Finding HopeAnother Anna Akana Video I’m Grateful For
Posted on November 17, 2018
In the middle of my recent bout of depression – the worst one I’ve had – at my lowest point, an Anna Akana video appeared in my YouTube subscriptions. It was called ‘the voice’ and it was about her new short film that was being released the next day.
She talks about how, while 2017 was the best year of her life, her depression was also at its worst. There was a voice – that felt like it was in the room with her – telling her to kill herself. And it got to the point where she had a plan for how she was going to go through with it, which is a major red flag.
“I was just so in pain and I just felt like I had nothing and like I was nobody and I wasn’t worth anything at all and I literally… I have this big whiteboard on my wall and I wrote out DO NOT KILL YOURSELF, like all across it. I put it on post it notes and I put it on my bathroom mirror and like… everyday when the voice came and I would be like ‘SHUT THE FUCK UP!’”
While she still struggles with depression, she says she’s out the other side of that particular battle and she credits getting through to all the mental health education that’s out there and all the things you have to do everyday, hoping that they add up. She also made this new short film, pouring everything into it because she needed something to remind herself of why she’s here. It’s about the moments she wanted to die and all the things she had to live for. I would include it in the post but I just really want to focus on this introduction video (but you can find the short film here). Maybe I’ll write a full post about it when I’ve sorted out all my feelings about it.
I am so grateful for this video. Talking about this stuff is so hard and so to have this raw and uncut video where she talks about this experience but also how she got through it was and is so important to me. It’s helped me in this incredibly hard period and so I wanted to share it here.
“Please don’t kill yourself if you’re also suicidal… just don’t do it. There’s a lot… there’s a lot of great things to live for.”
I Rediscovered Swimming
Posted on November 3, 2018
One of the most common pieces of advice with anything mental health or mental illness related is to exercise. And while that’s not bad advice, it’s not necessarily good advice in the practical sense. It’s about as helpful as saying, ‘eat healthy’ or ‘get enough sleep.’ It’s something that has to be tailored to you. Specific types of exercise will help where others may make you feel worse. So you need to find the one for you.
For example, I hate running. I would love to love it but I hate it. I find it at best uncomfortable and at worst painful: it’s like my bones are rattling inside my body. I’ve heard this from others with Autism but I don’t know if it’s specific to that or whether it’s a coincidence. But anyway, running is not the thing for me. Swimming however…
I have always loved to swim. I love the feeling of moving through water and when I was a kid, I loved the silence that comes from being underwater. I would’ve given anything to be able to breathe underwater so that I could stay in that silence. That’s pretty ironic given that I would grow up to develop anxiety that is triggered by a lack of noise and distraction.
I got back into swimming a couple of months ago. At the beginning, my anxiety was so bad that I couldn’t even swim: the lack of stimulation for my brain meant that I just spiralled and my anxiety became completely overwhelming. So me and my Mum would walk and talk, planning the day or talking through whatever thing was on my mind that morning. Eventually my anxiety mutated into a different state and I was able to swim. It’s had such an impact on my life so I really wanted to write about it.
Swimming pools have the potential to be very difficult for me, from a sensory perspective. When it’s busy, the sound bounces around and around, making it one big fog of noise, which makes me very anxious. And the fact that I’m so short sighted I can barely see without my glasses makes that anxiety even worse: I can’t see anything and the sound feels like it’s coming from everywhere and that causes me paralyzing anxiety. It’s how I imagine it would feel to be on a carousel but if the carousel was going at ten times the normal speed. It’s scary. The best times to get in a quiet swim seem to be first thing in the morning and last thing at night. I’ve been sticking to the morning; it makes for a more productive day for me.
Knowing that this is the time that allows for the best swimming experience, I’ve been getting up early and getting to the gym for about seven forty five (sometimes I even get the pool to myself, which is glorious). And knowing that I have to get up that early, I’m going to bed at a sensible time, rather than accidentally staying up until three in the morning. So a routine sort of formed by accident and that has been so good for me. My relationship with sleep has never been so good.
