Posted on February 26, 2019
In the afternoon of the 26th February 2018, my gorgeous cat Lucy had her second litter of kittens. As with her first litter, she made a nest on one of the levels in my wardrobe and that’s where she headed when she went into labour, after checking that I was right behind her. For both labours, she came in search of me and yowled until I followed her up to my room. She was very insistent. So I went and sat with her; every time I tried to leave, she yowled. So I sat there all day and saw far more than I needed to… But it resulted in these two handfuls of fur: we nicknamed the older, grey one ‘Mouse’ and the younger, tabby one ‘Tiger.’
(Day 1 – 27th February 2018)
They were gorgeous. Utterly gorgeous. They were soft and warm and just so cute. I loved every minute with them and as you can imagine, I spent most of their kittenhood with them in my bedroom. Watching them grow and explore and experience the world around them was enchanting: they are so completely and fully engaged with everything they do, from eating to playing to getting into trouble. Your whole world shrinks down to the room you’re sitting in. It’s very mindful to watch. And I found their innocence very healing. Then (and now) they look at me with such trust that it takes my breath away.
When they were two months old, we moved house. Of all of us, the cats were the least traumatised: they continued to eat, sleep, and play. They even ventured outside and fell in love with the garden. I don’t think there’s anything as cute as kittens pouncing on long grass.
I was very distressed by the move (and still am to some extent) and it really exacerbated both my depression and my anxiety. So I found it very difficult to know how I felt about anything, let alone something as significant as whether or not we should keep the kittens. I was also repeatedly weaning myself on and off different medications, which did a number on my emotions. It was a mess. I was a mess. A very sad mess.
Eventually we decided to keep them. I still felt very unsettled but I figured that since there had been so much change, a little more wouldn’t make much difference (in the context of my anxiety). We’d thought about it a lot: before they were born, we’d entertained the idea of keeping one but after getting to know them and watching how bonded they were right from the start, I knew that I couldn’t keep one and give away the other. We couldn’t keep two out of the little family of three.
Not long after we made that decision, Lucy started getting really irritated with them, hissing and swiping at them as they approached and even going out of her way to have a go at them. And when that showed no signs of stopping, I started to get really upset. That coincided with a medication change that made me so anxious all I could do was cry. I was terrified I’d made a huge mistake, that I shouldn’t have kept them but now I loved them too much to let them go, keeping us trapped in this very stressful situation. It was excruciating.
Fortunately, things have been better recently. They’ve all started to bond again and I often find them all snuggled in a bed together, legs and tails everywhere. It’s completely adorable. We even bought them a cat tree that has both a nest and a mouse on an elastic string; they absolutely love it and I get such joy from watching them play.
Now, I’m not just writing this because I love talking about my cats. Today is the kittens’ birthday and that seemed like a good opportunity to reflect on the choices, the anxiety, and all the emotion that has gone into this experience so far. I haven’t got it all figured out yet. I still don’t know if I made the right decision and maybe I never will. Maybe it’s just a case of learning to live this life that I’ve chosen, just as we learn to live with every choice we make, sometimes quickly and sometimes slowly. But regardless of all of that, I love my animals and I’m grateful to have them in my life. Hopefully that’s enough.
Posted on February 23, 2019
I’ve now been taking various medications for four and a half years. It’s been a very mixed experience but through it all, I’m an advocate of medication because when we get it right, it’s incredible. A whole new person emerges, a person you’d forgotten you could be and that is the most amazing experience. It’s the closest thing to freedom that I’ve ever felt. But during that time, there have been a number of interesting and strange experiences. I don’t know if reading about them will be helpful to anybody but all of this stuff can be so scary if you think you’re going through it alone. So I’m putting it out there, just in case.
I’ve written about this before but it makes sense to include it here as well. Because of several very busy days, I forgot to take my Venlafaxine and accidentally went into withdrawal. It started with an almost debilitating headache and on day four I woke up unable to think clearly. I couldn’t hold on to a thought: they were moving so fast that it made me feel dizzy and sick. On my Psychiatrist’s advice, I resumed the medication and I started to feel better pretty quickly although it took about a week before I felt like myself again.
