Goodbye Moclobemide

TW: Mentions of suicidal thoughts. 

After a couple of months of Moclobemide, it became increasingly clear that it wasn’t really working. It was better than nothing but it wasn’t good enough; I was having less bad days than I’d been having previously but I wasn’t having many good days. I don’t expect constant happiness – I know that that’s not a realistic dream – but I have to believe it’s better than this. But, in order to try something new, I had to get off the Moclobemide first.

I was taking 300mg twice daily before I began to reduce the Moclobemide and I came off it fast. As always, this was a process I discussed with my psychiatrist and we made all of the decisions together, dependent on my medical history and our joint understanding of my reactions to these kinds of medications. This is just my experience. Please don’t start, change, or stop taking any medications without the advice and support of a medical professional.


150mg Twice Daily (+ 20mg Propranolol Twice Daily)

The first phase of the reduction was a little over a week and I didn’t feel particularly different. I was still feeling depressed and hopeless and miserable; I was so incredibly anxious. I didn’t want to be around people: I just felt so overwhelmed and oversensitive. I was feeling pretty unmoored and lost but on the worst days I felt pathetic and unaccomplished and useless. It was awful. Plus, it was a pretty hard week: although I had one really good hangout with a friend, I also had two quite upsetting medical appointments and a migraine that lasted several days.

Sleep-wise, it was still a struggle – as it has been for months. Getting to sleep was frustrating; sometimes it took hours, even on the few occasions that I took sleeping pills (I haven’t found them helpful since I tried ADHD medications back in November last year, which have thoroughly screwed up my sleep). The longer my difficulty with sleeping goes on, the more anxiety I have around it, which definitely isn’t helping. When I finally did sleep, I slept badly with the vivid, stressful dreams that I’ve come to associate with the changing of medications. I’d sleep late – into the afternoon – but even then, when I had managed to get up, I was still tired and sleepy, actually falling asleep on the sofa during the day several times.

I was craving food – particularly salty foods – but nothing satisfied the craving, which was incredibly frustrating.

It’s probably worth noting that I was in the middle of a pain flare up, with the pain mainly in my arms around the elbow. It was pretty bad, worse than the chronic pain has been for a while. It was especially bad in the mornings and was part of why I struggled to get up once I finally managed to wake up. It was so bad one day that I had to cancel my hydrotherapy session because just the thought of washing my hair in the shower had me near tears. Fortunately, it did start to get better by the end of the first phase, much to my relief.

150mg Once Daily (+ 20mg Propranolol Twice Daily)

The second phase of reducing the Moclobemide lasted ten days. It was a hard week: I was very depressed (and the suicidal thoughts were back) and I was easily overwhelmed and upset. It felt like my brain just wouldn’t shut up and kept magnifying all of the most distressing or anxiety-provoking thoughts I had; I was doing my best to keep myself distracted by mundane stuff as much as possible but I wasn’t always successful. As I said, it was a really hard week.

It was still taking me hours to get to sleep, even on the nights I was falling asleep on the sofa. Most nights, I slept badly and I had more of the same vivid, stressful dreams (and nightmares) before struggling to wake up, no earlier than eleven. I was sleepy within an hour of waking and Red Bull didn’t seem to help. I was so tired and so sleepy during the day; I fell asleep on the sofa in the day several times during those ten days. I was so tired all the time that I struggled to get anything done.

I was still craving the sensation of eating – especially salty foods, as I said – but again, food just wasn’t satisfying or filling in any way. I’ve got it under control for the most part – I’m getting better at resisting the urges and eating according to what I should be eating and not what I randomly want to eat which I then get no pleasure out of anyway – but it’s very frustrating. I’m also talking to a nutritionist about the specific salt craving and she’s sent off for blood tests to determine whether I have a vitamin or mineral deficiency that needs attending to.

The chronic pain got bad again after it’s momentary dip. It was so bad that it was repeatedly waking me up in the night and washing and drying my hair was an exhausting experience. I had several really bad pain days that made it a struggle to concentrate, to do anything. I also had a several horrible migraines that took me out of commission for a couple of days each, which was very unpleasant. They have been worse though so I’m grateful for that.

Washout (+ 20mg Propranolol Twice Daily)

The one day washout period was awful. I was deeply depressed with suicidal thoughts; I was barely functional. Fortunately, it was just one day without medication rather than the usual two weeks. That’s always the worst part of changing medications for me so I’m grateful that it was so short this time.


So coming off the Moclobemide wasn’t fun but it wasn’t as terrible as it could have been either. I’ve definitely had worse. I’m just glad it’s over and now I’m onto the next medication, which will hopefully be better. It’s hard to stay hopeful when I just seem to be finding medications that don’t work but even when I do feel hopeless, I honestly don’t know what else to do. So I just keep going.

[I just thought I’d add that, a few days after this, the chronic pain faded and I started to feel a lot better. So that was very good news.]

A Year of Autonomic Testing and A Discovery of POTS

After I was diagnosed with Hypermobile Ehlers-Danlos Syndrome, my Mum and I did quite a bit of research. There were a lot of things that suddenly made sense and one thing that caught our attention was mention of autonomic issues, like dizziness, fatigue, chronic pain, brain fog, problems with heart rate and blood pressure… These were all problems I’ve either struggled with or had investigated in the past so, with the hEDS diagnosis and the help of my GP, we started following that path to see if it yielded any answers.

As you can see, this post has been a long time in the writing. I didn’t want to post anything until I had something to say really, beyond descriptions of the tests, but then it all just went on and on and on. Everything moves so slowly and it’s very draining. I have to hope that things are better for knowing what I’ve learned from all of this but it’s also been a very trying, sometimes traumatic experience.


MARCH 2021

It began with a phone call appointment with a neurologist, a specialist from a neurology unit in London (which I talked about in this post). It wasn’t a fun experience. The call came two hours late, it wasn’t the person it was supposed to be, and then he spent twenty five minutes of the half hour call telling me that there were tests that they could do but that they’d probably be a waste of time. It just left me feeling really confused and upset. He had eventually said he’d write to my GP about doing some tests but after the way he’d been talking, I didn’t feel very hopeful about it all. After he hung up, I didn’t quite have a meltdown – it was like I didn’t have the energy that a full on meltdown requires to happen, like a rocket needing a certain amount of fuel or whatever to launch – but it was close.


MAY 2021

Despite his apparent reluctance, the neurologist did in fact write to my GP and the blood pressure monitoring was arranged. It took forever – I think because of a shortage of the monitors – but the day did eventually arrive (I wrote more about it in this post). I went to the hospital to have the monitor fitted and to get all of my instructions; the whole thing was relatively chill (not my general experience when it comes to the medical field) and the two women who went through it all with me were really great.

It wasn’t too bad. The cuff got very tight so it was hard to forget it was there and just do the day as normal but it was fine. I did find it hard to get to sleep but the squeezing didn’t wake me up, which I was grateful for. My arm did hurt like hell in the morning, like I’d been punched repeatedly; I was convinced my arm would be bruised afterwards but it wasn’t. I couldn’t get the monitor wet so I couldn’t have a shower until after I returned it but since that’s usually when the blood pressure related symptoms present, we faked a shower: I stood for the same amount of time in the bathroom with the shower on (so that the hot, steamy environment was the same as if I were having a shower) and let the monitor take its readings. I felt shaky and dizzy and lightheaded so it should have read as if I really had had a shower.

I got through the rest of the twenty-four hour period and then took it off, to my great, great relief. My arm was sore from the squeezing and the cuff was pinching in various places. I also had that Autism thing where the constant pressure for so long was causing me anxiety, like wearing my retainer for too long. The anxiety had been growing for most of the second day so I was very relieved to be free.


JULY 2021

The second round of monitoring involved a little stick-on patch with sensors over my heart, which had a little monitor that could be attached (and then detached for a shower) to measure my heart rate. I was supposed to wear it for a week and while it wasn’t exactly comfortable and sleeping with it attached wasn’t great, the first few days went smoothly for the most part.

But, after several showers, the patch started to peel off. The sensation of it constantly brushing my skin and the itchiness of the glue (or whatever it is) as it disintegrated was quickly overwhelming and I was regularly finding myself in meltdown territory. It was creating so much anxiety that we got in contact with the people who’d sent it and they said that after roughly four days of readings, it would be fine to take it off, that they would have enough data. Removing it actually really hurt and I think me and my super sensitive skin had some kind of reaction to the adhesive because it kind of looked like I’d been burned where the patch had been for a couple of days after.


AUGUST 2021

Alongside the blood pressure and heart rate monitoring, there were a series of other tests but it was a while before I got the letter to tell me that they’d been scheduled. The first of the two appointments was in August and was a bit of a mixed bag as an experience. Despite the letter from my GP that said I’m autistic and have an anxiety and therefore need to have someone with me for hospital appointments, the receptionist almost didn’t let my Mum come in with me. I was somewhere between walking right back out and having a panic attack (said receptionist actually asked me if I was okay, which I thought was a bit rich) but fortunately it was all sorted out and after a little bit of time to collect myself, the testing went ahead. The doctor for this particular appointment (I don’t think I’ve seen a single doctor more than once through this entire process) was nice and didn’t rush me at all after the somewhat upsetting start.

The testing was fairly straightforward. They wrapped me up in monitors (I’m not going to lie – I kind of loved all of the hand ones for taking my pulse and stuff because it kind of felt like I was having superpowers measured or something, which was much more fun to think about) and then ran me through a series of tests: standing for certain periods of time, breathing exercises (which reminded me a lot of the warm up exercises I used to do during singing lessons), squeezing an inflated pressure cuff (my hypermobile fingers made this one pretty difficult), and so on. There was still the tilt table test to go but I had to come back on a separate day for that one.

Just like with the day of blood pressure monitoring, they didn’t tell me anything about the test results. Once they had all of the data from all of the tests, they’d call me in to discuss it all. I could understand that but it was frustrating when the whole thing was taking so long.


SEPTEMBER 2021

Late September, I was back at the hospital for the tilt table test. I was all wrapped up in the monitors again  and they strapped me (not uncomfortably) to the exam table so that when it moved from horizontal to almost vertical, I wouldn’t slide or fall. Everything was fine while I was lying down and they got all of their readings and then they adjusted the table so that I was almost upright.

It took about twenty five minutes before I started to feel noticeably bad. Like, more than just not great. My hands felt numb and tingly, my legs were shaky, my chest started to hurt and I got very breathless; they let me take my mask off (everyone else was still masked and I’d tested negative before going to the hospital) but I was still breathing too fast, on the way to hyperventilating. While they had an approximate end time for the test, they decided to stop there; presumably they had the information they needed and I was honestly relieved to lie back down for a few minutes. I was breathless for a long time, my head hurt, and I was pretty nauseous. I had to sit for about ten minutes before I felt solid enough to get up and back to the car.

A week later, we were called in by the cardiologist to go over the results. It was a frustrating appointment: my information wasn’t there and we had to wait while the doctor called around and tried to get a hold of it all and then, when he got it, he waffled a lot without really saying anything so getting a clear explanation wasn’t easy. As far as I can tell, my heart rate goes a little haywire when I stand for a long time or exercise too vigorously. The cardiologist diagnosed me with Postural Orthostatic Tachycardia Syndrome and prescribed me Propranolol to help with the symptoms. I’m not sure we’ve managed to get the dosage quite right yet but it is now in the right range and has been helping a bit: I’m less dizzy and breathless although that hasn’t gone away entirely (yet, hopefully).


FEBRUARY 2022

We had been offered more thorough testing at UCLH in London and we figured that it couldn’t hurt to have more information, especially from an institution that apparently has more knowledge and understanding, better resources, and so on. I was in and out of there for two days (ish), doing tests and helping them gather data on whatever weird thing is going on with my autonomic system. It was a lot but I was cautiously optimistic that what we learned would make managing the symptoms easier.

