I Finally Left My House

On Monday, for the first time in over a hundred days, I left my house.

I was already self isolating when the UK lockdown went into effect. My university classes had moved online, I have friends and family that I could put at risk if I caught the virus, and it generally seemed like the safest, most socially responsible thing to do. Then the lockdown was officially put in place and it was me and my Mum in the house together. Struggling with Chronic Fatigue Syndrome, I don’t go out a whole lot because I physically can’t manage it but I had previously had university classes, seeing friends and family, and swimming at the gym (the only exercise that doesn’t cause me physical pain – probably because it’s non weight-bearing), all of which were suddenly gone. My Mum went out only to food shop and pick up medication prescriptions as necessary.

I’ve only been out once since then and that was to rescue my kitten who got stuck up a tree in a neighbour’s garden – we think she’d been up there for more than twelve hours. And when we did go to get her, all involved socially distanced and wore masks. It was stressful in the face of the virus but my kitten would not come down  by herself and we were all getting really worried about her.

Ever since then, I’ve stayed in the house. My mental health has been a monumental struggle during this time, especially my anxiety – to the point that something as simple as laughing from outside or looking through the window at the street can cause severe anxiety and autistic meltdowns. And the longer this goes on, the worse it’s getting. I’m in contact with my psychiatrist, taking my medication, and having online sessions with my therapist but I don’t feel like it’s making much difference to my anxiety.

The easing of lockdown only increased my anxiety. With the scientists and Public Health England still warning of the dangers of Covid, it seemed (and still seems) incredibly irresponsible of the government to be making such changes. When it was announced that hairdressers would be opening on the 4th July, my anxiety sky-rocketed. Ever since the pandemic began moving into Europe, my Trichotillomania has escalated dramatically. It’s been a problem for years but with the recent extreme levels of stress, I’m now pulling my hair out more than I ever have. It’s not only causing pain in my scalp and damage to my hair, it’s also causing terrible pain in the fingers, hand, arm, and shoulder on the side I pull from, as well as tingling and numbness that often doesn’t pass for most of the day. So while I did, of course, want a hair cut (as I think everyone did), I was also desperate for advice and help with this problem. Plus, I go to an independent hairdresser and wanted to support them.

But despite all of that, I just as desperately didn’t want to go. Even with the all the strict safety measures they’d informed their clients of, I still felt overwhelmingly unsafe going out, especially into town. To make it feel more possible, we spoke to them and they arranged my appointment to be as stress free as they could possibly make it: we cancelled the colour to reduce my time there (it felt unnecessary as it was something I could do at home – I’d booked it way back when when it had looked like it would be (or feel) safer, they scheduled my appointment first thing on a Monday morning so the environment would be as clean and safe as possible, and they were happy to have my Mum come with me in case my anxiety got too bad. When we made those arrangements, it felt as good as I thought it was ever going to  and we moved on, the appointment still a few weeks away.

But as it got closer, my anxiety grew and grew until I was having panic attacks over it. I didn’t want to go. I really, really didn’t want to go. It felt so unsafe to be going out, even with a mask, gloves, hand sanitiser, and safety measures in place. I didn’t want to go. The anxiety was unbearable and I had multiple awful panic attacks.

In the end, my anxiety just wiped me of all my energy and on the morning of the appointment, I just didn’t know what to do. I had nothing left. So Mum took over, got me up, and took me to the appointment. Even being outside felt terrifying: I felt so unsafe and exposed and vulnerable. We got there and the hairdressers was almost empty, as planned, and my hairdresser was as lovely as always. I’ve been camouflaging my Autism and my anxiety for so long – I’ve spent my life building a mask to help me manage in difficult situations, something that I want to write about more in the future – that most people see the ‘usual’ me but in reality, I was so anxious that I felt like I couldn’t breathe properly (and that had nothing to do with the facemask). I almost destroyed the fidget toy I’d brought with me and the whole experience was just exhausting. It felt like it only added to the trauma of the pandemic and lockdown.

(I do want to make it absolutely clear that that has nothing to do with them as people or a business. It was all about going out and feeling so unsafe outside my house.)

My hairdresser is awesome and so lovely and we had a good conversation about the condition of my hair and the textures that trigger my pulling. We talked about what might improve the condition of my hair and therefore lessen the textures that trigger me, which products might be helpful. So we’ll see how that goes. And simply cutting off the dry ends of my hair will hopefully help with the pulling too.

We were there less than an hour but I was completely exhausted. I was barely functional all day and ended up falling asleep on the sofa at about 10pm, hours earlier than I usually get to sleep at the moment. And it’s taken days to regain enough energy to concentrate and actually do things again. Even now I’m not sure whether I made the right choice or the safest choice but it’s done and I can’t go back and change it. Several people have said to me that going out would make going out again easier but if anything, it’s made it feel even scarier so, for the moment at least, I’m not going anywhere.

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The next challenge, I guess, is when gyms reopen. As swimming is the only non-painful exercise I can do, my exercise has been severely limited during lockdown and on a personal level, I’m desperate to get back to it. I love it, I miss it, and I miss how it makes me feel, physically and mentally. But I just can’t imagine how on earth it can be safe. So there’s a lot of investigating to do, a lot of thinking and weighing the pros and cons to do. I’ve never been so jealous of people having their own private pools.

My When-I-Feel-Safe-Again List

I’ve seen a lot of people posting post-lockdown bucket lists recently and they’ve been really fun to see. It’s nice to see people excited about things. And it’s a nice reminder that there will be an end to this situation, to the restrictions, to the fear. I started writing my own post-lockdown bucket list but halfway through, I stopped and really thought about it all. I’ve mentioned before that I think the British government has handled this crisis appallingly and that I don’t believe that they’re acting in the best interest of the people; with the experts warning about a second wave, it seems incredibly irresponsible and actively negligent to start lifting lockdown. Me and my family have discussed this a lot and have decided to follow the scientific advice, rather than the government’s advice. So I changed my approach to the post and renamed it my ‘when I feel safe again’ list.

So these are the things I want to do as soon as it feels safe enough to do them:

  1. Hug people – I’m a hugger and I always have been so not being able to hug my loved ones has been really hard for me. I’m grateful for the technology that allows me to see them and for the restrictions loosening enough that I can even see a couple of them in real life but I really, really miss being able to hug people.
  2. Write songs with people – While it has technically been possible to cowrite using video calls (which I have done a couple of times), I do prefer writing in person. I find it more productive, more collaborative, and just more fun. So I’m really looking forward to hanging out with other writers, bouncing ideas back and forth, and writing songs I’m proud of.
  3. Hang out with people in real life – As I’ve already said, I’m grateful for the technology that has allowed me to stay in contact with my friends and family, some even in other countries, but I miss seeing people in real life. I find video calls exhausting: I’m sick of looking at and getting distracted by myself throughout conversations, I find the lack of background and body language frustrating, and the constant reminder of how different everything is really triggers my anxiety. So I can’t wait for normal life to resume enough that I can see my friends and family like I did before the pandemic.
  4. Go swimming – Swimming has always been my favourite form of exercise, as well as something I just generally enjoy. It makes me feel really good and an early morning swim always sets me up for a good day. I’m looking forward to starting my days that way again at some point.
  5. Go to concerts – This one is probably going to be a really long time in coming because of all the difficulties they pose (lack of social distancing, usually indoors, etc) but I’m looking forward to it nonetheless. Concerts make me feel alive and just fill me with complete joy and I miss that feeling. I miss seeing the artists that have had such an impact on me in real life and I miss celebrating the music I love with my friends and loved ones.
  6. Go on long drives listening to music – I’ve always loved getting in the car, settling in for the long haul, and blasting my favourite songs one after another until we (me and whoever I’m travelling with) arrive at our destination. It’s so fun to turn up the volume and sing along with all you’ve got and since there have been restrictions on the distances we can travel, I haven’t had one of those drives in a really long time. I didn’t realise how much I’ve missed them until I started making this list and now I’m just really looking forward to those drives again. I think that first one will probably be one to remember.
  7. Finish my bedroom – I’ve been using my time in lockdown to rearrange my room and make the most out of the space. I’ve managed to do a significant amount myself, with the help of online shopping and home delivery, but there are still several things I’d love to change that are best left to the professionals, something that obviously isn’t necessary and will therefore wait until it’s safe. Until then, I’m fine living in an unfinished space; I’ll just be really happy when it can all be finished.
  8. Go back to university – As stressful as my Masters can be, I love it and I really don’t want to finish it remotely, especially as it’s such a practical course. I’m aware (and terrified) of the warnings of a second wave but I really, really hope I’ll be able to complete the course at least partly in person. I really don’t want to do it all online and I really don’t want to defer. I love being part of a group: cowriting, sharing songs, and giving feedback. Plus I’m not sure how well I’ll be able to do with the pandemic hanging over my head and still significantly impacting my mental health.
  9. Get back to playing shows – This is another one that will definitely be a while but I love performing. It’s when I feel most truly myself and I get such a high, one that overpowers all the negative stuff. We don’t know what the music industry and performing opportunities for new artists are going to look like on the other side of this but I have to be optimistic that it will eventually start happening again, even if it does take some serious time.
  10. Get drunk with Richard – This is only a recent plan. I’ve never been a drinker, in large part because I’ve always been on medication that has strongly advised against consuming alcohol. I’m gonna do my research but I think it’ll probably be fine as long as I don’t go overboard. Richard and I were on FaceTime recently, complaining about missing each other, and I randomly suggested we get drunk when we can see each other again. These last months have been so… indescribably strange and hard and unpredictable so it feels kind of right to do something weird or at least out of the ordinary to mark our reunion. Richard described a Harry Potter drinking game to me; two ‘drink when…’s in and I was sold. So I’m looking forward to that.
  11. Getting my hair dyed professionally – While I’ll probably have my hair cut sooner than I wish I had to (there’s a real chance that that could help with my hair pulling, which is causing all sorts of other problems), I’m definitely waiting to have my hair coloured at the hairdressers until it feels safe and not irresponsible to do so. That’s not a reflection on my hairdressers because I truly don’t believe they’d open if they didn’t feel they could keep their staff and clients safe but with the amount of time it takes, I’d rather home dye my hair and keep the risks as minimal as possible.
  12. Do karaoke with my best friends from my course – On our last video call (after watching Isn’t It Romantic), me and my two best friends decided that we have to go and do karaoke together. I’ve always found the idea quite scary, like I’ll be judged for my song choices or for making mistakes, but with these girls, I just feel like I’ll have a complete blast (we’ve previously discussed having a learn-to-wear-high-heels-again party where we don’t actually leave the house but stumble around in our heels like baby giraffes until we remember how to do it). I don’t think this will be possible for a long time, with enclosed spaces and singing being two big risks of transmissions but we’ll get to do it eventually and until then, we can enjoy dreaming about it.

Ultimately, I’m looking forward to feeling safe again and the resulting relief for my mental health. My anxiety isn’t going to recede from its overwhelming levels until then and only then will I be able to function somewhat normally again. I hope.

Plans For My Empty Semester

Because of the way my course is organised for part time students, I now have a semester without classes while the full time students do their third semester. I’ve been looking forward to this, not just to take a bit of a break but to work on new music with the skills I’ve learned, return to hobbies I haven’t had the time or energy for while doing the course, and to just generally catch up with things, be productive, and get some long awaited projects done. Of course, everything changed with the pandemic and subsequent lockdown.

So my list is different now, depending on what is possible and what isn’t. I’d started collating this list – this post – before lockdown was announced and I’ve been reluctant to simply scrap it all just because it no longer fits with the future I’d expected. So I thought I’d post it anyway, just divided into different categories, for posterities sake if nothing else. I guess I just want to remember what I’d thought this summer would be like versus what it ends up being like.

Impossible:

  • Get back to swimming regularly – That’s obviously not possible as all the gyms are closed.
  • Mental Health Awareness Week Assemblies – For Mental Health Awareness Week, I was supposed to go back to my old secondary school and do a series of assemblies, talking about mental health, my experiences with it, and play some songs. I was really looking forward to it but then we went into lockdown and schools had closed long before Mental Health Awareness Week.
  • London gigs – I was scheduled to play a couple of shows in London but they were cancelled due to lockdown. Hopefully they’ll happen when it’s safe again.
  • Concerts – I was due to see several shows over the summer including Taylor Swift at Hyde Park and The Shires in London and Brighton but they’ve all been rescheduled or cancelled. I understand it, of course, but I’m still gutted because I was really looking forward to those shows.
  • See Waitress The Musical again – I was hoping to see Waitress at least one more time before it closed but it’s run ended during lockdown and they’ve announced that it will not be returning. I’m so, so sad that I’ll never get to see it again. But I’m grateful that I got to see it as many times as I did and that the last time was Sara Bareilles’ last show. That made it extra special.
  • Get caught up with my photo albums – I’ve wanted to get my photo albums up to date for months but there’s a problem with the external drive that holds my Photos library and since all the shops are closed, including the computer repair shop I go to, I can’t get it fixed until they reopen and it’s safe to go there. And therefore I can’t catch up with my albums yet.

Difficult or Different:

  • Music Theory lessons – I had a plan to improve my knowledge and understanding of music theory during this time, to prepare myself for the next semester but now, my teacher and I can’t meet or even travel to meet for lesson. In theory (pun intended), we can still have lessons using Zoom or FaceTime but it’s definitely more difficult when we can’t sit side by side at the piano, when I can’t lean over to watch his hands, and when he can’t adjust my hands on the keys, and so on. I’m sure we can find a way but it’s definitely more complicated than it was before.
  • Have as many cowriting sessions as possible – I really wanted to spend as much time as possible writing with my friends and course mates. They’re all so amazing and unique. Of course, we can still write using Zoom and FaceTime but it’s not a creative process that I’m super comfortable or productive in. I’ve been doing some but I find them exhausting and just not as much fun as I usually find collaborating.
  • Catch up with my friends – To be fair, I have been catching up with friends but it’s obviously always over Zoom or FaceTime. We can talk and I’m grateful for that but we can’t hang out or hang out in groups and I miss that. I miss just chilling out together, doing things companionably, and my god, I miss hugging them.
  • Sort out my bedroom – This is another project I’ve wanted to do for so long and while there are still aspects I can do (and still plan to do), there are a lot I can’t, which is very frustrating.
  • Create my studio space – Again, this requires changes that aren’t possible right now because having aesthetic building work done obviously doesn’t come under the lockdown advice but there are things I can do and have started to do. Despite the difficulties, I’m creating a space to work – some of which will be permanent and some which are makeshift and I’ll change later when it’s possible – so it’s a start.
  • Create a space to make YouTube content – This project I have yet to figure out and I’m not sure if it’s even possible without certain changes in my room, changes that won’t be possible until life is more normal again. But I’m still turning it over in my head, how and where to create an aesthetically pleasing space to make videos from. So we’ll just have to wait and say when it comes to this one.

Still Possible:

I feel like it’s important to add an extra note to this one because, while all of these plans and activities are physically possible, they’re not necessarily possible. I’ve been seriously struggling with my mental health, especially with my anxiety and depression, and my creativity has taken a serious hit too. So, while I do want to do these things and they are within the rules of what’s allowed and technically possible, I don’t know if I’m going to be able to achieve them, or achieve as many of them as I would like.

  • Write new songs/work on old songs – I’ve been trying so hard at this and I’ve managed some but with my creative and concentration struggles, it takes a lot of hard work and is really emotionally draining. It’s amazing when I can break through the fog though.
  • Sort through my clothes – This is something I’ve started to do but it’s tricky because there’s nowhere to take the clothes I want to pass on. It feels good to be clearing out some of my stuff and creating some space though.
  • Catch up with my diary – I feel like I’m in a perpetual state of ‘catching up with my diary’ but I’d hoped to use this time with limited distractions to really get caught up. But with my concentration in such shambles, it seems to be taking even longer than usual, which is endlessly frustrating. I have to keep going though. My OCD doesn’t take a break just because there’s a pandemic.
  • Start learning the Kalimba – I bought a Kalimba and it was going to be a present to myself for finishing my second semester assessment. I love the sound and I really want to learn how to play but, as I’ve already said, my concentration and motivation haven’t been great so I’m struggling to apply myself to it.
  • See a meteor shower – I have technically done this one already but it wasn’t a very impressive show so I’m looking forward to the big one, the Perseids meteor shower, in August.
  • Update my songwriting book – My songs are all over the place (in various notebooks, my laptop, different hard drives, and random pieces of paper) so I’d really love to compile them all into one book, something I’ve just started to do.
  • Watch some of the things on my To Watch list – I’ve been trying with this one but I’m finding it quite difficult to watch new things. It’s like there isn’t enough space in my brain and I don’t have enough spare emotion to invest in new characters and a new world, etc. Does that makes sense? I’m going to keep trying though. I think it’s going to be a case of just hoping that the trying and a moment of feeling okay will coincide.
  • Improve my guitar skills – I feel like my guitar skills have come to a bit of a halt recently and I really want to get out of that rut and get better. I don’t feel the need to be the best guitarist in the world but I’d love to be proud of what I’m playing when I play solo, rather than feeling like I’m playing a really simple part just to accompany myself.
  • Start coming up with ideas for my Masters final project – It’s not for a while yet but I want to have some potential ideas for my final project so that I have time to think them over and make sure I choose something that’s a good fit, for the exam criteria but also for me as an artist. It will just make me feel more prepared and more inspired when the time to start arrives.
  • Improve my piano skills – Just as with my guitar playing, I want to get better at playing the piano. I love playing the piano but I still feel like a really basic player. I want to be able to play more interesting chords and progressions, with more interesting and unique rhythms and melodies.
  • Read some books from my To Read list – During my course, I don’t tend to have time to read anything other than course related material so I was really excited to read some different stuff, especially fiction. But as with watching new films and TV shows, it just feels too hard to learn a new world and new characters and concentrate enough to get through a book.
  • Take some classes on Skillshare – I love learning. I remember being a kid and someone asked me what I wanted to do when I left education and I was completely mystified by the idea that you’d ever want to leave education, ever want to stop learning (obviously you don’t stop learning things when you leave education but I was very little and that’s what I understood it to mean). I never want to stop learning things and I was excited about having a solid chunk of time where I could focus on learning things outside the sphere of my Masters, as much as I love my course. Having said that, it’s hard to take in new information when I’m struggling with my concentration.

Uncertain:

  • Shooting a music video – It was during this time that Richard and I had planned to shoot a music video and now we don’t know when we’re going to be able to do it, given how far apart we are and the infection risk of travelling there. In theory, we’d be able to do it socially distanced so if we can figure out how to get the two of us there, then we might still be able to create the video I’d always imagined for this song.
  • EP gig – I really wanted to throw an event (a gig and a party rolled into one, I guess) to celebrate the EP and all we achieved with it but I don’t know when gigs are going to be allowed again or, more accurately, when they’re going to be safe again so I’m not whether this plan is possible. I don’t want to do it until it’s completely safe but I also don’t want to wait until months after the EP is complete to have this event. So I’m not sure where we stand with this plan.

I truly have no idea what the next few months will look like (especially with the government making a mess of everything, especially the lockdown) so I don’t know how many of these things I’ll be able to accomplish. Each day is unknown and that’s both terrifying and exhausting. I think that, whether you’re a person with mental health problems or not, just getting through this period of time (and managing your health – physical, mental, and emotional) is achievement enough. So I guess, when the next semester starts, I’ll look back at this post and see what I managed to do while keeping that in mind.