Posted on September 21, 2020
Trigger Warning: This post contains mentions of self harm, but it’s simply a statement that it happened and there are no descriptions, graphic or otherwise. If this could upset or trigger you, please don’t read any further. Please always put your mental health and emotional state first.
I feel like it’s been a while since I posted a mental health update. And while most of my recent posts have mentioned mental health, I haven’t really felt able to write anything mental health centred. I’ve tried but it’s been really hard. Since the pandemic hit the UK and we went into lockdown, my mental health has basically been a black hole of anxiety and depression that I can only occasionally distract myself from. So it’s been hard to write about it, to write anything beyond “my depression is overwhelming and my anxiety is off the charts.” And there’s only so many times you can say that before it just makes things worse. So I’ve been focussing on things that might be helpful in lockdown, music things, and the day to day approach that I’ve been taking to things. The blog itself has been a method of managing my mental health. But now I’m going back to my Masters (my first classes – all online – are tomorrow) and I wanted to try and describe where my mental health is before I take on that new challenge. I guess it’s something to measure myself against, to see whether I’m coping or whether I’m struggling even more, because I really don’t know how these next few months are gonna go. So here we are, this is the state of my mental health at the beginning of my third semester of my Masters in September 2020…
My anxiety has been – and still can be – paralysing. Early in lockdown, it was a constant, debilitating state but it has evolved since then. It’s easy to get sucked in but day to day, I seem to be able to manage it with a combination of flexible tasks to distract but not restrict me and large amounts of Diazepam. I’m not sure how I’m going to manage going back to university classes with deadlines and uncertainties but as I’ve previously said, I need to try. I will reevaluate if my anxiety starts to become unmanageable again.
My depression has almost become background noise at this point, just a deep, dragging feeling at the back of my mind. I’ve had days where everything just felt so overwhelming and insurmountable that all I could do was stare at the TV and breathe but most of the time, my anxiety has just taken up too much of my attention to really feel it. This still seems to be the case: my anxiety is just too demanding to allow it much space in my brain.
My OCD, which manifests as a compulsion to write down everything that happens to me, has been easier to manage in lockdown with not much going on. I was majorly behind when lockdown began and, because this period of time is so unknown, I wanted to document it in real time so I started a new notebook with the plan to catch up with the old one as time passed. Unfortunately I still haven’t managed that and with multiple stressful things happening in the last few weeks, I’m behind in my current one so I’m going into a new academic year already trying to juggle that. My attempts to balance my OCD and my anxieties around Masters work was a really challenge last year and it looks like it’s going to be just as bad, if not worse, this year. So that’s really not fun and causing me a lot of anxiety already.
My Trichotillomania really spiked in the first few months of lockdown when I was so anxious that I could barely do anything. I’m currently writing a post about the triggers of hair pulling (not to be confused with the causes) and three big ones were really present here: stress, not having something to occupy my hands, and feeling out of control. So I was pulling a lot – to a painful level – back in March, April, May. But as I’ve slowly been able to distract myself and get things done, I’ve been pulling less – significantly less. It never completely goes away but I’ll take whatever I can get.
I’ve had multiple autistic meltdowns since lockdown began. Living with such a high level of anxiety, it doesn’t take much for something to trigger a meltdown. I’ve had about twenty (which I’m pretty sure is more than the whole of last year but I don’t have last year’s tracker in front of me); most of them have been ‘normal’ for the meltdowns I have but a couple of them have been significantly worse, taking days to recover from. They’re really, really horrible and I feel awful afterwards, mentally, emotionally, and physically.
While there have been periods of time where I’ve self harmed consistently, it’s more often than not a one off occurrence with big gaps of time in between. I’ve always considered it a coping mechanism for very specific emotional scenarios rather than a habit or addiction. Given how much I’ve struggled emotionally during lockdown, I’m kind of shocked that I’ve only done it once but then, with my Mum around all the time, maybe it’s not all that surprising: I know that it upsets her and that only makes me feel worse so I have suppressed it in the past. But there was one occasion where I just couldn’t. So it could’ve been a lot worse.
I’ve missed a lot of therapy sessions over the last few months. If I’m honest, I’m finding it really hard to know how to approach them. Obviously, the biggest thing is the pandemic and my pandemic anxiety but we can only talk about that so many times before running out of things to say and yet, I feel so mentally fragile at the moment that tackling any of my other issues feels like just too much, like the process of digging into something difficult might disrupt my delicate, carefully maintained ability to function. So I’m not really sure what to do. I’ve just started having regular sessions again so I guess we’ll see how it goes.
Am I ready for this next semester? I have absolutely no idea. I really don’t know how I’m going to manage it with my mental health as it is but as I’ve said, I need to try. The only thing worse than trying and failing would be not trying at all. Maybe that’s a naive approach to things, considering my mental health problems, but that’s how I feel. I can only hope that, if there are any warning signs that things are getting worse, I can see them and make the appropriate response.
Category: anxiety, autism, covid-19 pandemic, depression, emotions, medication, meltdowns, mental health, ocd, self harm, therapy, trichotillomania, university, writing Tagged: anxiety, anxiety disorder, asd, autism, autism spectrum disorder, autistic, autistic adult, autistic meltdown, autistic meltdowns, dbt, depression, dialectical behaviour therapy, diary, diary writing, diazepam, hair pulling, lockdown, lockdown 2020, masters degree, masters degree year two, masters part time, medication, meltdown, meltdowns, mental health, mental health in lockdown, mental health update, obsessive compulsive disorder, ocd, online therapy, pandemic, pandemic 2020, pandemic anxiety, part time masters student, part time student, remote therapy, self harm, self injury, therapy, trichotillomania, trigger, trigger warning, university
Posted on October 1, 2018
Lately I’ve been seeing a lot of articles and blog posts about unplugging from technology and practising being present and living in the ‘real world.’ I’m not anti doing this. If you think it’s healthier for you to spend less time on social media and have or are taking the steps to do that, then that’s great. Figuring out ways to take care of yourself is always a positive thing. But I find it so irritating when people act as though social media is the enemy of mental health and self care because it’s just not that simple. It has its flaws, of course, but I think its value to those struggling with difficulties like depression and anxiety and so on (there are obviously more but these are the ones I feel qualified to talk about) can get overlooked. It allows us to connect in the middle of something that is incredibly isolating and that is invaluable. It can be life saving.
These are some of the accounts that bring me joy or help me when I’m struggling…
Matt Haig – While I did struggle a bit with ‘Reasons To Stay Alive,’ I really respect Matt Haig and love his presence online. His posts range from moving to funny to encouraging. This is one that particularly spoke to me:
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This is Eldon Square shopping centre in Newcastle. In 1999, while I was still trying to claw back from a breakdown, I cried in this shopping centre. Panic and despair had swarmed me and the brace face I had tried to keep for Andrea that day had slipped. People could see me crying. A 24 year old strong young man, crying in a shopping centre. I was convinced I'd never get better. Never make it to 25. Well, I am now 42 and I just did an event at a packed out Waterstones across the road from here. I am the future I never believed in. A fiction that couldn't happen. And yet I did. It is amazing what can happen simply by living.
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Behindthescars_ – I’ve written a post about Behind The Scars, a photography project set up by Sophie Mayanne (you can find that post here). Seeing people be their authentic selves and find new strength is really amazing and inspiring.
JuniperFoxx – As a kid, I LOVED animals and I daydreamed about having a pet fox so I absolutely love this account. It makes my day to see a new photo or video of these gorgeous creatures.
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Laura Greenway – Laura is an incredible artist and I feel very lucky to call her a friend. She makes beautiful, thought provoking pieces to raise awareness and reduce stigma around mental illness. I love pretty much everything she makes but this one is a particular favourite and I was so sad not to experience it first hand:
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Really really hard to get a good photo of this, it’s more of a piece that you need to see in person, but today I installed my newest piece of work entitled ‘Baggage’ as part of my current residency at THAT Gallery Basingstoke! A little different from my usual, this piece employs the audience as the performer, encouraging you to walk amongst the 80 tags that hang from the ceiling and be surrounded by my own thoughts. The piece explores intrusive thoughts, and features a variety of day to day intrusions that I suffer with. A huge thank you to my amazing art team @mattglenart and @corvidaecrochet who helped for the best part of 4 and a half hours to install this piece. #art #artist #artwork #contemporaryperformance #fineart #modernart #contemporaryart #conceptualart #performanceart #mentalhealthart #mentalillness #mentalhealthawareness #anxiety #intrusivethoughts #automaticwriting #textart #writing #contemporaryartist #ocd #liveart #installationart #artistresidency #thatgallery #basingstoke
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Petroom – While this account isn’t at all deep or meaningful, it makes me smile and even laugh on a daily basis. Sometimes we need thoughtful advice or inspiring messages and sometimes we need cute animals with funny captions.
Anna Akana – I’ve talked about Anna’s videos before (here and here) but I had to include her in this post. Her videos are beautifully crafted and incredibly succinct in their messages, many of them about mental health with real, usable advice. I also love her sense of humour and the short skits where she plays all the characters.
DudeBabe – Lauren is one of my favourite people on YouTube at the moment. Her videos are raw and honest and she posts almost every day, about her life and her experiences with an eating disorder. Food is a daily struggle for me so I find her videos really helpful but mostly I’m just really inspired by her openness.
This video is my favourite: it gives me hope that, one day maybe, I can have this sort of positive, freeing experience with my mental health.
(EDIT: I wrote this blog post before Claire Wineland died and although that doesn’t change whether or not I’d include her in this list, it added a weight to this post that I never expected when I started writing it. And what I wrote about her, it was true then and it’s true now. I just wanted (and needed) to acknowledge all of this.)
Claire Wineland – I’ve talked about Claire before (here) and introduced her channel (here) but I couldn’t not include her on this list of helpful and inspiring social media accounts. She speaks so eloquently about some really tough stuff and she always inspires me to be a better person, to be a positive force in the world.
Lucy Moon – Lucy is a vlogger and makes all kinds of videos, from fashion and make up to food to chats about therapy (that is a particularly good video). She also does an ongoing series of videos called 168 Hours, where she documents a week in one video. I find all of her videos really calming to watch. There’s something very reassuring about the way she talks.
Claudia Boleyn – I’ve watched a lot of YouTube videos about BPD and Claudia’s are my favourite by miles. I’ve talked about her videos before (here) and there are others that deserve their own posts because she describes it all so, so well. She’s thoughtful and eloquent and her videos mean so much to me: for the first time, I didn’t feel alone in this.
Haley Pham – I found Haley through her dance videos. I absolutely adore her dancing; I find it so calming. If I could have her dance for one of my music videos, I absolutely would. One day maybe. She’s also completely hilarious.
This post was deceptively hard to write. When writing about other people and their work, I get really anxious that I’m not doing a good enough job, if that makes sense. I love all of these people and want to reflect all the good they do – I’m scared I’ll do them a disservice. So I hope I did an okay job and that you guys have enjoyed this. Are there any social media accounts you think I should check out?
Tomorrow, I’m heading back to my university for an event about social media and mental health, which I’m really excited to be a part of. Maybe I’ll write a blog post about it…
Category: favourites, mental health, response, video Tagged: anna akana, art, behind the scars, borderline personality disorder, bpd, claire wineland, claudia boleyn, dudebabe, eating disorder, hair pulling, haley pham, instagram, juniper the fox, laura greenway, lauren kaech, lucy moon, matt haig, mental health awareness, mental health blog, mental health blogger, mental health blogging, mental health in the media, mental illness, mental wellness, petroom, rebecca brown, self care, social media, sophie mayanne, trichjournal, trichotillomania, trichotillomania awareness, vlogger, youtube, youtuber
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter (and currently studying for a Masters in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
I’m currently releasing my first EP, Honest, track by track and all five songs are now available on all major music platforms. However, there’s still more content to come…