Posted on December 12, 2020
Since my last week-in-my-life post didn’t include any time ‘at’ university, I thought I’d write another one this semester, one that included uni time and all that that entails.
After three really bad mental health days, I was a bit wary about the week ahead – starting it feeling so depleted. It ended up being a very mixed week, as they’ve all been recently. Maybe it’s an end of term thing: I start off strong but then I hit a wall somewhere in the middle and it doesn’t always take much. I’ve worked hard this semester so hopefully I’ll be able to finish all of my assessment stuff fairly quickly – it’s mostly just polishing now – and get some proper holiday time. Last year, I had to work every day of the Christmas break, only taking Christmas Day off. So some time off would be really nice.
The week in this post began on Monday 30th November and ended on Sunday 6th December 2020.
I slept badly so I took my time getting up and having a shower. I had some breakfast (and ALL of my pills – there’s so many at the moment, what with my normal medication, extra supplements, and some antibiotics) and then I got myself sorted for my session with Richard.
We spent about three hours on the call, working on the production for a new song I’d written, and then just chilling out together, chatting about our uni work, the various projects we’re working on, the tv shows we’re watching, and so on… We’re always texting and we have our Zoom sessions but we haven’t hung out together in months and I really miss that.
When we finally hung up, I was exhausted and what started as an episode of The Split while I recovered turned into finishing the second series. It was really, really good – even better than the first series. Nicola Walker and Stephen Mangan were particularly fantastic. I love Nicola Walker; she was incredible in Spooks, Scott & Bailey, River, and now in Unforgotten and The Split. Her performances throughout this second series have been breathtaking and the ending had me in floods of tears. She blows me away every time.
I spent what was left of the afternoon and early evening working on my assessment essay. Then Mum and I had dinner together before starting a rewatch of Unforgotten (yes, we’re on a bit of a Nicola Walker kick at the moment), while I did some diary writing. I’m so far behind, what with everything I’ve been dealing with healthwise and doing for uni. My anxiety over it is so high but so is my anxiety over my uni work so the two are constantly pushing against one another. I never have any respite from it and it’s exhausting.
I managed to go to bed reasonably early, which was an achievement, especially since I had to get up early the next morning for uni.
Again, I slept restlessly but with disturbing dreams that I couldn’t quite remember when I woke up; it just left me feeling kind of uneasy for most of the day, which wasn’t fun. I swear, I’ve had as many nightmares or disturbing dreams since the pandemic began than in my whole life up to that point. It’s horrible; I really feel for anyone who deals with this generally, independent of the pandemic.
I got up, got showered and dressed, had breakfast and pills before logging into my first class of the day. I could only stay an hour of the two (pre-arranged with my tutor) but we spent that hour identifying and discussing different kinds of hooks and how they’re used in songs. Then I had to sign off for a call about my rheumatology referral. It seriously cannot come quickly enough; the pain in my arm, hand, back and legs is only getting worse as time passes.
Before I got down to work, I checked my Spotify stats and saw that the Honest EP has surpassed 30,000 streams. It’s a weird feeling, knowing that so many people have heard these songs. A good feeling, but a weird feeling. I can’t really describe it.
I spent several hours working on my essay, all but finishing the first draft. So that was a good bit of work done – more than I can usually manage between classes. I had some lunch, some time to dedicate to my diary writing, and then I was signing back into class.
The afternoon’s workshop was a productive one. We got through a lot of songs and we had some really good discussions, despite only having an hour. Everyone was really lovely about my song, which meant a lot since it was such a personal one. I also had questions about the grading criteria and learning outcomes because I find the language very unclear and that lead to a good conversation about the assessment as well as inclusivity and accessibility of the course. So it felt like a really positive class, in all sorts of ways.
When my class finished, my Mum and I FaceTimed with my Granny for her birthday and I also got to see my aunt (they’re in a bubble together), which was really lovely. I don’t think I’ve seen either of them in person since Christmas, which has been hard, even knowing that it’s the right, responsible thing to do. It a weird world – a difficult world – when the best way to love someone is to stay away from them.
I also FaceTimed with one of my parents who’d had a particularly rough day. So it was a very social day! It was good to do but I definitely felt drained afterwards.
I was having some downtime, doing some blog writing and watching TV, when another of my other parents called me and told me to change channel to a very cute programme about puppies. It was indeed very cute and it did make me wish for a puppy again, not that we intend to get one in the foreseeable future – we don’t have enough time to properly devote to one so it wouldn’t be fair. But I’m always up for any puppy time I can get.
But the best bit was how one of my cats, Mouse, reacted to it. She was fascinated by the puppies, even patting the screen, trying to touch them. It was utterly adorable. She sat patiently through the advert break and was just as absorbed by the puppies when they returned to the screen. She watched intently for the rest of the programme and then, when the credits rolled, she got up and walked away. It was the funniest thing.
So that was very adorable.
Mum and I had dinner with another few episodes of Unforgotten and I finished my essay. Well, the first draft anyway. It needed a read through and a tidy up before I sent it off but what I’d wanted done for my tutorial session was essentially done. A productive day’s work and in bed before eleven: not bad at all.
So Lockdown 2.0 has ended, not that it felt like much of a lockdown. If you’re going to call it a lockdown, then you have to do what you did in the first lockdown and shut everything down. Otherwise it’s not going to make a difference, people are going to have even less faith in it as a safety measure, and they’ll flaunt the rules because they don’t think it matters. It’s been driving me up the wall. I’m so frustrated: with the government, with the people ignoring the rules (and boasting about it), anyone who is putting casual convenience over the safety of others… Yes, that’s a generalised statement. I’m aware that there are important and necessary reasons to go out but there just seem to be so many people who just don’t care that we’re still in a pandemic and I find that incredibly distressing.
I woke up at eight and intended to get up but then suddenly it was quarter past nine so I must’ve accidentally gone back to sleep. I did manage to get up then and headed straight for my desk to record the vocals for the song I’d been working on with Richard. Even though I love it, for some reason, I find it really hard to motivate myself to start recording so it seems that the easiest way is to just get up and do it before I can get into a procrastinating mindset.
That done, I had breakfast and a shower, leaving me with just enough time to tidy up my essay and send it to my tutor before heading out to have a blood test. I had one a month or so ago and it showed dangerously low Vitamin D levels so I’ve been on a high dose Vitamin D supplement to try and build them up again. This blood test should tell us whether they’ve helped and what the next steps are.
It was almost dark by the time we got home so we settled down in the living room, lit a fire (one of my favourite things about this time of year and about this house – the fireplace) and continued watching Unforgotten. I also kept working on my Lockdown 2.0 blog post. I’d been keeping the list updated throughout the lockdown so it was just a case of tidying it up, adding all the right links, and writing an introduction and conclusion.
I had to stop in the middle to sign in to my tutorial. I had a really good session with my tutor. He was complimentary about what I’d already done and had some really good feedback so I feel pretty good about my next steps. I know what I need to do and now I just need to do it. Then I get one more tutorial before the holidays for any final feedback or guidance. The deadline is in sight, which is more than a bit scary. I just really, really want to do well.
I was exhausted afterwards but I still managed to finish and post the Lockdown 2.0 blog. So I guess it was a pretty productive day.
That done, I had a quick scroll through social media and saw that people had started to post their Spotify stats of the year, both as listeners and as artists. I always find this difficult, regardless of any rational talking to I give myself, regardless of whatever I’ve personally gone through or achieved that year; it just taps into my lifelong insecurity of not doing well enough, not being ‘good enough.’ So it’s not easy. This year should’ve been different, with four of the five tracks from my EP being released since January, but Spotify doesn’t count anything after 31st October and with ‘Honest‘ coming out on 30th October, only one day of its streams were counted. So my most successful song wasn’t a part of my Spotify Wrapped, making it completely inaccurate. So I haven’t shared it – haven’t wanted to – and I feel a little bit robbed of that. I have included the percentage increases here but in reality, they’re a good bit higher since ‘Honest’ did so well.
Hopefully next year, or whenever it is that I release more music, the figures will be more accurate and I’ll feel confident in sharing them. This ‘comparison anxiety,’ as my friend called it, was something I really wanted to work on in therapy this year but even when I’ve felt able to ‘go’ to therapy, it’s been difficult to get much further than damage control around the pandemic. That’s been really difficult – a real frustration – this year. I’ve just felt completely stuck at therapy: while I want to move forward, I’ve only felt able to maintain the fragile balancing act I’ve managed to create. And I haven’t even been able to do that a lot of the time.
Early evening, my Mum and I FaceTimed with my Granny before having fish and chips with one of my other parents. We watched the new episode of His Dark Materials (Series 2 Episode 4) and it was so good. Oh my god, that cliffhanger!
I was just getting ready for bed when I felt the pain in my back. It had been aching all afternoon but that’s not unusual right now but then it started to get worse, sharper and higher. It came on so suddenly that I couldn’t get from the bathroom to the bedroom without Mum’s help and then, when I collapsed on the bed, I couldn’t move because the pain was so bad. It seems to come in waves: there’s the pain and then it surges like a series of electric shocks before finally (FINALLY) receding back to the original pain level. And I never know how long it will go on for; sometimes painkillers seem to make a difference and sometimes it seems to go on for ages regardless. I’m not entirely sure how long this one went on for but it was at least half an hour. And then it always takes quite a long time for me to get my body to relax afterwards, my muscles having been so tense while the electric shock pain was so bad. So even though I was exhausted, it took me a long time to get comfortable and drift off.
It took me a long time to get up because I was so stiff and sore. The rheumatology appointment can’t come soon enough. I struggled through breakfast and a shower and then had a Zoom production session with Richard, continuing to work on the song we’d started on the Monday. Considering how out of our normal styles the song was, I think we did a good job, especially for a demo and I’m definitely interested to hear what my class have to say when they hear it.
We also had some chill time, just chatting and hanging out, almost like we would if we were actually together, which was really nice. We’re coping with remote sessions but I cannot wait to hang out again properly, have face-to-face writing sessions, and actually do things together. Or not do things together but do that together in the same room, if you know what I mean.
When we finished, I did a couple of FaceTime calls with family and then collapsed on the sofa. I was completely exhausted. Me and Mum watched the last episode of Unforgotten Series 3 and oh my god, it gets me every time (if you know, you know – I’m not going to spoil it but the acting is incredible). Nicola Walker does not get the credit she deserves, although from what I’ve read in interviews, she seems to be pretty happy just buckling down on great projects and not doing the whole spotlight thing. (I’m so annoyed with myself that I missed seeing her in The Curious Incident of the Dog in the Night-Time – I would love to see her on stage and it’s such a great book.)
Mum and I were having a relatively chilled evening until I asked her about her call with my doctor. There had been multiple things to update her on and ask about but some of the advice she’d given was just really triggering and upsetting. I will talk about it at some point because I think it’s an important thing to have conversations about but it’s not something I’m personally ready to talk about yet. But it really upset me and just killed the warm, cozy mood of the evening.
And then, to make matters worse, Mouse (the cat) brought in a dead mouse, which is something that almost always sets off a meltdown (fortunately Mum understands this and is okay with dealing with it while I do my best to avoid said meltdown). I managed to remove myself quickly enough that I didn’t have one but it was just the final straw on what I could handle that evening so even though it was still quite early, I went to bed. It was all just too much.
