Posted on July 4, 2020
It’s been a while since I did a ‘week in my life’ post and I haven’t done one about lockdown, mainly because I feel like most of my days are incredibly similar, which wouldn’t exactly make for a scintillating post. But I saw the idea in my ‘blog ideas’ list and realised that over the last few weeks, I have managed to be a bit more productive (with my mental health fluctuating so wildly, it’s hard to really get into anything) and so each day is looking more like its own entity.
The week in this post started on Monday 22nd June and ended on Sunday 28th June.
Even though I don’t have anywhere to be, I’m still getting up relatively early, partly because I’m at my best mentally in the mornings (generally) and partly because we have five cats who are always very eager for breakfast. They’re actually really helpful when it comes to maintaining some kind of routine; sometimes I think it’s easier when there’s something external to build from, rather than trying to build it from nothing.
Cats fed, I settled on the sofa and replied to all the messages on my phone that were waiting for me. In times of mental distress (which there is a lot of lately), I tend to abandon my phone and withdraw from communications because it’s all just more than I can handle. However, it can then be a rather daunting task when I feel able to engage again. But I managed to reply to everyone and messaged some of my friends that I hadn’t checked in with for a while.
I spent the morning sorting through my tech box of electronics, my store of everything electronic, from spare pairs of headphones to camera equipment to cables I know longer own the devices for – I’m sorting through all of my possessions and this was next on my list. I went through it, throwing out the stuff that was damaged or so old that it was no longer useable, piling up some stuff to give away, and organising the remaining items by function. I certainly don’t need the big box anymore.
I didn’t stop there though. I went through all eight of the USB sticks I’d found, deleting the files I didn’t want and storing those I did. I now have multiple memory sticks empty and ready to go whenever I need them. And then I started on the hard drives, most of them assorted back ups of my laptop. That’s a job that’s going to take considerable time. But I’ve assigned each of them a function and started moving the relevant files. I can’t have done more than a quarter of the work and even that took most of the day.
Eventually I gave up, having spent so much time on it that I kept getting confused about which hard drive I was in. So I disconnected them, packed them away, and did a couple of hours work on my blog post for the kittens’ birthday post (here). Me and Mum had dinner together, continuing our rewatch of Nikita, and then I spent about forty five minutes at the piano, during which I recorded this:
Then we fed and settled the cats before going to bed.
It was a quiet day. I spent most of it working at my laptop, finishing the blog post for the kittens’ birthday the next day and writing the one about coming off Pregabalin (here). I also planned out the next few as well, with sketches of the rough post structures. So it felt like a pretty productive day, which I was pleased with.
My Mum and I usually work pretty companionably since her desk is in the living room and I tend to work from the sofa (it’s better for the physical pain that I usually deal with to some degree or another – I need to get a specifically supportive desk chair but I’d have to go and try them out, something I can’t – and wouldn’t choose to – do until it’s safe). But recently she’s been working at the kitchen table, paper spread out around her as she transfers her accounts to a new system. It’s weird, going from being basically on top of each other to almost feeling like I’m alone in the house.
We reconvened in the evening, having dinner with several more episodes of Nikita, and then I sat at the piano, playing for almost an hour, methodically practicing each of the songs I’ve been learning recently. Thank god my neighbours are so easygoing and even supportive of my music because I usually ending up playing fairly late at night and even though I try to keep it as quiet as possible, some noise does drift through the walls.
I was just going to bed when I got a Twitter notification that Ingrid Andress is doing a virtual show on Tuesday 30th June. I love her and was supposed to see her live when I went to the US (before the trip was scuttled by the pandemic) so that was really exciting. I went straight to my computer to get a ticket and thank god I did because it was already difficult to get a ticket. I also managed to get a meet and greet, which should be fun; I have no idea how it will work online (plus it will be about 3am my time…) but it will be really nice to see her again. I’ve been going to her shows and chatting with her afterwards for the last several years so I’m glad that lockdown won’t prevent that.
(Note from present me to past me: it was an awesome show and I really enjoyed my chat with Ingrid.)
It was the kittens’ first birthday so we didn’t delay in heading downstairs and presenting them with their present. They both had a go at it but it was Sweep that eventually managed to open it, revealing the birthday cake shaped toy. Despite not having had breakfast yet, they were both very excited and played with it enthusiastically. It remained in tact for about twenty minutes before Sooty managed to tear the felt flame of the candle off it… Sigh. Ah well. They don’t seem to mind.
Unfortunately, I ended up getting caught in a panic spiral about the loosening of lockdown (I know I’m not the only one who feels that the government cares more about the economy and their reputation than the lives of the British public) and the scientists declaring that they feel we’ll still be dealing with the pandemic next year, that a second wave is extremely likely. The idea of feeling so terrified and so unsafe and so worried for my loved ones (plus the uncertainty around my education and my career) for all that time is exhausting and makes me feel almost overwhelmingly sick.
In hindsight, it probably turned into a meltdown but I didn’t really process that thought at the time. The intensity of my emotions are so extreme at the moment that it can be hard to clearly identify them within the mess I’m feeling. In the end, I was so worn out that I fell asleep on the sofa and didn’t wake up for three hours, a common reaction to a meltdown, for me at least.
When I woke up, I didn’t feel better – that’s not how it works, at least for me – but my head was a little clearer. WordPress had been playing up on my laptop so I hadn’t been able to post the kitten birthday post but eventually I got it up, complete with a video of the kittens: one second a day everyday for the first year of their lives…
In the evening, I spent about an hour on FaceTime with one of my friends. We had a good moan about missing each other and the things we can’t do, drooled over the guitars we wish we could afford, made plans for the first time we can hang out properly again. It was fun and nice and as normal as you can get in a time like this. Mum had wandered in and out of the room during the conversation and commented that we sounded like we always do, hanging out as if we were on opposite ends of the sofa. That made me laugh.
We had dinner together and continued our rewatch of Nikita, staying up far too late.
I’d struggled to sleep with the heat so I woke up, still tired and with a throbbing headache. Not exactly the greatest start to a day.
I sorted the cats and then spent some time tidying the living room and sorting out my space: it had gotten pretty chaotic with the various stationary and electronics that I always have within reach due to my frequent need for them. It’s definitely better and I’m always calmer and more productive in a tidy space.
I’d intended to do some more organising of my hard drives but the rising heat (over 30 degrees) was only making my headache worse. I ended up lying on the sofa with my eyes covered, waiting for the painkillers to kick in, except I accidentally fell asleep and didn’t wake up until about three hours later. Thankfully I slept through the hottest part of the day: I don’t cope very well in the heat. The cats were struggling too, poor babies, stretched out on the cool of the kitchen floor. I’ve never seen them look so flat.
I didn’t manage a huge amount because the headache never really abated but I did get a few bits and pieces done: some research for the blog, some blog writing, watching a bit of TV. But most of my energy was focussed on managing the headache; I spent a lot of time with my eyes covered, blocking out the light.
Mum and I kept to our evening routine of dinner and Nikita rewatch (we’ve just finished season two, which has such a great finale) and then, to finish off the evening, I listened to the two tracks that Richard (my writing partner) had sent me and gave him my feedback. I loved them: they’re both really cool but I had a handful of comments that can hopefully be of use. I also sent him a song of mine to listen to before we start work on the production.
That done, I went to bed but it was so hot and humid that I felt like I could barely breathe.
It was so hot that I just couldn’t sleep. It wasn’t until about five am that I finally drifted off. It was uncomfortable and frustrating but as least I got to witness the incredible thunderstorm that started at about two. There was a lot of lightning and heavy rain, although not much thunder. I sat up and watched it for ages. I absolutely love thunderstorms; they’re my favourite kind of weather. The air just feels different and I feel lighter. Apparently thunderstorms create negative ions in the atmosphere and that’s where that feeling comes from (x).
I struggled up at eight thirty and managed to have breakfast and a shower in time to relax for a moment and collect my thoughts before my therapy session. It’s taken me a while to get used to therapy via Zoom and while I still think face to face is better (and I really miss it), I am really grateful for it. I know that going without therapy during this time would be incredibly damaging for my mental health. I think it’s probably fair to say that we’re not necessarily focussed on making progress right now, rather we’re focussing on managing my emotions and the things I’m struggling with in the present moment, like my overwhelming fear of going outside and my sudden inability to sleep properly to name a few. I mean, technically it all comes under distress tolerance, one of the fundamental areas of Dialectical Behaviour Therapy so I guess we are making progress in a sense. Anyway, we had a pretty intense session because of several tough things going on at the moment, not helped by my lack of sleep. By the time we were done, I was exhausted.
I had a gentle afternoon, watching Nikita with Mum, and then napped on the sofa for a couple of hours. Three hours of sleep really isn’t enough. Throw in a tough therapy session and I was completely useless. I wasn’t going to make it to the end of the day without a nap.
In the evening, we had a socially distanced dinner and movie with one of my parents (she doesn’t live with us). Despite keeping up to date with the briefings and doing my own research, I’m still really confused about what the official safety guidelines are so we’re just sure to be really careful: apart from seeing each other now and then, none of us go out for anything other than the essentials, we social distance when we’re together, and we keep the space (and ourselves) as clean/hygienic as possible. It’s hard not being able to behave naturally together – having to be so conscious of the risks all of the time – but it’s so, so good to see her and hang out and have just a touch of normality, even if it is only a touch. I’ll take what I can get. Getting to see her in person is better than not getting to see her in person.
Despite my nap, I was tired and so me and Mum had a quiet evening together. Exhaustion always makes my anxiety worse so I just needed some time with her. Sometimes we joke that, rather than an emotional support animal, I have her: my emotional support person.
Always far too late (I swear I’m trying to maintain a regular sleep pattern), we fed and settled the cats before going to bed.
I slept better but still not well and I woke up feeling very anxious and unsettled, usually how I feel when I’ve had nightmares but can’t quite remember them – I definitely want to write a post about how the pandemic has affected sleep and the increased number of nightmares. It was still quite early so I stayed in bed, trying to shed the feeling. The cool, grey weather helped.
Eventually I got up, fed the cats, and managed to get a few good cuddles in, which also helped. Although nothing helped as much as the Diazepam I took.
I had a quiet morning, doing some admin, some blog post writing, and a couple of video calls to family and then I spent the afternoon catching up with my diary. The one mental health problem that hasn’t been too badly affected by the pandemic and lockdown is my OCD. It’s much easier – and quicker – to write down everything that happens when so much less is happening; before lockdown, busy days could take hours and hours to write up. My ability to concentrate has been seriously compromised by my anxiety so it still takes longer than it should but at least, with emptier days, it balances out a bit.
Mum and I had dinner, continuing our rewatch of Nikita, and then I spent some time at the piano. One of the things I really wanted to use my empty semester – and I guess, now the lockdown – for was improving my musical skills and at the moment, I’m just really in love with playing the piano. I’ve definitely improved already, which is really satisfying. I practiced my current repertoire and then tried to work out a new song. But it was tricky and I was tired so I didn’t get far before giving up – for the night, not on the song in general.
It was late but before going to bed, Mum (who used to be a full-time massage therapist, although it’s no longer her primary job) massaged my neck and right shoulder. My Trichotillomania urges have gone into overdrive since Covid-19 emerged and they’ve only gotten worse as time has passed. How I haven’t ended up with any bald spots, I have no idea. But because of my excessive pulling, my arm and shoulder have seized up and become really quite painful. The muscles actually hurt to touch but she was very gentle and I do think it helped.
We went to bed and I actually managed to get to sleep fairly quickly, which is a bit of a miracle at the moment.
I managed to sleep in a bit, which was nice, although I’d still had busy dreams. It took me a while to make sense of what was the dream and what was real and when I dragged myself out of bed, I felt slow and sluggish. Fortunately the cats had been very patient about breakfast. Having said that, they were very pleased to see us (and vocal about it).