Exercise has always been difficult for me given my historic struggle with energy but also because ‘weight bearing’ exercise often feels very jarring. As I’ve already said, it makes me feel like my bones are rattling inside my body and each impact makes it worse. Sometimes it’s not that bad and I can be distracted by whatever I’m doing but sometimes it can actually be painful. So swimming is perfect. It takes that whole aspect out of the equation and makes exercise actually enjoyable. It reminds me of my arthritic dog: he goes for hydrotherapy and as soon as he’s in the water, chasing tennis balls, he’s like a puppy again. He loves it and I can totally relate.
The best thing about swimming is that it’s something that makes sense and that’s something I really need at the moment. The world feels hard and unfair and this is something that I can control. The more I swim, the stronger I get. I can see the results. I’ve been swimming most days for the last three months and I see my own progress: I’m swimming further; I’m swimming faster; I can see my body changing. It makes sense. That grounds me.
The one thing I do have to be careful of is my tendency to obsess: about the number of laps, getting to the next ten, getting to a hundred… Once it’s in my head that I ‘have’ to get to a particular number, there’s not much I can do to change my own mind and it causes me serious anxiety if I don’t reach the number I’ve ‘decided on.’ So I have to be aware of that. Sometimes I can avoid it by distracting myself or by deciding on exactly how long I’m going to spend in the pool but sometimes I just have to manage it. Sometimes that’s all you can do.
But overall, rediscovering swimming has been one of the major highlights of this year. It’s helped my physical health and my mental health, as well as my day to day life. So I feel very grateful to have found it again.
And since I can’t take my phone into the pool with me, here’s a photo of my dog, enjoying his fortnightly swim.
Describing Depression
Posted on October 27, 2018
I love words. I LOVE words. And that’s so viciously ironic for someone living with Autism and mental health problems because they are so difficult to describe, to talk about, to truly put into words. I’ve talked about how much I write and how much I document (this post here) and every now and then I think, “Oh my god, I’ve got it. That’s how it feels.” And then I go to therapy or I talk to a friend or teacher and I go to describe how I’m feeling and I’m just left scrambling. Because these things are so hard to put into words.
Let’s talk about depression specifically. This one seems to have a lot of metaphors attached to it:
- Living in darkness – With the associations between light and good and happiness and therefore the associations between darkness and bad and sadness, the connection here is obvious. It’s also a metaphor that fits with the feeling lost and directionless and not knowing how to move forward. And living in it implies a terrifying finality.
- Winston Churchill’s black dog – We can’t know for sure what Winston Churchill’s mental health was like, whether he suffered from mental illness, from depression, but he did describe periods of great despair that he referred to as his ‘black dog,’ that came and went as it pleased. (While I can understand this metaphor, I personally really don’t like it, being the owner of the the gentlest, sweetest black dog and therefore nothing like Churchill’s description.)
- Having a dark cloud follow you around – Weather metaphors are common in mental health, maybe it’s the all encompassing nature, maybe it’s the lack of control we have over it that makes it a fitting metaphor.
- Being surrounded by fog – Similar to the weather metaphor, it’s uncontrollable and overwhelming. It blots out the sun, makes good indistinguishable from bad, makes it difficult to make your way forward.
- JK Rowling’s dementors – Everyone who’s read Harry Potter knows of dementors and the effect they have on people, essentially sucking the happiness, the joy, the life out of people. JK Rowling has talked about how dementors are the embodiment of her depression, not unlike Churchill’s metaphor.
There are more, of course: everyone has their own descriptions (and they can change depending on the particular state of the depression). On which note, I thought I’d throw in a few of my own:
- Feeling like I’m filling up with water – When I’m deep in depression, I feel like my body is filling up with water and the water level gets higher and higher until it’s reaching my mouth and nose and I start to feel like I’m going to drown in it. And sometimes it feels like something more sinister than water, like ink or oil.
- Feeling like I’m deep underwater – Sometimes I feel like I’m in it so deep that I can’t even see the surface so I don’t even know, which way to swim. And down there, I feel so alone.
- Having a black hole in my chest – On a day to day basis, it drags everything in, making it difficult to even know what I’m feeling before it’s gone and on bad days, it’s so strong that it can feel hard to even stand up straight.
- Feeling like there’s a darkness inside my chest, but deeper than is physically possible for a human body – That’s the only way I can describe this sensation. I understand the dimensions of my ribcage but it feels so much deeper than that, miles deeper. And there’s a darkness there, an ache, like this incredibly deep well of misery.
I posted this on Instagram a while ago:
“Ever since I saw @littlepineneedle’s post and the hashtag #seemyinvisible, I’ve been thinking about it and how I could visually represent the things I struggle with. But in the end, I decided just to look at how I’ve been feeling lately. My mental health is a constant balancing act but lately, my depression has been overwhelming. It feels like there’s a black hole in my chest that’s trying to suck everything in and it’s all I can do to stand up straight. Nobody can see it and that only feeds it. It’s been really inspiring to see so many people sharing their stories over the last few days. This is one of the reasons why #mentalhealthawareness is so important: it helps us to feel less alone.” (x)
I’m not entirely sure what I’m trying to do with this blog post. I guess, I’m just trying to put this thing into words.
Blog Note: This is the 100th post on this blog, which is amazing. I love this blog dearly and am so proud of it as a project. I don’t know what the future holds but I do know that it probably holds more posts…
I would also like to just put it out there that my mental health – my depression especially – has been… less than great recently. It’s been brutal, more so than I’ve ever experienced and I’m really struggling. The most common advice I get is ‘just take it one day at a time,’ but that’s what I’ve been doing for weeks and nothing’s changing. I feel completely stuck and I don’t know what to do.
Meltdowns, Halsey, Halsey, and Meltdowns
Posted on October 20, 2018
I’ve never really written about meltdowns before. Not long after I started writing this blog, I started taking Venlafaxine for my depression, which essentially numbed me to all my emotions. And since my meltdowns have always come from an emotional place, I basically stopped having meltdowns. But I couldn’t deal with not being able to feel anything: everything I do – writing, songwriting, relationships, choices – everything I do is based on emotion. So I came off that medication and my emotions (and my ability to think clearly) came back. But I hadn’t had any meltdowns until recently.
A couple of weeks ago, I was supposed to be going to see Halsey in London, something I’ve been looking forward to for years. Since I saw her in 2016. I love her songs – a masterclass in lyric writing, melody, production, songwriting in general – and she’s an incredible performer, one of the best I’ve ever seen. I particularly love the Badlands album: somehow the songs just make me feel brave. So I was really, really excited.
If you’ve been keeping up with my blog, you’ll know that my depression has been particularly suffocating recently and when it’s that bad, being out and around people is incredibly difficult. Sometimes talking about those emotions and the strength of them is helpful: just letting it out of my body lessens the pressure and makes it easier to cope but sometimes, like this time, it’s like a crack in the dam. It just started pouring out and I couldn’t reign it back in. I was desperate to get to this show though so I kept trying.
My Mum drove me to the station but when we got there, I couldn’t get out of the car. It was like a magnetic force preventing me from getting out of my seat, from making decisions. My Mum suggested alternative ways of doing the day but I could feel all the possible decisions and deviations spiralling away from me and I ended up shouting that I needed her to stop (all that anxiety and stress and emotion just exploded out of me). I just couldn’t. I couldn’t find the right decision but I knew when they were wrong. So my Mum said she was going to drive me to London and take me to the show. That’s the only way I was going to be able to go. So that’s what we did.
This is one kind of meltdown. There seem to be different variations of them based on the situation. Usually, I can’t do anything after having one; usually I just have to go and sleep until I feel like myself again. But my desperation to go to the show pulled me through all of that somehow. It took me over an hour to be able to think clearly and make sentences again and by the time we got to the show, I was just about functional – I could walk, I could interact with others (although I still couldn’t make eye contact with anyone) – although I felt like I was in a different dimension to everyone else: we could see each other and interact but it was like we were on different frequencies. I’m mixing my metaphors I know. Meltdowns mess with your head.
It was an amazing show. Halsey shows are unlike any other shows in my experience. She gives everything to her performance. The energy is just off the charts, her vocals were incredible, and the stage/backdrops are complete works of art. The songs I loved before, I loved even more. The songs I liked before, I loved by the end of the show. The performances and the stories she tells about them make every single song special and I will hold on to all of it forever.
Because of the meltdown, I was in a really strange headspace: I felt far away and disconnected and kind of lost. So I couldn’t enjoy the show in the way I would have had I not had the meltdown. But I did enjoy it and looking through my photos and videos makes me so, so happy and grateful and proud that I managed to get there. And it helped somehow. I can’t really explain it but it helped. It’s like it filled in all the cracks with gold, to use a Japanese art form as an analogy.
I got home, went to bed, and got up the next day, ready to do the whole thing again, although without the meltdown (or so I thought). As an autistic person and a concert lover, I really like to go to shows twice where possible. With the lights, visuals, music, the scream, the energy expended, the energy expended getting there… I find it incredibly difficult to process everything and I get overwhelmed very quickly. It all starts to pass through me without really landing. Fortunately, the only thing I really spend money on is concerts so that is something that I am sometimes able to do.
For several days after a meltdown, I feel really, really fragile. So my Mum – my hero – said she’d come to the show again. Thank goodness she likes Halsey too. So we drove up to London, got to the venue, and really enjoyed the show. My god, Halsey is just so good. And seeing it twice just meant that I could take in all of it and that was just so amazing. Some of my favourite moments include (I could easily list everything but I’ll try my best to just keep it to a few):
- The opening song, ‘Eyes Closed,’ will always be special to me because of the feeling it created. The energy in the room lifted by tenfold and it was the closest thing to magic I’ve ever experienced.
- How she left it to the crowd by shout the lyric, ‘Do you call yourself a fucking hurricane like me?’ I wasn’t expecting that and the intensity of the crowd just took my breath away.
- The visuals for ‘Hurricane’ were the most beautiful things I’ve ever seen. And during the song, she shouted, ‘London, this song is a reminder that you do not belong to anybody but yourself!’
- The little B stage that I thought was made up of LED lights but was actually covered in water (I really have no idea how to explain it) where she and her dancer stamped and kicked water into the crowd during ‘Don’t Play.’
- The volume of the crowd when everyone sang along to the stripped down version of ‘Closer.’
- The way she sat and talked to us, the story she told about ‘100 Letters,’ and how she finished by saying, ‘You only get one you in this life. Do not waste it on someone who doesn’t appreciate who you already are.’ Maybe it sounds cheesy but in the moment, it almost brought me to tears. I’m tearing up even now as I write this. The shows were just one empowering moment after another and for that, they will always be incredibly special concerts to me.
- The beautiful flower backgrounds for ‘Now or Never.’
There are so many more moments I could name but I’ll leave it there. They were two really incredible concerts and I feel so lucky to have experienced them.
When the show finished, I was absolutely exhausted, physically and mentally. Walking down the stairs to the venue exit was physically painful. I’d specifically bought a seated ticked because I don’t have the energy at the moment to stand for such a long period of time but there were two girls who stood for the whole thing (almost everybody sat behind them ended up standing in the aisle so that they could see – they refused to sit down or move despite the disruption they were causing) so I kept having to stand up to see. My whole body hurt by the time it was over. Apparently that’s another unexplained Autism thing: fatigue and pain and so on with no obvious cause.
We made it out of the venue and were halfway across the street – standing on the traffic island – when an ambulance less than a few feet away turned on its siren. I don’t know if I can really explain it: it’s something so deeply rooted in emotions and sensory stuff that I’m still searching for the right words. I might never find them. But the sound – the high-pitched, ear-splittingly loud sound – just completely overwhelmed me in a split second. It was like it blew a fuse in my brain and suddenly I was screaming and my knees buckled and I would’ve hit the ground if Mum hadn’t caught me. At some point the screaming turned into crying and shaking and somehow my Mum got me onto the tube, back to the car, and home to my bed and my cats. It took most of the journey before my brain reengaged and I could think in complete sentences but even then I couldn’t talk. It just took too much energy.
We got home, went to bed, and I spent the next few days recovering. In truth it took me over a week to feel like myself again and to process and commit to memory the amazing moments from the concert before the meltdown, before my brain shut down. It was a lot to make sense of. Meltdowns are traumatic and I don’t use that word lightly. I will write more about them, when I’m in a more stable, more composed place. I’m more than a bit all over the place at the moment. But this page here is an amazing resource so do have a look at that if you want to know more about meltdowns (and shutdowns).
And just in case:
Thank you Halsey (I never know whether to think of you as Halsey or as Ashley). Thank you for an amazing show and a treasured experience. It might’ve been a rough weekend but the shows were worth the meltdowns. Concerts make me feel alive, make me feel real. You gave me that and I’m really grateful.
So I Wrote A Thing For World Mental Health Day
Posted on October 10, 2018
(Trigger warning for self harm.)
Today is World Mental Health Day.
If I’m honest, I’m not really sure what to say. I’m in the middle of the worst depression I’ve ever experienced and I’m very aware that my perspective, my opinions, my hopes are distorted by that. If this was a video, I might just sit and cry. But this day is important so I’m trying to pull myself together and put something out into the world that is (hopefully) positive (and maybe helpful).
This year’s theme is the mental health of young people. When it comes to things like this, I’ve never felt comfortable talking about anyone’s experience but my own. So that’s what I’m going to do. I hope that’s okay with you guys.
My experience at secondary school was a very mixed one. I spent the first three years dealing with some complicated health problems but by the time I reached Years 10 and 11 (ages fifteen and sixteen for those of you who don’t know the education system in England), I felt really settled. I loved learning, particularly English, Maths, History, Psychology, and Philosophy (real shout out to my teachers in all of those subjects). I got real satisfaction from working hard and that was reflected in my grades. I came out of secondary school with not unimpressive grades, especially when you consider I missed most of the first three years. So I felt pretty good about going into Sixth Form (A Levels/ages seventeen and eighteen).
But that was when it all started to unravel. I really, really struggled. I’d gone from completing the work with ease to barely scraping by. I couldn’t understand it: I was trying so hard and it didn’t seem to make any difference. And I couldn’t see it at the time, but my anxiety was getting worse and worse and what I now know to be depression was creeping in. But I didn’t know it was happening so I just kept pushing forwards. I spoke to a couple of people about the high anxiety I was experiencing but each one told me that anxiety is normal and that was the end of the conversation.
It all came to a head when I failed an exam, something that had never happened before. I’d been told I was all set for an A* and I came out with a U. I was absolutely devastated. I know now that our worth as human beings has nothing to do with grades but I was eighteen years old: I had only ever been valued based on my grades. It’s no one person’s fault but that’s how the education system in this country works. It needs changing.
But back to this little story. I don’t remember much after I opened the envelope and saw that U but I ended up in one of the less used college toilets, self harming repeatedly with a broken paperclip. I don’t know how long I was there (long enough that the automatic lights went off and I was plunged into a very appropriate darkness) but at some point, my friends tracked me down and coaxed me out of the stall. I still remember seeing my reflection: my make up all down my face, my hands shaking, and the scratches barely hidden by my long sleeves. One friend took me to a nearby café, bought me a hot chocolate, and just talked to me. And eventually I told her what I’d done. Her kindness and gentleness was so healing, not for the whole problem but for that very difficult day. I will never forget it and I don’t think I’ll ever be able to repay it.
After that, I dropped out of that course and clawed my way out with two A Levels and an Extended Project, far less than I and everyone had expected of me. I went straight into a music course but had to drop out two days in because my anxiety was so bad that I just couldn’t cope. I spent a year grappling with the anxiety and depression, trying the first of many antidepressants (so many) and trying to retake some of the exams in the hope that I could improve my A Levels (I didn’t end up opening the results of those until after I finished my degree, three years later, but that’s another story). During that year, I tried desperately to get help from the NHS to no avail: my anxiety was so bad that talking to people I didn’t know was practically impossible and they refused to help me if I wouldn’t talk. Eventually we were forced to go private, something that I’m endlessly, endlessly grateful has been possible. And I only managed to get my diagnoses when my university said they weren’t able to help me if I didn’t have an official diagnosis.
It still upsets me to talk about. I asked and asked and asked for help but no one either seemed able or willing to help me. I would not be as twisted up now had that not been the case. The information and support was not available to me, it wasn’t available to my family, and it wasn’t available or deemed important enough (I’m not sure which is worse) to the medical professionals I saw. That has to change. It is not acceptable.
Now that I’ve told my story, I want to include some other important, relevant stuff.
The first thing is that I want to link you to Hannah Jane Parkinson’s recent article in The Guardian. She makes the very important distinction between mental health and mental illness. And this is where, I think, physical health and mental health are most comparable: your mental health is something you take care of (or don’t) everyday, by eating and sleeping well, exercising, talking through your emotions, and so on. Mental illnesses, similarly to physical illnesses, can be caused by not taking care of your mental health but there can also be genetic factors, environmental factors, and just hard stuff going on in your life.
WAYS TO HELP YOUR MENTAL HEALTH:
- Talk – Talk through your feelings with someone you trust.
- Keep a journal – This way you can air your thoughts and feelings in private.
- Keep in contact with friends – It’s really easy to get busy and fall out of touch but spending time with people you love and feeling connected to other people is so important.
- Exercise – This doesn’t mean every or any kind of exercise will help. On a personal level some types of exercise can potentially hurt your mental health. You just need to find the one that does help and then it will really help. I always recommend swimming because it’s non-weightbearing and therefore causes less strain on your body when you’re potentially already struggling with physical symptoms, like fatigue.
- Eat well/drink sensibly – Everything we put into our bodies affects our minds.
- Be mindful of your commitments – Yes, social interaction can be really helpful but if you’re taking on too much, it will take more from you than it gives you. And then you won’t be able to cope as well with whatever else is thrown at you.
- Ask for help if you start to feel mentally and emotionally overwhelmed – Fortunately it’s starting to become easier to access support and counselling but even if it’s a struggle, it is a struggle worth going through.
- Spend time with animals – It’s scientifically proven that being with animals is good for your health!
WAYS TO HELP YOUR MENTAL ILLNESS:
- Work with a medical professional/therapist that respects and understands what you’re struggling with – Finding one can be the mission of a lifetime but having that presence in your life whose sole purpose is to help you through your struggles is incredible.
- Medication – If you’re prescribed medication, take it diligently.
- Try to keep track of your triggers – Knowing what they are doesn’t always prevent them from sending you into a complete spiral but even one spiral avoided is progress.
- Create a support system – This isn’t something you can necessarily do without help but, over time and with the help of people who care about you, building a circle of trusted people who will support you through whatever it is you’re going through is so special and helpful.
- Take time off if you need it – This is one I think we all struggle with. It’s a learning curve for a lot of us but it is important and can prevent small problems from becoming big problems.
- Find a stress reliever – Whether it’s reading, or watching every episode of your favourite TV show, or doing something artsy like watercolouring, taking a break from all the stuff in your head is well worth doing.
- Create a safe space for yourself – Living with a mental illness is exhausting and so having somewhere where you can just exist without thinking or masking is so important.
And of course, there is overlap between these two lists.
Where we go from here, I’m not sure. The information about mental health and mental illness is spreading and spreading and more and more people are speaking up. Now we need the right systems to support it: doctors, treatment, government officials who advocate for positive change. For now, that’s all I know. For now, I’m just trying to manage one day at a time.
(And a gentle reminder, my debut single, ‘Invisible,’ which I wrote about my experiences with my mental health is available on iTunes and Spotify and all those places and all proceeds go to Young Minds, a charity that supports young people in their mental health.)
Birthday Rules
Posted on October 6, 2018
A few years ago, I found this post on Tumblr about celebrating ‘grown up birthdays.’ This person talked about how stressful they found birthdays as an adult and so they’d implemented two rules: do something you wouldn’t normally do and buy yourself something you wouldn’t normally buy. They said that, since starting these rules, each year has been distinct and memorable.
I really like this as an idea. I can definitely relate to feeling anxious around birthdays: I always feel like I’m not enjoying myself as much as I should be, like I’m not happy enough. It’s silly but it gets me all twisted up. And when I was in school and university, my birthday always felt rushed, what with the start of the academic year.
More recently, as I’ve been struggling more with my mental health, I find myself thinking something like, “This is the year I’m going to feel better,” or “I’m going to feel better by my next birthday.” It causes me such anxiety. And the longer this period of depression goes on, the more anxious I get. I’m aware that it’s not a helpful thought to have but it’s not an easy one to unpick. But maybe a possible answer is to associate my birthday with positive memories.
So here we go…
Rule #1: Do something you wouldn’t normally do.
I had a couple of thoughts about this one but then one just fell into my lap and just seemed perfect.
My dog has had hydrotherapy for years. He’s fifteen and very arthritic and it’s helped massively. Plus it’s probably the most adorable thing I’ve ever seen. He used to surge through the water after tennis balls, kicking so hard that the hydrotherapist had trouble figuring out which joints were working and which weren’t. But now it’s much calmer. He knows the ball will be there when he gets there. Anyway.
Usually he works with a hydrotherapist but this time, the hydrotherapist taught my Mum and me how to do it. And oh my god, it was hard work. They make it look so easy! Trying to gauge how much he’s extending and the angle his legs are at when fully extended was really tricky but as an experience, it was so much fun. I was exhausted afterwards but I really, really enjoyed it and it was a special experience.
Rule #2: Buy yourself something you wouldn’t normally buy.
I get very anxious about spending money (this post is turning into a list of things I get anxious about…) so carrying out this rule was probably a good exercise in challenging that anxiety. Anyway.
For as long as I can remember I’ve loved typewriters. I like how they look, I like how they sound, and I love the tangible quality that they attach to stories and poetry and words. I’ve been fostering one – if that makes sense – for the last couple of years and I love it dearly but there’s always been one I’ve had my heart set on. It’s the most beautiful typewriter I’ve ever seen and then a couple of weeks ago, I saw one for sale on Etsy. I’ve had these rules in mind for a while and given how rarely it happens to see this exact typewriter for sale, I went for it.
It’s so beautiful and it does actually still work. I haven’t had time to try it out yet but I’m really excited to.
Despite my current mental health struggles, it was a good birthday. It was quiet and low key but with some really positive experiences. It was a good day.
When Things Get Really Bad
Posted on September 1, 2018
Since I last posted on here, literally all I’ve done is survive.
After putting up last week’s post, I went to therapy, which just about wrecked me. It was really hard going. I don’t want to get too into what we talked about and what I’m currently struggling with because I’m really struggling with it and I’m still figuring out how to put all of it into words. But I think the gist of it is important to include: I’m struggling with ‘feeling’ autistic, like I’m never going to be able to function the same way as everyone else. I don’t know how to cope with a thought like that. And that has really triggered my depression, in a massive way. I feel like I say this every time, but it feels like the worst place I’ve ever been; but maybe I say it every time because each time takes more out of me.
It looks so small and simple when I write it out like that. But in reality it’s powerful enough to overwhelm everything.
I left therapy feeling absolutely drained. I didn’t know how I was going to get through the day, get through the week to the next session. But somehow I did, one minute at a time. This week has been about survival because sometimes that’s all you can manage – I feel like I’m standing on the very edge of the black hole that is my depression and it’s taking all of my focus to not get pulled in. So while I feel like I’ve achieved nothing, I’ve actually achieved everything. At least that’s what I’m trying to tell myself.
So I thought I’d write down what I do when I’m in this place, where the only thing I can do is survive:
Each day, I get up at seven and go to the gym to swim for thirty minutes. I always want to do more but through trial and error (usually error), I’ve found that this is the amount I can do and still kind of function. If I push on, I end up falling asleep during the day and screwing up my sleeping pattern or I end up in a place where everything makes me cry. So I’m trying to be sensible and build it up slowly.
I get home and head for the living room. I curl up on the sofa, turn on the TV and continue the rewatch of whatever TV show I’m watching (currently The Mentalist). I’m not really watching; it’s more about having familiar, comforting background noise so that the scary thoughts can’t get in. Then I find something that will distract me from all the overwhelmingly difficult things. The activities that work best for me are playing piano and printing, cutting, and sticking pictures from Tumblr into notebooks. And sometimes reading a book works, if I have the concentration to actually read.
And I use those things to get me through the day. I spend time with the animals in my house. I’m lucky enough to have a Mum who works from home so that I can have someone with me when I need to have someone with me. I try to eat well.
And then I go to bed not too late and start all over again.
It’s a hard thing to get my head around and I’m aware that I’m very hard on myself. Because even though I genuinely believe that sometimes all you can do is survive, I find myself getting desperately upset that I’m ‘not doing anything.’ I feel like I’m not trying hard enough – in my mental health, in my music, in my life – and that I should ‘push through it.’ And it’s so hard to think that when I feel so overwhelmed by my depression.
And, outside all of that stuff, someone I care about is in hospital and no one really knows what the outcome is going to be. So I’m trying to manage all the anxiety around that too but it’s like trying to stand on ground that’s constantly shifting.
I think that, if I keep writing, I’m going to end up going in circles: ‘it’s okay to focus on surviving’ to ‘I should be trying harder’ and back to ‘it’s okay to focus on surviving’ and round and round and round. So I’m going to stop here. But regardless of all my anxieties and negative thoughts, I know that it’s okay to focus on surviving. And I hope you know that too.
