Yet Another Medication Review

It’s been a while since the last medication review, hasn’t it? That’s mainly because, having starting the Masters, I didn’t want to add anything in that could make life more difficult. We all know that some of these drugs can cause really unpleasant side effects and I didn’t want to potentially lose weeks of university because of that.

The system we had was a good one but it wasn’t a long term solution. My medications were helping with my depression but I was still having major problems with my anxiety. I was taking Phenelzine, Pregabalin, and Diazepam for when the anxiety got really bad, which was basically all the time. So I was taking Diazepam constantly, something that isn’t recommended although my psychiatrist had signed off on it as a short term plan. So eventually we decided we had to try something new. My psychiatrist recommended Aripiprazole, which he was fairly confident would be side effect free as the combination of three is one he’s used regularly with very few reported side effects; he also said we’d know very quickly whether it was working or not. Plus it might actually give me some energy (hurray!) so I gave it a go and kept notes as to how it affected me.


Week 1 

For the first week, I was still incredibly anxious and I felt like I couldn’t breathe unless I was taking Diazepam. Having said that, there was a lot to be anxious about that week so I was dealing with both ‘normal’ anxiety (university stuff) and ‘clinical’ anxiety (anxiety without a cause). It was a very difficult week.

Week 2

I still had a lot of anxiety and was very stressed. I was also incredibly sleepy – I could barely keep my eyes open all day everyday – but then both that week and the week before had been very stressful so that definitely could’ve contributed. But it was like a sedation-like sleepiness rather than just a general tiredness. I was drinking so much red bull to stay awake and even then I was still having accidental naps. I also started experiencing a symptom completely new to me where I couldn’t find the words I wanted when I was talking: I’d get halfway through a sentence and I knew the word I wanted but I just couldn’t find it. It happened when writing too. It was very stressful since being able to express myself through words is so important to my mental health.

Week 3

I still had a lot of anxiety, requiring Diazepam multiple times a day, and I still struggled with the sleepiness, finding it really difficult to keep my eyes open. I’m probably fifty percent red bull at this point. I was still having trouble with my words, which was only getting more stressful. I’d also had an incredibly emotional week, which probably didn’t help.

Week 4 – 6

A month and a bit in, I was still experiencing the symptoms/side effects I’ve been talking about but a new one appeared, one that was the deciding factor for me with this medication: my hands started to feel thick and stupid, like I was wearing ski gloves. I hated it. I couldn’t play guitar anymore and that made the decision for me. So that was it. It hadn’t helped my anxiety and had caused more problems so we decided that I would stop taking it.


So I stopped taking it and within a day, the thick hands feeling stopped. It was such a relief. I’m still having the occasional problem finding the right word, more than normal, but that has improved. The sleepiness and anxiety have remained the same though, which is very disappointing and distressing. I’m still having so, so much anxiety and the Diazepam is not a solution. The next option is to try reducing the Pregablin and see if that helps so that’s the next step. I guess we’ll see how that goes.

A Week in My Life (Reading Week)

A while back, I had a reading week as part of my university semester, where classes don’t happen and we stay home to focus on our studying. Being a part time student meant that it wasn’t much of a change as I’m only at uni one day a week but not having to expend the energy that that requires allowed me to do more, both in terms of uni work and in other areas. Yes, I researched for my essay, prepared for a presentation, and wrote songs, but I also did a whole bunch of things for my job as a singersongwriter.


MONDAY

I got up, did my hair and makeup, and caught a train to London. I’d booked a slot at the Selfie Factory at The O2 Arena, thinking that Richard (Richard Marc, who also does all my photography – he’s a photographer as well as a writer, musician, and producer) and I might get some good social media content. I get very self conscious having my photo taken but I’m trying to get over that anxiety and it looked like fun.

I used the train journey to send a load of emails, which made good use of the time, and then I met Richard at The O2. The Selfie Factory was small but it had some really fun set ups and we had great fun, especially in the ballpit.

