Posted on September 25, 2021
After two years of being utterly focussed on my Masters, it’s definitely weird not having something specific to work on, having no deadlines to meet, and so on. It’s strange but also a welcome relief: between working on the module of the moment and dealing with whatever the pandemic threw up, plus my health stuff, it’s been an exhausting time. While I’m excited to start working on the next project, whatever that may be, I do need a break first – to rest, recover, and recharge my body and brain – and there’ve been a handful of things I’ve been looking forward to doing for when I finally reached this point.
These are some of the things I’ve held on to when I really felt the exhaustion or my motivation dipped:
There are also things that I’m less excited to do but they are important and I’ve been putting them off, either because they took too much time and energy away from working or because I was worried about how engaging with them would break what felt like the very fragile hold I had on my concentration, like it would be impossible to concentrate on my project again if I stopped, even for a little bit.
So things like continuing my Pain Clinic appointments, getting the prescription for my glasses updated (my current pair are at least four years out of date or whatever the phrase is – it must be doing a number on my eyesight and it’s probably not unrelated to all of my headaches), figure out what’s going on with my therapy situation, make a definitive decision about my medication, and try again to tackle my Trichotillomania. None of these will be fun or easy but hopefully they’ll all improve my life in the long run so they are worth doing.
So there’s my list. I love a good list. I find that they help me organise my thoughts – my often very restless, whirlwind thoughts. It’s been a tough few months but I’m looking forward to diving into all of these things.
Category: book, covid-19 pandemic, event, family, medication, mental health, music, sleep, therapy, trichotillomania, university, writing Tagged: adhd, adhd inattentive type, adhd medication, album, antidepressants, anxiety, asd, attention deficit hyperactivity disorder, autism, autism spectrum disorder, autistic, autistic adult, blog, blog writing, books, break, depression, exercise, exhaustion, family, films, friends, glasses, inattentive type, masters, masters degree, masters degree in songwriting, masters degree year two, masters part time, medication, mental health, mental health break, mental illness, movies, music, new album, new music, new projects, pain clinic, part time masters student, recovery time, rest, singer, singersongwriter, singersongwriter life, sleep, sleeping, stim, stimming, swimming, therapy, trich, trichotillomania, tv shows, university, writing
Posted on August 29, 2020
I hadn’t intended to do another of these posts so soon but again, when I looked back at my diary at the end of the week, it felt like another very different week in my experience of lockdown. I guess I’m just trying to represent my experience of this time – and the variation within it depending on both the internal and external circumstances – as accurately as possible, for myself as much as anyone else.
The week in this post started on Monday 3rd August and ended on Sunday 9th August.
I was up by eight thirty and already at work. I planned out my week and then more specifically my day in my bullet journal before clearing my email inbox of rubbish and attending to the rest.
Next, I got to work on the ‘Back To Life‘ music video. Richard had sent me the first draft and I went through it clip by clip, making notes on what I liked, what I didn’t, any changes I wanted to make, any suggestions I had (all against their time codes). It’s not the most fun job in the world: staring at your own face for hours can get pretty draining, whether you’re a self conscious person or not, but I got it done and sent my notes back to Richard.
My main plan for the day was a writing session with Richard but I had a bit of time before our start time so I did some work on my next blog post before setting up our Zoom meeting. We’re working on multiple projects at the moment and we’d planned to work on some of my stuff that day. There was one song we’ve been working on for a couple of sessions now but while I liked the sound of the production, it just didn’t feel like it was the right mood for the song. So I made the slightly terrifying suggestion of starting over and coming at it from a different angle. That’s what we ended up doing, using different reference tracks and instrumentation. It sounded so much better by the time we called it a day.
We also spent a bit of time working on a second song, creating the basic shape of the track and deciding what sort of instrumentation fitted the mood of the song. So it was a very productive session, a very productive four hours.
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We hung up and I stretched out on the sofa, exhausted. I love writing sessions, whether they’re focussed more on the song itself or the production, but I do find them tiring and especially so when we’re working over Zoom. It’s just that bit harder to translate your ideas to the other person when the time lag complicates your communication or you can’t point to something on their screen and so on. I’m grateful that we can have our sessions at all but I do find them harder than face-to-face sessions and greatly look forward to it being safe to have those again.
I spent the afternoon and evening working on various blog posts with the TV on in the background. It was nice and gentle but I was still being productive, which definitely helps with my mental health and in turn, my ability to manage this period of time in general. Then I did some catching up with my diary before getting ready for bed.
I was just finishing up when I got a text from Richard with an MP3 attached, the song we’d spent most of our session working on. After our initial struggle with it, I was amazed by how good it sounded, how perfectly the new production fitted with the song. I went to bed, excited and proud of what we’d achieved.
Me and Mum got up early and headed for the nearby woods for a dog walk with one of our friends. She’s just recently gotten a rescue puppy (who is utterly gorgeous) and as well as seeing each other and catching up, she wanted some advice from us as (previous) dog owners. I had been really looking forward to it but I was also anxious about going out (a constant anxiety still) and then I almost had a meltdown, triggered by difficulties with managing my mask and my glasses. I don’t know if any of you fellow glasses wearers have struggled with this but my glasses rest right where the wire of the mask is and I constantly battle with keeping them both functional and at least somewhat comfortable. I’ve since bought a mask that doesn’t have a wire as my glasses keep the top in place but for this particular walk, I ended up doing a lot of it without my glasses, which (had everything been normal, wouldn’t have bothered me all that much) just added another layer of stress because I really had to focus on where I was putting my feet – I’m so short sighted that even the ground is very blurry without my glasses.
I hate sounding so negative over what was a really lovely walk – it was just an unexpectedly difficult start. It was wonderful to see this friend again and it was so nice to have some dog time, especially puppy play and cuddles. I’ve missed our dog so much since we said goodbye to him in January but I doubt any of us will be ready for another dog for a good while so this was a nice compromise. My anxieties aside, it was a very pleasant way to start the day, although I was a bit knackered afterwards. Exercise is an area that’s really suffered for me throughout lockdown so I think it was a bit of shock to the system.
We came home and I ended up having a pretty quiet day. I mainly worked on catching up with my diary – my Moby Dick – and spending time with my Mum. We’re usually pretty independent during the day and then come together in the evenings but that evening I had a movie date with a group of friends.
At seven, we started our video call and ended up spending an hour catching up and just chatting, which was really lovely. It’s been a long time since our last date for various reasons so there was a lot to catch up on and I think we’d all just missed each other’s company. Speaking for myself, I know that I’d really missed them and was just delighted to see their faces again.
Eventually we stopped rambling and got into the movie. We’ve been binging the Studio Ghibli films and this time, we watched Laputa: Castle in the Sky. I absolutely loved it. I loved the story and it was just so beautiful – I mean, they’re all beautifully animated but this one seemed particularly stunning. It’s definitely at the top of my list of Studio Ghibli films. We talked about it a bit afterwards and while we’d had differing opinions on the last film (Kiki’s Delivery Service), we all really enjoyed this one.
When we said goodbye and hung up, it was getting pretty late so I started getting ready to go to bed. I’m not sure if I’ve mentioned it already but over the last couple of months, I’ve been struggling with really bad pain in my arms, from shoulder to finger tips. That night, my right arm and shoulder were really, really hurting and even though my Mum gave me a massage, it was still really bad and made it difficult to get to sleep.
I slept really badly because my shoulder was so painful. Every time I rolled over and put my weight on it, I woke up and had to readjust my position and then get back to sleep again. It wasn’t a restful night and I really struggled to wake up. As soon as my brain was fully awake, I felt the anxiety kick in; I just felt so overwhelmed by how much I feel like I have to get done before university starts, in whatever form that takes.
The pain in my shoulder only got worse as I used my arm so my Mum worked out a schedule of painkillers to keep the pain at a minimum and keep me using it so I wouldn’t seize up or start compensating with the other shoulder. It’s been a problem for a while but since it’s only getting worse, we decided to call my GP the next morning and try to get a Zoom appointment.
I did some admin for the upcoming release of my new single, ‘Back To Life,’ and then settled in to work on my photo albums. After finally finishing the organisation of my photo library, I’d selected the photos I wanted for my physical photo albums (which were about eighteen months out of date) and sent them off to be printed. They’d arrived that morning and so I went through them, slowly getting them in chronological order. It took all afternoon and I still had to put them into the albums but it was very exciting to be so close to finishing such a mammoth job.
Early evening, I did some more admin work, replying to some emails, and listening to some songs a friend had sent me to give feedback on. I’d left it a bit late in the day to do the whole lot but I managed to do an initial listen to all of them to get the overall vibe and an in-depth listen of a couple, making detailed notes of my thoughts and suggestions. So it was a productive evening.
Then me and Mum had dinner in front of The Mentalist, which we’ve been rewatching for a couple of weeks now. I love the show but I particularly love its second life, with the FBI team rather than the CBI team. *Spoiler Alert* We’d reached the episode where Vega dies, where they attend her funeral, and Jane and Lisbon discuss the future of their relationship when they work such dangerous jobs. It’s a heartbreaking episode and even though we’ve both seen it multiple times before, we both sat there with tears streaming down our faces. What can I say, I get attached to fictional characters. Like, very attached.
It had been pretty hot all day so it took me a while to get to sleep. I don’t do well in the heat so I was dreading the predicted heatwave.
One of my cats, Lucy (or Queen Lucy as we often call her due to her being the cat we’ve had the longest and therefore the cat that rules the house), woke me up at four, yowling loudly as she played with a toy. At almost any other time of day, it would’ve been very cute but at four am, not so much. It took me ages to get back to sleep.
I got up at nine and finished listening to the songs I’d started working through the night before. I wrote down all my feedback for the remaining songs and then listened to them all again to see if any new thoughts came to me. I also included questions about various lyrics and production choices, challenging the meanings and choices so that everything would be really tight and cohesive. I was deliberately picky, as my friend had asked me to be (sorry, I’m being deliberately vague about who it is because I don’t want to announce anyone’s project before they have). As good friends, they trust my critique, rather than feeling like I’m being critical; we’ve worked together a lot so we trust each other to just want the song to be the best song possible.
That done, I spent a couple of hours catching up with my diary (I’m just so behind at the moment) and then had my therapy session at four. We spent most of the hour just catching up on the week and talking about how I’d managed the challenges and the difficulties that had come up. With the pandemic, we’re doing A LOT of distress tolerance. I do wish we could move forward and work on some of my long standing issues but from past experience, I know that when you start to unravel some of those things, you often feel worse before you feel better and I just don’t think I can handle that right now. I’m just about managing to cope day to day and I really don’t want to make things worse for myself when I’ve worked so hard to even get to this point with the pandemic going on.
I FaceTimed with one of my parents while my Mum had the Zoom appointment with the doctor. I still struggle with talking to doctors, I’m still figuring out how to do Zoom meetings with new or less than well known people, and I struggle with communication in general. So me and Mum talked about everything we wanted the doctor to know and then she did the call. She was on the computer for a long time but when she came back, she did have some good news although a large chunk of the plan does involve waiting, which I’m not super thrilled about. But my doctor has adjusted the medication plan a bit (she’ll prescribe me something stronger if it continues to get worse but for now, we’re sticking with over the counter stuff to avoid extra side effects) and referred me to occupational rheumatology where they’ll probably fit me for support braces or refer me on to physiotherapy or both. But that’s unlikely to happen for a while. So pain medication, massage, and trying to build or improve habits that at the very least don’t make the pain worse. I’m limited exercise wise by not being able to swim but we’ve set up a rough badminton court in the garden to allow for some gentle exercise, especially for my arms and shoulders.
Me and Mum had an early dinner with The Mentalist. *Spoiler Alert* We’d finally reached the final episode where Jane and Lisbon get married and it’s so lovely to see them all so happy, especially Jane, after going through so much sadness and struggle. I wasn’t convinced by their relationship at first but then I fell in love with it and watching the wedding scene usually results with me grinning like an idiot or actually crying at how sweet it is.
I was just thinking about going to bed when Richard texted me to remind me that we were announcing the release of ‘Back To Life‘ the next day, which had somehow completely slipped my mind. I swear, the pandemic has completely messed with my head – life pre-pandemic feels a bit like a dream and the way we did things feels kind of hazy. So suddenly I was in a panic about what to say when I announced the release of the song, especially one with the title ‘Back To Life’ during a pandemic (something that’s been bothering me for a long time). So I ended up spending more than an hour (at least) figuring out how to say what I wanted to say and how to say it in the best way possible.
I finally got to bed around midnight but it was so hot that, even after I discarded my duvet, it still took me a long time to get to sleep.
Lucy was gracious enough to let me sleep until five this time before waking me up, chasing a toy around my room, and then I couldn’t get back to sleep as hard as I tried. It was very frustrating.
When Mum got up, we had breakfast and rewatched *Spoiler Alert* the wedding scene in the final episode of The Mentalist, grinning like the sappy idiots we are. No regrets. It was a nice, positive way to start the day, watching characters you love get their happily ever after.
I spent the morning working on my blog post about JK Rowling’s recent transphobic comments and how complicated it is to reconcile a childhood hero with the problematic person they are in the present. I’m absolutely not condoning what she’s said or making excuses for her – if you’ve read the post, you’ll know that I refuse to support her while she makes such insensitive, harmful statements – but I also wanted to comment on some of the other connected issues. While her transphobia is without question the most important issue here, there are multiple points within the overall problem, like how her prejudices may have bled into the books and how difficult it is to make sense of these two different versions of her. I wanted to explore as many of these thoughts as possible.
It was so hot by the middle of the day that I felt like I was melting; I didn’t want any part of my body to touch any other part. It was horrible. Thank god for the fan I bought a few years back. I was reluctant because it was pretty expensive but having had several unbearably hot summers in a row, it’s been amazing; I would’ve been unable to function without it. I’ve only just been functional with it.
Early afternoon, I had a Zoom session with Richard and we mapped out a more detailed plan for releasing all the content around ‘Back To Life‘ before working on some of his music. We’ve always been a well matched pair because while his strengths are more musical, mine are more lyrical and so we’ve always been able to support each other really well. That’s one of the things that’s always felt really special about our working relationship.
Eventually I got too tired to do much good, so we scheduled another session and I had a rest, doing some blog writing with the TV on in the background.
In the evening, one of my parents – who, I guess, is in our bubble – came over and, while I don’t think you have to social distance if you’re in a bubble, we had dinner and hung out, still keeping a certain level of distance. The three of us are continuing to remain pretty isolated but it still feels sensible to stay somewhat distanced for the most part.
At seven o’clock, my alarm went off and I posted my announcement on my social media accounts…
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The fourth single from the Honest EP, written with the amazing @scottcolcombe (and produced by @laurend_d and @richardmarcmusic, who are both incredible), will be released on the 14th August! SWIPE TO SEE THE TITLE ➡️ Given the difficult and often distressing times we’re currently experiencing, I seriously considered delaying the release of new music, especially as we reach the more upbeat songs on the EP. But I didn’t want to leave the story half told. This song represents the upward turn after a painful chapter of my mental health and it feels important to include because while there are brutal lows, there are also wondrous highs. They’re all important and all part of the journey.
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That done, I felt able to be more present and enjoy the evening and although I was really tired, it was really nice to hang out with my parents. With times such as they are, I never take those moments for granted, especially since I’m not able to see all of my parents yet, together or apart. We don’t have to DO anything in particular; it’s just so nice to be together and talk face to face. It’s still so ingrained in me to greet people with a hug or squeeze their hand that I have to actively struggle against those automatic motions but it doesn’t make me want to burst into tears anymore. I’m just really looking forward to being able to do it again.
When she left, me and Mum settled down with Rizzoli and Isles, another show we haven’t watched in years, and I did some blog post writing. I absolutely agree with the philosophy that our productiveness isn’t tied to our worth as people – I wouldn’t debate that for a second – but I’ve also discovered that being productive plays a massive part in managing my mental health, even if it’s as simple as watching a movie that I’ve wanted to watch for a while but not gotten around to doing so. I guess it just depends on your definition of being productive – I don’t necessarily equate it with ‘producing’ something; it’s just doing something that I intended to do. If I intend to have a quiet and restful day and I do, then I have been productive.
I woke up far too early, which was annoying because I was still tired and sleepy but I definitely enjoyed the cool and the quiet. It’s my favourite time of day – before the world wakes up and starts rushing around, making so much noise – and we were due for another really hot day so I relished the cool air.
I had as quick a scroll through my social media as I could manage, having not been on it for a couple of days (apart from posting about ‘Back To Life‘). As I’ve said previously – during this time – it’s been better for my mental health to stay away from social media but then I do miss seeing what my friends and family are up to. So I’m trying to find a balance and for the most part, I think I’m doing okay.
That done, I settled into the living room and got to work, putting Friends on low for background noise. I posted my blog post about exam results and then spent the rest of the morning working on other blog posts.
By the middle of the day, I was really struggling to do anything because it was just so hot. I felt like I was melting and my brain seemed to be functioning very slowly, not unlike my laptop, which was definitely overheating with the fan whirring loudly. So I decided to take a break and work on something that required much less movement and brain power: slotting my newly organised photos into my albums. I also used the time to watch a film from my To Watch list – one of my New Year goals was to consume more new content rather than just familiar favourites and the lockdown has a good time to do that. It’s been good for me in other areas too. I’ve been challenging my songwriting skills and trying to write from the perspectives of different characters instead of just from my own life experiences and finding new characters and stories that inspire me has made it a really enjoyable practice.
I ended up watching Fantasy Island (mainly because I love Maggie Q), where a group of people arrive on a tropical island after winning a competition, their prize being to have their greatest fantasy fulfilled. I’d seen quite a few negative reviews of it but personally, I really enjoyed it. It wasn’t life changing but it was interesting and the twists and turns were cool. It was good entertainment and made for a mentally restful afternoon.
In the evening, me and my Mum had dinner together with a couple of episodes of Rizzoli and Isles and I spent a couple of hours working on blog posts. As usual, I put off going to bed, partly because my room was so hot. Again, thank god for my fan.
I slept long and deep, a welcome experience after months of restless sleep at best. I did have some strange dreams, but not disturbing ones. One included a storm cloud on fire, which was incredibly beautiful – much better than some of my previous dreams. I didn’t get up until almost ten but then I dived into the day, intent on being as productive as possible.
I finished my previous week-in-the-life post and then had a music lesson with one of my parents. We worked on the chords for two of the songs I’m working on and then had a long conversation about reharmonisation and how that works. I learnt about that during my BA by only briefly and that was several years ago so, with the Musical Language module coming up, I definitely needed a refresher. We might need to go over it again just to give me a quick reminder but I feel like I’m pretty solid on the basic principles. So that was good to do.
By the time we finished, it was so hot that I didn’t want to move. I lay on the sofa and watched the second series of Liar. It had been airing when we went into lockdown and it just slipped my mind; it only came back to me a month or so later and by that time, it was gone from ITV On Demand. I’d resigned myself to never knowing how it ended but then it popped up on Virgin On Demand. So I watched that through the heat of the day. It wasn’t the best show ever – I felt like there were quite a few inconsistencies and plot holes – but I was glad to see how it ended. Plus I used the time to continue adding the captions to the photos in my albums. So, considering the heat, I feel like I was pretty productive. Oh, and I also posted the first teaser for ‘Back To Life‘ on my social media.
We ended up eating dinner outside on the deck in the cool darkness and then we went inside to watch Rizzoli and Isles with some much appreciated ice cream. I kept working on the photo album captions, making it to March 2020. I was almost giddy with glee at being so close to the finish line.
That giddiness shot through the roof when I checked Instagram to see how the teaser was being received and saw that Desmond Child (writer of Bon Jovi’s ‘Livin’ on a Prayer’ and Ricky Martin’s ‘Livin’ La Vida Loca’ to name just two of his more famous songs) had liked it. I have no idea how he found it but it all but short-circuited my brain. I mean, he’s in the Songwriters Hall of Fame! So that was very, very cool.
This is the screenshot I sent to Richard…
It took me a long time to come down from that high so I didn’t get to bed until midnight. I’m really not doing well with this whole go-to-bed-early plan.
I’m always hesitant to say stuff like this – probably because of a leftover childhood superstition that I’ll jinx things – but I do feel like I’m coping better mentally, that I’ve found a way of managing things day to day. I mean, I’m still not able to read or focus on anything involving big chunks of new information for extended periods of time but generally, I feel like I’ve found a routine that’s working for me. I’m still really struggling emotionally but I don’t think that’s really going to change until it truly starts to feel safe again. The fear and anxiety is just a constant presence in my life that I try to manage, to varying degrees of success.
Category: animals, anxiety, autism, covid-19 pandemic, emotions, meltdowns, mental health, music, sleep, therapy Tagged: a week in my life, actuallyautistic, anxiety, asd, autism, autism spectrum disorder, autistic meltdown, back to life, back to life music video, blog writing, blogging, castle in the sky, cat, cat family, coronavirus, covid-19, cowriting, dbt, degree, degree in songwriting, desmond child, dialectical behaviour therapy, diary, diary writing, distress tolerance, doctor, doctors, dog, dreaming, dreams, face covering, face coverings, face mask, face masks, facemask, facemasks, facetime, family, fantasy island, fatigue, film, friends, glasses, heatwave, indie artist, indie pop, indie release, jk rowling, journaling, laputa: castle in the sky, liar, liar season 2, lockdown, lockdown 2020, massage, masters, masters degree, masters degree in songwriting, masters degree year two, meltdown, mental health, movie, music lesson, music video, musical language, netflix party, new music, new music uk, new release, new single, pain, pandemic, pandemic 2020, pandemic anxiety, pet, photo albums, photo library, pop, production, productivity, reharmonisation, remote writing session, rescue dog, richard marc, richard marc music, richard sanderson, rizzoli and isles, self isolating, self isolation, singersongwriter, singersongwriter life, sleep, social distancing, social media, songwriter, songwriters hall of fame, songwriting, songwriting degree, studio ghibli, the mentalist, therapy, transphobia, tv show, unsigned, unsigned artist, video editing, week in my life, writing session, zoom, zoom calls
Posted on August 15, 2020
It hasn’t been that long since my last week-in-my-life post but life is so different week to week at the moment that I thought I’d do another one once I started to see how the week was turning out. I thought, if anything, it would be interesting to be able to look back and see how different different periods of time could be during this pandemic and the subsequent lockdown.
The week in this post started on Monday 20th July and ended on Sunday 26th July.
I got up around eight, determined to be productive: do admin, send emails, work on blog posts, and so on. But I quickly discovered that the internet was down for the whole street and so I had to adjust my plans. I went back to my photo library and managed to finish sorting out my photo library: I can’t remember if I’ve mentioned this but when I loaded my photo library onto my new laptop, there were multiple duplicates of every single photo and the only way to be sure that I was getting rid of all of them (and not losing any of the originals) was to go through it manually. It took about two weeks of dedicated work but that morning, I finally finished deleting the duplicates, cutting the library down from 85,000 to 30,000 – no wonder Photos was running so slowly… I wasn’t quite done: I had to finish organising the remaining original photos into albums but it was real progress and that was very satisfying.
Since I was filming the music video for my next single, ‘Back To Life,’ the next day, I’d recoloured my hair a couple of days earlier (it had grown out A LOT) but since my usual dye had been discontinued, I’d had to guess at a new one and I wasn’t super happy with it so with my Mum’s help, we dyed it again, using a much redder dye than the previous one. It still wasn’t quite what I wanted but it was better than before.
I spent the afternoon working on (and finishing!) my next blog post, My Lockdown Favourites, and then, in the evening, I tried on the outfits and jewellery for the video, just to make sure that everything matched and was comfortable enough to move freely in. I avoid weighing myself because of my struggles with food – I don’t believe I have an eating disorder but I have gone through phases of disordered eating so I’m careful to avoid things that trigger that, like keeping a frequent eye on my weight – but I don’t think I’ve gained much, if any, weight during lockdown. My weight fluctuates within a certain range and I’m currently wearing the bigger size of jeans but that did happen pre-lockdown times. So I was relieved that everything was comfortable and that I don’t need to spend money on new clothes.
I was happy with the two different looks and as comfortable with our safety plan as I could be, given that I find just going out incredibly stressful, but I still felt very anxious about making the video. We were shooting early to avoid as many people as possible, would be masked (apart from me when I was on camera), and would be socially distanced, but I was still anxious about being out, about acting relaxed and happy for the upbeat song while feeling so anxious, as well as all the normal anxieties about making music videos and being filmed. So it’s safe to say I was struggling. But if we didn’t shoot the video, we couldn’t move forward with the EP, and I would continue to carry all of that anxiety.
In an attempt to relax a bit before bed, I caught up with one of my parents over FaceTime and watched an episode of The Mentalist with Mum. Then we went to bed early, given that we had to get up pretty early for the video shoot. I don’t know how I’ve managed to come up with three music videos (four shoots in total), all that have involved getting up at vaguely ridiculous hours.
My alarm was due to go off at six but I woke up at five thirty. That was positively luxurious compared to Richard’s ‘call time,’ since he’d had to leave his house before five (he was catching the first train from London – we’d talked about this a lot before we even started planning but he said he felt safe doing it, otherwise we wouldn’t have gone forward with the filming). But that extra time was good: it gave me some time to settle myself and collect my thoughts.
When my alarm went off, I got up and got showered, made up, and dressed in the first outfit I’d be wearing. I had a bit of breakfast and it was all going really well when, of course, I discovered a problem: a white residue had appeared on the frames of my glasses. It’s happened before but Mum had managed to get rid of it using a general household cleaner but nothing seemed to be working this time. We were supposed to be picking Richard up from the train station but I couldn’t do the video with my glasses looking the way they did (it was really noticeable and would look horrible) and I was rapidly spiralling into a meltdown, which I really couldn’t afford to have if we were going to film the video. In the end, Mum had to go and get Richard while I desperately tried to clean them, using anything and everything I could think of. A combination of googling and just experimenting later, I discovered that a thorough scrubbing with toothpaste was the answer. So, just in case you ever find yourself with the same problem…
PRO TIP: If your glasses develop a white residue on the frames, a good scrubbing with toothpaste will make them look as good as new.
I was just finishing when Mum and Richard got back and we headed straight out to the beach. I’d expected it to be pretty quiet, given that it was eight in the morning and a section of the beach a good distance from Brighton, but it was actually quite busy: there was an almost constant flow of people, most of whom weren’t wearing masks. This only added to my stress, in terms of safety and in terms of filming.
I don’t want to give too much away since this post will go up before the video is released. But we shot footage in three different locations (which included a somewhat awkward outfit change) and got everything we needed. I’d been worried about singing and making eye contact with the camera, something I’ve never done before, but that turned out to be much easier than before. It was hard work though, especially considering I’ve been inside for the last several months and my high level of anxiety. But we got it done and I’m cautiously optimistic about it as a finished video.
Here’s what I posted on Instagram afterwards…
After so much physical exertion (for the last year or so, even standing for extended periods of time can make me feel lightheaded and dizzy), it was a struggle to get back to the car. My whole body hurt, particularly my hip and knee joints and my steps got shorter and shorter. It felt like there was broken glass between the bones at each joint. It was horrible.
Eventually we made it back to the car and then home. We sat socially distanced in the garden for some lunch and then, as I watched Richard attempt to reconnect with the cats, I ended up falling asleep in my chair, completely exhausted by the emotion, the anxiety, and the physical activity. Fortunately Richard understands that this does happen – it’s happened before. I didn’t sleep for long and then we had a good catch up before dropping him back at the station around four. We were both really wiped from the early starts and the shoot.
Home again, I flopped down on the sofa and caught up with my other three parents who were all eager to hear how it had gone. Then me and Mum watched a couple of episodes of The Mentalist, had dinner, and went to bed early.
It was a really tough day because I was in a lot of pain after the shoot the day before. My whole body hurt, every single time I moved, every time I even shifted my weight. It was hideous. No one has managed to explain why I experience this level of pain after ‘normal’ levels of activity and our investigation has been stalled by the pandemic. Hopefully one day we’ll be able to find out, or at least find some solid ways of managing it so that I don’t feel so limited (I think the lack of exercise – swimming is the only form of exercise that I can do without pain – hasn’t helped).
I’d planned to have a very gentle day anyway, knowing I’d be tired, so I settled in to watch Absentia Season 3. I knew from watching the first two seasons that I would get so absorbed that I wouldn’t want to stop until I finished it so I dedicated the day to binging the whole thing. I’m finding this to be a really good form of escapism at the moment, especially because I don’t have the concentration to do anything but watch it. Anyway, it was really good and I really, really enjoyed it. Having only started it a month or so ago, it’s already one of my favourite shows. I think the first season is my favourite but I’ve loved all of them and I love Emily Byrne (played by Stana Katic). She’s such an interesting character with such a complex history that I could just watch endless episodes of her. It’s definitely a show that I’ll watch over and over again.
This is the trailer for Season 1 even though I was watching Season 3 – I just don’t want to spoil the show for anyone.
I was so overwhelmed when I finished it that all I could really do was sit and absorb it. But eventually my brain started working again and I had a quick scroll through social media (I haven’t been spending much time on it recently but I do try to check in every now and then so that I’m update to date with what and how my friends are doing) before doing a bit of work, despite my dedication to a day of relaxation. A Dutch journalism student had reached out to me, asking if he could interview me as a new artist dealing with the pandemic. I’d been happy to help and he’d sent me a series of questions that I’d been thinking about so I pulled them up and wrote out my answers before sending the document back to him.
I FaceTimed with one of my parents (it’s hilarious – we talk more now than we did pre-pandemic even though we’re currently doing less and therefore have less to talk about, leading to some pretty bizarre conversations) and then me and Mum had dinner with The Mentalist. And after taking some time to digest, she gave me a massage (I think I’ve mentioned previously that she used to be a massage therapist) to help with all the pain I was in. It wasn’t exactly comfortable but I think it helped in the long run.
Lying on the carpet post massage, I was so relaxed that it was very hard to get up. I didn’t end up going to bed until around eleven.
Despite the less than early night, I woke up at six and couldn’t go back to sleep. I was still tired but I enjoyed the cool and quiet of the early morning. It’s the time of day when I feel most calm, I think.
I stayed curled up in bed but I got to work, answering all of my outstanding messages (and there were A LOT of them). Over the last month or so, I’ve found that taking a couple of days away from social media can be really good for my mental health but then almost all of my socialisation with my friends is through social media so I’ve been working at finding a comfortable and healthy balance. The messages do pile up every now and then though so I’m not there yet. But I’m trying.
That done (and it felt like a real achievement considering how many messages there were), I got up and went downstairs to feed the cats. I was still in pain but it was mainly just in my joints and where the body bends, rather than absolutely everywhere like it had been the day before. So that was progress.
I spent the morning updating my bullet journal and working on various blog posts with Friends on the TV with volume turned down low (background noise helps me work and it seems to be the only thing that doesn’t distract me). I was just getting on with that when I got a handful of notifications from Taylor Swift’s social media accounts, announcing that she was releasing a new album at midnight (or 5am for me in the UK).
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Most of the things I had planned this summer didn’t end up happening, but there is something I hadn’t planned on that DID happen. And that thing is my 8th studio album, folklore. Surprise 🤗Tonight at midnight I’ll be releasing my entire brand new album of songs I’ve poured all of my whims, dreams, fears, and musings into. I wrote and recorded this music in isolation but got to collaborate with some musical heroes of mine; @aarondessner (who has co-written or produced 11 of the 16 songs), @boniver (who co-wrote and was kind enough to sing on one with me), William Bowery (who co-wrote two with me) and @jackantonoff (who is basically musical family at this point). Engineered by Laura Sisk and Jon Low, mixed by Serban Ghenea & Jon Low. The album photos were shot by the amazing @bethgarrabrant. Before this year I probably would’ve overthought when to release this music at the ‘perfect’ time, but the times we’re living in keep reminding me that nothing is guaranteed. My gut is telling me that if you make something you love, you should just put it out into the world. That’s the side of uncertainty I can get on board with. Love you guys so much ♥️
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My brain basically short-circuited. It was such a shock – a good one, yes – but a shock nonetheless. I was incredibly excited but I also had this weird mix of adrenaline and anxiety rushing through my system; I think the only way I can describe it is that it’s like when my plans suddenly get derailed and I’m left scrambling to try and figure out what the new plan is. It’s not a comfortable feeling. Having said that, I don’t want to come across as negative because I was genuinely immensely excited but sudden changes are a lot to handle when you’re autistic so I was dealing with a lot of overwhelming emotions.
Given this news, my concentration was shot for the rest of the day. Usually, we have a lot longer to wait between announcement and release so the anticipation builds over months but this time, it felt like it was all compressed into less than a day. It took hours to get back into a headspace that wasn’t just ‘OH MY GOD! OH MY GOD! TAYLOR SWIFT IS RELEASING A NEW ALBUM AND WE’LL HAVE IT IN LESS THAN TWENTY FOUR HOURS!’ and even then, the thought would leap up out of nowhere and smack me in the face, derailing my thought process. So it wasn’t the most productive day ever.
I spent (or tried to at least) the rest of the day trying to catch up with my diary so that I could immediately write down my thoughts on the new album the next day. I didn’t quite make it but I got close enough that I would still be writing about it on its release day.
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folklore will have 16 songs on the standard edition, but the physical deluxe editions will include a bonus track called “the lakes.” Because this is my 8th studio album, I made 8 deluxe CD editions and 8 deluxe vinyl editions that are available for one week😄 Each deluxe edition has unique covers, photos, and artwork. Available exclusively at taylorswift.com
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Something that I started doing with the ‘Red’ album was predicting which songs I would like based on the titles. Obviously that’s not much to go on and there’s no logic to it really but it’s a fun exercise. My guesses for ‘folklore’ were ‘the last great american dynasty,’ ‘exile’ (I mean, a collaboration with Bon Iver?!), ‘my tears ricochet,’ ‘seven,’ ‘august,’ ‘this is me trying,’ and ‘epiphany.’ So I wrote those down, set multiple alarms to wake me up for my traditional 5am first listen, and went to bed early.
My alarm went off at 4.45am and I flipped through various apps on my phone, just trying to wake myself up for the 5am release. But when the time came around, the album wasn’t available on iTunes. Fortunately lyric videos for each song had been uploaded to YouTube so I watched those according to the track listing. It’s always really important to me to listen to a new album in order because that’s a creative decision the artist made when they put it together. I often continue to listen to albums like that (unless I’m in a specific mood and need the validation that songs of a similar emotion provide).
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In isolation my imagination has run wild and this album is the result, a collection of songs and stories that flowed like a stream of consciousness. Picking up a pen was my way of escaping into fantasy, history, and memory. I’ve told these stories to the best of my ability with all the love, wonder, and whimsy they deserve. Now it’s up to you to pass them down. folklore is out now. 📷: Beth Garrabrant
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As I listened, I noted down my thoughts about each track. I love how our relationships to songs change over time and as we discover all the layers within them so I always find it really interesting to look back and see what my original thoughts were for comparison. I don’t know if anyone cares but I’m going to stick them in here because I love the album and loved it from the first listen.
I’m really looking forward to hearing ‘the lakes’ and seeing how that fits into the album and I’m just really excited to listen to the album over and over and over again, until I know every little detail. Again, because I love it so much (and because I’m a Songwriting Nerd), I’ll probably make a whole post about it at some point once I’ve listened to it more and have a better understanding of the stories. If that’s not your thing then I absolutely won’t be offended if you skip that post.
I bought some merch (the international shipping is atrocious but I’m trying not to beat myself up since I’ve barely spent any money since lockdown began) and spent the morning on Tumblr, reading people’s reactions and theories and analyses of the new songs. This is always one of my favourite parts of a new Taylor album, everyone coming together to peel back all of the layers in each of the songs. It reminds me of this Daisy Johnson quote from Agents of Shield (my favourite TV show): “Usually one person doesn’t have the solution, but a hundred people with one percent of the solution? That will get it done. I think that’s beautiful… pieces solving a puzzle.”
Early afternoon, I had a Zoom session with my therapist. We talked through the week since my last session, discussing the difficulties and how I’d dealt with them. She also let me ramble about Taylor Swift for a little bit because she knows how much I love her and how important her music is to me, both as a person and as a songwriter. For the most part though, we talked about how much I have and still am struggling with the different reactions people have had and are having to the pandemic and lockdown. I’ve never been able to get my head around the way some people have managed to be super motivated and productive during this time while I feel like I can’t move past the fact that we’re in a pandemic, that tens of thousands of people have died, hundreds of thousands of people are mourning, and so on. It’s like this giant roadblock that I just cannot navigate around. Yes, I’ve been able to do bits and pieces here and there but this is always in the middle of my brain, making it impossible to be much more than minimally functional. I don’t think a person is bad or wrong for being able to compartmentalise or manage however they are managing; I just don’t understand how someone actually does it. Usually I can understand how someone might approach a situation differently even if I can’t actually do it myself but right now, I can’t. I wish I did; I wish I knew how to not feel constantly overwhelmed by distress and grief and fear.
By the time we finished, I was really starting to flag; the early start, the emotions of ‘folklore,’ and the difficult discussions in therapy. I was TIRED; I was struggling not to fall asleep on the sofa. I lay there for a while, just processing everything, and when Mum came upstairs to check on me, we ended up watching The Mentalist together while I did some diary writing. My emotions were all over the place and I just needed some gentle time.
Dinner and another episode later, me and Mum got in the car and went for a drive. I always introduce her to new albums on long drives and it’s a tradition we both really love (something we haven’t done since before we went into lockdown). We didn’t have anywhere to drive to so we just decided to drive up to a particular junction on the motorway and back, listening to the album beginning to end. For some reason, it feels like an album that sounds best in the dark, hence why we’d waited until the evening. It was really fun and we both really enjoyed it. Mum’s initial favourites were ‘illicit affairs,’ ‘this is me trying,’ and ‘mad woman.’ After a day of listening to it, my top three were ‘this is me trying,’ ‘mirrorball,’ and ‘exile.’ But I really, really love a lot of them. It’s mostly a case of which ones do I love more or less and which ones do I connect to more or less.
There was a diversion due to roadworks so we ended up getting home pretty late. We were sorting out the cats and getting ready for bed when we came to a decision on something we’ve been discussing for a while: we decided to buy the one thing I wanted for my birthday, a Gretsch hollow body electric guitar. I’ve wanted one for months and it was going to be my birthday present but me and Mum had discussed it and decided to buy it a couple of months early so that I can make the most of it before university starts again in early October (my birthday is at the very end of September). I want to improve my skills and also just play for fun as much as possible before I have to start factoring in university work, in whatever form that takes. We’ve been talking about it for a while now but that evening, we decided to finally stop talking about it and actually do it. It was very exciting and would be arriving in just a few days (the picture below is from when it arrived).
I woke up feeling tired and unsettled and anxious and it just got stronger and stronger throughout the day. I just felt really overwhelmed by all the things I feel I still need to do before uni starts again, which ironically and frustratingly made it harder to get anything done.
It was a rainy day so the cats spent a lot of time indoors with us, which was a comfort. They’re usually busy playing in the garden so it was nice to have them around. They were all pretty affectionate but Sooty was especially snuggly and I gratefully accepted every invitation to cuddle.
I posted my weekly blog post, My Lockdown Favourites, and then spent most of the day catching up with my diary. It’s so easy to get behind and that causes me such anxiety. I also spent a bit of time at the piano and continued messing around with a couple of song ideas I’ve been working on recently. I’ve been experimenting with writing from the point of view of fictional and historical characters over lockdown and although I find it much harder than writing about my personal experiences, it’s a fun challenge and one that I think is improving my songwriting skills, as well as resulting in some interesting songs. So, all in all, it was an okay day.
In the evening, one of my parents came over for dinner in the garden. We’d also planned to watch Hamilton together but given how stressed and anxious I’d been, we decided to postpone that until next time so that I’d actually be able to enjoy it. I’ve really been looking forward to seeing it so I was grateful for the flexibility; I wanted to be able to really get stuck in and engage with it and I just didn’t feel able to that day. Still, it was really nice to see her in really life and hang out together.
When she left, me and Mum watched a couple of episodes of The Mentalist while I did some diary writing and then we went to bed, far too late as usual. Sleeping badly has got me all twisted up about going to bed so I dread it and put it off and usually end up sleeping worse because of it. It’s a habit I’m trying to break but so far I haven’t done very well. It’s just so easy to get sucked into trying to finish whatever I’m doing.
I slept restlessly (as is my new normal) and woke up feeling tired and low. But I dragged myself up and me and Mum fed the cats – it really is a two person job with five very eager cats. They’re so cute though and watching them practically inhale their food and then skip out into the garden to play is a good way to start the day.
Mum headed out straight away and drove to our gym since she hasn’t been able to get anyone on the phone. Because of my Chronic Fatigue and the ongoing problems with my joints, weight bearing exercise can be really painful so swimming is really the only serious exercise I can do. I’m really concerned that gyms are opening too early but as they are, I at least wanted to know what the safety precautions are and what my options might be. Our gym has a therapy pool that was always empty first thing in the morning so we would use that but when she returned, she reported that the therapy pool wasn’t an option because they didn’t have enough life guards yet. And when it came to their safety precautions, I just didn’t feel like it was worth the risk. But we’re going to keep talking to them and try to work out an arrangement as a disabled member. So it’s not the end of the road but it was very disappointing and didn’t help my mood.
I was supposed to have a music lesson (via Zoom) but my anxiety was even worse than the day before so, in the end, I cancelled it. Fortunately my teacher is one of my parents and so she understands that if I say I can’t do something, I really can’t. I’d really tried to motivate myself and push through my anxiety but I just felt like I was going to start crying at any moment. It was just too much.
So I curled up on the sofa with the TV on low and continued catching up with my diary. I always get behind when Taylor Swift releases an album because I end up writing so much about it – the lyrics, what I like and what I’d do differently, the production, my overall thoughts – and sticking in interesting analyses from Tumblr. I’m always amazed at how quickly some people are able to analyse a song and see all the layers while I’m still overwhelmed by the amount of layers and all the emotions the songs evoke.
I also did a bit more work organising my photo library but I hadn’t got very far before I was interrupted (very pleasantly) by one of my parents dropping in to say hello. She hadn’t planned on staying long but then we got talking about ‘folklore.’ She’s a huge music nerd so she’s always interested to know what I’m listening to. I played her a couple of the songs and that turned into a full album listening party, which was really fun, although I’m always a little anxious about playing her music that’s special to me because she can have really strong opinions. But she was really into it (she particularly liked ‘mad woman’) and asked me to share it with her so she could listen to it some more. So that was very cool.
I ended the day having dinner and watching The Mentalist with Mum (we are both complete saps when it comes to the Jane and Lisbon relationship in the final season) while I continued writing my diary.
So that’s another week of my lockdown experience. I feel like, aside from unexpected difficulties with my mental health or an autistic meltdown, I’m finding a groove where I’m as productive and comfortable as I can be. It’s far from what I would’ve wished for during this period (apart from the new Taylor Swift album) but I’m cautiously optimistic that I’m managing a bit better, in the sense that I’m better at taking things day by day.
So I hope this was interesting to read, interesting to see someone else’s experience and maybe escape your own life for a bit. I hope you’re all doing well, staying safe and coping the best you can.
Category: autism, body image, covid-19 pandemic, emotions, event, favourites, meltdowns, mental health, music, therapy, video Tagged: a week in my life, absentia, agents of shield, anxiety, back to life, behind the scenes, blog writing, blogging, cat, cats, cfs, chronic fatigue, chronic fatigue syndrome, coronavirus, covid-19, daisy johnson, dbt, diary, disordered eating, disturbed sleep, ep, face mask, facemask, facetime, family, fatigue, folklore, food, friends, glasses, gretsch, guitar, gym, hair dye, honest ep, interview, journal, laptop, lockdown, low mood, making a music video, mask, massage, me/cfs, mood, music lesson, music theory, music video, music video shoot, new guitar, new music, new single, organisation, pain, pandemic, photo albums, photo library, pool, quarantine, quote, safety, safety precautions, singer, singersongwriter, singersongwriter life, sleep, stress, swimming, taylor swift, the mentalist, tumblr, tv show, university, video shoot, wear a mask, week in my life, weight
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.