Posted on June 27, 2021
This past month – this module – has been pretty all-consuming, not that I’m surprised as it is the final project of the Masters. This module is called the Major Repertoire Project where we research a particular topic (most commonly one we have a personal passion/connection/investment in) and use the research to write songs on the subject. I’ve been working on an autoethnographic project in the form of an album about my experience as a woman with Autism Spectrum Disorder. It’s a really exciting and fulfilling project to be working on but I won’t deny that it has dug up some hard stuff. And the timeframe does make it more than a bit stressful. But this module is why I wanted to do the Masters and despite the difficulties, it’s definitely been an interesting ride so far.
Other than that, there’s been a lot of other stuff going on, including my health stuff, travelling to London by train again for the first time, and getting my second vaccine!
The week in this post started on Monday 7th June and ended on Sunday 13th June.
I slept late, having swam hard in the pool the night before. I had an early Occupational Therapy appointment so I dragged myself out of bed and had a shower, only just ready in time for the video call. I was still out of breath when the call went through.
The call was somewhat frustrating because the connection wasn’t very good and we had to hang up and call back multiple times. That made it hard to have a real discussion and make any real progress. But we managed to talk about a few things: we talked about the hand exercises I’ve been doing; we talked about the swimming I’ve been doing and how my joints were responding to it; I told her about the ergonomic equipment that was due to arrive later in the week (it came through DSA, which I will talk about at some point because it was a very different experience to my previous DSA experiences); and we talked about the recent awful pain and instability in my right knee. We didn’t come to any conclusion on that and we’re still waiting on the physiotherapy referral; fortunately we live on the same street as a physiotherapist and she was able to give us some general advice. Plus, by the end of the call, we’d had a message from the dentist saying the consultation for my tooth extraction had been booked for Saturday – much quicker than I’d expected. So I was hopeful about that at least.
I ran through the exercises for my hands and then got back to work on my project, various childhood movies from Disney+ playing in the background as I worked. My focus for the day was researching special interests and how they present differently in girls and women. I know a lot about all of this already from my personal research but going through it again is good for both my final presentation and for the creation of the songs in this project. It can get a bit tedious at times, going over a lot of the same material but sometimes I’ll read something I’ve read before and see it with a completely new perspective or I’ll find something new that just gets my wheels turning. And then, suddenly, I’m halfway through a new song.
About mid-afternoon, I was really flagging, hungry and tired. I nearly fell asleep on my desk.
Somehow, I managed not to doze off; I moved around, got some food, and got back to work. I tidied up the research I’d done and then updated the journal we keep throughout the project: record what we do, what we learn, we critically analyse what we learn, write songs using the knowledge or inspiration we find, reflect on that process, etc. I was a few days behind in updating it but I’d mainly been working on the song ideas I’d slowly started pulling together the week before. These songs seem to be taking longer to write than usual; I think I’m just spending a lot of time turning over the core idea and making sure the weight of the song is in the right place – if that makes sense – before I start working out the exact narrative and arranging all of my lyrics ideas.
After several more hours of work, I called it a day on the work. I had a FaceTime call with one of my friends from uni and we caught up about our projects, about plans to actually hang out in person (although it would probably have to be a work-date with everything we have to do for our projects), and the Friends Reunion – we were even quoting in unison from the show by the end of the call. We probably looked and sounded ridiculous but we had a good laugh, something I think was good for both of us.
I spent the last few hours of the day working on the lyrics of a new song. I don’t often write love songs so that was a new experience for me, something that was really fun. It was actually really cathartic in a strange way, to write a song about a realistic, meaningful relationship, one that has ups and downs but that ultimately works because of the mutual commitment. It felt really good and I was really enjoying the process of writing it.
I went to bed at a reasonable time but then I accidentally stayed up reading until almost two am. That’s happening far too often at the moment. It’s not kind on my sleep schedule.
After the late night, I struggled up around eleven. I had a shower, an excellent breakfast of poffertjes and strawberries, and finished Avengers: Age of Ultron, which I’d started the night before. Oh, and I did my physio exercises.
I spent several hours doing background research – the foundational research, I guess. I know all of this stuff inside out but I need to be able to present it as part of my project; chances are the people assessing me won’t know even the basics about Autism, let alone that it presents differently in women and girls. So that wasn’t the most interesting research for this project but it was important to do so I did it.
That done, I worked on the song I’d been writing the day before. The rest of it came together pretty easily and I’m really happy with it. As I said, I don’t often write love songs so it was pretty exciting to feel like I’d done a good job when it’s not something I have much experience with. I particularly like how visual it is: the lyrics conjure different pictures and situations as well as the emotional weight of the relationship being described. Yeah… I’m really proud of it.
Early afternoon, I had an online meeting with my supervisor and module leader about my project – we get a set amount of time with our supervisors (specifically chosen based on the projects we proposed) over the course of the module and they provide advice, insight, etc. We had a good discussion and I got a lot of my questions answered – they’d been accumulating as I got further and further into my research and writing. So it was really helpful but by the time we wrapped up, I was tired and more than a bit overwhelmed.
I had a little break to check in with my social media. I’ve actually been using it a lot less recently; the potential for something to trigger my anxiety is just so high that I’ve been staying away from it for the most part. I don’t want anything to disrupt this project so I guess I’m just being extra careful right now.
I did some more research and then spent several hours trying to tidy up my laptop, deleting files and closing tabs and windows that I didn’t need anymore. I’m kind of terrible about leaving things open, just in case I need them again, but my computer was starting to sound very stressed out so I figured that I really needed to do something about it before my computer exploded… That took a somewhat ridiculous amount of time but the fan was significantly quieter when I was done.
I spent the evening watching What Happened To Monday (I love Noomi Rapace in this film – she plays each of the different septuplets so incredibly), updated my project journal, and had dinner. I actually managed to get to bed at a reasonable time but then I accidentally stressed myself when I let my brain wander down the wrong avenue. I needed my Mum to talk me down off the ledge but even then it was hard to get to sleep because it was so hot.
I was so deeply asleep that Mum had to wake me up; my alarm was going off but I was sleeping right through it. Waking up felt a bit like swimming up through treacle. Not the most enjoyable way to start the day.
After a shower and some breakfast, I worked on the chords for one of the songs I’ve been thinking about but not for long as I really needed to focus on preparing for my cowrite the next day which involved working on a different idea. So I got the idea down and went back to my laptop.
With the film, Close, on in the background (another great Noomi Rapace film), I ran through my physio exercises and then got to work on the prep for my cowrite. I had this idea to write a song about The Loneliest Whale so I started researching said whale and the factual information around it’s discovery, it’s signature call, and how it came to be called ‘The Loneliest Whale.’
No artist was listed with this illustration but it came from this article (x)
I was interrupted by my new ergonomic equipment being delivered, set up, and explained – thank you DSA and Posture People! I want to write about that whole process in a bit more detail but that really belongs in its own post. The two guys from Posture People were lovely and really well informed about the equipment they were setting up: they ran through everything in detail (but not so much detail that it was overwhelming) and they gave me time to test everything out to make sure I really understood how to make it work. The most exciting part was the beautiful ergonomic chair that they gave me. I’ve never had a comfortable desk chair – I’ve never been able to find one – and although it’s gonna take a while to adjust to sitting in a new position, I’m really excited to be able to sit at my desk and not feel really uncomfortable.
When they left, I went back to my research and collected quotes and phrases for inspiration. Then I went through those and wrote down the lyrical ideas that came to me as I read. Some of the ideas fitted together really clearly but I tried not to get ahead of myself since the song was supposed to be a cowrite.
In order to get into uni, we have to have tested negative for Covid less than twenty-four hours prior so I did a test and – hurray, hurray – it came back negative. Not that I thought I had it. But the negative result did mean that my plans could go ahead, I could see some of my friends, and I could do my cowrite so I was very pleased.
I spent the rest of the afternoon working on a blog post about special interests in Autism (and how it presents differently in girls and women). I figured that, since I had the research for my project, using it to write a blog post would be a win-win. I was momentarily – or not so momentarily as it turned out – pulled away from that when one of the cats got herself stuck in the attic and I had to tempt her down with Dreamies. Fortunately all of the cats become fairly dumb when the Dreamies come out. I was surrounded in seconds. Lucy didn’t immediately come flying out of the attic hatch but after I laid a trail of treats for her to follow, she did climb down and I was able to go back to writing.
One of my parents came over and we had a good catch up, which was really nice. I also showed her the ‘pivot’ blooper from the Friends reunion (which I absolutely loved) and we had a good laugh. She, having not seen it yet, laughed nearly until she cried. The three of them unable to stop laughing is just so funny.
We had dinner with Lucifer and I tried to catch up with my diary. I’m just permanently behind what with the Masters and it’s exhausting. It would be the ultimate relief to be caught up but I have no idea when that might be a possibility.
I went to bed early but then I had some lyric ideas for two of the songs I’ve been working on and that sort of snowballed until they were both nearly done. It was almost midnight so I stayed up a bit longer so I could send my friend a birthday message at the exact moment it became her birthday. That done, I curled up and went to sleep, with Friends on low for background noise.
I was up early, despite having woken up at four and struggled to get back to sleep. But I had things to do and places to be. I had a shower, got dressed, put on make up and jewellery; I had some breakfast and packed my bag before heading to the station to catch a train to London. It was around ten so it wasn’t super busy (although I did have to sit on the floor on the second train because I just couldn’t figure out where to sit that didn’t break social distancing rules – as much as possible on a train anyway). It was my first train journey in over a year and it was very surreal; it felt like a lifetime since I’d last been on a train and like the most normal thing in the world at the same time. I knew I didn’t have the energy to spare pondering that contradiction so I tried to just put it to one side and focus on the work I wanted to do. I was semi-successful, mostly because, with my mask, my glasses kept steaming up (yeah, I know, I still haven’t figured that one out) so I eventually abandoned them, ending up hunched over my computer in order to see the screen.
My second train (at least, the second train I’d planned to take) was cancelled. I can’t help feeling that there’s something kind of incomprehensible and yet somewhat comforting (although maybe not at that particular moment) that there was a global pandemic and the world basically turned upside down but Southern Rail is still as unreliable as always. Anyway. It was a complete faff to reroute and it made me horribly late but eventually – two trains later – I made it to uni. It wasn’t an enjoyable first train journey: talking on the phone to various friends and family did help my anxiety a bit but my knee was already killing me and it was going to be a long day. It’s been hurting for weeks now and I have an appointment with the onsite physio at my doctors’ surgery but it’s not for another two weeks so I’m not sure how I’m supposed to manage until then.
Fortunately my cowriter was very understanding and we had a really good – and fun – session; we laughed a lot, which was really nice. We didn’t have as much time as I would’ve liked but we built a strong foundation for the song with two verses and a chorus that I felt really good about. It obviously needs more work but it was a really solid start and I felt really positive about where it was going.