I slept for about twelve hours but I still woke up feeling exhausted, depressed, and miserable. I feel like I spent most of the first lockdown working really hard to get my mental health into some sort of box so I felt like I wasn’t constantly overwhelmed but most days, it still feels like I’m walking on a tightrope and it takes so little to knock me off and back into that suffocating depression. And that’s exactly what the night before did.
I really struggled all day. I just felt completely unmotivated and so, so tired. I was also having to deal with side effects of my antibiotics – they left me with a disgusting taste in my mouth all the time – which was just an extra strain. I only had one day left so I tried to focus on that but it just felt so much harder than it would’ve had I not already been feeling so awful. I did manage to finish and post the blog post about What’s Next for the Honest EP so that was good to do and helpful for my mental state – ticking stuff off my list always gives me at least a bit of a boost.
The good news of the day was that Kalie Shorr had re-released (I guess) her debut album, Open Book (which I wrote about here), but as Open Book: Unabridged, the original album plus four more songs. ‘My Voice’ and ‘Lying To Myself’ had already been released as singles and she’d played ‘Eighteen’ during her livestream concert but ‘Out Of It’ was completely new, which was really cool. They’re all stunning songs and all in their own way. ‘My Voice’ is empowering and unapologetic, as well as a very effective middle finger at the Country labels in Nashville. ‘Lying To Myself’ paints an aching authentic picture of insecurity after a break up with incredible lyrics like, “I picked out all my favourite things you said, then like a delusional architect, I built you up like a house of cards” and “You liked it up on that pedestal ’cause damn, you looked incredible, but coming down’s inevitable.” ‘Eighteen’ is a brutally honest, heartbreaking song about looking back at a relationship that really wasn’t okay, where you were all in but you were only ever treated badly. And ‘Out Of It’ is similar to a previous Kalie song, ‘Awake,’ but this time, she’s saying ‘no’ and isn’t going to get pulled into the bullshit; this time, she’s cutting the cord between herself and the other person. And because I’m a lyric nerd, here is my favourite (or one of my favourites) from each song:
My Voice: “Too rock for country, too country for punk / But who said I had to pick either one / Tattoos at the Opry / I could cover em up but it’s not me”
Lying To Myself: “I’m a little out of touch with reality, it’s never been that nice to me / I like the pictures I paint the best”
Eighteen: “I see you out with younger versions of me / While I’m trying to find who I used to be / I’m terrified that you and I will always be chasing eighteen”
Out Of It: “Your mom and dad put you through hell / You tell your secrets ’til you scare yourself / It’s a big dramatic entrance then you leave / And now I’m the girl I said I’d never be”
Late afternoon saw me dragging myself through some preparation for a mental health assessment that I have coming up, which was another thing I needed to do. But I was so tired that it took forever and I spent a lot of the time it took with my head on my arms, just trying to think. It was just a really bad mental health day. There was no way around it so I just tried to get through it. I was too tired to do anything really but I still tried to write my blog post about the UniversitiesUK Conference. I find it so hard to just do nothing; it causes me a lot of anxiety so even when I’m exhausted, I’m still desperately trying to do something.
By necessity, it was a quiet evening and I went to bed early, all too aware of how soon I had to wake up again to watch Maren Morris’ livestream concert.
After MANY alarms, I struggled up at 2am to watch Maren Morris’ livestream concert. It felt very strange to not be a part of the crowd, singing (or screaming) along with her but it was so good to see her perform and hear her gorgeous voice again. It was very comforting, like a reminder that some things don’t change. The world might’ve turned upside down but Maren Morris is still Maren Morris, an exceptional songwriter, singer, and performer. So I was really grateful that she and her team put together this show for us.
I didn’t get back to sleep until about five and couldn’t be roused for anything. I eventually woke up at twelve and then I felt so tired and heavy that I could barely get out of bed. I spent several hours unable to do anything but lie on the sofa and watch TV. Disrupting my sleep patterns always throws me for six and with the depressive feelings still very overwhelming, I was really struggling.
Eventually I managed a shower, which completely exhausted me. It also makes me feel sick and dizzy to stand up for the amount of time it takes to sort the shower, have the shower, and then get dried and dressed. One more thing on the list of things being investigated.
Back in the living room, I put on Lucifer and attempted to do something productive. Mostly I ended up jumping between this and my diary, writing a few sentences here and there before switching back, just too tired to think enough to write anything decent. So that was frustrating, plus I had the nerve pain in my leg again – not the electric shock version but the bit that always comes before that (even if it doesn’t turn into said electric shock feeling) where it aches deeper than feels physically possible. So that didn’t help.
Mum and I had an early dinner and then she went for a swim. I really wanted to go and felt like I should – I’d been looking forward to it ever since the pool closed for lockdown – but I just had absolutely no energy. So she went and hopefully I’ll feel able to go next time. I got some good writing done though, so at least the time didn’t go to waste.
Having gotten up so late, I ended up going to bed too late, which was a bit of a pain. My sleep schedule is so easily knocked off course and then so difficult to correct. It was worth it though. Seeing Maren Morris perform is always good for my soul.
I slept restlessly and struggled up around ten. I still felt incredibly depressed and it took a huge amount of effort to just get out of bed, into the shower, and up into the living room. I had a quiet day, not that that I think I could’ve managed anything else. I managed to finish and post my blog post about speaking at the UniversitiesUK Conference. I also finished all the paperwork for the upcoming mental health assessment and worked on the interview questions my university had sent me about doing the conference (that interview has since been posted). So, considering how awful I felt, I did manage to get something out of the way and check some things off the ongoing list, which – as I think I’ve said – at least helps me to keep my mental state from sinking lower. Having said that, I don’t want to promote the idea that being constantly productive is essential for your mental health; I’ve just found that, if I can tick something off of my to do list, even if it’s something tiny, then that can help me to keep moving forward, help me not to get stuck in my depression. It doesn’t always work; sometimes I just have to surrender to a bad day and hope that the next one will be better. But trying , even if not succeeding, does seem to do something positive.
