Posted on January 27, 2020
This blog post is probably more for me than for you but since this is my blog, and a place I record my thoughts about my life, it felt important to write and post. A lot has happened in the last decade and I wanted to write about some of it, especially the bits that I know I will carry forward and even the bits I’ll leave behind, because I don’t need them anymore or because they’re damaging to the person I’m growing into.
There are a handful of things that I think are important to include – for context – before I write about this decade because otherwise important things won’t make sense. I moved from London to Brighton when I was six, eventually made friends and then lost all of them when I was 12, made some much better (amazing) friends, struggled with Glandular Fever and then Chronic Fatigue, which has continued to affect my life. And in 2008, my Dad died fairly suddenly. So I brought a lot into the 2010s.
So I’ve collected up some of the big things that happened in this last decade. I thought I’d write a little bit about them from a perspective ten years on.
Ingrid Andress at The Courtyard Theatre in London (2019)
Photographer: Andy Voakes Music Photography / bigbearphotographybrighton
At the Holocaust memorial in Berlin, Germany (2011)
So there you have it: a rough guide to my decade. I hope this wasn’t boring as all hell because it was very therapeutic for me. So, yeah, I hope you like it. Have you written something like this?
Posted on January 19, 2020
Today I posted a new video, telling the story behind the inspiration, the writing with Imogen Davies, and the production of my current single, ‘Clarity.’ I’ll let you watch the video but again, it does relate to mental health so I wanted to post it hear, as well as on my social media. I haven’t explained the experience that gave me the idea because I don’t want to get in the way of the way someone applies the song to their life or interprets the story. It’s a song about something difficult so I feel weird saying, ‘I hope you like it!’ but I hope, when you listen to it, it means something to you. I hope it makes you feel something.
If you haven’t heard the song yet, you can buy or stream it here and the music video will be out soon.
Category: depression, mental health, music, self harm, video Tagged: behind the song, bts, clarity, cowriting, honest, honest ep, imogen davies, inspiration, lauren alex hooper, mental health, mental health awareness, mental illness, production, recording, self harm, singersongwriter, single, songwriter, songwriting, story, video
Posted on January 18, 2020
Now that I’ve finished my assessments, I thought it might be an interesting idea to sit down and write about my experience of the first semester of my Masters Degree. Because I’m doing it part time (mainly to protect my mental health), I’m only doing one module rather than two, which is what the full-timers do. The module I did was called ‘Creative Process’ and it was four hours of uni time, a two hour seminar where we talked about different areas of the creative process and then a two hour workshop where we played the songs we’d written based on the ideas and concepts we’d talked about the week before. It was a really interesting module and I wish my mental health had been better so that I could’ve focussed and enjoyed it more.
I feel really lucky when it came to my group and my tutor.
My group was only about nine people (when the other groups were much larger as far as I know) and they were all absolutely lovely. We were all really different, both musically and life experience wise (but I guess that’s what happens when you get to Masters level), which was really interesting when it came to writing and socialising and… just everything. It was a completely new experience and one that I’m really grateful for. Up until now, I’ve mostly been surrounded by people my own age with similar experiences.
Everyone was so, so good, all in their own way. They all had their own style (some had particularly beautiful musical signatures, some wrote from interesting perspectives with thoughtful lyrics, and so on) and it was so interesting and exciting to see how they developed over the semester. We were and I know will continue to be so supportive of each other’s music and development as songwriters. It always felt safe to bring in something I felt unsure or insecure about and the feedback was always constructive and because the person wanted you to get better; I never once felt like someone was being mean or looking down on me. It was such a supportive atmosphere and I’m so grateful because I think that was a huge part of what helped me to grow so much as a writer.
I made two really good friends in particular, both of whom I’m still in the same group with to my absolute delight. They’re truly beautiful souls. One of them, Luce Barka, wrote this amazing song during the semester and has said she’s happy for me to share it with you guys. I really, really recommend it…
I also had a fantastic tutor, Isobel. She’s a really cool, independent singersongwriter, which I think made her an especially good teacher because she’s very immersed in the industry we’re all trying to get into, in her own, distinctive way. She’s also dealt with serious health problems (which she has talked about publicly so I’m not breaking her confidence or anything) so I felt like she was a really good tutor, especially for me. She understood, or had a kind of understanding, of what I deal with. She was a really, really great tutor, in discussions and when giving and guiding feedback. But for me personally – and this is my blog after all – she was incredible when it came to helping me manage the course against all of my issues. When my anxiety was overwhelming, she helped me adjust the tasks to make them easier while still allowing me to do the task and learn the skills. I am massively appreciative of how accommodating and generous and kind she was, even before she received the Student Support Agreement (the document with all my information and recommendations).
Anyway, she was amazing. I learned so much, obviously from the course but also from the way she delivered it and the feedback she gave me. I feel like I’ve grown so much as a writer and I feel like she’s a really big part of that. Plus, I’ve never had a teacher who was so understanding, who helped without hesitation, with just my word to guide her. I can’t properly express how much I appreciate that. It’s never happened to me before and it felt so wonderful to be treated as if it was something you just do, rather than being made to feel like a burden or an obstacle to be manoeuvred. So, as much as I learned (and I learned a lot), that is what I’m most grateful for and one of the things that I will always remember about this semester.
The first few weeks were really, really tough. After my massive meltdown in Victoria station, I was having meltdowns every day (as I wrote about here), which was having a big impact on my mental and emotional health, also leaving me physically exhausted. That significant meltdown was triggered by an email from the Disability Coordinator (who was also an Autism Specialist), suggesting a very last minute change of plan for our scheduled meeting which still leaves me bewildered. As an autistic person, sudden changes of plan are known to be highly problematic. That, plus my existing anxiety, caused a massive meltdown that took a very long time to recover from. And it left me feeling less than confident in her ability to support me even though we had had a positive first meeting and I had left feeling cautiously optimistic that this time it might be different. It then didn’t improve as actions promised at that meeting didn’t get done, leading to more meltdowns. So that was a real complication and painful part of the semester.
Having said all of that, I loved the classes. We learned about songcraft, collaborating, imposter syndrome, professional practice, perfectionism, and so much more. It was fascinating and fun and the briefs, while often stressful (with only a week to write the song), were interesting and challenging. I wrote some songs that I’m really proud of and I feel like my songwriting grew a lot because the briefs were challenging.
We watched this video in one of the classes and I thought it was really good so I thought I’d share it:
I loved it – loved getting better at songwriting – even the bits that pushed me and made me feel uncomfortable.
However, out of class was another matter. We were expected to do research that would later become the foundations of our assessment essay and presentation. Except whenever I asked, they wouldn’t tell me what the assessment entailed and just said it was ‘self directed learning’ so I didn’t know what I was actually researching, which caused me terrible anxiety. I created a reading list of books, articles, and interviews about creativity and songwriting but as hard as I tried to do the work, my OCD – my need to write everything down – battled against it. And usually won. So if I wasn’t writing, I was reading. I had no downtime. I was constantly anxious, like, end-of-the-world-anxious. And I felt like I was failing.
They explained the essay and presentation in the last couple of weeks but I still didn’t really understand. The language was complicated and vague and while I understood the general idea, the grading criteria was pretty ambiguous. I didn’t know what I had to do specifically to get good grades. I need clarity. It was incredibly stressful.
It took a couple of last minute meetings with my module leader to really understand what was expected of me but I was now facing a myriad of problems. The research I had been doing had little relevance to the subject I was writing about so I’d have to redo all of that, as well as actually write the essay and prepare the presentation. Plus we were in the final two weeks of the semester and the university would soon be closed for the Christmas holidays so I would have no way of contacting anyone for any support. I was wound so tight I felt like my spine might snap. I felt like I couldn’t breathe. I’m really grateful for those meetings but I just wish the assessment had been clearer earlier in the module so the research I was doing could’ve been more focussed. With all the problems associated with Autism, like chronic fatigue and chronic pain, time is something I have to be incredibly thoughtful about.
I worked every day of the entire holiday (apart from Christmas Day, which I spent with my family – something I don’t often get to do) but the assessments were always in my head so I felt like I couldn’t take a break or have any time to rest and recharge. I still didn’t feel sure that I was doing it right but still, I worked hard on it and gave it everything I had. I finished both the essay and the presentation with time to spare, allowing myself time to redraft and prepare, giving myself the best chance of doing well. I submitted the essay, despite big technical problems with the system, and I did my presentation to the best of my ability, despite finding presentations incredibly difficult. Now I just have to wait for the marks.
Now, having run through the whole semester (and having reflected a lot on the difficulties), I just wanted to share a couple of specific, positive experiences:
Overall, it was a very mixed bag. The good moments were great and made me feel amazing. I got a lot out of it. But I spent a lot – A LOT – of the semester in crippling anxiety and I had a lot of meltdowns. It was fucking hard. And the marks haven’t even come back yet. I’m terrified that I’ve done horribly. But I’m trying not to think about it. I’m just trying to get through this new semester. Which may be even more stressful than the last.
Category: anxiety, autism, holidays, meltdowns, mental health, music, ocd, university, video Tagged: anxiety, asd, assessment, assessments, autism, autism spectrum disorder, autistic, christmas, christmas holiday, creative process, elizabeth gilbert, essay, first semester, i'm with you, luce barka, masters degree, masters degree in songwriting, meltdown, meltdowns, mental health, mental illness, perfectionism, presentation, research, review, semester, songcraft, songwriters, songwriting, student support agreement, tedtalk, tutor, university, video
Posted on January 11, 2020
So, for those of you who don’t know, DSA stands for Disabled Student Allowance, something you can apply for as a disabled student to help you get support during your university experience. They can help you with technical support, in uni support like 1-to-1 sessions, and so on. You apply for an assessment and then, if you get one, you talk with the assessor about the support you need, discuss what DSA can provide you with, and then they make a recommendation.
I had an assessment during my undergrad degree and they were really good. They provided me with a load of useful tech, including a macbook, a handheld recorder, and several pieces of software to make doing my work easier. I was (and still am) really grateful, even though the laptop’s memory isn’t actually big enough to run all of the software. It was still a laptop and a much lighter one than the one I had, which made commuting a lot easier – I was coming home with bruises from the bag I was carrying because it was so heavy.
The at uni support was less helpful. The first person I saw acted like a therapist (which I’m not sure she was supposed to be doing) and I already had a therapist so that wasn’t helpful. I spent the hour answering questions about my mental health and my Autism that I’ve answered a hundred times before. So I didn’t continue with that. And the second person upset me so much that I left before the session finished.
So it was a mixed experience but I’m endlessly grateful for the laptop because the old one was causing me serious problems.
I had to redo the application process for my Masters as what they offer is different and today I finally had my assessment – between the disability coordinator being very unhelpful (an understatement) and the semester being incredibly stressful, we’d just kept postponing it. It was too much to manage. But recently we finally managed it and it was a complete nightmare.
The guy was nice and we discussed everything – the problems with the disability coordinator, my first semester, my general experience of life, what would make university easier – but when it came to talking about what support was possible, it was very disappointing and upsetting.
This is despite the fact that I need a light laptop, due to the chronic fatigue and pain I struggle with and an Apple one to run the software I need for the course. But apparently this is because these are ‘course specific’ needs rather than disability needs, yet I – a disabled student – can’t do my course without them.
This is because, apparently, I choose to live at home rather than living in London like most students studying in London despite the fact that I am unable to live alone and look after myself because of my disabilities. Apparently, this would give me an advantage above other students, which is bullshit because in reality, it would simply put me on a level playing field because I am disadvantaged by my disability. And the amount of effort that would go in to justifying each cab trip to Student Finance when Mum usually takes me (because they won’t simply give you an allowance for it) would take more effort and energy than I have to spare on something used so rarely.
And uni support wise:
So I will continue to have no specialist support at uni.
There was a moment during the discussion that I just realised that they weren’t going to help me and that I was going to be left unsupported, abandoned, again. And I just started crying. They’re not going to provide me with any support because my needs don’t fit their guidelines, because my disability doesn’t fit with their idea of disability. The assessor said it happens to a lot of people like me. I’m not sure why he told me this. Is it supposed to make me feel better? Because it doesn’t.
We’d run out of things to discuss so the assessor left the room to give us a few minutes to talk and I just started sobbing. I just feel so unsupported. I feel so let down. These are people who are supposed to help me. Their very job is to help me and they are… letting me down. There was nothing to talk about and I was moments away from a meltdown so Mum packed me up and we headed for the door.
I was passing through the door when I saw this:
What a joke. What a fucking joke. I’d walked in there calm and was walking out feeling… I don’t even know how to explain it. Just devastated all over again, I guess. I’m so tired. I’m so tired of working so hard to prove to everyone that I need help only to be ignored time and time again. I’m tired of being dismissed and invalidated because I don’t fit someone else’s arbitrary concept of something they have no real idea of but that I live with and suffer with every day. I’m tired of nobody thinking that researching or training in the understanding of Autism is important. I’m so tired. Of all of this.
Mum pointed out to the assessor how ironic the flyer was. I think offensive or appalling are more appropriate given the previous hour and a half but whatever. I cried all the way home and for a long time afterwards. I don’t know what to do now.
Obviously this is just one person’s experience. I’m not sharing this because I want people to avoid applying for DSA. It helped me during my BA. But I just don’t want anyone going into it without knowing how hard, how upsetting, how traumatic it can be. Getting benefits of any kind can be a real struggle and this one is certainly no different.
Category: anxiety, autism, depression, event, meltdowns, mental health, university Tagged: asd, autism, autism spectrum disorder, benefits, chronic fatigue, chronic fatigue syndrome, disability support, disabled, disabled student, disabled student allowance, dsa, dsa assessment, masters, masters degree, student, university, university support
Posted on January 10, 2020
My new single, the second single of the Honest EP, is now officially out! It’s called ‘Clarity’ and is available on all major music platforms!
laurenalexhooper: AND ‘CLARITY’ IS OUT!
I wrote this song a couple of years ago with my friend, Imogen Davies, inspired by the idea of desperately chasing a person or bad habit, a habit that you know is harmful, to find some sort of relief from all of the difficult emotions.
Please, please buy/stream it. It would mean everything to me and all the people who have worked so hard on it. 💜
I’d hoped today would be exciting and fun but it’s turned into a really difficult day instead. I just want to cry and cry and cry. So I’m gonna do all the work for this and then have a gentle, calm day to recover.
I hope you like the song, that it makes you feel something. Please share it around. It would mean the world to me.
Category: event, mental health, music, writing Tagged: addiction, anxiety, clarity, debut ep, depression, honest, honest ep, imogen davies, indie artist, indie release, lauren alex hooper, mental health, mental health awareness, mental illness, my music, new artist, new music, new music uk, new release, new single, pop music, richard marc, richard marc music, singer, singersongwriter, songwriter, songwriting, sunburst records, unsigned artist
Posted on January 4, 2020
So the 19 for 2019 was probably overambitious, especially considering the instability of my mental health. I just didn’t realise how fragile it really was until it crashed. A lot of this year is going to be about looking after and rebuilding my mental health. So this year, I’m going for something a little gentler: a handful of goals that aren’t super specific. They’re more about trying than achieving.
GET BACK TO SWIMMING – For a year, I swam almost everyday and I loved it. It made me feel really good in my body. But then the depression, the medication side effects, the fatigue, and the meltdowns all made that impossible. I was either too unwell or too physically weak. But I really miss it. It wasn’t possible during the first semester of my Masters (my anxiety was so high and I was having so many meltdowns that I just didn’t have the energy) and I’ve spent the holidays working on my assignments but I’m optimistic that this next semester will be a bit gentler and I’ll have the time and energy to start building the swimming in again.
START WEARING MY INVISIBLE BRACES AGAIN – Again, I did really well at this for a while but the mental health crash derailed it and it was just one thing too much. I was going through so much during the day that pressure in my face during the night was just more than I could take. But my teeth haven’t completely regressed so at least I’m not starting from the beginning. I’m wearing them again and it’s uncomfortable and hard but I’m trying my best to focus on the end goal: straight teeth that make me feel confident when I smile.
COMPLETE YEAR 1 OF MY MASTERS DEGREE – Because of the way the part time course is set up, I only have one more semester this academic year and from what I understand of it, it shouldn’t cause me the same levels of anxiety as the last one, as much as I enjoyed it. I’m also kind of looking forward to the assessment because it’s an essay where you can write about anything music related. How cool is that?! All the possibilities! And that’s year one done so all things going well, that should be possible. I’m cautiously optimistic.
CONSUME NEW MEDIA RATHER THAN JUST FAMILIAR MEDIA – With all the mental health stuff, it’s been hard to engage with anything that isn’t safe and comforting. It’s been especially difficult in the last few months when my OCD has been so bad, because it’s hard to concentrate on something new when I’m trying to write everything down. I’m going to be working on that specifically but also my mental health in general this year so hopefully those needs won’t take up so much time, leaving some time for watching, reading, and listening to new things.
GET BACK TO THERAPY AND FOCUS ON MY MENTAL HEALTH – I only went to therapy sporadically in the second half of the year last year because my therapist and I couldn’t get our schedules to match up and because of certain things going on in our lives and although I don’t yet know my timetable for the new semester, we (me, my Mum, and my therapist) are all determined – furiously so – to make it work because I really need the support. Things have gotten really bad and I really, really need the support.
WORK ON NOT COMPARING MYSELF TO OTHERS IN MUSIC – This is probably the hardest one and a lot of the time, it feels unbearable to even think about. While I need to work on not comparing myself to others in general – in all situations – I figure that’s too big a task for such a difficult feeling so I just picked one area. Music has always been my happy place and I want it to stay (or go back to being or something) my happy place and it’s not, when I look at other artists and feel lost and sad and lonely and angry and bitter. So I want to work out – probably with therapy – how to focus on me and not worry about other artists beyond a practical, objective sense. This feels really, really hard so I don’t know if I’ll manage it in a year or whether I’ll even manage to start but I want to so I’m trying to think about it and figure out a place to start because I don’t want to feel all of these things. I want my happy place back.
So these are my goals for this year. It’s difficult to really even think about things like this at the moment because everything feels so, so hard that I just feel overwhelmed. I feel like everything chips off pieces of me and at twenty five, I shouldn’t feel so small. I shouldn’t feel like there’s so little left of me. I’m struggling and I don’t know how to keep going and I don’t know what to do and a big part of me wants to just give up but I don’t know how. How do you give up? Because life just keeps going on without you. I guess that’s why my main goal this year is my mental health because I don’t know what to do anymore.
Category: anxiety, book, depression, mental health, music, ocd, therapy, treatment, university Tagged: 2019, 2020, anxiety, books, comparing, comparing myself, dbt, depression, dialectical behaviour therapy, goals, invisible braces, masters, masters degree, masters degree in songwriting, mental health, mental illness, movies, music, new year, new years resolutions, obsessive compulsive disorder, ocd, struggling, surviving, swimming, therapy, tv shows
Posted on January 1, 2020
In January, I was inspired to try the 19 for 2019 challenge, setting myself nineteen goals to achieve by the end of the year. They didn’t have to be massive goals; they could be one off things to simply try. I was inspired so I came up with nineteen things and gave it a go. Unfortunately, I wasn’t aware of what a hell of a year I was about to experience.
So it’s a pretty mixed bag and considering the year I had, I’m surprised I managed any of them at all. I’ve struggled throughout the year, especially recently, with how little I’m achieving and the frustration and anger and guilt that comes with that, that comes with living with mental health problems and a developmental disability. I’m trying to focus on the fact that, where I could, I tried. I tried to do as many of these things as possible.
Overall, an interesting challenge but I think I’ll try something different for 2020. I haven’t found the right kind of goal system yet so I’m just gonna have to keep looking and keep trying.
Category: about me, anxiety, autism, book, depression, emotions, food, medication, mental health, music, trichotillomania, university, writing Tagged: 19 for 2019, 19 for 2019 review, 2019, 2020, alcohol, anxiety, asd, autism, autism spectrum disorder, blood donation, bone marrow register, book, books, chronic fatigue, chronic fatigue clinic, chronic fatigue syndrome, coffee, depression, fatigue, fawm, february album writing month, goals, guitar, hair pulling, invisible braces, mental health, mental illness, meteor, meteor shower, napowrimo, national poetry writing month, new year, new years resolutions, photo album, photo albums, piano, poetry, reading, resolutions, rock climbing, songwriting, swimming, tattoo, tea, trich, trichotillomania
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
My second single, ‘Bad Night,’ is also now available on all platforms and is the first track from my new EP, ‘Honest.’