We had a class at two so we had to stop there. Even though we were at uni, it was an online class so we had to log in to attend – that was kind of funny, attending a uni class that wasn’t at uni while I was at uni. I don’t know if that makes any sense but I couldn’t help a wry smile. Anyway. Everyone in the group shared their project, where they were at with it, if they were having any problems, and so on; they all sound so fascinating. We’re going to have to have a week long listening session at the end of the module so that we can all hear each other’s work. It was a long class so it did get a little difficult to stay completely engaged throughout but, as I said, all of the projects are really interesting.
After the class, I desperately needed a break, having been concentrating (or, at the very least, trying to) for over four hours solid. I got to have a good hang out and catch up with my friend Luce, which was just what I needed, and we also got to see our friend Eddi who I certainly haven’t seen since before the pandemic, which was just so lovely and an unexpected gift. If there’s a bright side to being separated for so long, it’s the complete joy of being reunited – it’s a real celebration every time.
There was also an online song sharing that afternoon so Luce and I found an empty room and logged in. There were about ten of us, I think, including two of our part-time classmates who were also at uni, in another room in the building somewhere. Anyway. The session was really fun and inspiring. Since we have our supervisors (or each other one on one) for critique, the session is more about hyping each other up and offering creative ideas and just sharing our writing/project journey in a really positive, uncritical environment. So many of the songs were just SO GOOD. I mean, I thought every song was good because everyone has improved so much over the module and really got a sense of their songwriting identity, their strong points, their stylistic preferences, and so on, but some of the songs were just mind-blowing. The songs that Luce, my friend Joy, and my newer friend Shristi played particularly stick out in my mind as some of the best songs I’ve heard on the course (and definitely better than many of the songs I hear outside the course).
I played one of my newest songs, which was actually kind of terrifying because it’s not the kind of song I usually write and I really wasn’t sure how it was going to go over (I don’t mean to be intentionally cryptic – but I’m planning to release it, the song and this project, so I don’t want to spoil anything or, even worse, promise something and then not deliver). But everyone really, really liked it and were so enthusiastic and supportive, even picking out their favourite lines despite having heard it only once. It was a bit overwhelming but in a really lovely way. I really love this song and I’m so glad that people liked it and were responding to the emotion in it.
When the session ended, we packed up, said hi to our friends who’d been in the building, and headed off in our different directions. It was officially home-time; it was after seven and I still had a couple of hours of travel ahead of me. And, of course, my overground train was cancelled but with the low sun and fresh air, I was happy to sit and relax, especially after being inside all day; sometimes uni can feel a bit like a casino – the lack of clocks and windows at uni can make it really hard to tell how much time has passed, what time it is, etc. Days could’ve passed and you wouldn’t know.
Eventually, I managed to get moving and between talking to my parents (they all wanted to know how the day had gone and when there’s four of them, that can take a while!) and some project work, I managed to stay awake all of the way home. But after the long day and all the changing trains, my knee was excruciating; I could barely walk by the time I made it home.
Crashed out on the sofa, I inhaled a dinner of fish and chips (THE BEST fish and chips in the world, I might add) and half watched The Proposal – I love the movie but I was so tired that I could barely keep my eyes open.
I managed a barely coherent Instagram post before going to bed at eleven, exhausted and sore. I was asleep in minutes and slept like the dead.
I woke up with my alarm at eight thirty but I was so exhausted from the day before that I accidentally fell asleep again and slept until ten. I had a slight headache so I took some pills straight away before it could get worse. I had too many things to do to have my day derailed by a major headache or, worse, a migraine.
It took me a while to get up but I did eventually manage to drag myself out of bed and after a shower and breakfast, I got to work. I spent the next several hours working on stuff for my project; mostly, I caught up with the journal-like document that we keep both as a record of what we’ve done and as a place to reflect on what we’ve learned in our research, on the songs we’re writing, and the whole process that is the project. That’s the broad strokes: you can use it for whatever is helpful to your project but I guess that’s the basic scaffolding of it. I had rather a lot to catch up on, having had a busy but productive few days of project work.
When I eventually finished that, I took a break and had a quick scroll through my social media. The first thing I saw was that an interview I’d done a few months back had been published and shared…
I still find it a very surreal experience to be interviewed, and I’m not sure I’ve had an illustration of myself before! Surreal but very cool. So that’s out there and you can check it out via the link if you would to!
My social media also alerted to me the fact that the day before was the anniversary – the 5th anniversary – of Christina Grimmie’s death. I can’t believe it’s been five years. I really can’t. I’m still dealing with a level of cognitive dissonance, I guess. It just feels so wrong, like something that should not have been possible according to the laws of physics, even after all this time. I’ve written about her death before and I doubt there’s anything new to say – the facts haven’t changed – but I still struggle with it. I know I’d had a busy, stressful, painful day but I felt guilty for forgetting, for only remembering the next day when I was prompted by social media.
It was almost like Sooty knew I was getting upset because she suddenly appeared, hopped into my lap, and demanded that I put down my phone and pay her some attention. Loudly. So I put down my phone and we had a good cuddle. She wriggles and rolls and purrs like a train and it’s very soothing. And she definitely seems like she has a good time.
When Sooty resettled herself on my legs, I did some diary catch up and then some blog writing before trying to work on the song about The Loneliest Whale. I really tried but I was so tired and my head was starting to hurt so after a while, I just put on a movie and dozed on the sofa until one of my parents arrived for our weekly dinner and hang out.
We had a good catch up (even though we catch up practically every night) before having dinner with Lucifer. It was really nice and chilled out and probably just what I needed. But eventually she had to go. We said our goodbyes, had lots of hugs, and then, once she’d gone, I had another go at my whale song. I’m always more productive and creative at night (unfortunately for my neighbours) and I had actually managed to make some progress, which was very satisfying after the trouble I’d had earlier in the day.