In the evening, one of my parents came over and the three of us had a chilled evening, eating dinner in front of the fire and continuing our rewatch of Lucifer. It was gentle and undemanding and I did feel better for it. I often simplify my mood into two levels: surface and deep. And in this case, even though my deep mood was still very depressed and twisted up, my surface mood was a bit lighter. Calling it a surface mood doesn’t, to me at least, make it any less important than the deeper mood; it just means that it’s the mood that deals with the day to day stuff while the deeper mood is the one that you carry inside you and the one that sits with all the big, important stuff in your head and in your life. I guess, I see this mood as the one that’s so intricately intertwined with a person’s overall mental health. For example, in the previous few days, I was depressed on both levels (I’m not sure how good a job I’ve done of illustrating that but it’s the truth) but after the Sunday evening, my surface mood started to lift out of that depressed place. My deeper mood was still there though (and still is as I post this). But the lightening of my surface mood did make it a bit easier to face Monday and the coming week.
I tried to go to bed early but as usual, failed. I swear, I’m desperate to sleep all day and then, at about seven o’clock in the evening, my brain snaps on and starts firing wildly, almost too fast for me to keep up with my own thoughts. It’s so frustrating. It’s almost as if my brain has got day and night confused.
So there you have it: another week completely different from the last. I think I’m grateful for that – it must be better than feeling like you’re stuck in a hamster wheel surely – but it’s not without it’s difficulties. When planning is the thing that makes life easier to bear, it can be hard when each new week seems to bring something unexpected.
You guys seem to like these posts so I’ll be sure to do another one soon but probably not until the new year. Touch wood, I can get all of my coursework done in the next ten days and then I can have some time off (although I’m not exactly sure whether it will feel like time off – my brain already has an anxiety fuelled to-do list waiting for me – but I’m going to try my best.) Anyway, I hope you enjoyed reading this and I hope to see you in the next post.
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Posted on December 2, 2020
On the 31st October, it was announced that England would be going into lockdown again on the 5th November so it seemed appropriate to revive this list. Having said that, it hasn’t felt like a lockdown at all with so many business, schools, and activities continuing still open; life seems to have continued as normal, which has felt very stressful. I don’t want to make generalisations though. I know that many people have stuck to the rules and been very careful and I am so grateful to everyone who has done so.
As a disabled person, my life hasn’t changed much with the lockdown. The only significant change has been that I haven’t been able to swim, the only exercise I am currently able to do. I can admit that that has been very frustrating and upsetting but if it helps to keep people safe, then that is something that I’m more than willing to do. I just hope that the sacrifices so many people are making are worth it – most so much bigger than mine – that they outweigh the lack of care that some people have shown. Just my two cents.
Now, to the list…
I hope that was interesting to read, that you got something out of this post. Hopefully there won’t be cause to revive it again but if there is, I guess we’ll see what I get up to. I hope you’re all staying safe and are coping the best you can. See you in the next post.
Category: about me, animals, anxiety, autism, book, chronic fatigue, covid-19 pandemic, emotions, event, meltdowns, mental health, music, treatment, university, video, writing Tagged: agents of shield, asd, autism, autism spectrum disorder, autistic, autistic adult, autistic meltdown, autistic student, behind the song, black friday, blogging, bonfire night, celebration, christmas, christmas shopping, close, conference, daisy johnson, essay, family, film, fireworks, folklore, folklore: the long pond studio sessions, graduation celebration, halsey, his dark materials, home recording, honest, honest ep, honest music video, honest single, i would leave me if i could, interview, joe biden, livestream, lockdown, lockdown 2.0, lockdown 2020, masters degree, masters degree in songwriting, masters degree year two, masters part time, medical tests, melodyne, meltdown, music industry, music video, my cat, my cats, nerve pain, netflix, neurodiversity, nicola walker, noise sensitivity, noomi rapace, noughts + crosses, pain management, pandemic, pandemic 2020, part time masters student, part time student, personal essay, poetry, poetry book, popwrapped, production, publication, published, recording, recording session, richard marc, richard marc music, richard sanderson photography, sensory overload, sick cat, singer, singer songwriter, singersongwriter, singersongwriter life, singing, songwriting, student, swimming, taylor swift, the queen's gambit, the split, tim minchin, trigger, triggered, triggers, university, us election, us election 2020, video, writing
Posted on November 14, 2020
While I was going to write a series of posts about the events of this week, the way all of those events played out made that much more difficult than I’d anticipated so, after a lot of thought, I decided to put them all together in one post because I still really wanted to write about all of them. It was an intense week, with some really big events and a lot of anxiety.
The week in this post started on Monday 2nd November and ended on Sunday 8th November 2020, the autumn semester’s reading week. It involved an Autism webinar, the US election, Bonfire night, as well as the beginning of England’s second national lockdown.
My Mum was visiting her Mum, masked, social distanced, and outside where possible before we all go into lockdown again. So I was all on my lonesome, which is pretty unusual these days. Apart from the cats. Once Queen Lucy realised I was awake, she was climbing all over me, very clearly telling me that it was time for breakfast. So I dragged myself out of bed and went downstairs to feed the pride.
I spent the morning doing various admin tasks like replying to emails and finishing a couple of blog posts before having a shower, getting back to my computer in time to get a ticket to Tim Minchin’s upcoming livestream for his new album, Apart Together. It’s scheduled for the end of November so that will be something really fun to look forward to during lockdown. In the description of the event, they describe him as an ‘inimitable poly-talent,’ which is absolutely true and I just can’t help thinking what it would be like to be described that way. What an awesome compliment.
That done, I settled into my little home studio space and got to work. There were a handful of songs that I had been neglecting and so I finally forced myself to stop procrastinating and prioritising other things and spent several hours recording vocals for them. It’s stupid: I don’t know why I put off recording vocals so much. I guess they make me feel anxious and insecure, like I’ll listen to myself and suddenly realise what a terrible singer I am (which, yes, I recognise is ridiculous because while I know I’m not the greatest singer out there, I know I’m not terrible). But anyway, I always put it off and then when I finally do it, I remember how much I enjoy it. As I said… ridiculous, and yet we’ve all had that experience in one way or another.
It was a challenge because it was really windy outside, so windy that the microphone was picking it up and I had to delete multiple takes because the wind noise was so obtrusive. And then, Lucy decided that she was being left out of something important. I managed to convince her to lie on my bed (instead of climbing all over me) but even her stretching and clawing the duvet was making it into the recordings. I ended up barricading myself in my bedroom for the rest of the tracks. Fortunately, she (and the others) didn’t start yowling until just as I was finishing up so I was able get everything done without the feline interruptions. I think they’ve developed a form of separation anxiety after having me at their complete disposal (by which I mean I’m available to be sat on at almost all times) since late February and the closed door was just unacceptable.
I had a short time to rest and order my thoughts (change hats, if you will) before signing into an online meeting about an upcoming conference that I’m a panelist for. Just typing that out is wild to me; this is something I’ve always wanted to do. I mean, ideally it would’ve been on a literal panel, talking directly to people, rather than through a screen, but I’m not complaining. I’m nervous but excited. The other panelists were all really nice and we had a good discussion and planning session.
I was pretty knackered after all of that so I lay down on the sofa and attempted to do some blog post writing. I didn’t get very far – I think I was just too tired – but I made progress on a couple of posts so that was something.
I had a place on a webinar in the evening about Autism in young people but as hard as I tried, I couldn’t get into it and the anxiety and frustration and confusion – likely combined with my anxiety about the pandemic, the US election, and the impending lockdown – resulted in a lot of distress. I wouldn’t call it a panic attack or a meltdown but it was a serious overload of difficult and upsetting feelings. I talked to Mum about it afterwards and she suggested emailing them to see if they had a recording I could watch since I’d paid for a ticket and then not been able to attend. So that was a job for the next morning; I was too upset and all over the place to try and write a coherent email.
Despite not attending the webinar, I ended up staying up far too late, bouncing between writing for my blog and in my diary. Lucy curled up with me and, completely exhausted, I was asleep in a matter of minutes.
I woke up with a headache that even my prescription painkillers couldn’t kick. I’d had a busy day planned out, with the US election the next day (I knew it would dramatically affect my emotions and therefore my ability to work so I’d planned to get as much done beforehand as possible). I tried to get up and get things done but I just felt so unwell that I ended up shifting my week around to give myself a lighter day. I just couldn’t do the more demanding tasks I’d planned to do.
I didn’t manage to get much done that morning. My head was pounding and I was tired and I just couldn’t concentrate enough to get as much done as I would’ve liked to. I did start the essay for this module for the Masters, working out the different sections and the elements I could talk the most about. I also managed a little bit of blog writing; I swear, just as I think I have a decent buffer of posts, they’re gone and I’m panic writing to make sure that I have something to post (not that I’m panic writing this post – I just thought I had more posts lined up than I do).
Early afternoon, I joined the the video call set up by a group from my Masters classes last year (they were the full timers who’d done the whole course in one year while, as a part timer, I’m taking two years to do all of the modules) to watch their online graduation ceremony. As far as I know, everyone was watching the ceremony but not everyone was in the video call, including one of my best friends but we were chatting via WhatsApp. When the ceremony ended, the university had organised video calls for each course and so the majority of the full timers logged on, plus a few of the part timers as well as our course leader to celebrate together. Some of the other tutors on our course also dropped in briefly to say hi. It was so nice to see them all. It feels like so long since I’ve seen most of them and I do miss them; I feel like we had a really lovely dynamic. We chatted and caught up and had a drink together and the whole thing ended up going on for about three hours. I was pretty social-ed out afterwards but it had been so nice to see everyone and celebrate their achievements.
Not long after we all hung up, my Mum took Lucy to the vet as I think the cysts she developed a few months ago have returned. They were back within the hour and the vet had confirmed my theory. The recurrence has also confirmed where they’re coming from and so she’s booked in for surgery on the 12th to remove the cysts and hopefully fix the problem. Apparently it’s not much more complicated than the previous surgery and she’s a very healthy cat so there’s no reason to worry unduly. He’s a great vet: we haven’t known him long at all and yet he already takes my high levels of anxiety into account when giving explanations and laying out the options. I really, really appreciate that.
Lucy has never seemed distressed by going to the vet but she’s always very pleased to be home. She often comes and cuddles up with me if possible though. I don’t know if she feels in need of affection, if she was trying to get rid of the unfamiliar smell of the vet, or whatever but it was very cute.
We weren’t confident about the support bubble rules going into the second lockdown so one of my other parents (who we’re in a support bubble with) came over for the evening and we hung out, had dinner, and watched some TV together. It was really nice and I think we all needed it.
Throughout the afternoon and evening, I’d been working on a personal essay to go out as part of the campaign for my recent single, ‘Honest,’ and I finished it at around eleven. I could barely keep my eyes open by that point but I thought it was at the very least decent, as did my Mum when she proofed it for me – I’ve had much more positive feedback since, which has been good for my confidence as I was feeling quite insecure about it. But anyway, given how tired I was, I decided to leave it as it was and have another look at it in the morning before sending it off.
I’d been doing my best not to think about the US election all day, avoiding social media as much as possible, but when I went to bed, all the anxiety rushed in. I was so terrified of Trump getting in again; I was almost overwhelmed by the dread of waking up to that as the result. As hard as I tried, I couldn’t relax enough to sleep and ended up taking both my anti-anxiety medication and a sleeping pill.
While I think we all felt that it was unlikely we’d wake up to an official result, it was nonetheless tough to wake up and see that it still wasn’t over. But worse, was that it could still go either way when I checked the news first thing. I saw this meme making the rounds on social media and it felt very relevant; I’m pretty sure that this was how my face looked.
It ended up being a long, anxious day of refreshing the various news sites, waiting for updates and not getting much done. I did manage to edit the personal essay and send it off but other than that, I just bounced between writing blog posts and working on my Masters essay without making much progress in either. I was just so anxious; I felt like I couldn’t breathe. I may not be American nor do I live in the US but I have friends and family who do and the political decisions made there have the potential to ripple so far out, affecting so many countries and so many people. So to say I was stressing would be a massive understatement.
Slowly though, the numbers did start to shift in favour of Biden more and more. It wasn’t a done deal by any means but it was going in the right direction. I was refreshing my phone relentlessly; I could barely concentrate for five minutes without having to check to see if there was an update.
In the evening, Mum and I had dinner and then went for one last swim before lockdown closed all the gyms. We tried to make it as safe as possible, going close to their closing time when it’s always quiet. Plus they keep all the doors open to help with the ventilation. I still almost fell apart in the changing room because the experience was so stressful – whether it would’ve been a meltdown or an anxiety attack, I don’t know. But the staff helped us out and the few people swimming were very obliging about making it possible to put as much distance between all of us as possible.
We had a really good swim, including some of the new hydrotherapy exercises, and by the time we got home, Biden only needed six electoral votes to win and Trump needed fifty six. I was so excited; I actually felt like I might throw up from the anticipation. Again, I found it very difficult to sleep.
And so begins Lockdown 2.0…
I slept long and deep and when I did finally wake up, I didn’t get up for quite a while, going through the election coverage. The numbers hadn’t moved and it was making me edgy.
I got up, had breakfast and a shower, and got down to working on my essay. I’d only been working on it for about half an hour though when a friend called and we ended up talking for over an hour. It might not have been the way I’d planned my morning but it was really good to have that chat; I felt better for it.
When we hung up, I managed to do a bit more work on my essay before getting myself made up to do some filming. It’s getting dark so early now that I couldn’t wait any longer or I’d lose the light. I set up my little corner (I’d love to have a more permanent space at some point) and filmed some bits and pieces for the ‘Honest’ single campaign. It was a bit of a struggle – cold and uncomfortable and the cats wouldn’t leave me alone – but eventually I got them all done, which was an important job to have ticked off my list.
That done, I went back to my uni work. I spent most of the afternoon working on one of my song assignments: a reimagination of one of my own songs. It’s weirdly hard: you spend so much time trying to make a song perfect and then you have to turn around and create something entirely new from it, bring out a different emotion or try it out in a different genre. I took this really big, fiesty pop song that had this whole ‘I don’t need you’ vibe and turned it into this quiet piano song that was based on the moment of that realisation when it’s still fragile and tentative. I worked on changing the chords and then recorded them but they were still just one chord per bar; I planned to take it to a friend who is a much better piano player than me to help me expand on it, breaking up the chords and changing it a little for each section to keep it engaging since it was just going to be piano and vocal.
I was just finishing and stretching out on the sofa to relax when the fireworks started going off. I hate Bonfire Night. If you’ve read this post, you’ll know why but the short version is that, not only do fireworks massively trigger the noise sensitivity associated with my ASD, I had a firework thrown at me when I was at the cinema as a teenager. So fireworks make me very anxious and the more there are, the more anxious I get.
I was doing okay: I’d done some blog writing, Mum and I had had dinner in front of Legally Blonde (a friend of mine has been trying to get me to watch it for ages, ever since I’d said that I’d never seen it), but then excruciatingly loud fireworks (that we later found out were being let off a few gardens down from ours) started going off. It could’ve been machine gun fire. The sound triggered one of the worst meltdowns I’ve ever had: I was shaking, hyperventilating, sobbing, screaming (apparently I was screaming ‘stop’ over and over but I never really remember meltdowns afterwards), pulling out my hair to the extent that I was drawing blood… I have no idea how long it went on for but it felt like it could’ve been an hour. Eventually it stopped but meltdowns – my meltdowns at least (I don’t want to speak for anyone else’s experience) – often take a while to settle. I’d barely started to relax when a few minutes later, it all stared again and re-triggered the meltdown. Even after they did finally stop, it was still a long time before I was responsive again, able to interact with my surroundings, able to talk again. It was horrific. It was absolutely horrific.
I have no idea how much time that ate up, just that I was absolutely drained afterwards and barely able to sit up on the sofa. We finished the movie (I liked it for the most part but there’s a really problematic scene where one of the lawyers tricks a gay man into outing himself in public, which is just not okay – I get that it was almost twenty years ago but that doesn’t make it comfortable to watch) and headed for bed. The one thing I will say about it being Bonfire Night was that one of my cats, Sooty (pictured below), stayed with me all evening, snuggled up nice and close. I don’t know if she understood my distress or whether she, herself, needed some comfort but it was very nice to have her with me all evening. Nothing really helps with the meltdowns but it did help before when it was the odd bang and after when I was a collapsed on the sofa. She was an excellent little companion.
Despite being so exhausted by the meltdown, I couldn’t sleep, no matter what I did. Maybe it was adrenaline, maybe it was fight or flight… I don’t know. But I couldn’t fully relax for hours, even with the help of a sleeping pill. I think I eventually went to sleep at some point between two thirty and three.
I struggled up the next morning and after a while, decided to post about the experience. I’d seen #banthefireworks and similar hashtags trending on Twitter the night before, mainly to do with how traumatising they are for pets and for wildlife. It was, however, the first time I’d seen people with sensory issues and Autism mentioned as well though, which felt like quite a big deal. I’d been too out of it the night before to write anything at all but with my head a little clearer, I thought that maybe it could be a good idea and maybe raise some awareness about what the experience of Bonfire Night (and fireworks in general) is like as an autistic person. So I posted this on Twitter and on my Instagram stories:
I actually got a really lovely response with a handful of likes and kind, supportive comments.
I got up and got myself ready for the day and settled down to do some blog post writing. I was feeling very fragile after the meltdown(s) the night before so I put on one of the movies that I discovered during the first lockdown and ended up watching a lot because it just feels good. It’s called ‘Isn’t It Romantic’ with Rebel Wilson. I’m generally not a rom-com fan and I hadn’t seen Rebel Wilson in a role that didn’t make me cringe so I was initially wary when my friend recommended it but I ended up loving it. It’s just the ultimate feel good movie. So I had that on in the background as I tried to write (my thoughts always feel kind of fuzzy and not quite connected after a meltdown, sometimes for a few hours and sometimes for days – it can get really upsetting if I spend too much time thinking about it; feeling like your brain doesn’t work just feels so horrible and scary).
Mid afternoon, I had a session with my therapist. I haven’t ‘seen’ her for a while so we had quite a bit of catching up to do. We talked in depth about the night before, as I usually need to after an experience like that. I feel pretty lucky that I had a therapy session within less than twenty four hours, even if it was still very raw. But better that than in a week or two. The other main thing we talked about was how I’m struggling more than usual with my OCD: with the new semester of uni and the promotion of ‘Honest,’ it’s been really hard to find the time and emotional energy to keep up with my diary (for those unfamiliar, my OCD manifests as a compulsive need to write everything down. The overwhelming anxiety and pressure to keep up and do well in my Masters and what is effectively my job seems to be the only thing that can overpower my compulsive writing but then the anxiety around that only builds and builds until I feel like I can’t breathe, like my mind is coming apart and I’m no longer able to form coherent thought processes. We spent a while talking about that and about starting to tackle it as an issue, something we haven’t done because the pandemic has had such an impact on my mental health. It was an exhausting session but it was good to see her and hopefully, in therapy at least, I’m moving out of the frozen state I’ve been in since the pandemic hit the UK. I’m reluctant to commit to that as a statement but I’m cautiously optimistic.
I was pretty much done after that; I didn’t have any energy left. I posted a video to remind people about the new single but that was pretty much all I could manage for the rest of the day.
Since I was too tired to do anything, I ended up watching a new film, Inheritance. The trailer had looked good and while it wasn’t the best film ever, I thought the acting – especially the scenes that involved just Lily Collins and Simon Pegg in a room – was really good and I enjoyed the twists and turns. It was very dark though so I can definitely see it appealing to some and really not to others.
While the fireworks weren’t anywhere near as bad as the night before, people were still setting them off throughout the evening, which really heightened my anxiety. I could barely eat; it felt like my throat was closing up and swallowing was actively uncomfortable.
I spent the evening bouncing between trying to write blog posts and trying to write my diary, not achieving much with either. Again, I think I was just too tired. But it was still a bit too early to go to bed and I wanted to try and do something, even if it wasn’t much.
I FaceTimed with one of my parents before going to bed, which was really nice and then, during the call, I got an email saying that I’d got a ticket to Halsey’s upcoming livestream for the launch of her new poetry book, I Would Leave Me If I Could, which was really, really excited. And when I went to bed around eleven, Biden was very close to winning. So that was a good mental state to be going to bed with.
I struggled up at nine thirty and got straight to work, recording vocals for the reimagination of my song before my session with Richard. That went pretty quickly and smoothly because I was fairly solid in the new melody. I think it’s pretty good, although I was a bit concerned that the rhythm of the melody wasn’t that different from the original. I didn’t have the time to rework it so I thought I’d take that to class and ask for advice, both in terms of whether they thought it was a problem and how I should go about changing it if it was.
That done, I had a shower and breakfast, published my blog post about going back to the gym (pre this new lockdown), and then logged into Zoom for my session with Richard. We spent the next three hours working on the reimagination of my song and of the cover song. I found it quite frustrating since it was mainly arrangement and production based, so all I could do was offer direction and suggestions but Richard had to do all of the physical work, considering the Logic project was on his screen. This is one of the things I find hardest about collaboration via programs like Zoom: you can’t just take over from one another, swap chairs or instruments, or even point to things on the screen. Sometimes I end up finding it hard to engage and sometimes I just end up wanting to scream because I feel so limited. Most of the time it’s fine and I’ll gratefully accept the fact that we can work long distance at all but every now and then, the frustration just gets too much.
After hanging up, I put Friends on for background noise and spent a few hours working on upcoming blog posts.
I wasn’t refreshing the news as obsessively anymore so I didn’t discover it for myself. I got a text from Richard at 4:28pm with a screenshot of the BBC News announcement. I actually shrieked and shouted to Mum to tell her. I was positively giddy with relief: I laughed hysterically and then I just started crying because I was just so overwhelmed with so many emotions. It was like I could breathe again. And considering that’s how I felt when it isn’t my country or government, I can only imagine how everyone in America – those who had worked so hard to get Trump out and Biden in – were feeling.
The majority of people that I was seeing on social media were hysterical with joy and it being such a historic moment, I felt that I really wanted to add my own to mark the occasion…
We were just finishing dinner when the fireworks started going off. They weren’t bad enough to trigger a meltdown but they did make me anxious, cause me to flinch and lose my train of thought. I was going to be very pleased when those few nights of fireworks were over.
We had a quiet evening of TV (me and Mum are currently rewatching Hustle – it’s easy to watch but still such a good show) and I tried to do some gentle work on my Masters essay but I ended up in a state about all the musical theory language that I was supposed to be using but didn’t understand, being a self taught musician rather than having had lots of lessons or doing grades. So that was very stressful and I got very upset so I emailed my tutors to ask for some guidance.
I was still buzzing about the election news but it had been somewhat dampened (temporarily) by my uni anxiety so I went to bed just feeling like a complete mess. I was exhausted and overwhelmed and anxious and it was all just too much. By that point, I needed the emotional fresh start a new day would give me.
It wasn’t easy but I managed to wake up around eight thirty. I got distracted from getting up when I checked my social media though, looking through all of the posts about Biden getting in. There were a few negative posts but on the whole, my feed was mostly filled with positive ones, which was a nice way to start the day. Obviously our social media isn’t an objective view of any subject so I wasn’t going to base my knowledge of the election outcome on the reactions I was seeing but seeing so much positivity and joy on my timeline was a real lift in a very difficult week.
Eventually I tore myself away, had a shower and breakfast, and got down to work. I spent the morning working on blog posts and doing some Christmas present planning and shopping. And then I dedicated the afternoon to preparing for the conference. It’s a conference about University and the Covid-19 pandemic and I’m on a panel discussing autistic students and coping with change. So I wrote down all my thoughts, organised and input them into the powerpoint we would be displaying. It took a couple of hours but I was pleased with the work I’d done. Now I just have to pull together my notes for when it’s my turn to speak but I didn’t want to do that until we’d all met again and signed off on the powerpoint as a group.
I had some chill time before one of my other parents arrived for our weekly evening together (she’s in our bubble and it seems that bubbles – those that bring a household and a single person together anyway – are still permitted during this lockdown). We’d decided, given that we were already in a bubble and none of us do anything out but the essentials, that we felt safe to continuing seeing each other.
We had a really good evening. She’s a music teacher (or at least that’s one of her hats) and has been for decades so she was able to help me out with my essay: we went through the harmonic, melodic, and rhythmic elements of every section of the song and it was kind of hilarious how consistent I’d been without being aware of it: almost every element built on the idea of tension and release, except the release never comes. Non-diatonic chords, uncommon intervals, irregular time signatures, syncopation for days… The song had been an experiment in the weird and it was certainly that.
We had dinner with a movie (we missed the new episode of His Dark Materials because I got the time wrong – me and Mum made a note to watch it the next day) and while my parents were content to relax with the rest of the movie, I went back to blog writing. My brain struggles to sit still, to do one thing without getting distracted or bored. So I kept writing, with Sooty curled up between my knees. It seems to be her new favourite place.
Once it was just me and Mum again, we took our time winding down and then headed for bed. I checked my phone one last time and saw that, as promised if Biden won the election, Kalie Shorr had released a worktape of one of her unreleased songs, ‘Strawberry Blonde.’ It’s such a great song. Her lyric writing especially just blows my mind:
“…Sometimes I still get wasted
To stop thinking ‘bout the time I wasted
I started taking long walks again
And I started talking to God again
You’d hardly recognise me with my rose-coloured glasses gone
You might find it surprising I stopped taking shit from anyone
I got a new tattoo so you don’t know what I look like when my clothes are off
And I went strawberry blonde…”
I learn so much from her songs and I’d love to have the confidence she has in her writing style, in herself as an artist and as a person it seems. She is one of the people I want to write with most; I feel like it would just be so much fun and I’d learn so much. Plus I think we could write one badass song. She’s such an inspiration to me and has been ever since I met her and started following her career in 2016. I don’t know if she knows what an impact – what a positive impact – she’s had on my life.
My brain was going off like fireworks (ironic, I know, but it’s the only metaphor I’ve found that fits) after hearing that song, lyrics bursting into life behind my eyes, which of course I had to write down so as not to forget them. My brain is often at its most active and creative at night. So it took me a long time to get to sleep.
So it was a hell of a week. There was good, bad, really good, and really bad. I can’t say whether it was the week I expected or not because I had no idea what the week was going to look like, mostly due to the US election. Most of all it was exhausting. The new week felt daunting, going in so depleted, but it’s not the first time and it won’t be the last.
I hope this was interesting; I hope you enjoyed it. And I’ll see you in the next post.
Category: about me, animals, anxiety, autism, chronic fatigue, covid-19 pandemic, diagnosis, emotions, event, favourites, holidays, meltdowns, mental health, music, ocd, therapy, university, video, writing Tagged: a week in my life, alt pop, anti anxiety medication, anxiety, asd, autism, autism spectrum disorder, autism webinar, autistic, autistic adult, autistic blogger, autistic meltdown, autistic meltdowns, autistic student, best friends, blogger, blogging, bonfire night, cat, cfs, christmas, chronic fatigue, chronic fatigue, collaboration, compulsive writing, conference, coronavirus, covid-19, cowriting session, diary writing, donald trump, essay, essay writing, exhaustion, family, family of cats, fatigue, film, fireworks, graduation, graduation 2020, graduation celebration, graduation ceremony, gym, halsey, honest, honest ep, honest single, i would leave me if i could, indie pop, inheritance, inspiration, isn't it romantic, joe biden, kalie shorr, kitten, legally blonde, livestream, lockdown, lockdown 2.0, lockdown 2020, ma student, masters degree, masters degree in songwriting, masters degree year two, masters part time, medication, meltdown, meltdowns, meme, music theory, musical theory, noise sensitivity, obsessive compulsive disorder, ocd, pandemic, pandemic 2020, pandemic anxiety, panel, part time masters student, personal essay, piano, poetry, poetry book, president, president biden, production, recording, reimagination, reimagined, richard marc, singersongwriter, singing, social bubble, social bubbles, social media, songwriter, songwriting, songwriting assignment, songwriting challenge, songwriting inspiration, songwriting session, strawberry blonde, support bubble, support bubbles, swimming, swimming pool, therapy, tim minchin, university, us election, us election 2020, vet, webinar, week in my life, working, writing, writing session, zoom, zoom calls, zoom writing
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.