Posted on April 4, 2020
A while back, I had a reading week as part of my university semester, where classes don’t happen and we stay home to focus on our studying. Being a part time student meant that it wasn’t much of a change as I’m only at uni one day a week but not having to expend the energy that that requires allowed me to do more, both in terms of uni work and in other areas. Yes, I researched for my essay, prepared for a presentation, and wrote songs, but I also did a whole bunch of things for my job as a singersongwriter.
I got up, did my hair and makeup, and caught a train to London. I’d booked a slot at the Selfie Factory at The O2 Arena, thinking that Richard (Richard Marc, who also does all my photography – he’s a photographer as well as a writer, musician, and producer) and I might get some good social media content. I get very self conscious having my photo taken but I’m trying to get over that anxiety and it looked like fun.
I used the train journey to send a load of emails, which made good use of the time, and then I met Richard at The O2. The Selfie Factory was small but it had some really fun set ups and we had great fun, especially in the ballpit.
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We got some nice photos and when our time ran out, we headed home. Again, I used the train journey to be productive and worked on a rough script for my university presentation – we all had to give presentations on our essay subjects the next week when we were back in regular classes. I’d already made the slides with the information but I wanted a rough script to keep me on track and provide extra information.
I got home and, even though I was exhausted, I practiced several of my songs as I had a recording session coming up later in the week that I needed to be prepared for. I wasn’t super familiar with the arrangements of the songs I was singing so it was quite hard work but I definitely made progress, getting used to the rhythm and melody. It was a good practice.
I started the day with another big batch of emails: uni stuff, music stuff, gigging stuff.
That took an hour or so and then I spent the rest of the day doing research for my assessment essay. There’s not much to write about here really; I just read relevant sections of books, read articles, and pulled useful quotes, putting them in separate documents to keep everything organised. This session was focussed on imagery, specifically in songwriting, obviously. It’s surprising how few books on songwriting go into any detail around imagery.
At least I had some good company (and entertainment).
I had a gentle evening, working on a blog post and watching old episodes of Grey’s Anatomy. There’s something very comforting about the familiarity of them and the time when I first watched them.
I spent the morning practicing for the recording session, going over the songs, and then, after lunch, I had an appointment with my psychiatrist.
The practice had moved since my last appointment so there was an element of anxiety about going but it was okay and turned out to be a really productive session. My psychiatrist agreed with my decision to come off the Aripiprazole, since it clearly wasn’t working, and we discussed what else we could try to help with my anxiety. We also talked about what could be causing my drowsiness and decided to try reducing my Pregablin as it’s clearly the current medication situation that’s causing it. So we’ll see how that goes. And considering we’re changing that, we decided to stick with the Diazepam for my anxiety so that we’re only changing one thing at a time and can clearly see the results. Otherwise you can’t tell what’s causing what. So that’s progress and we’ll just have to see what the effects are.
Late in the afternoon, I caught a train up to London in preparation for the recording session the next day, using the time to do some more reading for my essay. My frequent train journeys are great for any reading I have to do for my course. From Victoria, I made my way to where I stay in London: the flat belonging to one of my parents. I was suddenly, out of nowhere, overwhelmed with anxiety and although I took Diazepam as soon as the feeling started, it obviously doesn’t kick in straight away so I spent most of the journey talking to said parent, a mix of distraction and reassurance. I’d just started to feel calmer when I got there.
We had dinner together and then I spent the evening in the pursuit of catching up with my diary. It feels like a hopeless task; I’m so behind, what with the time taken up by uni work and managing my mental health. I’m hoping to catch up once I’ve submitted my essay. It’ll take a while though.
I slept terribly. So terribly that I barely got any sleep at all, the worst I’ve slept in years. Maybe I was nervous about the recording. I finally got a solid hour or so just before my alarm went off. But it was an important day so I dragged myself up, got ready, and headed to the University of West London where we were using one of their studios to do the recording.
It was a beautiful studio and we had a lot of fun. Having said that, we worked bloody hard. We worked from about eleven until six, filming and recording for a project that I’m not going to talk about yet. It’s a surprise. It does mean there’s not a lot for me to write about, other than the fact that I’m super grateful to everyone (all tagged below) for the work they put in. I really, really appreciate it.
When we finished, I was so tired that I thought I might throw up. I manage to help pack up a little but eventually I just had to leave. I felt bad for not staying to the very end but everyone was very understanding. I got home and barely made it through dinner before falling asleep at about half past eight.
I slept for twelve solid hours and woke up feeling like an entirely different person. Still, I had a slow, gentle start. I had breakfast, got showered and dressed, and did some reading for my essay.
Around lunchtime, my Mum arrived, on her way home from visiting her Mum (this was when we still thought we were going to Nashville and she’d obviously wanted to spend some time with her before we went). She’d stopped in London because we had a plan to have lunch with one of my best friends, Sharné, and her Mum, who had come to visit her. The four of us had hoped to spend a little time at the songwriters circle I’d played (the one I mentioned in my previous A Week in My Life post) but it was busy and loud and it just wasn’t the right setting. So we’d planned lunch at this awesome Italian restaurant.
It started out quite stressfully due to pouring rain and terrible traffic but once we were all together, it was lovely. They’re both so lovely. We all got on really well and have a lot in common; it was just unfortunate that we didn’t have longer. Hopefully we’ll get another chance at some point.
We said goodbye and me and Mum headed home to Brighton. When we got in, I curled up on the sofa with a couple of the cats and had some diary time. I was exhausted and really just needed some quiet, rest time.
Richard came down first thing because we were performing at the Access Open Day at The Brighton Dome. We picked him up from the station and went home so he could drop off his stuff and we could have a quick run-through, especially of the songs that we’ve only just started to perform like ‘Clarity.’
We headed to The Dome and had everything explained to us, where we could store our stuff, hang out between sets, and so on. We were playing once at 12.30pm and again at 2.15pm so we’d have time to kill between sets. There were other talks and activities going on but I’m never able to concentrate when I’m about to perform.
