Posted on May 22, 2025
NOTE: Somehow, between the last WordPress update and my brain fog, this post got lost. It falls between the two posts, ‘The Application‘ and ‘It’s A Match,’ and I’ll include links in both of those so that – hopefully – everyone is able to follow the chronology of posts despite my mistake. Sorry!
Here is the next part of my Autism Dogs journey! Having been accepted onto the programme, I went up to visit the Autism Dogs farm in April 2024 to work on my Advanced Task List and meet some of the dogs…
I’d set an alarm (multiple alarms) since it was such an early start but I was actually woken up by Izzy as she snuggled close to my face, wrapping herself around my neck. It was very cute and I enjoyed the extra time cuddling with her before I had to get up. As much as I would’ve liked to have stayed there all morning, I had trains to get and dogs to visit so I eventually (reluctantly) got up and had a shower. Izzy seemed to know that me and Mum were going out because she stuck close to me as I got ready, as I did my make up and packed my bag. She’s just beyond adorable, which just makes it so hard to leave; it was so early and I was already keen to curl up for a nap and her super-snuggly behaviour really wasn’t motivating me to get up and go. But I had one last snuggle and then my Mum and I were out the door.
The journey to the Autism Dogs farm wasn’t the most relaxing of my life: the train to London was fine but then our connection to Stoke-on-Trent was cancelled and our only option was to get the next train, which meant we were going to miss our final train and be late for our session. I’m relatively used to the chaos and generally, it doesn’t faze me, but I do find it draining to repeatedly reshuffle my plans to find the best outcome. It certainly wasn’t what I needed on an already long day. We made it to Stoke-on-Trent and then had to get a cab to the farm instead of catching the final train. It’s only a short ride but they don’t come very often. The cab was painfully expensive but we managed to get there just about on time for our session. I was amazed.

The biggest part of the session was to build my Advanced Task List. As far as I’m aware, when the dogs are trained, they all go through the same basic skills training, like recall and sit and heel etc. That’s the first part of their training. On my side of things, once I was accepted onto the programme, I filled out lots of forms and had multiple calls with different people and learned about the process before travelling to the Autism Dogs farm to meet with several staff members to discuss the Advanced Task List. This involved looking at my various difficulties and how my assistance dog will hopefully be able to help me, which tasks she will perform in response to which behaviours. Once this list is compiled, the team created a profile of my needs to compare against the dogs in training; obviously, the idea is that the two profiles match, that you and your dog are compatible. For example, my meltdowns are often very loud – I’ll shout and scream and cry – and so I’d need a dog that is confident around loud noise. Everyone is going to have different needs and therefore need a different dog; you want to end up with the dog that’s the best fit for you so that the relationship is as successful as possible because, hopefully, you’re going to be working with this dog every day for a very long time.
The Advanced Task List is made up of three to eight taught behaviours: less than three and the dog becomes illegible as an assistance dog (it’s not uncommon for a dog to ‘lose’ one of their skills if it’s no longer needed or used) but more than eight and the dog can get confused and struggle with the amount of commands and tasks. So we spent most of the session discussing the things I struggle with. As I’ve already mentioned, I have meltdowns and we discussed those; we also talked about shutdowns and I described them as best I could; we talked about sleep and anxiety and self-injurious behaviours; we talked about the dog being trained to perform deep pressure therapy and so on. We talked about all of this for over an hour, in as much detail as possible; they were really lovely and took things really gently, acutely aware that people can find it really difficult to talk about this stuff. But to be honest, I’ve talked about a lot of my difficulties and even some of my most distressing experiences quite a lot: online, on my blog, to friends and family, in therapy… even at conferences. So, on the whole, talking about it doesn’t really faze me (although there are, as I think there are for everyone, some areas that are really hard to dig into) and I could answer pretty much every question they had for me, with help from my Mum when I needed a prompt or an outside perspective was useful. The more information they had, the easier it would be to build a profile of me and the more accurate it would be. It was almost funny, how carefully they were handling the discussions (with me personally, I mean – I think it’s great that they’re so aware of the potential needs of the autistic person they’re working with), because I just wanted to talk about the dogs. I’m fascinated by the process and the training and so I was just sitting there, like, ‘Okay, can we stop talking about me now? Can we talk about the dogs?’ It’s just so interesting and I could listen to them talk about it for hours.
Then came the part that was I was really excited about. I got to meet four different dogs (none of which would ultimately be mine), in order to get a sense of what breed and characteristics might be right for me, what size and texture of fur would be most manageable and comfortable. Having had and spent time with multiple breeds of dog throughout might life, I already had a sense of some of these things.
The first dog I met was a Cockapoo called Buddy. He was very sweet and very excitable (they were all ver excitable actually, given that it was dinner time for them) but I knew that I would struggle on a sensory level with the curly fur. He was lovely but his breed wasn’t one I’d be able to handle longterm on a sensory standpoint. The other three were different Labradors. I grew up with a Labrador so I’m very comfortable around them and just adore them. All three were gorgeous, two black – like the one I grew up with – and one yellow with more wiry fur. The first of the two black Labradors was a girl called Shadow who was so excitable and enthusiastic, sliding all over the tiled floor and slamming into me. She licked my face and then ran in circles around me before bounding over to meet Mum and the whole experience was just really adorable. The second black Labrador was a male called Denzel. He was also deeply enthusiastic but not quite as chaotic as Shadow had been; he definitely had more control over his limbs. But he still came charging over to meet me and licked my face over and over before trying to curl up in my lap even though he was much too big. And finally, I met the fourth dog, a wiry, yellow Labrador called Hero. He was a lot more chilled out because he’d already had his dinner – unlike the other three – so, while he trotted in and came straight over to me to check me out, he wasn’t like one of those super balls ricocheting off the walls. Instead, he snuffled my face and then leaned against me, heavier and heavier until I slid over onto the floor; when I pushed myself up, he just stood beside me in prime position so that I could stroke him (and keep stroking him). He was more chill than the previous three but he had had his dinner and I think he was a bit older; their dogs are usually between one and two years old and I think he was on the older side.

Buddy (top left), Shadow (top right), Denzel (bottom left), and Hero (bottom right).
I was definitely a fan of all three Labradors so, as a breed, they seemed like a clear choice. After Hero left, my Mum and I stayed for a bit longer and talked with the staff about various preferences, like size, and coat, etc. All of these things obviously need to be considered when, all being well, you’re going to be spending a lot of time with this dog, relying them; you need to feel comfortable with them and you definitely need to feel comfortable with them when you’re feeling under stress or overwhelmed or triggered.
So it felt like a very productive session. We wrapped things up and then my Mum and I headed for the station. I was absolutely exhausted by the day and fell asleep on two of the three trains, so deeply that my hands – which I’d apparently been using as a pillow – had gone numb. When we finally got home, Izzy was momentarily unimpressed by all of the different dog smells on our clothes but quickly dismissed them in her absolute delight that we’d returned to her. Even with my train naps, I was so tired that I went to bed early, snuggled up with Izzy.
It was exciting to move to the next step in this process. I was near the top of the list because I had been waiting for quite a long time by that point. But while it is a list of priority, they also weren’t going to just match me with the first dog available because we wouldn’t necessarily be a good match. That’s fine with me. As I said, I would rather wait a bit longer and find the best possible match. It also gives me a bit more time to mentally prepare: it’s a really big change and I really struggle with change. I have some really great support and I know that, once we all adjust and I have this new form of support in my life, things will hopefully get better – less erratic and unstable, emotionally – but anticipating this big change is stressful. So my feelings are very big and messy but I just have to keep reminding myself that lots of people have benefited from this process so far and that helps me to feel less anxious and more excited.

Category: about me, animals, anxiety, autism, autism dog, emotions, family, meltdowns, mental health Tagged: anxiety, asd, autism, autism acceptance, autism assistance dog, autism dog, autism dogs, autism dogs cic, autism service dog, autism spectrum disorder, autism support, autistic, autistic adult, autistic meltdown, autistic meltdowns, change, cockapoo, dog breeds, labrador, meltdown, meltdowns
Posted on December 31, 2024
TW: Mentions of therapy trauma and self harm.
I know I usually get this post up on Christmas Eve but I just haven’t been able to keep up with my old schedule this year; between the exhaustion from my erratic sleep schedule and my ADHD outdoing itself in fucking up my concentration, writing has been taking a lot of time and energy. I still love it but suddenly it’s just taking so much effort, in all forms, and that has massively slowed down my ability to finish anything. But there has been a lot to be grateful for this year and so I really wanted to get it down, no matter how long it took.
MUM – I know I specifically list my Mum on my ‘Grateful’ lists but it never becomes less true; I never become less grateful. I find more reasons with each year. The support she has given me this year, in good times and in bad, has been amazing: she made it possible for me to move through the Autism dog process, go to concerts, take up opportunities that I would never have been able to participate in otherwise. She’s supported me through meltdowns, the days that I couldn’t get out of bed, everything I’ve needed to make the music I’ve made this year, helping me to find the people who can support me in my mental and physical health… I couldn’t do any of this without her.
FAMILY – Not that I would ever call my family unsupportive but I feel like there have been specific instances this year that have felt new and different, in the context of the way they support me: help with applying for grants, help with getting my academic paper ready for publication, help with the Autism Dogs process, help with going to see Taylor Swift, help with finding a new therapist, even rescuing me when I’ve gotten stranded mid-meltdown… They listen to me; they know when to push me when I need it and let me stop when I need to stop; they remind me to rest (something I’m notoriously back at). My health, both physical and mental, has been so bad this year that I’ve really needed them and that change has created more change. The dynamic feels different than it has in the past and, for the most part, in a positive way; there’s room for growth.
THE FAMILY OF CATS – The cats have been a bit distant since we got Izzy. They find Izzy a pest at the best of times and so they’ve stayed away from her and therefore us as Izzy is usually with me and/or Mum. But over the last few months, they’ve started to stray from their ‘safe space’ in the kitchen and further into the house. They’re now sleeping in my room and the living room and even asking for attention, which feels like such a big win. They still avoid Izzy for the most part because she can be so excitable and unpredictable in her playfulness but we definitely have progress from the beginning of the year.
IZZY – Although she can be a little menace at times, I honestly don’t know what I’d do without Izzy in my life. I think she may well have saved my life when we got her last summer and somehow I love her even more than I did then. I love her more every day. She’s a constant presence – a constant soft, warm heartbeat – beside me and as bouncy and hyper and playful as she can be, she can be just as gentle and affectionate and sensitive; whenever I’m upset or even having a meltdown, she presses herself as close to me as possible and even licks away my tears. All she wants to do is make it better and even though it’s rarely something she can affect at all, her belief that she can and the effort she puts in can make me feel at least a little less awful.
AUTISM DOGS – While the process of working towards my Autism Assistance Dog, Daisy, and the anticipation (and, I will admit, anxiety) of waiting to see how it all plays out when she arrives, it’s also been really exciting and such a learning curve. Even though I swing backwards and forwards into various big doubts, the staff have been incredible at reassuring me and, if it’s a practical anxiety, showing me what to do to make me feel more confident. Daisy is utterly gorgeous and so eager to please and very sensitive to my needs already; I don’t know what I’m going to do if, mid-cry, I have two dogs launching themselves at me… Izzy and Daisy are getting on better but Izzy is still very possessive of me and I just have to hope that when they get to spend some significant time together (i.e. more than ninety minutes at a time), they’ll find it easier to figure out each other’s boundaries. So there’s a lot of joy there, even if there’s also a lot of anxiety. And getting to meet so many dogs has been so lovely – once there was even a litter of puppies!
OLD FRIENDS AND NEW FRIENDS – My friends and the love I have for them has been a consistent thread throughout this year. I’ve spent a lot of time, in real life and over the video calls if travel was tricky, with friends from all different periods of my life – something I feel so incredibly lucky to have. I’m still friends with my best friend from secondary school, from sixth form, from my BA, and my MA group of friends; it’s something that makes me so emotional, that we’ve managed to maintain these friendships over all of this time, despite everything that’s happened in our lives, and pick up – pretty much – as if no time has passed. Being able to share my life, hear about theirs, and hopefully support them as much as I’m able to through tough times is one of the greatest honours of my life and I can only hope that I’ve been clear enough about how much they mean to me. Their circles have broadened my circle too and that’s also been really lovely.
And due to the wedding of a friend from sixth form (she, Lois, animated a gorgeous music video for me and we’ve kept in touch sporadically over the years), I had the opportunity to see so many old friends from sixth form, many of whom I haven’t seen for years. Because of the pandemic, going to universities all over the country, traveling and moving abroad, we haven’t all been together for a really long time so I was positively giddy to see so many old friends. Life just gets so busy and with everyone scattered across the country and beyond, it hasn’t always been easy to stay in contact but, as I said, it was an absolute joy to see everyone again and I spent most of the evening hugging one person or another (apart from the solid twenty minutes of Taylor Swift music where I danced so hard that I nearly died at the end of it). There were so many exciting updates from everybody and it was just so nice to be together again. Hopefully it won’t be as long as last time before we can hang out together again.
I’ve also made a whole new group of friends, due to joining an online poetry group. What was such a casual decision has completely changed my life: my love of poetry and my creativity has grown exponentially but, more importantly, I adore the other members of the group. They’re all so kind and brave and creative and they make me feel understood and supported and safe. There’s a lot of overlap in mental illness, neurodivergence, disability, and chronic illness so we share a lot of experiences and common ground so we constantly support and ground and educate each other. Finding them was a complete fluke and now I miss our writing sessions if we go more than a week without one; they came into my life just when I needed them and I couldn’t be more grateful.
NASHVILLE FRIENDS – It was SO lovely to see my friends in Nashville when I was out there in late March-early April. And by some wonderful cosmic timing, I happened to be there the same week that my friend, Candi Carpenter, was releasing their debut album, Demonology (which is fantastic). And because they were also putting on a release show – and afterparty – lots of their friends and people who have become my friends online were all flocking to Nashville so I got to see loads of lovely people, some in person for the first time. If it hadn’t been for that, I’m not sure I would’ve seen my friend Kalie Shorr (who is also an incredible songwriter and artist) so I was very grateful for that and we had a blast at Candi’s release show and even managed to fit in a coffee and a catch up while we were both still in town. In some ways I got to see a lot of Candi – at their release show, at the afterparty, and then at another show they were playing later in the week – but they were obviously very focussed on getting the album out (completely understandably) so we really didn’t get much time at all to just hang out and catch up but it was so incredibly special to be at their show and celebrate the album and then be the super annoying fan whooping from the front row at the second gig. I truly would’ve been gutted to miss the release show: I’m pretty sure it was one of the best shows I’ve ever been to. So the time I did get to see Candi was very precious. And I also got to see Caylan, my very oldest Nashville friend, and we got to have a really lovely catch up and managed at least one Pancake Pantry outing. While my previous Nashville trips have been much more focussed on Tin Pan South, this trip ended up being much more focussed on my friends, although I did manage to get to see some of my Nashville faves, like Ingrid Andress.
