Posted on June 21, 2025
This post is so very late (and believe me, there are posts that are even later than this…) but with the brain fog and chronic fatigue and everything going on over the last eighteen months and change, I never managed to finish it. Until now. I have finally finished it. There are multiple posts over the last couple of years that I have abandoned because I was struggling to finish them and after a while, they didn’t feel relevant anymore. But this trip was so special and brought me so much joy that I wanted to finish and post it, especially since I’m not sure when I’ll be back…
I don’t think I planned this trip particularly well, if I’m completely honest. I ended up with far too much time at the beginning of the trip – when I was really struggling with being away from home and away from Izzy – with not enough to do and then the end was very chaotic, trying to get as many things done as possible before I had to go. So it wasn’t ideal, for my anxiety or my energy levels.
Originally, I’d planned to arrive later and stay later but I’d shifted the trip when I learned that Song Suffragettes was celebrating their ten year anniversary. I’ve only played one Song Suffragettes show myself but I’ve been to many shows over the years, in person and online, and met some amazing people through it so I thought it would be fun to go and celebrate with them; the previous anniversary shows had been a lot of fun with amazing songwriters and special guests. But a couple of weeks after I’d bought the tickets and changed my flight, my friend and one of the original Song Suffragettes, Kalie Shorr, shared her feelings about the event and the organisation on Twitter:
“got an email with a discount code to buy tickets the Song Suffragettes 10 year anniversary show, even though I spent 8 years helping build it and played 300+ (unpaid) shows […] I’ve stayed silent long enough, and I just don’t care anymore. I gave so much of my time, cared so deeply, and have been completely written out of the history even though I had played since the very first show they ever had.”
I was – and still am – appalled at how they’ve treated her and, I imagine, many other young women. I feel especially bad for Kalie (and the other original/early Song Suffragettes who put in so much unpaid work to get this organisation off the ground and build its core fanbase) who had put so much work and time and love into Song Suffragettes for so long. Her photos were still being used (although they’ve since been taken off the website) and videos of her performances are still on their YouTube channel, promoting their shows (one of her videos is their most popular video by far – over a million views compared to less than two hundred thousand) and yet her vital part in their story has been deliberately omitted. The event (and, of course, the whole organisation) was instantly soured and I spent a long time deciding what to do, whether to go to the event or not. In a perfect world, I wouldn’t have gone but having bought the tickets and rescheduled my flight to go, I felt that I couldn’t just skip it. And part of me was curious to see how they’d handle the event. So I decided that I would go and then personally (and publicly) say goodbye to the organisation.
My Mum and I flew out to Nashville early in the morning after a long day recording drums for the EP that I’m now, in 2025, in the middle of promoting and releasing. I was exhausted and I hate flying – I find it to be a sensory nightmare – but we got there safe and sound and settled into our accommodation. The Song Suffragettes show was the next night and I immediately noticed how different the vibe was from the previous anniversary shows I’d been able to attend. I feel confident in my assumption that the majority of attendees were there to see the ‘special guest,’ Wynonna Judd. I don’t emphasise the term special guest to undermine the impact Wynonna Judd has had on the music industry: she is a very impressive guest but rather than rounds of Song Suffragettes with a special guest or two, as had been the case at previous anniversary shows, this show was basically all special guests. They’d invited Liz Rose, Laura Veltz, Maddie & Tae, and Tenille Arts to name just a few; there were very few actual Song Suffragettes and no mention of the original and early performers who had worked so incredibly hard to make Song Suffragettes what it is today. That pissed me off. What was supposed to be a celebration of the organisation, ten years of achievements, and the women who’ve performed on their stages felt like it had very little to do with any of those things. It felt like a Wynonna Judd tribute night with the actual Wynonna Judd headlining, plus what I found to be a pretty uncomfortable amount of fawning over Todd Cassetty, the founder of Song Suffragettes. (I have more thoughts about that and about Song Suffragettes but that’s not the point of this post.)
The tenth anniversary celebration of @songsuffragettes was packed full of incredible female songwriters and artists 💛 The performances were amazing and I’m grateful to have been given the opportunity to see these women play live but I was more than a little sad not to see more of a nod to the organisation’s history and the women who were and still are so fundamental to what it has become. I would’ve loved to see more of these women, such as the brilliant @kalieshorr, at least mentioned for the amount of passion and work they’ve put into the shows over the years. My best wishes to Song Suffragettes and to every individual Song Suffragette – here’s to another decade of successes 💛💛💛 (x)
I struggled with how to caption my post about the event – how to acknowledge what it has given me and a lot of young women, how to share my disappointment in how the original members (particularly Kalie – yes, I keep mentioning her but she’s a friend so, of course, I’m going to be firmly in her corner) had been treated, and how to say goodbye to Song Suffragettes, even if that part was just for me). This was what I came up with. I wasn’t completely sure about it but felt it was the best my jetlagged brain could come up with. Apparently it was good enough though, since Kalie shared it on Instagram with her thanks for calling out the rewriting of Song Suffragettes’ history; that reassured me of my desire to say something publicly.
Had that been a more positive experience, I think I would’ve felt (and functioned) better during the less structured days before the festival and my various plans started. My mental health had already been in a downward spiral before I left and that unallocated time only made it worse: my depression and anxiety were really awful and I had multiple very distressing meltdowns. I also found it much harder to adjust than I have in the past: my sensory difficulties, for example, were much worse than usual and the differences between home and Nashville felt so amplified that I felt constantly overwhelmed and exhausted. By the end of the trip, I was so overstimulated by the BEDSHEETS that I was sleeping on the sofa (which wasn’t much better, to be honest – another night and I probably would’ve been sleeping on the floor).
But having said all of that, I’d been so busy in the weeks leading up to the flight out – meetings, meltdowns, concerts, therapy, migraines, recording sessions, and more – that it was probably good to have some recovery time before jumping into Tin Pan South and all of my other plans. My Mum and I spent the days resting and doing some of our favourite Nashville things, all of which were wonderfully gentle and joyful…
(Left: Chocolate Sin pancakes and hash browns at The Pancake Pantry // Middle: me, making my candle // Right: the chocolate brownie at The Commodore Grille)
I also did some gentle songwriting: I didn’t push myself too hard though; it was just for fun and decompression and continuing to work out my feelings about the still very recent, very traumatic ending of my time at therapy. I spent a lot of my ‘rest time’ (the irony of this does not escape me – I’m also very aware of how reflective of my resting skills this is) writing up what had happened for a blog post, getting the experience out of my system and into a format that made it feel (a little bit) easier to engage with. I also managed to sign into one of my favourite poetry group’s workshops and ended up writing a poem so raw that I wasn’t actually able to read it aloud during the sharing section at the end of the session. So my feelings were all very close to the surface; I felt really vulnerable, emotionally, which in some ways made the difficult feelings of the trip harder but it also felt like I was really open and receptive to all of the positive ones. It was messy but, given the super special moments of the trip, I wouldn’t change a thing (I mean, I always wish I could see more of my favourite people but I feel incredibly grateful to have gotten the time that I did).
The other non-music part of the trip that I still think about with great fondness were the multiple storms we got to experience. I’m sure some people will read that with confusion and/or bemusement but I LOVE thunderstorms: I love the change in air pressure; I love the colours of the clouds and peaks at the sky; I love the power of the thunder and the lightning, both such tremendous, breath-taking forces of nature; and I love the heavy, wet rain. While it’s a joke as old as time that English weather is made up of rain, rain, and more rain, the rain in Nashville is nothing like English rain. The rain where I live is mostly just annoying but the storms in Nashville (and I mean storms, not tornados) make me feel so amazingly alive and like my body could explode with joy. Each time the skies opened, I went sprinting outside; I felt a boost in my mood and mental health/stability every time I felt a storm brewing.
(Left: Me in the rain // Right: Me in the torrential rain)
I also got to hang out and catch up with Caylan, my oldest friend in Nashville: we met on my first full day in Nashville, during my first visit in 2016, and we’ve been friends ever since. She’s truly lovely (with a very cute dog that I’ve watched grow from a little pup) and an amazing singer and songwriter. It was actually during that first trip that we wrote the first draft of a song on my upcoming EP, as well as a song that I cannot wait to release someday. We got to catch up with each other’s lives, enthuse about each other’s music, and even fit in a trip to Pancake Pantry together; it’s always such a joy to see her.
For the first time in all of my trips to Nashville, I didn’t actually attend many Tin Pan South shows. That had been my plan but then, before the schedule was announced, I found out that one of friends, Candi Carpenter, was releasing their debut album during that week and would be having a release show and party. The fact that, somehow, I was actually going to be in Nashville when that happened felt like a gift from the universe and there was no way I was going to miss that. And then, not long after, I found out that one of my other friends, Kalie (who I mentioned above and through whom I’d met Candi) would be flying into Nashville for Candi’s show and would also be playing a writers’ round while in town. I wasn’t going to miss that either. As much as I love Tin Pin South, getting the rare chance to see my incredible friends perform was always going to be my priority.
The actual week of Tin Pan South was incredibly busy and incredibly stressful, trying to organise everything and make sure I’d be able to be everywhere I needed to be when I needed to be there; it was a logistical headache but it was worth it since I got to see everybody I’d hoped to see. First up was Kalie’s songwriters’ round. There were multiple rounds and a lot of really great songwriters and artists but Kalie is so unique: her journey, her career, her lyrical voice, the stories she tells… She really stood out; she always does (and I think that’s why she and Candi write together so well and made such great co-headline acts on tour – because they’re both so unlike anyone else and embrace that so intentionally). The first song she played was called ‘Man In Your Songs.’ She’s posted snippets of it on social media so it was really cool to finally hear the whole song. Next was ‘Running At Night,’ which she’s been playing a lot lately on social media and on livestreams; I think she’d recently finished it and was really proud of it (and rightly so). She announced that she was officially working on her second album; her debut, Open Book, remains one of my all time favourite albums and the unreleased stuff she’s been sharing has been so good so that’s very exciting news! Her final song was ‘Dirty Movies,’ which I’d actually heard before, when she’d played at Bush Hall in London on the Song Suffragettes UK Tour in October 2022. It’s more explicit than the music she’s already released and she’s definitely testing boundaries that she was held to previously, both by being signed and by being known as a Country artist. There were a few lyrics that were a bit too explicit for me but regardless of that, it’s still a very cleverly written song. I don’t think that three songs can an album reflect, especially so early in the process, but the growth and evolution in both her writing and the emotional concepts of the songs are obvious. As I said, I will always love Open Book but her second album is no doubt going to be just as bold and unique and visceral.
It was such a treat to see her perform (one day I will see her perform her show, goddamn it) and we even got to hug and catch up briefly afterwards, which was lovely. We were also able to hang out – and fangirl – together at Candi’s release show and afterparty, as well as managing to slot in a coffee and a catch up before I flew home and Kalie, a few days later, flew back to Nashville.
(Kalie Shorr performing at Live Oak, Music Row)
The following night was Candi’s release show and party for Demonology. The album had come out earlier in the week and I’d had it on repeat; it’s an incredible album. Back in June 2023, Candi had released Demonology – Part 1 as an EP and so I’d been expecting (and semi-patiently waiting for) a Part 2 EP but then Candi announced that the project was being released as a full album so that was very exciting! The ‘new’ songs are fantastic and fit so well with the ‘old’ songs; it’s an album that really feels like a tapestry that Candi has carefully woven to give the listener a full and intricately detailed glimpse into their life. It’s a really beautiful album with songs that span the emotional spectrum, from gut-wrenching anger and grief and vulnerability to joyful silliness, to biting self-awareness, and existential relief. I love every single song on it but I think my absolute favourites have to be ‘Exorcist,’ ‘Antisocial Butterfly,’ ‘Skinny,’ ‘Serial Killer,’ ‘Nervous System,’ ‘Back From the Dead,’ and ‘Memento Mori.’ That’s more than half of the album and even that was hard to narrow down… Listen to it: you won’t be disappointed.
For the show, there was the fun challenge of dressing up as one of the tracks but since the album didn’t come out until I was already in Nashville and I do not love shopping there, plus I had suitcase space to consider, I had to go minimal: I found a T-shirt online that said ‘ALL OF MY SYSTEMS ARE NERVOUS’ as an homage to ‘Nervous System,’ and that was good enough for me. But there were some super creative costumes – the album is (incidentally or intentionally) full of excellent imagery to take inspiration from. Having got lost on the way to the venue, the space was absolutely packed and the support act, Mel Bryant & the Mercy Makers, were already on. Candi was right there at the entrance and the chaotic crowd around them was somewhere between a meet and greet and a friends and family reunion; it was a lovely vibe. As soon as they saw me, they swept me into a huge hug and we were joyfully rambling at each other about the album and how excited we were. We also took lots of pictures and Candi signed the album poster I bought with the loveliest message (getting it home safely was a challenge but we managed it). It was a super emotional night and that was just the beginning.
