Posted on December 31, 2018
This year has been a struggle. Almost eighteen months ago, I made the decision to change my medication and that has basically been my life ever since. Lots of pills and doctors appointments but mostly dealing with the side effects, everything from nausea to shaking to a complete inability to think clearly. I don’t think I realised what a huge undertaking it was going to be but it’s not exactly surprising: you’re throwing all the chemicals in your brain and body out of whack. I tried Venlafaxine, Lithium, and Lamotrigine; I weaned myself off Venlafaxine, tried Amitriptyline, and now I’m taking Pregabalin and Clomipramine. This is the most promising combination so far and I’ve actually had a few really good days so I’m cautiously optimistic. But it’s been a long, hard road, sometimes so difficult that I wasn’t sure I’d survive it. And I don’t really feel able to acknowledge the good bits without paying tribute to the really tough things I had to go through and so got through.
The first of The Big Difficult Things was moving house. God, that was a struggle. Having thought that I’d found some sort of peace around it, when it came to the day, I was absolutely devastated. There were a lot of tears – from all of us. That house was my home for fifteen years – home to the greatest triumphs and tragedies of my life – and so, to some extent, it will always be my home. I think I could probably walk into my old bedroom twenty years from now and fall right back into that old rhythm.
I’m still learning the rhythms of the new house. There are days where it feels normal and then others where I hate it so much I could scream. Most of the time, it still feels like someone else’s house. Someone else’s house with all our stuff in. But every day is a step in the right direction. We’re filling all the empty space with memories, slowly but surely.
I’ve been writing a lot about Claire Wineland of late but I couldn’t write about this year and not mention her. Her death was another of The Big Difficult Things of this year. I stumbled across her YouTube channel late last year and have been following her on social media ever since. She was – and still is – a big inspiration for me and her death hit me really hard. It just makes no sense to me and never will and I’m still struggling to cope with that.
And through all of this, depression has been my constant, oppressive companion. While I had experienced depression before, this was a whole new kind of prison. The lows were lower than I’d ever experienced and there were several pretty scary moments. And as well as affecting my mood, my depression made it almost impossible to write songs. I’ve had many discussions about writer’s block over the years and I’ve always thought that there are things that can make writing difficult and so you have to figure out what’s causing the block and address it. In my case, it feels like depression suppresses the creative part of my brain: I don’t get random sparks of inspiration, I can’t solve problems creatively, and any active creativity – like songwriting – is like pulling teeth. It feels like writing songs requires a certain level of functioning that I’m just not capable of reaching while depressed. I want to write more about this – about depression and writer’s block – but that’s for another post.
Having said all of that, there have been good days, as well as good experiences on bad days.
By far the best part of this year has been the time spent with my friends and family, whether that be online or in the physical world, in Nashville, London, or Brighton. Or anywhere in between. These people have kept me going through the hardest period of my life so far and I’m so ridiculously grateful to them for that.
I got to travel a little bit this year, which was amazing. I managed to get back to Nashville where I had the most intense ten days possibly of my life. I got to see some lovely people, write songs (or try to), listen to some of the best songwriters in the world, and play a Song Suffragettes show. Even though I was incredibly anxious about it, that may very well have been the best day of my year.
I also travelled to Iceland for the first time and saw so many beautiful things, including a 60m waterfall, the Diamond Beach, and the Northern Lights. The natural scenery in Iceland took my breath away time and again. It felt like the first breath you take after being underwater. Of course, there was a lot of anxiety during the trip but it helped me in a way that only the magnificence of nature is able to.
There have been more wonderful live music events than I can count: Paramore, Kelsea Ballerini, Sugarland, Kacey Musgraves, Natalie Hemby (and all of Tin Pan South in Nashville), Frank Turner, Betsy Lane, The Shires, Sinead Burgess, The Brummies, Halsey, Kina Grannis, Aislin Evans, Maren Morris, and of course, Taylor Swift. Despite the anxieties around concerts, these are the places where I feel most alive and so, throughout this difficult period, I’ve always tried to ensure that there was another concert to look forward to.
And despite my musical struggles this year, I’ve actually played a few gigs and played shows that I am so proud to have been a part of. I got to play with WRTW again and it was even more fun than the first time (if that’s possible). I played Autism’s Got Talent in London, which was such a great opportunity. I played for Brighton Soup and Disability Pride in Brighton, two amazing organisations that I can’t praise enough. I also played Summer Fest in Worthing, my first show with my awesome friend, Richard Sanderson. And of course, I got to play a Song Suffragettes show when I was in Nashville.