Both sets went really well. I felt like my voice sounded really good, I didn’t make any (obvious) mistakes, and I felt really confident in my body and how I was moving as I performed. I’ve done a few gigs recently but before a couple of months ago, it had been a long time since I’d performed so it’s felt a bit like starting all over again. But this felt completely natural and quite possibly the best I’ve ever performed. I’m just sad more people didn’t see it because they were performances I was really proud of. But I had a great time, telling the stories behind the songs and singing my heart out. It felt so good. And that’s the important thing.
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I felt very lucky to be invited to perform in the foyer of The Brighton Dome twice today for their great Access Open Day event, an event for people with disabilities. And what was especially magical is that that was the first place I ever performed, with barely enough original material to fill the time. Eighteen year old me was quaking. Twenty five year old me was having a blast.
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This is a picture from the first time I played there:
When we got home, we were both still buzzing with adrenaline so I suggested we write a song since we’re not getting a whole heap of opportunities to write together at the moment with both of us on Masters courses. So we got to work and managed a track and half a song before we ran out of energy. It was really fun and I’m really excited to finish it.
And before the day was up, I put up a blog post as I always try to do on a Saturday. This one was the one about February Album Writing Month, where I tried to write fourteen songs in the month of February. I’m proud of succeeding in the challenge and proud of the post I wrote about it.
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NEW BLOG POST! My attempt at February Album Writing Month… Link in my bio! // “FAWM or February Album Writing Month is an annual songwriting challenge where participants must try to write 14 songs in the 28 days of February. I’ve been attempting this challenge on and off for several years now and I’ve only achieved it once, which was helped by my BA in Songwriting requiring me to write three songs a week (roughly).”
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We had an early dinner and were basically falling asleep on the sofa so we dragged ourselves up and went to bed early. I was asleep within minutes.
We had a gentle morning, watching Friends together and companionably working on different things. I finished a blog post and put it up, #30dayfeb Challenge For Tommy’s. It covered my attempt and completion of Liberty’s Mother‘s challenge to do something positive for your wellbeing from the 1st February to the 1st March. I’d chosen origami.
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NEW BLOG POST! A challenge to raise awareness about baby loss and money for the charity, @tommys… Link in my bio! // “So my university tutor/friend/mentor/super inspiring person, Sophie Daniels, ran a challenge throughout the month of February (including the 1st March to create 30 days) under her artist project name, @libertysmother, about doing something positive for your wellbeing every day for the thirty days.”
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Richard went home because I had a few things to do, as much as I would’ve liked to have him stay and work on the song and chill out together. So we dropped him at the station, came home, and I got to work, practicing my presentation for the following Tuesday. I was confident with the material and the questions I wanted to ask; I just wanted to make sure it was within the time limit. So I ran that a few times and then spent the rest of the day resting. I also have dinner with some of my family on Sunday nights (when we can manage it) so that was really nice.
So that was my reading week. Not as productive uni work wise as I would’ve hoped – I wanted to have started writing the essay rather than still adding research to my structure – but it was very productive in the working-as-a-singer-songwriter sense. And those opportunities don’t come around super often so I’m really grateful for them. So it was a good, if exhausting week.
Category: animals, anxiety, book, event, medication, mental health, music, sleep, treatment, university Tagged: 30 day challenge, 30dayfeb, a week in my life, anxiety, aripiprazole, best friend, blog post, blogging, cat, cats, challenge, coursework, diazepam, drowsiness, essay, farm 2020, fawm, february album writing month, friend, medication, mental health, mental illness, origami, performance, performing, pet, pets, phenelzine, photoshoot, pregabalin, presentation, psychiatrist, reading week, recording session, recording studio, research, richard marc, richard marc music, richard sanderson, selfie factory, side effects, singing, sleepiness, songwriting, songwriting challenge, studio, studying, university
Posted on March 7, 2020
So I thought it might be fun to document a week in my life, both as a person with mental health problems and Autism and as a person doing a Masters in songwriting. So recently, for a week (one of my more interesting weeks), I took notes on each day so this is those days collated, a week in my life right now.
My Monday started at home in Brighton (doing origami for the #30dayfeb) but I was hugely nervous (and excited) because I was playing my university’s songwriters’ circle that evening. And what made it extra special was that it was the LGBTGIA+ History Month Special. I proudly come from a proudly LGBT family and identify as queer myself, although that label is as far as I’ve gotten. When your mental health and Autism take up your whole life, there’s not a lot of time for figuring out your sexuality. I haven’t talked about sexuality on here much because I felt like I needed to know specifically what I identified as (gay, bisexual, pansexual, asexual, etc) before I said anything but now I’m thinking that not knowing yet is also important to talk about. I don’t want to do too much of that here though because I think it deserves its own post.
Anyway, I was nervous but also really excited.
I caught the train to London and the tube to uni where the songwriters’ circle was being held. I met Richard (Richard Marc, my best friend and writing partner) there and we practiced for a bit: we were playing a song we’d never performed before. So we worked that out, ran through it until we were confident with the performance, and then went to get food before going back for our soundcheck. That went well and we met everyone else who was playing; they were all absolutely lovely.
The special guest was an alumni, RIS, described as: “an up-and-coming Sofia-born electropop artist based in East London. The queer singer-songwriter’s brooding vocals bring euphoric melodies to life over dramatic alt-pop tracks, rich with sizzling synths and sonic ear candy.” They were really lovely and I absolutely love their songs: I can’t wait for them to release more.
The other students, Lea Frances, Francesco Pio Ricci, Becky Kerly, and our host tutor, Anjali Perin, were all amazing and interesting and different and it was a really incredible experience to be a part of. You can actually listen to the whole circle here and hear everyone’s beautiful music and stories. There’s something strangely spiritual about a songwriters’ circle and I hope you can feel that without actually being there. Speaking for myself, it felt magical and exactly how songwriting and songwriters’ circles should feel: a coming together and sharing of stories, of songs, and of souls. And holding it in a music university, getting a sing-a-long isn’t difficult and that’s one of, I think, the most special things you can experience as a songwriter, as a performer. The whole event was so wonderful and I felt so lucky to be a part of it.