We got some nice photos and when our time ran out, we headed home. Again, I used the train journey to be productive and worked on a rough script for my university presentation – we all had to give presentations on our essay subjects the next week when we were back in regular classes. I’d already made the slides with the information but I wanted a rough script to keep me on track and provide extra information.

I got home and, even though I was exhausted, I practiced several of my songs as I had a recording session coming up later in the week that I needed to be prepared for. I wasn’t super familiar with the arrangements of the songs I was singing so it was quite hard work but I definitely made progress, getting used to the rhythm and melody. It was a good practice.


TUESDAY

I started the day with another big batch of emails: uni stuff, music stuff, gigging stuff.

That took an hour or so and then I spent the rest of the day doing research for my assessment essay. There’s not much to write about here really; I just read relevant sections of books, read articles, and pulled useful quotes, putting them in separate documents to keep everything organised. This session was focussed on imagery, specifically in songwriting, obviously. It’s surprising how few books on songwriting go into any detail around imagery.

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At least I had some good company (and entertainment).

I had a gentle evening, working on a blog post and watching old episodes of Grey’s Anatomy. There’s something very comforting about the familiarity of them and the time when I first watched them.


WEDNESDAY

I spent the morning practicing for the recording session, going over the songs, and then, after lunch, I had an appointment with my psychiatrist.

The practice had moved since my last appointment so there was an element of anxiety about going but it was okay and turned out to be a really productive session. My psychiatrist agreed with my decision to come off the Aripiprazole, since it clearly wasn’t working, and we discussed what else we could try to help with my anxiety. We also talked about what could be causing my drowsiness and decided to try reducing my Pregablin as it’s clearly the current medication situation that’s causing it. So we’ll see how that goes. And considering we’re changing that, we decided to stick with the Diazepam for my anxiety so that we’re only changing one thing at a time and can clearly see the results. Otherwise you can’t tell what’s causing what. So that’s progress and we’ll just have to see what the effects are.

Late in the afternoon, I caught a train up to London in preparation for the recording session the next day, using the time to do some more reading for my essay. My frequent train journeys are great for any reading I have to do for my course. From Victoria, I made my way to where I stay in London: the flat belonging to one of my parents. I was suddenly, out of nowhere, overwhelmed with anxiety and although I took Diazepam as soon as the feeling started, it obviously doesn’t kick in straight away so I spent most of the journey talking to said parent, a mix of distraction and reassurance. I’d just started to feel calmer when I got there.

We had dinner together and then I spent the evening in the pursuit of catching up with my diary. It feels like a hopeless task; I’m so behind, what with the time taken up by uni work and managing my mental health. I’m hoping to catch up once I’ve submitted my essay. It’ll take a while though.


THURSDAY

I slept terribly. So terribly that I barely got any sleep at all, the worst I’ve slept in years. Maybe I was nervous about the recording. I finally got a solid hour or so just before my alarm went off. But it was an important day so I dragged myself up, got ready, and headed to the University of West London where we were using one of their studios to do the recording.

It was a beautiful studio and we had a lot of fun. Having said that, we worked bloody hard. We worked from about eleven until six, filming and recording for a project that I’m not going to talk about yet. It’s a surprise. It does mean there’s not a lot for me to write about, other than the fact that I’m super grateful to everyone (all tagged below) for the work they put in. I really, really appreciate it.

When we finished, I was so tired that I thought I might throw up. I manage to help pack up a little but eventually I just had to leave. I felt bad for not staying to the very end but everyone was very understanding. I got home and barely made it through dinner before falling asleep at about half past eight.


FRIDAY

I slept for twelve solid hours and woke up feeling like an entirely different person. Still, I had a slow, gentle start. I had breakfast, got showered and dressed, and did some reading for my essay.

