Posted on March 22, 2019
Hurray, it’s World Poetry Day!
I love poetry. I wish I had more time to read poetry and more poetry books to read and more spoken word events to go to but there’s only so much time in a day. I resent my physical limitations and the physical limitations of the world that prevent me from reading more. But today is supposed to be good and positive and exciting. So here are some spoken word poems that I love:
Cecilia Knapp is a wonderful human being and her writing constantly inspires me. The imagery and the emotions are so rich and magical. I don’t think there’s a poem of hers that I don’t like.
I love the chaotic nature of this poem, how the rhymes spring out of nowhere. It’s so intense and emotive.
(Trigger warning for self harm and sexual assault.)
I know there are a lot of mixed opinions about Thirteen Reasons Why but I don’t want to talk about that here (I’ve written about it in this post). I want to talk about Hannah’s poem. I love the imagery and the loneliness is so intense.
This one breaks my heart, the thought that these lines could fit in both love letters and suicide notes. It’s so achingly sad.
I love the references to Van Gogh in this one. I love the pulling together of parallel stories, especially with historical figures. It reminds me that we’re all deeply connected through our lives and our stories and our pain.
Do you have any favourite spoken word pieces?
I’m off to Nashville in a few hours so I’ll see you all when I get back. If you want to follow my adventures, you can find me on Instagram.
Posted on March 16, 2019
I haven’t written much about my diagnosis of Borderline Personality Disorder, even though it’s a diagnosis that means a lot to me. It was hard fought: when my psychiatrist didn’t believe me, I presented him with all the research I could find to prove to him that it was at least worth considering. He both apologised and admitted that he was wrong, and it wasn’t long before he bestowed the diagnosis upon me. It was confirmed later that year when I got my Autism diagnosis.
The name Borderline Personality Disorder is not a clear one. People assume that there’s something wrong with your personality or that you only just have a personality disorder. Both of these assumptions are incorrect. The word ‘personality’ in personality disorder refers to the patterns of thoughts, feelings, and behaviours that are individual to each of us and the word ‘borderline’ relates back to early uses of the label, when it was thought to be a condition ‘on the borderline’ between neurosis and psychosis. Even though that has since been disproven, the name hasn’t changed although that is a popular idea. Suggestions include ‘Emotional Intensity Disorder’ and ‘Emotional Regulation Disorder.’
The symptoms include:
I related to a lot of this: the intense emotions, the fear of abandonment, the shifting sense of self. But on the other hand I’m too anxious to be impulsive or get angry with someone. There were enough connections to keep investigating though and that’s when I discovered the quiet presentation of BPD. Where the classic presentation lashes outward, quiet borderlines internalise, blaming or harming themselves. Their fear of abandonment can make them people pleasers and they struggle with feelings of isolation and loneliness, at a higher risk of depression than the classic borderlines. This discovery changed everything; I related to almost every experience I read and that gave me the confidence to pursue it as a diagnosis.
Despite the considerable stigma around BPD, I’ve had a really good relationship with my diagnosis. After so much anxiety and uncertainty, it was empowering to have a name for my struggles and it allowed me to get the support I needed. I’m aware of how lucky I am to have found the right people but that wouldn’t have been possible without the diagnosis.
Having said all of this, my diagnosis has been causing me a lot of anxiety of late. At the end of a session, my psychiatrist made what was probably, to him, an offhand comment about my collective diagnoses, that I might not need the BPD label anymore. I was too overwhelmed by a torrent of emotion to respond before the session was over – even a short session can take me days to process – but then the anxiety began to sink in. The idea of losing it – this necessary, hard fought piece of my identity – was terrifying. Is terrifying. This label explains a big part of my daily struggles and revoking it would be so invalidating, like saying that it isn’t happening, like my difficulties aren’t significant enough to even earn themselves a name. That thought of that happening is devastating.
The symptoms still feel very present to me. I feel things so intensely; they’re like physical forces acting on me. If I’m happy, sunlight is bursting out of me; if I’m sad, my ribcage is collapsing and I can barely breathe for the pain; if I’m angry, I feel like it’s strong enough to bring down buildings. They crash over me like waves and I’m overwhelmed by this panic to get back to the surface. It’s very stressful. I read somewhere that people with BPD are constantly in crisis and I definitely relate to that. Every emotion flares with life or death situation strength and it happens over and over again. They can swing so violently that it makes me physically sick and it can feel like there’s no solid ground to stand on. It’s exhausting. I also feel the emotions of other people, particularly sadness or pain, and it can take hours or days to recover from them.
“Borderline individuals are the psychological equivalent of third-degree-burn patients. They simply have, so to speak, no emotional skin. Even the slightest touch or movement can create immense suffering.” – Marsha Linehan
“One of the biggest things about self harm is the release you get from doing it. My emotions get so strong sometimes that I feel like there isn’t space for anything else in my body, in my brain. There isn’t the space for my lungs to expand; I can’t breathe. It almost feels like the emotion is crushing me and the only way to survive is to open up my skin so that it can escape. It’s like a pressure valve. Once I’ve done it, I feel like everything stabilises and I can think more clearly. If there’s a problem, I can deal with it and if there isn’t and it’s just an overload of emotion, I can take care of myself a little better than I could if I hadn’t.” (x)
Another example of overwhelming emotions…
The fear of abandonment is ever-present, willing or unwilling. The thought of it causes me to spiral into panic so intense that I’m unable to function. Indefinitely. I’m always running, running away from this black hole that’s trying to pull me in. Past abandonments have left me unable to talk or eat or do anything for weeks and it’s taken years to recover from them fully.
I struggle with a deep feeling of emptiness and I sometimes feel like my soul is empty, which feeds into the feeling of having no idea who I am. I feel like I have no real sense of self that’s mine: who I am seems to change according to who I’m with. I take on the traits of others, becoming loud and joke-y with one person and quiet and introspective with another. I don’t know what is actually me. I know small things, like ‘I like flowers with symmetrical petals’ and ‘comedies make me strangely sad’ but I don’t know the big things, like whether I’m a good person or a reliable person or an extraordinary person. If anything, I feel like a child, like I’m stuck as a child while all my friends turn into adults. I can’t cope on my own or look after myself reliably. I feel so intensely sensitive, like I’m too vulnerable for the world I live in and I get too overwhelmed to function properly.
To take this diagnosis away would be to say that this is normal, that I have to just live with it, regardless of the pain it causes me. To take this diagnosis away is to say that I don’t need support and that I should just ‘get on with it.’ That is so invalidating and so upsetting that just writing it brings tears to my eyes. That is why this diagnosis is so important to me and why taking it away would be so traumatic.
All of this is very scary to put out into the world but I feel like the only way to make progress and move forward is to put it all out there and be honest. It’s almost painful, like removing armour that I’ve been wearing so long that it’s fused to my skin and I’m peeling it off with my fingernails. But it feels like the right move. Maybe, in doing this, I’ll start to see change.
“People with BPD are doing the best they can, and they still have to change.” – Marsha Linehan
Category: about me, anxiety, depression, emotions, identity, mental health, quotes, self harm Tagged: actuallyborderline, actuallybpd, borderline, borderline personality disorder, bpd, emotional intensity disorder, emotional regulation disorder, emotionally unstable personality disorder, eupd
Posted on March 8, 2019
In honour of the fact that today is International Women’s Day, I would like to honour some of the amazing women in my life. I’ve been very lucky to grow up surrounded by strong, intelligent, compassionate women and I’m very grateful for that. There are so many I could list – I’m incredibly fortunate to be friends and acquainted with so many talented and generous women – but here is a selection:
My parents – I am lucky enough to have four parents, all women and, of course, they deserve the greatest of thanks. They have encouraged me, supported me, and protected me for almost twenty-five years. Each of them inspires me differently and I love them all dearly. My Mum deserves a particular shout out. She has been my champion through all the Autism and mental health stuff; she’s my hero. I don’t know what I’d do without her.
My therapist – I have said it before but I’ll say it again: I’m so, so grateful for my therapist. She is an incredible human being and she’s done some incredible things. She’s saved my life for sure. She’s warm and honest and stubborn and I’m just in awe of her.
My Autism friends – For the first time, I have friends who also have Autism. It took me a long time to figure out what being autistic truly meant to me but last year, I heard about a group for young women with Autism and decided to give it a try. The friends I made there are so special to me. The things that always made us feel different and alone are the things that now connect us to each other and that’s pretty magical. To feel understood is something so easily taken for granted but it’s one of the most important things in the world.
Song Suffragettes – I’ve talked about Song Suffragettes before (here and here) but they’re a fantastic organisation that I’ll keep talking about forever. They showcase the up and coming songwriting talent in Nashville and they consistently push against the sexism in the music industry. So many of my favourite songwriters I’ve discovered through their shows and it was a huge honour to play with them during one of my trips to Nashville.
Amanda Tapping – Amanda Tapping was my first hero and so will always be special to me. She played Sam Carter in Stargate SG-1 and Helen Magnus in Sanctuary and both of those characters had a really significant impact on me. It took me a while to figure out that I could be like them – I spent most of my teenage years trying to be just like them – without having to be exactly like them. For example, I could pursue the things I love and the things I’m good at with the same intensity and passion and commitment, rather than trying to turn myself into a duplicate of either of those characters. Amanda herself is also a worthy hero: she’s struggled and succeeded throughout her life and she’s dedicated significant time, money, and effort to helping others. For example, she’s run conventions that have raised tens of thousands of pounds for charity and where she makes the dreams of fans like me come true: I was an anxious mess when I finally got to meet her but she was kind and compassionate and wonderful. She’ll be my hero forever.
Chloe Bennet – Chloe Bennet currently plays Daisy Johnson in Agents of Shield, my favourite character in my favourite show. This character is an actual superhero and that, of course, is a cherished connection to my Dad. Watching and following superhero related things has allowed me to feel close to him. I know he would’ve loved Agents of Shield. Daisy massively inspires me but Chloe does too, especially since she’s talked so openly about her mental health. (x)
Taylor Swift – I’ve exalted Taylor Swift multiple times (here, here, and here) so I won’t repeat myself but her kindness and her dedication to helping others and doing the right thing continually inspires me and motivates me to be a better human being. I’m also massively inspired by her artistic drive and her commitment to exploring her own creativity. She’s constantly building on her work and it takes my breath away every time.
Sara Bareilles – If I know you in real life, then I’ve probably told you (multiple times) about Sara Bareilles dedicating her song ‘Uncharted’ for me at her London show while I stood in the front row (the video is here). It was magical. Her singing and songwriting and piano playing take my breath away and I’m so inspired by the way she makes the music that she wants to make and doesn’t fold to the fickle whims of the music industry. I’m also really inspired by the way she’s pursued multiple different creative projects, like writing a book and writing the music for a musical.
Maren Morris – I have loved Maren Morris’ music from the moment I heard ‘My Church’ and her concerts are some of my favourite memories. Her songwriting is direct and honest and every song inspires me to get better as a songwriter, a singer, and a human being. Her story shows that there is something magical about being yourself, truly and authentically, and that inspires me every day.
Claire Wineland – I was and still am so inspired by Claire (I talk about her in way more detail here) and her approach to life and living. I will carry her in my heart forever.
These women are a huge part of why I am who I am and I’m so incredibly grateful to them. As Felix says in Orphan Black, “To my galaxy of women, thank you for the nurture.” Amen.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.