DAY ONE – We had to be there super early, which was a real struggle because the ADHD meds were seriously messing with my sleep, but I did somehow make it on time. Despite my doctor’s letter, the people at the desk and then the nurse didn’t want to let my Mum in with me. I was ready to walk out – I’ve been traumatised enough times by medical personnel that I wasn’t keen to add another tally mark to that particular chart – but Mum managed to talk to them and get them to understand. I was fitted with a blood pressure monitor, like the one from my first test, and gave me a diary to keep for the next twenty-four hours. It was similar to that first test but it required a lot more detail in the recording: I had to do certain activities at certain times, which were recorded by the monitor. It was quite a stressful and exhausting day, with the monitor bleeping continuously. I was incredibly tired (I fell asleep on the sofa more than once) and I struggled to keep up with the activities they wanted me to do – it feels like the ADHD meds have fried my brain somewhat. And then, because my sleep was so messed up, I didn’t get to sleep until after three.

DAY TWO – Waking up and get to the hospital for eight am was excruciating and the fact that I was only about ten minutes late was a miracle. Fortunately, they weren’t completely on time either. The testing that day was all done in the hospital, in one room, with one woman who was, fortunately, really nice. I spent most of the appointment lying on the exam table, hooked up to various monitors and performing different tests. Quite a few were the same as the first tests I did but there were some new ones too, like having my hand wrapped in an ice-pack for what felt like ages (although it wasn’t actually that long but my god, my hand hurt afterwards). She tried to draw blood for additional information but she couldn’t get a vein in either arm (I think that may have been due to the fact that I’d been lying down for a couple of hours at that point and so my blood pressure was weird but I’m not a doctor so what do I know) and that was uncomfortable with nothing to show for it but oh well; it apparently was a bonus if they got it.

The last part was the tilt table test and I wasn’t as affected as I had been the first time I’d gone through it but it still wasn’t pleasant. And after that, I was done. After lying (and then standing) in one position for so long, I was really stiff and my hip and knee joints were so sore that I could barely walk. I was absolutely exhausted. I made it back to where we were staying and fell asleep on the sofa straight away. I woke up for food (I hadn’t been able to eat before the appointment) and then went straight back to sleep. I was utterly drained and it took me a few days to recover fully.

Again, they didn’t have all of the results for me at the end of the appointment: those would go to the team meeting that was within the next two weeks and then they would call me with a plan, another appointment, or whatever. I think it’s safe to say at this point that my expectation of it taking more than two weeks was correct.


MAY 2022

UCLH sent a letter with a brief explanation of their findings and a time for a follow up call where they would explain those findings in more detail and discuss next steps. That took a while to schedule because of other commitments so it didn’t happen until May.

It was a short call but the nurse was really nice and so knowledgeable. She ran through the test results and what they showed and confirmed the diagnosis of Postural Orthostatic Tachycardia Syndrome. She explained the effects of the Propranolol in more detail and said that I would be receiving an invitation to their next online meeting about managing the symptoms of POTS, which will hopefully be helpful. And on top of that, she gave me a few tips to try in the meantime. So it was a good appointment and I’m looking forward to seeing if her tips help and to the meeting, which should be within a couple of months or so.


So now I’m waiting to hear about the online meeting. I haven’t had many good experiences with sessions like these but I’m nothing if not chronically optimistic; maybe this one will be better. But just knowing that POTS is the cause of the symptoms is a step forward. And the Propranolol seems to be helping although I’m not sure that we’ve got the dose quite right yet.

I wanted to write and post more about Borderline Personality Disorder during BPD Awareness Month but I’ve been really struggling with my depression and changing medications and it’s all been a bit too much; I’ve found it hard to write anything at all. I’m still trying and hopefully I’ll have something BPD related up next week, plus I have a few other posts that I’ve started that I hope to finish and post in the not too distant future.

I Believe In Nashville

Apparently I’m incapable of doing things halfway: I went from barely leaving the house to going on an almost three week trip to the US. The songwriting festival, Tin Pan South, was starting up again and I’ve been going every year since 2016, to write songs and network and just learn from the best songwriters in Nashville. I was utterly terrified – about the COVID risk, about how even a minor bout of COVID could affect the trip, about all of the uncertainty and anxiety that I was going to feel every day without having a true safe place to return to and recharge, etc – but I felt like I had to go. My Mum and I were as careful as we could be: we wore masks pretty much all of the time (being autistic makes that hard but I did the best I could) and we went through so much hand sanitiser. I was practically showering with it. I cried pretty much every day (whether from anxiety, stress, or exhaustion, I don’t know) and I was on my knees by the end of the trip but it was amazing and a lot of really cool things happened.


BOSTON

We flew from London to Boston, which was relatively simple – my anxiety aside. I’d already burst into tears at least twice before we actually left the runway. I was very anxious about COVID (and there were so many things that already made me anxious that now had an entirely new context because of COVID) and about flying (it’s not my favourite thing) and I think I was just really overwhelmed by everything ahead of me. The flight felt ridiculously long and while I was relieved to be back on the ground (and eventually into the hotel where we could take the masks off after wearing them for so long), I was immediately overwhelmed by being abroad, by all of the differences. Getting to the hotel room and being able to just collapse was a great relief.

Months earlier, I’d bought tickets to the Bleachers show where they’d be playing their album Strange Desire from start to finish in the hope that I’d be able to combine it with the Nashville trip – the date was, after all, pretty close to when Tin Pan South usually took place. So I chanced it and by some stroke of luck, it worked out and we made our connection in Boston with a day in between to go to the concert. I had no idea what the disabled accommodations were going to be like but, on the whole, the venue and staff were great, which made the concert possible for me and it was incredible.

I still don’t know if I can describe the concert, beyond saying how amazing it was. Charly Bliss were a really fun opener and I’m very excited for them to release the new songs they played; those were the ones that I really got into. And Bleachers were just fantastic. Jack Antonoff in particular was just like an endlessly ricocheting ball of adrenaline; I barely got any photos of him that were in focus because he was just in constant motion. It was so incredibly special to hear songs like ‘Wild Heart,’ ‘I Wanna Get Better,’ and ‘Like A River Runs,’ all of which I love so much. It still feels kind of unreal, like I can’t quite believe I was really there.

The next day, we struggled up – I felt completely wrecked by the concert – and caught our flight to Nashville.

NASHVILLE

When we got to Nashville, we took a couple of days just to rest and to allow me to collect myself. I was exhausted and a few days holed up in my Airbnb – where I didn’t have to worry about wearing a mask or the risk of COVID – was absolutely needed. And while there are always things to see and exploring to do in Nashville, we’d decided to keep our excursions to our highest priorities; we wanted to minimise the risk of exposure to COVID so that we could do all of the things that we really, really wanted to do.

So those first few days were spent chilling out, watching TV, catching up with my diary, and listening to Maren Morris’ new album, Humble Quest. I think I’ll forever connect it with Nashville now. Between listening to it as I flew into the city and watching her Amazon Prime show that first weekend, the album’s setting will always Nashville.

The show was great and I cannot wait until she comes back to the UK. I’m already in love with this album.

SONG SUFFRAGETTES 

My first show back was a big one: Song Suffragettes’ 8th Anniversary show. Usually a Song Suffragettes show consists of five girls and they go around three times, performing three songs each (in total), before closing the show with the cover song performed together. But for this song, there was the first round of five girls who each performed twice plus a cover, a break in which THE Nicolle Galyon interviewed THE Kelsea Ballerini, and then a second round with five more girls who each performed twice as well as a cover song. It was a long but very excellent show.

The first round consisted of Ava Paige, Autumn Nicholas, Kalie Shorr, Ava Suppelsa, Lanie Gardner, and Mia Morris on percussion (she also played a song in this round – a rewrite of Fountains of Wayne’s ‘Stacy’s Mom’ from the point of view of Stacy, which was hilarious). They were all great but, as I think is the case with every songwriters’ round, there were some that resonated with me more than others. I’ve known and loved Kalie for years so I always know she’s going to be my favourite (if you haven’t listened to her music, please check her out – she’s very special) but I didn’t know the others and found I particularly enjoyed Ava Paige’s songs too. I also loved the cover they did, ‘abcdefu’ by GAYLE, and I’ve had it on repeat ever since (along with ‘Humble Quest’ by Maren Morris).

After the cover, they cleared the stage and set it up for the Nicolle Galyon and Kelsea Ballerini interview. They are both just such cool people and have achieved some incredible things; it was very inspiring. Nicolle asked some really interesting questions and Kelsea shared a lot of fascinating, inspiring, and encouraging stories and advice. And then they played a couple of songs that they’ve written together – ‘i quit drinking’ and ‘half of my hometown’ – as well as telling the stories behind the writing of them. It was a really, really cool experience and I feel very lucky to have been there.

The second round was made up of Emily Brooke, Caroline Watkins, Lauren Hungate, Madeline Merlo, Peyton Porter and, again, Mia Morris on percussion. I particularly liked Emily Brooke; I’ve seen her before and I really like her music. And they all told great stories about what inspired the songs.

It was an amazing show and experience and it was a great reintroduction to Nashville. I also got to reconnect with the people I know at Song Suffragettes (and those who I’ve spoken to online but not met) and that was really, really nice. I was kind of scared that, after three years away, the previous years of building relationships might have ended up meaning nothing but that completely wasn’t the case and I’m really grateful for that.

TIN PAN SOUTH

As I said, Tin Pan South is the big reason for coming to Nashville and I had some amazing shows on my list. There were some very tough choices too, great rounds that I struggled to choose between. But I think I made the right choices, for me, for this trip.

I could write about every single show in a ridiculous amount of detail but then we’d be here forever. So here are my highlights of the week…

  • Caylee Hammack – I first saw Caylee years ago and she was so good that I became a fan on the spot. She’s fantastic, both as a singer and a songwriter; I loved her songs then, I loved her album, and I loved the songs that she played during the round. And she’s hilarious. She’s also absolutely lovely: we spoke before and after the show and she was just such a sweetheart.
  • Nicolle Galyon – One of the rounds I went to was the Songs and Daughters round, made up of writers from Nicolle Galyon’s female focussed label, Songs and Daughters. Nicolle was fantastic (although I wish she’d played ‘We Were Us’ but then she does have a huge list of amazing songs to choose from) and even though, I’m kind of in awe of her, I did have a short conversation with her after the round and she was really lovely.
  • Madison Kozak – Madison was on the same round as Nicolle Galyon. I first saw her years ago and fell in love with her and her song ‘First Last Name.’ She did play that one, which made me very happy, and I loved every other song she played on the round; I can’t wait for her to release them.
  • Emily Shackelton – I’ve been a fan of Emily Shackelton for years so I was very keen to see her live again. I love her songs and she’s got a gorgeous voice; I’m so excited for her to release new music soon. I got to speak to her briefly after the show, which was really nice. I hadn’t gotten into the groove of talking to new people again (remember, COVID aside, I’ve just come off three months plus of being home alone while I tried the ADHD meds) so I felt kind of awkward and like I’d forgotten how to do the whole social thing but she was kind and generous with her time and I really appreciated that.
  • Kalie Shorr – The whole round made me laugh harder than I ever have at a Tin Pan South show and Kalie was just hilarious. I loved every song that she played and I loved the stories she told about them so that even the songs I already knew felt different because of the new insight. She’s a brilliant writer: she’s funny, smart, and empathetic, which makes for some really unique and just beautiful songs. I first met her in 2016 and we’ve talked on and off over the years but it’s usually through social media since we’re on different continents so it was really nice to connect and have a real conversation face to face.
  • Natalie Hemby – Natalie is one of my favourite Nashville people. She’s one of my songwriting heroes, she’s a wonderful person, she’s hilarious, and she doesn’t take shit from anyone. She was on her last song, I think, after a stunning round when she gave me a shout out in front of the whole audience and all of the ridiculously amazing and deeply respected songwriters on stage. She introduced me and said some really lovely things, which was just so sweet of her. (She actually invited me to sing too but my Autism brain short circuited due to the sudden change of plans and I couldn’t do it. I don’t think I could’ve told you the lyrics to literally any song at the moment, including songs I have personally written, let alone the song she was playing at that moment. I’m trying not to kick myself for it – it’s just how my brain is.) We got to catch up afterwards, which was really lovely. She really is the sweetest.
  • Notable mentions to both Jeffrey Steele and Chris DeStefano – Both of these guys put in amazing performances that I couldn’t not mention them. It’s funny because they’re so different from each other but they are both such compelling performers, performing very different but incredible songs.

AUTISM AWARENESS WEEK / DAY

It was World Autism Awareness/Acceptance Week and World Autism Awareness Day while I was away and, knowing that I’d be busy in Nashville, I’d prepared a series of posts to put up on my blog. I also posted this on Instagram:

OTHER FUN THINGS

While I didn’t do a whole lot more than go to shows, I did do a few things that are specific and special to Nashville…

  • SEEING FRIENDS – Over the years, I’ve made a handful of friends in Nashville and I’m still nurturing new relationships. I didn’t get to see everyone that I would’ve liked to but I did get to see some of my songwriter friends, some of my friends at NSAI, and some of my friends at Song Suffragettes. With three years since my last visit, it was really, really lovely to reconnect with all of these people and hopefully I’ll get to see the others next time or via technology in the mean time.
  • PANCAKE PANTRY – Chocolate Sin from Pancake Pantry is one of my favourite things to eat so I was very excited to finally get back to Pancake Pantry after so long. It was even better than I remembered and I had to remind myself to eat slowly enough that I could breathe. It’s not often that I enjoy food that much so it’s nice to experience that, something which I assume other people experience more often.
  • THE CANDLE BAR – I love my candles from the Candle Bar and I’ve managed to stretch my last one over three years by being very stingy about using it so I was very excited to get a new one. But then we got there and that particular fragrance wasn’t on the shelf. I was in the middle of feeling overwhelmed by what I should choose instead – none of them were really grabbing me the way my favourite does – when my Mum asked about it and they said they’d be putting it back on the shelves the next week but could pull it out for us since they had it ready to go. That honestly made my day. The pink pepper grapefruit candle is the only candle that I’ve ever really loved and since Mum loves it too, we made two to take home with us. I’m very excited to be able to burn them a little more liberally again. The woman who ran the session was lovely and full of fun information about candles and the candle making process and I just had such a good afternoon.
  • COMMODORE GRILLE – It was on my first adventure in Nashville that I discovered the Commodore Grille’s excellent chocolate brownies and it was on one of the few trips out to eat that we went out and got one. Well, one each. It was so good and I’m so glad we were able to find the time to do it.

SONG SUFFRAGETTES

I did manage to get in a second Song Suffragettes show while I was in town, which I was very grateful for. This round was made up of Jillian Dawn, Sam Bowlds, Olivia Faye, Elana Jane, Paige King Johnson, and Mia Morris, Mia being the only one I knew previously. They were all great – they always are – but I think my favourites were Jillian Dawn and Paige King Johnson; their songs just spoke to me more deeply than the others did for some reason.

On the whole, the travel had been good. I had disabled assistance at all of the airports and until the trip home, that was great and had made the whole flying ordeal a lot easier. But on the return trip, everything kind of went to hell and it was a bit reminiscent of ‘a series of unfortunate events.’ I almost had a meltdown on the flight from Nashville to Dallas because of a mix up with the seats, which was horrible.

And while the Dallas to London flight was okay (I mean, it was long and cold and uncomfortable but nothing went wrong), everything went wrong from the moment we landed, from problems with gates to confusion with the disability assistance to the freaking coach home. And by that time, we were both so tired (and I was so overwhelmed and stressed out) that I was definitely moments from bursting into tears. But we did eventually – eventually – get home.


It’s been about a week since I got home now and I’ve been a bit of a mess. The jet lag hit me hard, on top of my exhaustion from the trip itself, and my mental health hasn’t been great. I guess I’m just feeling really overwhelmed, like all of my feelings have been turned up to eleven (I mean, even more so than usual).