Posted on November 19, 2023
This week – from Monday 13th to Sunday 19th November – is Self Care Week, a UK-wide awareness week established and run by the Self Care Forum, a charity that aims to spread understanding about the positive impact of self care and helping people to implement it into their everyday lives. This includes the benefits of good nutrition and exercise, of taking vitamins (like vitamin D, especially for those whose health means they spend all or most of their time inside), of managing our mental health; they also guide people in making more positive lifestyle choices (to no one’s surprise, ‘homelessness’ is not on their list – fuck you, Suella Braverman), go into schools to help improve health literacy, and support people in understanding how to manage both short and long term health conditions. All good things!
I can’t speak to their understanding of neurodivergent or Autism focussed self care – I haven’t been able to find anything on their website – although much of their advice applies to all of us as human beings with the same basic needs. I thought that, in recognition of this week and the importance of self care, I’d put together a list of strategies that I personally rely on, many of which I’ve developed to help me manage as a neurodivergent person.
Obviously not all of these will work for every person, the personal ones that is: the physical ones apply to all of us to a certain degree, depending on our individual circumstances and needs. But when it comes to the personal ones, it’s unlikely that all or even most will work for everyone. But hopefully, given how many I’ve included, there will be something that’s helpful – or just worth trying – to anyone who reads this…
PHYSICAL:
When I’m struggling, I know that I need to check in with my body. I’m really not very good at noticing my body’s signals – my interoception is pretty poor, something that isn’t unusual in neurodivergent individuals – so I often have to go through this list consciously to figure out what it is my body is asking for. Others are better at this but it’s always worth checking to make sure that there isn’t a straightforward way of understanding why you might be feeling the way you do and of improving both your physical and mental state…
PERSONAL:
Here is a short list of the things that help me to manage when I’m struggling, when I’m feeling overwhelmed and burned out, when my mental health isn’t great. It’s a constantly evolving list, depending on what’s going on in my life and what my needs are, but this is my current list of self care strategies, ones that are the most helpful at this point in time.
I’ve been working on my self care this year and there are times when I can really see the difference it’s made: I’m really enjoying exercise for the first time in my life; I’m drinking more water than I ever have; my relationship with social media is better than it’s ever been; I feel more confident in my friendships; and so on. There are still plenty of aspects to work on but I can see the positive effect it’s had on my life.
I’d love to know how you guys feel about all of this, about self care in general and on a personal level. What self care strategies do you use? Which ones do you find the most effective? Here’s a great list if you need more ideas.
Category: about me, animals, anxiety, autism, body image, book, chronic fatigue, chronic pain, depression, emotions, exercise, family, favourites, food, hydrotherapy, medication, mental health, music, pots, sleep, special interests, therapy, tips, writing Tagged: animal, asc, asd, autism, autism spectrum condition, autism spectrum disorder, awareness week, body, body image, book, breath, breathe, breathing, breathing techniques, breathwork, cat, cats, chronic fatigue, chronic pain, crafts, demands, diary, dog, emotional needs, exercise, family, favourites, film, food, friends, health, hunger, hydration, hydrotherapy, interoception, journal, journaling, mental health, mum, neurodivergent, pet, pets, physical health, physical needs, physiotherapy, puppy, relaxation, relaxation techniques, rest, self care, self care awareness week, self care forum, self care week, sleep, social media, special interests, support group, swimming, therapist, tv show, wellbeing, writing
Posted on November 5, 2023
TW: Mentions of self harm and suicidal thoughts and urges.
It’s been a year since I started therapy again after an unintentional break, essentially starting again with a new therapist. It’s been a hard and emotional process, and at times a distressing one; just going to therapy can make you feel so vulnerable and so open to further hurt as you dig into the hard stuff – wading into dark waters that you’d rather ignore and pretend don’t exist, even as they’re eroding your mental health – that adding difficulties to that already difficult thing can feel unfairly cruel. So, given that I’m me, I thought that, perhaps, writing about it might be helpful and maybe not just for me but for anyone going through a similar transition. And if not helpful, then hopefully validating in some way.
I’d been seeing Therapist A for almost seven years when everything changed. She was taking leave and I was on my own.
Pre-2021, I’d seen Therapist A once or twice a week pretty consistently since early 2016. Even when the UK went into lockdown due to COVID-19 at the beginning of 2020, we continued our sessions online; I didn’t find them as productive but it was better than nothing. We continued that way for a while, trying to manage my crippling anxiety over the pandemic, working on issues that came up as I persisted with my now online Masters classes, and continuing to work on the issues that had landed me in therapy in the first place. But then the schedule began to slip: Therapist A’s home life was pulling her away from work and I was working myself into the ground in order to complete the final project of my Masters. I barely saw her in the last four months of the course, which I really struggled with: I was digging into some pretty hard stuff, writing song after song about my experience of being autistic, and I craved that safe space to play them to her, to hear her perspective on what I was saying, talk about the feelings they were bringing up, and she wasn’t there. I told myself that it was a short term thing and that, once the Masters was over and her stuff was resolved, the schedule of our sessions would go back to normal. I think it’s safe to say that, given the title of this post, it didn’t.
I finished the Masters in September 2021 and officially graduated, walking the stage, a few months later in November. I had reduced and stopped taking Phenelzine at this point, in preparation for trying ADHD meds (and we all know how appallingly that went), and my depression was creeping back in; the situation was getting pretty desperate. But luckily, that was when Therapist A reached out and we started having sessions again. We had a lot of catching up to do but, by mid-December, we were up to date. Unfortunately, the ADHD medication was already hitting me hard and my depression had gone from a state I recognised to a whole new level of despair with increasingly overwhelming suicidal thoughts. My most vivid memory from that time is sitting in Therapist A’s new office, staring at the unfamiliar rug and hearing my voice in my ears as I confessed to those thoughts, my voice completely flat (this is known as ‘flat affect,’ a recognised symptom of depression and other mental health conditions). It still makes me nauseous to think about, even though so much time has passed and my depression has gotten so much worse since; I think, in my head, that was the beginning of this awful, awful time.
My last session was on New Years Eve and I was drowning, all of the impending new beginnings feeling more like a threat than a promise. When we hung up, I felt achingly hollow and that was only the beginning of a terrible night. But that’s a story for another time. January was passing around me, aimless and anxious, when I finally heard from Therapist A. But instead of setting up our next session, she was letting me know that she was taking leave indefinitely. Her reasons aren’t mine to tell but, between those, my ongoing abandonment issues, and my overwhelmingly bad mental health, I was devastated, spiralling into some grotesque hybrid of a meltdown and a panic attack that went on for hours: I screamed, I cried, I scratched at my face, I tore at my hair, I shrieked like an animal in pain. I guess that’s what I was. I felt like I was trying to exorcise a corrosive demon from my body but nothing helped, nothing alleviated the pain. I was shattered as brutally as if I’d been hit by a wrecking ball. That’s what it felt like, what my life felt like.
Eventually I physically ran out of energy and fell asleep, too tired and emotionally drained to even engage with the world. My depression became more and more overwhelming, compounded by the devastating effects of the ADHD medications and the loss of a massive source of support in my life, and, for months afterwards, I barely got out of bed, barely ate, barely talked. I abandoned social media and I avoided mirrors at every opportunity, to the point where I started to forget what I looked like. The suicidal thoughts were only getting stronger, stronger than they’d ever been in my life, and the feeling of being intrinsically, irreparably broken was – and is – a constant weight in my chest.
I’m not sure when or why I started getting out of bed, why I decided that I needed to go back to therapy. I think I knew I was getting into a very precarious position mentally and the excruciating pain of being inside my head was getting so unbearable that I was willing to do anything to lessen the pressure. I did see a consultant at the local mental health unit but the experience was another traumatic one: after a panic attack at the front door, a junior doctor took my history and then brought in the consultant who told me about ECT and the Ketamine trials before telling me why I shouldn’t do them and recommending doing more of the things I love (which I’d already told him I couldn’t engage with because I was so depressed). So that didn’t improve my relationship with doctors and the medical profession.
For a short while, I worked with a therapist I’d met several years previously but the sessions only made me feel worse and while I have no doubt that it wasn’t intentional, I ended up feeling more broken and more traumatised by some of the things he said, trauma that I’m still carrying around with me. So I stopped seeing him and met with several new therapists, trying to get a feel for them and their methods before committing to someone new. But, just like with Therapist A, Therapist B was the first of the group that I met (a year ago yesterday, I believe) and between her therapeutic approach, her personality, and the fact that she’d brought along a dog she knew in order to put me at ease, she was the obvious choice.
As therapists, they both trained in several of the same disciplines and their skillsets overlap to a certain degree but, when discussing a particular issue, there were differences to how they’d approach it; there has been a fair amount of whiplash in getting use to Therapist B’s approach after so many years with Therapist A. But the point of this post isn’t to compare them – they’re both lovely people and very good at what they do, at least as far as I can tell – but rather to reflect on the process of moving from one to another and the feelings that that kicked up. And a lot of feelings there were – I even wrote a song about it called ‘Grave Digger.’ During the early sessions with Therapist B, we made a timeline of my life and discussed some of the biggest moments, many of which were difficult and distressing (and remain so to this day). Revisiting and recounting the hardest parts of my life was gruelling but I did my best to push through the internal resistance and breathe through the resulting turmoil; between that and the ongoing mental anguish, it was a difficult few months. I don’t mean to make it sound like one continuous torture because that isn’t true -we’ve talked about the good experiences that’ve made me who I am, of course, and there have been sessions where we’ve laughed a lot – but I think that building a strong relationship with a therapist and making progress will always involve periods of incredible vulnerability, which is always scary and, at times, painful.
Sometimes – okay, often – I feel like I’m not making any progress at all, partly because of all the disruption and the distress it’s caused. A year ago, I hadn’t expected to see 2023 and my depression and chronic suicidal thoughts haven’t lessened, even though I am taking Phenelzine again (at a higher dose, in fact) – after many discussions with Therapist B. It has made me more functional, to a certain degree, but the decision came with a price tag: my self harming escalated from cutting my arm to cutting my face. I’m not convinced anything’s changed; I don’t feel any better. But I can see that some things have changed and changed for the better, even though I can’t feel the effects yet: something has allowed me to start talking about some of the worst stuff in my brain, even if only a little. It’s something I could never have imagined doing so I know that that’s progress, even though I struggle to feel it.
I have heard from Therapist A several times now; the news has generally been positive, which has been a great relief (and I appreciate having a little less uncertainty in my life). Therapy is continuing as normal – the current version of normal at least – which I’m pretty sure is a good thing: the idea of trying to work my way through all of the emotions that I know would come up as a result of any potential change makes me feel physically nauseous.
I’m not always convinced that I’ve adjusted and sometimes I forget that I’m not going to see Therapist A, my body moving in the direction of that office as the car turns down a different road; that experience is more ingrained than I had realised at the time. And I know I’m still carrying a lot of hurt and anger over the whole thing, even though over a year has passed. I’m not angry at the people involved – nobody chose any of this – but there is anger and, although I’ve been slower to realise it, hurt too. I think it’s easier to be angry than to be hurt. Not always but sometimes. And, as I said, I have abandonment issues, issues that I’ve struggled with for a long time, which – unsurprisingly – have been exacerbated by this whole thing. It’s hard to lose someone that you trusted to never leave (a naïve ideal, I know) and it’s hard to trust someone new, ignoring the whispers that they’re just another person who will inevitably walk away. I think these issues are important to mention but they probably need their own blog post rather than taking up space here: when talking about changing therapists, it’s not something that everyone has mixed into the equation. All of that said, I’m trying to trust and I think that, for the most part, I am, even if it does sometimes feel like a conscious, concentrated effort. The progress isn’t as fast as I’d hoped it would be when I committed to therapy again last year but the proof is there. I’m sharing things I never thought I’d share and that’s certainly not nothing.
Category: about me, anxiety, autism, covid-19 pandemic, depression, emotions, medication, meltdowns, mental health, self harm, suicide, therapy, treatment, university, writing Tagged: abandonment, abandonment issues, actuallyautistic, adhd, adhd medication, antidepressants, asc, asd, attention deficit hyperactivity disorder, autism, autism spectrum condition, autism spectrum disorder, autistic, autistic adult, autistic artist, autistic meltdown, autistic songwriter, covid, covid-19, cptsd, dbt, depression, dialectical behaviour therapy, ect, electroconvulsive therapy, fear of abandonment, flat affect, graduation, ketamine, ketamine trials, masters, masters degree, masters degree in songwriting, medical trauma, medication, meltdown, mental illness, online therapy, panic attack, phenelzine, radically open dialectical behaviour therapy, rodbt, self harm, self injury, songwriter, songwriting, suicidal, suicidal ideation, suicidal thoughts, suicidal urges, therapist, therapy, trauma, trd, treatment resistant depression, university
Posted on May 28, 2023
Yes, I’m aware the title is fairly obvious. Mental Health Awareness Week 2023 is over. But I’m inclined to wonder how many of the people, organisations, companies etc are still talking about mental health now that the week is over. Maybe this is cynical but I’d guess it isn’t nearly as many as were talking about it during the week. And that is part of why I wanted to post about it this week rather than last week (shout out to my therapist for talking this out with me).
During Mental Health Awareness Week, I was scrolling through the #MentalHealthAwarenessWeek tag on Twitter and found myself just seething at what I was seeing: the majority of posts were either very basic information about mental health (and I mean very basic), vague platitudes (like ‘it’s okay not to be okay’), and pictures of various royals attending various events. The theme of the week was anxiety but I didn’t even know that until I looked at the Mental Health Foundation website afterwards. And looking at all of these posts, I couldn’t help but think, ‘How is any of this helpful in any way?’
I started ranting and the Twitter thread got longer and longer but, before I posted it, I thought that maybe this blog was a better place for those thoughts. The audience is definitely smaller but Twitter is so full of potential pitfalls (we all know how toxic it can be) and it’s so easy to be taken out of context when you have such little space to try and express your thoughts. So I took a breath, didn’t click post, and then copy and pasted all of those thoughts over here.
My first thought when I checked Twitter and realised that it was #MentalHealthAwarenessWeek (I almost always have family stuff during that week, which completely absorbs my focus, and then I’m always more than a bit thrown when I realise) was “Ah yes, another year, another #MentalHealthAwarenessWeek where organisations and corporations pretend to care about mental health and mental illness by posting the most basic information and platitudes before going back to pretending it doesn’t exist. I’m so glad you guys can take the rest of the year off now because those of us struggling sure as hell can’t.” Again, that’s a very cynical view – I know that there are many people who do care and we don’t need to post about things on social media to prove that we are passionate about them – but I find it so deeply frustrating to watch people (and worse, an organisation or company) act as though they care deeply just because it’s the annual awareness week and it makes them look good to post about it. Because, as I said, many of us – myself included – don’t have the luxury of not caring about mental health and mental illness because we are struggling with it every day. Every week is Mental Health Awareness Week. I have personally spent over ten years living and struggling with the symptoms of several mental health problems, being traumatised by systems that are supposed to be helping, supporting, and protecting me (including the current government – HA); I do not trust them to care for me or even about me – I doubt I ever will – and that is NOT OKAY. That is not how healthcare and mental health support are supposed to work. I am very privileged – and feel extremely grateful – to be able to find care independently, but so many people are not in this position, resulting in many, many people not receiving the care and support that they need, something that is, again, NOT OKAY.
But back to social media and awareness days (as much as I could talk about it, this is not a post about how the systems in place aren’t supporting those of us struggling with mental health problems). It can be very upsetting to see massive, impersonal corporations tweet about ‘reaching out’ or ‘[listing] things to be grateful for’ and it feels very out of touch and performative and just pretty offensive. This is not what Mental Health Awareness Week is about, what it is for. At least it shouldn’t be. Personally I don’t think awareness days and awareness weeks are particularly helpful and, at worst, potentially problematic (for example, it gives people an excuse not to engage with these issues because they feel like they’ve done their bit during the one awareness day or week a year) but, if we’re going to have them, they should be an opportunity to share resources (ones that are actually helpful, not ones with advice we’ve all heard a thousand times), to have real discussions about the perceptions we have about the relevant issue and how said issue is handled by the associated systems (or not handled), to elevate and celebrate the activists trying to raise awareness, and so on. They should not be an opportunity for brands to seem socially engaged or for shops to make money from barely relevant and often obnoxious merchandise. These days could be so much more (this is a really interesting article on raising awareness, why certain campaigns fail, and how we can make them more effective); we could make them so much more.
As I think we’ve established, I am pretty cynical about all of this and do believe that many people will completely forget about mental health as a topic now that the week is over. But while I do think that there are many people who talked or posted about it just because it was trending on social media, I also know with absolute certainty that there will have been many people who didn’t comment and don’t comment for completely valid reasons: we all have our own battles to fight and we, as human beings, can’t fully commit ourselves to every cause (compassion fatigue is a very real thing). And then, of course, there are the awesome people who continue to share their stories, to speak out, to try and push the world towards change – doing everything from making art about it to campaigning for better systems to creating more representation in the media to supporting individuals with mental health problems, etc – regardless of what week it is. I have great respect for everyone doing this (and for all of these important causes but I’m trying really hard not to get derailed within this pretty specific blog post) and I’m so inspired to keep being loud about my experiences with mental health and doing everything I can to make a better, safer world for us.
As I said, I often forget that Mental Health Awareness Week is happening – the 16th May is the anniversary of my Dad’s death and it just takes up a lot of time and energy and emotion, as you can probably imagine – and I have a lot of big, tangled up thoughts about awareness days and weeks in general. The point that I guess I’m trying to make here is that I don’t like the (almost) performative activism it accidentally encourages and rarely helps the people that it’s actually supposed to. And I think we can do them better. I know we can. It’s just a case of figuring out how and making it happen, which I do appreciate is far easier said than done. But then, what isn’t? (Other than silence and we really don’t want that either.)
Category: about me, anxiety, death, depression, emotions, family, mental health, response, therapy Tagged: activism, advocacy, avodcact, awareness, awareness campaign, awareness day, awareness week, benefits, compassion fatigue, conservatives, grief, mental health, mental health activism, mental health advocacy, mental health awareness, mental health awareness week, mental health awareness week 2023, mental health foundation, mental illness, mhaw, platitudes, royal family, social media, support, the conservative party, therapist, therapy, tories

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope