The Pros and Cons of Winter

I love every season but by the end of it, I’m always ready for the next one. But, as a neurodivergent person with multiple physical and mental health conditions, different seasons present both different excitements and different challenges. With winter around the corner, I thought I’d share some of the good things and some of the difficult things, along with how I’m learning to cope with the difficult things. This list is, of course, specific to me and my location so it’s not going to match everyone’s experience but hopefully they’ll be something useful to you in here, even if your experience of the season isn’t the same as mine.


PROS:

  • The sensory experience – I think winter is my favourite season as a sensory experience. I love the crispness of the air; I love looking at all of the beautiful lights and pretty Christmas decorations; I love the smells associated with winter and Christmas (in my house, at least), like satsumas, the meals we generally only have in winter, the super sweet smells of sugary puddings and sweets, Christmas trees, and so on; the sight, sound, smell, and warmth of a fire. There are, of course, downsides, like busy shops and blaring Christmas carols but, over the years, I’ve gotten pretty good at avoiding those things.
  • Fires in the evening – My Mum and I both love having a fire to end the day, like a little treat for ourselves. As I said above, I love the sensory experience and we both find it a really good destresser. One of our favourite things about this house is the gorgeous fireplace and every year, we both get really excited about having fires again.
  • Potential for snow – I love snow. It makes me so happy: watching it fall, standing in it as it falls, how beautiful it looks first thing before anyone has disturbed it, the way it crunches when you walk through it, watching the cats try to make sense of it, and so on. And because we get it so rarely, it’s always special. No, it’s not guaranteed but I still enjoy being excited about the possibility.
  • Christmas – I struggled with Christmas in my late teens and early twenties, which I think was largely to do with how much I was struggling with my mental health and ASD. But as I’ve gained a greater understanding of the long-term issues I deal with and talked about them with my family, Christmas has become much more relaxed and enjoyable. They’ve been fantastic at working with me so that I can do the parts that I really enjoy and not do the parts that I struggle with. It’s become such a better holiday since then. I see friends and family (COVID depending, obviously), spend warm and relaxed evenings with my favourite people, get a Christmas tree and decorate it with the decorations my family have been collecting for years, not feel guilty (or at least feel less guilty) about doing things I don’t usually feel like I have time for (like reading books or watching movies all day), exchange presents, and so on. We’ve found a way to make it a really special, enjoyable time.
  • The cats spend more time inside – With the colder weather, my cats (whose presence I find very soothing) spend most of the day inside when, in the summer, they spend almost all of their time outside. So having them around more is lovely. They’re usually in the living room with me, curled up on the cat tree or sprawled across the furniture, or, even better, snuggled up with me on the sofa. They’re gorgeous and it’s one of my favourite things about winter.

CONS:

  • The cold – I hate being cold. You can usually find me in a big jumper or wrapped in a blanket. I’m often cold in the summer so it’s even harder to stay warm in the winter. I’m super grateful for the heating, the fire, my electric blanket, and so on.
  • Managing temperature – I really struggle with temperature regulation. I get hot or cold really quickly but then it can take hours to return to normal (and then it can suddenly jump to the other extreme). And going from really cold outside to really warm inside can just make that even more tricky. Layering helps but only to a certain extent. I have been doing some research and there are brands that make clothes to help with this so I really want to investigate these as I can afford it. (x)
  • Different fabrics – Clothes for cold weather can cause sensory difficulties. They can be bulky, heavy, itchy, and so on, as well as making me feel claustrophobic and trapped in my own clothes, which can cause a lot of anxiety. As I said above, I tend to do a lot of layering with the clothes I’m comfortable in but that isn’t a fix all. I’m still looking for a coat that doesn’t stress me out and I really hate wearing gloves. But I’m still trying to find the best option.
  • Ice – I might love snow but the amount of ice around in winter can be pretty perilous. And between my less than perfect balance and my chronic pain making me somewhat unstable, I do worry that every step could disappear underneath me and land me on cold, hard pavements with painful consequences. Given how bad my pain has been recently, a fall could be very painful and that pain could linger for quite a while.
  • More difficult to meet friends – Especially with COVID in the mix, I find it much harder to meet up and hang out with my friends in the colder months. It’s so much easier (and cheaper) when we can hang out in a park or on the beach or something like that, plus it feels safer considering the times we’re currently living in. But finding somewhere to hang out inside poses certain challenges, like COVID anxiety, meeting everyone’s dietary needs, the costs of hanging out in a cafe for example for an extended period, and so on. It’s just that bit more complicated and harder to organise and I find that plans often get pushed back again and again. So I often end up seeing my friends less in winter which makes me sad.
  • Feeling sealed inside – In an attempt to keep the heat in and save money on the heating, we keep the windows and doors closed as much as we can. And while that does the job we’re trying to do, the side effect is that I often feel a bit claustrophobic, like I’m sealed into my house with only the same air circulating (obviously this isn’t scientifically true or I would’ve suffocated long ago). And that feeling really stresses me out. Mum has taken to leaving the windows cracked open at night to get some fresh air in, which does help, but the feeling does still start to creep in by the end of the day. So I’m still working on that.
  • Less light, more darkness – While I like how cozy the house feels when it gets dark early, I do sometimes find it stressful; it feels like the day is actually shorter and I have less time to get done everything I need to do. Plus, autistic individuals are often low in Vitamin D so with fewer daylight hours than usual, that can become a bigger problem. I’m already low in Vitamin D so I take a supplement prescribed by my doctor to avoid a serious deficiency that could cause health problems.

I don’t know if this is helpful but when I sat down to do some research for this post – to see what other autistic/neurodivergent individuals find good and difficult about winter – I couldn’t find anything for autistic adults. Everything I found was directed at parents helping their children to adjust to the change in season but that doesn’t just go away as we grow up, although the challenges might change. So, since I couldn’t find a single post or article relating to adults, I felt it was all the more important to write something on the subject. So I hope this has been helpful in some way. Let me know what you would include on your list or how you manage the seasonal change!

Goals For 2020 Reviewed

It feels like I made these goals a lifetime ago. So much has changed since then; the world feels like (and, to an extent, is) an entirely different place now. I’m not sure it’s possible that anyone could’ve predicted how this year would play out – maybe certain elements but not the whole picture. I don’t know about you reading this but I really struggle to reconcile the person I was before the pandemic, with the hopes, issues, and perspectives I had then, with the person I am now with all of 2020 taking up so much space in my brain. It feels like 2020 was bigger than (or at least, as big as) my whole life up to this year; I know that’s the illusion of time but regardless, I’m finding it very difficult to make sense of everything I’ve experienced in the last year.

With the way the world was turned upside down this year, I have no idea how to think about 2021 but before I address that, I wanted to just take a brief moment to look at the goals I set at the beginning of this year, pre-pandemic, and see how I did, despite everything that’s happened.


GET BACK TO SWIMMING

I struggled with swimming at the beginning of the year, having essentially had no break between my first and second semester. I was exhausted before the second semester had even started. I found it very difficult to balance my uni work, my exhaustion, and swimming so going to the pool did fall by the wayside more often than not. And then, just as the semester was coming to a close with my empty semester (and plenty of opportunities to swim) in sight, the pandemic really hit the UK and we went into a national lockdown. That obviously meant that all of the gyms were closed, eliminating the opportunity to swim.

As the restrictions lifted, I did try going back to my normal pool but it just didn’t feel safe so my Mum and I spent a long time looking for a pool that were really careful and meticulous about their safety precautions. Eventually we found one and although we couldn’t go as much as I would’ve liked (due to the limited number of people they allowed in the pool at a time), it was wonderful to swim again. I just loved it.

When I was diagnosed with hypermobility, I was referred for hydrotherapy (we’re still waiting on that) but the specialist encouraged me to keep swimming as it’s the best exercise for hypermobile people and gave me some basic hydrotherapy exercises to start doing while we waited for the referral to go through. Unfortunately, I only got one more swim in before the UK went into a second lockdown and the gyms closed again. I am all for the lockdowns (not that that second one felt much like a lockdown) but I was upset to lose the swimming.

I got a little bit of swimming and hydrotherapy exercises in between the end of lockdown and everything closing for Christmas and now the Tier Four lockdown, which I was pleased with although I’m really missing the swimming. I have no idea how long it will be before the gyms open again and I can swim but I feel like I’m in a really good place with it so it won’t be hard to get going again.

START WEARING MY INVISIBLE BRACES AGAIN

I struggled to wear them while I was going to university. Sensory-wise, I find wearing them to be really overwhelming, to the point where I can’t concentrate because the pressure in my mouth takes up all the space in my brain. I usually wear them at night to avoid that but it often just gets too much and then, once I’m out of the habit of wearing them, it’s really hard to get back into it again.

Several months into lockdown, once I started to feel a bit more stable, I actually managed to wear it almost every night. I even made progress and moved onto the next one in the series. But again, when uni started, it started to feel like too much very quickly. It’s a lot of sensory stuff during the time when I’m supposed to get a break from everything. It’s really hard, but I’m not giving up.

COMPLETE YEAR 1 OF MY MASTERS DEGREE

This is a simple one, thank god. I completed the second semester of my Masters Degree a few weeks into the first UK lockdown and that was the first year completed. Most of my friends were full time and had to power through with their final project mid lockdown, which I am endlessly impressed by. I genuinely don’t think I could’ve done that. So I’m super proud of them, not only for the amazing work that they created but that they created it in such difficult circumstances.

So I managed this one and I’m proud of that, even though it was largely unaffected by the pandemic. The Masters has been a hugely challenging experience for me and so getting through the first year does feel like a big achievement. And what’s more, I actually did well on the essay for the second module, despite my anxieties. So I’m really proud of that too.

As of the end of 2020, I have completed three of the five modules of the Masters, although I don’t yet know how I’ve done in the third. But I’ve done it. I prepared for it, I worked hard throughout the twelve weeks, and put everything I had into the assessment (I always feel like I could’ve done more but I’m trying to get better at recognising what my limits are and I do think I did the best that I could). Now I just have to hope that it was all enough to get a good grade. I know that the skills I’ve learned are the important part but I still struggle to disconnect my self esteem from my grades. It’s a lot of unlearning to do after so many years in education.

CONSUME NEW MEDIA RATHER THAN JUST FAMILIAR MEDIA

I’d gotten into a bit of a rut, just rewatching old favourites, so I really wanted to branch out and try new things. I didn’t manage much during the uni semester since I was so busy; I was almost constantly working and background noise helps me work so familiar movies and TV shows worked quite well in that regard.

When we went into lockdown, my mental health was so bad and my anxiety around the pandemic was so high that I could barely get off the sofa. I rewatched a lot of my favourite things, needing the comfort and familiarity and nostalgia, but after a while, I tentatively started watching new things. They turned out to be a much needed form of escapism and I discovered so many awesome films and TV shows. It also kept my creative brain working even when I wasn’t able to use it; since it has started functioning again, I’ve written several songs based on stories or characters that I found myself emotionally invested in.

GET BACK TO THERAPY AND FOCUS ON MY MENTAL HEALTH

I was consistently going to therapy before the lockdown and felt like we were doing good work but since the pandemic began and my therapy sessions moved onto Zoom, they’ve been much harder and much less productive than I’d like them to be (and I definitely missed some because I just felt too overwhelmed by everything going on). But digging into the hard stuff is often painful and I’m not exactly keen to upset the fragile balance of my mental health that I’ve managed to maintain, for the most part, over the last few months. I’ve just found it so frustrating because the sessions always end up focussing on just getting through instead of moving forward, which is especially demoralising because I feel like the pandemic has been undoing some of the work we’ve done. So I’ve really tried but it has been beyond difficult. I have to hope that this year it will get easier at some point.

WORK ON NOT COMPARING MYSELF TO OTHERS IN MUSIC

This was something I really wanted to work on this year, in therapy but also in practice as I released my EP and played gigs. I’ve just always really struggled with insecurity and I guess what you could call comparison anxiety, always feeling insecure and anxious and bad about myself. At worst, it can make me feel really bitter about music. And I really, really don’t want that because music is the thing that makes me happiest.

Lockdown was oddly unifying because the music industry just shut down and pretty much everyone was forced to stop what they were working on. We were all stuck and frustrated. The comparison anxiety wasn’t really present, both because no one was really releasing anything and because the pandemic anxiety was so high that there wasn’t the space or energy to be anxious about anything else.

The only real exception to this was the releasing of Taylor Swift’s folklore but that was so different to what I’ve been working on that, rather than comparing myself, I found myself far more focussed on what I could learn from it. I also spent the summer learning the songs of my favourite writers and artists to improve my musical skills and that also had me focussing on learning and getting better rather than on how I wasn’t good enough and would never be good enough. So I felt like I was actually doing well, all thing considered, like I might actually be making progress in this area.

But then the industry started up again and people started releasing and promoting and so on again and I realised I hadn’t made as much progress as I’d thought. The pandemic anxiety compounded all of the anxiety I have normally around releasing music, leaving me at even more of a disadvantage and making it feel even harder to ‘keep up’ and work through my issues around it.

I always find it hard when everyone starts posting their Spotify Wrapped but I was actually looking forward to it this year, having released four tracks and the EP having reached over 30,000 streams on Spotify. But it turns out Spotify stops counting your streams on the 31st October, one day after my single, ‘Honest,’ was released, the single which brought in most of my streams. So my Spotify Wrapped wasn’t at all accurate and didn’t reflect the year at all; I didn’t end up posting it at all.

I’d really hoped to make some progress with this goal but without the work in therapy and the added anxiety of all that’s been going on this year, I don’t really feel like anything’s changed. And that’s hard. But I’m trying to focus on how proud I am of the EP and how proud I am of how far it’s gone, considering that it’s my debut EP that was pretty much made in various bedrooms with a handful of friends. Because I am really proud of that and grateful for everything that’s come out of this experience. Hopefully I will make some progress in this area this year because I don’t want to feel like this. I just don’t think I know how to get to that place on my own.


I feel like this has been the most helpful approach to a new year of those I’ve tried so far. I like the setting of goals (rather than a strict list to be checked off) because it gives me some structure and helps me to progress as a person without loads of pressure or the constant fear of failing or not trying hard enough. I feel like, for me, it falls nicely between being too much and too little.

As I said, the world was a very different place and I was a very different person when I set these goals so the fact that I made any progress at all in any of them feels like an achievement but I would like to manage more next year. I’m hopeful (because I have to be – it’s too easy for the depression to infiltrate otherwise) that this year will be better, at some point at least. Maybe then I can make some real improvement with some of the more difficult areas of my life and, until then, I’m gonna work on what I can. That’s probably all any of us can do right now.