I’ve also managed to do a handful to Autism research studies, as well as giving blood. I’ve been feeling so useless so I tried to contribute as best I could during this time where I’ve felt incapable of contributing anything at all.
Another big part of this year was getting used to the kittens: my cat had two kittens in February and me and my Mum just fell in love with them so we ended up keeping them. I love them dearly but it has been a major adjustment and a real struggle, especially with the daily battle that is depression. So this has been both a good and a bad thing. I want to write more about this whole experience because there were – and still are – a lot of complicated emotions involved. But above it all, we have Lucky and Lucy and the kittens and I love them more than life itself.
So, that’s it: 2018. It has been a hard, hard year, and one I’m very happy to leave behind but I’m cautiously optimistic about the next few months and the next year. I’ve felt better in the last couple of weeks than I have all year and I’m hopeful that this is characteristic of what’s to come.
“2018, the year of living, fighting, but ultimately, surviving depression. There was a lot of gold in the grey but I’m so ready to move on to 2019.” (x)
Category: animals, anxiety, autism, depression, event, holidays, medication, mental health, music, treatment Tagged: 2018, 2018 in review, amitriptyline, anti anxiety, anti depressants, anti-depressant, antianxiety, antidepressants, anxiety, cat, claire wineland, clomipramine, concert, concerts, creative block, death, depression, family, friends, grief, halsey, happy new year, iceland, kitten, kittens, lamotrigine, life, lithium, maren morris, medication, mental health, mental health blog, mental health blogger, mental health blogging, mental health treatment, mental illness, moving house, nashville, new home, new house, new year, performing, pregaballin, singer, singersongwriter, song suffragettes, songwriter, songwriting, support system, taylor swift, treating depression, treatment, venlafaxine, writers block
Posted on December 29, 2018
Just as I did last year, I want to send off 2018 with the songs that made up my year, the songs that marked the happy moments and the sad, the lost and the lonely. Here goes:
1. Damn Sky by Kalie Shorr
I am obsessed with Kalie’s most recent EP, Awake. It’s SO GOOD. The songwriting, the production, the guitar parts, the vocals… I love it. There are multiple songs I could’ve chosen for this list but I think this one is so empowering. These songs have been the soundtrack to my year and I listen to them practically everyday.
What do you do when your whole heart breaks
And love only leaves you blind
Somebody had to light the way
So I learned to have the stars in my own damn sky
I got the nails, I got the hammer
If I got myself, I got the answers
2. I Am Disappeared by Frank Turner
Back in February I went to my university’s monthly songwriters’ circle and Frank Turner was the special guest. I love his songwriting, especially his lyric writing. The stories he tells are so rich and vivid. He asked if anyone had a request and someone shouted out this song and I just fell in love with it on the spot. It’s become a soundtrack to my anxiety, but not in a negative way. It’s like it translates my anxiety into something real and that’s such a relief.
I keep having dreams
Of pioneers and pirate ships and Bob Dylan
Of people wrapped up tight in the things that will kill them
Of being trapped in a lift plunging straight to the bottom
Of open seas and ways of life we’ve forgotten
I keep having dreams
3. Without by Megan O’Neill
Another month, another songwriters’ circle. Megan was the special guest at the March circle and I just fell in love with her voice. And her lyrics and her melodies. With every song she played, I was more and more inspired. This one is a particular favourite.
If I can’t have you, you can’t have me
‘Cause it’s all or nothing and there’s nothing in between
If you’re halfway in, I’m halfway out
Baby, we can’t shine in the shadow of a doubt
I can’t live with a love you can live without
4. Babe by Sugarland feat. Taylor Swift
I still can’t quite believe that two of my absolute favourite artists/bands collaborated and created such a beautiful song (and performed it live – what I wouldn’t give to have been there). It’s one of those songs that I’ve just had on repeat. I love Jennifer Nettles’ voice and Taylor Swift’s lyrics blow me away as usual. The imagery is especially gorgeous. I also love the combination of their voices, a nice treat that we otherwise wouldn’t have.
What a waste
Taking down the pictures and the plans we made, yeah
And it’s strange how your face doesn’t look so innocent
Your secret has its consequence and that’s on you, babe
I break down every time you call
We’re a wreck, you’re the wrecking ball
We said no one else, how could you do this, babe?
5. Running Out Of Red Lights by Lena Stone
I have loved Lena’s writing ever since I saw her perform at Tin Pan South in 2016 and I feel like I’ve been waiting for her to release this song for almost as long. It’s so beautiful and the sense of urgency is so real. And I freaking love the electric guitar part, more than life itself. Just kidding, but I do really love it. I can’t wait for her to release more music.
