Posted on September 29, 2018
Have you seen the book where various different celebrities or famous people write letters to their younger selves? Some of them write pages and pages and some of them write a sentence, maybe two. But the majority of them reveal very little about their lives because they believe that the journey to the major events is as important as those major events. I don’t disagree with that but considering my levels of anxiety, it wouldn’t be the worst thing in the world for my younger self to have a little more certainty. Most of my stresses, then and now, are about the future so this would’ve been the perfect thing to calm younger me. Obviously this is a hypothetical exercise since we haven’t actually invented time travel and therefore don’t have to worry about causing a paradox that dramatically alters human history. We’ve all seen enough sci fi to know that that always ends badly.
Ultimately, there’s not much to be gained from wishing you could change the past and while there are things I wish had been different, I don’t think I’d change almost any of the things I had control over: the people, the pursuits, the loves… I’d choose them all over again.
Category: about me, identity, life lessons Tagged: 24th birthday, advice, asd, autism, autism in girls, autism in women, autism spectrum disorder, autistic, birthday, exams, fitting in, grades, growing up, lessons learned, life, nashville, ramblings, school, secondary school, things i'd tell my younger self
Posted on September 22, 2018
A while back, my brother told me about an upcoming talk called ‘Is Autism A Gift?’ Naturally, I was curious. And slightly sceptical. For me, Autism has been one struggle after another but I’m aware that that is likely due to the late diagnosis rather than the actual Autism. But who knows. So I was really intrigued as to what the talk would be like.
The talk was part of New Scientist Live, which is a huge event – a festival, really – all about “ideas and discoveries for everyone curious about science and why it matters.” I couldn’t describe it better than they do. It’s full of stalls, interactive experiences, and stages for talks on all different subjects. Had I not had previous engagements on the other three days of it, I would’ve loved to stay longer and explore more. I was almost giddy with all the potential for learning.
The speaker was Dr Anna Remington, the director of UCL’s Centre for Research in Autism and Education and a leading authority in the area of superior abilities in Autism. And she had me from the beginning: she asked how many people were autistic or had a personal connection to Autism, almost the entire audience put their hands up, and she said, “I personally feel that you are the experts.” She was warm and enthusiastic, the perfect combination of fascinated and respectful. I liked her straight away.
She started off with a brief outline of Autism, of the social aspects (struggling with non-literal language, eye contact, managing relationships) and the non-social aspects (the need for routine, areas of intense interest, sensory sensitivities). She also talked about the language around it, about using ‘autistic people’ rather than ‘someone with Autism,’ because so many people feels that it’s so intrinsic to their identity. She quoted someone she’d worked with: “You can’t separate the autism from me. It’s not something I carry around in a bag with me, it’s something that’s absolutely part of my personality and identity.”
She said that so many talks are about the difficulties of Autism but that she wanted to talk about some of the positives, not the savants but the areas where autistic people are shown to excel. She walked us through some studies – some visual tasks and some auditory, done with both children and adults – and showed us how the groups with autistic people did significantly better.
She introduced the idea of ‘perceptual capacity’: “The amount that we can process at any given time is known as our perceptual capacity. Everybody has a slightly different perceptual capacity and whether we process something depends on whether our capacity is full up or if there’s still room left over… Now the crucial thing is that we have to assign our whole capacity at any given time. You can’t assign just part of it. So, if the task that you’re doing doesn’t fill up the whole of your perceptual capacity, then anything that’s left over will automatically process something irrelevant around you.”
I found this whole concept fascinating. This is the idea behind why people listen to music while working or doodle while talking on the phone, filling in that left over capacity with information that doesn’t interfere with what you’re trying to do. I have always had stuff playing in the background (audiobooks, movies, TV shows – not music because I get distracted by thinking about the mechanics of the song and of the lyrics) and was always told that I couldn’t possibly do whatever I was doing well with that much ‘distraction.’ So it was very satisfying to know that I’d been right all along. If you want to know more about this, this article is very helpful.
She finished with why this research, why these findings, matter and how they can be applied in education and employment to improve the experience and opportunities for autistic people. The research is really exciting and I would love to be involved in some way; as I mentioned in my post about taking part in Autism research studies (here), there’s something really empowering about it, about feeling part of change. I spoke to her about it after the talk and she was absolutely lovely.
My one negative about it all was the level of background noise, this constant drone of indistinguishable voices. It made it difficult to hear the talk and it’s one of the things that I’ve found really drains my energy. But, although it completely wore me out, it was so worth it. It was such a positive experience and I’m looking forward to seeing where this research leads.
Category: event, identity Tagged: anna remington, asd, autism, autism awareness, autism in education, autism in employment, autistic, autistic adult, autistic spectrum disorder, centre for research in autism and education, crae, education, employment, new scientist live, perceptual capacity, science, science behind autism, ucl
Posted on September 15, 2018
As you guys have probably guessed, I’m a stationary enthusiast and over the years, I’ve gone through many, many notebooks and diaries and planners. I’m pretty picky about the kind of books I like and that’s probably why I’ve never found a planner that really works for me. The layout didn’t work or the writing spaces weren’t big enough and so on. So I was always on the lookout for the right one.
I started looking into bullet journaling after seeing photos and videos of bullet journal ‘spreads’ on social media: pages to track spending, sleep, mood… As well as monthly and weekly logs to keep track of what they were doing. It seemed to be a way of creating a very personal, tailored planner and that appealed to me, although I’m definitely not artistic enough to compete with the ones I’ve seen on Instagram and YouTube. But since it seemed to work for so many people, I thought I’d give it a try.
A lot of thought went into the bullet journal format (the official website is very informative) but in short, it’s a flexible system to “track the past, organise the present, and plan for the future.” Most people seem to use dotted notebooks (like the ones that Leuchtturm make) and dedicate pages to calendars (future log, monthly log, daily log) and trackers (habits, sleep patterns). I’ve found this incredibly helpful so I thought I’d share how I use it. Maybe this would be more easily done in video format but here we are.
At the beginning of the year, I bought a Leuchtturm notebook (dotted, navy blue, A5 – available here) and got to work. I looked at photos on Instagram and watched a tonne of videos on YouTube (AmandaRachLee is my favourite) and that really helped me to figure out what bullet journalling could be for me. I set up the index at the front and created several general spreads, including my new years resolutions, all the birthdays in the year, books to read, and things to watch. Carrying all of this around is so helpful and it has definitely made me more organised. And motivated.
One of my favourite spreads is the one for blog post ideas (and it actually spilled over into a second spread because I ran out of space). I find it so inspiring and motivating to look at. I’ve always been a list maker and I LOVE being able to tick things off a list; I’m always more motivated and productive when I’m working from a list. Having all of these ideas in one place has made blog writing much more efficient.
Many people do a monthly mood tracker but I did one for the whole year because I thought it would be easier to detect any trends in my mood and compare month to month. If I could do it again, there would be less categories. It took a while to figure out how broad each emotion had to be and as someone who feels emotions (and their subtleties) very strongly, it was very easy to create more categories than I necessarily needed. And I think a smaller spectrum of colours would make the whole thing clearer.
I found this particularly helpful when trying to judge my reaction to a medication: I could literally track my mood through each dose increase and assess how helpful it was. Sometimes it’s easy to get lost in one side effect or judge it based on the most recent feelings rather than the overall experience. So it was really helpful in regards to that.
Now to the month-to-month, week-to-week stuff.
It’s pretty standard to do a monthly log: a month at a glance of sorts so that you can see everything you’re doing during that period of time.
One thing that I love about bullet journalling is that you can refine your style and system as you go, to make it more useful to you. I went through several different layouts before I found the one that really works for me, at the moment at least. And you can be as creative as you want or feel capable of being. I’m not very artistic – in the drawing/painting sense of the word – but it’s been fun (and oddly empowering) to try my hand at something I don’t usually do.
Again, it took me a while to find a weekly set up that I liked. But I really like the one I’m using at the moment. It’s simple and quick to fill out and not overwhelming to look at.
The official bullet journalling style involves a system of categorising all the information (tasks, events, appointments, etc), checking off tasks, ‘migrating’ them to a later date… Personally I found it overcomplicated and just not necessary. I know that there are people who like it, people who don’t, and people who have either simplified the official key or created their own version. But this is what’s great about this whole format: you can tailor it to what you need.
And lastly, I’ve recently started using trackers as part of my monthly set up. I kept the list of tracked things short so that it was actually doable and I ended up finding it really useful. Having that list of things written down made it easier to remember to do them and to build the habit. And as I said, I love ticking things off a list so the idea of filling in the boxes at the end of the day was really motivating.
So I hope this was interesting. If any of you guys use bullet journalling or any other system for organising your life, let me know what works for you!
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.