I had to wedge myself in along a wall to fit into the main venue – I literally couldn’t crouch down to pick up my drink from the floor, space was that tight. But even though I’d missed part of their set, Mel Bryant & the Mercy Makers were awesome and I am now a dedicated follower. Mel has an incredible voice, the whole band had such a gorgeous sound, and I just fell in love with the songs: the melodies were stunning and super catchy and the lyrics were so vivid and poignant. My favourite was ‘Wildflower’ and I downloaded the rest of their music as soon as I got home that night.
(Left: Mel Bryant & the Mercy Makers, opening for Candi Carpenter’s Demonology Release Show at The Basement // Right: Candi Carpenter performing at their Demonology Release Show at The Basement)
Candi was incredible. Given the chaos and stress of release week, I wouldn’t have been overly surprised if the show had been a little rough around the edges but oh my god, it was fantastic. I can honestly say that it was probably the best live show I’ve ever seen and I still stand by that, having seen The ERAS Tour (although, of course, they’re very different animals). But the show was just SO GOOD: Candi, joined by Amanda McCoy on electric guitar and backing vocals (plus Kalie on the backing vocals for ‘Cult’ as well, one of the songs that she cowrote), is an amazing performer, with the perfect amounts of seasoned professional and emotional human being (they were trying not to cry after just the first song, as were many of us, I think – I certainly was); the songs were even more powerful live; not unlike the visualiser for ‘Strawberry Starburst,’ the performance featured a dancing pink Power Ranger who threw strawberry starburst sweets into the audience, which was hilarious; everyone knew all of the words and was singing (and sometimes screaming) along so loudly and I had great fun fangirling over Candi with Kalie (it is, after all, not that often that we are all in the same location and able to do that); everyone knowing the words to the bridge of ‘Nervous System’ (if you know, you know), which momentarily blew Candi’s mind; the lovely onstage chemistry between Candi and Amanda and the super special connection in the room, like we were all connected, to Candi and to each other; the emotional exorcism of screaming ‘Nervous System’ with joy to ‘Back From the Dead’ with fury to ‘Everybody Goes to Hell’ with peace; ‘Memento Mori’ was the perfect finale, the final lyric of the show being “I don’t wanna be another sad story.” It was just incredible and I think I went through every emotion at one point or another; it was so fucking special. By the end, Candi was so overwhelmed and emotional – in the best way – that they let themselves just collapse on the ground and lie there for a moment before getting up to address everyone one more time; then practically the whole crowd descended to hug them but we had to pack up and get out so the late show could start. A big group of us headed over to The Countrypolitan for the afterparty, which was more of a social gathering than a traditional afterparty: we got to chat (someone of us having never met in real life and only ever talked online) and hang out and hype Candi whenever they were in earshot… It was all just so joyful. I got to see a bit more of Kalie, which was really nice, given how rarely I get to see her, and I met so many lovely people.
(Left: Candi Carpenter performing at their Demonology Release Show at The Basement // Right: Candi and I at the afterparty at The Countrypolitan)
As the space cleared out, we spread out and Candi ended up playing a few more songs acoustically, including ‘Skinny’ and a stunning cover of ‘Hallelujah.’ They were such moving performances that I was welling up all over again. I’ve said it before and I’ll say it again: Candi is such a special human being and I feel so lucky to have met them and to have them as a friend. Writing about this show is making me emotional all over again. Excuse me while I go and watch the video I made of some of my favourite moments…
I actually got to see Candi play live AGAIN before I left, which was awesome; they texted me and asked if I wanted to come to a set they were playing at a hotel and, of course, I said yes. I so rarely get to see Candi play – see Candi at all – that I wasn’t going to turn down the opportunity to see them again (and sit right at the front, fangirling my little heart out). They were understandably tired from a very intense release week but they still put on an incredible show, taking cover requests from the audience and performing them beautifully with a gorgeous Candi Carpenter twist. It was a long show but Candi was brilliant and I loved every second of it. I helped pack up at the end and then Candi’s partner dropped me back on their way home, which I very much appreciated; it was really nice to see him again as well. Candi and I had hoped to meet up and just chill before I flew home but with everything that had been going on, I completely understood when they said that they were feeling really burned out and just needed to rest. I was obviously sad not to see them but we made plans to catch up over a video call once I was home and Candi had recovered somewhat. I’m so glad I got to see them as much as I did, that I got to be there for the release and celebration of Demonology; that truly felt like something that was meant to be and I’ll never forget it.
Even getting to see my friends perform so much in such a short trip, I did manage to get to a few Tin Pan South shows, which I was really pleased about. I got to see Brittany Spencer, Jordyn Shellhart, Lori McKenna, Barry Dean, Jillian Jacqueline, Kara DioGuardi, Jeff Cohen, and GAYLE (we actually all but collided after the show ended and had a very passionate discussion about hair dye), to name just a few. I also got to see Ingrid Andress again, which is always really special because I’ve been following her since before she even put her first single out; I actually discovered her at Tin Pan South and have seen her almost every time she’s come to the UK since.
The last thing of note was that I got to do a photoshoot with Caitlin Gore, also known as Katie Mac Photography. I’d found her on TikTok when searching for autistic photographers to work with on my current music project. I thought it was probably unlikely that we’d work on the project artwork, even if we were able to work together while I was in Nashville, but I was really excited to try because I really love her work. We were in fact able to work together, despite a few stressful scheduling hiccups, and I love so many of the images we created…
Photos by Katie Mac Photography (x)
Prior to this, I’d only ever done photoshoots with people that I already knew so I knew I was going to be anxious and that it was probably going to feel weird, plus I’ve been really, really struggling with my appearance; my body image issues have gone from background noise to siren level piercing. I’d also never worked with an autistic photographer and I had no idea if or how that might affect the creative dynamic, if the vision we’d discussed for the shoot was something we were going to be able to capture to both of our satisfaction. I’m sure I was thinking much too hard about it but that is what I tend to do when I’m anxious about something: it’s like, if I can think through all of the variables, then nothing can surprise me and I can achieve the desired outcome… Anyway. Given all of the anxiety beforehand (around the booking and scheduling and planning, etc), I was very anxious when I arrived. The guy who owned the studio was lovely though: he gave us a tour and let me sit with his dog until Caitlin arrived. That did help a bit.
We didn’t have a whole lot of time – I was very constrained by budget – but we got quite a lot done and of the photos Caitlin sent me afterwards, I really liked most of them (and like them more and more over time). It helped that she was very clear, explaining what she was doing at all times and giving me instructions so that I knew what she needed from me. It was a real learning curve for me in terms of learning how to communicate in that scenario and so I got a lot more out of the session than just the photo. For example, while I love the photos in the first of two outfits against the white background, I wish we’d gotten to spend more time with the second outfit against the black background, especially with the red veil. Despite that being an idea we’d talked about quite a lot, we only got it out right at the end – something I would now ask for earlier if we were to do the session over again – so we didn’t have much time to experiment with it. I love the photos we got but I would’ve loved to get more, maybe with different colours and with different facial expressions and so on. So I got some great photos and learned SO MUCH. So it was definitely a success, even if I wasn’t as relaxed as I would have liked to be. I would absolutely recommend her as a photographer if you’re in Nashville and I’d love to work with her again whenever I next get back to Nashville. There was another space that we were both really excited about but I just couldn’t afford it this time with such short notice. But who knows what the future holds…
And that was the trip, if a little out of order and all over the place. I had some of the best experiences I’ve ever had there but it was also really, really hard so, as usual, it was a real mix emotionally but all of the good was so good that I wouldn’t trade it for anything. The flight home was good, as flights go. There was a bit of a crisis about getting a coach home but eventually we were on the last leg of the journey. I was feeling absolutely terrible, seconds away from a meltdown – as I usually do by that point on the way home – but we made it home without a disaster. My little Izzy was delighted to see us and I was delighted to see her; we spent the remainder of that day snuggled up together. I was completely exhausted and although it had been (for the most part) an amazing trip, I was very relieved to be home.
With the cost of releasing new music this year, I just couldn’t afford to make the trip and, with the way that Trump is terrorising the US, I wasn’t exactly keen on being a tourist there. When I was visiting last year, I said to my Mum, “What do you think it will be like next year? If Trump gets in?” It was a theoretical question then, a thought experiment, because I couldn’t imagine Trump getting in again and I certainly never could’ve imagined that everything that’s happening in the world right now would be happening. I worry for my friends everyday and I find it hard being so far away from them, being so unable to support them in any real way. With all of the horrifying things I see on social media, I’m so grateful that, so far, they’re all safe. And while I can’t help but worry when I see them at protests, I am so proud of them for staying true and authentic to who they are regardless of the outside pressure, for standing up for what they believe in, for using their privilege to support others, for the strength that keeps them pushing for a better world despite what often feels like impossible odds; I’m so proud to call them my friends.
There was a lot of tough stuff and a lot of overwhelmingly hard emotions to wade through but I was and am so grateful for this trip, for all of the wonderful moments and all of the wonderful time I spent with my wonderful friends, so if it’s my last trip there for a while, it could not have been a better one. It was so incredibly special and I’ll never forget it.
Category: anxiety, autism, body image, chronic fatigue, depression, emotions, event, family, favourites, food, meltdowns, mental health, music, special interests Tagged: anxiety, asd, autism, autism spectrum disorder, autistic adult, autistic meltdown, brain fog, candi carpenter, candle making, chronic fatigue, commodore grille, depression, independent artist, ingrid andress, kalie shorr, meltdown, nashville, nashville tn, nsai, overstimulated, pancake pantry, photoshoot, poetry writing, sensory overwhelm, sensory sensitivities, sexism in the music industry, song suffragettes, songwriting, storms, tennessee, the candle bar, therapy trauma, thunderstorms, tin pan south, tin pan south 2024, writing, wynonna judd
Posted on December 25, 2023
TW: Mentions of depression and suicidal thoughts.
This has been a fucking hard year and there were multiple moments when I wasn’t sure I’d make it to this point; I’m not convinced I’m glad that I have. My anxiety and depression and chronic suicidal thoughts have been doing their best to swallow me whole; several people have suggested that I’m in autistic burnout and I wouldn’t be surprised but I don’t know how to be sure of that with the depression and CPTSD in play. I’m just putting one foot in front of the other, even when I’m not really sure why.
It’s somewhat confusing to still recognise the good things and be grateful for them in amongst all of that. While I never thought depression and suicidal ideation were simple, I never would’ve imagined that they could be this confusing and conflicted. But that’s a train of thought and discussion for another time. For now, these are some of the things I’ve felt grateful for this year…
Mum – I don’t know what else I can say about my Mum that I haven’t already said in my previous Grateful posts (2017, 2018, 2019, 2020, 2021, 2022) but, holy shit, am I grateful for her. Something I’ve thought a lot about over the course of the year is how she always seems to take things in stride. I know it’s not that simple: she’s human and so, of course, she has feelings about everything that happens but the way she handles things with such openness and grace blows me away.
Family and friends – Despite how hard this year has been and how desperately I’ve wanted to just hide away, I’ve managed to spend a surprising amount of time with my family and friends: over Zoom, at music events, at each others homes, even abroad. I honestly don’t know how I got so lucky to find and keep the friends I have but I am so deeply, deeply grateful. I look back at all of the bad things that have happened to me and I find that can’t hate them completely because, if they hadn’t, I wouldn’t have met and become friends with the people I have.
The cats – My gorgeous pride of cats. I love them all so dearly. We’ve had some health scares this year, which have been very scary but, fortunately, everyone has recovered and we’re celebrating Christmas as a healthy family. Izzy has thrown a spanner in the works to a certain degree and the peace of the house has been disturbed dramatically; we’re still finding a new normal and all of these new relationships are still evolving. On the whole, the cats are still avoiding Izzy because she gets so overexcited; she just wants to play but often, that either scares them or they don’t understand and so they take a swipe at her. It’s slow going and although progress is being made, I miss the cats being around and struggle with the frustration of just wanting everything to be okay and peaceful right now. I love them and I don’t like not seeing them as much.