I slept restlessly so getting up was a struggle. Oh, how I miss the days of a good sleep schedule…
I had a shower and some breakfast and then got to work at my computer. I did another clean up of my laptop, closing all the windows with research I didn’t need anymore before working one of the songs I’m currently working on. With this project, working on multiple songs at once, it’s a bit like spinning plates. It’s a challenge. But it’s a fun and satisfying challenge most of the time.
In the middle of the day, I had to go to the hospital for a dental assessment, the next step in the process of my upcoming tooth extraction. I really don’t know what the point of the appointment was: there was no new information in either direction, we had the exact same conversation as we had in the first appointment at my dentist, and all he did was refer me for the extraction (which seemed an unnecessary step since, as far as I could tell, I’d already been referred). The whole thing felt pointless and a waste of everybody’s time: for me it was annoying and I’m sure there had to be better things he could’ve been doing. And I still have no idea when the extraction might happen and if it will affect my Masters.
So that whole experience was frustrating and exhausting and then, when we got home, the pain in my knee was so bad that I physically couldn’t walk from the car to the house. I ended up sobbing in the street. My Mum had to all but carry me the rest of the way. It was horrible. But I had a rest and eventually managed to recover myself, enough at least to have another go at the song I’d been working on earlier in the day. And another one. What can I say? Spinning plates.
Early evening I realised I hadn’t posted the blog post I’d written so I put that up (it’s the one about living with unmedicated ADHD). Then my Mum and I had a light dinner, had a break to digest, and headed to the pool. I’m not sure if I’ve mentioned this before but, on Saturdays and Sundays, one of the local-ish pools have evening sessions that are very Autism-friendly. That’s not specifically their purpose but they’re very calm and soothing: quiet, low lighting, and only a few people. Plus they have super strict COVID regulations so I’ve always felt safe going there. It’s so nice. Those nights are usually high points in my week.
We swam and I worked hard, which felt really good. And the fact that my knee doesn’t hurt in the water, giving me a break from the pain, is definitely good for my mental and emotional state. Although, in a typically me move, I did have to get out in the middle to record a song idea in the changing room. I’m betting that if you’re a songwriter reading this, you’ve done something similar more than once too.
Back home, exhausted but buzzing with endorphins, I finished the lyrics to one song and worked on another. That was very satisfying. Then I went to bed, read for a bit, and went to sleep around half midnight.
I had an early start, caught up with my diary a bit, and then headed to the vaccination centre for my second vaccine. They were great – quick, efficient, and warm – and then I was out of there, fully vaccinated. That felt really, really good. The only negative to the experience was that my knee was so painful that I could barely walk on it; we managed to get a parking space close to the doors but just fifteen minutes on my feet was excruciating.
When I got home, I tried to work on the song I didn’t finish the night before. I found it difficult to concentrate but I kept trying all afternoon, all evening until dinner. While we were eating, we talked about the week ahead and what needed to be done for each day. I’m juggling a lot at the moment and while – most of the time – I feel like I can handle it, suddenly it all got on top of me and I got really stressed out and upset.
It took me quite a long time to recover and I didn’t really want to go out and interact with people, even if it was only a few of them at the pool. But I only get two opportunities a week to swim there – in that relatively stress-free environment – and I was loathe to give one of them up. So I dragged myself out of the house and over to the pool.
Again, I worked hard, which felt good. I can already feel the difference in my strength and stamina from when I started swimming consistently again after the last lockdown ended. My arm had started to ache post-vaccine but it wasn’t too bad; it didn’t affect my swimming (or anything else and it only lasted a few days unlike the two weeks of pain I had last time).
I crashed on the sofa when we got home, watched TV for a bit, and then I spent a little time working on song lyrics before going to bed.
Every week at the moment is different but the intensity is pretty consistent. My brain is constantly on a hamster wheel and while I love all of the stuff I’m working on, it’s pretty stressful and exhausting. And on that note, I just wanted to flag that I might not be as consistent about posting over the next two months or so. I’m not going anywhere – I have absolutely no intention of abandoning this blog – but I need to focus on this final project for the Masters and the two other research projects I’m working on. They have to be the priority for a little bit but then I will be back. I promise. I love this blog and I get so much out of writing it. And that’s not to say that I won’t post at all in that time; I just don’t think every week is going to be possible for a little bit. So, I hope you enjoyed this blog and I will see you in the not too distant future!
Category: about me, anxiety, autism, covid-19 pandemic, death, event, family, heds, medication, mental health, music, research, sleep, treatment, university, video, writing Tagged: a week in my life, adhd, anxiety, asd, autism, autism spectrum disorder, autistic, autistic adult, autistic student, blog writing, cats, christina grimmie, coronavirus, covid test, covid vaccine, covid-19, covid-19 vaccine, cowriting, death, dental assessment, dental surgery, disabled student allowance, dsa, eds, ehlers danlos syndrome, energy levels, ergonomic equipment, exhaustion, family of cats, film, friends, friends reunion, heds, hypermobile ehlers danlos syndrome, interview, joint pain, journal, london, low energy, major repertoire project, masters degree, masters degree in songwriting, masters part time, mental illness, murder, my cats, occupational therapy, online class, online classes, pandemic, pandemic 2020, physiotherapy, public transport, research, singersongwriter, sleep, songwriting, special interests, swimming, the loneliest whale, tooth extraction, tv, university, vaccine
Posted on December 24, 2020
As per tradition, here I am posting a list of things I’m grateful for on Christmas Eve. This year has obviously been very different to previous years and I think it’s fair to say that we’ve all had days where we’ve felt scared and angry and probably every negative emotion under the sun, making it difficult to feel grateful, but then it’s also reminded us of how many things we do have to be grateful for. There are many more things that could go on this list, but I’ll try to keep it as concise as I can. Otherwise, we’ll probably be here until next Christmas.
Family – I could not be more grateful for my family. I love them so much. So, so much. They do so much for me and all I want to do is make them proud. But this year, I’m especially grateful for their health and grateful to them for their care and caution during this time, for how sensible everybody has been despite how much we all want to be together. It’s been so hard not seeing so many of my extended (and even close) family members face to face for such a long time and I’m truly and deeply looking forward to seeing them all (and hugging the crap out of them) when it’s safe enough to do so.
Mum – Oh my god, my Mum. I love her so much. She is just incredible. This hellscape of a year has been so hard for me (as it has been for so many but in my case, it hammers right on my biggest autistic difficulties: uncertainty and anxiety) but she’d been completely solid throughout, always there for me when I needed her. She’s made this so much easier on me than it could’ve been and I’m so grateful for that. She’s handled everything with such grace; I’m truly in awe. I only hope that one day I will be as strong and capable as her. I’m probably going to have some separation issues whenever the world starts to function in a way that we’re more used to (I mean, we’ve been together almost 24/7 since March when I was usually in London a couple of days a week and she was in and out all day, out for full days, or even away for several days, etc so I’m very used to having her around and she’s become a bit of a touchstone when it comes to my anxiety) but I’m not going to think about that yet. It seems there’ll be plenty of time before that’s going to happen.
Friends – I am so grateful for my friends; I always am but I’m especially grateful this year. I have moments of being terrible at staying in contact and periods of being better (something that’s largely dependent on my mental health) but considering everything this year, I don’t think I’ve done too badly. I’ve been talking to and spending time with different friends in different ways: calling, messaging, video-chatting, watching movies together, a few socially distanced meet ups, etc. I’m really happy we’ve been able to stay in touch even if I do desperately miss spending time with them. They’ve been a real tether to ‘normal’ life and I’m more grateful for that than I can say. This year has also taught me (both as a result of the pandemic and not) what I need in my friendships (not that that’s all that matters but if neither of you are getting what you need most of the time, how are you supposed to make a friendship work?) and I really value that. It doesn’t automatically change anything but I think that knowing what is good for me in a friendship and what isn’t is really important and will only be helpful in the long run.
(There are a handful of people I wish I could include in this collage but don’t have pictures with, from this year anyway.)
Richard – I mean, where do I start? Generally, I’m of the opinion that the universe is completely random but something awesome happened that day six and a half years ago when I sat down next to him on our first day at university. I had no idea that I was meeting one of my best friends, most trusted collaborator, and creative partner. The Honest EP never would’ve happened without him. We worked on every aspect together and I can’t wait for whatever our next project turns out to be. This year has obviously been about as different as we could’ve ever imagined but he’s gone through every high and low with me and I couldn’t be more grateful. I’m so glad that we’ve been able to continue releasing the Honest EP and that we’ve been able to write together despite the pandemic, even if writing remotely isn’t as fun as writing face to face. I’ve missed just hanging out with him, with our friends, and actually doing things that don’t require a screen but I’m so grateful for what we’ve had and what we’ve been able to do despite the difficult circumstances. I don’t feel like I’m saying all of this as eloquently as I’d like to but what I’m trying to say is that I’m beyond grateful for Richard. I don’t know how I got so lucky with such an amazing friend.
All of the years I had with Lucky – January feels a bit like a lifetime ago; I can’t believe it’s only been eleven months since we said goodbye to our precious Lucky. It was one of the most painful experiences of my life but he was ready. I know people say that but you only had to look at him to know that it was the truth. But despite the pain and sadness of that twenty four hours (and obviously since), we had an amazing almost sixteen years with him. From meeting him when he was a few days old, to bringing him home, to teaching him to sit, to the hours we spent playing with him, to sneaking him onto the sofa with me when no one was home, to various people ‘sneaking’ him onto the sofa whenever everyone was in the room, to running around on the beach together, to watch him throw himself into hydrotherapy with such enthusiasm, to lying on the rug in front of the fire together… every second with him was a wonderful gift that I will forever be grateful for.
And while I will always wish to have had more time with him, I’m glad that he didn’t have to manage the pandemic and all the stress surrounding it. He was such a sensitive dog, especially in his old age, and I think it would’ve been really distressing for him. Saying goodbye to him was devastating enough as it was; I know that having him put down during lockdown would’ve been so much worse, especially as it’s likely that we wouldn’t have all been able to be there with him.
My cats – The family of cats have been a bit of a lifesaver to be honest. Early on in the pandemic, their complete obliviousness to the chaos in the world was very calming: they just continued with their lives and there was something very soothing about that. And just throughout the pandemic, the cuteness and silliness and playfulness have been a wonderful distraction or comfort on the more difficult days. On the whole, they’ve all become very snuggly with only me and my Mum around (they absolutely freaked out when they saw a new person for the first time in months) and now, nine months into the pandemic, I rarely go a day without having had at least two cats draped over me at some point. It’s all very cute and very much appreciated. I’m also really, really grateful for their health. I’m always aware of that but with Lucy having a health scare that resulted in two surgeries earlier in the year, I feel particularly grateful that all five of them are well and healthy.
FaceTime, Zoom, Netflix Party, etc – I’m so grateful for the platforms that existed and have come to exist to help us connect with our friends and family (and continue with university) during this time. Yes, I’m sick of only seeing people via screens and I’m even more sick of my eyes always ending up on my own face and, as an autistic person, communicating feels ten times harder but I’m still so glad that we have them so that we can see and talk to and spend time with our friends and family. It’s not enough but it’s better than nothing and I’ll gratefully accept whatever way of connecting I can get.
TV and Film Streaming Services, eg. Netflix, Amazon Prime, etc – Having access to so much media to consume was a great way to escape everything at the beginning of the pandemic and throughout the first UK lockdown. I discovered some really awesome TV shows and movies (about which I’m going to post later this week). It was escapism, but it also kept my brain creative (filling it with stories and characters and ideas) even if I wasn’t able to express it for a long time. And now that I’m writing again, I have so many ideas and stories to tell.
Fanfiction – I mentioned Fanfiction in my Lockdown Favourites post and it’s definitely been one of the things that has helped me throughout the pandemic and lockdowns, especially early on when I was just paralyzed with anxiety. I’ve really struggled with reading during the pandemic; I just haven’t been able to concentrate enough to get into a novel, like there isn’t enough space in my brain for new characters, new worlds, and new storylines. But reading stories set in familiar worlds with characters that I love (Stargate SG-1, Sanctuary, Harry Potter, etc) feels much easier and really comforting, especially when my mental health is shaky. I’ve always found it to be a good form of relaxation and escapism; maybe one day I’ll post my absolute favourites because they’re just so good, so well written and quite possibly better than the originals. I do want to give a particular shout out to Annerb who has been my staple writer this year; I discovered her through her Stargate SG-1 stories and then fell in love with her Harry Potter epic, The Changeling, where Ginny is sorted into Slytherin. I’ve reread that particular story so many times. It’s absolutely incredible: she’s filled out the world of Harry Potter so beautifully, creating real depth to the different houses and characters, both canon and original. I mean, I could talk about it forever. It’s so freaking good.
My piano – My piano and I have been good friends this year, especially since the pandemic began. Between the nerve pain in my left hand that’s made guitar playing all but impossible and the soothing lower octaves of the piano, I spent more time at my piano this year than I probably ever have before. Between the calming sound and the concentration blocking out my anxiety, it’s been one of my favourite things to do. I’ve played so many songs and written quite a few too and it’s another of the things that have kept me going through the pandemic.
The music that got me through this year – I mentioned several songs in my 2020 in Songs post but those were my absolute favourite songs of the year. There were so many more songs and so many more albums that inspired me and encouraged me and helped me to cope with all of my emotions this year and I’m so grateful to every artist that gave me that gift. I’m going to write about a couple specifically but I also want to mention Sara Bareilles (both for seeing her in Waitress several times and for her new music), Halsey, Kelsea Ballerini, and Maren Morris for their various contributions throughout the year that made things just a little easier. I hope I’m not forgetting anyone but if I discover that I have, I’ll come back and add them.
Kalie Shorr – I am so grateful that I walked into that Tin Pan South/Song Suffragettes show in 2016 and saw Kalie play. There were so many shows I could’ve gone to and yet, somehow I ended up at that one and it has had such a big impact on my life. I mean, I wouldn’t have gotten to play at a Song Suffragettes show if I hadn’t gone to that show. But my point here is that I heard Kalie’s music for the first time that night and since then, she’s released the Slingshot EP, the Awake EP, her debut album, Open Book, and Open Book: Unabridged, a reissue of the album with four additional songs. Her artistry and songwriting got better with every project but each one still holds a special place in my heart. I love her music and I learn so much from her as a songwriter. She is one of my biggest musical inspirations and I hope that, at some point, I will develop as distinctive a voice as a songwriter and artist as Kalie has. So I guess that’s why I’m grateful for her in general but I’m also especially grateful for all she’s been doing this year. Throughout the pandemic, she’s done so many livestreams on various platforms, which has been really awesome. We’ve gotten interesting and funny stories, acoustic songs, previously unheard songs… it’s been great. And while I’m obviously still enjoying them, they were particularly important to me during the early days of the pandemic when my mental health was really bad; they really helped me keep going. She’s also been part of various other musical projects, puts out a podcast, is consistently hilarious on Twitter, and released the previously mentioned Open Book: Unabridged. I’d hoped to see her this year on my trip to Nashville but then said trip was cancelled by the pandemic. I’ve met her a handful of times and she’s so lovely. I wish I lived in Nashville; then at least there’d be a chance of us being friends and writing together. I’d love that. I admit that my insecurities do sometimes get the better of me and I struggle with, I guess, comparison anxiety (how well she’s doing vs. how I’m doing) just because I want to have a career in music so badly and have so many fears over why it won’t happen, but I’m still endlessly grateful for her and everything she does. Her music has changed my life for the better in so many ways and I appreciate that more than I can say.
Taylor Swift – Despite remaining largely out of sight during the pandemic, Taylor had a massive year and by extension of that, a massive impact on my year. Her documentary, Miss Americana, came out in January, of course, which was incredible; it felt like a great honour to be let into her life like that, especially during the moments that were really difficult and personal. She also released the City of Lover Concert on Disney+, which was really cool (although it was sad that her pre-Lover songs couldn’t be included); I’d so desperately wanted to go (especially since it was so close, considering that Taylor’s a US artist) but it was just too big a risk with my health and my finances as they were. So I’m really grateful that I got to see it in some form. Even though we got folklore and evermore out of the lockdown, I still want to mention the cancellation of Lover Fest. Even though it wasn’t unexpected, I was absolutely gutted; that and my Nashville trip were the top two most painful cancellations of the pandemic. I was so looking forward to it – the times I’ve seen Taylor live have been some of the bright spots over the last five or so really difficult years – and to have that ripped away was really hard (in a parallel year that I’ve daydreamed up, it still happened and it was glorious). But then we got folklore, folklore: the long pond studio sessions on Disney+, AND evermore, all in the space of about six months. I don’t know about anyone else but my head is still spinning. folklore and evermore are both incredible albums (I’m currently writing blog posts about them because I love them so much) with so many amazing songs that I’ve completely fallen in love with. They’ve also been hugely inspiring for me as a songwriter, which the long pond studio sessions only added to when Taylor talked about the songs from folklore and the processes behind the writing of them. She has just been a very inspirational figure for me this year (she always is but, again, this year has been a real example of that): as a songwriter and general creative person, handling the ongoing situation around her Masters with so much grace, speaking out during the US election and giving the Democrats her song, ‘Only The Young,’ to use in their campaign, being a really good example around safety during the pandemic… I’m so grateful for all she does, for how inspiring she is, for how much she CARES. I’m grateful to have her to look up to. I’m still hoping that I’ll get the opportunity to tell her that one day.
Agents of Shield – I was gutted to hear that this year’s season was going to be the last but damn, do they know how to go out with a bang. I wasn’t convinced about the time travelling element at first but I ended up really getting into it and I loved how, even though they stopped the Chronicoms each time, time still changed and they ended up in a drastically different present. Every episode was really, really good and a few of them were standouts of the entire show (7×09 – I’m just saying…). I loved the stories, I loved the development of the characters, and I loved the ending. It was perfect. I was sobbing throughout the last few episodes because it was so powerful and emotional. Daisy Johnson is my hero. I will love her forever. I will love this show forever. I’m so grateful to have discovered it, to have had it in my life, and to move forward with everything the show gave me. There may be no new episodes but that doesn’t mean it’s over; the impact it had on so many people will never be over.
The new swimming pool we found – Late in the summer, we found a swimming pool that was really strict about their safety guidelines and having not felt safe at my previous pool, I was so appreciative of that and so excited to get to swim again. It wasn’t as often as I would’ve liked but anything was better than nothing after months of not having access to a pool or not feeling like it was safe to be at a pool. It just felt so great to get proper exercise and really use my muscles again after not being able to since before the pandemic. I love this pool, especially when they turn the main lights off and the room is just lit by the underwater lights; it’s so soothing and just a really good atmosphere to exercise in. I always feel so good afterwards.
The benefits I receive – I am so unbelievably grateful for the benefits I get, more grateful than I can truly express. As a disabled person who struggles physically and mentally, I’m constantly worrying about money because my health is so unreliable and therefore steady work or a steady work flow can be really difficult or even, at times, impossible. So the financial support has been amazing and so important for my mental health, especially during this year of constant uncertainty.
The (medical) progress I’ve made despite the pandemic – Despite everything moving slowly due the pandemic (my rheumatology referral, for example, took about nine months), we’ve learned a lot about my body and my brain this year and we’re in the process of exploring the options, the avenues we have to choose from. I made medication changes, we chased more options for helping my CFS, was tested for a Vitamin D deficiency and given a high dose supplement to bring my levels up again, I was diagnosed with hypermobility, I finally had the rheumatology appointment and have been referred on to a handful of different departments. I’ve had a MRI, I’m due to have an ECG, and will hopefully start hydrotherapy as soon as it’s available, although I’ve already started doing the basic exercises I was given. And we’ll see what the other departments say. Oh, and I have another mental health evaluation coming up soon, which may give me some more information so, despite everything, we have made progress and progress that is hopefully leading to more progress. As hard as it can be day-to-day, I’m really pleased about that.
The result of the US Election – I mean, this one is pretty obvious. I was so terrified that Trump was going to get in and it was so scary to have no say or way to help. The days of waiting for the final result were agonizing and when I found out that Biden had won, I actually cried. No, he’s not perfect but he’s far, far better than Trump and I’m so grateful, in this regard at least, to finally have some hope rather than fear and horror and frustration.
My tutors – Of the two semesters I had this year, all of my tutors have been so, so good. And not just in the ‘being good teachers’ sense (you’d hope that was a given at Masters level) but they’ve all been so fantastic about working WITH me to make sure the classes and workload and assessments were as manageable as possible for me with my difficulties. They’ve been so open and supportive and they’ve made the semesters so much much easier; I mean, the work was still hard (but then it’s a Masters Degree so the work is supposed to be hard) but there wasn’t that unnecessary stress that there has been before. I’m still anxious about my grades but that’s practically a personality trait. Anyway, they’ve been absolutely wonderful and I so appreciate it.
The experience of the Honest EP – The first track of the EP, ‘Bad Night,’ came out in 2019 but the other four came out this year, including accompanying music videos and additional content like remixes and behind the scenes for the songs and videos. Making and releasing and promoting all of that was often really stressful but so much of it was really fun too. The beginning of the year was really fun: releasing ‘Clarity‘ and see it do better than ‘Bad Night,’ doing several really fun gigs with really lovely people (there was a really awesome moment where everyone was waving their phones with the flashlights on and another where everyone got really into the song, dancing and even singing along despite it being the song’s first outing), playing my university’s songwriters’ circle, a weird and wonderful studio day… and then the pandemic hit. My mental health took a real dive but things kept moving. I released a remix of ‘Clarity’ with an accompanying music video, which was definitely a new experience. Then I released ‘Sounds Like Hope‘ along with the gorgeous music video animated by Lois de Silva. I saw myself on TV when the music video for my debut single, ‘Invisible,’ was played as part of Brighton’s virtual Disability Pride Festival. Richard and I managed to film and edit the music video for ‘Back To Life‘ (during a period when it was safe to do so – we were very careful about that) in time for the planned release of the song. Even though shooting that video was super stressful, I was still able to have fun: it’s such an upbeat song that it was really fun to prance around to and even though the sea was freezing and the pebbles were painful to stand on, messing around in the shallows was actually kind of joyful. So the song and video came out and then, at the end of October, the fifth and final track, ‘Honest,’ came out, which was really exciting. It did really well and Richard and I celebrated the day with a dance party and a shot (I can’t speak for Richard but I’m a lightweight). It was a really fun day. We put together a music video for it, using clips from this whole bizarre journey; it felt very fitting for a song called ‘Honest.’ And as of this moment, the EP has surpassed 35,000 streams on Spotify, which I’m both really proud of and really grateful for, grateful to everyone who took the time to listen to these little songs that I wrote. There have been so many beautiful moments during this journey and it’s not even over yet; there’s still more to do and more to come. It’s been incredibly stressful but I’ve never felt so strongly that I’m in the right place as when I’ve been working on this project and performing these songs. I’m so grateful to and for all of the wonderful people who’ve worked on this project with and supported me through it, especially Richard and Mum. I couldn’t’ve done this without them. I’ve learned so much and gained more than I could’ve imagined (not financially unfortunately but in so many other ways). This project has changed my life and I’m beyond grateful.
The ‘little’ things – There were just a handful of things that I wanted to mention that there wasn’t really enough to say about for each of them to have their own bullet point but I didn’t want to leave out: my neighbour rescuing my cat when she got stuck up a tree even though he later told us he was afraid of heights; my brother doing a gorgeous job on creating a brand new leg for one of the china horses I got from my Dad (we think it got broken when we moved house); my therapist; the new cat tree and how adorable it is when all of the cats curl up on it at once; Tin Pan South still going ahead, if virtually rather than physically; the concerts I got to go to pre-pandemic; being able to dye my hair at home… I’m sure there are more but these are the ones that are coming to mind as I write this. Again, if I remember any others, I’ll come back and add them to the list.
So there you have it. This ended up a whole lot longer than I meant it to be but I think I am just really grateful. This year has been horrible in so many ways but it’s just made it really clear to me how good the good things are. And, as always, there have been some unexpected surprises along the way, things I never could’ve seen coming. I’m sure there are more things I could add but I’m gonna stop and go and do my Christmas wrapping. I hope you all have the best Christmas possible under these weird, hard circumstances. I hope you feel the things you need to feel and do things that make you feel good. Life is hard right now and no one should have to pretend otherwise. So I hope you’re looking after yourselves and I’m sending you big, virtual hugs.
Category: about me, animals, anxiety, autism, chronic fatigue syndrome, covid-19 pandemic, depression, diagnosis, emotions, favourites, holidays, medication, mental health, music, treatment, university Tagged: 2020, agents of shield, amazon prime, annerb, asd, autism, autism spectrum disorder, autistic, autistic adult, back to life, bad night, benefits, best friend, black labrador, cat, cat family, cats, christmas, christmas eve, clarity, coronavirus, covid-19, debut ep, disability, disability support, disabled, dog, ep, exercise, facetime, family, family of cats, fanfiction, film, films, financial support, friends, grateful, gratitude, health, honest, honest ep, hypermobile, hypermobility, kalie shorr, keyboard, lockdown, lockdown 2.0, lockdown 2020, loss, loss of a pet, lucky, masters degree, masters degree in songwriting, masters degree year two, masters part time, mother, movie, movies, mum, music, music video, music video release, music video shoot, netflix, netflix party, pandemic, pandemic 2020, pandemic anxiety, pet, pet loss, pets, physical health, piano, richard marc, richard sanderson, singer, singersongwriter, singersongwriter life, single, songwriter, sounds like hope, streaming, swimming, taylor swift, the changeling, tv, tv show, university, us election, us election 2020, zoom
Posted on September 19, 2020
Back in June, I made a post about what had been my plans for the empty semester of my Masters and how I’d adjusted those plans according to the pandemic and subsequent lockdown. I was still hopeful that I could get a lot done in the time before my next semester started but the pandemic had a massive effect on my mental health and therefore my productivity so it took me a long time to gather myself enough to do anything even vaguely productive. So while, in pre-pandemic times, this list of completed goals probably would’ve felt disappointing, I’m trying to shed those expectations and be proud of what I’ve achieved considering the current circumstances.
MANAGED TO DO:
DIDN’T MANAGE TO DO:
So, as I said at the beginning of the post, I’ve been trying to realign my expectations as to what has been possible during this time, based on the lockdown restrictions and my fluctuating mental state. With everything so uncertain, it was impossible to know what I’d achieve. Looking at this list now, I’m proud of myself. For the most part. And in the moments when I feel frustrated or disappointed, I acknowledge those feelings, let them have their space, and then try and let them go. I don’t always succeed but I try. Because, given everything going on, I think what I managed to do – especially looking back at how I was (or wasn’t) functioning at the beginning of lockdown – is something to be proud of. And when I can’t feel proud, I practice proud.
Now, on to the next semester.
Category: anxiety, chronic fatigue syndrome, covid-19 pandemic, depression, emotions, mental health, music, university, writing Tagged: anxiety, back to life, back to life music video, concert, concerts, coronavirus, covid-19, cowriting, decluttering, diary, diary writing, empty semester, film, friends, guitar, home studio, honest, honest ep, kalimba, learning, lockdown, lockdown 2020, masters, masters degree, masters part time, mental health, mental health awareness, mental illness, meteor shower, music theory, music video, new skills, obsessive compulsive disorder, ocd, online learning, pain, pandemic, pandemic 2020, performing, photo albums, photos, piano, production, reading, remote writing session, sara bareilles, semester, singersongwriter, singersongwriter life, skills, songwriting, swimming, tv, university, waitress the musical, zoom, zoom calls
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.