My lecture didn’t start until eleven so I got a bit of a lie in after the late-ish night and all of the emotion but then I had a bit of a headless chicken morning, running around, back and forth, getting ready and packed up for uni. But I made it on time, a little early even so I got to chat to my friends. It felt like a very weird morning: I just felt super emotional and like crying at every little thing. It was hard work to stay composed.
The lecture covered the grading criteria for the assessment essay, which was really helpful. I find the language really confusing so going through it with a tutor explaining it in detail and in real, human language made is much more accessible and easier to understand.
But the main part of the lecture focussed on Max Martin – we cover one songwriter a week and look at techniques they use and so on. It’s really interesting, especially because they’re all really different. So, for Max Martin, we focussed most on melody, syllable count, and melodic math: a device used to make melodies really tight and memorable. It was fascinating, especially to someone who puts lyrics before melody. I don’t know if I could ever do it consistently because lyrics are so important to me but it’s definitely something I’d be up for trying out, just to see what the result sounded like.
Then I have a four hour break before the next class but I spent some of it hanging out with my friends, an hour at a meeting about the upcoming Nashville trip, and then two hours writing with one of my best friends on the course, Luce, while our other friend, Sharné sat in the room with us and worked on some of her own work. We worked on a song for a couple of hours, getting quite methodical and looking at the deeper message of the song and so on but I don’t think either of us were in quite the right frame of mind to write so the three of us just ended up talking. They’re such lovely people that talking with them, whether it’s about random stuff or intense, emotional stuff, the conversations mean a lot to me.
The second and final class of the day was the workshop, where we play songs we’ve written based on the previous week’s artist’s techniques. A lot of people don’t turn up, presumably because it’s not assessed and they need the time for other things, so it was just me, Luce, and Sharné, which was actually really nice. There was a lot of time for feedback and I really enjoyed working on their songs and my song more intensely than we would usually have time for. They had both written great songs, both of which I really loved.
My only complaint about the classes is how cold the classrooms are. They’re absolutely freezing, so cold that we’re wearing our coats, scarves, and gloves in class. The air conditioning is on even in December and January. We’ve asked them to turn it off but there’s been no change. Especially on a day when I was very emotional, being so cold just made me want to cry.
Fortunately, my Mum was working in London and the end of our days coincided so she picked me up and we drove home together, catching up about our days. We got home and I was so exhausted that I went straight to bed. It had been a long and emotional couple of days.
After my busy Tuesdays (and this busy Monday), I take Wednesday as a rest day. And I tend to work on at least one weekend day. I might technically be doing my course part time but I have to be very flexible about the way I work because of Autism and mental health problems cropping up and making work difficult. I can’t write a song or research an essay if I’m recovering from a meltdown for example. It sucks, because it means I have to plan my life very carefully to allow for these problems but also be very flexible in case they do. It’s so frustrating. I hate it.
I did my origami and then spent the day bouncing between writing my diary and the continuation of moving my songs all into one notebook. They were very calming tasks. I tried to work on a song but just couldn’t make my brain work (I think I was too tired) and then, when I gave up, I lay down on the sofa and accidentally had a three hour nap.
All of the cats!
I finished the day having dinner and watching Law and Order: Special Victims Unit with my Mum (it’s the show that just the two of us in the family watch). It was very relaxed and really nice to spend some time with her.
I had had serious anxiety about the work I have to do all day but had been managing it with Diazepam. It’s something I deliberately try not to think about on rest days because they’re my weekend where I have fun or recharge. I’ll spend the other days of the week working on those things but rest days are for resting. It’s still hard to shut off that anxiety though, even with the Diazepam.
As had become my pattern, I started my day with my piece of origami for #30dayfeb. On this day, it was another bird. I did a lot of birds. They were pretty and not too challenging (I wanted challenging but some of the origami tutorials I watched were virtually impossible for a beginner like me).
Most of my morning involved going to therapy. It ended up being a very intense, upsetting session – therapy can be a bit of a funny paradox because if you leave feeling exhausted and drained, chances are you’ve worked really hard and done some important work; you’ve just got to look after yourself afterwards. We were talking mainly about a difficult relationship in my life and how to handle it as well as my OCD and how it’s affecting my Masters work. Trying to control it enough to get the work done is gruelling and exhausting and sometimes it feels just too hard. It spiralled into harder and harder stuff and I ended up in tears. Getting myself together to leave was a struggle. And then, to make things worse, the cab I needed to get home didn’t turn up and I was left waiting in the rain for half an hour, until my therapist came to check on me. She lent me her phone and I called another one.
I eventually got home and called my Mum at work, sobbing down the phone because it had been just too much after a difficult session. Plus changes in plans really throw me. Talking to her managed to come me down a bit and I felt a bit better when we hung up. I was tired enough to sleep but my brain was whirring too fast so I was still awake but groggy when Mum got home.
We had some dinner (and some red bull) and caught the train to London. We were going to see Waitress again, mainly so that I could try and meet Sara Bareilles after the show. She’s had such an impact on my life that I just really, really want to meet her and thank her. And getting to see the show again isn’t exactly a hardship. I love the music, the cast is fantastic, and the story always inspires me; it makes me feel like I might end up happy, even if it’s not in the way I expect or currently want it to. That’s big for me. And Sara is just amazing. She just is Jenna. She’s plays the part like it was written for her and she sings like Jenna is a part of her. ‘She Used To Be Mine’ is one of my favourite songs ever and there’s something magical about hearing her sing it live. This show is so important to me and it always will be.
We rushed outside to see if I could meet her and we met some of the other cast who kindly chatted with us and signed my ticket but Sara herself didn’t appear. After a while, the security guard said she’d left but I was reluctant to just go, having been told the same thing in the past and gone home only to see people posting selfies with her on Instagram. But this security guard had been really nice to us earlier in the night – so I felt I could trust him and his explanation – and he told us that she had an early engagement the next day and so she’d had to leave straight away (as it turns out she was on This Morning the next morning so it was entirely true). So we went home. We have one more opportunity to meet her before her run ends so hopefully I’ll get to meet her then. I know a lot of people don’t get my dedication to seeing shows more than once (I often get overwhelmed mid show and so seeing them multiple times allows me to get the full experience – and why would you not want to see a show you love more than once, especially if it’s only on for a limited time?) and meeting the artists but they’ve really shaped my life and therefore become part of my life so it feels important to connect, even if in the tiniest way.
