Posted on October 23, 2021
I love every season but by the end of it, I’m always ready for the next one. But, as a neurodivergent person with multiple physical and mental health conditions, different seasons present both different excitements and different challenges. With winter around the corner, I thought I’d share some of the good things and some of the difficult things, along with how I’m learning to cope with the difficult things. This list is, of course, specific to me and my location so it’s not going to match everyone’s experience but hopefully they’ll be something useful to you in here, even if your experience of the season isn’t the same as mine.
I don’t know if this is helpful but when I sat down to do some research for this post – to see what other autistic/neurodivergent individuals find good and difficult about winter – I couldn’t find anything for autistic adults. Everything I found was directed at parents helping their children to adjust to the change in season but that doesn’t just go away as we grow up, although the challenges might change. So, since I couldn’t find a single post or article relating to adults, I felt it was all the more important to write something on the subject. So I hope this has been helpful in some way. Let me know what you would include on your list or how you manage the seasonal change!
Category: about me, animals, anxiety, autism, covid-19 pandemic, depression, emotions, family, food, heds, holidays, mental health, tips Tagged: anxiety, asd, autism, autism spectrum disorder, autistic, autistic adult, cat, cats, christmas, christmas tree, chronic pain, claustrophobic, clothes, cold, coronavirus, covid, covid-19, daylight, depression, destress, dysautonomia, eds, ehlers danlos syndrome, family of cats, fire, fires, food, fresh air, friends, heat sensitivity, heds, hypermobile ehlers danlos syndrome, ice, mental health, mental illness, my cats, neurodivergent, noise, noise sensitivity, pain, pandemic 2020, postural tachycardia syndrome, pots, senses, sensory information, sensory overload, sensory sensitivity, snow, stress, sunshine, temperature, temperature dysregulation, temperature regulation, vitamin d, vitamin d deficiency, vitamin d supplements, winter
Posted on October 9, 2021
One of the big things I’ve missed during the pandemic is concerts. They’ve always been a big part of every year and losing that – I haven’t been to a concert since Halsey’s Manic Tour in March 2020 – has been really hard. But it’s also hard to feel like they’re safe to go to, now that they’re happening again. I still have a lot of anxiety about going out and about being around a lot of people – it’s not as if COVID is no longer a risk – so going to a concert is a big deal. But normal life does have to resume at some point, even if it happens in baby steps. Since this first show – The Shires in Bromley – was a relatively small concert, it felt like a good one to try, to get the lay of the land in terms of safety precautions, to see how I feel in that sort of environment after everything that’s happened over the last eighteen months, and so on.
This wasn’t quite my first live music event: back in September, I went to my uni’s Songwriters’ Circle, the first one in person since before the pandemic. It was just wonderful. Everyone was so excited to be back together, so excited to get to hang out together, singing along at the top of our lungs. That is one of my favourite things about going to a music uni: everyone’s always up for a sing along.
But this doesn’t feel like a first concert to me, since I’ve been in and out of the building for the last couple of months as I finished my final Masters project. It was just some more people and music. Plus, I’m really comfortable with the safety precautions there: negative COVID tests to get in, a one way system around the building, lots of people still wearing masks even though they aren’t mandatory, and so on. I already feel safe there. But a concert is an entirely new ball game.
My first proper concert was The Shires at the Churchill Theatre in Bromley on the 5th October. It wasn’t a venue I’d been to before and road closures made getting there quite stressful, plus it was a pretty bad pain day: my back, my shoulder, and my wrists and hands. So while I knew I would enjoy the show itself, I wasn’t sure whether the stress and the pain would override that. Fortunately getting in was quick and easy and I didn’t have to spend too long on my feet. And although no one had to wear a mask once seated, negative COVID tests were required for entry so it felt as safe as it can, as anything can be at the moment.
Jake Morrell was the support act and he was great: he was funny and personable and had some good songs. My favourite was ‘This House,’ I think. And I liked ‘Freewheeling.’ I definitely want to check out more of his music.
And then The Shires – Ben and Crissie and some of their band – were on. It was so nice to see them; I’ve seen them so many times over the years and the eighteen months since the pandemic began may be the longest I’ve gone without seeing them. So, as I said in my Instagram post, it felt quite apt that my first proper concert back was them. It was a cool twist on their normal shows: it was all acoustic (being in the front row, it did feel a bit like my own personal concert) and they took the opportunity to play a lot of the songs that they don’t play often or haven’t played for years, like ‘All Over Again,’ ‘Drive’ (one of my favourites), and ‘World Without You.’ Of course they played the favourites too, like ‘Nashville Grey Skies,’ ‘State Lines,’ ‘Tonight,’ and ‘A Thousand Hallelujahs,’ which always get people singing along and dancing. Of their most recent album, Good Years, which they never got to tour due to the pandemic, they only played two songs and they happened to be my two favourites: ‘Lightning Strikes’ and ‘About Last Night.’ So that was cool. And they also played one of my all time favourites of theirs, ‘Daddy’s Little Girl.’ I connected to that song instantly – it being about the loss of a father and how, whatever else you are or end up being, the most important thing you’ll always be is his daughter – and it’s remained very special to me. I actually posted a short cover of it on Instagram years ago:
And to make a cool concert experience even better, they performed a couple of songs from their next album, that is apparently written and produced already so hopefully it won’t be long before we get to hear that. Of the two songs they played, I loved ‘Side by Side’ and I can’t wait to hear it again already. So that made the night extra special.
It was painful – as most things are right now – but it was a good night. It was so wonderful to be at a concert again; they really are my happy place, where I forget about the hard stuff (for the most part – I mean, you can’t exactly forget about physical pain when you’re in it). Hopefully things will continue to improve on the COVID front and concerts can, at some point, come back in full force. That’s the dream anyway.
I was hurting before we got home. I’d stayed sat down as much as possible to protect my knee but apparently my leg has a mind of its own because my foot kept tapping – and therefore flexing my knee – no matter how many times I forced myself to stop. And chronic pain and applause clearly don’t go well together so I think I might have to come up with an alternative for bad pain days (I’ve since found some suggestions here, or maybe the sign language version of clapping is the way to go). And the next morning, my whole body hurt and I was stiff and ache-y. My back and my hands were the worst and unfortunately my painkillers weren’t doing much more than taking the edge off. So that was a pretty unpleasant day but it was worth it.
So that was my first concert back. I honestly thought I’d find it more scary, more stressful – in the pandemic anxiety sense, that is. It was all a bit overwhelming for a moment going in but once we were in the auditorium and the show had started, somehow I forgot about COVID and my anxiety; I was just in the moment and completely absorbed by the music. That wasn’t something I’d expected and it was quite wonderful. All the anxiety, all of the precautions and planning… it was all so very worth it to have live music again.
Category: anxiety, covid-19 pandemic, emotions, event, favourites, heds, medication, music, video Tagged: anxiety, ben earle, chronic pain, concert, concerts, country music, cover, covid, covid-19, crissie rhodes, daddy's little girl, eds, ehlers danlos syndrome, heds, hypermobile ehlers danlos syndrome, jake morrell, live music, medication, pain, pain management, pain medication, pandemic, pandemic 2020, pandemic anxiety, safety precautions, singersongwriter, singing, songwriters circle, the shires, uk country, university
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.