My time and friends in Nashville – My trip to Nashville this year was a serious emotional rollercoaster. There was a school shooting in the city on the first full day we were there; I saw some of the most amazing Tin Pan South shows I’ve ever seen; I became a Madeline Edwards fan; I saw some of my lovely friends; I hung out with new friends; we weathered the edge of a tornado (and had a little party in the motel room we were sheltering in; I got to go to Song Suffragettes’ 9th anniversary show and catch up with the lovely Natalie Hemby; I struggled with some serious chronic pain… It was a lot to take in, a lot to process. It was a really tough trip but the good moments were really good and I am grateful for those.

My therapist (and the dogs that joined our sessions) – It’s been just over a year since I started seeing my new therapist and, if I’m honest, I’m still getting used to her and all the little differences. I saw my previous therapist for eight years and the loss of her from my life was a trauma so it’s not surprising to me that it’s been a really difficult adjustment; I still miss her and our sessions. My new therapist is good and I really like her and we’ve had some really productive sessions but it’s been a very different scenario: my mental health has never been so bad, the worst stuff so close to the surface. That makes therapy really fucking hard. It makes me feel triggered; it makes me feel like a frayed nerve; it makes me feel like I can’t breathe. It’s exhausting. But I know that nothing will change if I don’t go. Part of my experience of depression means that I don’t always want things to change but, as I said earlier, it’s such a confusing, messy, complicated well of feelings that it’s hard to articulate and this certainly isn’t the post to get into it, but it does provide some context as to why therapy is so hard. I can’t seem to clearly explain why I’m grateful for therapy and for my therapist, not with my headspace being the way it is right now, bit I know that I am. Sometimes I think that has to be enough.
The puppies – Over the summer, I got to spend a solid amount of time with a litter of four Pomchi puppies and it was glorious. One of them in particular, the only girl who was nicknamed ‘Skye,’ took to me straight away: it was like she saw me and went, “You. You’re my person.” It was adorable and I loved every second that I got to spend with her. I hadn’t thought I was ready to bond with another dog but Skye showed me that I was (and honestly, the name ‘Skye’ just felt like a sign – one of my biggest special interest characters, Daisy Johnson, having chosen that name for herself before she discovered who she was, who she was supposed to be) and it was such a joy. And then my heart was broken when I wasn’t able to keep her. I was devastated and the pain of it really shook me. I worried about her endlessly and although that has faded over time, it still hits me now and then; I hope she’s safe and happy and loved. And even though it ended in utter heartbreak and a lot of bad feeling, I wouldn’t take it back; it was a really special experience and showed me that I was ready to have a dog in my life again and ultimately lead to Izzy.