Around lunchtime, my Mum arrived, on her way home from visiting her Mum (this was when we still thought we were going to Nashville and she’d obviously wanted to spend some time with her before we went). She’d stopped in London because we had a plan to have lunch with one of my best friends, Sharné, and her Mum, who had come to visit her. The four of us had hoped to spend a little time at the songwriters circle I’d played (the one I mentioned in my previous A Week in My Life post) but it was busy and loud and it just wasn’t the right setting. So we’d planned lunch at this awesome Italian restaurant.

It started out quite stressfully due to pouring rain and terrible traffic but once we were all together, it was lovely. They’re both so lovely. We all got on really well and have a lot in common; it was just unfortunate that we didn’t have longer. Hopefully we’ll get another chance at some point.

We said goodbye and me and Mum headed home to Brighton. When we got in, I curled up on the sofa with a couple of the cats and had some diary time. I was exhausted and really just needed some quiet, rest time.


SATURDAY

Richard came down first thing because we were performing at the Access Open Day at The Brighton Dome. We picked him up from the station and went home so he could drop off his stuff and we could have a quick run-through, especially of the songs that we’ve only just started to perform like ‘Clarity.’

We headed to The Dome and had everything explained to us, where we could store our stuff, hang out between sets, and so on. We were playing once at 12.30pm and again at 2.15pm so we’d have time to kill between sets. There were other talks and activities going on but I’m never able to concentrate when I’m about to perform.

Both sets went really well. I felt like my voice sounded really good, I didn’t make any (obvious) mistakes, and I felt really confident in my body and how I was moving as I performed. I’ve done a few gigs recently but before a couple of months ago, it had been a long time since I’d performed so it’s felt a bit like starting all over again. But this felt completely natural and quite possibly the best I’ve ever performed. I’m just sad more people didn’t see it because they were performances I was really proud of. But I had a great time, telling the stories behind the songs and singing my heart out. It felt so good. And that’s the important thing.

This is a picture from the first time I played there:

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When we got home, we were both still buzzing with adrenaline so I suggested we write a song since we’re not getting a whole heap of opportunities to write together at the moment with both of us on Masters courses. So we got to work and managed a track and half a song before we ran out of energy. It was really fun and I’m really excited to finish it.

And before the day was up, I put up a blog post as I always try to do on a Saturday. This one was the one about February Album Writing Month, where I tried to write fourteen songs in the month of February. I’m proud of succeeding in the challenge and proud of the post I wrote about it.

We had an early dinner and were basically falling asleep on the sofa so we dragged ourselves up and went to bed early. I was asleep within minutes.


SUNDAY

We had a gentle morning, watching Friends together and companionably working on different things. I finished a blog post and put it up, #30dayfeb Challenge For Tommy’s. It covered my attempt and completion of Liberty’s Mother‘s challenge to do something positive for your wellbeing from the 1st February to the 1st March. I’d chosen origami.

Richard went home because I had a few things to do, as much as I would’ve liked to have him stay and work on the song and chill out together. So we dropped him at the station, came home, and I got to work, practicing my presentation for the following Tuesday. I was confident with the material and the questions I wanted to ask; I just wanted to make sure it was within the time limit. So I ran that a few times and then spent the rest of the day resting. I also have dinner with some of my family on Sunday nights (when we can manage it) so that was really nice.


So that was my reading week. Not as productive uni work wise as I would’ve hoped – I wanted to have started writing the essay rather than still adding research to my structure – but it was very productive in the working-as-a-singer-songwriter sense. And those opportunities don’t come around super often so I’m really grateful for them. So it was a good, if exhausting week.

2019 in Review

I don’t even know how to sum up this year.

If I’m honest, most of it’s blurry. The first half of it anyway. I was still trying medication after medication so I was kind of living in a haze. It’s scary to look back at a time not that long ago, search for memories and not be able to find them, find the details. Or worse, not even know what memories to look for. I hate it and it’s scary and I try not to think about it. Thank god for photos though. Looking back through my photos helped me to remember and I’m grateful for that. 

I got to go to the opening night of Waitress The Musical and to my complete surprise, Sara Bareilles was there, both to introduce the show and to bid us all goodnight. The show was amazing: I loved the music, I loved the characters, I loved the story, and the meaning in the story. And seeing Sara Bareilles in person for the first time since 2014 was extra special.

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I also got up stupid early to see her do a surprise set in St Pancras station. Apart from the fact that she has an incredible singing voice and is a great performer, even just sitting at a piano, there’s something magical about seeing a person you admire so much in real life. And my Mum was a trooper, running after her team (my medication meant I could barely stand up for the whole performance) and making sure she got my letter. So that was a good morning, even if I felt very unwell for the rest of the day (I’d overstretched, given the meds I was taking).

We had a nerve-wracking few weeks where our dog, Lucky, was incredibly unwell. I saw it happen: his head just tilted to the side and he stood there, looking so… wrong. I was convinced he was having a stroke. Plus his eyes were moving back and forth really quickly; I couldn’t imagine how he could even see. Despite a trip to the emergency vet then and there, we didn’t find out until the next day that he had Geriatric Vestibular Disease, which is basically vertigo. He was really, really sick. He wouldn’t eat and that’s really the sign that a labrador is sick. Mum was feeding him pieces of boiled chicken by hand just to keep him going. They gave him a morphine patch but that just made him sicker so they eventually removed it. It took a long time but eventually he was back to his old self. It’s not the same: he has a permanent head tilt, his balance is terrible, he can have trouble walking. But he seems to be happy and he’s certainly loved. So we’re getting through. Day by day, we’re getting through.

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I was fortunate enough to go to Nashville again, which was amazing, even though I was really, really struggling on my medication. I was depressed, overwhelmingly anxious, and my hands felt thick and clumsy, making playing guitar a real ordeal. As wonderful as it was to be in Nashville, I felt very guilty for not being as happy as I felt I should be.

Having said that, I had some really great experiences while I was there. I got to go back to my favourite places, see two Song Suffragettes shows (which are always such special experiences for me), and hang out with my friends who I only get to see once a year. I didn’t get to see everyone but I had a lovely time with the people I saw. I even got to see the awesome Caylan Hays play a show and hear all of her new songs. That was really, really special.

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Tin Pan South was amazing as usual, although I had to make some tough decisions over which shows to go to. They were all amazing though. My favourite was Nick Wayne, Hannah Ellis, Josh Kerr, and Natalie Hemby. Natalie is another person I hugely admire and she actually knows who I am now, which I’m honoured by. We got to have a proper conversation, which was one of my favourite moments of the trip. And I’d love to write with her one day: that’s a bucket list write.

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I also got to see Kelly Clarkson (who I’ve always, ALWAYS wanted to see live) in concert and Kelsea Ballerini was the opener, which was awesome because I love her. It was an amazing concert and I loved every second of it.

It was an amazing trip but I hope that next year I’ll be in a better place, a place where I can enjoy it properly and effortlessly. I think that’s gonna be one of my goals for 2020.

Here at home I also got to see some amazing concerts. My favourites were Maren Morris (I saw her twice but the second time was front row at the Royal Albert Hall, which was the most surreal, amazing experience) and Ingrid Andress, who had the whole crowd singing despite only having released a few singles. It was amazing. And she remembered me and we talked about writing together when I’m next in Nashville, although I’m now not sure it’s going to happen. But it was amazing to know that she was up for it. Hopefully one day.

I also saw Halsey in a super small venue and she was fantastic. We had trouble with the accessibility, which caused me a lot of anxiety, but the show was incredible. She’s an amazing, amazing performer. I love her. But I feel very out of place at her concerts, which is hard.

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I, with Richard Sanderson (Richard Marc on social media), spent most of the year working on my first EP. It was such a learning curve but I loved it, for the most part. It took an exceptional amount of work and I have to give so much credit to Richard and to Josh Fielden who mixed the songs because part way through, I tumbled into a really deep depression, accompanied with the worst anxiety I think I’ve ever experienced. It took a long time for me to get back to a place where I could work on it. It’s part of my musical story so I’m really glad it’s coming out, even if I still have a lot of anxiety about it. If you’ve been following this blog, you’ll know the story of the first single and you’ll know more about the rest of the songs soon.

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I spent several months in a deep, deep depression, the worst I’ve ever experienced. I basically lay on the sofa and thought about dying. It was awful. I don’t really know what else to say about it. It was just still, but with a mess of agonising turmoil underneath.

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Then, in the middle of the summer, one of my cats had kittens, despite the vet telling us in her vet check the week before that she absolutely wasn’t pregnant. We came home from dinner and Mouse was waiting for us. She took me upstairs to my room, curled up in one of the cat beds, and over the next few hours, she had a couple of tiny, adorable kittens. She got distressed every time I tried to leave so I stayed through the whole thing (and saw some pretty disgusting stuff that I never needed to see).

Having the kittens in my life has done wonders for my anxiety. Watching them grow and play and explore was so calming and mindful for me. And now that they’re older, all five cats play as a family. They’re a pride. It’s gorgeous. I don’t know what the future holds but having them in my life has been one of the most, if not the most, positive thing this year. I’m really, really grateful for them. Having said that, everyone’s spayed now so there won’t be any more surprises, which is probably – definitely – a good thing, as adorable as kittens are. The stress is just too much.

Somewhere in the middle of the holidays of kittens, I started taking Phenelzine again, which was a really difficult decision. I’m still struggling with the side effects but I am better than I was. I still have moments of depression but it’s not constant and I’m managing the anxiety with other medications. And best of all, I can write songs again. That is the best possible outcome.

September loomed and I spent time with the Disability Coordinator at my uni, something they had never had before. I actually felt hopeful about having someone who understood me. And then, she became extremely unreliable and that resulted in one of the worst meltdowns I’ve ever had – in the middle of Victoria Station. That triggered a period of multiple meltdowns a day, which turned the weeks into a blur. It was awful. I started my Masters Degree in Songwriting in one of the worst states I’ve ever been in.

Despite being part time, the Masters took up every day of the week, working on songs and trying to research while battling my OCD, which had suddenly spiked. I had no time off, no time to breathe. I felt like I was failing at everything. I think I’ve gotten better at managing it (and it’s going to be a focus in therapy when we start again in the new year) and I managed some research and I wrote some songs I’m really proud of. I enjoyed the course and classes but balancing everything with Autism and mental health problems was a nightmare. I’m going to write a post about the course in more detail but it still needed to be included in this post.

Oh, and somewhere in there, I turned twenty five. My Mum bought me twenty five yellow roses.

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The first single of the EP came out a few weeks into the course and it was a complete surreal – if incredibly stressful – experience. I had no idea what to expect, especially since I’m an independent artist, but for what was really a first, first single (considering ‘Invisible’ had no marketing and so on), I think it did pretty well. It got added to several playlists on Spotify and had radio play, local and BBC Introducing. That’s been amazing and I’m excited to see where the next one goes.

And now I’m finishing the year with basically no Christmas break because I’m working on the assessments for my course everyday. They’re causing me so much stress I feel like I can’t breathe. I’m also terrified of the fireworks tonight (another story I’ve talked about before) and don’t know what I’m going to do to avoid them because I have work to do and they cause awful meltdowns. So, all in all, not the best way to end the year. I’m cautiously optimistic about 2020.

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“2019 has been an incredibly difficult year. I feel broken. I feel like I was shattered into a thousand pieces and then put back together wrong. And if I’m honest I don’t know what to do about it. But there were good moments too and I’m so grateful for those. 2020, please be kind.” (x)