Six blocks down from your new place
High heels never hitting those breaks
If nothing’s gonna stop me then it’s too late
To change my mind
Wishing I could leave you in the rearview
‘Cause every yellow that I run through
Gets me closer to crashing to you
And I’m running out of red lights
6. Tennessee Bound by Sinead Burgess
I saw Sinead Burgess open for The Shires on their tour earlier this year and I loved her writing from the first song, which was this one. I was in a really bad place and her energy just woke me up. It was magical. And now, every time I feel like I’m getting lost, I listen to it and it reminds me of that. I’m really grateful for that.
Hell, I’m ready for my brand new life
Get a new apartment, change my hair, no I won’t be thinking twice
About the things that I’m gonna miss
‘Cause I sure as hell ain’t going out like this
So I’m ready for my brand new life
7. New Light by Baylor Wilson
I have Song Suffragettes to thank for the discovery of this song. They posted a video of it on their YouTube channel and I just fell in love. I love her voice. And I love the lyrics: they’re all beautiful but there’s one – “I thought ‘love’ was just a word that people use, until I heard you say it and I said back to you” – that takes my breath away every time I hear it. There’s something about it that makes me believe that love really is out there somewhere.
Every wrong turn turned out all right
And even when the sun sets, it’s still gonna rise
I see it in a new light
I see it in a true light
Every chapter, every verse of my life
Every time that I look in your eyes
Every cloud and all the blue in the sky
Now I see it in a new light
8. Nightmare by Nikita Karmen
My inner songwriting nerd gets so excited about this song. I saw Nikita Karmen at Tin Pan South earlier this year and I just fell in love with the way she writes lyrics. They’re smart and funny and quirky and wise; I get major songwriting jealousy. And the fact that she deliberately rhymes ‘right’ with ‘right’ and then ‘left’ with ‘left’ – in the SAME SONG – makes me shriek every time I hear it; I love it.
It was just a little doubt that got left behind
From a love that didn’t work out
Just ghosts from yesterday
But they don’t live here now
Reach over to my left
To know you never left
9. Eyes Closed by Halsey
I got to see Halsey live this year (twice!) and it was an amazing experience (even though I was in a really difficult place). This was the first song on the set list and the crowd sang along so loudly that it took my breath away. Literally. I felt breathless with… just awe. The concert was amazing and the crowd was amazing and it was really, really special. This song reminds me of that and I’m really grateful for it.
Now if I keep my eyes closed, he looks just like you
But he’ll never stay, they never do
Now if I keep my eyes closed, he feels just like you
But you’ve been replaced
I’m face to face
With someone new
10. Get Up by Nick Wilson
I heard this song at one of my university’s songwriters’ circle and then listened to it on repeat for the next week. It’s beautiful. The imagery is gorgeous, the production is amazing, and his voice sounds incredible. And it sounds even better live!
You gotta get up, you gotta get up
I know it’s always better than you think it will be
It’s never enough, it’s never enough
You don’t know what you want until you know what you need
Don’t break the silence when it’s beautiful
Just hold your tongue
But you gotta get up, you gotta get up now
11. The Goldfish Song by Kina Grannis
I finally got to see Kina Grannis live this year after following her on YouTube for years and years. That was so exciting and I got to hear so many favourite songs, old and new. This is one of those favourites and I’ve been listening to it on and off for the last few months. I guess it just really resonated with me.
I know what you’ve been thinking
It’s too soon to empty my cocoon
This butterfly’s not ready
But wouldn’t she know better than you
12. Loving You, Using You by Caylan Hays
Caylan is one of my favourite people and I am so excited that she’s putting her gorgeous songwriting out into the world. We’ve written together several times and I always look forward to it because she just has this way with words that is different to anybody else I’ve ever met. This song is so raw and so honest and I’m so excited for the project she’s about to release.
Maybe I’m loving you because I’m lonely
Maybe I’m holding you because you know me
Maybe I’m loving you
Oh, because you’re lonely too
Maybe I’m here because I’m grieving
Maybe I’m terrified of leaving
Maybe I’m loving you
Maybe I’m using you
I wish I knew the truth
13. The Middle by Zedd, Maren Morris, and Grey
I know that the format of this is twelve songs – one for every month – but I have to include this one, a song for the whole year if you like. This is no doubt my most played song of the year – it feels pretty fitting that just a few weeks ago, it was nominated for multiple Grammys. And I got to here it performed live and acoustic. I love it. Maren’s voice is beyond gorgeous and there is no song more fun to sing in the car.
So pull me closer
Why don’t you pull me close?
Why don’t you come on over?
I can’t just let you go
Oh baby, why don’t you just meet me in the middle?
I’m losing my mind just a little
So why don’t you just meet me in the middle?
In the middle
So there we go. My 2018, my songs of 2018. As always, there could’ve been so many more but I’ll leave it there. I hope you enjoyed reading this as much I enjoyed writing it.
Category: holidays, music, university Tagged: 2018, 2018 in songs, baylor wilson, caylan hays, frank turner, halsey, happy new year, kalie shorr, kina grannis, lena stone, maren morris, megan o'neill, music, music recommendations, new year, nick wilson, nikita karmen, sinead burgess, song suffragettes, songs, songs of 2018, songwriting, sugarland, taylor swift
Posted on December 24, 2018
Last year, I posted on Christmas Eve about the things I was grateful for (here) and I really liked it as a practice. Since we don’t have Thanksgiving in the UK, there’s no holiday directly related to being thankful and I think it’s important to make time to think and feel these things. And I always feel overwhelmed by how lucky I am at Christmas so this seems like a good time to do it, to do this post.
My family – I am endlessly grateful to my family. They have loved and supported me through some really difficult times this year and even though that’s what family should do, I’m so, so grateful to them for doing that. I don’t take them for granted. A particular shout out to my Mum for going above and beyond. She’s my hero.
My friends – I am also endlessly grateful to my friends. I haven’t seen as much of them as I would’ve liked this year but I’ve been doing my best to stay in touch. They mean so much to me and I hope they know that. Again, a particular shout out to Richard because he has been incredible this year, supporting me as a friend and a writing partner. I’m more grateful than I can say.
My therapist – I’ve said it before and I’ll say it again: I am so grateful for my therapist. My depression has been brutal this year and there were more than a few moments where I had no idea how I was going to survive (I say that like it’s over and I’m not sure whether it’s over or not). I absolutely wouldn’t have made it through that without her.
Song Suffragettes – If you don’t know what Song Suffragettes is, prepare to have your musical life changed. It’s an organisation in Nashville that focuses on boosting the up and coming female songwriting talent and they have weekly shows showcasing these awesome women. I was lucky enough to join them on my last trip to Nashville and it was definitely the best day of my year (and one of the best in my life). Everyone involved is so lovely and they are doing such important work. Check them out on Twitter here.
Claire Wineland – I’ve written about Claire quite a bit (here, here, here, and here if you’re interested) but she’s been on my mind a lot. I miss her – her presence in my life – more than I know what to do with but I am so grateful to have had her at all. That doesn’t make me okay with what happened (not at all) but I am grateful. She was an incredible human being and she’s still helping people even though she’s no longer here.
Flowers – This is a simple one but having beautiful, colourful flowers around improves my mood and improves my day. In a year that’s felt very dark and colourless, having flowers in the house has made a noticeable difference to my day-to-day life.
My bullet journal – Having somewhere to organise my thoughts and my life has been so helpful. Up until now I’ve never had a system that really worked for me so this is a big deal. I’ve written more about it here.
Lauren Kaech – I discovered Lauren on YouTube earlier this year and I have found her videos and her attitude really inspiring. I talked about her in my post about social media favourites and she makes videos about her experience of living with an eating disorder. And while that’s not an experience I can directly relate to, there are aspects that I can. She talks about facing the things that scare you, the realities of happiness, and a whole host of recovery related topics that apply to anxiety and depression as well as eating disorders. I’m so grateful to have had this in my life this year and at my very worst (in the very worst of my depression), looking forward to her videos got me through the day and kept me going.
Swimming – I’ve written a whole post about this (here) but I wanted to include it here because I’m so, so grateful for it. Almost every morning, I get up and go to the pool and do something that makes sense. Even if the rest of the day doesn’t, that does. I’m also really proud of myself for keeping this up for six months, especially given how bad my depression has been.
Taylor Swift – Miss Swift was on my grateful list last year and the reasons are all still relevant. But this year, I got to see her live (twice!) and that experience was so much fun in the middle of a really dark place. I felt all that weight lift for a couple of hours and that is a big deal. I’m also really grateful to her for voicing her political opinions (breaking her career long silence on the subject) and encouraging young people to vote. In the twenty four hours after she made her Instagram post on the subject, 65,000 people registered to vote, which is just incredible. It made me really proud to be a fan. I don’t think I can say more than, as always, I am grateful for Taylor Swift.
So there you have it. I could write more – there are so many things to be grateful for – but I’ll stop there. I’m wishing you all a safe, happy, and healthy Christmas and I’ll see you in the next post.
Category: diagnosis, favourites, holidays, music, therapy Tagged: blogging, bullet journal, bullet journalling, christmas, christmas eve, claire wineland, concert, dbt, dialectical behaviour therapy, dudebabe, family, flowers, friends, grateful, inspiration, lauren kaech, nashville, ramblings, song suffragettes, swimming, taylor swift, the reputation tour, therapist, therapy, youtube, youtuber
Posted on December 22, 2018
If you follow me on social media, you’ll know that I was in Iceland this last weekend. It’s somewhere that I’ve wanted to go for years and I’ve always wanted to see the Northern Lights so I was very excited when everything fell together and this trip became possible. Despite only being there for four days, we managed to pack in a lot and it was all just so, so special so I wanted to document it here.
By the time we got there and left our stuff in the hotel, there wasn’t time for much but we did have time to go to the whale museum. I’d read about it and really wanted to go and it was beautiful: a warehouse full of huge models of different species of whale and dolphin. The audio guide was super informative and I learned a lot.
The scenery in Iceland is stunning – that was probably my favourite thing about Iceland. When we – me and my Mum – started talking about this trip, I asked if we could go somewhere ‘new and beautiful’ and Iceland was certainly that. It was so, so beautiful. I kept having this weird anxiety that my brain wasn’t big enough to hold all of the beautiful things I was seeing.
We visited the Skogafoss waterfall – we actually ended up seeing it twice because the two tours we went on overlapped for certain sites – which was just amazing. You can walk right up to it and I got completely soaked but it was so worth it. I just stood there and soaked up the magnificence of it. It was so, so beautiful.
Down in Vik, in the south of Iceland, we went to the first live lava show in the world, which was incredible. They told us all about the volcanoes in Iceland and then we got to witness real flowing lava. That was so cool, one of the coolest experiences of my life.
From there, we went on to the beach, a black sand beach. I’d never seen black sand before and it was so surreal. I could’ve stayed there forever because it was just so beautiful and it was all feeding my soul in a way that I can’t really explain.
One of the other things I wanted to do was to walk on a glacier and visit the ice caves but when we went to make that happen, we learned that the hike involved was very physical and therefore more than I could handle. That was really hard to accept. I really, really wanted to go. But my energy and my stamina are so low at the moment that it just wasn’t possible. However, we did get to visit a glacier, which was amazing. It was all so breathtakingly beautiful.
Our first trip out to look for the Northern Lights was cancelled because of too much cloud but we went out the next night and we did in fact manage to see some of the Northern Lights, a green ribbon above the horizon. It looked different to all the photos I’d seen and it wasn’t as dramatic as you’re lead to believe but it was beautiful and it was a really special experience.
“Last night was surreal. We left the hotel at eight thirty and drove around the Icelandic countryside, looking for the Northern Lights. We had a fantastic (and hilarious) guide (shout out to Roman from @graylineiceland) who kept us entertained and informed and even though it took a while, we did find them. It wasn’t a ‘spectacular’ show but I don’t mind. Seeing them at all was so special and this photo, this record of that moment makes me smile so big. It might be faint, it might be grainy, but it’s proof that it happened and I’m so, so grateful for it.” (x)
One of the things I really, really wanted to see was the glacier lagoon, Jökulsárlón. One of my friends had been and her pictures blew my mind so it was first on my list when it came to planning this trip. And it was absolutely stunning. I could’ve stood there for hours, just drinking it all in. There weren’t enough words for all the colours, all the blues, and I was just fascinated by all the different textures in the ice.
And down from the glacier lagoon is The Diamond Beach, a stretch of black sand that’s littered with chunks of ice. Tiny icebergs! It was so surreal and so beautiful. Each one was different and beautiful and watching the waves rush up the beach, over and around them, was unlike anything I’ve ever seen.
The last thing we did was go whale watching. I’ve been whale watching before (in Australia and New Zealand) but that was a long time ago and I love whales. We’d been told that we were unlikely to see anything at this time of year but we decided that we wanted to try anyway. It was freezing cold and incredibly windy but it was worth it: we spent about an hour with a humpback whale that was feeding near one of the islands and I also saw a dolphin. Plus the scenery was absolutely stunning. It was a great experience to end the trip on.
The thing that struck me most about Iceland was the space. And the quiet. It was good for my soul in a way that I don’t really understand and can’t really explain. Plus the mountains. There’s something about looking at mountains that is just so calming to me.
Having said that, I dealt with A LOT of anxiety while we were away. There was so much uncertainty: I didn’t know what we were going to do about food, I didn’t know how long we would be driving for each day, I didn’t know what I would be required to do, and so on and so on and so on. It was really hard and it was really exhausting. I’d forgotten how much uncertainty and anxiety comes with travelling. Having my Mum with me really helped but it was a real struggle, a moment to moment struggle. As much as I loved Iceland, it was a relief to come home and go back to certainty.
So that Iceland. Beautiful, stunning, stressful Iceland.
I would like to dedicate this post and this adventure to Claire Wineland. She was part of the inspiration for this trip. I was already in the worst depressive episode I’ve ever experienced and her death hit me really hard. It was such a tragedy and I needed to know that there was more than just tragedy in the world. I needed to see that to help me keep going.
Since her death, I’ve been wearing a purple bracelet (the colour of Cystic Fibrosis awareness, I believe – please correct me if I’m wrong or if there is a more fitting colour) because I wanted a constant reminder of Claire and her words and because I wanted to carry her with me. It’s strange: I’ve never had any beliefs about what happens after death but recently I’ve just had this feeling that if I carry her with me, she gets to see the things I see and experience the things I experience. I don’t know why I feel like that or what I believe about life after death but I just have this feeling. I just have this feeling.
It was all so beautiful that I couldn’t just take photos. I took some video and I’ve put it together into a vlog of sorts:
Music by the wonderful heartsease.
Posted on December 15, 2018
So the year is drawing to a close and I wanted to do a round up of the media I have consumed and enjoyed. Last year, I wrote a post called 2017 in Songs and I’m working on the 2018 edition but I also wanted to do something more because I read and saw a lot of good stuff this year. So let’s go…
It was one of my new years resolutions to read more books this year and I set a very achievable goal of five. I didn’t want to end up stressing about it and I’ve actually managed to read about double that. So I’m very proud of myself. Most of them I enjoyed but here are the ones that really stood out:
Turtles All The Way Down by John Green
The first book I read this year was Turtles All The Way Down by John Green. I could write pages and pages about this book (and I did) but I’ll keep it short. It follows sixteen-year-old Aza who struggles with OCD and anxiety as she juggles school and friends and investigating the disappearance of the local billionaire. I fell in love with this book from the first page; I loved the way Aza described her experience and I related to it so strongly. There’s something about the way John Green writes that really speaks to me and the story doesn’t rest on Aza’s mental health for the plot: it’s intertwined with several different storylines. I really liked that; it felt very true to life. Having felt very alienated by the books I had been reading previously, this was the total opposite. One of my favourite books ever.
“In some ways, pain is the opposite of language… And we’re such language based creatures that to some extent we cannot know what we cannot name. And so we assume it isn’t real. We refer to it with catch-all terms, like crazy or chronic pain, terms that both ostracize and minimize. The term chronic pain captures nothing of the grinding, constant, ceaseless, inescapable hurt. And the term crazy arrives at us with none of the terror and worry you live with. Nor do either of those terms connote the courage people in such pains exemplify.”
What We Buried by Caitlyn Siehl
I read several poetry books this year but this was easily my favourite. I loved it from the first poem. I love the way she writes – the language she uses and the way she punctuates the words – and the empowered feeling you get from reading the poems. I highlight my favourite passages in books and this one has a lot of highlighting!
“This is where we heal. This is where we hide. This is where we are found.”
Do No Harm by Henry Marsh
I’ve really struggled to read fiction this year (Turtles All The Way Down was the exception) so I delved into the world of non-fiction and ended up reading and loving this book. Henry Marsh is a neurosurgeon and the book is a collection of his patients and his experiences. He has a very gentle way of writing that I loved and when I finished it, I had this odd feeling that I understood my own brain a little bit better.
“…More than that, the operation involved the brain, the mysterious substrate of all thought and feeling, of all that was important in human life – a mystery, it seemed to me, as great as the stars at night and the universe around us. The operation was elegant, delicate, dangerous and full of profound meaning. What could be finer, I thought? I had the strange feeling that this was what I had wanted to do all my life, even though it was only now that I had realised it. It was love at first sight.”
I’m not much of a film watcher – for some reason, watching a film feels like more of a commitment than starting a TV show. But I made an effort this year to watch more films and watch more than just the things that I naturally gravitate towards. Having said that, my favourite films of the year are all pretty representative of my taste in films…
I grew up watching Justice League on television with my Dad and with my brother so those superhero stories are very important to me. I wasn’t ready to watch it right away but when I did, I loved it. And I feel like my Dad would’ve loved it as well. It looked beautiful and the acting was beautiful and I loved every second of it.
Edge of Tomorrow
In a dystopian future, humans are fighting an alien race called Mimics. When one man starts to experience the same day over and over again, it gives him an unforeseen advantage in battle. I am a sucker for this kind of film (and a strong female character!) and I’ve watched it multiple times since my first viewing.
I read the book that this film was based on (Simon vs. the Homo Sapiens Agenda by Becky Albertalli) and loved it so I was really looking forward to the film. It follows Simon Spier, who is keeping a secret from everyone he knows: he’s gay. But when a classmate threatens to out him, everything changes and he is forced to choose between his friends and the anonymous classmate he’s fallen in love with over email.
It’s one of my favourite things to curl up with a good TV show and binge watch the whole thing in one day.
Is there anyone who doesn’t love Queer Eye? It wasn’t something I expected to love but the overflowing positivity just captured my heart. While the physical makeovers in these men might be the most obvious changes made, the emotional one is the most powerful. There is little (if any) media that encourages men to take care of themselves and be kind to themselves and so this show is a big deal. I have to admit that I haven’t finished it yet but that’s only because I don’t want to have no new episodes to watch.
If you love sci fi and police dramas (like me), then this is the show for you. After a freak lightning storm, police detective Raimy Sullivan is able to communicate with her father in the past via an old radio. An attempt to save his life causes devastating changes in the present and between them, they have to try and fix the timeline. It’s addictive and intense and I loved every second of it.
During some downtime (and some much needed rest time) in Nashville, my friend Richard introduced me to this show and I am so, so grateful. It’s a comedy about two English television writers – a married couple – going to the US to recreate their hit show. As you can imagine, it doesn’t go exactly as planned. Because of the blend of British humour and American humour, I feel like there’s something for everyone: it’s dry, it’s direct, it’s subtle, it’s not subtle, all at the same time. I love it so much that I’m in the process of watching again, with multiple different people because I know they’ll love it too.
Burden of Truth
So I watched all ten episodes in one day because it’s that good. A successful lawyer returns to her hometown to uncover the truth behind a group of teenage girls getting sick. It’s full of twists and turns, family secrets, and some great LGBT representation. I’d write more but I don’t want to give anything away!
Another legal drama, this one about a family firm that begins when the eldest daughter, Hannah, leaves to work for a rival firm. The six part series follows their cases and their relationships and the return of the father who has been absent for thirty years. It stars Nicola Walker who I have loved ever since I first saw her in Spooks (as Ruth Evershed) as well as Stephen Mangan, who stars in Episodes.
More Nicola Walker! I loved the first two series of Unforgotten so I was very excited to see the third and it absolutely lived up to my expectations. Each series features a handful of different characters and their lives are weaved together until we understand a historic crime and despite this format, each series has been different and surprising and heart wrenching. Nicola Walker in particular was fantastic and I really, really loved that they explored the toll that such a difficult job can take.
Agents of Shield Season 5
I have mentioned my love of Agents of Shield before and that was only strengthened by this latest season. Daisy Johnson is my hero and it was awesome to see her be even more interesting and amazing in this season. And it’s been renewed for a sixth and seventh season!
Another awesome recommendation from Richard. The devil decides to take a holiday from hell and takes over a nightclub in LA (and it turns out he’s hilarious). He teams up with a police detective and shenanigans ensue. I love it. It’s funny and smart and thought provoking: there are some great questions about god and religion and faith in there. All of the characters are interesting and complex and I don’t want to get to the end. Fortunately there’s a new season on the way.
So there you go. My books, films, and TV of 2018. Hopefully there’s something in here that appeals. What have you been reading and watching this year?
Category: book, favourites, response Tagged: agents of shield, book, book review, books, burden of truth, caitlyn siehl, do no harm, edge of tomorrow, episodes, film, films, frequency, henry marsh, john green, love simon, lucifer, queer eye, the split, turtles all the way down, tv, tv shows, unforgotten, what we buried, wonder woman
Posted on December 8, 2018
The other day, I was just browsing through YouTube (probably procrastinating something) when I came across this video.
“Autism is not a disease, it is a developmental disability. It’s about living our best possible lives with this condition.”
I am ridiculously excited that this video exists. Even a few years ago, when I was looking into Autism as an explanation for my struggles, I was still being told that women don’t have Autism or being dismissed because I didn’t fit into the stereotype for Autism (which has come from autistic boys and men). So the fact that this video even exists shows that some progress has been made. At this moment in time, it has just short of a million views. A million! That means that potentially a million people now have a better understanding of Autism in women. That’s completely amazing!
There’s so much good stuff in this video – you really should watch the whole thing. But here are some of main points and some quotes that stuck out to me:
1. Autism covers a wide spectrum.
2. We have emotions.
3. Social interactions can be challenging.
4. Diagnoses can happen at any age.
5. The nuances of dating can be challenging… but we do have sex lives.
6. We have lots of different interests.
7. Bullying sucks.
8. It’s getting better.
As I said, it’s amazing that this video exists and that autistic women are being seen and that people are finally understanding that autism in women looks different than it does in men, and that it can look different from woman to woman. I agree with all of these points but there’s still so much to it, to living with this everyday. So, in addition to these points, this is what I, as an autistic woman, want you to know:
Posted on December 1, 2018
I’m not quite sure how to describe the last few weeks. Intense, maybe. There’s been a lot going on and I’ve done things and felt things that I’ve wanted to write about but couldn’t figure out how. So I’m writing this, with the good, the bad, and the weird of the last few weeks.
So first, I got to take part in a research study for the Centre for Research in Autism and Education at University College London. I’ve written about my experience with research studies before (here) so I won’t ramble on but I love doing them. It often feels like Autism takes opportunities away from me but this allows me to do something I’d never expected and that’s really exciting. I got to put the EEG cap back on and have my brain waves monitored while I did some computer tasks. It was investigating perceptual capacity in Autism (which I’ve written more about here) and it was really fun, like a Windows computer game from the nineties. And apart from trying to get the saline gel out of my hair, it was a really great experience.
I also went and gave blood for the first time. That was very exciting! I’ve wanted to give blood for years but up until now I haven’t been well enough or I was on medication that disqualified me. So getting to do it was really exciting and a really cool experience. Everyone was really lovely and I’ve since had a text telling me where my donated blood has gone. So the whole thing was really special and I will definitely do it again.
Despite these cool and inspiring experiences, my mental health has been pretty bad: I reached a new low with my depression. I feel like I’m always saying that the current period of depression is the worst it’s ever been but for me, there are real differences: new thought patterns, new emotional states, new lines, new fears. Each period of depression has a different colour. Anyway. It’s been really bad and really hard and I’ve had some desperate moments.
Medication wise, it’s been a rollercoaster. As per usual. I got myself all but off the Amitriptyline a while ago but I just wasn’t ready to try another medication straight away. It’s a tough process and I just needed some time to feel steady, even if that was steadily bad. Maybe not the most logical decision I’ve made but it made sense to me at the time. And ultimately it doesn’t matter now. I’ve started the Clomipramine, which is what everyone wanted me to do. Finding the right medication and the right dosage can be pretty gruelling and I just needed to be in the right mental headspace. I’m not sure how I feel about the Clomipramine but it’s still early days.
And on this last Monday, I went to see Maren Morris play an amazing, intimate show at OMEARA in London. The staff were great about making it accessible and I was let in without having to queue and there was a chair reserved for me – I really, really miss the days where I could stand for hours without a problem. And the show was fantastic. Maren is one of my all time favourite artists/songwriters and it was one of the best shows I’ve ever been to.
“When this wonderful world gets heavy and I need to find my escape… yeah, I guess that’s my church.” // @marenmorris was a complete dream tonight. Beautiful, beautiful songs, singing, and stories. My little songwriter soul is so happy. (x)
It might be blurry but I love this photo of me and @richardmarcmusic after the @marenmorris show tonight. We had SUCH a good time. We’re constantly listening to her music, whether we’re in a songwriting session or just chilling out and playing Mariokart. So we were two happy beans tonight. (x)
And now it’s December. Most of my family have birthdays in December and January and of course there’s Christmas and New Year. So that’s a lot of fun things but it also means a lot of high emotion and stress. It’s a tricky time. I’ve found Christmas difficult for the last few years so I’m going to have to be careful to manage my physical and mental health throughout this period. I’m going back to the post I wrote last year about managing Christmas with anxiety and Autism – if that sounds like it might be helpful, you can find it here.
Category: depression, event, medication, mental health, music Tagged: amitriptyline, anti depressants, antidepressants, anxiety, asd, autism, autism research, autism spectrum disorder, autistic, autistic adult, blood donation, brain waves, centre for research in autism and education, christmas, clomipramine, concert, country music, crae, depression, eeg, giving blood, live music, maren morris, medication, mental health, mental illness, research study, ucl
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
My second single, ‘Bad Night,’ is also now available on all platforms and is the first track from my new EP, ‘Honest.’