ESCAPISM – While there were some really great days this year, there were still a lot of bad ones and still a lot of really, really terrible ones and I’m grateful for the escape that various activities have given me. I didn’t read much this year – my ADHD, brain fog, difficulty concentrating, etc was brutal this year – but diving into films and TV really got me through some of the tough times. Film wise, A Quiet Place: Day One was so much better than I thought it would be, considering how many times alien invasion films have been done and the fact that the main characters weren’t in it; I thought the lens through which they told the story was really moving. I also watched Fitting In and The Fallout and found both of those really powerful; they’re both the kinds of stories that we need to be telling and learning from because they dig into really big subjects and don’t always follow the storyline you expect them to, which often makes them much more true to real life. Oh, and I loved the most recent film from The Hunger Games franchise, The Ballad of Songbirds & Snakes (which I did actually also read). I really didn’t expect to like it because I really wasn’t interested in a story with Snow as the protagonist but I ended up finding it fascinating and enjoying it more than the original trilogy by far; Rachel Zegler and Viola Davies were, of course, also fantastic and I think it’s one of the most beautiful and visually interesting films I’ve seen in a really long time. (I also watched The Trap, which I recommend nobody watch ever – it’s actually amazing how terrible a film can be.) TV wise, I got back into Law & Order: Special Victims Unit, which was really nice because I love Olivia but was so bored of the storyline and Elliot features when I sort of tuned out; I’ve been enjoying the recent series a lot more. I also loved the new season of The Lincoln Lawyer and the new season of Criminal Minds: Evolution was better than I ever imagined possible: I’m honestly still obsessed with it – the character arcs, the acting, the greater plot, the strings left untied – and I can’t wait for the next one. I really got into Nobody Wants This, A Man on the Inside, and Black Doves (I’ve never seen Keira Knightly so good and I may never get over the relationship between her and Ben Whishaw’s characters) and I’m really excited that all three of them have been renewed for another season because I just want more! I also really enjoyed Red Eye – which was on ITV and I think was just a standalone series – with its amazing cast, acting, and storyline; it was really compelling right from the beginning and it was able to stay high stakes while still being clever and interesting and actually quite moving. And, of course, I found escape in music: I got really into both Beth McCarthy and Gracie Abrams because of their new releases this year; I was and still am, of course, obsessed with Taylor Swift’s The Tortured Poet’s Department; and one of my favourite people, Candi Carpenter, put out their debut album, Demonology, which I know will stay as one of my favourite albums forever. Both Candi and another of my favourite people, Kalie Shorr – both of whom I first met in Nashville – started Patreons to fund their sophomore albums and while the perks of subscribing are lovely, getting to see these two albums come together is so freaking cool and I feel like I’m learning so much about the album process, from writing to production to creative direction and so on. I highly recommend checking them out and supporting them if you can. Candi’s is here and Kalie’s is here.
AMANDA TAPPING AND THE COMPANION – I have always loved Amanda Tapping – she’s been a hero of mine for more than fifteen years now – and I was lucky enough to meet her again at Basingstoke Comic Con this year. It was a tough few days – the event was very chaotic and there was an awful heatwave – but I have so many special memories of the experience. The panels were really interesting and all of the guests were really open and good-humoured despite the heat and exhaustion. I was, as always, really excited to see Amanda and getting to see Richard Dean Anderson was really wonderful; I’d sort of forgotten how much I love him and Jack O’Neill. I was kind of disappointed that I hadn’t bought a pass to meet him but the queue was so long that people were missing other things and I think I would’ve passed out before meeting him (having said that, I did run into him in the hallway before one of his panels and although he was barely able to stop moving, he was really sweet). Talking to Amanda again was as lovely as it always is (she is one of the kindest people I’ve ever met) and, although the meet and greet wasn’t what was promised, it was still really special. I also got to meet the organisers and many members of The Companion, an organisation that celebrates sci-fi and fandom and one of their biggest projects has been Embracing Mental Health as a Fandom with Amanda Tapping; it was so freaking lovely to meet them all in person for the first time after having everything be online for so long. The Companion panel with Amanda was amazing and really moving and I felt so lucky to be there. I missed it all as soon as I got in the car to go home but it was so special and I can’t wait for the next event, whatever and whenever that may be.
WALKING AWAY FROM MY LAST THERAPIST – I wrote an incredibly long post about this earlier in the year but the short version is that, at the beginning of the year, my therapist of the last couple of years traumatised me, triggered a meltdown, and ultimately pushed me into a dissociative state. I couldn’t go back for over a month and while I tried to engage with her over a phased return (because I felt too traumatised to even go back into the room), she wouldn’t discuss it and then threatened to terminate therapy unless I came back. Honestly, I never wanted to see her again at this point but I wanted to understand why she’d apparently become a completely different person from when I’d first met her. That session was a complete disaster but in a way I’d never expected: she babbled like an idiot, unable to justify any of her decisions or reasons for terminating therapy (which she was doing, regardless of the previous manipulation of terminating unless I came back). She accused me of threatening her livelihood by missing sessions (although she’d been fully aware of the issue and she’d had notice for every session apart from one, when I’d thought I’d be able to get there and then couldn’t) and then referred to my six-ish weeks of trauma-induced dissociation due to her actions as ‘an extended holiday.’ I had such a physical reaction to that that I honestly thought I was having some kind of cardiac event: my heart rate had been so high throughout the session and I’d been shaking like a leaf, unable to take deep breaths. She asked if she could come and sit next to me and I honestly don’t know what I would have done if she had; I did not want her anywhere near me. But at some point during the session, something changed for me: it was like shedding my skin that I’d long needed to let go of and this new version of me had a new kind of strength, I guess… the emotional strength to push back rushed into my body like much-needed oxygen. For every lie, I had evidence against her; for every attempt to manipulate me, I called her out; for every time she tried to make it my fault, I was able to volley the accusation back. Maybe seeing her had triggered the fury I felt and as soon as I felt that, I was able to stand my ground and push back. Or maybe it was the absolute ridiculousness of her behaviour. I wasn’t going to let her get away with that. I did end up going to one final session, to give her a final chance to explain, but she was just as all over the place and halfway through the session, the air just went out of me and I left. I didn’t want anything to do with her for another minute and there was nothing she could say or do to change that. It was a very traumatic experience and I’m not grateful for that at all; I’m beyond sick of terrible therapists who hurt their clients more than they help them. But I’m really grateful for the new person I grew into as a result of it all, even if it took me a while to recognise it.
GETTING THE TATTOO BUG – After almost fifteen years of wanting tattoos but other things just getting in the way, I finally got my first tattoo… and my second… and my third… and at the time of writing this, I have six with plans for many more. I love having them and I love getting them, which is apparently not that unusual for people who have self harmed; I find it oddly therapeutic and I definitely get a rush from it. I have had one really bad experience with a tattoo artist discriminating against me and refusing me disability accommodations, which was traumatic and has been taking up a lot of my time and brain space to resolve. It’s not, as of yet, resolved but I’m still working on it and I hope that there will be some progress soon. But that incident aside, I’ve absolutely loved it and I’m looking forward to figuring out which tattoos I’ll be getting next…
AMAZING SHOWS, FROM BASEMENT BARS TO STADIUMS – I had a year of amazing concerts, from small songwriters’ circles (shout out to Stories in Song) to Taylor Swift’s almost four hour long epic, The Eras Tour, at Wembley Stadium (shout out to Electrolyte Fastchews for keeping me alive). I got to see multiple incredible songwriters at Tin Pan South in Nashville (including my long time fave, Ingrid Andress), as well as my beloved Kalie Shorr and Candi Carpenter – it was so special to be able to be in the room cheering for them, rather than stuck behind the screen on a livestream. I got to see Holly Humberstone for the first time. I got to see Bleachers twice, which I was particularly grateful for: the first time I ‘saw’ them, the accessibility team put me in the back row of the seating and, even though the seats were raised, everyone stood up and refused to sit down when told by security so I wasn’t able to see much of anything. I got to see Maisie Peters twice as well, first opening for Taylor Swift (which was awesome and so emotional that I cried through most of it) and then opening for Noah Kahan, who was also amazing. I got to see one of my tutors, Jonathan Whiskerd, play the launch gig of his stunning upcoming album, which was so special, even more so because I know how much time and effort and care has gone into it. I got to see Beth McCarthy headline Heaven, which was so much fun; I got to see Halsey play a surprise show at KOKO, performing a mix of songs from their previous albums and a few new ones, The Great Impersonator having not been released yet (that show was super emotional); and I got to see Kelsea Ballerini play an incredible one night only show at The Roundhouse. It was an amazing year for concerts and I’m not sure how 2025 could beat it but I do have a few very cool ones lined up.

