Posted on January 23, 2021
Back in October 2020, I had a long overdue blood test. I think it was actually supposed to be the test that told us whether I’d absorbed and responded properly to the iron infusion I’d had in June 2019 but with starting the Masters and then the pandemic, it had only just become possible.
Going out and going to the Doctors’ Surgery did cause me a lot of anxiety – I’m still struggling with going out and with feeling very vulnerable when I’m out – but the appointment felt very safe and very efficient. I was probably in and out in less than ten minutes. About a week later, we got the results back and my iron was within the normal range. So all good there. However, my Vitamin D levels were seriously low, so low that they wanted to take immediate action. I was prescribed Colecalciferol, a prescription Vitamin D supplement, and instructed to take one a day for ten weeks.
It wasn’t surprising to hear that my vitamin D was low. It’s not uncommon for autistic individuals to have low vitamin D levels and with the pandemic and lockdown, I was staying inside a lot more and therefore not getting as much sunlight as usual, let alone the sunlight I needed. So I wasn’t shocked. I was pretty wary about taking supplements though: my last attempt with supplements had rendered the anti-depressants I was taking at the time completely ineffective, leaving me in a deep, dark hole of depression. Even though I stopped taking the supplements immediately, the anti-depressants never worked again. So I was concerned that something similar might happen again and I’d lose the only consistent (and I use that word loosely) anti-depressant I had in my toolbox. But my doctor explained just how important it was to get my vitamin D up and despite my anxiety, I committed to taking them.
For the first three weeks, I didn’t feel any different. My sleep was as sporadic as ever and I was constantly tired, something that is very much linked with my anti-depressant medication but is also a symptom of a vitamin D deficiency. Week four passed and I still didn’t feel any change but my Mum felt that there had been a slight shift, in my day to day behaviour and my engagement in whatever I was doing. She couldn’t quantify or qualify it any more than that but she did have a feeling that something was slightly different. I was reluctant to believe her, not feeling it myself.
Weeks five and six were tough: I was constantly exhausted and incredibly depressed, although it wasn’t always noticeable, covered up by anxiety-induced busyness. I was sleeping a lot but I was still tired but by the end of that sixth week, I was starting to wonder if I felt different. It’s just so freaking difficult to tell when the change you’re watching out for is so gradual. I wasn’t sure, just cautiously optimistic.
I’d been instructed to go back to the doctors’ surgery for another blood test between four and six weeks to see how I was responding to the supplement. It was closer to six weeks given some difficulty getting an appointment but when it finally happened, it was quick and efficient, just like the first appointment.
During what was the seventh week of this period, I was still tired and sleepy but again, I was starting to think that it wasn’t quite as bad as it had been. It wasn’t drastically better but I did feel a slight – intangible, I guess – difference. But week eight gave me a real sign that things were changing. I was still fatigued easily, still had days where I was really sleepy but I suddenly noticed that I wasn’t needing to drink as much Red Bull as I had been. Ever since I started this round of anti-depressants, I’ve been relying on Red Bull to keep me awake during the day and when the vitamin D first showed up as problem, I was probably drinking three a day – more when I was commuting to university (and yes, I’m aware that this isn’t healthy and have a plan with my psychiatrist to address it, although that has been derailed somewhat by the pandemic). But during week eight, I realised that I was getting through the day on one, sometimes less. Still not super healthy, yes, but a really good step in the right direction. And if I wasn’t feeling like I needed them as much to stay awake, then I had to assume that my energy levels were improving, to some degree at least.
When the blood test results came back, they showed that my vitamin D levels were back within the normal range but still pretty low so my doctor wrote me a new prescription for the rest of the winter with potential for extending it throughout the duration of the pandemic. I’m grateful for that; it’s one worry off my mind at least.
My energy levels still aren’t great. But getting my vitamin D levels under control was never going to be ‘the fix.’ Fatigue is a constant in my life, between my anti-depressants, Chronic Fatigue Syndrome, and other health (physical and mental) problems. But that doesn’t mean I can’t improve my situation. Getting my vitamin D levels back up has helped, hopefully hydrotherapy will help, perhaps the next anti-depressant won’t have such bad side effects (whenever I have time to try a new one – mid-Masters isn’t exactly the perfect time, especially having just reached the modules I’ve been most excited for). Sometimes I need to rage and cry about the pretty constant tiredness, but most of the time I can look forward and focus on the next thing that could help.