I had breakfast and a shower, leaving me with fifteen minutes or so to clear my head before my music lesson. One of my parents is a professional musician and music teacher and as another of my goals for this period of time is to improve my understanding of musical theory, I’d asked a while ago if we could spend some time on it together (well, via Zoom). So, every Sunday, we dedicate a couple of hours (sometimes more if we’re on a roll) to working out the chords to a song, figuring out the rhythms to play, etc and then discussing the theory that underpins those things in that particular song. Then I practice it in the week before our next session. It’s hard work – I’ve always found theory quite difficult to really understand – but I do think I’m getting better, if slowly. I think learning it in a practical, applied way is helping and it’s much more fun than just trying to memorise it from a book. To my amusement, it’s basically turned into an attempt to learn every Kalie Shorr song because I love her writing so much but it’s also given me a new appreciation for the songs because I’m seeing how much more to them there is. As I said, it’s difficult and I’m exhausted afterwards (probably from the effort of keeping my concentration on it – a serious job at the moment) but it feels good to be learning and trying to improve my skills.
My concentration is always pretty poor afterwards but I did manage to get some blog writing done. I’m really enjoying this style of writing at the moment; it just flows really easily. I’m also trying to get ahead of myself by a couple of posts, creating a buffer of sorts, just in case I hit a period of writers’ block. That happened a while back and suddenly writing became really difficult and stressful, not exactly something I need more of right now. So I’m taking advantage of (and enjoying) how good and effortless it feels.
Early evening, Mum and I FaceTimed with my Granny. Mum speaks with her everyday while I join in every few days (sometimes in the frame and sometimes just in the room, adding to the conversation). We do the crossword together – something we’ve always done when we’re actually together – which is really fun and catch up on each other’s days. I worry about her, her age making her more vulnerable and her being alone during lockdown. We (especially my Mum and my aunt and uncle) try and talk as much as possible and suggest new things to do and new forms of entertainment (especially when her television died and no one would go out to fix it) but I still worry.
After we hung up, I tried to set up the laptop that had finally arrived from DSA, only to find out that they’d sent me the wrong one. Fortunately, I discovered that (sadly, I’m experienced enough with the problems of getting support as a disabled person to check) before I loaded all my files onto it. So we got in contact with them (and after a lot of back and forth) and they’re sending another one to swap it with. When this process is officially over – as in I’ve got the laptop and everything is signed off on – I will write a blog post about this whole process because it has been long and complicated and stressful and I think these experiences need to be out there.
Me and Mum had dinner with more Nikita and I did some more diary writing.
Somewhere closer to a sensible bedtime, we fed and settled the cats and went to bed.
I hope this was somewhat interesting. When I started writing it, I hadn’t counted on a heatwave that made me just this side non-functional for two days; I’d been hoping to be more productive. I know that we don’t have to be productive everyday but achieving something, even something small does help me to manage my mental health and keep my depression and anxiety from getting into a cycle that’s difficult to break out of.
Anyway, that was a week in lockdown: some routine and some different activities to mix things up. This seems to be the best approach for me. The routine is comforting but the variation keeps me from feeling like I’m in a time loop, living the same day over and over again.
I hope you’re all keeping safe and healthy in these times. I hope lockdown isn’t too traumatic for you and I’m sure you’re managing the best that you can.
Category: animals, anxiety, autism, covid-19 pandemic, emotions, meltdowns, mental health, music, ocd, sleep, therapy, trichotillomania, video, writing Tagged: 365 days of kittens, a week in my life, anxiety, anxiety disorder, asd, autism, autism spectrum disorder, autistic adult, birthday, blog writing, blogger, blogging, cat, cat owner, cats, collaboration, concentration, coronavirus, covid-19, cowriting, dbt, decluttering, depression, dialectical behaviour therapy, diary, digital decluttering, disabled student allowance, dreams, dsa, facetime, family, feedback, focus, friends, hair pulling, headache, heatwave, ingrid andress, insomnia, journal, journaling, kalie shorr, kitten, kittens, laptop, little voice, lockdown, massage, medication, meltdown, mental health, messages, mum, music, music lesson, music lessons, music theory, musical theory, new laptop, newborn kittens, nightmare, nightmares, nikita, obsessive compulsive disorder, ocd, online therapy, pandemic, piano, pregabalin, quarantine, sara bareilles, singersongwriter, sleep, social distancing, social media, songwriting, therapy, therapy session, thunderstorm, trich, trichotillomania, video calling, video calls, week in my life, writers block, writing, year of kittens
Posted on June 13, 2020
I think probably most of us can say that we are struggling mentally in lockdown. I certainly am. I seem to be swinging wildly between overwhelmed, depressed, and anxious with no warning as to when the ground I’m standing on is going to change. It’s exhausting and kind of makes me feel sick all of the time. So I’ve put together a short list of things that are, if not helping, then managing my mental health in this emotionally turbulent time.
It’s also worth mentioning that I have an anti-anxiety medication that I take as needed, which is pretty much all the time right now. My psychiatrist is aware of this and supports it. This has been hugely helpful and has halted many a panic spiral for which I’m really grateful. Being constantly overwhelmed by anxiety is exhausting and only makes it harder to cope with everything going on.
As I said, I don’t know if these things are helping or just maintaining my mental state but honestly, I think the only thing that’s really going to help my mental health is life returning to somewhat normal: being able to continue our lives and do the things we love to do without a thick fear of being infected. I want to feel safe again. I want to hug people, go back to university, go back to the gym. Maybe I’ll write a post about all the things I want to do when it’s safe again.
Category: animals, anxiety, covid-19 pandemic, depression, emotions, medication, mental health, university, writing Tagged: anti anxiety, anti anxiety medication, antianxiety, anxiety, anxiety disorder, anxiety medication, cat, cat lover, cat owner, cats, coronavirus, covid-19, decluttering, depression, diary, family, film, films, friends, hugging, hugs, journal, journaling, list, lockdown, masters degree, masters degree in songwriting, medication, mental health, mental health in lockdown, mental health support, mindful, mindfulness, pandemic, pandemic 2020, piano, quarantine, social media, socialising in lockdown, talking, tidying, tv show, tv shows, university, video calling, video calls, writing, writing a diary
Posted on October 1, 2018
Lately I’ve been seeing a lot of articles and blog posts about unplugging from technology and practising being present and living in the ‘real world.’ I’m not anti doing this. If you think it’s healthier for you to spend less time on social media and have or are taking the steps to do that, then that’s great. Figuring out ways to take care of yourself is always a positive thing. But I find it so irritating when people act as though social media is the enemy of mental health and self care because it’s just not that simple. It has its flaws, of course, but I think its value to those struggling with difficulties like depression and anxiety and so on (there are obviously more but these are the ones I feel qualified to talk about) can get overlooked. It allows us to connect in the middle of something that is incredibly isolating and that is invaluable. It can be life saving.
These are some of the accounts that bring me joy or help me when I’m struggling…
Matt Haig – While I did struggle a bit with ‘Reasons To Stay Alive,’ I really respect Matt Haig and love his presence online. His posts range from moving to funny to encouraging. This is one that particularly spoke to me:
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This is Eldon Square shopping centre in Newcastle. In 1999, while I was still trying to claw back from a breakdown, I cried in this shopping centre. Panic and despair had swarmed me and the brace face I had tried to keep for Andrea that day had slipped. People could see me crying. A 24 year old strong young man, crying in a shopping centre. I was convinced I'd never get better. Never make it to 25. Well, I am now 42 and I just did an event at a packed out Waterstones across the road from here. I am the future I never believed in. A fiction that couldn't happen. And yet I did. It is amazing what can happen simply by living.
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Behindthescars_ – I’ve written a post about Behind The Scars, a photography project set up by Sophie Mayanne (you can find that post here). Seeing people be their authentic selves and find new strength is really amazing and inspiring.
JuniperFoxx – As a kid, I LOVED animals and I daydreamed about having a pet fox so I absolutely love this account. It makes my day to see a new photo or video of these gorgeous creatures.
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Laura Greenway – Laura is an incredible artist and I feel very lucky to call her a friend. She makes beautiful, thought provoking pieces to raise awareness and reduce stigma around mental illness. I love pretty much everything she makes but this one is a particular favourite and I was so sad not to experience it first hand:
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Really really hard to get a good photo of this, it’s more of a piece that you need to see in person, but today I installed my newest piece of work entitled ‘Baggage’ as part of my current residency at THAT Gallery Basingstoke! A little different from my usual, this piece employs the audience as the performer, encouraging you to walk amongst the 80 tags that hang from the ceiling and be surrounded by my own thoughts. The piece explores intrusive thoughts, and features a variety of day to day intrusions that I suffer with. A huge thank you to my amazing art team @mattglenart and @corvidaecrochet who helped for the best part of 4 and a half hours to install this piece. #art #artist #artwork #contemporaryperformance #fineart #modernart #contemporaryart #conceptualart #performanceart #mentalhealthart #mentalillness #mentalhealthawareness #anxiety #intrusivethoughts #automaticwriting #textart #writing #contemporaryartist #ocd #liveart #installationart #artistresidency #thatgallery #basingstoke
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Petroom – While this account isn’t at all deep or meaningful, it makes me smile and even laugh on a daily basis. Sometimes we need thoughtful advice or inspiring messages and sometimes we need cute animals with funny captions.
Anna Akana – I’ve talked about Anna’s videos before (here and here) but I had to include her in this post. Her videos are beautifully crafted and incredibly succinct in their messages, many of them about mental health with real, usable advice. I also love her sense of humour and the short skits where she plays all the characters.
DudeBabe – Lauren is one of my favourite people on YouTube at the moment. Her videos are raw and honest and she posts almost every day, about her life and her experiences with an eating disorder. Food is a daily struggle for me so I find her videos really helpful but mostly I’m just really inspired by her openness.
This video is my favourite: it gives me hope that, one day maybe, I can have this sort of positive, freeing experience with my mental health.
(EDIT: I wrote this blog post before Claire Wineland died and although that doesn’t change whether or not I’d include her in this list, it added a weight to this post that I never expected when I started writing it. And what I wrote about her, it was true then and it’s true now. I just wanted (and needed) to acknowledge all of this.)
Claire Wineland – I’ve talked about Claire before (here) and introduced her channel (here) but I couldn’t not include her on this list of helpful and inspiring social media accounts. She speaks so eloquently about some really tough stuff and she always inspires me to be a better person, to be a positive force in the world.
Lucy Moon – Lucy is a vlogger and makes all kinds of videos, from fashion and make up to food to chats about therapy (that is a particularly good video). She also does an ongoing series of videos called 168 Hours, where she documents a week in one video. I find all of her videos really calming to watch. There’s something very reassuring about the way she talks.
Claudia Boleyn – I’ve watched a lot of YouTube videos about BPD and Claudia’s are my favourite by miles. I’ve talked about her videos before (here) and there are others that deserve their own posts because she describes it all so, so well. She’s thoughtful and eloquent and her videos mean so much to me: for the first time, I didn’t feel alone in this.
Haley Pham – I found Haley through her dance videos. I absolutely adore her dancing; I find it so calming. If I could have her dance for one of my music videos, I absolutely would. One day maybe. She’s also completely hilarious.
This post was deceptively hard to write. When writing about other people and their work, I get really anxious that I’m not doing a good enough job, if that makes sense. I love all of these people and want to reflect all the good they do – I’m scared I’ll do them a disservice. So I hope I did an okay job and that you guys have enjoyed this. Are there any social media accounts you think I should check out?
Tomorrow, I’m heading back to my university for an event about social media and mental health, which I’m really excited to be a part of. Maybe I’ll write a blog post about it…
Category: favourites, mental health, response, video Tagged: anna akana, art, behind the scars, borderline personality disorder, bpd, claire wineland, claudia boleyn, dudebabe, eating disorder, hair pulling, haley pham, instagram, juniper the fox, laura greenway, lauren kaech, lucy moon, matt haig, mental health, mental health awareness, mental health blog, mental health blogger, mental health blogging, mental health in the media, mental illness, mental wellness, petroom, rebecca brown, self care, social media, sophie mayanne, trichjournal, trichotillomania, trichotillomania awareness, vlogger, youtube, youtuber
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter (and currently studying for a Masters in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
I’m currently releasing my first EP, Honest, track by track and the first three songs are available on all major platforms.