TAYLOR SWIFT AND THE ERAS TOUR – Taylor Swift usually makes her way onto my grateful lists, for one reason or another, and this year I have so many reasons to be thankful for her. The paper that I wrote on her lyric writing and presented at what I believe was the first Taylor Swift centric conference, Taylor Swift Study Day 2021, is about to be published (I did an interview about it here), which is so exciting! She released her newest album, The Tortured Poets Department, which I love and feel like I’ve learned so much from, from a songwriting perspective; I love it so much that I got a tattoo of a lyric from ‘The Black Dog.’ I endlessly enjoyed following The Eras Tour online and discussing each night and each night’s mashup on Tumblr. And then getting to go… Getting to go to The Eras Tour was absolutely magical; I will never forget how special it felt to be there, to experience those shows with the wonderful people I got to go with. I was so lucky to be able to go multiple times but the most special part of that was the fact that I had so many friends who wanted to go and wanted to go with me, their resident Swiftie friend: as a teenager I was bullied and harassed relentlessly for loving Taylor so to have more friends wanting to go with me than there were shows in London (not that I went to every show in London) was so healing for my younger self. The show was beyond incredible, I had so much fun with my friends (and, of course, my Mum – we’ve been to many Taylor shows together), and I got to witness the most beautiful mashups and special guests, including Paramore as an opener, the live debut of ‘The Black Dog,’ the first Eras Tour performance of ‘I Did Something Bad,’ Maisie Peters as an opener, the mash up of ‘Change’ and ‘Long Live,’ Jack Antonoff as a special guest, and the first ever live performance of ‘Florida!!!’ WITH Florence + The Machine. I will honestly never get over the experiences I had. The effort it took to go to the shows required almost a month of recovery time and it took over a week before I was able to make coherent sentences but it was so completely worth it. I’m not sure there will ever be another concert experience like The Eras Tour but then this is Taylor Swift we’re talking about so who knows…
HALSEY – I’ve loved Halsey for years and I’ve always felt her music very deeply; there are multiple odd little parallels in our lives (we were actually born on the same day, only a few hours apart) that have always made her music feel like it’s deeply personal just to me, even though I know there is a thriving fandom out there who I’m sure feel the same way. I found it quite difficult to hear that they were going through really difficult health stuff, partly because I was also going through difficult health stuff, so it was a big relief when they started doing shows again. I was ridiculously lucky and managed to get a ticket to see them live at KOKO, just before The Great Impersonator came out, and it was just so magical to see them perform live again (I last saw Halsey live on The Manic Tour at The O2 Arena in 2020) and not just live but live at a super small, intimate venue. When they teared up, I could actually see the shine in their eyes because that’s how small the venue was; being at such a small show – just them and us – felt like a really special moment of reconnection. It was an incredible show, as I’ve always known Halsey shows to be, and see them so at ease onstage and so moved to be in front of a crowd (and a crowd of fans who were so thrilled to be there) was really moving (and, as I said, really reassuring). I got to hear songs I never thought I’d hear live due to the Love + Power Tour having been a US only tour: I was so excited when I realised that anything was up for grabs and it was a breathtaking experience to hear songs like ‘1121’ and ‘honey’ live. It was also one of the best gigs, accessibility wise, that I’ve ever been to, from the venue to the staff to the other fans; that meant a lot to me. And then, of course, there’s the new album, The Great Impersonator, which is incredible. It’s so raw, so moving and so powerful, and it’s been crafted so carefully and beautifully; the stories, within the greater story, that Halsey is telling are so detailed and delicate and the production is so varied and expressive. I’m just obsessed with it. But the rawness of it also makes it painful to listen to. Listening to it, I felt like so many of the songs could’ve been about me to a certain extent because I related to them so deeply; it’s a hard listen and it does feel like an excavation of every wound but I also felt so seen and so understood, which is so rare. All of the songs feel so precious to me (‘Life of the Spider (Draft)’ and the ‘Letter to God’ trio especially so) and it will always be an incredibly special album to me. I read one review that summed it up really well: “This is not an album designed to be a chart-topper; it’s a masterclass in the ways we use art to survive – which is to say, a masterclass in honesty.” I think this is so true, for the album, for Halsey as an artist, and for the way I feel about songwriting as an artist myself.
TRYING SOMATIC THERAPY – I needed a break after the traumatic end to my last relationship with a therapist but I still really needed help. I’ve reached a point where I don’t think talk therapy can do much for neurodivergence and trauma related issues (although I do think it can be helpful for working through certain things – I’m still in contact with a talk therapist I trust for when I do need that sort of support) so I started doing some research and ended up looking for a somatic therapist. I managed to find one really close by and I’ve had three sessions with her so far and I really like her; we get along really well and she just gets me. I can’t really explain it but I do think I feel different and I would recommend it to everyone, neurodivergent or neurotypical (I’ve already specifically suggested it to multiple people in my life, if only to get the short term relief I felt after the first session). We’re all carrying a lot of trauma these days, especially after the pandemic and with everything going on in the world, and the trauma of it all seems to be flying under the radar. I’m nervous to let my hopes get too high but I’m cautiously optimistic about how I might feel after more sessions in the new year.
NEW WORKING RELATIONSHIPS – This year I’ve met and worked with some truly amazing people that have made me so excited for my upcoming music releases. Up to this point, it’s pretty much been me, Richard Marc, and my Mum making things happen (and, of course, Josh of Sprogglet Studies who always does a fantastic job of mixing and mastering my tracks). But this year, I’ve met some wonderful people who really get me and get my music and, for the first time, I feel like I have music industry professionals (ones who I didn’t already know) who believe in me and who are passionate about what I’m passionate about and that means so much to me. I don’t want to say too much yet, since I haven’t made any official announcements about new music, but I’m so grateful to Tahnee and now Abi for everything they’ve done so far and for everything we have planned. I’ve also worked with some very cool photographers this year. In Nashville, I worked with Katie-Mac Photography and she had some ideas that, even now, I’m obsessed with; I only wish we’d had longer to explore them (and that the logistics hadn’t been so stressful). I did a shoot with Fraser MacKenzie, which was really fun; because we didn’t have a specific plan in mind, we were just able to improvise and see what worked and that was really cool. I’m learning so much through all of these experiences and so I’m really grateful for all of them. And then, of course, I finally got to work with Tom, who I’ve been chatting to for YEARS at this point: we’ve been talking about doing the artwork for this project ever since I came up with the idea and despite the pandemic and my health issues and our busy lives, we finally did it and it’s SO GOOD. I’m SO excited for people to see it; I’m absolutely obsessed. I also have to give Richard his own special shout out for all of the time and work and care that he’s poured into this project with me to make this new music; he has been my musical partner for over ten years now and I could not do it all without him. Making art with him is like making magic and our sessions together are some of my very favourite times. They, like our friendship, feel like anchors in my life and I can’t wait to create more stuff in the new year.
So I managed to finish it! It is still 2024. Just. I do want to get my unfinished 2024 (and 2023 – oops) posts up in time but I’ve been so hard on myself about it and that hasn’t gotten them finished or been good for me so I’m trying to just take my time and slowly get them done. Anyway. As I said, even though it’s been a tough year, there has been a lot to be grateful for and oh my god, do I feel grateful. I can’t imagine how any year could ever be like this year but who knows what next year will bring, good and bad.
