Grateful 2024

TW: Mentions of therapy trauma and self harm.

I know I usually get this post up on Christmas Eve but I just haven’t been able to keep up with my old schedule this year; between the exhaustion from my erratic sleep schedule and my ADHD outdoing itself in fucking up my concentration, writing has been taking a lot of time and energy. I still love it but suddenly it’s just taking so much effort, in all forms, and that has massively slowed down my ability to finish anything. But there has been a lot to be grateful for this year and so I really wanted to get it down, no matter how long it took.


MUM – I know I specifically list my Mum on my ‘Grateful’ lists but it never becomes less true; I never become less grateful. I find more reasons with each year. The support she has given me this year, in good times and in bad, has been amazing: she made it possible for me to move through the Autism dog process, go to concerts, take up opportunities that I would never have been able to participate in otherwise. She’s supported me through meltdowns, the days that I couldn’t get out of bed, everything I’ve needed to make the music I’ve made this year, helping me to find the people who can support me in my mental and physical health… I couldn’t do any of this without her.

FAMILY – Not that I would ever call my family unsupportive but I feel like there have been specific instances this year that have felt new and different, in the context of the way they support me: help with applying for grants, help with getting my academic paper ready for publication, help with the Autism Dogs process, help with going to see Taylor Swift, help with finding a new therapist, even rescuing me when I’ve gotten stranded mid-meltdown… They listen to me; they know when to push me when I need it and let me stop when I need to stop; they remind me to rest (something I’m notoriously back at). My health, both physical and mental, has been so bad this year that I’ve really needed them and that change has created more change. The dynamic feels different than it has in the past and, for the most part, in a positive way; there’s room for growth.

THE FAMILY OF CATS – The cats have been a bit distant since we got Izzy. They find Izzy a pest at the best of times and so they’ve stayed away from her and therefore us as Izzy is usually with me and/or Mum. But over the last few months, they’ve started to stray from their ‘safe space’ in the kitchen and further into the house. They’re now sleeping in my room and the living room and even asking for attention, which feels like such a big win. They still avoid Izzy for the most part because she can be so excitable and unpredictable in her playfulness but we definitely have progress from the beginning of the year.

IZZY – Although she can be a little menace at times, I honestly don’t know what I’d do without Izzy in my life. I think she may well have saved my life when we got her last summer and somehow I love her even more than I did then. I love her more every day. She’s a constant presence – a constant soft, warm heartbeat – beside me and as bouncy and hyper and playful as she can be, she can be just as gentle and affectionate and sensitive; whenever I’m upset or even having a meltdown, she presses herself as close to me as possible and even licks away my tears. All she wants to do is make it better and even though it’s rarely something she can affect at all, her belief that she can and the effort she puts in can make me feel at least a little less awful.

AUTISM DOGS – While the process of working towards my Autism Assistance Dog, Daisy, and the anticipation (and, I will admit, anxiety) of waiting to see how it all plays out when she arrives, it’s also been really exciting and such a learning curve. Even though I swing backwards and forwards into various big doubts, the staff have been incredible at reassuring me and, if it’s a practical anxiety, showing me what to do to make me feel more confident. Daisy is utterly gorgeous and so eager to please and very sensitive to my needs already; I don’t know what I’m going to do if, mid-cry, I have two dogs launching themselves at me… Izzy and Daisy are getting on better but Izzy is still very possessive of me and I just have to hope that when they get to spend some significant time together (i.e. more than ninety minutes at a time), they’ll find it easier to figure out each other’s boundaries. So there’s a lot of joy there, even if there’s also a lot of anxiety. And getting to meet so many dogs has been so lovely – once there was even a litter of puppies!

OLD FRIENDS AND NEW FRIENDS – My friends and the love I have for them has been a consistent thread throughout this year. I’ve spent a lot of time, in real life and over the video calls if travel was tricky, with friends from all different periods of my life – something I feel so incredibly lucky to have. I’m still friends with my best friend from secondary school, from sixth form, from my BA, and my MA group of friends; it’s something that makes me so emotional, that we’ve managed to maintain these friendships over all of this time, despite everything that’s happened in our lives, and pick up – pretty much – as if no time has passed. Being able to share my life, hear about theirs, and hopefully support them as much as I’m able to through tough times is one of the greatest honours of my life and I can only hope that I’ve been clear enough about how much they mean to me. Their circles have broadened my circle too and that’s also been really lovely.

And due to the wedding of a friend from sixth form (she, Lois, animated a gorgeous music video for me and we’ve kept in touch sporadically over the years), I had the opportunity to see so many old friends from sixth form, many of whom I haven’t seen for years. Because of the pandemic, going to universities all over the country, traveling and moving abroad, we haven’t all been together for a really long time so I was positively giddy to see so many old friends. Life just gets so busy and with everyone scattered across the country and beyond, it hasn’t always been easy to stay in contact but, as I said, it was an absolute joy to see everyone again and I spent most of the evening hugging one person or another (apart from the solid twenty minutes of Taylor Swift music where I danced so hard that I nearly died at the end of it). There were so many exciting updates from everybody and it was just so nice to be together again. Hopefully it won’t be as long as last time before we can hang out together again.

I’ve also made a whole new group of friends, due to joining an online poetry group. What was such a casual decision has completely changed my life: my love of poetry and my creativity has grown exponentially but, more importantly, I adore the other members of the group. They’re all so kind and brave and creative and they make me feel understood and supported and safe. There’s a lot of overlap in mental illness, neurodivergence, disability, and chronic illness so we share a lot of experiences and common ground so we constantly support and ground and educate each other. Finding them was a complete fluke and now I miss our writing sessions if we go more than a week without one; they came into my life just when I needed them and I couldn’t be more grateful.

NASHVILLE FRIENDS – It was SO lovely to see my friends in Nashville when I was out there in late March-early April. And by some wonderful cosmic timing, I happened to be there the same week that my friend, Candi Carpenter, was releasing their debut album, Demonology (which is fantastic). And because they were also putting on a release show – and afterparty – lots of their friends and people who have become my friends online were all flocking to Nashville so I got to see loads of lovely people, some in person for the first time. If it hadn’t been for that, I’m not sure I would’ve seen my friend Kalie Shorr (who is also an incredible songwriter and artist) so I was very grateful for that and we had a blast at Candi’s release show and even managed to fit in a coffee and a catch up while we were both still in town. In some ways I got to see a lot of Candi – at their release show, at the afterparty, and then at another show they were playing later in the week – but they were obviously very focussed on getting the album out (completely understandably) so we really didn’t get much time at all to just hang out and catch up but it was so incredibly special to be at their show and celebrate the album and then be the super annoying fan whooping from the front row at the second gig. I truly would’ve been gutted to miss the release show: I’m pretty sure it was one of the best shows I’ve ever been to. So the time I did get to see Candi was very precious. And I also got to see Caylan, my very oldest Nashville friend, and we got to have a really lovely catch up and managed at least one Pancake Pantry outing. While my previous Nashville trips have been much more focussed on Tin Pan South, this trip ended up being much more focussed on my friends, although I did manage to get to see some of my Nashville faves, like Ingrid Andress.

ESCAPISM – While there were some really great days this year, there were still a lot of bad ones and still a lot of really, really terrible ones and I’m grateful for the escape that various activities have given me. I didn’t read much this year – my ADHD, brain fog, difficulty concentrating, etc was brutal this year – but diving into films and TV really got me through some of the tough times. Film wise, A Quiet Place: Day One was so much better than I thought it would be, considering how many times alien invasion films have been done and the fact that the main characters weren’t in it; I thought the lens through which they told the story was really moving. I also watched Fitting In and The Fallout and found both of those really powerful; they’re both the kinds of stories that we need to be telling and learning from because they dig into really big subjects and don’t always follow the storyline you expect them to, which often makes them much more true to real life. Oh, and I loved the most recent film from The Hunger Games franchise, The Ballad of Songbirds & Snakes (which I did actually also read). I really didn’t expect to like it because I really wasn’t interested in a story with Snow as the protagonist but I ended up finding it fascinating and enjoying it more than the original trilogy by far; Rachel Zegler and Viola Davies were, of course, also fantastic and I think it’s one of the most beautiful and visually interesting films I’ve seen in a really long time. (I also watched The Trap, which I recommend nobody watch ever – it’s actually amazing how terrible a film can be.) TV wise, I got back into Law & Order: Special Victims Unit, which was really nice because I love Olivia but was so bored of the storyline and Elliot features when I sort of tuned out; I’ve been enjoying the recent series a lot more. I also loved the new season of The Lincoln Lawyer and the new season of Criminal Minds: Evolution was better than I ever imagined possible: I’m honestly still obsessed with it – the character arcs, the acting, the greater plot, the strings left untied – and I can’t wait for the next one. I really got into Nobody Wants This, A Man on the Inside, and Black Doves (I’ve never seen Keira Knightly so good and I may never get over the relationship between her and Ben Whishaw’s characters) and I’m really excited that all three of them have been renewed for another season because I just want more! I also really enjoyed Red Eye – which was on ITV and I think was just a standalone series – with its amazing cast, acting, and storyline; it was really compelling right from the beginning and it was able to stay high stakes while still being clever and interesting and actually quite moving. And, of course, I found escape in music: I got really into both Beth McCarthy and Gracie Abrams because of their new releases this year; I was and still am, of course, obsessed with Taylor Swift’s The Tortured Poet’s Department; and one of my favourite people, Candi Carpenter, put out their debut album, Demonology, which I know will stay as one of my favourite albums forever. Both Candi and another of my favourite people, Kalie Shorr – both of whom I first met in Nashville – started Patreons to fund their sophomore albums and while the perks of subscribing are lovely, getting to see these two albums come together is so freaking cool and I feel like I’m learning so much about the album process, from writing to production to creative direction and so on. I highly recommend checking them out and supporting them if you can. Candi’s is here and Kalie’s is here.

AMANDA TAPPING AND THE COMPANION – I have always loved Amanda Tapping – she’s been a hero of mine for more than fifteen years now – and I was lucky enough to meet her again at Basingstoke Comic Con this year. It was a tough few days – the event was very chaotic and there was an awful heatwave – but I have so many special memories of the experience. The panels were really interesting and all of the guests were really open and good-humoured despite the heat and exhaustion. I was, as always, really excited to see Amanda and getting to see Richard Dean Anderson was really wonderful; I’d sort of forgotten how much I love him and Jack O’Neill. I was kind of disappointed that I hadn’t bought a pass to meet him but the queue was so long that people were missing other things and I think I would’ve passed out before meeting him (having said that, I did run into him in the hallway before one of his panels and although he was barely able to stop moving, he was really sweet). Talking to Amanda again was as lovely as it always is (she is one of the kindest people I’ve ever met) and, although the meet and greet wasn’t what was promised, it was still really special. I also got to meet the organisers and many members of The Companion, an organisation that celebrates sci-fi and fandom and one of their biggest projects has been Embracing Mental Health as a Fandom with Amanda Tapping; it was so freaking lovely to meet them all in person for the first time after having everything be online for so long. The Companion panel with Amanda was amazing and really moving and I felt so lucky to be there. I missed it all as soon as I got in the car to go home but it was so special and I can’t wait for the next event, whatever and whenever that may be.

WALKING AWAY FROM MY LAST THERAPIST – I wrote an incredibly long post about this earlier in the year but the short version is that, at the beginning of the year, my therapist of the last couple of years traumatised me, triggered a meltdown, and ultimately pushed me into a dissociative state. I couldn’t go back for over a month and while I tried to engage with her over a phased return (because I felt too traumatised to even go back into the room), she wouldn’t discuss it and then threatened to terminate therapy unless I came back. Honestly, I never wanted to see her again at this point but I wanted to understand why she’d apparently become a completely different person from when I’d first met her. That session was a complete disaster but in a way I’d never expected: she babbled like an idiot, unable to justify any of her decisions or reasons for terminating therapy (which she was doing, regardless of the previous manipulation of terminating unless I came back). She accused me of threatening her livelihood by missing sessions (although she’d been fully aware of the issue and she’d had notice for every session apart from one, when I’d thought I’d be able to get there and then couldn’t) and then referred to my six-ish weeks of trauma-induced dissociation due to her actions as ‘an extended holiday.’ I had such a physical reaction to that that I honestly thought I was having some kind of cardiac event: my heart rate had been so high throughout the session and I’d been shaking like a leaf, unable to take deep breaths. She asked if she could come and sit next to me and I honestly don’t know what I would have done if she had; I did not want her anywhere near me. But at some point during the session, something changed for me: it was like shedding my skin that I’d long needed to let go of and this new version of me had a new kind of strength, I guess… the emotional strength to push back rushed into my body like much-needed oxygen. For every lie, I had evidence against her; for every attempt to manipulate me, I called her out; for every time she tried to make it my fault, I was able to volley the accusation back. Maybe seeing her had triggered the fury I felt and as soon as I felt that, I was able to stand my ground and push back. Or maybe it was the absolute ridiculousness of her behaviour. I wasn’t going to let her get away with that. I did end up going to one final session, to give her a final chance to explain, but she was just as all over the place and halfway through the session, the air just went out of me and I left. I didn’t want anything to do with her for another minute and there was nothing she could say or do to change that. It was a very traumatic experience and I’m not grateful for that at all; I’m beyond sick of terrible therapists who hurt their clients more than they help them. But I’m really grateful for the new person I grew into as a result of it all, even if it took me a while to recognise it.

GETTING THE TATTOO BUG – After almost fifteen years of wanting tattoos but other things just getting in the way, I finally got my first tattoo… and my second… and my third… and at the time of writing this, I have six with plans for many more. I love having them and I love getting them, which is apparently not that unusual for people who have self harmed; I find it oddly therapeutic and I definitely get a rush from it. I have had one really bad experience with a tattoo artist discriminating against me and refusing me disability accommodations, which was traumatic and has been taking up a lot of my time and brain space to resolve. It’s not, as of yet, resolved but I’m still working on it and I hope that there will be some progress soon. But that incident aside, I’ve absolutely loved it and I’m looking forward to figuring out which tattoos I’ll be getting next…

AMAZING SHOWS, FROM BASEMENT BARS TO STADIUMS – I had a year of amazing concerts, from small songwriters’ circles (shout out to Stories in Song) to Taylor Swift’s almost four hour long epic, The Eras Tour, at Wembley Stadium (shout out to Electrolyte Fastchews for keeping me alive). I got to see multiple incredible songwriters at Tin Pan South in Nashville (including my long time fave, Ingrid Andress), as well as my beloved Kalie Shorr and Candi Carpenter – it was so special to be able to be in the room cheering for them, rather than stuck behind the screen on a livestream. I got to see Holly Humberstone for the first time. I got to see Bleachers twice, which I was particularly grateful for: the first time I ‘saw’ them, the accessibility team put me in the back row of the seating and, even though the seats were raised, everyone stood up and refused to sit down when told by security so I wasn’t able to see much of anything. I got to see Maisie Peters twice as well, first opening for Taylor Swift (which was awesome and so emotional that I cried through most of it) and then opening for Noah Kahan, who was also amazing. I got to see one of my tutors, Jonathan Whiskerd, play the launch gig of his stunning upcoming album, which was so special, even more so because I know how much time and effort and care has gone into it. I got to see Beth McCarthy headline Heaven, which was so much fun; I got to see Halsey play a surprise show at KOKO, performing a mix of songs from their previous albums and a few new ones, The Great Impersonator having not been released yet (that show was super emotional); and I got to see Kelsea Ballerini play an incredible one night only show at The Roundhouse. It was an amazing year for concerts and I’m not sure how 2025 could beat it but I do have a few very cool ones lined up.

TAYLOR SWIFT AND THE ERAS TOUR – Taylor Swift usually makes her way onto my grateful lists, for one reason or another, and this year I have so many reasons to be thankful for her. The paper that I wrote on her lyric writing and presented at what I believe was the first Taylor Swift centric conference, Taylor Swift Study Day 2021, is about to be published (I did an interview about it here), which is so exciting! She released her newest album, The Tortured Poets Department, which I love and feel like I’ve learned so much from, from a songwriting perspective; I love it so much that I got a tattoo of a lyric from ‘The Black Dog.’ I endlessly enjoyed following The Eras Tour online and discussing each night and each night’s mashup on Tumblr. And then getting to go… Getting to go to The Eras Tour was absolutely magical; I will never forget how special it felt to be there, to experience those shows with the wonderful people I got to go with. I was so lucky to be able to go multiple times but the most special part of that was the fact that I had so many friends who wanted to go and wanted to go with me, their resident Swiftie friend: as a teenager I was bullied and harassed relentlessly for loving Taylor so to have more friends wanting to go with me than there were shows in London (not that I went to every show in London) was so healing for my younger self. The show was beyond incredible, I had so much fun with my friends (and, of course, my Mum – we’ve been to many Taylor shows together), and I got to witness the most beautiful mashups and special guests, including Paramore as an opener, the live debut of ‘The Black Dog,’ the first Eras Tour performance of ‘I Did Something Bad,’ Maisie Peters as an opener, the mash up of ‘Change’ and ‘Long Live,’ Jack Antonoff as a special guest, and the first ever live performance of ‘Florida!!!’ WITH Florence + The Machine. I will honestly never get over the experiences I had. The effort it took to go to the shows required almost a month of recovery time and it took over a week before I was able to make coherent sentences but it was so completely worth it. I’m not sure there will ever be another concert experience like The Eras Tour but then this is Taylor Swift we’re talking about so who knows…