Category: anxiety, chronic fatigue syndrome, covid-19 pandemic, medication, mental health, sleep Tagged: anti depressants, antidepressants, anxiety, asd, autism, autism spectrum disorder, autistic, autistic adult, autistic student, blood test, caffeine, cfs, chronic fatigue, chronic fatigue syndrome, colecalciferol, coronavirus, covid-19, depression, disturbed sleep, fatigue, hydrotherapy referral, insomnia, low vitamin d, mental health, pandemic, pandemic 2020, pandemic anxiety, physical health, red bull, redbull, sleep, sleep schedule, sleepiness, supplement, supplements, tired, vitamin d, vitamin d deficiency, vitamin deficiency
Posted on January 2, 2021
I think it’s safe to say that we have no idea what this year is going to look like so making resolutions or goals could seem a bit pointless. But considering everything last year, I did make some recognisable progress with my 2020 goals, something I’m really proud of considering how much I was struggling. Yes, it’s a bit of a shot in the dark to make any sort of long term plans this year but I find that having goals like these give me some direction, some structure, which is especially helpful when I currently have so little external structure in my life. (As I said in my previous post, I prefer goals to resolutions: I find that resolutions create unnecessary pressure whereas goals help me to focus on particular areas. That works better for me but then I’m sure that that pressure is helpful for others.)
Since we don’t know what this year will hold, I’m still going to make goals. If I have to abandon them, then so be it but otherwise, they’ll hopefully be a helpful tool in moving through the year, creating some internal stability if nothing else. I’m hopeful that I can make progress in all of these areas: in my physical health, in my mental health, and in my work.
FIND A RHYTHM IN THERAPY AGAIN – The pandemic and lockdown have really thrown a wrench in my therapy sessions. Not only have they been physically disrupted, in the sense that they’ve moved from in person to online, but the pandemic has done such a number on my mental health that I couldn’t even cope with going to therapy for a while. And now that I’m going again, I feel like I don’t know how to do it anymore. I have a really good relationship with my therapist so I don’t know why I’m finding it so hard to talk about stuff; we just end up catching up about what’s happened between sessions. I really want to find a way back to the place where we really dug into things, the big things that affect me and my mental health. I’m not sure how to do it but my therapy sessions are so vital that it needs to be done so we’ll have to figure it out.
PROGRESS WITH MY INVISIBLE BRACES – Given how up and down last year was, I’m surprised I managed to wear it at all but this year I really want to build and embed the habit in what daily routine I have. The main problem is that, often, I’ll need to take a break and suddenly I haven’t worn it in months. So I also want to work out how to take a break without completely breaking the habit.
WORK ON MY CORE – For hypermobile people, the core muscles are particularly weak, which can cause referred fatigue and pain throughout the body. When I was diagnosed, the specialist asked what exercise I did and I talked about how much I loved swimming, how good it feels to exercise without having to bear the weight of my body. She said that swimming is the best possible exercise for a hypermobile person, especially someone actively dealing with pain and fatigue. I certainly didn’t need the encouragement to swim more. Where possible (in the context of the pandemic and lockdowns), I want to keep swimming as much as I can, as well as practicing the basic hydrotherapy exercises I’ve been given. I don’t know when my referral for hydrotherapy will actually go through, when I’ll actually get sessions, but hopefully it won’t be too long and hopefully that will help with the fatigue and pain.
COMPLETE MY MAJOR REPERTOIRE PROJECT – The final module of the Masters is dedicated to researching, writing songs, and creating a body of work around a particular subject. I’ve been really looking forward to this module, and hearing about the subject matter investigated by my course mates from last year (familial connections, identity, and gender transition, for example) and the work they created has only inspired me more. I have multiple ideas that I’d love to work on, although there are two that stand out more than the others. So I’ll have to choose at some point but we’re encouraged to remain open until just before the module starts. I’m so looking forward to really diving into a project and hopefully I can use my enthusiasm to help me get the best grade possible.