Marisha Wallace (who plays Becky – she has an incredible voice and is utterly hilarious) signing my ticket.
We caught the train home and fortunately got back not too late, considering we’d waited afterwards (I appreciate that they hadn’t just left us waiting in the cold). I went straight to bed and was asleep in seconds.
I did my origami (an apple) and then spent the morning doing some reading for my Masters, working on my songwriting book when I needed a break. It was very gentle and chilled after the emotional day and late night from the day before – the perfect antidote.
Lucy keeping me company.
I had a late shower but ended up sitting on the bathmat, sobbing because there’s just so much sadness in me. There’s so much sadness, past and present, happening in the world and to the people I love. It overwhelmed me and I just got so upset. It happens sometimes, quite a lot in fact. I’m an emotional person but I’ve been particularly emotional recently.
In the afternoon, I had an appointment with the doctor. Mum always comes with me to these appointments, especially with doctors I’m not familiar with (the Autism specialist doctor has been away), in case I get overwhelmed and because she knows my mental health and Autism history really well, sometimes better than me. We talked to the doctor about the pain I’ve been having from my fingers to my shoulders (I was, at that moment, having some really bad pain in my hands and left shoulder), which is obviously cause for concern. We talked about support for people with Autism, which there still seems to be a distinct lack of, plus several other things. I found it very unhelpful and distressing but Mum seems to think that the information we got, good and bad, means movement – in her plans and research, I suppose. So I guess that’s something.
To cheer me up, we went home via the nearby pet shop. We need to replace the cat tree/scratcher so we went to look at the ones they had and there were some possibilities but we need to do some measuring before we commit and buy one. But we did buy a couple of little cat toys, mainly to make me happy: a little unicorn and a little Grumpy Cat (we try to avoid buying toys that look like real animals so that they don’t give us a huge shock, thinking the cats have brought in a mouse or something). They’re really cute.
The unicorn toy and the Grumpy Cat toy.
Then we came home and had a gentle evening. I did some reading for my essay and then me and Mum had dinner in front of SVU. When I finished eating, I did some diary writing. It was an attempt at calm but I was still very anxious, even taking Diazepam. I’d intended to go to a friend’s gig in London but I just had too much pain in my hands, arm, and shoulder that I just couldn’t do it. I felt so bad because it’s been so long since I’ve been to one of her shows and I felt like a bad friend for ‘not supporting her.’ I could’ve managed the show but the travel just made it too much. I felt really guilty for not going, something I struggle with a lot – guilt, that is. So it was a difficult evening.
I spent most of Saturday songwriting (after doing my origami). I tried to write both with a pen and on a computer – diary, blog writing, or research – but my hands felt thick and stupid (which we think was a side effect of a medication I’ve now stopped taking since it wasn’t helping and there were too many side effects – none of them serious but all of them unpleasant and unhelpful) so it was a real struggle. Playing piano was really the only thing that wasn’t difficult in that sense and so I spent a lot of the day playing, writing, and editing songs, several of which I really like.
I also put up my blog post about Lucky, which I’m really proud of.
Me and Lucky on Christmas Day with his new toy.
Me and Mum spent some time in the afternoon and early evening talking about a presentation I have coming up, talking rather than writing since my hands were still struggling. Then we had dinner and watched some TV together. I ended up falling asleep on the sofa at seven because I was so exhausted by everything going on and Mum had to all but drag me off the sofa and steer me to bed.
I woke up stupidly early (at half past four) and couldn’t go back to sleep as hard as I tried. Eventually I got up and moved to the living room, putting the TV on low and getting to work: sending emails, social media messages, and so on. I’m better in the mornings, more awake and less anxious, so those things feel easier. I organised my diary and did some blog writing. It was a productive start to the day, despite the painfully early start.
Mouse keeping me company while I worked.
Once Mum was up and we’d had breakfast, we did some house jobs (such as fitting the new cat flap) and I talked to a friend who was very upset before getting down to work on my presentation. I’d been talking to various people since it was set as an assignment so I felt prepared when I sat down to make the presentation slides. I spent the day working on the slides and beginning a script for what I was going to say.
In the evening, I ran it past Mum (who does a lot of presenting as part of her job) and she critiqued it for me. Then one of my other parents came over and we had dinner in front of Tim Minchin’s Orchestra Tour DVD. He’s truly an incredible musician and performer.
It was a productive day and I went to bed as late as I could manage – about ten o’clock – and took a sleeping pill to make sure I got a good night’s sleep.
I hope that was interesting, that it gave you a glimpse into my life. Let me know if you want more of these because it was definitely interesting to write.
Category: about me, animals, anxiety, emotions, event, favourites, medication, mental health, music, ocd, sleep, therapy, treatment, university Tagged: 30dayfeb, anjali perin, anxiety, aripiprazole, asd, autism, autism spectrum disorder, becky kerly, blog post, cat, cats, chronic fatigue, chronic pain, day in the life, dbt, dialectical behaviour therapy, diazepam, doctor, dog, francesco pio ricci, grief, lea frances, lgbt, masters, masters degree, masters degree in songwriting, medication, mental health, mental illness, obsessive compulsive disorder, ocd, origami, pet, pets, richard marc, ris, sara bareilles, self care, sleep, songwriter, songwriters circle, songwriting, therapy, university, waitress, waitress the musical
Posted on February 29, 2020
After my last post, I was scrolling through my YouTube ‘Watch Later’ playlist when I saw this video. It may have been masochistic but I watched it and thought it might be relevant to post here, especially after my last post.
Our experiences (my recent experience at least) are very different as her cat was ill for an extended period and Lucky, although struggling physically, was happy and engaged and as healthy as an old dog could be until the night before. There wasn’t really time to come to the decision comfortably (or as comfortably as possible) but, for me, as distressing as it was, I knew it was time. It felt like he was telling us that. So again, (potentially) different scenarios.