Category: adhd, animals, autism, autism dog, emotions, event, family, favourites, meltdowns, mental health, music, self harm, special interests, therapy Tagged: amanda tapping, asd, autism, autism assistance dog, autism dog, autism dog cic, autism dogs, autism spectrum disorder, autistic, autistic meltdowns, basingstoke comic con, candi carpenter, cat, cats, caylan hays, chronic illness, disability, disabled, discrimination, dog, eras tour, eras tour london, family, family of cats, friends, friendship, friendship goals, grateful, gratitude, halsey, independent artist, ingrid andress, kalie shorr, live music, meltdown, mental health, nashville, new friends, old friends, pomchi, pride of cats, singersongwriter, somatic therapy, talk therapy, tattoo, tattoos, taylor swift, the companion, the great impersonator, the tortured poets department, therapy, therapy trauma, tin pan south, trauma, ttpd
Posted on December 31, 2020
What the fuck was this year? I don’t even know. To think I ended 2019 with the phrase: ‘2020, please be kind.‘ I really don’t know how to write about this year. Time has become a bit of a nebulous concept and after a lot of thought, the only way I could divide up this year was by separating it into three ‘chapters’: pre-pandemic, lockdown-into-summer, and semester three of my Masters. It’s a bit of a weird system but then, is there anything about this year that hasn’t been weird?
So, here we go. This is my review of 2020, a year I’m sure none of us will ever forget.
PRE-PANDEMIC
The beginning of the year, the two and a half-ish months before the pandemic became less about ‘wash your hands’ and more ‘we’re going into national lockdown’ (in the UK anyway), feel impossibly long ago and kind of frighteningly busy. Looking back through my photos, it’s so odd to think that that version of me – of all those people in the pictures – had no idea what was coming. And now we’re entirely different people. I mean, I know I’m a completely different person because of the last nine months. I’m only speaking for myself but I imagine that a lot of people can relate to that feeling. I look at photos of myself from January, February, March and I almost don’t recognise myself…
Anyway, on with the review.
I wrote up January at the time because it was such a busy, emotional month. I had a frantic Christmas break, preparing for my January assessments (due to a misunderstanding about the assessment, a lot of my research wasn’t helpful and so I had to redo it so I got almost no free time during that holiday). That was incredibly stressful, as was the presentation, and I was beyond exhausted afterwards. And between the second single of the Honest EP, ‘Clarity,’ coming out and the very distressing DSA assessment in the following week, I didn’t really get any rest between the first and second semesters. And to top it off, I was pretty upset about the grade I received and by the time I felt coherent enough to appeal it, the deadline had passed. But in hindsight, it was the first grade of the Masters with a very new approach to working and grading so it’s probably not that surprising, especially as an autistic student.
The new module I was studying, Musicology (“the scholarly analysis and research-based study of music”), was really interesting and for the most part, the lectures were really engaging, something that was definitely aided by how passionate my tutor was about the subject. I’ve known him since my BA and he’s so knowledgeable; he’s a really great teacher and he’s a big part of why I did so well in the module. Not that my tutor in the first module wasn’t great – she’s truly awesome and so inspiring and I learned so much from her – but I learned a lot about how the Masters worked in that first semester that I was able to put into practice for the second semester, making it easier on my mental health and helping me to work more effectively, which did result in a much better grade. I found the songwriting classes less inspiring but since I was challenging myself with FAWM (February Album Writing Month) for a big part of the module, that wasn’t too big an issue.
I got to spend some really good time with my friends, both in and out of uni. A couple of them came down from London to visit me, which was really nice. Others I spent time with at uni or around London. I also had lots of writing sessions with people, which was really, really fun. I love my uni friends so much – I love my non-uni friends as well, of course, but during the semester, I rarely get to see them because I’m so busy – and there are a solid handful of people I’ve met during my time at BA and MA that I know I’ll be friends with for a really long time. I feel like I learned a lot about friendship this year, as I mentioned in my grateful post, and I just feel so lucky to have met these people; they are so wonderful and I’ve found it really hard to be separated from them for so long. I’m so looking forward to seeing them again and being able to spend time with them in real life whenever that will be.
(I haven’t got photos with all of my friends from this year and I do like to use photos from the year I’m writing about but don’t worry, you’re most certainly not forgotten.)
As well as writing A LOT, I was releasing music and got to play several really, really fun shows but I want to keep the music stuff together so I’ll come back to those.
One sadness of that time was that my favourite place to eat in Brighton closed, first temporarily and then permanently. That was very sad and I know a lot of people were upset by it. They made amazing Belgian fries with loads of homemade sauces and drinks – that I LOVE – that I’ve only ever had when I’ve travelled to and around the Netherlands where I have family. And the staff were absolutely lovely and it was always such an enjoyable experience; I always took friends there when they visited Brighton. So that was a shock. With everything going on this year, I probably wouldn’t have been able to go (and I’m not sure it would’ve survived as an independent business) but I have missed it. It was a true Brighton gem for the time it existed.
I think it’s safe to say that the biggest part of January, the pre-pandemic part of the year, and possibly the whole year, was having to let go of our beloved Lucky, our nearly sixteen year old black Labrador who we’d first met at three days old. He was very old (most Labradors live to between ten and twelve) and had developed some very difficult health problems in the last year or so of his life. We got home one night and he didn’t get up. He didn’t lift his head. He didn’t wag his tail. He was just done. It was heartbreaking and one of the hardest decisions I’ve ever been a part of but the next morning we took him to the vet and they put him to sleep. It was awful and I still miss him everyday, even though I know it was the right thing to do. He couldn’t have been more loved, by us, by everyone he met. He was a bit of a legend. I still wish him back but, again, as I said in my Grateful post, I’m glad that he hasn’t had to live through the pandemic, the sensitive soul that he was; it would’ve been very stressful for him. And the idea that we might’ve had to have him put down during one of the lockdowns where we couldn’t be with him is unbearable, so I do take some comfort from that timing. Still, the house feels empty without him.
Life was fundamentally different after that but we kept going, day by day, and there were good moments. I got to see my course mates put on an awesome show at a local venue, Song Suffragettes announced that they were coming to the UK on tour (I’m pretty sure I dug into my savings to get a ticket for every show…), and my Mum and I celebrated Lucky’s sixteenth birthday, even though he was no longer with us. I’d been planning it and so we just decided to celebrate for ourselves. I think that, in the future, we will think of him or go on a specific walk or something to remember him, even if we don’t actually ‘celebrate’ his birthday. The date will just be an excuse to dedicate some time to thinking about him and all the years we had together.
As well as dedicating the month of February to FAWM, I also took on the #30dayfeb Challenge For Tommy’s, organised by my university tutor/friend/mentor/super inspiring person, Sophie Daniels, under her artist project name, Liberty’s Mother, to raise awareness about baby loss and money for baby loss focussed charities. The challenge involved doing something everyday for thirty days that was positive for your wellbeing; I saw a lot of people doing yoga, for example. I chose origami and made a different piece everyday. These were some of my favourites:

I was lucky enough to see several shows and concerts before everything closed down. That’s something I’ve really missed this year as they’re sort of THE thing that I spend my money on and go out to. I was going to see The Shires, Alanis Morissette, OneRepublic, The Phantom of the Opera, Hamilton, the Song Suffragettes UK Tour, Taylor Swift at Hyde Park, and Tin Pan South in Nashville – those last three cancellations in particular hit me the hardest. I’d been so looking forward to them so I was really, really upset when they were postponed and then eventually cancelled.
However, I did manage to see Halsey twice on The Manic World Tour, which was incredible. I love her, I love this album (it was one of my favourite albums of the year), and the show was just mind-blowing. It was awesome to see her get to play at The O2 Arena (her biggest headline show to date, I believe), especially on International Women’s Day. She’s an amazing performing but I also love how she speaks to the crowd; it feels like she’s speaking just to you. I wanted to run out of the arena ahead of all the crowds so that that illusion wouldn’t be broken. Both shows, but especially that show in London, felt very special.