FINISH MY MASTERS DEGREE – By the end of September, I will have finished all of the modules and assessments of the Masters, all being well. With everything that’s happened since the start of the Masters, just finishing it will be an achievement in its own right but I really, really, really want to do well. It would be incredible to get a Distinction (that would be my ideal scenario) but, as I said, with everything that’s happened and how much I’ve had to deal with, that may not be on the cards. It might be initially disappointing to end up with a Merit but I know that, given some processing time, I could get my head around it and be proud of it.
MAKE SIGNIFICANT PROGRESS IN CATCHING UP WITH MY DIARY – Due to my university work and the ups and downs of my mental health, I’m majorly behind with my diary (although I do keep rough notes) and while I’m not sure how I’m going to manage this, I want to get the situation more under control. Being behind just causes me so much anxiety. The university work isn’t going anywhere though and I want to do my best there so I obviously need to find a solution to this problem before I can start implementing it. I’m hoping therapy can be useful here.
WORK ON NOT COMPARING MYSELF TO OTHERS, ESPECIALLY WHEN IT COMES TO MUSIC – This was a goal last year but between the pandemic disrupting the entire music industry and my sporadic therapy attendance (in which I’d planned to work on this issue), I didn’t make nearly as much progress as I would’ve liked. This is what I wrote last year and I think it’s still fairly accurate:
“This is probably the hardest one and a lot of the time, it feels unbearable to even think about. While I need to work on not comparing myself to others in general – in all situations – I figure that’s too big a task for such a difficult feeling so I just picked one area. Music has always been my happy place and I want it to stay (or go back to being or something) my happy place and it’s not, when I look at other artists and feel lost and sad and lonely and angry and bitter. So I want to work out – probably with therapy – how to focus on me and not worry about other artists beyond a practical, objective sense. This feels really, really hard so I don’t know if I’ll manage it in a year or whether I’ll even manage to start but I want to so I’m trying to think about it and figure out a place to start because I don’t want to feel all of these things. I want my happy place back.“
Having released more music and received good feedback over the last twelve months, I think my self-esteem and confidence is a bit higher but it doesn’t take much to tip me into that black hole. I really, really want that to stop happening so whatever it takes to avoid those feelings (for the majority of the time, at least), I’m willing to do it and do it for as long as necessary. I want music to be a positive part of my life, not something that’s draining.
FIND MY NEXT PROJECT – As I’ve previously said, there is more content coming that’s part of the Honest project but now that all of the tracks and music videos have been released, I want to work out what my next project is going to be, what the next creative goal I want to work towards is. I may find it during my last two Masters module, I might find it after, or it might find me. I’ve got a lot of ideas I want to explore so I guess it’s just about figuring out which one is the best fit for me in this particular period of time. Whatever it turns out to be, I’m excited. The Honest EP has been such a gift, such a wide and wonderful experience, that I can’t wait to see what the next project has in store for me.
As I said, we have no idea how this year is going to unfold so I don’t know what I will or won’t be able to achieve (in terms of what’s possible with the pandemic and my personal health – physical and mental – in the mix) but these are the areas of my life that I want to work at. If nothing else, last year showed us how strong and adaptable we can be, so who knows: maybe I’ll make progress in all of them or maybe I’ll make progress in entirely different things. I guess we’ll just have to wait and see…
Category: about me, anxiety, chronic fatigue syndrome, covid-19 pandemic, depression, emotions, event, identity, mental health, music, ocd, therapy, treatment, university, writing Tagged: 2021, anxiety, comparing, comparing myself, comparison anxiety, compulsive writing, core muscles, coronavirus, covid-19, debut ep, diary, diary writing, distinction, emotions, exercise, final project, fresh start, goals, good habits, grades, habits, health, honest ep, hydrotherapy, hydrotherapy referral, hypermobile, hypermobility, invisible braces, masters, masters degree, masters degree in songwriting, masters degree year two, masters part time, mental health, mental illness, music industry, negativity, new project, new year, new years resolutions, obsessive compulsive disorder, ocd, pandemic, pandemic 2020, physical health, positivity, processing emotions, setting goals, singersongwriter, singersongwriter life, swimming, therapy, university
Posted on December 24, 2020
As per tradition, here I am posting a list of things I’m grateful for on Christmas Eve. This year has obviously been very different to previous years and I think it’s fair to say that we’ve all had days where we’ve felt scared and angry and probably every negative emotion under the sun, making it difficult to feel grateful, but then it’s also reminded us of how many things we do have to be grateful for. There are many more things that could go on this list, but I’ll try to keep it as concise as I can. Otherwise, we’ll probably be here until next Christmas.
Family – I could not be more grateful for my family. I love them so much. So, so much. They do so much for me and all I want to do is make them proud. But this year, I’m especially grateful for their health and grateful to them for their care and caution during this time, for how sensible everybody has been despite how much we all want to be together. It’s been so hard not seeing so many of my extended (and even close) family members face to face for such a long time and I’m truly and deeply looking forward to seeing them all (and hugging the crap out of them) when it’s safe enough to do so.
Mum – Oh my god, my Mum. I love her so much. She is just incredible. This hellscape of a year has been so hard for me (as it has been for so many but in my case, it hammers right on my biggest autistic difficulties: uncertainty and anxiety) but she’d been completely solid throughout, always there for me when I needed her. She’s made this so much easier on me than it could’ve been and I’m so grateful for that. She’s handled everything with such grace; I’m truly in awe. I only hope that one day I will be as strong and capable as her. I’m probably going to have some separation issues whenever the world starts to function in a way that we’re more used to (I mean, we’ve been together almost 24/7 since March when I was usually in London a couple of days a week and she was in and out all day, out for full days, or even away for several days, etc so I’m very used to having her around and she’s become a bit of a touchstone when it comes to my anxiety) but I’m not going to think about that yet. It seems there’ll be plenty of time before that’s going to happen.
Friends – I am so grateful for my friends; I always am but I’m especially grateful this year. I have moments of being terrible at staying in contact and periods of being better (something that’s largely dependent on my mental health) but considering everything this year, I don’t think I’ve done too badly. I’ve been talking to and spending time with different friends in different ways: calling, messaging, video-chatting, watching movies together, a few socially distanced meet ups, etc. I’m really happy we’ve been able to stay in touch even if I do desperately miss spending time with them. They’ve been a real tether to ‘normal’ life and I’m more grateful for that than I can say. This year has also taught me (both as a result of the pandemic and not) what I need in my friendships (not that that’s all that matters but if neither of you are getting what you need most of the time, how are you supposed to make a friendship work?) and I really value that. It doesn’t automatically change anything but I think that knowing what is good for me in a friendship and what isn’t is really important and will only be helpful in the long run.
(There are a handful of people I wish I could include in this collage but don’t have pictures with, from this year anyway.)
Richard – I mean, where do I start? Generally, I’m of the opinion that the universe is completely random but something awesome happened that day six and a half years ago when I sat down next to him on our first day at university. I had no idea that I was meeting one of my best friends, most trusted collaborator, and creative partner. The Honest EP never would’ve happened without him. We worked on every aspect together and I can’t wait for whatever our next project turns out to be. This year has obviously been about as different as we could’ve ever imagined but he’s gone through every high and low with me and I couldn’t be more grateful. I’m so glad that we’ve been able to continue releasing the Honest EP and that we’ve been able to write together despite the pandemic, even if writing remotely isn’t as fun as writing face to face. I’ve missed just hanging out with him, with our friends, and actually doing things that don’t require a screen but I’m so grateful for what we’ve had and what we’ve been able to do despite the difficult circumstances. I don’t feel like I’m saying all of this as eloquently as I’d like to but what I’m trying to say is that I’m beyond grateful for Richard. I don’t know how I got so lucky with such an amazing friend.
All of the years I had with Lucky – January feels a bit like a lifetime ago; I can’t believe it’s only been eleven months since we said goodbye to our precious Lucky. It was one of the most painful experiences of my life but he was ready. I know people say that but you only had to look at him to know that it was the truth. But despite the pain and sadness of that twenty four hours (and obviously since), we had an amazing almost sixteen years with him. From meeting him when he was a few days old, to bringing him home, to teaching him to sit, to the hours we spent playing with him, to sneaking him onto the sofa with me when no one was home, to various people ‘sneaking’ him onto the sofa whenever everyone was in the room, to running around on the beach together, to watch him throw himself into hydrotherapy with such enthusiasm, to lying on the rug in front of the fire together… every second with him was a wonderful gift that I will forever be grateful for.
And while I will always wish to have had more time with him, I’m glad that he didn’t have to manage the pandemic and all the stress surrounding it. He was such a sensitive dog, especially in his old age, and I think it would’ve been really distressing for him. Saying goodbye to him was devastating enough as it was; I know that having him put down during lockdown would’ve been so much worse, especially as it’s likely that we wouldn’t have all been able to be there with him.
My cats – The family of cats have been a bit of a lifesaver to be honest. Early on in the pandemic, their complete obliviousness to the chaos in the world was very calming: they just continued with their lives and there was something very soothing about that. And just throughout the pandemic, the cuteness and silliness and playfulness have been a wonderful distraction or comfort on the more difficult days. On the whole, they’ve all become very snuggly with only me and my Mum around (they absolutely freaked out when they saw a new person for the first time in months) and now, nine months into the pandemic, I rarely go a day without having had at least two cats draped over me at some point. It’s all very cute and very much appreciated. I’m also really, really grateful for their health. I’m always aware of that but with Lucy having a health scare that resulted in two surgeries earlier in the year, I feel particularly grateful that all five of them are well and healthy.
FaceTime, Zoom, Netflix Party, etc – I’m so grateful for the platforms that existed and have come to exist to help us connect with our friends and family (and continue with university) during this time. Yes, I’m sick of only seeing people via screens and I’m even more sick of my eyes always ending up on my own face and, as an autistic person, communicating feels ten times harder but I’m still so glad that we have them so that we can see and talk to and spend time with our friends and family. It’s not enough but it’s better than nothing and I’ll gratefully accept whatever way of connecting I can get.
TV and Film Streaming Services, eg. Netflix, Amazon Prime, etc – Having access to so much media to consume was a great way to escape everything at the beginning of the pandemic and throughout the first UK lockdown. I discovered some really awesome TV shows and movies (about which I’m going to post later this week). It was escapism, but it also kept my brain creative (filling it with stories and characters and ideas) even if I wasn’t able to express it for a long time. And now that I’m writing again, I have so many ideas and stories to tell.
Fanfiction – I mentioned Fanfiction in my Lockdown Favourites post and it’s definitely been one of the things that has helped me throughout the pandemic and lockdowns, especially early on when I was just paralyzed with anxiety. I’ve really struggled with reading during the pandemic; I just haven’t been able to concentrate enough to get into a novel, like there isn’t enough space in my brain for new characters, new worlds, and new storylines. But reading stories set in familiar worlds with characters that I love (Stargate SG-1, Sanctuary, Harry Potter, etc) feels much easier and really comforting, especially when my mental health is shaky. I’ve always found it to be a good form of relaxation and escapism; maybe one day I’ll post my absolute favourites because they’re just so good, so well written and quite possibly better than the originals. I do want to give a particular shout out to Annerb who has been my staple writer this year; I discovered her through her Stargate SG-1 stories and then fell in love with her Harry Potter epic, The Changeling, where Ginny is sorted into Slytherin. I’ve reread that particular story so many times. It’s absolutely incredible: she’s filled out the world of Harry Potter so beautifully, creating real depth to the different houses and characters, both canon and original. I mean, I could talk about it forever. It’s so freaking good.
My piano – My piano and I have been good friends this year, especially since the pandemic began. Between the nerve pain in my left hand that’s made guitar playing all but impossible and the soothing lower octaves of the piano, I spent more time at my piano this year than I probably ever have before. Between the calming sound and the concentration blocking out my anxiety, it’s been one of my favourite things to do. I’ve played so many songs and written quite a few too and it’s another of the things that have kept me going through the pandemic.
The music that got me through this year – I mentioned several songs in my 2020 in Songs post but those were my absolute favourite songs of the year. There were so many more songs and so many more albums that inspired me and encouraged me and helped me to cope with all of my emotions this year and I’m so grateful to every artist that gave me that gift. I’m going to write about a couple specifically but I also want to mention Sara Bareilles (both for seeing her in Waitress several times and for her new music), Halsey, Kelsea Ballerini, and Maren Morris for their various contributions throughout the year that made things just a little easier. I hope I’m not forgetting anyone but if I discover that I have, I’ll come back and add them.
Kalie Shorr – I am so grateful that I walked into that Tin Pan South/Song Suffragettes show in 2016 and saw Kalie play. There were so many shows I could’ve gone to and yet, somehow I ended up at that one and it has had such a big impact on my life. I mean, I wouldn’t have gotten to play at a Song Suffragettes show if I hadn’t gone to that show. But my point here is that I heard Kalie’s music for the first time that night and since then, she’s released the Slingshot EP, the Awake EP, her debut album, Open Book, and Open Book: Unabridged, a reissue of the album with four additional songs. Her artistry and songwriting got better with every project but each one still holds a special place in my heart. I love her music and I learn so much from her as a songwriter. She is one of my biggest musical inspirations and I hope that, at some point, I will develop as distinctive a voice as a songwriter and artist as Kalie has. So I guess that’s why I’m grateful for her in general but I’m also especially grateful for all she’s been doing this year. Throughout the pandemic, she’s done so many livestreams on various platforms, which has been really awesome. We’ve gotten interesting and funny stories, acoustic songs, previously unheard songs… it’s been great. And while I’m obviously still enjoying them, they were particularly important to me during the early days of the pandemic when my mental health was really bad; they really helped me keep going. She’s also been part of various other musical projects, puts out a podcast, is consistently hilarious on Twitter, and released the previously mentioned Open Book: Unabridged. I’d hoped to see her this year on my trip to Nashville but then said trip was cancelled by the pandemic. I’ve met her a handful of times and she’s so lovely. I wish I lived in Nashville; then at least there’d be a chance of us being friends and writing together. I’d love that. I admit that my insecurities do sometimes get the better of me and I struggle with, I guess, comparison anxiety (how well she’s doing vs. how I’m doing) just because I want to have a career in music so badly and have so many fears over why it won’t happen, but I’m still endlessly grateful for her and everything she does. Her music has changed my life for the better in so many ways and I appreciate that more than I can say.
Taylor Swift – Despite remaining largely out of sight during the pandemic, Taylor had a massive year and by extension of that, a massive impact on my year. Her documentary, Miss Americana, came out in January, of course, which was incredible; it felt like a great honour to be let into her life like that, especially during the moments that were really difficult and personal. She also released the City of Lover Concert on Disney+, which was really cool (although it was sad that her pre-Lover songs couldn’t be included); I’d so desperately wanted to go (especially since it was so close, considering that Taylor’s a US artist) but it was just too big a risk with my health and my finances as they were. So I’m really grateful that I got to see it in some form. Even though we got folklore and evermore out of the lockdown, I still want to mention the cancellation of Lover Fest. Even though it wasn’t unexpected, I was absolutely gutted; that and my Nashville trip were the top two most painful cancellations of the pandemic. I was so looking forward to it – the times I’ve seen Taylor live have been some of the bright spots over the last five or so really difficult years – and to have that ripped away was really hard (in a parallel year that I’ve daydreamed up, it still happened and it was glorious). But then we got folklore, folklore: the long pond studio sessions on Disney+, AND evermore, all in the space of about six months. I don’t know about anyone else but my head is still spinning. folklore and evermore are both incredible albums (I’m currently writing blog posts about them because I love them so much) with so many amazing songs that I’ve completely fallen in love with. They’ve also been hugely inspiring for me as a songwriter, which the long pond studio sessions only added to when Taylor talked about the songs from folklore and the processes behind the writing of them. She has just been a very inspirational figure for me this year (she always is but, again, this year has been a real example of that): as a songwriter and general creative person, handling the ongoing situation around her Masters with so much grace, speaking out during the US election and giving the Democrats her song, ‘Only The Young,’ to use in their campaign, being a really good example around safety during the pandemic… I’m so grateful for all she does, for how inspiring she is, for how much she CARES. I’m grateful to have her to look up to. I’m still hoping that I’ll get the opportunity to tell her that one day.
Agents of Shield – I was gutted to hear that this year’s season was going to be the last but damn, do they know how to go out with a bang. I wasn’t convinced about the time travelling element at first but I ended up really getting into it and I loved how, even though they stopped the Chronicoms each time, time still changed and they ended up in a drastically different present. Every episode was really, really good and a few of them were standouts of the entire show (7×09 – I’m just saying…). I loved the stories, I loved the development of the characters, and I loved the ending. It was perfect. I was sobbing throughout the last few episodes because it was so powerful and emotional. Daisy Johnson is my hero. I will love her forever. I will love this show forever. I’m so grateful to have discovered it, to have had it in my life, and to move forward with everything the show gave me. There may be no new episodes but that doesn’t mean it’s over; the impact it had on so many people will never be over.
The new swimming pool we found – Late in the summer, we found a swimming pool that was really strict about their safety guidelines and having not felt safe at my previous pool, I was so appreciative of that and so excited to get to swim again. It wasn’t as often as I would’ve liked but anything was better than nothing after months of not having access to a pool or not feeling like it was safe to be at a pool. It just felt so great to get proper exercise and really use my muscles again after not being able to since before the pandemic. I love this pool, especially when they turn the main lights off and the room is just lit by the underwater lights; it’s so soothing and just a really good atmosphere to exercise in. I always feel so good afterwards.
The benefits I receive – I am so unbelievably grateful for the benefits I get, more grateful than I can truly express. As a disabled person who struggles physically and mentally, I’m constantly worrying about money because my health is so unreliable and therefore steady work or a steady work flow can be really difficult or even, at times, impossible. So the financial support has been amazing and so important for my mental health, especially during this year of constant uncertainty.
The (medical) progress I’ve made despite the pandemic – Despite everything moving slowly due the pandemic (my rheumatology referral, for example, took about nine months), we’ve learned a lot about my body and my brain this year and we’re in the process of exploring the options, the avenues we have to choose from. I made medication changes, we chased more options for helping my CFS, was tested for a Vitamin D deficiency and given a high dose supplement to bring my levels up again, I was diagnosed with hypermobility, I finally had the rheumatology appointment and have been referred on to a handful of different departments. I’ve had a MRI, I’m due to have an ECG, and will hopefully start hydrotherapy as soon as it’s available, although I’ve already started doing the basic exercises I was given. And we’ll see what the other departments say. Oh, and I have another mental health evaluation coming up soon, which may give me some more information so, despite everything, we have made progress and progress that is hopefully leading to more progress. As hard as it can be day-to-day, I’m really pleased about that.
The result of the US Election – I mean, this one is pretty obvious. I was so terrified that Trump was going to get in and it was so scary to have no say or way to help. The days of waiting for the final result were agonizing and when I found out that Biden had won, I actually cried. No, he’s not perfect but he’s far, far better than Trump and I’m so grateful, in this regard at least, to finally have some hope rather than fear and horror and frustration.
My tutors – Of the two semesters I had this year, all of my tutors have been so, so good. And not just in the ‘being good teachers’ sense (you’d hope that was a given at Masters level) but they’ve all been so fantastic about working WITH me to make sure the classes and workload and assessments were as manageable as possible for me with my difficulties. They’ve been so open and supportive and they’ve made the semesters so much much easier; I mean, the work was still hard (but then it’s a Masters Degree so the work is supposed to be hard) but there wasn’t that unnecessary stress that there has been before. I’m still anxious about my grades but that’s practically a personality trait. Anyway, they’ve been absolutely wonderful and I so appreciate it.
The experience of the Honest EP – The first track of the EP, ‘Bad Night,’ came out in 2019 but the other four came out this year, including accompanying music videos and additional content like remixes and behind the scenes for the songs and videos. Making and releasing and promoting all of that was often really stressful but so much of it was really fun too. The beginning of the year was really fun: releasing ‘Clarity‘ and see it do better than ‘Bad Night,’ doing several really fun gigs with really lovely people (there was a really awesome moment where everyone was waving their phones with the flashlights on and another where everyone got really into the song, dancing and even singing along despite it being the song’s first outing), playing my university’s songwriters’ circle, a weird and wonderful studio day… and then the pandemic hit. My mental health took a real dive but things kept moving. I released a remix of ‘Clarity’ with an accompanying music video, which was definitely a new experience. Then I released ‘Sounds Like Hope‘ along with the gorgeous music video animated by Lois de Silva. I saw myself on TV when the music video for my debut single, ‘Invisible,’ was played as part of Brighton’s virtual Disability Pride Festival. Richard and I managed to film and edit the music video for ‘Back To Life‘ (during a period when it was safe to do so – we were very careful about that) in time for the planned release of the song. Even though shooting that video was super stressful, I was still able to have fun: it’s such an upbeat song that it was really fun to prance around to and even though the sea was freezing and the pebbles were painful to stand on, messing around in the shallows was actually kind of joyful. So the song and video came out and then, at the end of October, the fifth and final track, ‘Honest,’ came out, which was really exciting. It did really well and Richard and I celebrated the day with a dance party and a shot (I can’t speak for Richard but I’m a lightweight). It was a really fun day. We put together a music video for it, using clips from this whole bizarre journey; it felt very fitting for a song called ‘Honest.’ And as of this moment, the EP has surpassed 35,000 streams on Spotify, which I’m both really proud of and really grateful for, grateful to everyone who took the time to listen to these little songs that I wrote. There have been so many beautiful moments during this journey and it’s not even over yet; there’s still more to do and more to come. It’s been incredibly stressful but I’ve never felt so strongly that I’m in the right place as when I’ve been working on this project and performing these songs. I’m so grateful to and for all of the wonderful people who’ve worked on this project with and supported me through it, especially Richard and Mum. I couldn’t’ve done this without them. I’ve learned so much and gained more than I could’ve imagined (not financially unfortunately but in so many other ways). This project has changed my life and I’m beyond grateful.
The ‘little’ things – There were just a handful of things that I wanted to mention that there wasn’t really enough to say about for each of them to have their own bullet point but I didn’t want to leave out: my neighbour rescuing my cat when she got stuck up a tree even though he later told us he was afraid of heights; my brother doing a gorgeous job on creating a brand new leg for one of the china horses I got from my Dad (we think it got broken when we moved house); my therapist; the new cat tree and how adorable it is when all of the cats curl up on it at once; Tin Pan South still going ahead, if virtually rather than physically; the concerts I got to go to pre-pandemic; being able to dye my hair at home… I’m sure there are more but these are the ones that are coming to mind as I write this. Again, if I remember any others, I’ll come back and add them to the list.
So there you have it. This ended up a whole lot longer than I meant it to be but I think I am just really grateful. This year has been horrible in so many ways but it’s just made it really clear to me how good the good things are. And, as always, there have been some unexpected surprises along the way, things I never could’ve seen coming. I’m sure there are more things I could add but I’m gonna stop and go and do my Christmas wrapping. I hope you all have the best Christmas possible under these weird, hard circumstances. I hope you feel the things you need to feel and do things that make you feel good. Life is hard right now and no one should have to pretend otherwise. So I hope you’re looking after yourselves and I’m sending you big, virtual hugs.
Category: about me, animals, anxiety, autism, chronic fatigue syndrome, covid-19 pandemic, depression, diagnosis, emotions, favourites, holidays, medication, mental health, music, treatment, university Tagged: 2020, agents of shield, amazon prime, annerb, asd, autism, autism spectrum disorder, autistic, autistic adult, back to life, bad night, benefits, best friend, black labrador, cat, cat family, cats, christmas, christmas eve, clarity, coronavirus, covid-19, debut ep, disability, disability support, disabled, dog, ep, exercise, facetime, family, family of cats, fanfiction, film, films, financial support, friends, grateful, gratitude, health, honest, honest ep, hypermobile, hypermobility, kalie shorr, keyboard, lockdown, lockdown 2.0, lockdown 2020, loss, loss of a pet, lucky, masters degree, masters degree in songwriting, masters degree year two, masters part time, mother, movie, movies, mum, music, music video, music video release, music video shoot, netflix, netflix party, pandemic, pandemic 2020, pandemic anxiety, pet, pet loss, pets, physical health, piano, richard marc, richard sanderson, singer, singersongwriter, singersongwriter life, single, songwriter, sounds like hope, streaming, swimming, taylor swift, the changeling, tv, tv show, university, us election, us election 2020, zoom
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter (and currently studying for a Masters in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
I’m currently releasing my first EP, Honest, track by track and all five songs are now available on all major music platforms. However, there’s still more content to come…