Too much Pregabalin
At one point, I picked up my prescription and didn’t realise that the pills were at different doses than the previous prescription had been. So when I thought I was taking 150mg, I was actually taking 450mg. I woke up the next morning feeling shocking: I felt like my head was filled with cotton wool, the ground was moving under my feet like ocean waves, and my legs and hands kept twitching. It was awful and because I wasn’t aware that I’d changed my dosage, I was really freaked out. I ended up at the out of hours doctors because both me and my family were so worried. They didn’t find anything serious so we were left to wait and see but then my Mum realised what had happened. So that was a scary experience that I have no desire to repeat; I’m much more diligent about checking these things now.
Obsessive eating with Amitriptyline
Almost from the moment I started taking Amitriptyline, I was obsessed with eating, constantly thinking about what I could eat next, what it would taste like, what it would feel like. It was very much about the sensation of eating rather than being hungry. And the higher the dose, the more I wanted to eat. It was all I could think about. Seriously. I couldn’t think about anything else; I couldn’t function. It eventually caused me so much anxiety that I had to stop taking the Amitriptyline and try a different medication. I’d lost a lot of weight while on previous medications but I gained it all back while taking Amitriptyline and I found that very stressful and upsetting.
Taking Diazepam with Redbull
During a period of particularly high anxiety, I was taking Diazepam regularly throughout the day. The anxiety lifted but what was left was this overwhelming tiredness and sleepiness that had me falling asleep in the middle of the day, sometimes mid sentence. So I started drinking Redbull to keep myself awake and functioning. It wasn’t until a few weeks later – when I used Redbull to wash down the Diazepam – that I realised that it was the Diazepam that was making me so sleepy and that this was not something I could continue to do (not that Diazepam had ever been a long term strategy). I’d been taking it to ease the transition between medications and fortunately my anxiety started to go down and I didn’t feel the need to keep taking it.
Running out of Pregabalin
At one point, I ran out of the 225mg capsules, which didn’t seem like a problem because it was less than a week until my next appointment and we still had a load of Pregablin pills from earlier prescriptions, when we were still trying to get the dosage right. But then we realised they were 50mg capsules that you couldn’t split in half so I wasn’t going to be able to take my full dose of 225mg. I’d have to take 250mg or 200mg and the safer course was the latter. So I did several days on 200mg with pulsing headaches to remind me exactly why you take the exact amount you’re prescribed.
Too Much Magnesium?
This is speculation but not long after I started taking a Magnesium supplement, my mood seemed to nosedive. I’d been doing pretty well and was actually having bursts of what I think was happiness and so I’d felt able to add the (nutritionist) suggested supplement into my system. Nothing happened straight away and taking it became a habit but then depression started to creep in again. The only thing we could attribute it to – the only change – was the addition of the Magnesium. I’ve always been incredibly sensitive to stuff like this (I once threw up moments after taking a different supplement because it had too much copper in it) so I stopped taking it and within a couple of weeks, I felt more like myself.
Twitching on Pregabalin
The one real side effect of taking Pregabalin – in my experience, at least – is that it causes twitching, mostly in my legs but sometimes in my hands and arms too. It’s very disconcerting to not feel in control of my body and I really, really don’t like it. But as of now, Pregabalin is something I need to get through the day. It helps me manage my anxiety but if another option became available, I would jump at the chance to change, even with all the potential problems of switching medications.
I hope I haven’t put any of you off medication. These experiences weren’t fun but as I said, getting it right is worth it. At least I hope so.
Category: depression, medication, mental health, treatment Tagged: amitriptyline, anti anxiety, anti depressants, anti-depressant, antianxiety, antidepressants, diazepam, magnesium, medication review, medication withdrawal, mental health treatment, pregabalin, supplement, treating depression, tricyclic antidepressants, venlafaxine
Posted on February 16, 2019
I’m struggling creatively. I’ve actually been quite productive recently (in the creative sense) but my creative confidence has been really shaken by this recent episode of depression. I tried not to think about it but I had (and still have to some extent) this deep fear and this deep dread that I’ll never write songs again, not in the way I wrote them before. I have this fear that it will never be easy again, never be truly fun and that’s left me feeling very insecure and vulnerable. So I could use some encouraging words…
“Go into the arts. I’m not kidding. The arts are not a way to make a living. They are a very human way of making life more bearable. Practicing an art, no matter how well or badly, is a way to make your soul grow, for heaven’s sake. Sing in the shower. Dance to the radio. Tell stories. Write a poem to a friend, even a lousy poem. Do it as well as you possibly can. You will get an enormous reward. You will have created something.” – Kurt Vonnegut
“Write like it matters, and it will.” – Libba Bray
“Give up the notion that you must be sure of what you are doing. Instead, surrender to what is real within you, for that alone is sure.” – Baruch Spinoza
“You own everything that happened to you. Tell your stories. If people wanted you to write warmly about them, they should’ve behaved better.” – Anne Lamott
“Art is just another form of screaming.” – Unknown
“Write to write. Write because you need to write. Write to settle the rage within you. Write with an internal purpose. Write about something or someone that means so much to you, that you don’t care what others think.” – Nick Miller
“You don’t have to be the best guitar player, or have the best voice, or even be the best looking person – writing a song that moves people is worth more than all the other nonsense (just look at Bob Dylan: he’s got almost no vocal range at all, but his songs are deeply moving and iconic). If I had to offer one piece of advice: write a song that moves people, and write it from within yourself. Your personal narrative is more engaging and moving than anything else you can imagine in your mind.” – Ryan Ross
“Your intuition knows what to write, so get out of the way.” – Ray Bradbury
“You can’t use up creativity. The more you use, the more you have.” – Maya Angelou
“There’s a phrase, ‘sitzfleisch,’ which means just plain sitting on your ass and getting it done. Just showing up for work. My uncle Raphael was a painter, and he used to say, ‘If the muse is late for work, start without her.’ You have to be there. You have to be there, and do it, and grind it out, even when it is grinding and you know you’re probably going to rewrite all this tomorrow.” – Peter S. Beagle
“In a time of destruction, create something.” – Maxine Hong Kingston
“Write because you want to communicate with yourself. Write because you want to communicate with someone else. Write because life is weird and tragic and amazing. Write because talking is difficult. Write because it polishes the heart. Write because you can. Write because you can’t. write because there is a blackbird outside of my window right now and oh my god isn’t that the best start to the day? Write because you’re trying to figure yourself out. Write because you might now ever figure yourself out. Write because there still aren’t enough love poems in the world.” – Dalton Day
“You have to believe. Otherwise, it will never happen.” – Neil Gaiman
“Just speak your truth; it’s an important cornerstone of how your life ends up sort of unfolding in front of you. Even if it’s painful, if it’s honest, it’s going to bring you to the place you deserve to be.” – Sara Bareilles
“To the storytellers: type, scribble, scrawl, write, scream your story into existence, and whatever you do, don’t look back.” – Jonathan Stutzman
“There are three rules for writing a novel. Unfortunately, no one knows what they are.” – Somerset Maugham
“Don’t be strategic or coy. Strategic and coy are for jackasses. Be brave. Be authentic.” – Cheryl Strayed
“Write it badly. Write it badly, write it badly, write it badly, write it badly. Stop what you’re doing, open a Word document, put a pencil on some paper, just get the idea out of your head. Let it be good later. Write it down now. Otherwise it will die in there.” – Brandon Sanderson
“We have to create; it is the only thing louder than destruction.” – Andrea Gibson
“Today, just like yesterday, I woke up, picked up my pen and notebook and kept on writing.” – Laura Jane Grace
“You have to write the book that wants to be written. And if the book will be too difficult for grown-ups, then you write it for children.” – Madeleine L’Engle
“By all means break the rules and break them beautifully, deliberately, and well.” – Robert Bringhurst
“Write about what you need to write about even it’s just love poems. The world could always use at least six more love poems. And don’t let anybody tell you otherwise.” – Trista Mateer
“If there’s a book that you want to read, but it hasn’t been written yet, then you must write it.” – Toni Morrison
“You must stay drunk on writing so reality cannot destroy you.” – Ray Bradbury
“You don’t have to be great to start, but you have to start to be great.” – Zig Ziglar
“Write down everything, even if it’s painful. Especially if it’s painful.” – William Babin
“There are poets who sing you to sleep and poets who ready you for war and I want to be both.” – Ashe Vernon
Again, if you guys have any quotes that inspire you, please let me know. I’m always looking to add to my collection.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.