Writing songs again – Songwriting has been a difficult for a while now, as it usually is when my depression gets bad (and it’s been the worst it’s ever been). It feels like my creative brain goes into hibernation. Since I started taking Phenelzine again in March, things have gotten better in that regard. I’ve been writing again but it doesn’t feel as fast or as easy as it used to; like it takes actual physical effort to make my brain work when it used to come really easily. So it’s definitely not perfect but I’ve written some songs I’m really proud of and I’m grateful for that.
Getting to reunite with my friends from university – In the Spring, I went to Germany for the wedding of two of my friends and although there lots of stressful aspects to the week away, there were some truly joyful moments too and one of them was seeing some of my wonderful friends. Because we’re scattered around the world, we don’t often get to see each other and we rarely get to see each other altogether and, with COVID of course, it’s been an even longer time than planned so that was really special. It was really emotional too, more so than I’d expected, but then it was a very emotional week.

There’s five of us buried in this huddle.
Acceptance into the Service Dog program – A few years ago, we applied for the Autism service dog program but they didn’t have space for me. This year we applied again and I’ve been accepted! The process from being accepted to actually getting a dog is a long one but that’s okay: it gives me time to get used to it and to learn everything I need to know, with the assurance that support is coming. I’ve met quite a few people who are part of the organisation and they’ve all been so lovely and supportive and warm so I feel like I’m in good hands. I have my anxieties about it – it’s a big responsibility to take on a dog, particularly a specially trained one, and I’m aware that, by having one, I’m representing the organisation and, to a certain degree, disability and neurodivergence – but I think it would naïve and irresponsible not to. So I’m doing my best to prepare and to get into a healthy, balanced headspace about it.
Breathing Room – After years of loving the work known as ‘Breathing Room’ by Anna Berry, I finally got to see it. First in London and then in Croydon. Finally seeing it in real life was magical; it was utterly breathtaking. During each visit, I spent ages just sitting inside it, watching the cones flutter and listening to the gentle creak of the machinery. It was so calming; I could’ve sat there forever. And it had my mind spinning with new ideas for songs, both specifically about the piece and for other songs. I loved that. Both times, I had to all but be dragged out.
The London experience was also incredibly special because I got to help construct it before it opened to the public. It was a viciously hot, airless day (which resulted in a very stupid-looking sunburn, which unfortunately didn’t fade for months) and even with the gloves, I got some pretty nasty splinters that had my fingers stinging for days but I loved every second of it. I loved the repetitive movement, the soothing count, the intense concentration that had the rest of the world fading to nothing. I’d been in excruciating pain and I did struggle with my back during the session but I would’ve happily kept going; I only left because I had a prior commitment. I loved it and it was a really special thing to get to do. I also, by some magical serendipity, got to meet Anna herself and talk with her briefly about my love for the project and the idea of writing a song about it. She was really lovely and it was a very cool cherry on top to the day.
Discovering Maisie Peters – I’ve listened to Maisie a little, on and off, over the years but I think I just felt like I never quite had the brain space to really get into her music. But then I heard ‘Lost The Breakup’ and I was completely hooked. I played it on repeat until The Good Witch came out and then I was just obsessed; I didn’t listen to anything else for weeks and even when I did start listening to other stuff, I still often returned to it. I can’t quite explain what was so magical about it or why it resonated with me so strongly but it really did and I’m still completely obsessed with Maisie’s songwriting; I could talk about it for hours. I’d love to write with her. I also got to see her twice on tour and they were both really special shows: I saw her in Bristol on Halloween at the smallest venue of the tour and I saw her headline at Wembley, the biggest venue of the tour and a real milestone, at the end of the UK leg. She’s a fantastic performer and I absolutely loved the shows. I was also lucky enough to go to the VIP pre-show acoustic sessions and those were really, really special. I have a Week In My Life post half done about that week that I hope to get up soon where I talk more about that so I’ll come back and link it here – it was an exhausting week that took a long time to recover from but it was absolutely, 100% worth it. I saw her perform at the Communion Xmas Party too and got to talk to her briefly afterwards too, which was really lovely (her keys player, Tina, too). It was definitely my Maisie Peters season and long may it continue; I’m so glad to have her music in my life.

Listening to The Good Witch, making bracelets for the tour, dressing Izzy up as the song, ‘BSC,’ Maisie’s acoustic set in Bristol, the Halloween stop of The Good Witch Tour, the acoustic set at Wembley Arena, Maisie’s sold out show at Wembley Arena, Maisie performing at the Communion Xmas Party in London, and meeting her after she performed.
Getting a TENS machine – Given how bad my chronic pain has been this year, getting a TENS machine was a revelation. It has been so helpful and I’m so very grateful to have a way to reduce my pain when it’s really bad. I don’t know how I didn’t come across it sooner but I’m so thankful for the recommendation from my GP (who is an actual miracle worker).
Meeting Amanda Tapping at LFCC 2023 – Amanda Tapping is one of my favourite people in the world and has been since I was about fourteen. She’s played some incredible roles that have inspired me deeply and she is a truly wonderful human being. I met her several years ago and although I was almost paralysed by anxiety, she was so kind and open and it was a really special experience. This year she started doing livestreams with The Companion and it was so, so nice to see her again, regardless of the fact that she couldn’t see me. The livestream was great and I looked forward to the promised future ones. Then, in the summer, I went to my first Comic Con and got to meet her again in person. We had such a lovely conversation – as did she and my Mum, who was with me as my disability support person – and it’s a memory that I will always hold close and keep safe; it was a very special experience. And then, my third Amanda Tapping moment of the year was the second livestream, which was great on its own, but I also had a ‘backstage’ ticket and I was able to talk to her briefly afterwards. She’s so open to big, honest, vulnerable conversations and it feels like she really sees you and hears you when you talk and that’s such a powerful feeling; I remember thinking about that after I met her the first time and it was exactly the same this time. She, and the characters she’s played, have been a constant source of inspiration and strength for me and stumbling across her all those years ago was such a fluke but, my god, I’m so grateful I did.
Getting The ERAS Tour Tickets – Even though, it was incredibly, sickeningly stressful (and caused a fair amount of ableism-based trauma), I am very grateful to have gotten tickets to The Eras Tour in the summer – and not only one but multiple times, since several friends and groups of friends wanted to go and wanted to go with me. That felt very special and I’m both grateful that we were able to get the tickets and that I have been able to afford it, having been saving since The reputation Tour ended. I have a very complicated relationship with the future and with looking ahead but it was a huge relief to know that I wouldn’t have to watch the every show happening without being there even once. So I’m grateful for that. And, as always, I’m just grateful for Taylor herself: for her music, for being a person I can look up to, and for the inspiration and opportunities she has given me.
The Disability-Focussed Writing Workshop run by Sick Stories – I discovered this online workshop on Eventbrite and from the first one I attended, I had an absolute blast. Sophie, the host, is absolutely lovely and the prompts always led me down interesting rabbit roles. The first prompt Sophie suggested resulted in an idea for a novel that I would love to write at some point, my love of writing fiction returning that immediately. The fact that it was disability-focussed, along with Sophie’s excellent hosting, made it feel like a really safe and fun place to explore and share ideas that might’ve otherwise felt too personal and vulnerable, leaving all of the amazing pieces of writing I heard unwritten. I love a lot of the stuff I wrote in those sessions and although I don’t yet have anything to do with them, I hope that I will at some point find a way to share them.
Discovering Juneberry Red Bull – Among my family and friends, my Red Bull consumption is somewhat legendary, despite the fact that it seems to give my no caffeine hit whatsoever (I think I’m still living in denial that one day it will start helping again). But it had kind of waned… until I tried the new summer flavours. The other three didn’t do anything for me but this one has me in a chokehold: I love it so much. I would drink it all day if it wasn’t as unhealthy as Red Bull obviously is. But it’s a nice little treat that I’m very pleased they came up with.
Being able to afford a new laptop when my old one died – My laptop was dying a slow and painful death and, given that I use it for most of my work, that was a very stressful position to be in. But, thanks primarily to disability benefit, I was able to buy a new one and while that was obviously great for work reasons, it’s the first time I’ve had a brand new laptop in a long time so that was very exciting. I love shiny, new gadgets and, since they’re usually very expensive, I don’t get to do the whole “oh my god, a shiny, new gadget!” thing very often.
Nimona – Watching the film, Nimona, was a really emotional moment for me. I loved the story and the world and the animation style and the humour but the character of Nimona really resonated with me. I really related to her and saw a lot of myself in her: her feelings of otherness, her self loathing, her masking – there were so many parallels to being autistic. Seeing that was very moving. And I really, really related to her in her ‘monster’ form. *SPOILERS* The scene below is constantly on my mind and that scream has me in tears every single time: that is what it sounds like in my head, in my soul. That is what it feels like to be me. Being able to point at that and say to someone, “That’s how it feels,” has been so emotional. It’s hard to describe but I’m so, so grateful to have this film. It might mean more to me than any other film, specifically because of this sequence.
Swimming, hydrotherapy, and starting physiotherapy – For most of the year, I’ve kept to a pretty solid schedule with my swimming and hydrotherapy and then, halfway through the year, I met with an amazing physiotherapist and have been pretty consistently working at that too. Having now worked with both a hydrotherapist and physiotherapist who really understand hEDS, I can say with absolute confidence that it is a completely different experience; I’ve worked with good people before but that lack of understanding has always been a major obstacle and I’d find myself burning out and giving up. I’ve always loved to swim but I’ve found that I can really love hydrotherapy and physiotherapy (although I have had some periods of pain so bad that I had to take a break until it faded). We’ve found two really lovely pools to swim in, which makes it even more enjoyable, and I’ve made some real physical improvements. That’s been kind of mind blowing – to actually see that happen. And to the point where I was able to swim 5km for Mind! But more on that in a minute.
Izzy – I still can’t quite believe that I got a puppy this year, that I actually have a puppy now. That’s definitely not something I expected at the beginning of the year; it was probably the last thing I expected. But here we are and I’m madly in love with her. Izzy is a golden Pomchi (half Pomeranian half Chihuahua) and she’s utterly gorgeous: she’s soft and warm and snuggly and amazingly smart. The bond we’re building is already so strong and so special and that means so much to me, even though it’s kicked up some hard stuff. But I want nothing more to love and protect her and she seems to feel the same, guarding me at almost all times and trying to lick away my tears when I’m sad and looking to me when she’s distressed. My relationship with Lucky was incredibly special and always will be but, just as I learned after my first cat was put too sleep and we then got Lucy, I can love another animal and not feeling like the new relationship is replacing the old one. This relationship is new and special in its own ways and I feel lucky and honoured to have a puppy to pour all of that love into.
Getting to fundraise for Mind – Getting to fundraise for Mind felt really, really special, not just because we managed to raise so much more money than I’d expected (over £600 compared to my goal of £200) which was amazing, but because I was finally physically capable of doing it. I swam 5km for Mind, 1km a night over seven nights, partly due to managing my hEDS and partly do the logistics of pool time, but I was really proud of finding a way to make it work. I was exhausted and sore afterwards but it was absolutely worth it. I was so impressed and so touched by the generosity of everyone who donated it and I was so proud of myself for committing to it and competing it. I look forward to doing something similar at some point.
Spending my birthday with horses – My birthdays have been a source of stress for quite a long time now so I’ve taken to either ignoring it completely or trying to find something un-birthday-like but still special to do. And this year, I found myself going on a wellbeing course that centred around horses. I’ve always loved horses so, while the confidence building stuff was hard, it was so nice to spend time with these gorgeous animals again. It was a really cool, interesting way to spend the day.
The excellent books I’ve read this year – I worked really hard to get back into reading this year and I read a lot of really good books. The ones that have most moved and inspired me are Trista Mateer’s poetry, Blythe Baird’s poetry, The Anthropocene Reviewed by John Green, and Tomorrow and Tomorrow and Tomorrow by Gabrielle Zevin. All of these books had a really profound effect on me and they’ve all become so special, each a little piece of my personal creative and artistic mosaic. I don’t know why I picked them up when I did but I’m so thankful that I did.
A year of Duolingo – It’s hard to believe that I’ve now been learning Dutch for over a year. It’s hard to believe how far I’ve come. But I have and I have. It’s so strange to me: I hated learning languages at school but I’ve loved learning Dutch. There are plenty of obvious reasons for why I hated it at school but they’re not really worth dwelling on at this point but I had no idea when I started learning through Duolingo just how much I would love it, how restful I’d find it, how much fun I’d have. I had no idea that learning a language could be such an enjoyable experience – could be enjoyable at all – after my school experiences and it’s even inspired me to think about other languages. But one thing at a time. I love learning Dutch and I feel no need to change the way I’m currently doing things. I don’t know why I thought to download the app that day but I’m really glad I did and I’m proud of myself for opening it and practicing every day since.