HALSEY – I’ve loved Halsey for years and I’ve always felt her music very deeply; there are multiple odd little parallels in our lives (we were actually born on the same day, only a few hours apart) that have always made her music feel like it’s deeply personal just to me, even though I know there is a thriving fandom out there who I’m sure feel the same way. I found it quite difficult to hear that they were going through really difficult health stuff, partly because I was also going through difficult health stuff, so it was a big relief when they started doing shows again. I was ridiculously lucky and managed to get a ticket to see them live at KOKO, just before The Great Impersonator came out, and it was just so magical to see them perform live again (I last saw Halsey live on The Manic Tour at The O2 Arena in 2020) and not just live but live at a super small, intimate venue. When they teared up, I could actually see the shine in their eyes because that’s how small the venue was; being at such a small show – just them and us – felt like a really special moment of reconnection. It was an incredible show, as I’ve always known Halsey shows to be, and see them so at ease onstage and so moved to be in front of a crowd (and a crowd of fans who were so thrilled to be there) was really moving (and, as I said, really reassuring). I got to hear songs I never thought I’d hear live due to the Love + Power Tour having been a US only tour: I was so excited when I realised that anything was up for grabs and it was a breathtaking experience to hear songs like ‘1121’ and ‘honey’ live. It was also one of the best gigs, accessibility wise, that I’ve ever been to, from the venue to the staff to the other fans; that meant a lot to me. And then, of course, there’s the new album, The Great Impersonator, which is incredible. It’s so raw, so moving and so powerful, and it’s been crafted so carefully and beautifully; the stories, within the greater story, that Halsey is telling are so detailed and delicate and the production is so varied and expressive. I’m just obsessed with it. But the rawness of it also makes it painful to listen to. Listening to it, I felt like so many of the songs could’ve been about me to a certain extent because I related to them so deeply; it’s a hard listen and it does feel like an excavation of every wound but I also felt so seen and so understood, which is so rare. All of the songs feel so precious to me (‘Life of the Spider (Draft)’ and the ‘Letter to God’ trio especially so) and it will always be an incredibly special album to me. I read one review that summed it up really well: “This is not an album designed to be a chart-topper; it’s a masterclass in the ways we use art to survive – which is to say, a masterclass in honesty.” I think this is so true, for the album, for Halsey as an artist, and for the way I feel about songwriting as an artist myself.

TRYING SOMATIC THERAPY – I needed a break after the traumatic end to my last relationship with a therapist but I still really needed help. I’ve reached a point where I don’t think talk therapy can do much for neurodivergence and trauma related issues (although I do think it can be helpful for working through certain things – I’m still in contact with a talk therapist I trust for when I do need that sort of support) so I started doing some research and ended up looking for a somatic therapist. I managed to find one really close by and I’ve had three sessions with her so far and I really like her; we get along really well and she just gets me. I can’t really explain it but I do think I feel different and I would recommend it to everyone, neurodivergent or neurotypical (I’ve already specifically suggested it to multiple people in my life, if only to get the short term relief I felt after the first session). We’re all carrying a lot of trauma these days, especially after the pandemic and with everything going on in the world, and the trauma of it all seems to be flying under the radar. I’m nervous to let my hopes get too high but I’m cautiously optimistic about how I might feel after more sessions in the new year.

NEW WORKING RELATIONSHIPS – This year I’ve met and worked with some truly amazing people that have made me so excited for my upcoming music releases. Up to this point, it’s pretty much been me, Richard Marc, and my Mum making things happen (and, of course, Josh of Sprogglet Studies who always does a fantastic job of mixing and mastering my tracks). But this year, I’ve met some wonderful people who really get me and get my music and, for the first time, I feel like I have music industry professionals (ones who I didn’t already know) who believe in me and who are passionate about what I’m passionate about and that means so much to me. I don’t want to say too much yet, since I haven’t made any official announcements about new music, but I’m so grateful to Tahnee and now Abi for everything they’ve done so far and for everything we have planned. I’ve also worked with some very cool photographers this year. In Nashville, I worked with Katie-Mac Photography and she had some ideas that, even now, I’m obsessed with; I only wish we’d had longer to explore them (and that the logistics hadn’t been so stressful). I did a shoot with Fraser MacKenzie, which was really fun; because we didn’t have a specific plan in mind, we were just able to improvise and see what worked and that was really cool. I’m learning so much through all of these experiences and so I’m really grateful for all of them. And then, of course, I finally got to work with Tom, who I’ve been chatting to for YEARS at this point: we’ve been talking about doing the artwork for this project ever since I came up with the idea and despite the pandemic and my health issues and our busy lives, we finally did it and it’s SO GOOD. I’m SO excited for people to see it; I’m absolutely obsessed. I also have to give Richard his own special shout out for all of the time and work and care that he’s poured into this project with me to make this new music; he has been my musical partner for over ten years now and I could not do it all without him. Making art with him is like making magic and our sessions together are some of my very favourite times. They, like our friendship, feel like anchors in my life and I can’t wait to create more stuff in the new year.


So I managed to finish it! It is still 2024. Just. I do want to get my unfinished 2024 (and 2023 – oops) posts up in time but I’ve been so hard on myself about it and that hasn’t gotten them finished or been good for me so I’m trying to just take my time and slowly get them done. Anyway. As I said, even though it’s been a tough year, there has been a lot to be grateful for and oh my god, do I feel grateful. I can’t imagine how any year could ever be like this year but who knows what next year will bring, good and bad.

Grateful 2023

TW: Mentions of depression and suicidal thoughts.

This has been a fucking hard year and there were multiple moments when I wasn’t sure I’d make it to this point; I’m not convinced I’m glad that I have. My anxiety and depression and chronic suicidal thoughts have been doing their best to swallow me whole; several people have suggested that I’m in autistic burnout and I wouldn’t be surprised but I don’t know how to be sure of that with the depression and CPTSD in play. I’m just putting one foot in front of the other, even when I’m not really sure why.

It’s somewhat confusing to still recognise the good things and be grateful for them in amongst all of that. While I never thought depression and suicidal ideation were simple, I never would’ve imagined that they could be this confusing and conflicted. But that’s a train of thought and discussion for another time. For now, these are some of the things I’ve felt grateful for this year…


Mum – I don’t know what else I can say about my Mum that I haven’t already said in my previous Grateful posts (2017, 2018, 2019, 2020, 2021, 2022) but, holy shit, am I grateful for her. Something I’ve thought a lot about over the course of the year is how she always seems to take things in stride. I know it’s not that simple: she’s human and so, of course, she has feelings about everything that happens but the way she handles things with such openness and grace blows me away.

Family and friends – Despite how hard this year has been and how desperately I’ve wanted to just hide away, I’ve managed to spend a surprising amount of time with my family and friends: over Zoom, at music events, at each others homes, even abroad. I honestly don’t know how I got so lucky to find and keep the friends I have but I am so deeply, deeply grateful. I look back at all of the bad things that have happened to me and I find that can’t hate them completely because, if they hadn’t, I wouldn’t have met and become friends with the people I have.

The cats – My gorgeous pride of cats. I love them all so dearly. We’ve had some health scares this year, which have been very scary but, fortunately, everyone has recovered and we’re celebrating Christmas as a healthy family. Izzy has thrown a spanner in the works to a certain degree and the peace of the house has been disturbed dramatically; we’re still finding a new normal and all of these new relationships are still evolving. On the whole, the cats are still avoiding Izzy because she gets so overexcited; she just wants to play but often, that either scares them or they don’t understand and so they take a swipe at her. It’s slow going and although progress is being made, I miss the cats being around and struggle with the frustration of just wanting everything to be okay and peaceful right now. I love them and I don’t like not seeing them as much.

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My time and friends in Nashville – My trip to Nashville this year was a serious emotional rollercoaster. There was a school shooting in the city on the first full day we were there; I saw some of the most amazing Tin Pan South shows I’ve ever seen; I became a Madeline Edwards fan; I saw some of my lovely friends; I hung out with new friends; we weathered the edge of a tornado (and had a little party in the motel room we were sheltering in; I got to go to Song Suffragettes’ 9th anniversary show and catch up with the lovely Natalie Hemby; I struggled with some serious chronic pain… It was a lot to take in, a lot to process. It was a really tough trip but the good moments were really good and I am grateful for those.

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My therapist (and the dogs that joined our sessions) – It’s been just over a year since I started seeing my new therapist and, if I’m honest, I’m still getting used to her and all the little differences. I saw my previous therapist for eight years and the loss of her from my life was a trauma so it’s not surprising to me that it’s been a really difficult adjustment; I still miss her and our sessions. My new therapist is good and I really like her and we’ve had some really productive sessions but it’s been a very different scenario: my mental health has never been so bad, the worst stuff so close to the surface. That makes therapy really fucking hard. It makes me feel triggered; it makes me feel like a frayed nerve; it makes me feel like I can’t breathe. It’s exhausting. But I know that nothing will change if I don’t go. Part of my experience of depression means that I don’t always want things to change but, as I said earlier, it’s such a confusing, messy, complicated well of feelings that it’s hard to articulate and this certainly isn’t the post to get into it, but it does provide some context as to why therapy is so hard. I can’t seem to clearly explain why I’m grateful for therapy and for my therapist, not with my headspace being the way it is right now, bit I know that I am. Sometimes I think that has to be enough.

The puppies – Over the summer, I got to spend a solid amount of time with a litter of four Pomchi puppies and it was glorious. One of them in particular, the only girl who was nicknamed ‘Skye,’ took to me straight away: it was like she saw me and went, “You. You’re my person.” It was adorable and I loved every second that I got to spend with her. I hadn’t thought I was ready to bond with another dog but Skye showed me that I was (and honestly, the name ‘Skye’ just felt like a sign – one of my biggest special interest characters, Daisy Johnson, having chosen that name for herself before she discovered who she was, who she was supposed to be) and it was such a joy. And then my heart was broken when I wasn’t able to keep her. I was devastated and the pain of it really shook me. I worried about her endlessly and although that has faded over time, it still hits me now and then; I hope she’s safe and happy and loved. And even though it ended in utter heartbreak and a lot of bad feeling, I wouldn’t take it back; it was a really special experience and showed me that I was ready to have a dog in my life again and ultimately lead to Izzy.

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Writing songs again – Songwriting has been a difficult for a while now, as it usually is when my depression gets bad (and it’s been the worst it’s ever been). It feels like my creative brain goes into hibernation. Since I started taking Phenelzine again in March, things have gotten better in that regard. I’ve been writing again but it doesn’t feel as fast or as easy as it used to; like it takes actual physical effort to make my brain work when it used to come really easily. So it’s definitely not perfect but I’ve written some songs I’m really proud of and I’m grateful for that.

Getting to reunite with my friends from university – In the Spring, I went to Germany for the wedding of two of my friends and although there lots of stressful aspects to the week away, there were some truly joyful moments too and one of them was seeing some of my wonderful friends. Because we’re scattered around the world, we don’t often get to see each other and we rarely get to see each other altogether and, with COVID of course, it’s been an even longer time than planned so that was really special. It was really emotional too, more so than I’d expected, but then it was a very emotional week.

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There’s five of us buried in this huddle.

Acceptance into the Service Dog program – A few years ago, we applied for the Autism service dog program but they didn’t have space for me. This year we applied again and I’ve been accepted! The process from being accepted to actually getting a dog is a long one but that’s okay: it gives me time to get used to it and to learn everything I need to know, with the assurance that support is coming. I’ve met quite a few people who are part of the organisation and they’ve all been so lovely and supportive and warm so I feel like I’m in good hands. I have my anxieties about it – it’s a big responsibility to take on a dog, particularly a specially trained one, and I’m aware that, by having one, I’m representing the organisation and, to a certain degree, disability and neurodivergence – but I think it would naïve and irresponsible not to. So I’m doing my best to prepare and to get into a healthy, balanced headspace about it.

Breathing Room – After years of loving the work known as ‘Breathing Room’ by Anna Berry, I finally got to see it. First in London and then in Croydon. Finally seeing it in real life was magical; it was utterly breathtaking. During each visit, I spent ages just sitting inside it, watching the cones flutter and listening to the gentle creak of the machinery. It was so calming; I could’ve sat there forever. And it had my mind spinning with new ideas for songs, both specifically about the piece and for other songs. I loved that. Both times, I had to all but be dragged out.

The London experience was also incredibly special because I got to help construct it before it opened to the public. It was a viciously hot, airless day (which resulted in a very stupid-looking sunburn, which unfortunately didn’t fade for months) and even with the gloves, I got some pretty nasty splinters that had my fingers stinging for days but I loved every second of it. I loved the repetitive movement, the soothing count, the intense concentration that had the rest of the world fading to nothing. I’d been in excruciating pain and I did struggle with my back during the session but I would’ve happily kept going; I only left because I had a prior commitment. I loved it and it was a really special thing to get to do. I also, by some magical serendipity, got to meet Anna herself and talk with her briefly about my love for the project and the idea of writing a song about it. She was really lovely and it was a very cool cherry on top to the day.

Discovering Maisie Peters – I’ve listened to Maisie a little, on and off, over the years but I think I just felt like I never quite had the brain space to really get into her music. But then I heard ‘Lost The Breakup’ and I was completely hooked. I played it on repeat until The Good Witch came out and then I was just obsessed; I didn’t listen to anything else for weeks and even when I did start listening to other stuff, I still often returned to it. I can’t quite explain what was so magical about it or why it resonated with me so strongly but it really did and I’m still completely obsessed with Maisie’s songwriting; I could talk about it for hours. I’d love to write with her. I also got to see her twice on tour and they were both really special shows: I saw her in Bristol on Halloween at the smallest venue of the tour and I saw her headline at Wembley, the biggest venue of the tour and a real milestone, at the end of the UK leg. She’s a fantastic performer and I absolutely loved the shows. I was also lucky enough to go to the VIP pre-show acoustic sessions and those were really, really special. I have a Week In My Life post half done about that week that I hope to get up soon where I talk more about that so I’ll come back and link it here – it was an exhausting week that took a long time to recover from but it was absolutely, 100% worth it. I saw her perform at the Communion Xmas Party too and got to talk to her briefly afterwards too, which was really lovely (her keys player, Tina, too). It was definitely my Maisie Peters season and long may it continue; I’m so glad to have her music in my life.

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Listening to The Good Witch, making bracelets for the tour, dressing Izzy up as the song, ‘BSC,’ Maisie’s acoustic set in Bristol, the Halloween stop of The Good Witch Tour, the acoustic set at Wembley Arena, Maisie’s sold out show at Wembley Arena, Maisie performing at the Communion Xmas Party in London, and meeting her after she performed. 

Getting a TENS machine – Given how bad my chronic pain has been this year, getting a TENS machine was a revelation. It has been so helpful and I’m so very grateful to have a way to reduce my pain when it’s really bad. I don’t know how I didn’t come across it sooner but I’m so thankful for the recommendation from my GP (who is an actual miracle worker).

Meeting Amanda Tapping at LFCC 2023 – Amanda Tapping is one of my favourite people in the world and has been since I was about fourteen. She’s played some incredible roles that have inspired me deeply and she is a truly wonderful human being. I met her several years ago and although I was almost paralysed by anxiety, she was so kind and open and it was a really special experience. This year she started doing livestreams with The Companion and it was so, so nice to see her again, regardless of the fact that she couldn’t see me. The livestream was great and I looked forward to the promised future ones. Then, in the summer, I went to my first Comic Con and got to meet her again in person. We had such a lovely conversation – as did she and my Mum, who was with me as my disability support person – and it’s a memory that I will always hold close and keep safe; it was a very special experience. And then, my third Amanda Tapping moment of the year was the second livestream, which was great on its own, but I also had a ‘backstage’ ticket and I was able to talk to her briefly afterwards. She’s so open to big, honest, vulnerable conversations and it feels like she really sees you and hears you when you talk and that’s such a powerful feeling; I remember thinking about that after I met her the first time and it was exactly the same this time. She, and the characters she’s played, have been a constant source of inspiration and strength for me and stumbling across her all those years ago was such a fluke but, my god, I’m so grateful I did.

Getting The ERAS Tour Tickets – Even though, it was incredibly, sickeningly stressful (and caused a fair amount of ableism-based trauma), I am very grateful to have gotten tickets to The Eras Tour in the summer – and not only one but multiple times, since several friends and groups of friends wanted to go and wanted to go with me. That felt very special and I’m both grateful that we were able to get the tickets and that I have been able to afford it, having been saving since The reputation Tour ended. I have a very complicated relationship with the future and with looking ahead but it was a huge relief to know that I wouldn’t have to watch the every show happening without being there even once. So I’m grateful for that. And, as always, I’m just grateful for Taylor herself: for her music, for being a person I can look up to, and for the inspiration and opportunities she has given me.

The Disability-Focussed Writing Workshop run by Sick Stories – I discovered this online workshop on Eventbrite and from the first one I attended, I had an absolute blast. Sophie, the host, is absolutely lovely and the prompts always led me down interesting rabbit roles. The first prompt Sophie suggested resulted in an idea for a novel that I would love to write at some point, my love of writing fiction returning that immediately. The fact that it was disability-focussed, along with Sophie’s excellent hosting, made it feel like a really safe and fun place to explore and share ideas that might’ve otherwise felt too personal and vulnerable, leaving all of the amazing pieces of writing I heard unwritten. I love a lot of the stuff I wrote in those sessions and although I don’t yet have anything to do with them, I hope that I will at some point find a way to share them.

Discovering Juneberry Red Bull – Among my family and friends, my Red Bull consumption is somewhat legendary, despite the fact that it seems to give my no caffeine hit whatsoever (I think I’m still living in denial that one day it will start helping again). But it had kind of waned… until I tried the new summer flavours. The other three didn’t do anything for me but this one has me in a chokehold: I love it so much. I would drink it all day if it wasn’t as unhealthy as Red Bull obviously is. But it’s a nice little treat that I’m very pleased they came up with.

Being able to afford a new laptop when my old one died – My laptop was dying a slow and painful death and, given that I use it for most of my work, that was a very stressful position to be in. But, thanks primarily to disability benefit, I was able to buy a new one and while that was obviously great for work reasons, it’s the first time I’ve had a brand new laptop in a long time so that was very exciting. I love shiny, new gadgets and, since they’re usually very expensive, I don’t get to do the whole “oh my god, a shiny, new gadget!” thing very often.

Nimona – Watching the film, Nimona, was a really emotional moment for me. I loved the story and the world and the animation style and the humour but the character of Nimona really resonated with me. I really related to her and saw a lot of myself in her: her feelings of otherness, her self loathing, her masking – there were so many parallels to being autistic. Seeing that was very moving. And I really, really related to her in her ‘monster’ form. *SPOILERS* The scene below is constantly on my mind and that scream has me in tears every single time: that is what it sounds like in my head, in my soul. That is what it feels like to be me. Being able to point at that and say to someone, “That’s how it feels,” has been so emotional. It’s hard to describe but I’m so, so grateful to have this film. It might mean more to me than any other film, specifically because of this sequence.

Swimming, hydrotherapy, and starting physiotherapy – For most of the year, I’ve kept to a pretty solid schedule with my swimming and hydrotherapy and then, halfway through the year, I met with an amazing physiotherapist and have been pretty consistently working at that too. Having now worked with both a hydrotherapist and physiotherapist who really understand hEDS, I can say with absolute confidence that it is a completely different experience; I’ve worked with good people before but that lack of understanding has always been a major obstacle and I’d find myself burning out and giving up. I’ve always loved to swim but I’ve found that I can really love hydrotherapy and physiotherapy (although I have had some periods of pain so bad that I had to take a break until it faded). We’ve found two really lovely pools to swim in, which makes it even more enjoyable, and I’ve made some real physical improvements. That’s been kind of mind blowing – to actually see that happen. And to the point where I was able to swim 5km for Mind! But more on that in a minute.

Izzy – I still can’t quite believe that I got a puppy this year, that I actually have a puppy now. That’s definitely not something I expected at the beginning of the year; it was probably the last thing I expected. But here we are and I’m madly in love with her. Izzy is a golden Pomchi (half Pomeranian half Chihuahua) and she’s utterly gorgeous: she’s soft and warm and snuggly and amazingly smart. The bond we’re building is already so strong and so special and that means so much to me, even though it’s kicked up some hard stuff. But I want nothing more to love and protect her and she seems to feel the same, guarding me at almost all times and trying to lick away my tears when I’m sad and looking to me when she’s distressed. My relationship with Lucky was incredibly special and always will be but, just as I learned after my first cat was put too sleep and we then got Lucy, I can love another animal and not feeling like the new relationship is replacing the old one. This relationship is new and special in its own ways and I feel lucky and honoured to have a puppy to pour all of that love into.

Getting to fundraise for Mind – Getting to fundraise for Mind felt really, really special, not just because we managed to raise so much more money than I’d expected (over £600 compared to my goal of £200) which was amazing, but because I was finally physically capable of doing it. I swam 5km for Mind, 1km a night over seven nights, partly due to managing my hEDS and partly do the logistics of pool time, but I was really proud of finding a way to make it work. I was exhausted and sore afterwards but it was absolutely worth it. I was so impressed and so touched by the generosity of everyone who donated it and I was so proud of myself for committing to it and competing it. I look forward to doing something similar at some point.

Spending my birthday with horses – My birthdays have been a source of stress for quite a long time now so I’ve taken to either ignoring it completely or trying to find something un-birthday-like but still special to do. And this year, I found myself going on a wellbeing course that centred around horses. I’ve always loved horses so, while the confidence building stuff was hard, it was so nice to spend time with these gorgeous animals again. It was a really cool, interesting way to spend the day.

The excellent books I’ve read this year – I worked really hard to get back into reading this year and I read a lot of really good books. The ones that have most moved and inspired me are Trista Mateer’s poetry, Blythe Baird’s poetry, The Anthropocene Reviewed by John Green, and Tomorrow and Tomorrow and Tomorrow by Gabrielle Zevin. All of these books had a really profound effect on me and they’ve all become so special, each a little piece of my personal creative and artistic mosaic. I don’t know why I picked them up when I did but I’m so thankful that I did.

A year of Duolingo – It’s hard to believe that I’ve now been learning Dutch for over a year. It’s hard to believe how far I’ve come. But I have and I have. It’s so strange to me: I hated learning languages at school but I’ve loved learning Dutch. There are plenty of obvious reasons for why I hated it at school but they’re not really worth dwelling on at this point but I had no idea when I started learning through Duolingo just how much I would love it, how restful I’d find it, how much fun I’d have. I had no idea that learning a language could be such an enjoyable experience – could be enjoyable at all – after my school experiences and it’s even inspired me to think about other languages. But one thing at a time. I love learning Dutch and I feel no need to change the way I’m currently doing things. I don’t know why I thought to download the app that day but I’m really glad I did and I’m proud of myself for opening it and practicing every day since.

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As I’ve repeatedly said, to call my feelings a mess is the understatement of the year. I was re-reading my post from last year and I don’t know if I can describe gratitude amidst depression and suicidal thoughts any better than I did then: “When I feel like this, like I’m drowning in my depression with these near constant suicidal thoughts, things to be grateful for feel like a double edged sword. Sometimes they’re things that make me feel like I can keep hanging on, even if just for a little bit longer, and sometimes they feel like weights tied to my ankles, keeping me here when I desperately don’t want to be and I have to admit I resent them for that. So it’s anything but simple. It’s good and bad and hard and confusing; I can feel differently, ten different times in a day sometimes. But these are the objectively good things in my life and I can recognise that. I wanted to honour them for that.”

A Week In My Life (September 2023)

Somehow, getting a puppy has made my life both more and less busy. I’m constantly on the move – following her around, chasing her, playing with her – but my life is quieter – she’s so young and still getting settled so I don’t want to leave her – so I may have found a somewhat unusual way of doing less, out in the world at least. Having her around means that my day-to-day life ricochets from full on and exhausting to quiet and chilled out. It’s been a bit of an adjustment but I think it has given me a chance to recoup a bit. A bit. I’m still trying to get a lot done – I don’t think my relationship with productivity is particularly healthy – but Izzy comes first, especially while she’s so young, so this period of time with all of this change has been more than a little disconcerting. Izzy is, of course, worth it; it’s just taking me a while to adjust.

The week in this post started on Thursday 14th September 2023 and ended on Wednesday 20th September 2023.


THURSDAY

Since the arrival of Izzy, I’ve been brutally forced to become a morning person, having previously slept in until after nine (usually due to staying up far too late – Revenge Bedtime Procrastination is my nemesis). But Izzy is an early bird and takes great pleasure in waking me up at six thirty and trust me, if you’ve never had a young puppy, you need to get up and sort them out; she’s still learning to use the puppy pad and a few extra minutes with your eyes closed is not worth the potential clean up.

So I dragged myself up, took her downstairs, and gave her breakfast. I managed to inhale some fruit salad (my current hyperfixation food – something I’ve never experienced before) while she ate and then put down the cat food, removing myself and Izzy so that they could eat in peace: Izzy has a bad habit of bouncing up to them with great but apparently terrifying enthusiasm, which has them running for the cat flap; she’s desperate to play with them but I think they interpret that playful behaviour as scary and unpredictable so the bonding is going pretty slowly (one of the cats, our matriarch, does put her firmly in her place though – one down, four to go). Upstairs, I played with Izzy for a bit, letting her burn off some energy and then did my Duolingo practice and physiotherapy exercises.

Mum had taken Lucy to the vet for a check up post a small surgery she had a few weeks ago and she came back with a clean bill of health. We released her and then raced out of the door, got in the car, and headed for the hospital for my hydrotherapy appointment. The drive gave me the chance to just sit and reply to the various messages that needed responses; I feel like my brain has been so full recently that it’s been hard to focus on smaller tasks, like messages and emails. Maybe it’s an ADHD or Autism thing; given how close I’ve felt to burnout over the last few months, it wouldn’t surprise me.

I was a little late for the appointment because we couldn’t find anywhere to park, disabled space or not, until the last possible second and then, when we got in, we discovered that the towel was still at home, hanging on the radiator after swimming the night before. Fortunately, they were prepared for that eventuality. But apart from those few mishaps, it was a really good session. The exercises I got about eighteen months ago – between finding the right pool to work in and waiting for the follow up appointment, it’s taken this long to get to this point – have become easy so the hydrotherapist suggested a few ways to increase the resistance. Between those and the physiotherapy exercises, I’m working pretty much my whole body so we added a series of core exercises, given that that area of the body is a real weakness for people with Hypermobile Ehlers-Danlos Syndrome; it made sense to be putting extra work into those muscles. We ran through each of them in turn and the hydrotherapist (the same one I’d worked with last time) said how impressed she was at how hard I’d clearly been working, how committed I’ve been (apparently it’s not uncommon for people to just do the exercises a few times and then, unsurprisingly, not progress). That meant a lot to me because I have been working really hard over the last year, even when I didn’t want to. I obviously didn’t do it for the praise but it was really nice to have the work recognised and acknowledged by someone who knows what they’re talking about. With the new exercises under my belt, I feel really good about the work I’ve done so far and really motivated to keep going.

Back home, Izzy was delighted to see me, which was very sweet; she was positively trembling with joy. I let her out of her crate (we are attempting to crate-train her and she’s taking to it fairly well) and we played with various toys for a while before I crashed on the sofa and accidentally fell asleep; between the hydrotherapy and chasing after Izzy, I was exhausted.

I slept for a couple of hours and then dragged myself up for some food and caught the train to London. Barely a week earlier, I’d joined an online creative workshop run by the arts organisation, Magical Women (run by and for neurodivergent women and non-binary individuals). The atmosphere was really positive, everyone was really nice and supportive, and I felt really included, despite it being my first session. After that workshop, I got an invitation to the private view of the founder’s new exhibition, Biodiversity of Sites and Sounds by Elinor Rowlands. I didn’t have much experience of the organisation and the people involved but they felt like a group I wanted to be a part of so I rearranged my plans and hopped on a train to London.

The gallery was gorgeous. I love more abstract styles and pieces of art. I love how they’re completely open to your interpretation: what they are, what they mean, and what they make you feel. I really liked Elinor’s work and ended up pouring over the postcards, trying to not just buy one of each canvas.

I met some really lovely people too and it felt like a really safe space with pretty much everyone in attendance being neurodivergent. That was a nice ratio for a change. I was a little disorientated, having gotten lost on the way, and so I was struggling a bit with how to join in the socialising but fortunately everyone was really friendly and I was quickly included in multiple discussions. It was really, really nice and if I hadn’t had to catch a train back home, I would’ve liked to have joined them all in the pub after, most us having stayed until the exhibition closed.

And that was when it all went wrong (and becomes blurry, as meltdown and almost-meltdown experiences often become afterwards). I was standing at the lift with the last group of people when I realised I didn’t have my leather jacket, my favourite jacket and the one that I wear everywhere; it’s a deeply important and confidence-boosting piece of clothing. I retraced my steps and when I still couldn’t find it, I searched the whole floor, getting increasingly more panicked. Given how late it was, there was no one around and my group of people had already left so there was no one to ask. I called my Mum, sobbing and hyperventilating, and she tried to calm me down enough to make a plan, but then I was locked out of the building and I was overwhelmed with the feeling that my jacket was gone forever: I could’ve left it somewhere inside or on a wall during one of the many moments I’d stopped to check my map app. I was frozen: I couldn’t think and I was struggling to talk; I couldn’t take deep breaths so the hyperventilating continued; I couldn’t move but I was shaking; I felt completely overwhelmed by every light and every sound and every movement, like a car or a motorbike or a person, startled me, feeling so sudden and completely unpredictable and like I couldn’t keep track of them all; I felt extremely vulnerable; and I felt so ridiculous and stupid (I remember calling myself ‘a fucking idiot’ over and over again, for losing the jacket and for caring about it so much in the first place). I had to wait ages for a bus back to the station and despite the amount of people, no seemed to notice my trembling or hiccuping sobs.

Somehow I managed to get back to the station and catch a train home. Between the lack of jacket and the exhaustion of the almost-but-not-quite-meltdown, I was desperately tired and quickly got cold. The journey felt very long but eventually we pulled into the station and Mum was waiting for me at the barrier, Izzy bundled up in her blanket like a little puppy burrito. Despite everything, the picture brought a smile to my face.

Back home and snuggled up on the sofa with Izzy, I continued my New Tricks rewatch (an old favourite – although there are moments that would never have been written now) for an episode or so before going to bed; I just needed some time to decompress (and get warm) before I tried to sleep.


FRIDAY

I struggled up early and sorted out Izzy: she’s doing so well that I can’t really complain but I’m finding the aggressive shift from ‘late sleeper’ to ‘early bird’ pretty tough. Anyway, as I said, Izzy was really good, eating all of her breakfast out of her bowl (rather than refusing anything but hand-feeding) and using the puppy-pad perfectly. She’s such a good girl and she’s so adorable and happy when we praise her: she’s so pleased with herself.

I had a quick shower and then headed out for a meeting with a mentor I have as part of an organisation dedicated to supporting autistic individuals post-education. For a number of reasons, we’ve been very slow to get started but now we’re finally meeting on a regular basis. She’s really nice and because she’s neurodivergent with a lot of the same health problems as me, she understands me in ways that a lot of people don’t. I’m still not sure about how the sessions are supposed to help but we’re still getting to know each other and I guess it will become clear in time. This doesn’t really feel like the time or place to discuss the sessions, if only because we’re still so early in the process, but there was one thing I wanted to note: we’ve changed rooms and in this new room, there’s carpet on the wall – presumably for soundproofing – but it looks like grass, dark green and shag-like pile, and I was instantly compelled to touch it. There was just something so pleasing about it and when Mum picked me up at the end, I… expressed my desire to have a similar set up. Very enthusiastically. I do need to soundproof my space better to improve my vocal recordings after all… She’s unconvinced.

Back home, I briefly caught up with two of my parents over FaceTime before having a lie down on the sofa, Izzy curled up with me. I was completely exhausted and the gentle, repetitive stroking of her soft puppy fur almost put me to sleep. I’d hoped to get some writing done before my friend, Dan, arrived but apparently I was just too tired. And Izzy is deeply distracting (which I’m sure she knows and relishes). But such is life. Izzy was delighted to see Dan and Dan was delighted to see Izzy; he really loves her and she really loves him. It’s very cute. They were instantly playing and it was very enjoyable to watch.

We’d had vague plans to continue our Fringe rewatch etc, but we literally ended up playing with Izzy and chatting. I’m not complaining though; it was really, really nice. Something that I love about our friendship is how we can just talk and talk about pretty much anything – from the newest odd facts we’ve learned to how our week has been to some of the deepest stuff possible – for hours and hours and while we can be deeply serious, we also laugh a lot. It’s really lovely and I’m so grateful for this relationship that we’ve built.

So it ended up being a very chilled out day. We dropped Dan off at the station early evening and then came home and stretched out in the living room. I was really tired but it was much too early to go to bed so Mum and I continued our New Tricks rewatch and I finally posted about Izzy on social media…

We had a particularly good fish and chips for dinner and although I tried to do some writing, I really didn’t achieve much. I couldn’t concentrate and I just couldn’t get comfortable; it certainly doesn’t help that the desk I use when sitting on the sofa has all but collapsed and basically pins me to the sofa. I need to get a new one but I haven’t found any that have adjustable legs, which is kind of key in my experience. Hopefully one will pop up in my searches soon.

Izzy did interrupt the peace of the evening when she swiped the kitchen roll off the sofa and proceeded to unroll it all over the carpet. It was very funny – she was clearly having an absolute ball – but it took ages to persuade her to let go and tidy it all up. Again, I can’t really complain: it was so cute and Izzy is so excitable and, on the whole, it wasn’t a huge hassle. It’s hard not to be touched by her innocent wonder and pure excitement about the world. Everything is fun; everything is an adventure or a game.

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She had a good ten minutes of zoomies, which is always very funny and very adorable. Having said that, it did then devolve into barking and nipping, which I was not pleased with, and I don’t enjoy telling her off, even though I know it’s what she needs to understand what she can and can’t do. I got ready for bed, letting her run and run and run – hopefully burning off the last of her energy (it’s not long until we can take her outside and to the park, thank goodness). I was in bed and finishing the last of my diary notes when she finally calmed down and came to me, asking to be lifted onto the bed. She wandered around for a little bit and then stretched out across my legs, falling sleep. Little weirdo. It looked so uncomfortable but she seemed perfectly content. Having her there was very comforting: I was feeling very overwhelmed and unprepared for everything coming up and her heartbeat, her breathing, and her warmth were very soothing. It didn’t solve anything – that would be a pretty big ask – but I did feel a little less panicked for her presence.


SATURDAY

Izzy got me up early, as is my new normal, and then we settled into the living room, where I threw toys for her for a little while. Then I got my new blog post up (Introducing Izzy!) and then had a shower and got dressed before taking Izzy out to the vet for her first vaccine. She handled it really well. The vet also advised that she get her microchip – in case she rushed out or got loose between the house and the car, for example – so we did that too. She wriggled a bit at that but it was a really big needle; it must’ve hurt! But she got lots of treats and attention and it wasn’t long before she’d recovered. They also weighed her and she’s only 1.4kg! She’s tiny! And with that, we headed out, buying her a new toy on our way: a dragon that may or may not be bigger than her.

Back home, I did some admin work, including posting about my upcoming gig, which I’m really excited about…

After a couple of hours, I had to stop and have a nap. I’m so tired at the moment that a middle-of-the-day nap is pretty vital in order to stay functional and, to be honest, I’ve been so tired that I don’t really have a choice in the matter. I can struggle to stay awake longer, not getting very much done, or I can surrender to sleep and hopefully wake up with a bit more energy to keep going. This started with Izzy’s arrival and I think the early mornings (and lack of change around going to bed late) has been catching up with me. I guess it’s fortunate that my life is generally flexible enough to accommodate that adjustment.

I spent the afternoon working on blog posts and then had an early dinner before signing in to the new Amanda Tapping livestream through The Companion – I’d like to write it up like I did the last one, but this post isn’t the place for that. It was as lovely an experience as it was last time: Amanda is such a warm, open person and such an engaging speaker, able to move seamlessly between funny and thoughtful. But most of all, she’s so honest and talks about really vulnerable moments and feelings, sharing them with such trust; it’s hard not to feel honoured and even a bit overwhelmed by that. The relationship she has managed to cultivate with her fans – over decades and through multiple different projects – feels so special and so sacred, one that she holds as much reverence for as we do. She and the host, Rebecca, talked for a while, about mental health and self care, Amanda sharing the story of her daughter leaving for university and her emotions around that, how much letting her friends be there for her has helped both her mental health and their friendships. She talked about crying a lot, mostly in positive terms, and how helpful it can be. But the thing she talked about that hit me hardest, that resonated most, was when she talked about self worth: she talked about how low her self worth had become and how she hadn’t felt worthy of taking care of herself, that she had had to work really hard to feel worthy of self care again. That made me very emotional: I hate the thought of her feeling like that but, again, I felt somewhat overwhelmed by the fact that she was sharing that experience with us. I feel very lucky to have found her all those years ago, to have such an amazing person to look up to.

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Then, in response to questions from people watching, she talked about various topics, including how she’s struggled with guilt as a mother, how she would – and sometimes still does – talk to her Mum as if they were talking on the phone when she misses her (she died in 2021), and how she practices self care. And then they were having to wrap things up. It went by so fast, everyone agreed – Amanda, Rebecca, and multiple people in the chat. But it was really lovely and really special and they’re planning to do another one soon-ish.

Having met Amanda pretty recently at London Film & Comic Con and having felt so buoyed by the experience, I couldn’t resist getting a meet and greet for after the livestream; the money was going to charity after all. So, after the livestream ended, everyone with a meet and greet (a short Zoom call with Amanda in groups of four) logged into Zoom to chat until our time slots. I’ve never done anything like that and I didn’t know how to make it work and I was starting to get really panicked about not being able to get into the call when I finally figured it out; once in, I had to just sit for a little while, trying to calm down and compose myself. I hadn’t known what to expect but (fortunately for my anxiety levels) it was really nice, everyone chatting and holding various pets up to the camera; there was something so communal and easy about it, all of us connected through our shared love of Amanda and her work. But then suddenly it was my group’s turn and I was overwhelmed by anxiety again. I didn’t know how it would work with four people, especially with so little time, and I didn’t want to ‘waste’ my opportunity to talk with her. I have such respect for her and she means so much to me that I really didn’t want to make a fool of myself or just say something completely forgettable. But fortunately, she always makes it so easy to be open, even though I was feeling so anxious and fragile; it’s the same on screen as it is in person. And having Izzy in my arms was both good for my anxiety and as a conversation starter: Amanda and I joked about the extremes of our dog owner experience, Amanda’s dog being a huge Bouvier mix and Izzy being a tiny Pomchi (Riley was apparently about 8.5kg at 8 weeks while Izzy was barely 1kg at the same age and likely won’t get bigger than 5.5kg). Very different experiences. We did talk about more than our dogs but I’m still turning the rest over in my mind. I don’t know how she does it but she manages to get everything else to fade away, making it so easy to talk to her, and it always feels like you have her complete attention, which is a bit overwhelming but also so moving and special. And then, all of a sudden, it was the next group’s turn. I knew the meet and greets weren’t long but it was pretty jarring, especially given the time it had taken me to get settled. But it doesn’t matter; I’m really grateful for the experience.

I have such intense anxiety when doing things like this that my adrenaline is sky high during the event and for a while after before crashing spectacularly. And even before that happened, I was exhausted. So I tried to be sensible and, instead of trying to keep working, I had some chill time in front of the TV and had a little scroll through social media. Having drastically reduced my time on it, I actually enjoy it more now, for the most part.

Given how tired I was, I actually went to bed fairly early – for me, at least. Izzy was clearly having her nighttime zoomies and, no matter what I did, she couldn’t seem to stop running circuits around the living room. It’s very cute and very funny – she seemed to be having a ball, pun kind of intended – so I left her to it and got ready for bed by myself. It wasn’t long until she joined me and snuggled up as close as she could get, another adorable habit of hers. Soft and warm, she’s lovely to cuddle up with.

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Unfortunately, I couldn’t sleep and was still awake at two. I took a break from trying to sleep for a while, looking up poetry and writing challenges online for inspiration, and then eventually managed to drift off, dreading the early start.


SUNDAY

Izzy clearly hadn’t noticed my nighttime restlessness and was licking me awake just after seven. I struggled up and got her sorted with breakfast and a new puppy pad before we settled in the living room. We played for a while – she picked up ‘fetch’ so incredibly fast – and then she curled up for a snooze while I did my physio and Duolingo and other daily tasks before getting down to writing for a bit.

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Me and Izzy spent most of the day like that, taking breaks for meals and playtime. It was a nice quiet day, which I appreciated after the short night.

Late-afternoon-early-evening, I headed to the pool for a swim. Without too much effort, I managed to swim a kilometre – the longest I’ve swum in years – and do the hydrotherapy exercises that are possible in that pool. That was really invigorating and I was really proud of myself, especially for the kilometre: it’s really clear evidence of how hard I’ve been working over the last eighteen months and what a difference that work has made. So, similarly to how I felt after the hydrotherapy appointment, I feel really good about what I’ve done so far and really motivated to keep going.

Izzy was practically vibrating with joy when we got in and I released her from a crate. She’s so funny: she does actually like it and often takes herself off to sleep in there but god forbid someone shuts her in. She gave me and then Mum a hero’s welcome – which is more than a little bit ridiculous but I’m always happy to cuddle with her – before busying herself with one of her toys and I settled down on the sofa again. I put on The Lincoln Lawyer – what a lovely show it is and one of my favourite background noise soundtracks – and did some more blog writing before spending the rest of my evening practicing for my show on Wednesday. I know I’m practicing more songs than I need but there are just so many that I want to play; I’m going to have to make some very reluctant editing of my setlist at some point.

I went to bed feeling exhausted and sore: my knee was hurting after the swim and I was somewhat concerned I’d been a bit overenthusiastic when doing my hydro exercises. My tailbone was also hurting, which is apparently a very common problem with hEDS (the gift that keeps on giving, she says sarcastically). So I took some painkillers and went to bed, feeling less than optimistic about the night ahead. Both of those pain issues have been known to wake me up throughout the night.


MONDAY

As predicated, I slept badly, the pain in my tailbone or one of my knees waking me up every time I moved or rolled over. It was miserable: trying to get back to sleep each time was miserable and waking up completely exhausted in the morning was miserable. The only not-miserable thing about it was that I woke up before Izzy and managed to get some snuggles in while she was still warm and soft and floppy; those moments with her are especially lovely.

Mum was up early and offered to do ‘the morning shift’ and I accidentally went back to sleep, getting another three hours or so, which I definitely appreciated. Izzy greeted me with great enthusiasm when I managed to get up, still sore, and tried to help me with my physio exercises (reduced due to the pain), which – unsurprisingly – wasn’t particularly helpful. But it is always very cute. Then, after some breakfast for me, we snuggled up together while I caught up on some emails and messages. Izzy was getting sleepy, ready for her mid-morning nap, and was beyond adorable, curled up at my elbow. It was very tempting to just abandon my to-do list and cuddle up with her. It wouldn’t be the first time. But I resisted the urge and actually got some work done.

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When I reached a good stopping point, I went to have a shower, sticking my head into my Mum’s room as I passed. Four of the five cats were curled up on Mum’s bed. They love the waffle of my Mum’s duvet but I’m pretty sure the biggest draw is that it’s one of the few comfy places that Izzy can’t reach and so they can chill out undisturbed. I know it’s a process and that they will all get used to each other but I do miss them since Izzy is currently glued to me and they’re avoiding her. I’m also struggling with the fact that she’s obviously creating stress in their otherwise blissfully stress-free lives, the result of a decision I made. I know that it’s super early – too early – to be stressing about whether they’ll ever get along but I can’t help it. I’m trying not to but it still creeps in.

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Back in the living room, I logged into Zoom to attend a writing workshop, one of a series that I’ve been really enjoying lately. My absolute favourite workshop series ended a while back and I’m waiting for their next project to start but this one is really great too; it’s probably my second favourite of the ones I’ve done, certainly as a series of workshops (I’ve done some fun one off ones as well). These ones have more specific prompts but, if your writing wanders off in an unexpected direction that you’re really excited about, you’re encouraged to just go with it and see where it takes you. The overall prompt for this workshop was ‘door,’ which then became more specific after the opening exercises and free-writing. An idea came to me very quickly and the words just flowed so I just let the story happen. I feel like I’ve said this in another post recently but, as much as I love and feel connected to songwriting, I’ve been really enjoying dipping my toes in the fiction pond again.

When that finished, I had some lunch in front of The Lincoln Lawyer before moving to the piano. I spent several hours reworking an old song; everyone loves it and I do too but I just don’t think it’s saying what I want to say quite as well as it could. So I worked on refining it, making each line count and tie into the overall metaphor. I wrote the first draft several years ago now and I know I’m a better songwriter now; I’m confident that I can turn it into a stronger song.

My uni was hosting a songwriters’ circle that evening and although I really wanted to go – several people I really liked were playing – I just didn’t think I had it in me to go up to London again before the show on Wednesday; I needed to conserve my energy and chances were that the train journeys would trigger pain that I wouldn’t have recovered from in time. So I grudgingly gave up on that plan and stayed home, practicing my songs, eating dinner in front of Hijack with Mum, and snuggling with Izzy. She’d been quite hyper and destructive during the evening but when she finally calmed down, she was warm and soft and floppy in my arms. It was very cute and I couldn’t help laughing at the silly faces she made in her sleep…

I tried to get to bed while she was still sleepy but it didn’t work. She got the zoomies (plus she was biting a lot, which was exhausting) so I left her to it and did some diary writing while I waited for her to run out of energy and settle down for bed.


TUESDAY

I kept waking up throughout the night, my tailbone hurting every time I turned over. Every time, Izzy was snuggled up as close as possible, pressed into my neck, which was very cute. When I woke up for the final time, a little before my eight thirty alarm, she was still asleep and I was able to pull her into a sleepy cuddle, which was just too adorable for words. It was definitely a good way to start the day.

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When Izzy woke up properly, we went downstairs as per our morning routine. Then I did some blog writing before having a shower and some breakfast. I had a physiotherapy session at twelve and we went through my current exercises, cutting some, adjusting others, and adding new ones. My physiotherapist is great and really understands hypermobility, which is so helpful; that knowledge makes for a much more productive and motivating experience.

When I got home, I found two of the cats – Sooty and Tiger – curled up together on a chair. I swear they were giving me some serious side-eye over Izzy. While I do feel bad about the stress she causes them, they do seem to have bonded more closely since she arrived, which is really lovely to see: they hang out together, they snuggle up together, they back each other up when Izzy appears, they check in with each other… It is really sweet. Hopefully things will settle and we’ll find a new normal soon.

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I went to the pool mid afternoon and did my hydro exercises as well as managing a bit of a swim. I had a bit of a break when I got home, watching a film (Luckiest Girl Alive – I didn’t love it but I thought the performances from Mila Kunis and Chiara Aurelia were really good) and doing some blog post writing. Then, after an early dinner, I spent several hours practicing for the show and deciding which songs to play, which to hold in case there was time, and which to cut. I didn’t end up going to bed until after one; I’m very glad we don’t have neighbours on that side right now. But even that late, I couldn’t sleep; I think I eventually drifted off around three.


WEDNESDAY

Thank god for my Mum. She sorted out Izzy and let me sleep in (I’d texted her to let her know how much of a struggle it was to get to sleep and that it was making me anxious about managing the day and the gig) so that I would have enough energy for what was going to be a fairly strenuous day. I managed to sleep until almost eleven – which is unheard of these days – and I felt pretty good when I got up. I did some social media stuff and my morning habits and so on, trying to stay relaxed about getting to London and playing the gig – I was mostly excited but it’s also been a while since I’ve done a long set at a gig so I was nervous too. Finding the cats snuggled up together and having some time with them was a nice little break from everything….

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I spent most of the day alternating between practicing and playing with Izzy. And sometimes I did both at the same time…

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She’s so adorable in her confusion over musical instruments.

And I got ready, of course. I had a shower and did my hair and make up. Getting dressed was not as straightforward though: the outfit that I’d decided on suddenly felt wrong and I got very upset, feeling fat and ugly and unfit to be perceived by anyone. I tried various different outfits and different combinations but the damage was already done and it took more energy than I thought I had not to crawl under my duvet and never come out, to get dressed anyway, and leave the house. It was horrible and it wasn’t a bad thing that I had a long drive in which to wall off all of those thoughts. For the night at least.

The drive was long and slow. It had been pouring with rain for most of the day and it just kept raining and raining and raining. It slowed us down on the motorway and caused heavy traffic when we finally got into London. Door to door, it took over three hours – much longer than usual – and even with the buffer we’d built in, I was late for my soundcheck. Fortunately Luce, organiser of the event and my very good friend, had everything under control and made it work (she was a lot calmer than I was when I finally arrived). I got a quick soundcheck in and then people started filtering in. Given how horrendous the weather was, I wasn’t sure how many people would show up but I was almost overwhelmed with joy when so many friends, family, and family friends came. Having some of my closest friends there, including one friend who was moving abroad in mere days, made it so special; I cannot articulate how much it meant to me.

Cora played the first set and it was really cool to see her perform again, to hear the growth in her songwriting, having not seen her play for a couple of years (the last time was, somewhat bizarrely, a show where we were both on the same bill as well). Her songs are beautiful but there was one in particular that I just fell in love with; Cora hasn’t shared it yet and it’s her story to tell so I won’t spoil it but should she release it, I’ll be sharing it everywhere because it was absolutely stunning.

The show went really well and it was so, so special. I’d spent a lot of time thinking about the songs I was going to play and ended up with a mix of old favourites and new ones that I’m really excited about. I got to play the piano for one of them and we even had a fun little sing-a-long at the end, which was so lovely. It felt so, so good to perform again, especially with such an engaged and receptive audience.

Luce was a great host and we had some great conversations about the songs, the writing process, the inspiration, songwriting in general, and so on. I always love to talk about songwriting but I feel like our discussions between songs were really rich and we found ourselves in really interesting places – likely due to our friendship, the long conversations we’ve had, and the stories (both joyful and difficult) that we’ve shared with each other. It doesn’t feel like a stretch to say that much of the audience listening felt the same way, given the vulnerable and touching comments in the review notebook.

You can probably tell from this video how much I love talking about songwriting, as I said a moment ago…

It was over much too quickly and I lingered for a while, packing up and talking to people and hugging friends and family goodbye. But eventually I had to accept that the night was over and that it was time to go home, especially since my Mum was ever so kindly driving me home; it wouldn’t have been fair to make her wait any longer. So we piled into the car and headed home. I had promised to keep her entertained in the car but the adrenaline crash hit me pretty quickly and we’d barely gotten onto the motorway when I fell asleep. I woke up as we drove into Brighton and dragged myself into the house; Izzy was delighted to see us, which was very sweet. I barely had the energy to get my make up off before crawling into bed, Izzy curled up beside me.


What a week… There were some really intense highs and really intense lows and I’m completely and utterly exhausted. I’m going to need some quiet time now, just to decompress and recharge my emotional and social batteries, let alone my physical one (not that that ever seems to charge properly).

NOTE: Considering the dates of this week, I know I’m very late in posting this. I’ve just had no energy and getting it finished and tidied up for posting seemed to take forever. But it has several moments that I really wanted documented, the good and the bad: the good being the Amanda Tapping livestream and playing such a lovely show; the bad being the meltdown and the body image stuff; as well as the normal of living with pain and managing hEDS with hydrotherapy and physiotherapy. So I wanted to get it finished and posted and I’m very glad to have finally managed that.