Posted on May 9, 2021
Trigger Warning: This post contains mentions of self harm, but it’s simply a statement that it happened and there are no descriptions, graphic or otherwise. If this could upset or trigger you, please don’t read any further. Please always put your mental health and emotional state first.
So we’ve reached the last semester of the Master’s, with the big, final project that we’ve ultimately been working towards throughout this whole course. It’s a big deal, exciting and scary because – obviously – I want to do well and create a project that I’m proud of. But I am worried about my health, mental and physical, getting in the way and making it a difficult to both work hard and enjoy the process. So I thought, with all of this in mind, I’d write down where my head’s at and how I’m doing – I guess, so that I have a record of how I’m feeling right now, at the very beginning of the project.
At the moment, my biggest difficulties seem to be chronic fatigue and pain that are a result of my recently diagnosed Hypermobile Ehlers-Danlos Syndrome. I’m tired and sleepy all the time; some days, I can barely keep my eyes open during the day. While the physical tiredness is likely due to the hEDS, at least in part, we suspect the sleepiness is due to my antidepressant, Phenelzine. I want to switch to something else as soon as I can but mid-Master’s is not exactly a great time, given how long it generally takes for antidepressants to take effect and my track record of reacting badly to all but Phenelzine (so far, at least). So I’m having to just put up with that, with the dwindling help of Red Bull.
The pain has been really bad, particularly in my legs, arms, and back. For months, I’ve been taking painkillers daily but I feel like, over the last few weeks or so, it’s started to get slightly better. I’ve been doing the Occupational Therapy exercises for my wrists and hands and I’ve been able to start swimming again (yay!), both of which do cause pain of their own but it’s a very different pain and actually wears off pretty quickly while the hEDS pain tends to just get worse and worse unless I take painkillers. I’m getting better at figuring out where my limits are and stopping before I overdo it – most of the time. It’s hard but I do feel like I’m seeing progress.
My depression has been okay recently, much less of a problem than it has been in the past (she says while still on the ‘end’ of one, but I’ll get to that in a minute). I had one awful episode at the beginning of April, which did result in self harming. And then I had another episode last week, which I’m still feeling even if I’m not drowning in it anymore (it was kind of forced to the back burner by the worst migraine I’ve ever had). Both episodes were triggered by really upsetting news; they didn’t come out of nowhere like they sometimes do.
My anxiety has been a lot to deal with, but then there have been a lot of things to be anxious about: keeping up during the semester, the assessment and doing well in the module, all things COVID related (I’ve developed this weird house-separation-anxiety-like-thing whenever I’m out of the house too long, which is horrible), all of my health stuff, preparing for the new module and final project, trying to balance everything in my life, and so on. It’s exhausting and has a knock on effect; the rest of my mental health issues are all affected by my anxiety.
The two areas that are most tightly linked with my anxiety, I think, are my Trichotillomania and my OCD. My Trich hasn’t been too bad of late – not great but not unmanageable. But my OCD has been much more of a struggle lately than it sometimes is. I wrote about it in general here (so if you need a refresher on what my OCD is like, this is probably a useful read) but with everything going on recently, it seems to have kicked up a gear. I just can’t seem to do everything and then write all of it down; there aren’t enough hours in the day, which just leads me to getting more and more behind with everything, which just makes it worse and worse. Again, it’s just exhausting. I feel suffocated by it but I don’t know what to do about it; it feels like the walls are closing in around me and there’s nothing I can do to stop them.
As for autistic meltdowns, I haven’t had many of late. I think that’s because, despite my anxiety, I’ve had a really good few months. As I said in my previous post, this last university module and all the writing that came part and parcel with it was really good for me and I felt really good in myself so, in general, things didn’t build up to the point of meltdown. There were a number of occasions where something took me by surprise (for example, an unexpectedly triggering advert – I hadn’t even known that it was something that would trigger me so that was unfortunate for everyone) and I had a meltdown but as things go, it’s been better than it has been.
I’m not entirely sure how my ADHD manifests yet, having only received the diagnosis recently. If only it were as simple as getting the diagnosis and everything making sense… So I still have work to do in that regard. But I’m fairly certain – as certain as I can be at this point – that my issues concentrating and the feeling of my brain working against me are part of this picture. For the moment though, I’m in the dark about all of this. I’m in an impossible position medication-wise (I’m going to write about this in more detail at some point – it’s just that I’m still processing it all) so I’m stuck and unsure how to manage these problems. It’s frustrating and tiring and I wish there was an easy answer. Or even an easier one than I’m currently faced with. But there doesn’t seem to be. So I’m not sure where to go from here.
And the newest problem – because I really needed more problems… – are these migraines that I’ve been having over the last month. In the past, I’d have a migraine every few months or so but recently they’ve been different. They’ve been completely debilitating, painful to the point that I’ve ended up in A&E and had to have an ambulance called to the house because they’ve been so bad. They’ve also gone on for days when previously I could sleep them off and they’d be gone in twenty four hours. I’ve yet to find pain relief that does a decent job and I find that very scary. Calling 111 and them sending an ambulance because I was in so much pain but so light sensitive that even a darkened room felt too bright is a big deal and I’m scared of what’s next, of how it could get worse. I don’t know what’s causing them and no one else seems to either.
And finally… I’ve been the most consistent with therapy I’ve been since the pandemic began, even if I still find it hard and less productive when doing it over Zoom. But it’s looking like we’ll be back to face-to-face soon, which is exciting if scary – as I said, I’m finding it quite stressful to be out of my house. But hopefully, therapy will go back to being as helpful as it was pre-COVID, when it was face-to-face all the time. I don’t know exactly why it doesn’t feel the same over Zoom – maybe I find it harder to connect and talk about the hard stuff when I’m not in the same room as my therapist – but it just doesn’t, so I’m looking forward to getting back to the room.
So that’s it, I guess. This is my mental health (and I suppose, physical health update) before I start the final module of my Master’s, The Major Repertoire Project. Everything feels very messy and complicated right now, which isn’t exactly reassuring. I want to do well in the module, of course, but I also want to really enjoy it and really get the best out of it. The module doesn’t officially start until tomorrow but I’ve already started working on my project. I’m so excited. I just hope I can manage it with all of this other stuff going on.
Category: about me, adhd, anxiety, autism, covid-19 pandemic, depression, diagnosis, heds, medication, meltdowns, mental health, music, ocd, self harm, therapy, treatment, trichotillomania, university Tagged: adhd, adhd diagnosis, anxiety, attention deficit hyperactivity disorder, autism, autism spectrum disorder, autistic, autistic adult, autistic meltdown, chronic fatigue, chronic pain, coronavirus, covid-19, depression, diagnosis, drowsiness, ehlers danlos syndrome, fatigue, generalised anxiety disorder, heds, hypermobile ehlers danlos syndrome, hypermobility, major repertoire project, masters degree, masters degree in songwriting, masters degree year two, masters part time, medication, meltdown, mental health, mental health update, migraine, obsessive compulsive disorder, occupational therapy, ocd, online therapy, pain relief, pandemic, pandemic 2020, pandemic anxiety, self harm, sleepiness, swimming, therapy, trichotillomania, trigger, trigger warning, tw, university
Posted on May 8, 2021
And that’s another semester, another module done. The time is positively flying by and now there’s only one module left. But, before I move into that one, I wanted to reflect on this last module. The Writer’s Voice has been my favourite module so far (as I thought it would be) and I wrote more songs than I did in any of the others so far. I also think I wrote my best – and favourite – songs.
We were in lockdown when the module started so all classes were online. When lockdown started to lift, universities being one of the first things to open up, some of my uni’s courses started having in person classes but my course didn’t as we could continue to function online while other courses, like the performance or production courses, couldn’t. I have to admit I was relieved: I didn’t feel up to handling a big change, especially after having worked so hard to build a good rhythm with the online classes and writing sessions, and I really didn’t feel confident about commuting to London, meaning I probably would’ve stayed in online classes while many of my friends would’ve been onsite. I would’ve barely seen them. I really felt for everyone struggling with online learning (and that’s not to say I love it) but I was really grateful not to have to make a big adjustment in the middle of the semester. So we stayed online.