As I’ve repeatedly said, to call my feelings a mess is the understatement of the year. I was re-reading my post from last year and I don’t know if I can describe gratitude amidst depression and suicidal thoughts any better than I did then: “When I feel like this, like I’m drowning in my depression with these near constant suicidal thoughts, things to be grateful for feel like a double edged sword. Sometimes they’re things that make me feel like I can keep hanging on, even if just for a little bit longer, and sometimes they feel like weights tied to my ankles, keeping me here when I desperately don’t want to be and I have to admit I resent them for that. So it’s anything but simple. It’s good and bad and hard and confusing; I can feel differently, ten different times in a day sometimes. But these are the objectively good things in my life and I can recognise that. I wanted to honour them for that.”
Category: about me, animals, anxiety, autism, autism dog, book, chronic pain, depression, emotions, event, exercise, family, favourites, food, heds, hydrotherapy, mental health, music, school, special interests, therapy, treatment, video, writing Tagged: 2023, ableism, accessibility, actually autistic, actuallyautistic, adhd, alternative therapy, amanda tapping, anna berry, anxiety, anxiety disorder, asc, asd, attention deficit hyperactivity disorder, audhd, autism, autism service dog, autism spectrum condition, autism spectrum disorder, autistic, autistic artist, autistic burnout, birthday, books, breathing room, cat, cats, charity, charity swim, chronic pain, chronic suicidal thoughts, chronic suicidality, concert, cptsd, depression, disability, disabled, dog, duolingo, dutch, equine facilitated learning, eras tour, family, family of cats, fibromyalgia, friends, friendship, fundraising, gad, generalised anxiety disorder, grateful, gratitude, heds, horses, hydrotherapy, hypermobile ehlers danlos syndrome, hypermobility, installation, juneberry, language, laptop, learning, maisie peters, mental health, mental health charity, mental illness, mind, nashville, neurodivergent, new puppy, pain, pet, physiotherapy, pomchi, pomchi puppy, pride of cats, puppy, reading, red bull, service dog, sick stories, singer songwriter, singersongwriter, songwriter, songwriting, suicidal, suicidal ideation, suicidal thoughts, suicidal urges, swimming, taylor swift, tens, tens machine, thankful, the good witch, the good witch tour, therapist, therapy, tin pan south, travelling, trigger warning, tw, wedding, writing
Posted on November 26, 2023
Somehow, getting a puppy has made my life both more and less busy. I’m constantly on the move – following her around, chasing her, playing with her – but my life is quieter – she’s so young and still getting settled so I don’t want to leave her – so I may have found a somewhat unusual way of doing less, out in the world at least. Having her around means that my day-to-day life ricochets from full on and exhausting to quiet and chilled out. It’s been a bit of an adjustment but I think it has given me a chance to recoup a bit. A bit. I’m still trying to get a lot done – I don’t think my relationship with productivity is particularly healthy – but Izzy comes first, especially while she’s so young, so this period of time with all of this change has been more than a little disconcerting. Izzy is, of course, worth it; it’s just taking me a while to adjust.
The week in this post started on Thursday 14th September 2023 and ended on Wednesday 20th September 2023.
THURSDAY
Since the arrival of Izzy, I’ve been brutally forced to become a morning person, having previously slept in until after nine (usually due to staying up far too late – Revenge Bedtime Procrastination is my nemesis). But Izzy is an early bird and takes great pleasure in waking me up at six thirty and trust me, if you’ve never had a young puppy, you need to get up and sort them out; she’s still learning to use the puppy pad and a few extra minutes with your eyes closed is not worth the potential clean up.
So I dragged myself up, took her downstairs, and gave her breakfast. I managed to inhale some fruit salad (my current hyperfixation food – something I’ve never experienced before) while she ate and then put down the cat food, removing myself and Izzy so that they could eat in peace: Izzy has a bad habit of bouncing up to them with great but apparently terrifying enthusiasm, which has them running for the cat flap; she’s desperate to play with them but I think they interpret that playful behaviour as scary and unpredictable so the bonding is going pretty slowly (one of the cats, our matriarch, does put her firmly in her place though – one down, four to go). Upstairs, I played with Izzy for a bit, letting her burn off some energy and then did my Duolingo practice and physiotherapy exercises.
Mum had taken Lucy to the vet for a check up post a small surgery she had a few weeks ago and she came back with a clean bill of health. We released her and then raced out of the door, got in the car, and headed for the hospital for my hydrotherapy appointment. The drive gave me the chance to just sit and reply to the various messages that needed responses; I feel like my brain has been so full recently that it’s been hard to focus on smaller tasks, like messages and emails. Maybe it’s an ADHD or Autism thing; given how close I’ve felt to burnout over the last few months, it wouldn’t surprise me.
I was a little late for the appointment because we couldn’t find anywhere to park, disabled space or not, until the last possible second and then, when we got in, we discovered that the towel was still at home, hanging on the radiator after swimming the night before. Fortunately, they were prepared for that eventuality. But apart from those few mishaps, it was a really good session. The exercises I got about eighteen months ago – between finding the right pool to work in and waiting for the follow up appointment, it’s taken this long to get to this point – have become easy so the hydrotherapist suggested a few ways to increase the resistance. Between those and the physiotherapy exercises, I’m working pretty much my whole body so we added a series of core exercises, given that that area of the body is a real weakness for people with Hypermobile Ehlers-Danlos Syndrome; it made sense to be putting extra work into those muscles. We ran through each of them in turn and the hydrotherapist (the same one I’d worked with last time) said how impressed she was at how hard I’d clearly been working, how committed I’ve been (apparently it’s not uncommon for people to just do the exercises a few times and then, unsurprisingly, not progress). That meant a lot to me because I have been working really hard over the last year, even when I didn’t want to. I obviously didn’t do it for the praise but it was really nice to have the work recognised and acknowledged by someone who knows what they’re talking about. With the new exercises under my belt, I feel really good about the work I’ve done so far and really motivated to keep going.
Back home, Izzy was delighted to see me, which was very sweet; she was positively trembling with joy. I let her out of her crate (we are attempting to crate-train her and she’s taking to it fairly well) and we played with various toys for a while before I crashed on the sofa and accidentally fell asleep; between the hydrotherapy and chasing after Izzy, I was exhausted.
I slept for a couple of hours and then dragged myself up for some food and caught the train to London. Barely a week earlier, I’d joined an online creative workshop run by the arts organisation, Magical Women (run by and for neurodivergent women and non-binary individuals). The atmosphere was really positive, everyone was really nice and supportive, and I felt really included, despite it being my first session. After that workshop, I got an invitation to the private view of the founder’s new exhibition, Biodiversity of Sites and Sounds by Elinor Rowlands. I didn’t have much experience of the organisation and the people involved but they felt like a group I wanted to be a part of so I rearranged my plans and hopped on a train to London.
The gallery was gorgeous. I love more abstract styles and pieces of art. I love how they’re completely open to your interpretation: what they are, what they mean, and what they make you feel. I really liked Elinor’s work and ended up pouring over the postcards, trying to not just buy one of each canvas.
I met some really lovely people too and it felt like a really safe space with pretty much everyone in attendance being neurodivergent. That was a nice ratio for a change. I was a little disorientated, having gotten lost on the way, and so I was struggling a bit with how to join in the socialising but fortunately everyone was really friendly and I was quickly included in multiple discussions. It was really, really nice and if I hadn’t had to catch a train back home, I would’ve liked to have joined them all in the pub after, most us having stayed until the exhibition closed.
And that was when it all went wrong (and becomes blurry, as meltdown and almost-meltdown experiences often become afterwards). I was standing at the lift with the last group of people when I realised I didn’t have my leather jacket, my favourite jacket and the one that I wear everywhere; it’s a deeply important and confidence-boosting piece of clothing. I retraced my steps and when I still couldn’t find it, I searched the whole floor, getting increasingly more panicked. Given how late it was, there was no one around and my group of people had already left so there was no one to ask. I called my Mum, sobbing and hyperventilating, and she tried to calm me down enough to make a plan, but then I was locked out of the building and I was overwhelmed with the feeling that my jacket was gone forever: I could’ve left it somewhere inside or on a wall during one of the many moments I’d stopped to check my map app. I was frozen: I couldn’t think and I was struggling to talk; I couldn’t take deep breaths so the hyperventilating continued; I couldn’t move but I was shaking; I felt completely overwhelmed by every light and every sound and every movement, like a car or a motorbike or a person, startled me, feeling so sudden and completely unpredictable and like I couldn’t keep track of them all; I felt extremely vulnerable; and I felt so ridiculous and stupid (I remember calling myself ‘a fucking idiot’ over and over again, for losing the jacket and for caring about it so much in the first place). I had to wait ages for a bus back to the station and despite the amount of people, no seemed to notice my trembling or hiccuping sobs.
Somehow I managed to get back to the station and catch a train home. Between the lack of jacket and the exhaustion of the almost-but-not-quite-meltdown, I was desperately tired and quickly got cold. The journey felt very long but eventually we pulled into the station and Mum was waiting for me at the barrier, Izzy bundled up in her blanket like a little puppy burrito. Despite everything, the picture brought a smile to my face.
Back home and snuggled up on the sofa with Izzy, I continued my New Tricks rewatch (an old favourite – although there are moments that would never have been written now) for an episode or so before going to bed; I just needed some time to decompress (and get warm) before I tried to sleep.
FRIDAY
I struggled up early and sorted out Izzy: she’s doing so well that I can’t really complain but I’m finding the aggressive shift from ‘late sleeper’ to ‘early bird’ pretty tough. Anyway, as I said, Izzy was really good, eating all of her breakfast out of her bowl (rather than refusing anything but hand-feeding) and using the puppy-pad perfectly. She’s such a good girl and she’s so adorable and happy when we praise her: she’s so pleased with herself.
I had a quick shower and then headed out for a meeting with a mentor I have as part of an organisation dedicated to supporting autistic individuals post-education. For a number of reasons, we’ve been very slow to get started but now we’re finally meeting on a regular basis. She’s really nice and because she’s neurodivergent with a lot of the same health problems as me, she understands me in ways that a lot of people don’t. I’m still not sure about how the sessions are supposed to help but we’re still getting to know each other and I guess it will become clear in time. This doesn’t really feel like the time or place to discuss the sessions, if only because we’re still so early in the process, but there was one thing I wanted to note: we’ve changed rooms and in this new room, there’s carpet on the wall – presumably for soundproofing – but it looks like grass, dark green and shag-like pile, and I was instantly compelled to touch it. There was just something so pleasing about it and when Mum picked me up at the end, I… expressed my desire to have a similar set up. Very enthusiastically. I do need to soundproof my space better to improve my vocal recordings after all… She’s unconvinced.
Back home, I briefly caught up with two of my parents over FaceTime before having a lie down on the sofa, Izzy curled up with me. I was completely exhausted and the gentle, repetitive stroking of her soft puppy fur almost put me to sleep. I’d hoped to get some writing done before my friend, Dan, arrived but apparently I was just too tired. And Izzy is deeply distracting (which I’m sure she knows and relishes). But such is life. Izzy was delighted to see Dan and Dan was delighted to see Izzy; he really loves her and she really loves him. It’s very cute. They were instantly playing and it was very enjoyable to watch.
We’d had vague plans to continue our Fringe rewatch etc, but we literally ended up playing with Izzy and chatting. I’m not complaining though; it was really, really nice. Something that I love about our friendship is how we can just talk and talk about pretty much anything – from the newest odd facts we’ve learned to how our week has been to some of the deepest stuff possible – for hours and hours and while we can be deeply serious, we also laugh a lot. It’s really lovely and I’m so grateful for this relationship that we’ve built.
So it ended up being a very chilled out day. We dropped Dan off at the station early evening and then came home and stretched out in the living room. I was really tired but it was much too early to go to bed so Mum and I continued our New Tricks rewatch and I finally posted about Izzy on social media…
We had a particularly good fish and chips for dinner and although I tried to do some writing, I really didn’t achieve much. I couldn’t concentrate and I just couldn’t get comfortable; it certainly doesn’t help that the desk I use when sitting on the sofa has all but collapsed and basically pins me to the sofa. I need to get a new one but I haven’t found any that have adjustable legs, which is kind of key in my experience. Hopefully one will pop up in my searches soon.
Izzy did interrupt the peace of the evening when she swiped the kitchen roll off the sofa and proceeded to unroll it all over the carpet. It was very funny – she was clearly having an absolute ball – but it took ages to persuade her to let go and tidy it all up. Again, I can’t really complain: it was so cute and Izzy is so excitable and, on the whole, it wasn’t a huge hassle. It’s hard not to be touched by her innocent wonder and pure excitement about the world. Everything is fun; everything is an adventure or a game.

She had a good ten minutes of zoomies, which is always very funny and very adorable. Having said that, it did then devolve into barking and nipping, which I was not pleased with, and I don’t enjoy telling her off, even though I know it’s what she needs to understand what she can and can’t do. I got ready for bed, letting her run and run and run – hopefully burning off the last of her energy (it’s not long until we can take her outside and to the park, thank goodness). I was in bed and finishing the last of my diary notes when she finally calmed down and came to me, asking to be lifted onto the bed. She wandered around for a little bit and then stretched out across my legs, falling sleep. Little weirdo. It looked so uncomfortable but she seemed perfectly content. Having her there was very comforting: I was feeling very overwhelmed and unprepared for everything coming up and her heartbeat, her breathing, and her warmth were very soothing. It didn’t solve anything – that would be a pretty big ask – but I did feel a little less panicked for her presence.
SATURDAY
Izzy got me up early, as is my new normal, and then we settled into the living room, where I threw toys for her for a little while. Then I got my new blog post up (Introducing Izzy!) and then had a shower and got dressed before taking Izzy out to the vet for her first vaccine. She handled it really well. The vet also advised that she get her microchip – in case she rushed out or got loose between the house and the car, for example – so we did that too. She wriggled a bit at that but it was a really big needle; it must’ve hurt! But she got lots of treats and attention and it wasn’t long before she’d recovered. They also weighed her and she’s only 1.4kg! She’s tiny! And with that, we headed out, buying her a new toy on our way: a dragon that may or may not be bigger than her.
Back home, I did some admin work, including posting about my upcoming gig, which I’m really excited about…
After a couple of hours, I had to stop and have a nap. I’m so tired at the moment that a middle-of-the-day nap is pretty vital in order to stay functional and, to be honest, I’ve been so tired that I don’t really have a choice in the matter. I can struggle to stay awake longer, not getting very much done, or I can surrender to sleep and hopefully wake up with a bit more energy to keep going. This started with Izzy’s arrival and I think the early mornings (and lack of change around going to bed late) has been catching up with me. I guess it’s fortunate that my life is generally flexible enough to accommodate that adjustment.
I spent the afternoon working on blog posts and then had an early dinner before signing in to the new Amanda Tapping livestream through The Companion – I’d like to write it up like I did the last one, but this post isn’t the place for that. It was as lovely an experience as it was last time: Amanda is such a warm, open person and such an engaging speaker, able to move seamlessly between funny and thoughtful. But most of all, she’s so honest and talks about really vulnerable moments and feelings, sharing them with such trust; it’s hard not to feel honoured and even a bit overwhelmed by that. The relationship she has managed to cultivate with her fans – over decades and through multiple different projects – feels so special and so sacred, one that she holds as much reverence for as we do. She and the host, Rebecca, talked for a while, about mental health and self care, Amanda sharing the story of her daughter leaving for university and her emotions around that, how much letting her friends be there for her has helped both her mental health and their friendships. She talked about crying a lot, mostly in positive terms, and how helpful it can be. But the thing she talked about that hit me hardest, that resonated most, was when she talked about self worth: she talked about how low her self worth had become and how she hadn’t felt worthy of taking care of herself, that she had had to work really hard to feel worthy of self care again. That made me very emotional: I hate the thought of her feeling like that but, again, I felt somewhat overwhelmed by the fact that she was sharing that experience with us. I feel very lucky to have found her all those years ago, to have such an amazing person to look up to.

Then, in response to questions from people watching, she talked about various topics, including how she’s struggled with guilt as a mother, how she would – and sometimes still does – talk to her Mum as if they were talking on the phone when she misses her (she died in 2021), and how she practices self care. And then they were having to wrap things up. It went by so fast, everyone agreed – Amanda, Rebecca, and multiple people in the chat. But it was really lovely and really special and they’re planning to do another one soon-ish.
Having met Amanda pretty recently at London Film & Comic Con and having felt so buoyed by the experience, I couldn’t resist getting a meet and greet for after the livestream; the money was going to charity after all. So, after the livestream ended, everyone with a meet and greet (a short Zoom call with Amanda in groups of four) logged into Zoom to chat until our time slots. I’ve never done anything like that and I didn’t know how to make it work and I was starting to get really panicked about not being able to get into the call when I finally figured it out; once in, I had to just sit for a little while, trying to calm down and compose myself. I hadn’t known what to expect but (fortunately for my anxiety levels) it was really nice, everyone chatting and holding various pets up to the camera; there was something so communal and easy about it, all of us connected through our shared love of Amanda and her work. But then suddenly it was my group’s turn and I was overwhelmed by anxiety again. I didn’t know how it would work with four people, especially with so little time, and I didn’t want to ‘waste’ my opportunity to talk with her. I have such respect for her and she means so much to me that I really didn’t want to make a fool of myself or just say something completely forgettable. But fortunately, she always makes it so easy to be open, even though I was feeling so anxious and fragile; it’s the same on screen as it is in person. And having Izzy in my arms was both good for my anxiety and as a conversation starter: Amanda and I joked about the extremes of our dog owner experience, Amanda’s dog being a huge Bouvier mix and Izzy being a tiny Pomchi (Riley was apparently about 8.5kg at 8 weeks while Izzy was barely 1kg at the same age and likely won’t get bigger than 5.5kg). Very different experiences. We did talk about more than our dogs but I’m still turning the rest over in my mind. I don’t know how she does it but she manages to get everything else to fade away, making it so easy to talk to her, and it always feels like you have her complete attention, which is a bit overwhelming but also so moving and special. And then, all of a sudden, it was the next group’s turn. I knew the meet and greets weren’t long but it was pretty jarring, especially given the time it had taken me to get settled. But it doesn’t matter; I’m really grateful for the experience.
I have such intense anxiety when doing things like this that my adrenaline is sky high during the event and for a while after before crashing spectacularly. And even before that happened, I was exhausted. So I tried to be sensible and, instead of trying to keep working, I had some chill time in front of the TV and had a little scroll through social media. Having drastically reduced my time on it, I actually enjoy it more now, for the most part.
Given how tired I was, I actually went to bed fairly early – for me, at least. Izzy was clearly having her nighttime zoomies and, no matter what I did, she couldn’t seem to stop running circuits around the living room. It’s very cute and very funny – she seemed to be having a ball, pun kind of intended – so I left her to it and got ready for bed by myself. It wasn’t long until she joined me and snuggled up as close as she could get, another adorable habit of hers. Soft and warm, she’s lovely to cuddle up with.

Unfortunately, I couldn’t sleep and was still awake at two. I took a break from trying to sleep for a while, looking up poetry and writing challenges online for inspiration, and then eventually managed to drift off, dreading the early start.
SUNDAY
Izzy clearly hadn’t noticed my nighttime restlessness and was licking me awake just after seven. I struggled up and got her sorted with breakfast and a new puppy pad before we settled in the living room. We played for a while – she picked up ‘fetch’ so incredibly fast – and then she curled up for a snooze while I did my physio and Duolingo and other daily tasks before getting down to writing for a bit.

Me and Izzy spent most of the day like that, taking breaks for meals and playtime. It was a nice quiet day, which I appreciated after the short night.
Late-afternoon-early-evening, I headed to the pool for a swim. Without too much effort, I managed to swim a kilometre – the longest I’ve swum in years – and do the hydrotherapy exercises that are possible in that pool. That was really invigorating and I was really proud of myself, especially for the kilometre: it’s really clear evidence of how hard I’ve been working over the last eighteen months and what a difference that work has made. So, similarly to how I felt after the hydrotherapy appointment, I feel really good about what I’ve done so far and really motivated to keep going.
Izzy was practically vibrating with joy when we got in and I released her from a crate. She’s so funny: she does actually like it and often takes herself off to sleep in there but god forbid someone shuts her in. She gave me and then Mum a hero’s welcome – which is more than a little bit ridiculous but I’m always happy to cuddle with her – before busying herself with one of her toys and I settled down on the sofa again. I put on The Lincoln Lawyer – what a lovely show it is and one of my favourite background noise soundtracks – and did some more blog writing before spending the rest of my evening practicing for my show on Wednesday. I know I’m practicing more songs than I need but there are just so many that I want to play; I’m going to have to make some very reluctant editing of my setlist at some point.
I went to bed feeling exhausted and sore: my knee was hurting after the swim and I was somewhat concerned I’d been a bit overenthusiastic when doing my hydro exercises. My tailbone was also hurting, which is apparently a very common problem with hEDS (the gift that keeps on giving, she says sarcastically). So I took some painkillers and went to bed, feeling less than optimistic about the night ahead. Both of those pain issues have been known to wake me up throughout the night.
MONDAY
As predicated, I slept badly, the pain in my tailbone or one of my knees waking me up every time I moved or rolled over. It was miserable: trying to get back to sleep each time was miserable and waking up completely exhausted in the morning was miserable. The only not-miserable thing about it was that I woke up before Izzy and managed to get some snuggles in while she was still warm and soft and floppy; those moments with her are especially lovely.
Mum was up early and offered to do ‘the morning shift’ and I accidentally went back to sleep, getting another three hours or so, which I definitely appreciated. Izzy greeted me with great enthusiasm when I managed to get up, still sore, and tried to help me with my physio exercises (reduced due to the pain), which – unsurprisingly – wasn’t particularly helpful. But it is always very cute. Then, after some breakfast for me, we snuggled up together while I caught up on some emails and messages. Izzy was getting sleepy, ready for her mid-morning nap, and was beyond adorable, curled up at my elbow. It was very tempting to just abandon my to-do list and cuddle up with her. It wouldn’t be the first time. But I resisted the urge and actually got some work done.

When I reached a good stopping point, I went to have a shower, sticking my head into my Mum’s room as I passed. Four of the five cats were curled up on Mum’s bed. They love the waffle of my Mum’s duvet but I’m pretty sure the biggest draw is that it’s one of the few comfy places that Izzy can’t reach and so they can chill out undisturbed. I know it’s a process and that they will all get used to each other but I do miss them since Izzy is currently glued to me and they’re avoiding her. I’m also struggling with the fact that she’s obviously creating stress in their otherwise blissfully stress-free lives, the result of a decision I made. I know that it’s super early – too early – to be stressing about whether they’ll ever get along but I can’t help it. I’m trying not to but it still creeps in.

