By the time we were done, I was exhausted.

I had a gentle afternoon, watching Nikita with Mum, and then napped on the sofa for a couple of hours. Three hours of sleep really isn’t enough. Throw in a tough therapy session and I was completely useless. I wasn’t going to make it to the end of the day without a nap.

In the evening, we had a socially distanced dinner and movie with one of my parents (she doesn’t live with us). Despite keeping up to date with the briefings and doing my own research, I’m still really confused about what the official safety guidelines are so we’re just sure to be really careful: apart from seeing each other now and then, none of us go out for anything other than the essentials, we social distance when we’re together, and we keep the space (and ourselves) as clean/hygienic as possible. It’s hard not being able to behave naturally together – having to be so conscious of the risks all of the time – but it’s so, so good to see her and hang out and have just a touch of normality, even if it is only a touch. I’ll take what I can get. Getting to see her in person is better than not getting to see her in person.

Despite my nap, I was tired and so me and Mum had a quiet evening together. Exhaustion always makes my anxiety worse so I just needed some time with her. Sometimes we joke that, rather than an emotional support animal, I have her: my emotional support person.

Always far too late (I swear I’m trying to maintain a regular sleep pattern), we fed and settled the cats before going to bed.


SATURDAY

I slept better but still not well and I woke up feeling very anxious and unsettled, usually how I feel when I’ve had nightmares but can’t quite remember them – I definitely want to write a post about how the pandemic has affected sleep and the increased number of nightmares. It was still quite early so I stayed in bed, trying to shed the feeling. The cool, grey weather helped.

Eventually I got up, fed the cats, and managed to get a few good cuddles in, which also helped. Although nothing helped as much as the Diazepam I took.

I had a quiet morning, doing some admin, some blog post writing, and a couple of video calls to family and then I spent the afternoon catching up with my diary. The one mental health problem that hasn’t been too badly affected by the pandemic and lockdown is my OCD. It’s much easier – and quicker – to write down everything that happens when so much less is happening; before lockdown, busy days could take hours and hours to write up. My ability to concentrate has been seriously compromised by my anxiety so it still takes longer than it should but at least, with emptier days, it balances out a bit.

Mum and I had dinner, continuing our rewatch of Nikita, and then I spent some time at the piano. One of the things I really wanted to use my empty semester – and I guess, now the lockdown – for was improving my musical skills and at the moment, I’m just really in love with playing the piano. I’ve definitely improved already, which is really satisfying. I practiced my current repertoire and then tried to work out a new song. But it was tricky and I was tired so I didn’t get far before giving up – for the night, not on the song in general.

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It was late but before going to bed, Mum (who used to be a full-time massage therapist, although it’s no longer her primary job) massaged my neck and right shoulder. My Trichotillomania urges have gone into overdrive since Covid-19 emerged and they’ve only gotten worse as time has passed. How I haven’t ended up with any bald spots, I have no idea. But because of my excessive pulling, my arm and shoulder have seized up and become really quite painful. The muscles actually hurt to touch but she was very gentle and I do think it helped.

We went to bed and I actually managed to get to sleep fairly quickly, which is a bit of a miracle at the moment.


SUNDAY

I managed to sleep in a bit, which was nice, although I’d still had busy dreams. It took me a while to make sense of what was the dream and what was real and when I dragged myself out of bed, I felt slow and sluggish. Fortunately the cats had been very patient about breakfast. Having said that, they were very pleased to see us (and vocal about it).

I had breakfast and a shower, leaving me with fifteen minutes or so to clear my head before my music lesson. One of my parents is a professional musician and music teacher and as another of my goals for this period of time is to improve my understanding of musical theory, I’d asked a while ago if we could spend some time on it together (well, via Zoom). So, every Sunday, we dedicate a couple of hours (sometimes more if we’re on a roll) to working out the chords to a song, figuring out the rhythms to play, etc and then discussing the theory that underpins those things in that particular song. Then I practice it in the week before our next session. It’s hard work – I’ve always found theory quite difficult to really understand – but I do think I’m getting better, if slowly. I think learning it in a practical, applied way is helping and it’s much more fun than just trying to memorise it from a book. To my amusement, it’s basically turned into an attempt to learn every Kalie Shorr song because I love her writing so much but it’s also given me a new appreciation for the songs because I’m seeing how much more to them there is. As I said, it’s difficult and I’m exhausted afterwards (probably from the effort of keeping my concentration on it – a serious job at the moment) but it feels good to be learning and trying to improve my skills.

My concentration is always pretty poor afterwards but I did manage to get some blog writing done. I’m really enjoying this style of writing at the moment; it just flows really easily. I’m also trying to get ahead of myself by a couple of posts, creating a buffer of sorts, just in case I hit a period of writers’ block. That happened a while back and suddenly writing became really difficult and stressful, not exactly something I need more of right now. So I’m taking advantage of (and enjoying) how good and effortless it feels.

Early evening, Mum and I FaceTimed with my Granny. Mum speaks with her everyday while I join in every few days (sometimes in the frame and sometimes just in the room, adding to the conversation). We do the crossword together – something we’ve always done when we’re actually together – which is really fun and catch up on each other’s days. I worry about her, her age making her more vulnerable and her being alone during lockdown. We (especially my Mum and my aunt and uncle) try and talk as much as possible and suggest new things to do and new forms of entertainment (especially when her television died and no one would go out to fix it) but I still worry.

After we hung up, I tried to set up the laptop that had finally arrived from DSA, only to find out that they’d sent me the wrong one. Fortunately, I discovered that (sadly, I’m experienced enough with the problems of getting support as a disabled person to check) before I loaded all my files onto it. So we got in contact with them (and after a lot of back and forth) and they’re sending another one to swap it with. When this process is officially over – as in I’ve got the laptop and everything is signed off on – I will write a blog post about this whole process because it has been long and complicated and stressful and I think these experiences need to be out there.

Me and Mum had dinner with more Nikita and I did some more diary writing.

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Somewhere closer to a sensible bedtime, we fed and settled the cats and went to bed.


I hope this was somewhat interesting. When I started writing it, I hadn’t counted on a heatwave that made me just this side non-functional for two days; I’d been hoping to be more productive. I know that we don’t have to be productive everyday but achieving something, even something small does help me to manage my mental health and keep my depression and anxiety from getting into a cycle that’s difficult to break out of.

Anyway, that was a week in lockdown: some routine and some different activities to mix things up. This seems to be the best approach for me. The routine is comforting but the variation keeps me from feeling like I’m in a time loop, living the same day over and over again.

I hope you’re all keeping safe and healthy in these times. I hope lockdown isn’t too traumatic for you and I’m sure you’re managing the best that you can.

Grateful 2019

This year has been a weird year, something I don’t really want to get into until I do my end of year review. But it has been a weird year and with all the medication changes and mental health issues, it’s only the last three months that are really clear in my memory. I’m very aware of being grateful – there’s so much to be grateful for – but having had such a fuzzy brain, I feel sure that I’m forgetting things, something that’s causing me a lot of anxiety. Pieces of the year are just missing from my memory, whether blurry or plain misfiled, and so I worry that there are moments in there that I should and would be grateful for if only I could get a grasp on them. But I can’t. So this is the best I can do. Please forgive me if I’m leaving things out.

My Mum – I always list (or shout out) my Mum because she is the person that I am most, most grateful for. Being the person I am with the disabilities I have, I couldn’t survive in any way without her and for that, for her presence, I am so grateful. She goes above and beyond to help me through the bad days and achieve on the good days and I’m just in awe of her. She is the most caring person I know.

Richard (my best friend and writing partner) – During the first part of the year, Richard and I planned an EP that we were both so, so excited about. And then suddenly, overnight it felt like, that excitement disappeared for me. It was replaced by paralysing anxiety, so bad that I couldn’t even talk about the project. It was awful. But we got through it and the EP – Honest – is now slowly being released, all of which is largely because of Richard, both practically and emotionally. And that’s just our working relationship. He’s always there to text me shitty jokes, to help me write songs when I’m banging my head against the wall, to eat sweets and watch The Good Place with. I don’t know what I’d do without him.

My Family and Friends – I often give a specific shout out to Mum and Richard because they seem to be the ones who most commonly see and help me with my bad days and my anxieties but the rest of my family have also been amazing this year. They’ve always been there when I’ve needed them. I haven’t seen many of my friends as much as I would’ve liked to this year. Between the depression, the trying of different drugs, and starting the Masters, it’s been a messy and complicated year that I will write about more in my end of year review. Hopefully I’ll get to see them more next year.

The animals in my life – We started the year with our dog, Lucky, and three cats, Lucy and her kittens, Mouse and Tiger. We’d dabbled with the idea of Mouse having kittens, just to do the kittens experience one more time, but just as I changed my mind – it was too much change and I needed everything to stay the same – we came home and Mouse was having kittens, despite the vet telling us the week before that she wasn’t pregnant. And now we have two kittens in the house, two black furballs called Sooty and Sweep. They’re gorgeous and them, plus the rest of the animals, have really helped me with my anxiety (which has been overwhelming) over the last three months and that has been so, so important.

My Masters Degree group – Starting a new course or a new anything is always scary and for me, the scariest part tends to be the new people. Fortunately, I’m doing my Masters course at the same uni I did my BA so that was really the only new thing. But I got really lucky: I ended up in a really small group and they’re all really lovely people. It feels like we’ve gotten to know each other pretty well and we’re all so supportive of each other. The groups are going to change somewhat after Christmas but it became a really safe environment, creatively and personally, and I’ll really miss it. I know I’ll still see them and our friendships won’t suddenly end but I’ll miss our little pocket in space and time.

My benefits being renewed – Given how scary the political climate in the UK has become and continues to become, I am so, so grateful that my benefits were renewed before the election and will last until just before the next election, regardless of what happens in the next few years. That was such a relief to learn. I don’t know what will happen after that but for now, I feel like I can breathe a little bit easier.

Red Bull – The major side effect of my current medication is this overwhelming sleepiness. When I told my psychiatrist about it, he said that it should wear off but that it could take months. I’d been drinking Red Bull to help me stay awake and help me concentrate; we discussed the fact that it’s not massively healthy but it’s his opinion that the sleepiness will wear off, hopefully within a few months and then I can give up my Red Bull habit. So we’re keeping an eye on it and in the meantime, Red Bull is my best friend.

Fanfiction – In times of great anxiety, I’ve reverted to a major hobby of my early teenage years. I read stories from every film and TV show I loved and wrote reams of the stuff. I’m not writing it this time around but reading it and getting lost in new stories from familiar worlds has been a very effective calming strategy. It’s made me feel safe. And it’s kept my creativity (always stifled by my anxiety) burning low, in the background, for when I’m ready for it.

His Dark Materials – I have been in love with this show from the first episode. I honestly can’t remember the last time I was so impressed by and excited about a TV show currently airing (I’ve fallen in love with shows after they’ve ended, for example). Daphne Keen is an incredible Lyra and Ruth Wilson blows me away every episode as Mrs Coulter. The sets, the CGI, the characters’ relationships with their daemons, the complexity of the characters, even the introduction sequence are absolutely extraordinary. I’m so gutted that the series is over but I can’t wait for the next one.

Taylor Swift – I’m pretty sure I’ve always mentioned Taylor Swift but I probably always will. Her songwriting is incredible, she’s one of the hardest working people in the music industry, she’s generous, she’s intelligent, and she’s exceptionally kind. She’s one of my favourite singersongwriters and her recent album, Lover, is so, so good: one of my favourite albums of the year, possibly one of my favourite albums ever. It’s beautiful and vulnerable and special. She’s also been saying some very smart and very important things during her recent press cycle:

  • “I’m a woman, I’m not a coat hanger. I need to feel healthy in my life and I need to take pleasure in food and I need to not use my body as an exercise of control when I feel out of control in my life.”
  • “Do not let anything stop you from making art. Just makes things. Do not get so caught up in this that it stops you from making art or if you need to, make art about this. But never stop making things.”
  • “You’re not always going to be inspired and that’s okay.”
  • “If someone’s gonna take your hand, they’d better take your hand, scars and all.”
  • “I guess what I’m trying to say is that all any of the artists, or really anyone in this room wants, is to create something that will last, whatever it is in life. And the fact that this is an award that celebrates a decade of hard work, of art, and of fun and memories, all that matters to me is the memories that I had with you, the fans, over the years. We’ve had fun, incredible, exhilarating, extraordinary times together, and may it continue! Thank you for being the reason why I am on this stage, from the first day of my career until tonight.”
  • “I think that artists deserve to own their work. I just feel very passionately about that.”

And lastly, she’s fearlessly standing up for artists and their right to own their music. It’s a big, hard fight but she’s using her platform and her power in the industry (“as your resident loud person”) to try and change that. Of course, she’s personally affected by it but she could handle it in private. Except she’s not: she’s speaking out and working to create change. And as a new artist, I really appreciate that she’s trying to make the industry I’m entering fairer and less discriminatory.

I think I’ll stop there. I’ve got my Christmas wrapping to do and a Christmas tree to guard from some very inquisitive cats. I hope you all have a safe, happy, and healthy Christmas where you feel as special and beautiful as you are.

EDIT: Honourable mentions to Nashville and the lovely people there, Agents of Shield, and fairy lights. But if I keep going here, we’ll be here until 2020.

Introducing my Mum

In this post, I’d like to introduce my Mum, Sandra. We’ve been talking about her writing a post or two for a while because I think she’s got some really valuable stuff to add to the discussion of Autism, and Autism in women. Most of the resources around Autism tend to be written by parents of young children and while that viewpoint is important, the lack of any other viewpoints is something that needs to be addressed. There’s very little written by young people with Autism and I can’t find anything written by the parents of young people with Autism. So we thought we’d throw this out there.

We’ve never had a typical relationship: I’ve never felt the need to rebel and I can probably count on one hand the number of times we’ve really argued. We just get on really well and we share everything; we talk everything through. So she’s been on every step of this whole journey with me, from the moment I realised that what I was feeling wasn’t normal. She must’ve talked to hundreds of people – friends, family, health professionals in multiple fields – and spent hours and hours reading up on every possibility. She’s been to every appointment with me and she came to therapy with me until I felt confident enough to do it by myself. She pushes me when I need pushing and she protects me when I need protecting. I genuinely wouldn’t have made it this far without her. She’s always believed in me and she’s never stopped pushing to get me the help I needed, not for a moment. I am more grateful than I could ever express. She spoke for me when I couldn’t and she still does if I need her too. I only have to ask and she’s there. She is my hero. I couldn’t be me without her.

Here is a little paragraph from her to start her off:

‘Get out and take up dancing!’ was one of the many pieces of well-meaning advice I was given during my search for help for Lauren. ‘Tough Love’ was another suggestion and was just another way of saying the same thing. Because of the age she was when we started seriously looking for answers, many people, both professional and otherwise, saw much of her anxiety and depression as the ‘normal’ behaviour of an adolescent. But I felt there was more to it and knew I had to try and get some answers. So I began researching: talking, reading, anything to better understand what I saw Lauren struggling with. Now, several years later, I still remember my response to that suggestion: ‘I will take up dancing once I find the help my daughter needs’. And I have been lucky. We have been lucky. We have found some extraordinary people to help and support her but it has often been a long and isolating journey and one that I wonder whether might be useful to share for other parents or carers finding themselves in a similar situation.

We’ve been throwing some ideas around but nothing’s written yet. Between work stuff, moving house, and my mental health, there just hasn’t been the time. But we’ll get there. Stay tuned!