I also got to see Sara Bareilles in Waitress The Musical several times. I’ve seen several actresses (all amazing) play Jenna but there was something really special about seeing Sara play her, as the person who’d written so many beautiful songs coming from her perspective as a character. It took a minute to stop seeing Sara as Sara and start seeing her as Jenna but once I’d gotten my head around that, I was just enthralled. She was fantastic and so special; I loved the show all the more for seeing her in the lead role. I was lucky enough to go a handful of times and of those, on several special occasions (sometimes on purpose and sometimes by accident): I saw Sara’s first show, I saw the one year anniversary of Waitress in London show, and I saw Sara’s final show, which also turned out to be Waitress’ final London show. So while I knew that show was special, I didn’t realise quite how special it was until much later. I tried my best to meet Sara (one day, I hope…) but for most of the shows, Sara was either out of the building before we could line up or we were hustled away pretty quickly. I did see her on the last night – she walked up and down the queue of people waiting and waved to everyone – but she didn’t stop to talk or take pictures or accept gifts because of the growing concern about COVID-19. That show was actually the last thing I did before we went into lockdown, not that I knew it at the time.
Everything changed very quickly. One day I was talking to my friend about plans we had later in the week and the next, she was on the plane home before the borders closed. I made the decision to start self isolating but before I would’ve had to go back to uni (or, having come to this decision, contact them about it), the classes were moved online.
LOCKDOWN-INTO-SUMMER
The UK officially went into national lockdown on the 24th March. I’d already been self isolating for eleven days, as had my Mum, apart from necessary trips out (food shopping and business related stuff that had to be done in person). I had two weeks of online classes plus my assessment essay, which I was already working on. It’s strange: at the time, I wasn’t really aware of the outside world because I was a hundred percent focussed on my essay (and it was probably the most difficult, research heavy essay I’ve ever had to write). Maybe I was channeling all of my anxiety into that so that I didn’t have to engage with my paralysing anxiety about the pandemic. But then the essay was done and submitted and it all came flooding in.
Between the inevitable post semester and assessment period crash and the pandemic anxiety hitting me full force, I just went to pieces. I was either having meltdowns or staring blankly at old tv shows, too overwhelmed by fear to function. That went on for weeks and to be honest, it’s kind of a blur. I think I was in some sort of checked out, survival mode haze. I just could not cope. In hindsight (and in the few moments of coherent thought I had at the time) I was and am so grateful that I had that summer semester off. Many of my friends on the Masters were having to work on their final projects during one of the toughest periods of our lives (and created incredible work in spite of it) and I just could not have done it. My mental health was in tatters. Even now that I’m in a better, more stable place, I still feel deeply traumatised by the events of the last nine months: by the constant fear and paralysing anxiety, by the sheer overwhelming grief that so many people have experienced and are experiencing, by the confusion and frustration and outright horror at how the government – the people we depend on to lead us and take charge during extreme situations – have behaved. I mean, how do you cope with completely losing faith in your country’s leaders? Who are you supposed to turn to? Anyway. That could easily turn into a rant and that’s not what this post is about.
I’m not really sure when I started to come out of that because it was such a gradual process. But slowly, with LOTS of ups and downs, I started to feel more able to engage – if only with the people directly around me and the things that I enjoyed doing. Thank god for the cats (and Mum – I’ve talked about how grateful I am for her in my Grateful post – but we both agree that the cats were a lifesaver during the lockdown). They’ve been so good for my mental health this year. It’s so mindful to watch them; you can’t help but feel calmer, watching them play or snuggle and so on. Especially without Lucky, their cuteness and cuddles have been vital and the ridiculous playful moments have made me laugh even when it felt impossible. I’m so, so glad to have had them around during this time and they certainly seem to enjoy our constant presence at home; a day rarely goes by without one cat or another draping themselves over me. As I said, they’ve been a lifesaver. I don’t know how I would’ve made it through without them.

I had online therapy sessions but I struggled with them and often ended up cancelling at the last minute because they just felt too overwhelming. All I could think about was the pandemic and my fears around it; I didn’t want to dig into that even more and it felt impossible to talk about anything else. So my sessions were fairly sporadic throughout the lockdown and most of the year really. I think, in hindsight, therapy just felt too big, too overwhelming to be helpful while all of my emotions felt so incredibly heightened and raw. I was just focussing on getting from one day to the next. The cats were a big help; I started escaping into the worlds of new films and TV shows, like Absentia and Away; and I lived for the livestreams that a handful of people were doing in place of live shows. My favourites were Kalie Shorr’s, both because I love her and because she did so many of them. She did interviews with both interesting and entertaining questions, played covers, and played her own songs, released and unreleased. I’m so grateful to Kalie for doing all of that; they really helped me keep going, helped me get through the darkest of my pandemic-induced depression.
As I said, towards the end of the first UK lockdown, I became a bit more functional, although it was like balancing on a tightrope: one little knock and I was plunging back into overwhelming anxiety and depression. And it happened a lot. But I also had better, more productive moments. I managed to write a couple of songs (which is pretty monumental what with my mental health being so bad); I had writing and production sessions with Richard; I started gentle music theory lessons in preparation for the upcoming semester with one of my parents (she’s a music teacher); I spent a lot of time playing piano (I started experiencing awful nerve pain in my left hand – as well as in my back and leg – during the first lockdown so playing guitar was basically impossible); and I stayed up until almost six am to watch Ingrid Andress’ first livestream show and chat with her in a meet and greet session afterwards. So I was doing just about okay. Probably the biggest help was that all of my family (and most of my friends) were being exceedingly careful around going out: fortunately able to work at home, they only went out for essential trips, like food shopping and picking up medication, etc. I’m so grateful to them for that. So beyond grateful.
The lockdown began to loosen and more and more people were out, which I found terrifying. The silence outside had been weird at first but suddenly every little sound turned me into an anxious mess. Hearing people converse outside the shop we live above, for example, caused so many panic attacks (for fear that those people were spreading the virus). It was awful. For most of the summer, I kept the windows and curtains closed, enclosing myself in my own protective little bubble. It was the only way I could find to protect my mental health. With the gyms opening, I was desperate to swim again (as I’ve previously mentioned, it’s the only exercise I can do) – both for my physical and mental health – but I just didn’t feel safe at my usual pool. Their precautions just didn’t feel tight enough. On the plus side, after various COVID tests, I finally got to see my brother for the first time in months – longer than I think we’ve ever gone without seeing each other. We were still careful but it was so, so wonderful to see him.
Meanwhile, music stuff (mostly to do with the Honest EP) was still happening. Again, I want to keep most of this together (I’ll probably put it all in one paragraph towards the end) but I think this particular day is important beyond the musical context. I’d spent a lot of time worrying about the music video for ‘Back To Life,’ the next single due to be released at the time because my original idea wasn’t going to be possible during the pandemic, even with the lockdown restrictions having been loosened. Richard and I spent a long time discussing it and eventually came up with a plan…
The filming of the video was a big deal for me. I found it very difficult and very stressful being out for so long (even though our planning meant that, of the videos we shot for the EP, this one took the least time) and just being near people caused me a lot of anxiety, even down on the beach at the water’s edge. We were incredibly careful and I did manage to enjoy it to a certain extent but I’m grateful not to have to do another music video under such conditions. It took everything out of me; I spent the next three days on the sofa, barely able to move from the exhaustion. I have no idea how I managed to look so relaxed and even happy in the video. But, as I said, I’ll talk more about it when I talk about the whole EP process this year.