She talks about Quality of Life scales and I looked them up but again, that sort of thing wasn’t really applicable in our situation. The change was so dramatic that we would’ve taken him to the vet regardless. In my opinion, I’m not sure a scale or internet numbers can make that sort of decision for you. I think that’s a decision only you and your vet can make.
She mentions financial situations, which is an important point. We were lucky (a pun that never got old – at least for me) that Lucky was insured so we were able to get him the painkillers and medications he needed, the hydrotherapy to build and then manage muscle mass, and cover the vet appointments. If I could give anyone with a pet one piece of advice, it would be to insure said pet. It’s been a life saver, quite literally at times, with our animals and I’m so grateful. It’s also given us the time to get used to the idea of the loss of them because it’s often been less sudden (Lucky might’ve deteriorated in a day but he’d been struggling – with support – for a while so we were aware of the situation).
“If your pet is terminally ill, you may have to put them down before you feel comfortable doing so and if that’s the case, it’s okay. I want you to know it’s okay.”
She mentions five factors that help you to make this decision:
She also explains the process of the in home euthanasia of her cat, Jimmy.
“What I found most comforting in this time is the following words from my therapist: ‘Jimmy found a loving and wonderful mother in you. That is a part of life that transcends time and gets to be yours always. Your time with your pet is yours, always. And you’ll know when it’s time to let them go. It’s a very brave, compassionate, and really hard decision but I and your furbaby trust that you will do right by them.'”
She ends with a variation on her usual closing: “I’m Anna Akana. Go and adopt some fucking cats and love them for me. Goodbye.”
Posted on February 22, 2020
On the 29th January 2020, we said goodbye to our beloved dog, Lucky, whom we’d had for nearly sixteen years. This is hard to write about – that’s why it’s taken so long for me to write and post it – but I felt like it would be a dishonour to him to not write about him so this is a piece about his life, how much we loved him, and how much we miss him. I’m not going to lie: I’m already crying as I write this so fair warning that this will be an emotional piece. It’s going to jump around a bit but I’ll try and keep it roughly in chronological order.
We first met Lucky when he was two or three days old. I was pretty young – only nine years old – so I don’t remember how we found out about the litter of Labrador puppies that needed homes but we’d been talking about getting a dog for a long time. In fact, it was one of the reasons we moved from London to Brighton. We didn’t want to have a dog in London. As it turned out, we lived all but next to a park and the puppies were on the other side.
Holding such a young puppy is a magical experience. They’re all sleepy and soft and they have too much skin. Plus, they smell amazing. I’ve never understood the whole baby smell thing but puppy smell is just wonderful to me. I don’t know if the puppy I first held was Lucky but I like to think so. And there’s no way for any of us to know.
We spent the next eight or nine weeks visiting them, playing with them and bonding with them. There was certain ones that had already been claimed and we ended up with the runt. Lucky, our beautiful, little runt. He was so funny looking as he grew. He was all disproportional: he had a long body with short legs, a big head, and a squished up face (don’t worry – he ended up proportional and I may be biased but I think he turned out to be the most handsome of the litter). But we thought he was gorgeous and loved him from the moment we knew he was ours. It was great to be surrounded by puppies, playing together and chasing and chewing each other, but we were just entranced by our baby and spent every possible moment with him.
Eventually they were ready to leave, eating solid food and mostly house trained. I remember the first night: he spent a lot of time exploring his new home (he was only allowed downstairs, giving our cat, Snubby, the upstairs floors to escape from him if she needed a break) and then fell asleep and we let him sleep on the sofa. He wasn’t going to be allowed to do that but we figured it was a special occasion. It was so cute. He was still so, so small. Then we put him to bed and went to bed ourselves. He cried all night, suddenly alone for the first time in his life. We all ended sitting on the top landing, out of his sight, desperate to go to him but knowing that it was the right thing to do. It’s what you have to do.
As I mentioned, we already had a cat, Snubby. She wasn’t a particularly social cat at the best of the times and she was deeply disgusted by this enthusiastic, bouncy… thing. She mainly stayed upstairs for the first few months but when she had to get anywhere near him, she’d swipe at him, leaving him bewildered as to why she didn’t want to play or at least engage. But she wanted nothing to do with him. Over time, she became a bit more relaxed around him (i.e. less swiping) but she never did anything more than coexist with him.
We got to straight to work with the training. He was really smart. We continued with the house training, sit, stay, drop (the toy, stick, whatever he was holding)… he never quite grasped that one. Or wanted to grasp that one. He loved to bring you things; he just didn’t like to actually let you have them.
One of my favourite memories of training him though, was teaching him his name. In various combinations, we’d go down to the woods where there was a somewhat closed off path (meaning he couldn’t really go anywhere but down the path) and stand about ten metres apart. We’d call his name, again and again, and he’d run back and forth, rewarded with treats. We probably spent hours doing that and eventually he learned that his name was Lucky.
Season after season, we’d walk through woods, over fields, by the sea… Because of school, Mum working from home, and what turned out to be my Autism and Chronic Fatigue, Mum did most of the big walks but I still managed some of them. My favourite ones were in the summer, flinging balls for Lucky and he’d run so fast that he’d overtake them, sometimes tripping over his own legs. The woods and the fields… they were all especially magical at golden hour. Those are my favourite memories of walking him.
He also loved to swim, which was very helpful when he developed a problem with his elbow and needed hydrotherapy. Labradors are notorious for problems with arthritis so we knew that it was something we were going to have to deal with during his life (thank god we insured him: he had so many medical problems throughout his life). Anyway, he loved hydrotherapy. He would chase a toy around a small pool of warm water and the hydrotherapist would actually have to hold him back to stop him exerting himself (the jacket is a flotation jacket so he could focus on swimming and not on keeping himself afloat). He absolutely loved it and it really helped his elbow.
One of my family’s yearly traditions is spending a week in Norfolk, usually in the autumn. We’d stay in a cottage and then a caravan closer to the beach and we’d walk through the woods and through the sand dunes. It’s one of my favourite places. I step onto that beach and it’s like I’ve found something I didn’t realise I was looking for. It’s magical.
Lucky has always loved it, from the lounging on the caravan deck to chasing sticks into the sea. As he got older, he managed less and less until he was basically just chilling on the deck with the odd walk around the caravan. But during our last trip together, we drove to the flattest beach and walked slowly out to the shallows. We paddled together and rolled the tennis ball that Lucky had picked up somewhere back and forth. We were very aware that this could be the last time so we took our time and tried to enjoy every second. Then we slowly walked back, stopping multiple times for Lucky to rest his legs. There was a sadness to the day but we tried to just live in that precise moment and having said all of that, I look back on that day and smile because I know Lucky was happy.
There were years of love, years and years of love. I wish I could describe all the details but we’d be here until Christmas. Longer. For a long time, my morning routine began with a shower and walking the dog at about 7am. That was my day and it was a good way to start the day. I missed it when life changed, even though the early start was early.
When Snubby was put to sleep in 2014, me and Lucky got even closer. He’d stick close to me and greet me with great enthusiasm whenever I came home from uni. He was always very sensitive and in tune with people’s emotions (the older he got, the more sensitive he got until he even had to leave the room when people on TV got upset). We spent a lot of time that winter, curled up in front of the TV together, warmed by the fire. It was very comforting.
About a year after Snubby was put to sleep, we got a new kitten, Lucy. My world just didn’t make sense without a cat in it. And Lucky’s reaction was so funny. You could almost see him rolling his eyes. I tried to make sure I still spent a good amount of time with Lucky, just the two of us. But I could almost see the ‘are you fucking kidding me?’ look in his eyes.
Hilariously, Lucy adored Lucky and wouldn’t leave him alone. She always wanted to play, bringing him toys and pouncing on him and so on. It was so cute. And he didn’t know what to do with that because he’d only ever known a cat that swiped at him. So it took him a long time to adjust. I don’t think he ever loved her the way she loved him but he tolerated her and her love of him. She was always in his bed, both when he was in it and when he wasn’t, and she even went on his evening walk around the block with him. It was adorable.
Once the elbow issue had been resolved, he didn’t need hydrotherapy again for a long time. But then, as he got older and his muscles in his legs started to weaken and waste away, we went back to hydro. He loved it and would swim so hard that the hydrotherapist had trouble monitoring the extensions of each of his legs. Over time, he slowed down, content to get to the ball; he knew it would be there when he got there. We continued liked that for years, managing the muscles in his legs. As an older dog, we couldn’t build the muscles back up but we could keep him going, keep him as strong as possible. And he loved it. And I loved watching him do it because you could see how happy he was.
As I said in my Birthday Rules post, for my 24th birthday, I actually got to do it with him once, which was a really special experience. It was really hard work and there was a lot to concentrate on, but it was surprisingly therapeutic for me as well as him. We both fell asleep on our respective soft surfaces when we got home and could barely make it through the day. It was funny to think that I was experiencing what he experience every time he had a hydro session. It was a really cool way to spend my birthday.
Moving house changed things, as much as I wish it hadn’t. The living room was upstairs and having spent his whole life being told he wasn’t allowed upstairs (plus his rather dodgy legs – he was about fourteen at the time), it was a difficult adjustment. He did eventually make sense of it and join us upstairs, in the living room (where I spend most of my time), which made me so happy.
He was making his way upstairs quite easily until one evening when everything changed. I was sitting at the kitchen table when I looked up and saw that Lucky was tilting his head almost ninety degrees. I thought he was having a stroke. Mum drove him to the emergency vet and they said he would be okay but I wasn’t convinced. The next morning we took him to our usual vet and he was diagnosed with Geriatric Vestibular Disease, so he was essentially having constant vertigo. Poor baby.
The next couple of weeks were very stressful as he was treated and slowly recovered. He did eventually recover but he was never quite the same. Personality wise he was, but physically, he had deteriorated quite dramatically. His balance was awful and was until the end and his legs, especially his back legs, were very weak and kind of like they weren’t completely within his control. From that point on, he needed a harness so that we could help him up when he was lying down, as well as up and down the stairs into the kitchen. Plus his head remained tilted for the rest of his life. That always made me sad. It’s something you never think you’ll miss: your dog looking at you straight on. I really, really missed it.
Interestingly, he became much more attached to my Mum after this experience. Apparently that’s not uncommon: for a pet to become particularly attached to one person after a traumatic experience like a period of serious illness. The hydrotherapist said she’s seen it happen a lot. He always wanted to be with her and couldn’t settle if she was absent, for ten minutes or a couple of days. It was quite distressing, not to be able to soothe him.
As I’ve already said, his legs were very weak. I got home a few weeks ago and he couldn’t stand. And whatever I did, I couldn’t get him on his feet. It’s like his back legs had given up. It was like he’d give up, like he was done. Like it was just too hard. It was horrible. I ricocheted between calm and rational and then terrified and frozen. I don’t think I can write any more about that night but in the morning, the decision had been made – as I’d expected – that he was going to be put to sleep. I knew it was coming and I knew it was coming then. I was expending every ounce of energy holding everything together. I felt like I was literally holding the pieces of the outer shell of my body together, and therefore holding all of the overwhelming emotions inside. I managed it for the most part, although a few tears escaped on occasion.
We got him to the vet and stood around him, stroking him, as the vet gave him a series of injections and then he was gone. But this was different to my last experience, different to when Snubby was put to sleep. I held her in my arms as they injected the drugs and I still remember the moment she was gone. But it was like Lucky was already gone (god, this is horrible to write). That thought was a sickening, awful one but that’s how it felt.
They left us alone with him to have a few moments but when it was time to leave, I had Mum get someone to be with him. I just couldn’t leave him alone. I couldn’t do it, even though it wasn’t really him anymore. At least that’s what people say. I’m not sure what I truly believe about that. Anyway, we stood outside the vet (they let us deal with everything later) – the four of us – and cried. And cried. And cried.
We went home and I spent the day collating photos of Lucky because I needed to have something to do that related to him. I needed to hold onto him. And now we’re moving forward, physically at least. I don’t think we’re moving forward emotionally yet. I don’t like the idea of ‘yet’.
We’ve since had a card from the vet with his paw print and a little packet of forget-me-not seeds, which I personally really appreciate. That was really kind of them and it’s already really special to me. We’ll have to decide where to plant the seeds but personally I like the idea of doing it where we can see them. Through the kitchen doors, maybe.
Soon we’ll get his ashes and have to decide what to do with them too. One idea is to scatter them where we taught him his name. I like that idea. But it has to be unanimous and we haven’t made a decision yet. We don’t even have the ashes yet so there’s no point worrying about it just yet. We’ll figure it out.
As a soul, he was a bit of a legend. Everyone who knew him loved him, even people who weren’t that keen on dogs. He just had some magic in him. I love him more than I can ever express and I will miss him for the rest of my life. The house feels empty and there’s a big gap that actually feels tangible in our lives. I have moments of calm and acceptance and then suddenly I remember and the bottom drops out of my world. It’s awful. And I just want to cry all the time, about Lucky but also about anything and everything. I’m just so sad. My body – my universe – is just so full of sadness. I just can’t believe I’ll never see him again. I’ll never stroke the brown patch on his nose or stroke the softest ears in the world. And when I automatically glance downstairs as I move around the house he’s NOT THERE and it just doesn’t make sense. It just doesn’t make any sense. It’s awful; I think anyone who’s ever lost a pet can relate to this.
I was talking to a friend the other day and they said that he lived a good life. And this friend wasn’t wrong. But when I think about it, I think the more important part is that he lived a loved life. And he did. He lived a very loved life.
Posted on February 15, 2020
January was tough. A lot of difficult things happened. Normally, I wouldn’t do a monthly round up but there were several things this month that I didn’t think would get properly acknowledged (in my yearly review or otherwise) if I didn’t. So here’s January 2020 and it’s highs and lows…
(Luce Barka performing ‘Be More Kind’ – a very beautiful, meaningful song.)
“I’m so, so excited to announce that the music video for ‘Clarity’ will be coming out Friday 7th February! @rsandersonphoto and I had such so much fun shooting this and there’s a pretty cool surprise in there so we hope you love it as much as we do!” (x)
So that was January. Yeah, 2020 – the new decade – began on a very stressful and sad note. I’m thankful for the moments of light.
Category: animals, anxiety, autism, death, emotions, event, favourites, food, meltdowns, mental health, music, university, writing Tagged: 30 day challenge, 30dayfeb, asd, assessment, assessments, autism, autism spectrum disorder, baby loss, baby loss awareness, bad night, bbc introducing, bbc introducing south, befries, bereavement, cheer, clarity, clarity music video, disabled student allowance, dog, dsa, dsa assessment, election, england, exams, favourite music, friend, friends, gig, grammys, grammys 2020, halsey, honest, honest ep, loss, lover, luce barka, luce barka music, manic, masters, masters degree, masters degree in songwriting, meltdown, meltdowns, mindfulness, music, my music, natalie hemby, netflix, origami, pet, presentation, radio, richard marc, richard marc music, sara bareilles, she used to be mine, show, songwriting, spotify, stress, taylor swift, tommy's, track of the day, uk, university, waitress the musical, wellbeing
Posted on July 11, 2018
From the age of about two years old, I’ve been going to a little town in Norfolk almost every year on holiday. While I was in school, we – me, my parents, and our dog – would go during the October half term but in recent years, we’ve been going in the early summer, before the schools break up. We stay in a caravan less than a ten-minute walk from a stunning sandy beach and I absolutely love it.
Some people find it strange that we always go back to the same place but as far as I can tell, there are two basic types of holidays: going to explore and going to relax. Both have their pros and cons. This is definitely a relaxation holiday. It’s familiar and calm and beautiful. It’s a bubble away from reality where I can just be, in a way I can’t at home. And, of course, familiarity and Autism go together like fish and chips. We also ate a lot of fish and chips…
I’ve been back from Norfolk a few days and I just really wanted to write about it. After having had so much change with the house move, the changing of medications, and the decision to keep my cat’s kittens, it was really nice to be somewhere so familiar and safe. And as much as I love the cats, I really enjoyed having some dedicated dog time with Lucky. Because he’s now so arthritic, we have to be careful to not over walk him (his enthusiasm far exceeds his physical ability so he’s not much help there) but we manage a couple of trips to the beach, which he loved. He can’t really run anymore but there was a fair amount of skipping, one sure-fire way to know he’s enjoying himself. It’s very cute.
The beaches in Norfolk are just beautiful. The closest beach, the one we jokingly call ‘our beach,’ is particularly close to my heart. Every year, I step onto that beach and everything just clicks into place. It’s subtle but I suddenly feel like my head’s a little clearer, like I can breathe more easily. Something inside me settles. It’s like I leave a little piece of myself there, that I miss all year round, and then, when I get back, it’s an overwhelming relief. I’ve spent some glorious evenings on that beach.
It was ridiculously hot all week so I spent a lot of time inside with all the windows and doors open. I’m really not good with heat. It’s something I’ve heard from quite a few other people with Autism; I wouldn’t be surprised if there’s a link, given the hypersensitivity that often comes as part of being autistic. Anyway. It gave me the opportunity to do a lot of writing and catch up a bit with my diary (if you’ve read this post, you’ll know that my writing can be quite compulsive). That felt really good. I also rewatched some of my favourite films and played chess. The latter is something I haven’t had the concentration to do for months so that felt like a victory in itself, much more exciting than actually winning at chess.
Being there doesn’t eradicate my anxiety entirely but it does a pretty good job of dampening it. Sometimes anxiety feels like this constant vibration that I can’t stop, can’t take a break from. But in Norfolk I can. I still get anxious about specific things but that relentless vibration momentarily ceases. And that’s such a relief.
Posted on December 24, 2017
A while back, my social media feeds were flooded with posts about being grateful and appreciative and thankful. Yes, it was Thanksgiving. I live in the UK and I find it a bit of a weird experience seeing so much celebration and festivity in my online world and have none of that reflected in the world around me. But I do think it’s important to take the time to feel grateful for what I have and I always feel especially grateful at Christmas so I thought I’d write a short post about some of the things I’m grateful for, some big, some small, and some strange.
My family, my friends, my people – This year has been a particularly difficult year but if it’s taught me anything it’s how incredible the people in my life are. Time and time again, they’ve come through for me, supported me, and encouraged me and I couldn’t be more grateful. A few years ago, my relationships felt a bit all over the place (especially my friendships: old ones were separated by university and new ones were still tentative) but this year, I feel like I’ve fallen in love again with all the lovely people in my life, from the people I talk to online to my friends (both from university and from before) to my closest family. And I’m trying my best to make sure they know it.
My therapist – My god, I’m so grateful for my therapist. Not a day goes by that I don’t think about how lucky I am to have her. I can’t even put it into words. Having someone I can trust with anything and everything is incredible (although it’s very scary for me to feel so reliant on a person). I’ve told her things I never thought I’d tell anyone and she’s helped me through things I never thought I’d get through. I can’t thank her enough for all she does.
My animals – I’ve already written about my animals so I won’t ramble on too much but they deserve a mention here. They bring me such joy and help me so much with my depression and anxiety. I’m so, so grateful to have them in my life.
My final year at university – My first two years of uni were really, really hard. They were a real struggle. I learnt a lot and I met some great people but the bad stuff going on often overwhelmed the good stuff. But third year was a blast. I loved it. I had a great group, some great tutors, and I wrote some great songs. I also built some great friendships. I think the best way to describe it was that I was finally feeling in sync, with everyone else but also with myself. I was working on all the things I wanted to work on, I was working with some awesome people, and I was getting some really good responses. It felt so right. Leaving was really hard but having such a great last year means I look back on the whole experience positively even though there were some really hard times.
My health – My health is a struggle and it’s something I wrestle with daily but I am so grateful that it’s not worse. I don’t think it’s helpful to compare your health situation to others’ because someone else’s experience doesn’t mean you aren’t allowed to feel and struggle with your own. I also think it’s unhealthy to focus solely on the positive and repress your feelings about the negatives. But I do think that it’s important to keep a sense of perspective. I’m grateful for all the things in my body that do work. I’m grateful that I do have days where I can walk the dog, go out with my friends, and stay out late. I’m grateful that my mental functioning seems to be getting better. I’m grateful for how resilient my body is. I need to learn from that.
The benefits I receive – I want to write a more in depth post about benefits and the process of getting them because it really can’t be explained sufficiently within this post but I really wanted to include this because I am so very grateful to get the benefits I do. It’s something that just removes one layer of anxiety and that’s such a big deal. I’m also really grateful for the Christmas bonus. I haven’t had a Christmas where I’ve been on benefits so far and the extra £10 with the recent payment just made me so happy.
Clear skin – My Mum laughed when I told her that I was putting this on the list but I am so, so grateful that, for the majority of the time, I have clear skin. It was something I was so insecure about as a teenager. Looking back at the photos, it doesn’t look too bad but I remember so vividly how upset I’d get over it so I’m grateful for every day I look in the mirror and see clear skin. I don’t take it for granted.
Redbull – Redbull should sponsor me. Seriously. I’m actually drinking Redbull as I write this. I only discovered it recently (I’d had to avoid caffeine while taking my previous medication) and it’s been a very exciting find, especially while I’m struggling so much with low energy levels. It gives me such a boost; it makes me feel like a normal, functional human being, not like one who has to constantly assess her energy levels and emotional state. It’s like the fog of fatigue rolls back and I can actually feel all the other emotions, like excitement and joyfulness. I’m aware that I shouldn’t drink it too often but while I’m following every other avenue to improve my energy, it’s a really good back up plan for when there’s something I need to do.
Agents of Shield – Another one that isn’t life changing but oh my god, I look forward to every new episode. I love it. It’s definitely my favourite TV show. For a long time, I avoided everything superhero-related because it just made me miss my Dad but almost ten years on, it’s something that feels really special. I can imagine the conversations we’d have, the debates over how the storylines played out. I can almost hear his voice down the phone, talking me out of a panic attack by saying, “Think of Daisy. What would Daisy Johnson do?” It used to hurt but now that world makes me feel close to him. On a different note, I love it because I find watching it makes me feel empowered. It reminds me that, superpowers or not, doing good – being a hero – is about the choices you make. It’s a weekly reminder to try to do better and to be better. Plus Chloe Bennet (who plays Daisy) is just freaking awesome. The whole cast is.
Taylor Swift – Yes, I am grateful for Taylor Swift. People have made fun of me for liking Taylor Swift for as long as I’ve been a fan but I honestly do not care. She is a fantastic songwriter and I love her music. I’m grateful to have a new album this year but the thing I’m really, really grateful for is who she is as a person. Since announcing the new album, she’s met literally hundreds of people who’ve always wanted to meet her; she’s made hundreds of people’s dreams come true, not for financial gain, not for the publicity, but because her fans matter to her as much as she matters to her fans. How lovely is that? I think that’s amazing. I’m also grateful to her for using her platform to spread awareness about sexual assault, as I am grateful to every person who has done the same. We are not obligated to share our traumas; our only obligation is to ourselves and our healing. Sharing difficult experiences and opening yourself up to the opinions of others is so brave and should never be undervalued. Her level of fame makes any potential fall out worse but it also means she made a huge impact: the RAINN hotline saw a 35% increase in the number of calls they received after she won her trial. She has so much power to affect people’s lives and she strives for that impact to be a positive one. So yeah, I’m grateful for Taylor Swift.
I could keep going – there’s a lot I’m thankful for – but I’ll stop there. I’m wishing you all a safe, happy, and healthy Christmas and I’ll see you on the other side.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
My second single, ‘Bad Night,’ is also now available on all platforms and is the first track from my new EP, ‘Honest.’