It was a really great semester and I’m really sad that it’s over – I’m not sure I can do it justice in a simple blog post – even if I’m really excited for what’s next.
We spent the twelve-week module looking at various different techniques related to lyric writing, from song maps and types of rhyme to sensory imagery and ekphrasis. Some of it was difficult, some of it was easy; all of it was an exciting challenge. The first half of the semester was focussed on the more technical, structural side of things, what my tutor (who is just awesome) called ‘thought architecture.’ And then the second half of the semester was focussed on the content of the lyrics and how that content is expressed. We had lectures on the techniques and then we’d get a week to write a song using that technique. I loved it: lyrics have always been my favourite part of songwriting and I’d been looking forward to it since I began the Master’s.
While the lecture group was big, my workshop group was small, made up of just the Part Time Second Years; there were about ten of us and they are all really, really lovely, thoughtful, creative people. I’ve had some great groups throughout this course but this one has felt extra special (although my first group was super special too). I feel like we were a really close-knit group: we shared a lot of stuff, both through our discussions and our songs, and we all cowrote extensively together in various combinations. I actually wrote with everyone in the group, an unintentional achievement that I’m quite proud of.
I think my favourite thing about this module was that the whole point of it was ‘learn things and then write as many songs as possible, learn more things and then write as many songs as possible, and so on, and so on.’ To a degree that’s what most of the other modules wanted you to do too but something felt different about this module; maybe it was because we were focussed on lyrics and that’s my favourite part, maybe it’s because of how much we’ve learned since starting the course and getting to this module, maybe it was because I was in a much better place mentally than I had been in a long time, despite everything going on outside of uni stuff… I don’t know. But something felt different. I was invigorated by the challenge of writing, of just writing all the time. It was awesome. It was so much fun. And I wrote so many songs that I’m so, so proud of:
And that doesn’t include the songs I wrote with others for their projects (I wouldn’t want to give anything away if they decide to release those songs). I love cowriting and I did so much of it this semester, sometimes four in a week, although I admit that that was stupid and completely draining. But it was just so fun and I loved every second of it, even when my brain was exhausted and moving slower than a snail. I loved learning their songwriting languages – each one different, of course – and I loved the challenge trying create the perfect song for them (and I still love both of these things, obviously). I made some really great creative relationships and some really great friends (or strengthened existing friendships) and that’s been the other wonderful thing about this module. These people are just so wonderful and I love writing with them and I sincerely hope that that continues for a long time.
The assessment for this module was a portfolio of four songs and an analysis of some of the techniques used. The song choice was pretty straightforward (at least it felt straightforward – I guess we’ll find out when the grades come out) but the analysis was harder. With the Masters in general, it’s felt harder to understand what they want from us, especially in the written work. I don’t know if that’s just part of Master’s level work or whether the difficulty is something to do with me and my Autism or ADHD. Either way, the constant uncertainty is exhausting. And even explained to me, I’ve still rarely felt confident about what I need to do to get a good grade. So assessment time is always a stressful time. But I worked hard and got through it with the support of my tutor and my friends and my Mum and now all that’s left is waiting for the results.
I also had some really exciting and fun opportunities come up during this module. They’re not over just because the module is but it would be remiss not to at least mention them when talking about the module. First of all I was chosen to be part of the judging panel for a songwriting competition, which has definitely been an experience and a half so far. I’ve learned a lot and, for the most part, it’s been really interesting and really fun.
The other exciting opportunity is a more academic one. There’s going to be a musicology conference in July focussed on starting to build a body of research on Taylor Swift as she’s such a phenomenon (in music, in pop culture, in business, etc) and there is very little research so far. We were invited to attend this (online) conference but also invited to submit research proposals, which, if accepted, meant speaking at the conference. As a major Taylor Swift fan, this seemed like a dream. So I got to work, wrote a proposal, and submitted it. And a few weeks later, I found out it was accepted so I will be speaking about Taylor Swift at an academic conference! I’m so excited, even if the idea of presenting alongside established and accomplished academics is more than a bit nerve-wracking.
Despite all of the changes going on in my life over the last three-ish months (managing my mental health, managing my chronic fatigue and pain, getting the ADHD and hEDS diagnoses, and just coping with all the stress of the pandemic), this is the most I’ve felt like myself in months – in over a year, I think. All the writing has been really good for my mental health and I feel like that and the classes were a very stable thing in my life, like a rock to cling onto in a really wild ocean. Somehow, everything about this module was exactly what I needed exactly when I needed it (apart from a few mishaps here and there). I learned so much and had so much fun; it was really good for my soul after a really hard year so I’m really grateful for these last three months.
Category: about me, adhd, anxiety, autism, covid-19 pandemic, diagnosis, heds, mental health, music, university Tagged: conference, coronavirus, covid-19, cowriting, friends, icmp, lockdown, lockdown 3.0, lyric writing, masters, masters degree, masters degree in songwriting, masters degree year two, masters part time, musicology conference, online classes, online learning, online university, pandemic, pandemic 2020, part time masters student, songwriter, songwriting, songwriting competition, songwriting techniques, taylor swift conference, the institute of contemporary music performance, university
Posted on April 24, 2021
So, on the 4th January, England went into another national lockdown and this list was once again revived. This one felt much more like the first lockdown than the second, where many schools, businesses, etc were still open. When schools and universities started to open, my course remained online (it was one of the courses that could function solely online and meant less people going back to the uni) so lockdown continued for me. My life has only just started to involve going out again – swimming, getting a haircut, (safely) seeing a few people – and that’s why I’ve kept this list going as long as I have…
As I said in the last part of this list, hopefully there won’t be reason to continue this post; hopefully there won’t be any more lockdowns. But I guess only time will tell. I’ve found it strangely comforting to keep this list; it’s kind of like a time capsule for these strange periods of time, if that makes sense.
I hope you’re all keeping safe and well and I’ll see you in the next post.
Category: adhd, autism, covid-19 pandemic, death, diagnosis, heds, medication, meltdowns, mental health, music, tips, trichotillomania, university, video, writing Tagged: a&e, about-face, absentia, acoustic ep, acoustic sessions, adhd, adhd diagnosis, adhd medication, ancestry, ancestrydna, attention deficit hyperactivity disorder, ava, betsy lane, birthday, blood & water, cat family, christmas present, chronic fatigue service, chyler leigh, collaboration, coronavirus, covid test, covid vaccination, covid vaccine, covid-19, cowriter, cowriting, cowriting session, creating the queen's gambit, criminal minds, dare me, dbt, dialectical behaviour therapy, ecg, escape from pretoria, evermore, family history, fawm, fawm 2021, fearless (taylor's version), february album writing month, film, films, folklore, friends, grammys 2021, grey's anatomy, grief, grief anniversary, haircut, halsey, heds, honest ep, honest ep (sunburst sessions), hospital, how it ends, how to train your dragon, hypermobile ehlers danlos syndrome, hypermobility, inattentive type, interview, kalie shorr, lexie grey, lockdown, lockdown 2021, lockdown 3.0, luce, masters, masters degree, masters degree in songwriting, masters degree year two, masters part time, medical trauma, medication, meltdown, migraine, movies, my cat, my cats, my dog, natalie hemby, new amsterdam, new music, new music release, new music uk, new single, nicola walker, occupational therapy, online concert, part time masters student, peppermint, politics, put it in a postcard, remote writing session, research conference, rheumatologist, rheumatology follow up, richard marc, social distancing, songwriter, songwriting, songwriting competition, sunburst sessions, taking lives, taylor swift, the bay, the dig, the one, the one netflix, the queen's gambit, the shires, the wilds, therapy, tim minchin, tiny pretty things, travis meadows, trich, trichotillomania, triggered, tv show, unforgotten, university, us politics, world autism awareness week, world autism awareness week 2021
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter (and currently studying for a Masters in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
I’m currently releasing my first EP, Honest, track by track and all five songs are now available on all major music platforms. However, there’s still more content to come…