The rest of the summer was pretty gentle. I was trying really hard to improve and manage my mental health. It still wasn’t great but I was coping better than I had been earlier in the pandemic. So I spent a lot of time doing things that have proven to be good for my mental health: I listened to the Taylor Swift’s new album, folklore, on repeat; I played a lot of piano; I wrote songs when I could; I had video calls and online movie nights with my friends; I kept writing for the blog. I took part in research projects involving Autism Spectrum Disorder, Chronic Fatigue Syndrome, Depression, and Anxiety; helping out with these always gives me a mental and emotional boost because it feels like some good is coming out of my difficulties, even if they don’t improve my experience directly. I also watched the final season of Agents of Shield, my favourite TV show ever. That was a very emotional experience because the show, and the character of Daisy Johnson, have been a really important part of my life over the last few years and the emotional processing of stuff from my childhood.
And I continued to work on my music theory as the module was based on these concepts and I wanted to be as prepared as possible but I found the idea of going back to university very stressful. I really didn’t want to defer so I spent a lot of time thinking about what I wanted to do in terms of the new semester, what I felt safe doing. I’d originally thought that I’d much rather defer than do online or blended classes but now that the semester was almost upon me, I felt a lot less sure. After a lot of thought and discussion with my family and course mates, I decided to go back as an online student. It wasn’t ideal because of the lack of social interaction and how much harder it made cowriting sessions but I didn’t feel safe commuting to London to be in a building full of people from all over for just two hours a week. It just felt like too much anxiety for not enough reward. Online seemed like the most productive way forward. But even with that choice made, the process of going back to university, getting clear information, the correct timetable, etc, was incredibly stressful, causing meltdown after meltdown after meltdown. I really wasn’t at all sure whether I was going to be able manage university classes during a pandemic.
SEMESTER THREE OF MY MASTERS
The beginning of the semester was a bit rocky as the university tried to make blended classes (the online and onsite groups combined as one using Microsoft Teams) but in the end, it was simply easier and a more productive use of the time to split the onsite and online groups. My groups were great and everyone was really supportive and encouraging, tutors and students alike. Plus it was fun to work regularly with Richard again. The work was hard and the songwriting briefs difficult since musical language isn’t my strong point but after really positive meetings with both of my tutors, I never felt like I couldn’t ask for help or miss a brief if I needed to. As long as we was experimenting with our music – with the use of melody, harmony, arrangement, etc – and turned in the assessment work, everyone was pretty relaxed about what we were working on.
Despite a pretty heavy workload, I managed to get up to quite a lot during the semester. I celebrated my 26th birthday with the family I could and had a couple of socially distanced meet ups with friends; it was simple and quiet but I’m not really into big celebrations anyway. It would’ve been nice to see more of my family though.
I saw a lot of really awesome live-streamed shows, including Ingrid Andress at The Bluebird Cafe, various shows throughout the virtual Country Music Week and Nashville’s Tin Pan South Festival (I’m so grateful that we didn’t lose out on them entirely because of the pandemic), Halsey’s poetry book release day livestream, Maren Morris’ livestream concert, and Kalie Shorr’s charity StageIt show. But my personal highlights were Sugarland’s livestream show, Kalie’s ‘Unabridged For The First Time’ show (even though technical difficulties meant I missed bits of it), several of the Tin Pan South shows, and Tim Minchin’s ‘Apart Together’ livestream show.

I also attended several webinars and conferences about ASD and mental health, as well as actually speaking at one. That was a really special experience, being invited to speak on a panel and share my experience about being autistic. I felt like I was really able to use my experience to help other people and several of the attendees confirmed how useful my contributions had been. So that felt like a really significant moment.
Even though I was still on the course, many of my friends did the Masters in one year rather than two. They had a virtual graduation ceremony, which I attended in support. They all created such incredible work and under such difficult circumstances; I’m so proud of them and can’t wait to see what they go on to do. Some of them have already released really cool and interesting work and I know that many more are working on really cool projects. We had a celebratory drink via video call afterwards, which was good fun. I hadn’t seen a lot of them since March so I really enjoyed that.
I finally found somewhere to swim that actually felt safe, or as safe as possible: they had really strict safety measures. So I finally got to swim again and it was awesome. Each session gave me such a mental boost and it felt so good to exercise and really stretch my muscles again. I couldn’t get there as often as I would’ve liked (they spread the bookings out to keep the numbers low) but it was absolutely wonderful to be going again. It was erratic, especially with the second lockdown and most of the country now in Tier 4, but I enjoyed every second of it while I had it and I will again when the pool reopens.
The swimming was also good for the nerve pain in my back and leg. A few months earlier, I’d been diagnosed with hypermobility (very common with autistic individuals) and referred for hydrotherapy, which I’m unlikely to get for a while, but the swimming and basic exercises I’d been given did help. Or they seemed to anyway. I’ve also been referred to Rheumatology, Occupational Therapy, Pain Management, and had an MRI just to rule out anything unrelated to being hypermobile. It’s been a very slow process but I feel like we are starting to make progress, which feels really good.
The US Election was obviously a massive deal and not just in the US. I’m really glad that it fell during my reading week because there’s no way I would’ve been able to concentrate on classes. I’m honestly surprised by how much work I got done that week, given how much time I spent checking the news outlets for updates. In the end, it was Richard who texted me that the result was in. I shrieked, I laughed, and then I cried. I was so relieved.
Apart from swimming, the second lockdown didn’t change much for me. I was spending most of my time at my laptop, working on uni stuff. I had to turn in a portfolio of songs and an essay on the 4th January and, determined to get an actual break this year (unlike last year), I worked super hard: I wanted to have all of the work done before Christmas. So the end of the semester was intense and suddenly it was the last week, the session with Richard, and then the Christmas holidays. I worked every day from the end of the semester to Christmas Eve but I did manage to get all of the work done, which I was very proud of.
Christmas was weird. We obviously couldn’t see our larger family but then we couldn’t even see my brother because London went into Tier 4 (and then we went into Tier 4 on Boxing Day). I’d been prepared for a very different Christmas but it didn’t really emotionally hit me until a few days before and then I found it pretty difficult. We tried to embrace the difference: we decorated our tree with origami creations rather than our usual decorations; we structured our day differently… we kept it as different as we could so that the forced differences (like the lack of my brother) didn’t stick out so much. But we still managed to have a good day, I think. My brother and his partner had made a really great quiz, which we all had so much fun doing. That was definitely the high point for me. We were all together, laughing our heads off, and that felt really good.
I also just want to throw in here that there were some really great albums released in the fourth quarter of the year, which definitely boosted my spirits and inspired me a lot. There was Taylor Swift’s folklore: long pond studio sessions, which was both incredible and a fascinating look into the stories and emotions explored throughout the album; Kalie Shorr released the deluxe version of Open Book, Open Book: Unabridged, which included four new tracks, all of them as stunning as the original album tracks, if not even better – ugh, can you tell I love this album? And then, as if folklore wasn’t a big enough surprise, Taylor Swift released a second surprise album, evermore, which was another amazing album. The three of these, plus Manic by Halsey, were the musical highlights of my year. I love them all and I learned so much from them as a songwriter.
We’ve had a quiet few days up to new year, which is good. It’s been nice to have a bit more space to breathe, if that makes sense; there’s a bit less pressure in my life at the moment. Having said that, being in Tier 4 with a spike in COVID cases, has caused my anxiety to rise again.
And that’s the year…
So it’s time to talk about the music. With more content coming, I don’t want to go into too much detail; I kind of want to save the real round up for when everything is done, but I do want to do a quick review of my musical year because I think this is the first year where I’ve really felt like a professional singersongwriter. Of the five tracks on the Honest EP, all but one were released this year (the first single, ‘Bad Night,’ came out late last year). The second single, ‘Clarity,’ came out in early January with an accompanying music video; it did even better than ‘Bad Night’ and was even selected as BBC Sussex & BBC Surrey’s BBC Introducing Track of the Day. That was very cool!
I got to play a handful of gigs, all of which were so much fun. I headlined one of Indigo Eve’s nights, where people both waved their phone lights to a song and sang along to another. It was one of best gigs I’ve done and one of the best nights of the year. I played as part of my university’s songwriters’ circles, which is probably my favourite uni event; it was particularly special because it was the LGBTQ+ History Month special. That meant a lot to me and it was a great round. All of the performers were fantastic and the atmosphere was so positive. Looking back at my Instagram post about the show, I said, “I’m just on a joy train!” That was very accurate; it was a wonderful night. I was also invited to perform in the foyer of The Brighton Dome for their Access Open Day event; it was so much fun and I was giddy about the fact that I was performing there again when it was the first place I publicly performed. And before the lockdown started, I even managed a day in the studio, recording a fun project with some friends.
Everything slowed down when lockdown began but with a lot of help from Richard, we did eventually get the EP cycle moving again, starting with the release of ‘Clarity (Academic Remix)‘. A month or so later, the third single of the EP, ‘Sounds Like Hope,’ came out, followed by a music video beautifully animated by the lovely Lois de Silva. This one didn’t do as well as the previous two but it was a much slower, less radio friendly song so that wasn’t surprising. Having said that, it got some of the highest praise of the EP so although it didn’t reach as many people as the others, it seemed to really resonate with the people who did hear it.
The summer was a very exciting time, in terms of the EP. I got to ‘perform’ in the virtual Disability Pride Brighton Festival: they played the ‘Invisible‘ music video and it was streamed online and on TV! That was very cool: seeing myself on the television for the first time! Then, as I described earlier, Richard and I planned and filmed the music video for ‘Back To Life.’ I was very anxious about putting this one out, given its upbeat sound and title during the pandemic. But in the end, I decided that to leave it out would be to release an incomplete body of work, as the song is an important part of the EP. So I announced it with this message: “Given the difficult and often distressing times we’re currently experiencing, I seriously considered delaying the release of new music, especially as we reach the more upbeat songs on the EP. But I didn’t want to leave the story half told. This song represents the upward turn after a painful chapter of my mental health and it feels important to include because while there are brutal lows, there are also wondrous highs. They’re all important and all part of the journey.” (x) I released the song in August, hoping that people would understand that the title was metaphorical, rather than literal. It didn’t do quite as well as the others had but given everything, I wasn’t surprised. It may have done better in a world without the pandemic but then we’ll never know, will we? Richard edited the video – with my feedback at various stages – and despite it not being what I’d originally imagined, I absolutely loved it. I’m really proud of it, especially given the circumstances and stress under which it was made.
And then, in October, I released the fifth and final single of the Honest EP, the title track, ‘Honest.’ It’s my favourite song on the EP and putting the last of our budget into promoting it, it did really, really well – the best of the EP. I’m so proud of it: the song means so much to me. It felt fitting to have the music video show some of the weird and wonderful ‘behind the scenes’ of this EP process…
As I said, the project isn’t over yet so I don’t want to write anything that sounds like too much of a conclusion but I’ve learned so much from it, from this year. I’ve learned a lot, dealt with enough stress that it’s probably taken years off my life, and never been so proud of anything I’ve done. I can’t wait to share the rest in 2021…

This blog post spiralled into something much bigger than I thought it would. But then, given that ‘normal life’ sort of evaporated around us and everything was constantly changing, maybe it’s not that surprising. I guess, there were a lot of things I felt I couldn’t leave to assumption so I included them just to be sure. Hopefully it’s made sense and got you thinking (or not thinking) about your experience of this year. It’s weird, isn’t it: we’ve all gone through this massive, world-encompassing event together and yet our years will look quite different. It reminds me of a quote I saw on social media (that I will have to paraphrase, unable as I am now to find it): “We’re all on the same sea but we’re all in different boats.” So, yes, we all experienced a global pandemic but our personal situations created a spectrum of experiences, with either end looking nothing alike. But I think we can all say that we’ll always remember this year. I know I will.
Although I spent a lot of the year feeling very negative, feeling depressed or anxious or frustrated or angry, I’m actually finishing the year feeling overwhelmed by gratitude. Yes, I’m anxious about being in Tier 4 and the rising COVID numbers – I think it would be ignorant not to be – but I’m just so grateful for all the positive moments and experiences that I’ve had this year. And, of course, the people in my life. I could not have gotten through this year without them.

“I don’t even know how to fully sum up this last year. If I thought 2019 was difficult, 2020 was on a whole new level of emotional chaos. I’ve been in survival mode for most of it, just trying to wade through waters that kept rising and rising, and every time I thought I’d found my balance, another strong wave appeared to knock me down. It’s easily been the hardest year of my life and one I know I won’t ever forget. But as painful and terrifying and exhausting as this year has been, there have been some amazing moments too: pre-pandemic gigs, releasing my EP, the contact with my friends and family, time with my cats, the awesome music, movies, and TV shows I’ve discovered this year, the chances to swim… So despite all the negative emotions I’ve experienced this year (and continue to experience), I’m overwhelmed with gratitude for the good in my life. // There’s a blog post with all my ramblings via the link in my bio 💜” (x)
Category: about me, animals, anxiety, autism, chronic fatigue, covid-19 pandemic, death, depression, diagnosis, emotions, event, favourites, holidays, identity, meltdowns, mental health, music, therapy, treatment, university, video, writing Tagged: 2020, 2020 in review, 30dayfeb, agents of shield, albums, anxiety, anxiety disorder, asd, assessment, assessments, autism, autism research, autism spectrum disorder, autistic, autistic adult, autistic meltdown, autistic meltdowns, autistic student, baby loss, baby loss awareness, back to life, back to life music video, bad night, bbc introducing, bbc introducing south, befries, behind the scenes, black labrador, brighton, brighton dome, cat, cats, chloe bennet, christmas, christmas day, christmas holiday, christmas quiz, clarity, clarity academic remix, clarity music video, clarity remix, concert, conference, coronavirus, country music week, country music week 2020, covid-19, cowriting, daisy johnson, debut ep, depressed, depression, disability pride brighton, dsa assessment, evermore, family, family of cats, fawm, fawm 2020, february album writing month, film, films, folklore, folklore album, folklore: the long pond studio sessions, friends, grief, grieving, halsey, honest, honest ep, honest music video, honest single, hydrotherapy, hydrotherapy referral, hypermobile, hypermobility, hypermobility diagnosis, i would leave me if i could, identity, ingrid andress, invisible, invisible music video, joe biden, kalie shorr, labrador, lectures, lgbtq+ history month, liberty's mother, live music, livestream, livestream concerts, livestream shows, lockdown, lockdown 2.0, lockdown 2020, lois de silva, loss, loss of a pet, lucky, manic, manic tour, manic tour dublin, manic tour london, manic world tour, maren morris, masters degree, masters degree in songwriting, masters degree year one, masters degree year two, mental health, mental illness, movie, movies, mri, music, music theory, music video, music video shoot, musical language, musicology, my cats, my dog, nerve pain, new years eve, occupational therapy referral, old dog, online classes, online learning, online therapy, online university, open book: unabridged, origami, pain management referral, pandemic, pandemic 2020, pandemic anxiety, part time masters student, part time student, performing, pet loss, piano, poetry, poetry book, reflecting, reflection, research study, research volunteer, rheumatology referral, richard marc music, richard sanderson, richard sanderson photography, sara bareilles, sensory overload, singer, singersongwriter, singersongwriter life, songwriter, songwriters circle, songwriting, songwriting assignment, sounds like hope, sounds like hope music video, sugarland, swimming, taylor swift, therapy, tim minchin, tin pan south, tin pan south 2020, trauma, traumatised, tv show, tv shows, universitiesuk, university, us election, us election 2020, waitress the musical, waitress the musical uk, year in review, zoom

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope