Bad Night – Out Now!

I’m very late in letting you guys know but my new single, ‘Bad Night,’ is now available to buy/stream/listen to in whatever format you listen to music to!


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laurenalexhooper: AND IT’S OUT! ‘BAD NIGHT’ IS FINALLY OUT!⁣

I’ve been waiting to release this song for so long that it’s oddly surreal to have it out in the world. I wrote it, with the help of @richardmarcmusic, after a particularly difficult night where I just felt completely overwhelmed by my depression. I felt like it was never going to get better. So I do what I always do and wrote a song about it. And eventually it turned into this. Even though it’s a difficult song, I hope you like it and I hope it makes you feel something.

Please, please, please buy/stream it. It would mean the world to me and all the wonderful people who’ve worked on it. You can find it here.


I’m truly sorry that it’s taken me so long to update you guys. After the whole process of ‘Invisible,’ I (and my writing/releasing/everything musical partner) decided to release the song independently and I found all of the aspects of that very stressful. So getting the song out was a mission in itself and then there were the decisions about what social media boosting to employ and it all just took every ounce of everything I had. By the end of that week, I was completely exhausted. And let’s not forget we were both just starting our Masters Degrees.

And then, to make things worse, I had possibly the worst Autism/mental health week of my life (just so you know, I sometimes combine them because I find them hard to extricate, not because I don’t know that they’re not the same thing). As I mentioned in my previous post, I’ve been having A LOT of meltdowns. It had come down to a couple a week but then I had week where I had multiple a day and it was just hideous. I’ll write more about it (hopefully) and meltdowns in general in the future but that put ‘Bad Night’ the furthest from my mind for a moment.

It’s hard to believe that it’s only been about two weeks since the song came out. It feels like a lifetime. But having said that, the journey is far from over. There is a lot of content still to come. A spoiler for you special people: keep an eye on my socials over the next couple of days. Something is coming… Okay, that sounds a lot creepier than it is.

I promise this blog won’t become simply an avenue for me to talk about my music (although much of my music is inspired by my mental health and so does have some relevance). It is just a massive part of my life right now, taking up a lot of my time and focus, as is my Masters, which is also all about music. I’m trying to find a balance but I’m struggling since my mental health has been so bad. I’m barely (and sometimes not) getting done what I need to be getting done so it’s all very chaotic and emotional and difficult right now. Just know that I’m trying my best. I’ll get there, I promise.

A Lot Has Been Happening

My sincerest apologies for not posting in so long. Life has been hectic and difficult and busy and strange. It’s been really difficult to write, to write anything at all (apart from my diary, which I’ll explain in a minute) so I just had to give myself a break from posting here and hope that you guys would understand. It’s just been too much. I don’t think I’m ‘back,’ but hopefully there won’t be such big gaps between posts and maybe we’ll even get back to weekly posts at some point.

So here’s what’s been going on, so you’re all up to date…


TWENTY FIFTH BIRTHDAY

First things first, I turned twenty five. I’m not gonna lie, I was having a bit of a quarter century crisis. There’s a definite milestone about turning eighteen and then twenty one but turning twenty five felt (and still feels) like a big step into adulthood and I’m finding that very scary. I still feel stuck at seventeen: young and naïve and vulnerable. So I’m struggling with it a bit.

The day itself was a struggle. My anxiety is through the roof (which I’ll talk about it in a minute) but my compulsive writing of my diary (something I’ve struggled with on and off for a long time) has become really extreme, to the point where I’ve been finding it difficult to do anything else. So while I had some really lovely moments on my birthday (twenty five yellow roses from my Mum, some really lovely presents, and dinner with my family), all I could think about was how I should be writing, how I was wasting time that should be spent catching up with my diary. It was very upsetting because there were so many things I’d rather be doing than writing my diary or stressing about it.

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I’ve had a habit of many years to think on my birthday ‘this year will be better’ or ‘this year I’ll be happier.’ But I’m done with that. I’m not going to waste time comparing the ups and downs of the last several years but I never felt as if those statements came true. I always felt as if I was struggling just as much, if not more so, than the year before. So, as I said, I’m done with that. I have no expectations of this year. At the moment I’m too anxious to think beyond the next week or so,   v so I don’t even really feel capable or doing it anyway. It’s all too overwhelming.

Anyway, I’m twenty five. I’m not sure what that means yet. So I guess we’ll see.

I’VE STARTED A MASTERS

Unsurprisingly, it’s in songwriting. I’m doing it part time so I only have half the workload as a traditional Masters student and that has turned out to be absolutely the right choice. At the time, my main reason was because it would allow me to really take in what I was learning and apply it to my songwriting, rather than just absorbing it only to regurgitate it for an exam or coursework piece. And that’s still true but it’s turned out to be completely necessary for my mental health. One day of classes (plus the commuting) requires at least two days of recovery and my mental health, particularly my anxiety, has made it very, very difficult to complete the work required and so having only half the workload and the extra time to do it in has been a blessing.

I’m just about to start week three and so far, I’m really, really enjoying the classes. This first module is about Creative Process, the theory of it and the exploration of our own, and the content we’re covering and discussing is just fascinating. I actually wish the two hour lecture was longer. For example, we just learned about autoethnography (exploring your personal experience and how it connects to wider cultures and experiences and so on) and it’s really hard not to stop my current research and just dive face first into that.

But anyway, the practical songwriting class has been a bit up and down for me personally. My writing massively depends on my mental health and so when I’m really anxious, I find it impossible to write. During the first week, I barely managed to turn in a song but this week, I’ve felt more able to write. I don’t want to comment on the anxiety, on whether it’s passed or not because that just makes my anxiety worse. If it comes back after making a statement like that, it will just be even more of a struggle. So regardless of the anxiety, I’ve felt more able to write and am currently in the middle of my second song. I love writing again and I love having writing briefs to explore and experiment with. So, so far (without the stress of assessment), I’m really enjoying it.

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Also, I have a really small group and so we’re getting to know each other pretty quickly, which is really nice. It’s so inspiring to hear the developing music of others again, as well as getting feedback on your own fresh work. I’ve really missed that.

I’M RELEASING AN EP

WHAT?!

Yes, I’m releasing my first EP. My God, it’s been an emotional complicated process. I’ve gone through so much since I decided I wanted to release an EP last year and I honestly don’t even recognise myself. I’ll talk more about that in a minute but first, let me introduce you to the project…

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And here is my big announcement!⁣ ⁣ Over the next nine months, I will be releasing an EP of five songs. I’ve been waiting to release new music for so long and I’m so emotional about you guys finally hearing these songs. The EP is called ‘Honest’, and I’ve been working with some fantastic people for a long time on these songs so I’m really excited to finally let them find their place in the world. ⁣ ⁣ Keep an eye out because I’ll be sharing more details of the first track next week.⁣ ⁣ ***⁣ ⁣ This EP is essentially a short story, a short story about my experiences with mental health up until now. It’s been difficult and excruciating and frustrating and lonely, but it started getting better when I started writing about it and talking about it, even if it just meant I wasn’t keeping it tightly sealed inside myself. I’ve worked hard to get myself into a better place but I don’t know if the ground will ever truly settle, if I’ll dig up all the landmines. We all have our struggles, our fears, our ghosts but maybe being honest is the first step, whoever it may be with.

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And I’ve just announced the first single…

If you want to get the information as soon as it’s released, you can follow my social medias, which are all listed on the main page of the blog.

I don’t think I could untangle my feelings about the songs if I had thousands of words to do so but I think a big part of that is all the anxiety I’ve been struggling with. Living with extreme anxiety, everything feels like the wrong choice, everything makes me feel sick and useless and miserable. It’s really hard to be excited about releasing something like this, about anything, when I feel like that. So it’s a struggle. I’m trying to be positive and enthusiastic because I have been those things but I’m finding it hard right now. But a lot of hard work and love went into these songs and this project and I am really proud of that.

More details soon!

I’M LIVING IN A MELTDOWN

I was going to write a whole post about this but then all this time passed and it just made sense to include it here.

Just over a month ago, I had the worst meltdown I’ve ever had. In the middle of Victoria train station (for those of you not familiar, one of the biggest train stations in the UK). A big plan had been changed and the new one was vague and I was alone and anxious already. I completely fell apart: sobbing and shaking and hyperventilating. There was nowhere quiet to go so I curled up in a chair, desperate not to be seen, desperate to disappear. I couldn’t think. I didn’t know what to do. And I couldn’t get hold of anyone on the phone so I had no one to give me advice or help me calm down. Eventually I did manage to get hold of my Mum and she had to literally walk me step by step onto a train home, plans abandoned.

Usually it takes me a couple of days to recover from a meltdown, sometimes a week if it was a really bad one. I feel anxious and fragile and raw and completely overwhelmed. But this time, those feelings didn’t go away. Over the last month, I’ve been constantly filled with extreme anxiety, so much so that I’ve been almost unable to function. I’ve felt so fragile and so easily overwhelmed that any new stress has triggered a meltdown, resulting in multiple meltdowns a day: screaming and crying and throwing things. It’s been absolutely hideous. It’s like I’m permanently living in a meltdown, with waves of anxiety and hypersensitivity and then the waves of shouting and crying. I don’t know if that makes sense; I’m still looking for the perfect metaphor, at least for my experience.

So all of this has affected every other part of my life. Sometimes I can push through it and manage what I need to manage and sometimes – a lot of the time right now – I can’t. I’m trying. I’m doing my best.


So now you’re up to date. To a degree. Some of this stuff is really hard to explain, as I’m sure you know if you’ve experienced it or anything like it. There’s a lot going on, a lot of stressful stuff in particular, so life isn’t exactly a cakewalk right now. But as I said, I’m trying.

I hope you’re all well, or at least coping as well as you can. Hopefully I’ll post again soon.

New Old Medications Thoughts

If I’m honest, I’m still not sure what I’m doing – how I feel about my writing – but there’s been a lot in my head this week so I thought I’d just try and get it all down. Maybe it’ll help.

I’m not sure if I’ve mentioned it already but after two and a half years of trying medications, I’m back on Phenelzine for my depression. I’m back on the drug I was trying to get away from. Back in 2017, it was starting to fail but I was also starting to fight it. The lifts to my mood felt artificial and suffocating. I felt depressed but there was this thick layer of calm suppressing it and it was causing me great, great distress. I felt like I was scratching at the walls of my mind with my fingernails, desperate to get out and just feel how I was feeling. Of course, feeling deeply depressed is a miserable, paralysing experience but at least it felt real. It was the truth and the truth is one of the most important things to me.

But despite all of that, I’m taking it again and I can’t help feeling like we’re starting to run out of options. We must be if we’re going back to a drug that I struggled with, that stopped working – although it’s true that it did work for a significant period of time. But we started looking elsewhere for a reason. Multiple reasons. I voiced that in the session with my psychiatrist and he said that there are still options but I can’t help worrying. Because if I’m running out of options at the age of twenty four, that’s a lot of life left without much to work with. Will we reach a point where I just have to live with it? Live with crushing depression and paralysing anxiety?

And let’s talk about anxiety. Last time I was taking the Phenelzine, I also took Quetiapine, primarily for the insomnia that the Phenelzine caused but it also helped with my anxiety. Because it’s a sleep aid, it has a sedating effect, which helped me to manage that constant anxiety. But I can’t go back to it. The sedative effect almost seemed to increase over time and it got harder and harder to wake up in the mornings. It was like I was so deep underwater that I couldn’t find the surface; I could hear people talking to me but I couldn’t open my eyes or move or speak. By the time we were abandoning the Phenelzine, it was so bad that I was losing half the day just trying to wake up. I can’t go through that again. It was awful.

So that limits the options, if I can’t take that or any of the similar drugs. The drug we’ve decided on is Diazepam. I’ve been taking it on and off over the last year and it works; it stabilises my emotions when they get out of my control. But it has addictive potential and I’m not supposed to take it every day. So, every day, I have to look at my anxiety and feel my anxiety and assess whether it’s bad enough to take the medication. And that’s exhausting. I never get an escape from it. To me, that’s not living. That’s managing.

But this is it for the moment. This is life. We’ll reassess in a month.

Don’t You Lose Your Halo

The last few months have been particularly difficult, anxiety and depression wise. I came of my anti depressants and one of my anti anxiety medications with the intention of starting a new medication but starting that new medication has been a real struggle. This new low brought on by the withdrawal and the lack of meds has been possibly the worst I’ve ever felt. I’m aware that it’s affecting my thinking and my decision making but right now, the starting of a new medication just feels impossible. Just the thought of it triggers an autistic meltdown. So it’s safe to say I’m struggling.

BUT the last week has been better for exactly one reason: I got to see Maren Morris in concert! In fact, I got to see her twice! So that’s what I want to write about: seeing her and how concerts are something that can really help me when I’m feeling very low. There’s something about the energy that just lifts me, makes my body feel lighter and that’s so very valuable when I’m in this place.

My first show of the tour was Bristol. As I’ve mentioned in previous posts, if possible, I like to go to multiple shows of a tour because I get overwhelmed so easily. Seeing the show more than once allows me to really experience and enjoy all of it. Concerts are pretty much the only thing I spend money on so I’ve been very fortunate in this endeavour.

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The show was incredible. I’d been feeling very, very depressed in the days leading up to the show and didn’t even want to go – it felt like it was wrong to want such a simple ‘fix’ to my low mood and like seeing such an amazing songwriter would hurt too much given that I haven’t been able to write a song in months (if not longer) – but as soon as Maren Morris took the stage, I started to feel lighter. It felt easier to breathe. She’s an incredible songwriter and performer and her voice is out of this world: I remember once describing it as sounding like a gorgeous sunset. Hearing the new songs was like hearing them for the first time and hearing the old ones was like a wave of nostalgia: they remind me of my degree, of my first trip to Nashville, of writing songs in my best friend’s living room, of a younger, less troubled version of myself.

The song that really got me was ‘A Song For Everything.’ This is what I wrote in my diary after the show:

“Given how emotional and tearful I was, I was crying by the first chorus. It just lifts my soul and makes me feel lighter, like I’m going to be okay, like I need to dedicate my life to writing a song like that and so I have to be alive to do it. I was breathless by the time the song finished.”

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“I don’t often cry at concerts (it usually happens when I hear the songs again for the first time after the show) but this one just got me. My depression is the worst it’s ever been but tonight… helped. I could write a book about the emotions of the last few days but I’m so tired that even this is a struggle. @marenmorris, thank you for being there exactly when I needed you to be. Thank you for reminding me that there’s a song for everything and that maybe one of them could be written by me, but that I need to be here to write it. #girltheworldtour

I had a day to recover before my next show, in London. At the freaking Royal Albert Hall. This is probably my favourite venue I’ve ever been to and it’s my ultimate dream to sing there one day. One can hope. And work hard. Anyway.

The day of the show, I cried all day. I was miserable, deeply, deeply miserable. I was on the edge of a meltdown all day but somehow I was holding it back because I knew if I had a meltdown, I wouldn’t be able to go to the show. Me and Richard (my best friend and writing partner) had bought the VIP packages, which meant we would get to meet Maren before the show and I couldn’t miss that. But even though I was looking forward to it, I was paralysed with anxiety. I didn’t know what to say or do and the fear of wasting the opportunity was so great that I couldn’t think. I couldn’t think my way through the problem and that was almost the worst part.

I cried all the way to London (listening to ‘A Song For Everything’ on repeat) and I only really managed to get myself together when I arrived at Victoria station. Holding onto that song helped somehow. I got to the Royal Albert Hall, met Richard, and we (all the VIP package holders) were all taken in for the pre-show Q&A and meet and greet. It went okay. I’m not gonna lie, I was actually shaking. It wasn’t specifically because I was anxious about meeting her – I’d met her on the previous tour and she’s absolutely lovely – it was more that I was worried about it going wrong, that I’d waste the experience by saying something embarrassing or meaningless. Looking back at it now, it went okay. It could’ve been worse, it could’ve been better. Maren was very sweet but I didn’t feel able to be as honest as I would’ve liked to be, for multiple reasons.

When the doors opened, we went to find our seats and discovered that we were FRONT AND CENTRE. At the Royal Albert Hall. For Maren Morris. I think that was when I first started to feel more excited than anything else – anxious, depressed, lost (“The depression was receding – just out of reach – and it felt easier to smile, even if it was a little slow and stiff.”). And all of that completely fell away when the show started.

It was one of the best shows I’ve ever been to. Maren is one of the best performers I’ve ever seen, her vocals are unmatched, and I love her songwriting more than I can properly express. The upbeat songs were so much fun and the slower songs were quiet moments filled with emotion. It might sound like any other concert (any good concert) but the energy was bigger and bolder and brighter than any other concert I’ve been to. I lost my voice long before the show was over but that didn’t stop me from singing along. And as I said in my diary, “I’m always self conscious dancing but sometimes, if all the stars align, the constant tension in my body releases and I can just move as my mood dictates. It’s not very elegant but it is fun.” She even had special surprises planned: performing ‘Seeing Blind’ with Niall Horan and bringing a string quartet (an all female string quartet!) on stage for several songs. The whole thing was magical. I never wanted it to end. But unfortunately it had to, although she closed the show with style: an amazing performance of ‘The Middle.’ Me and Richard have spent so many car journeys and writing sessions and just hours of our lives singing that song; singing it with Maren Morris from the front row of the Royal Albert Hall may be one of my favourite memories of all time.

Another snippet from my diary: “The performance was incredible and hearing everyone sing along just made my heart soar. It was all gone and I felt alive and light and happy. I was tired and achy but it was amazing.”

Getting home was hard. I had a huge adrenaline crash and all the negative emotions returned and that, combined with several unpleasant incidents on the train, had me in tears before I was even halfway home. I also struggle physically after concerts: my whole body hurts and that was starting to set in so yeah, getting home was a struggle. But I made it and my Mum was kind enough to prepare macaroni and cheese and ice cream (not together), which did help a bit. My brain wasn’t really ready to go to bed but a migraine was setting in (another side effect of concerts) so I didn’t have a choice.

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“Yesterday was a very difficult day. The depression was bad; I shook, I screamed, I cried (probably seven or eight times). It was miserable. But in the evening, I got to see @marenmorris at the @royalalberthall and my god, it was like it was built for her voice. What a special artist in such a special venue. Somehow, me and @richardmarcmusic ended up with front and centre seats and the whole show was just incredible. Every second was fun, every second was amazing. I wish it could’ve gone on forever. The tears returned on the train and I cried most of the way home but I am so, so grateful to have been there, so, so grateful to have had that escape for a few hours. I will treasure those memories.”

Recovering from these concerts has been an experience. Over a week later and my back is still bothering me. But it’s an improvement: the day after the London show, I could barely walk and it took days for the limping to fade. But I’m doing better. Surprisingly, the post concert low hasn’t been too bad. Mainly, I just miss being at the show, in the show. I physically miss it. My body misses it. But I’m doing okay. These concerts have given me a lift I desperately needed and will keep me going while I take my next steps, whatever they end up being. For that, I’m incredibly grateful.

Quotes That Helped Me (Validation Edition – Part 2)

Of course, there are always more quotes! I had too many quotes on this subject to fit into one post so here are some more quotes that will hopefully validate some of your harder, more complicated feelings.


“I think my life is of great importance, but I also think it is meaningless.” – Albert Camus

“I don’t want to believe, I want to know.” – Carl Sagan

“I cannot understand why the world is arranged as it is.” – Fyodor Dostoyevsky

“God, I just want to be important. I just want to be someone real.” – Ritapa Neogi

“As far as I could see, life demanded skills I didn’t have.” – Susanna Kaysen

“I know too much and not enough.” – Allen Ginsberg

“I feel very small. I don’t understand. I have so much courage, fire, energy, for many things, yet I get so hurt, so wounded by the small things.” – Anais Nin

“The world changes too fast. You take your eyes off something that’s always been there, and the next minute it’s just a memory.” – Michel Faber

“Memories do not always soften with time; some grow edges like knives.” – Barbara Kingsolver

“It was because I was scared. Scared of standing out, scared of being invisible. Scared of seeming too big, scared of being too small.” – Malorie Blackman

“I don’t know where the strength went, I don’t remember losing it. I think that over time it got chipped away, bit by bit, by life, by the living of it.” – Paula Hawkins

“I am afraid I will be like this forever.” – Sierra Demulder

“For the first time in my life I understood how someone could consciously decided to commit suicide. Not because they were deranged, not because they were nuts, but because they’d been to the top of the mountain, and they just knew in their heart they’d never get there again. It was never gonna get, never gonna be that way ever again.” – Joe Biden

“The difference between how you look and how you see yourself is enough to kill most people.” – Chuck Palahniuk

“Sometimes suffering is just suffering. It doesn’t make you stronger. It doesn’t build character. It only hurts.” – Kate Jacobs

“I’m sick to death of this particular self. I want another.” – Virginia Woolf

“I’ve spent half my life not knowing the difference between killing myself and fighting back.” – Andrea Gibson

“I was horrified by life, at what a man had to do simply in order to eat, sleep, and keep himself clothed.” – Charles Bukowski

“You never forget. It must be somewhere inside you. Even if the brain has forgotten, perhaps the teeth remember. Or the fingers.” – Neil Gaiman

“There are times when I am convinced I am unfit for any human relationship.” – Franz Kafka

“Sometimes, I feel the past and the future pressing so hard on either side that there’s no room for the present at all.” – Evelyn Waugh

“Too much emotion, too much damage, too much everything.” – Ernest Hemingway

“It all ends in tears anyway.” – Jack Kerouac

‘Invisible’ Music Video – Out Now!

I’m so excited to announce that the ‘Invisible’ music video is finally out. This time last year, I put this very special single out and although I’d planned to put the video out straight away, life and mental health got in the way. But now it’s Mental Health Awareness Week again and I thought it was time this video saw the light of day. I would love it if you’d watch and I really hope you like it. It’s so, so special to me.

Almost two years ago now, I got together with Rosie Powell (my incredible director and videographer) and we planned this video. I really wanted to focus on the lyrics and the story behind the song so we came up with the idea of painting the lyrics on a wall (shout out to one of my parents for letting me paint all over my old bedroom wall). I was super excited. But having never been ‘in’ a music video before, I was  also really nervous about being on camera. I felt really self conscious and worried about how my issues with eye contact would affect the video. Autism problems, am I right?

Day one was painting day. We set up in my childhood bedroom (and by that I mean, we lugged all the furniture out – which I then fell over multiple times) and got to work painting the lyrics on the wall.

It was really fun but weirdly, really hard work: it was very physical and I was exhausted by the end of it. It was also really cathartic to physically put those words out into the world. I’m not very artistic – I’ve never been very good at drawing or painting – so this was all new to me: seeing what I’d imagined in my head out in the real world. It was very satisfying to see this…

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… turn into this:

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It was a really good day and I’m really proud of the work we did.

Day two had Richard (my writing partner and general partner in crime) coming down to Brighton and we shot the ‘performance’ section of the video. I felt very self conscious with the camera on my face so much but both Rosie and Richard are so lovely that I felt very safe. Again, it was exhausting – that might be my issues with fatigue coming into play – but really satisfying and fun.

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I had a lot of plans for this single and the video but alas, they weren’t to be. Life happened and my mental health took a lot of hits (if you’ve been following this blog, you’ll be aware of some of them). My depression has been brutal and made doing anything musical almost impossible. It’s been a long, hard road but I’m so, so glad this video is out in the world. I’m so proud of it and I’m so grateful to have worked on it with such lovely people. I wouldn’t have wanted my first music video to have come to life any differently.

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The New Plan

The last few months have been tough, medication wise. I had a wonderful, un-depressed Christmas (which I’m massively grateful for) but since then, I’ve been struggling. My mood just kept dropping and my anxiety just kept getting worse and we tried to alter the medication to compensate, to find that perfect balance, but it’s gotten to the point where we just need to try something new. So I’m taking stock of everything and trying to figure out how I feel about all of it.

The Clomipramine (a Tricyclic anti-depressant) worked for a while. As I said, I had a really good Christmas where I felt joyful and energetic and actually happy for the first time in a really, really long time. But then it seemed to lose its effectiveness and my mood dropped, whether that was because I was taking a magnesium supplement (I talk about that here) or because it just had a short shelf life. I don’t know. But it stopped working and my depression returned. Since then, my depression has been stifling and I’ve really struggled with suicidal thoughts, at an intensity I’ve never experienced before.

My anxiety also skyrocketed so, in addition to the Pregabalin (also known as Lyrica) I was already taking, I started taking Flupentixol to help manage it. At first I felt no different but after adjusting the dose, my anxiety decreased dramatically and I started to feel a bit more functional. But in the months since then, it seems there have been a number of difficult side effects: my energy levels dropped dramatically, to the point where even a shower is a real struggle. Standing for any length of time is impossible and I ended up being wheeled around multiple airports in a wheelchair during my Nashville trip. The worst part though was that my hands felt thick and clumsy, like my fine motor skills had just evaporated into thin air. Playing guitar was practically impossible.

At first I didn’t realise that these things were connected to the Flupentixol but thanks to my Mum and her incredible attention to detail, we realised that the dates all seem to match up and since we reduced said medication, these problems have disappeared. I’m ridiculously grateful to have my hands back, even if my anxiety has flooded back in.

We’ve reached a point where I can remain where I am or start over. So I’m starting over. I don’t want to live like this. So, after a lot of thinking and talking to my psychiatrist, I’m coming off both the Clomipramine and the Flupentixol. I’m not a massive fan of the Pregablin either to be honest but even changing two things at once is ambitious. So that one can wait. I’ve already started reducing the meds and I’m bracing myself for a barrage of mood swings, depressive episodes, and more. It’s not going to be fun. But it will be worth it. Hopefully.

The current plan is to come off the two drugs, go the ‘wash out’ period (two weeks of no drugs – apart from the Pregablin – so that there aren’t any negative interactions between the medications), and then start Phenelzine again. Yes, Phenelzine – the drug I stopped taking two years ago because it had stopped working, because the joyfulness it gave me felt fake and suffocating. BUT it’s the only drug that’s allowed me to be functional – creatively and otherwise – so we’re giving it another try. It did work for a long time and if it doesn’t, we’ll try another MAOI (monoamine oxidase inhibitor) anti-depressant.

I’m not sure how I feel about it, to be honest. Part of me is frustrated and disappointed. I’ve spent two years trying to find something better only to end up where I started. But on the other hand, that’s two years of knowledge, experience, and confidence that I didn’t have before. I’m a different person and chances are, my reactions will be different: our bodies change and our chemical makeup is constantly shifting. These medications all but cause a hurricane inside us. So I’m trying to be optimistic. I’m trying to be hopeful.

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