Back in the living room, I logged into Zoom to attend a writing workshop, one of a series that I’ve been really enjoying lately. My absolute favourite workshop series ended a while back and I’m waiting for their next project to start but this one is really great too; it’s probably my second favourite of the ones I’ve done, certainly as a series of workshops (I’ve done some fun one off ones as well). These ones have more specific prompts but, if your writing wanders off in an unexpected direction that you’re really excited about, you’re encouraged to just go with it and see where it takes you. The overall prompt for this workshop was ‘door,’ which then became more specific after the opening exercises and free-writing. An idea came to me very quickly and the words just flowed so I just let the story happen. I feel like I’ve said this in another post recently but, as much as I love and feel connected to songwriting, I’ve been really enjoying dipping my toes in the fiction pond again.
When that finished, I had some lunch in front of The Lincoln Lawyer before moving to the piano. I spent several hours reworking an old song; everyone loves it and I do too but I just don’t think it’s saying what I want to say quite as well as it could. So I worked on refining it, making each line count and tie into the overall metaphor. I wrote the first draft several years ago now and I know I’m a better songwriter now; I’m confident that I can turn it into a stronger song.
My uni was hosting a songwriters’ circle that evening and although I really wanted to go – several people I really liked were playing – I just didn’t think I had it in me to go up to London again before the show on Wednesday; I needed to conserve my energy and chances were that the train journeys would trigger pain that I wouldn’t have recovered from in time. So I grudgingly gave up on that plan and stayed home, practicing my songs, eating dinner in front of Hijack with Mum, and snuggling with Izzy. She’d been quite hyper and destructive during the evening but when she finally calmed down, she was warm and soft and floppy in my arms. It was very cute and I couldn’t help laughing at the silly faces she made in her sleep…
I tried to get to bed while she was still sleepy but it didn’t work. She got the zoomies (plus she was biting a lot, which was exhausting) so I left her to it and did some diary writing while I waited for her to run out of energy and settle down for bed.
TUESDAY
I kept waking up throughout the night, my tailbone hurting every time I turned over. Every time, Izzy was snuggled up as close as possible, pressed into my neck, which was very cute. When I woke up for the final time, a little before my eight thirty alarm, she was still asleep and I was able to pull her into a sleepy cuddle, which was just too adorable for words. It was definitely a good way to start the day.

When Izzy woke up properly, we went downstairs as per our morning routine. Then I did some blog writing before having a shower and some breakfast. I had a physiotherapy session at twelve and we went through my current exercises, cutting some, adjusting others, and adding new ones. My physiotherapist is great and really understands hypermobility, which is so helpful; that knowledge makes for a much more productive and motivating experience.
When I got home, I found two of the cats – Sooty and Tiger – curled up together on a chair. I swear they were giving me some serious side-eye over Izzy. While I do feel bad about the stress she causes them, they do seem to have bonded more closely since she arrived, which is really lovely to see: they hang out together, they snuggle up together, they back each other up when Izzy appears, they check in with each other… It is really sweet. Hopefully things will settle and we’ll find a new normal soon.

I went to the pool mid afternoon and did my hydro exercises as well as managing a bit of a swim. I had a bit of a break when I got home, watching a film (Luckiest Girl Alive – I didn’t love it but I thought the performances from Mila Kunis and Chiara Aurelia were really good) and doing some blog post writing. Then, after an early dinner, I spent several hours practicing for the show and deciding which songs to play, which to hold in case there was time, and which to cut. I didn’t end up going to bed until after one; I’m very glad we don’t have neighbours on that side right now. But even that late, I couldn’t sleep; I think I eventually drifted off around three.
WEDNESDAY
Thank god for my Mum. She sorted out Izzy and let me sleep in (I’d texted her to let her know how much of a struggle it was to get to sleep and that it was making me anxious about managing the day and the gig) so that I would have enough energy for what was going to be a fairly strenuous day. I managed to sleep until almost eleven – which is unheard of these days – and I felt pretty good when I got up. I did some social media stuff and my morning habits and so on, trying to stay relaxed about getting to London and playing the gig – I was mostly excited but it’s also been a while since I’ve done a long set at a gig so I was nervous too. Finding the cats snuggled up together and having some time with them was a nice little break from everything….

I spent most of the day alternating between practicing and playing with Izzy. And sometimes I did both at the same time…

She’s so adorable in her confusion over musical instruments.
And I got ready, of course. I had a shower and did my hair and make up. Getting dressed was not as straightforward though: the outfit that I’d decided on suddenly felt wrong and I got very upset, feeling fat and ugly and unfit to be perceived by anyone. I tried various different outfits and different combinations but the damage was already done and it took more energy than I thought I had not to crawl under my duvet and never come out, to get dressed anyway, and leave the house. It was horrible and it wasn’t a bad thing that I had a long drive in which to wall off all of those thoughts. For the night at least.
The drive was long and slow. It had been pouring with rain for most of the day and it just kept raining and raining and raining. It slowed us down on the motorway and caused heavy traffic when we finally got into London. Door to door, it took over three hours – much longer than usual – and even with the buffer we’d built in, I was late for my soundcheck. Fortunately Luce, organiser of the event and my very good friend, had everything under control and made it work (she was a lot calmer than I was when I finally arrived). I got a quick soundcheck in and then people started filtering in. Given how horrendous the weather was, I wasn’t sure how many people would show up but I was almost overwhelmed with joy when so many friends, family, and family friends came. Having some of my closest friends there, including one friend who was moving abroad in mere days, made it so special; I cannot articulate how much it meant to me.
Cora played the first set and it was really cool to see her perform again, to hear the growth in her songwriting, having not seen her play for a couple of years (the last time was, somewhat bizarrely, a show where we were both on the same bill as well). Her songs are beautiful but there was one in particular that I just fell in love with; Cora hasn’t shared it yet and it’s her story to tell so I won’t spoil it but should she release it, I’ll be sharing it everywhere because it was absolutely stunning.
The show went really well and it was so, so special. I’d spent a lot of time thinking about the songs I was going to play and ended up with a mix of old favourites and new ones that I’m really excited about. I got to play the piano for one of them and we even had a fun little sing-a-long at the end, which was so lovely. It felt so, so good to perform again, especially with such an engaged and receptive audience.
Luce was a great host and we had some great conversations about the songs, the writing process, the inspiration, songwriting in general, and so on. I always love to talk about songwriting but I feel like our discussions between songs were really rich and we found ourselves in really interesting places – likely due to our friendship, the long conversations we’ve had, and the stories (both joyful and difficult) that we’ve shared with each other. It doesn’t feel like a stretch to say that much of the audience listening felt the same way, given the vulnerable and touching comments in the review notebook.
You can probably tell from this video how much I love talking about songwriting, as I said a moment ago…
It was over much too quickly and I lingered for a while, packing up and talking to people and hugging friends and family goodbye. But eventually I had to accept that the night was over and that it was time to go home, especially since my Mum was ever so kindly driving me home; it wouldn’t have been fair to make her wait any longer. So we piled into the car and headed home. I had promised to keep her entertained in the car but the adrenaline crash hit me pretty quickly and we’d barely gotten onto the motorway when I fell asleep. I woke up as we drove into Brighton and dragged myself into the house; Izzy was delighted to see us, which was very sweet. I barely had the energy to get my make up off before crawling into bed, Izzy curled up beside me.
What a week… There were some really intense highs and really intense lows and I’m completely and utterly exhausted. I’m going to need some quiet time now, just to decompress and recharge my emotional and social batteries, let alone my physical one (not that that ever seems to charge properly).
NOTE: Considering the dates of this week, I know I’m very late in posting this. I’ve just had no energy and getting it finished and tidied up for posting seemed to take forever. But it has several moments that I really wanted documented, the good and the bad: the good being the Amanda Tapping livestream and playing such a lovely show; the bad being the meltdown and the body image stuff; as well as the normal of living with pain and managing hEDS with hydrotherapy and physiotherapy. So I wanted to get it finished and posted and I’m very glad to have finally managed that.
Category: adhd, animals, anxiety, autism, body image, chronic fatigue, chronic pain, emotions, event, exercise, family, favourites, food, heds, hydrotherapy, meltdowns, mental health, music, sleep, special interests, treatment Tagged: 2023, a week in my life, actuallyautistic, amanda tapping, art, art gallery, asc, asd, autism, autism spectrum condition, autism spectrum disorder, autistic, autistic artist, autistic burnout, autistic meltdown, autistic singersongwriter, autistic songwriter, blogging, body image, burnout, cat, cats, cfs, chronic fatigue, chronic fatigue syndrome, chronic pain, cora rebel, day in my life, day in the life, disability, disabled, dog, duolingo, eds, ehlers danlos syndrome, fatigue, fibromyalgia, friend, friends, friendship, fruit salad, gig, gigging, guts, heds, hydro, hydrotherapy, hydrotherapy exercises, hyperfixation, hypermobile, hypermobile ehlers danlos syndrome, hypermobility, language, language learning, magical women, meltdown, mental health, nap, neurodivergent, new puppy, olivia rodrigo, performance, pet, pets, physiotherapist, physiotherapy, pomchi, practice, puppy, puppy training, revenge bedtime procrastination, self worth, september, show, singer, singersongwriter, sleep, songwriter, songwriters circle, songwriting, stories in song, swimming, the companion, week in my life, writing, writing prompt, writing prompts, writing workshop, zoom

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope