Posted on December 31, 2024
TW: Mentions of therapy trauma and self harm.
I know I usually get this post up on Christmas Eve but I just haven’t been able to keep up with my old schedule this year; between the exhaustion from my erratic sleep schedule and my ADHD outdoing itself in fucking up my concentration, writing has been taking a lot of time and energy. I still love it but suddenly it’s just taking so much effort, in all forms, and that has massively slowed down my ability to finish anything. But there has been a lot to be grateful for this year and so I really wanted to get it down, no matter how long it took.
MUM – I know I specifically list my Mum on my ‘Grateful’ lists but it never becomes less true; I never become less grateful. I find more reasons with each year. The support she has given me this year, in good times and in bad, has been amazing: she made it possible for me to move through the Autism dog process, go to concerts, take up opportunities that I would never have been able to participate in otherwise. She’s supported me through meltdowns, the days that I couldn’t get out of bed, everything I’ve needed to make the music I’ve made this year, helping me to find the people who can support me in my mental and physical health… I couldn’t do any of this without her.
FAMILY – Not that I would ever call my family unsupportive but I feel like there have been specific instances this year that have felt new and different, in the context of the way they support me: help with applying for grants, help with getting my academic paper ready for publication, help with the Autism Dogs process, help with going to see Taylor Swift, help with finding a new therapist, even rescuing me when I’ve gotten stranded mid-meltdown… They listen to me; they know when to push me when I need it and let me stop when I need to stop; they remind me to rest (something I’m notoriously back at). My health, both physical and mental, has been so bad this year that I’ve really needed them and that change has created more change. The dynamic feels different than it has in the past and, for the most part, in a positive way; there’s room for growth.
THE FAMILY OF CATS – The cats have been a bit distant since we got Izzy. They find Izzy a pest at the best of times and so they’ve stayed away from her and therefore us as Izzy is usually with me and/or Mum. But over the last few months, they’ve started to stray from their ‘safe space’ in the kitchen and further into the house. They’re now sleeping in my room and the living room and even asking for attention, which feels like such a big win. They still avoid Izzy for the most part because she can be so excitable and unpredictable in her playfulness but we definitely have progress from the beginning of the year.
IZZY – Although she can be a little menace at times, I honestly don’t know what I’d do without Izzy in my life. I think she may well have saved my life when we got her last summer and somehow I love her even more than I did then. I love her more every day. She’s a constant presence – a constant soft, warm heartbeat – beside me and as bouncy and hyper and playful as she can be, she can be just as gentle and affectionate and sensitive; whenever I’m upset or even having a meltdown, she presses herself as close to me as possible and even licks away my tears. All she wants to do is make it better and even though it’s rarely something she can affect at all, her belief that she can and the effort she puts in can make me feel at least a little less awful.
AUTISM DOGS – While the process of working towards my Autism Assistance Dog, Daisy, and the anticipation (and, I will admit, anxiety) of waiting to see how it all plays out when she arrives, it’s also been really exciting and such a learning curve. Even though I swing backwards and forwards into various big doubts, the staff have been incredible at reassuring me and, if it’s a practical anxiety, showing me what to do to make me feel more confident. Daisy is utterly gorgeous and so eager to please and very sensitive to my needs already; I don’t know what I’m going to do if, mid-cry, I have two dogs launching themselves at me… Izzy and Daisy are getting on better but Izzy is still very possessive of me and I just have to hope that when they get to spend some significant time together (i.e. more than ninety minutes at a time), they’ll find it easier to figure out each other’s boundaries. So there’s a lot of joy there, even if there’s also a lot of anxiety. And getting to meet so many dogs has been so lovely – once there was even a litter of puppies!
OLD FRIENDS AND NEW FRIENDS – My friends and the love I have for them has been a consistent thread throughout this year. I’ve spent a lot of time, in real life and over the video calls if travel was tricky, with friends from all different periods of my life – something I feel so incredibly lucky to have. I’m still friends with my best friend from secondary school, from sixth form, from my BA, and my MA group of friends; it’s something that makes me so emotional, that we’ve managed to maintain these friendships over all of this time, despite everything that’s happened in our lives, and pick up – pretty much – as if no time has passed. Being able to share my life, hear about theirs, and hopefully support them as much as I’m able to through tough times is one of the greatest honours of my life and I can only hope that I’ve been clear enough about how much they mean to me. Their circles have broadened my circle too and that’s also been really lovely.
And due to the wedding of a friend from sixth form (she, Lois, animated a gorgeous music video for me and we’ve kept in touch sporadically over the years), I had the opportunity to see so many old friends from sixth form, many of whom I haven’t seen for years. Because of the pandemic, going to universities all over the country, traveling and moving abroad, we haven’t all been together for a really long time so I was positively giddy to see so many old friends. Life just gets so busy and with everyone scattered across the country and beyond, it hasn’t always been easy to stay in contact but, as I said, it was an absolute joy to see everyone again and I spent most of the evening hugging one person or another (apart from the solid twenty minutes of Taylor Swift music where I danced so hard that I nearly died at the end of it). There were so many exciting updates from everybody and it was just so nice to be together again. Hopefully it won’t be as long as last time before we can hang out together again.
I’ve also made a whole new group of friends, due to joining an online poetry group. What was such a casual decision has completely changed my life: my love of poetry and my creativity has grown exponentially but, more importantly, I adore the other members of the group. They’re all so kind and brave and creative and they make me feel understood and supported and safe. There’s a lot of overlap in mental illness, neurodivergence, disability, and chronic illness so we share a lot of experiences and common ground so we constantly support and ground and educate each other. Finding them was a complete fluke and now I miss our writing sessions if we go more than a week without one; they came into my life just when I needed them and I couldn’t be more grateful.
NASHVILLE FRIENDS – It was SO lovely to see my friends in Nashville when I was out there in late March-early April. And by some wonderful cosmic timing, I happened to be there the same week that my friend, Candi Carpenter, was releasing their debut album, Demonology (which is fantastic). And because they were also putting on a release show – and afterparty – lots of their friends and people who have become my friends online were all flocking to Nashville so I got to see loads of lovely people, some in person for the first time. If it hadn’t been for that, I’m not sure I would’ve seen my friend Kalie Shorr (who is also an incredible songwriter and artist) so I was very grateful for that and we had a blast at Candi’s release show and even managed to fit in a coffee and a catch up while we were both still in town. In some ways I got to see a lot of Candi – at their release show, at the afterparty, and then at another show they were playing later in the week – but they were obviously very focussed on getting the album out (completely understandably) so we really didn’t get much time at all to just hang out and catch up but it was so incredibly special to be at their show and celebrate the album and then be the super annoying fan whooping from the front row at the second gig. I truly would’ve been gutted to miss the release show: I’m pretty sure it was one of the best shows I’ve ever been to. So the time I did get to see Candi was very precious. And I also got to see Caylan, my very oldest Nashville friend, and we got to have a really lovely catch up and managed at least one Pancake Pantry outing. While my previous Nashville trips have been much more focussed on Tin Pan South, this trip ended up being much more focussed on my friends, although I did manage to get to see some of my Nashville faves, like Ingrid Andress.
ESCAPISM – While there were some really great days this year, there were still a lot of bad ones and still a lot of really, really terrible ones and I’m grateful for the escape that various activities have given me. I didn’t read much this year – my ADHD, brain fog, difficulty concentrating, etc was brutal this year – but diving into films and TV really got me through some of the tough times. Film wise, A Quiet Place: Day One was so much better than I thought it would be, considering how many times alien invasion films have been done and the fact that the main characters weren’t in it; I thought the lens through which they told the story was really moving. I also watched Fitting In and The Fallout and found both of those really powerful; they’re both the kinds of stories that we need to be telling and learning from because they dig into really big subjects and don’t always follow the storyline you expect them to, which often makes them much more true to real life. Oh, and I loved the most recent film from The Hunger Games franchise, The Ballad of Songbirds & Snakes (which I did actually also read). I really didn’t expect to like it because I really wasn’t interested in a story with Snow as the protagonist but I ended up finding it fascinating and enjoying it more than the original trilogy by far; Rachel Zegler and Viola Davies were, of course, also fantastic and I think it’s one of the most beautiful and visually interesting films I’ve seen in a really long time. (I also watched The Trap, which I recommend nobody watch ever – it’s actually amazing how terrible a film can be.) TV wise, I got back into Law & Order: Special Victims Unit, which was really nice because I love Olivia but was so bored of the storyline and Elliot features when I sort of tuned out; I’ve been enjoying the recent series a lot more. I also loved the new season of The Lincoln Lawyer and the new season of Criminal Minds: Evolution was better than I ever imagined possible: I’m honestly still obsessed with it – the character arcs, the acting, the greater plot, the strings left untied – and I can’t wait for the next one. I really got into Nobody Wants This, A Man on the Inside, and Black Doves (I’ve never seen Keira Knightly so good and I may never get over the relationship between her and Ben Whishaw’s characters) and I’m really excited that all three of them have been renewed for another season because I just want more! I also really enjoyed Red Eye – which was on ITV and I think was just a standalone series – with its amazing cast, acting, and storyline; it was really compelling right from the beginning and it was able to stay high stakes while still being clever and interesting and actually quite moving. And, of course, I found escape in music: I got really into both Beth McCarthy and Gracie Abrams because of their new releases this year; I was and still am, of course, obsessed with Taylor Swift’s The Tortured Poet’s Department; and one of my favourite people, Candi Carpenter, put out their debut album, Demonology, which I know will stay as one of my favourite albums forever. Both Candi and another of my favourite people, Kalie Shorr – both of whom I first met in Nashville – started Patreons to fund their sophomore albums and while the perks of subscribing are lovely, getting to see these two albums come together is so freaking cool and I feel like I’m learning so much about the album process, from writing to production to creative direction and so on. I highly recommend checking them out and supporting them if you can. Candi’s is here and Kalie’s is here.
AMANDA TAPPING AND THE COMPANION – I have always loved Amanda Tapping – she’s been a hero of mine for more than fifteen years now – and I was lucky enough to meet her again at Basingstoke Comic Con this year. It was a tough few days – the event was very chaotic and there was an awful heatwave – but I have so many special memories of the experience. The panels were really interesting and all of the guests were really open and good-humoured despite the heat and exhaustion. I was, as always, really excited to see Amanda and getting to see Richard Dean Anderson was really wonderful; I’d sort of forgotten how much I love him and Jack O’Neill. I was kind of disappointed that I hadn’t bought a pass to meet him but the queue was so long that people were missing other things and I think I would’ve passed out before meeting him (having said that, I did run into him in the hallway before one of his panels and although he was barely able to stop moving, he was really sweet). Talking to Amanda again was as lovely as it always is (she is one of the kindest people I’ve ever met) and, although the meet and greet wasn’t what was promised, it was still really special. I also got to meet the organisers and many members of The Companion, an organisation that celebrates sci-fi and fandom and one of their biggest projects has been Embracing Mental Health as a Fandom with Amanda Tapping; it was so freaking lovely to meet them all in person for the first time after having everything be online for so long. The Companion panel with Amanda was amazing and really moving and I felt so lucky to be there. I missed it all as soon as I got in the car to go home but it was so special and I can’t wait for the next event, whatever and whenever that may be.
WALKING AWAY FROM MY LAST THERAPIST – I wrote an incredibly long post about this earlier in the year but the short version is that, at the beginning of the year, my therapist of the last couple of years traumatised me, triggered a meltdown, and ultimately pushed me into a dissociative state. I couldn’t go back for over a month and while I tried to engage with her over a phased return (because I felt too traumatised to even go back into the room), she wouldn’t discuss it and then threatened to terminate therapy unless I came back. Honestly, I never wanted to see her again at this point but I wanted to understand why she’d apparently become a completely different person from when I’d first met her. That session was a complete disaster but in a way I’d never expected: she babbled like an idiot, unable to justify any of her decisions or reasons for terminating therapy (which she was doing, regardless of the previous manipulation of terminating unless I came back). She accused me of threatening her livelihood by missing sessions (although she’d been fully aware of the issue and she’d had notice for every session apart from one, when I’d thought I’d be able to get there and then couldn’t) and then referred to my six-ish weeks of trauma-induced dissociation due to her actions as ‘an extended holiday.’ I had such a physical reaction to that that I honestly thought I was having some kind of cardiac event: my heart rate had been so high throughout the session and I’d been shaking like a leaf, unable to take deep breaths. She asked if she could come and sit next to me and I honestly don’t know what I would have done if she had; I did not want her anywhere near me. But at some point during the session, something changed for me: it was like shedding my skin that I’d long needed to let go of and this new version of me had a new kind of strength, I guess… the emotional strength to push back rushed into my body like much-needed oxygen. For every lie, I had evidence against her; for every attempt to manipulate me, I called her out; for every time she tried to make it my fault, I was able to volley the accusation back. Maybe seeing her had triggered the fury I felt and as soon as I felt that, I was able to stand my ground and push back. Or maybe it was the absolute ridiculousness of her behaviour. I wasn’t going to let her get away with that. I did end up going to one final session, to give her a final chance to explain, but she was just as all over the place and halfway through the session, the air just went out of me and I left. I didn’t want anything to do with her for another minute and there was nothing she could say or do to change that. It was a very traumatic experience and I’m not grateful for that at all; I’m beyond sick of terrible therapists who hurt their clients more than they help them. But I’m really grateful for the new person I grew into as a result of it all, even if it took me a while to recognise it.
GETTING THE TATTOO BUG – After almost fifteen years of wanting tattoos but other things just getting in the way, I finally got my first tattoo… and my second… and my third… and at the time of writing this, I have six with plans for many more. I love having them and I love getting them, which is apparently not that unusual for people who have self harmed; I find it oddly therapeutic and I definitely get a rush from it. I have had one really bad experience with a tattoo artist discriminating against me and refusing me disability accommodations, which was traumatic and has been taking up a lot of my time and brain space to resolve. It’s not, as of yet, resolved but I’m still working on it and I hope that there will be some progress soon. But that incident aside, I’ve absolutely loved it and I’m looking forward to figuring out which tattoos I’ll be getting next…
AMAZING SHOWS, FROM BASEMENT BARS TO STADIUMS – I had a year of amazing concerts, from small songwriters’ circles (shout out to Stories in Song) to Taylor Swift’s almost four hour long epic, The Eras Tour, at Wembley Stadium (shout out to Electrolyte Fastchews for keeping me alive). I got to see multiple incredible songwriters at Tin Pan South in Nashville (including my long time fave, Ingrid Andress), as well as my beloved Kalie Shorr and Candi Carpenter – it was so special to be able to be in the room cheering for them, rather than stuck behind the screen on a livestream. I got to see Holly Humberstone for the first time. I got to see Bleachers twice, which I was particularly grateful for: the first time I ‘saw’ them, the accessibility team put me in the back row of the seating and, even though the seats were raised, everyone stood up and refused to sit down when told by security so I wasn’t able to see much of anything. I got to see Maisie Peters twice as well, first opening for Taylor Swift (which was awesome and so emotional that I cried through most of it) and then opening for Noah Kahan, who was also amazing. I got to see one of my tutors, Jonathan Whiskerd, play the launch gig of his stunning upcoming album, which was so special, even more so because I know how much time and effort and care has gone into it. I got to see Beth McCarthy headline Heaven, which was so much fun; I got to see Halsey play a surprise show at KOKO, performing a mix of songs from their previous albums and a few new ones, The Great Impersonator having not been released yet (that show was super emotional); and I got to see Kelsea Ballerini play an incredible one night only show at The Roundhouse. It was an amazing year for concerts and I’m not sure how 2025 could beat it but I do have a few very cool ones lined up.

TAYLOR SWIFT AND THE ERAS TOUR – Taylor Swift usually makes her way onto my grateful lists, for one reason or another, and this year I have so many reasons to be thankful for her. The paper that I wrote on her lyric writing and presented at what I believe was the first Taylor Swift centric conference, Taylor Swift Study Day 2021, is about to be published (I did an interview about it here), which is so exciting! She released her newest album, The Tortured Poets Department, which I love and feel like I’ve learned so much from, from a songwriting perspective; I love it so much that I got a tattoo of a lyric from ‘The Black Dog.’ I endlessly enjoyed following The Eras Tour online and discussing each night and each night’s mashup on Tumblr. And then getting to go… Getting to go to The Eras Tour was absolutely magical; I will never forget how special it felt to be there, to experience those shows with the wonderful people I got to go with. I was so lucky to be able to go multiple times but the most special part of that was the fact that I had so many friends who wanted to go and wanted to go with me, their resident Swiftie friend: as a teenager I was bullied and harassed relentlessly for loving Taylor so to have more friends wanting to go with me than there were shows in London (not that I went to every show in London) was so healing for my younger self. The show was beyond incredible, I had so much fun with my friends (and, of course, my Mum – we’ve been to many Taylor shows together), and I got to witness the most beautiful mashups and special guests, including Paramore as an opener, the live debut of ‘The Black Dog,’ the first Eras Tour performance of ‘I Did Something Bad,’ Maisie Peters as an opener, the mash up of ‘Change’ and ‘Long Live,’ Jack Antonoff as a special guest, and the first ever live performance of ‘Florida!!!’ WITH Florence + The Machine. I will honestly never get over the experiences I had. The effort it took to go to the shows required almost a month of recovery time and it took over a week before I was able to make coherent sentences but it was so completely worth it. I’m not sure there will ever be another concert experience like The Eras Tour but then this is Taylor Swift we’re talking about so who knows…
HALSEY – I’ve loved Halsey for years and I’ve always felt her music very deeply; there are multiple odd little parallels in our lives (we were actually born on the same day, only a few hours apart) that have always made her music feel like it’s deeply personal just to me, even though I know there is a thriving fandom out there who I’m sure feel the same way. I found it quite difficult to hear that they were going through really difficult health stuff, partly because I was also going through difficult health stuff, so it was a big relief when they started doing shows again. I was ridiculously lucky and managed to get a ticket to see them live at KOKO, just before The Great Impersonator came out, and it was just so magical to see them perform live again (I last saw Halsey live on The Manic Tour at The O2 Arena in 2020) and not just live but live at a super small, intimate venue. When they teared up, I could actually see the shine in their eyes because that’s how small the venue was; being at such a small show – just them and us – felt like a really special moment of reconnection. It was an incredible show, as I’ve always known Halsey shows to be, and see them so at ease onstage and so moved to be in front of a crowd (and a crowd of fans who were so thrilled to be there) was really moving (and, as I said, really reassuring). I got to hear songs I never thought I’d hear live due to the Love + Power Tour having been a US only tour: I was so excited when I realised that anything was up for grabs and it was a breathtaking experience to hear songs like ‘1121’ and ‘honey’ live. It was also one of the best gigs, accessibility wise, that I’ve ever been to, from the venue to the staff to the other fans; that meant a lot to me. And then, of course, there’s the new album, The Great Impersonator, which is incredible. It’s so raw, so moving and so powerful, and it’s been crafted so carefully and beautifully; the stories, within the greater story, that Halsey is telling are so detailed and delicate and the production is so varied and expressive. I’m just obsessed with it. But the rawness of it also makes it painful to listen to. Listening to it, I felt like so many of the songs could’ve been about me to a certain extent because I related to them so deeply; it’s a hard listen and it does feel like an excavation of every wound but I also felt so seen and so understood, which is so rare. All of the songs feel so precious to me (‘Life of the Spider (Draft)’ and the ‘Letter to God’ trio especially so) and it will always be an incredibly special album to me. I read one review that summed it up really well: “This is not an album designed to be a chart-topper; it’s a masterclass in the ways we use art to survive – which is to say, a masterclass in honesty.” I think this is so true, for the album, for Halsey as an artist, and for the way I feel about songwriting as an artist myself.
TRYING SOMATIC THERAPY – I needed a break after the traumatic end to my last relationship with a therapist but I still really needed help. I’ve reached a point where I don’t think talk therapy can do much for neurodivergence and trauma related issues (although I do think it can be helpful for working through certain things – I’m still in contact with a talk therapist I trust for when I do need that sort of support) so I started doing some research and ended up looking for a somatic therapist. I managed to find one really close by and I’ve had three sessions with her so far and I really like her; we get along really well and she just gets me. I can’t really explain it but I do think I feel different and I would recommend it to everyone, neurodivergent or neurotypical (I’ve already specifically suggested it to multiple people in my life, if only to get the short term relief I felt after the first session). We’re all carrying a lot of trauma these days, especially after the pandemic and with everything going on in the world, and the trauma of it all seems to be flying under the radar. I’m nervous to let my hopes get too high but I’m cautiously optimistic about how I might feel after more sessions in the new year.
NEW WORKING RELATIONSHIPS – This year I’ve met and worked with some truly amazing people that have made me so excited for my upcoming music releases. Up to this point, it’s pretty much been me, Richard Marc, and my Mum making things happen (and, of course, Josh of Sprogglet Studies who always does a fantastic job of mixing and mastering my tracks). But this year, I’ve met some wonderful people who really get me and get my music and, for the first time, I feel like I have music industry professionals (ones who I didn’t already know) who believe in me and who are passionate about what I’m passionate about and that means so much to me. I don’t want to say too much yet, since I haven’t made any official announcements about new music, but I’m so grateful to Tahnee and now Abi for everything they’ve done so far and for everything we have planned. I’ve also worked with some very cool photographers this year. In Nashville, I worked with Katie-Mac Photography and she had some ideas that, even now, I’m obsessed with; I only wish we’d had longer to explore them (and that the logistics hadn’t been so stressful). I did a shoot with Fraser MacKenzie, which was really fun; because we didn’t have a specific plan in mind, we were just able to improvise and see what worked and that was really cool. I’m learning so much through all of these experiences and so I’m really grateful for all of them. And then, of course, I finally got to work with Tom, who I’ve been chatting to for YEARS at this point: we’ve been talking about doing the artwork for this project ever since I came up with the idea and despite the pandemic and my health issues and our busy lives, we finally did it and it’s SO GOOD. I’m SO excited for people to see it; I’m absolutely obsessed. I also have to give Richard his own special shout out for all of the time and work and care that he’s poured into this project with me to make this new music; he has been my musical partner for over ten years now and I could not do it all without him. Making art with him is like making magic and our sessions together are some of my very favourite times. They, like our friendship, feel like anchors in my life and I can’t wait to create more stuff in the new year.
So I managed to finish it! It is still 2024. Just. I do want to get my unfinished 2024 (and 2023 – oops) posts up in time but I’ve been so hard on myself about it and that hasn’t gotten them finished or been good for me so I’m trying to just take my time and slowly get them done. Anyway. As I said, even though it’s been a tough year, there has been a lot to be grateful for and oh my god, do I feel grateful. I can’t imagine how any year could ever be like this year but who knows what next year will bring, good and bad.
Category: adhd, animals, autism, autism dog, emotions, event, family, favourites, meltdowns, mental health, music, self harm, special interests, therapy Tagged: amanda tapping, asd, autism, autism assistance dog, autism dog, autism dog cic, autism dogs, autism spectrum disorder, autistic, autistic meltdowns, basingstoke comic con, candi carpenter, cat, cats, caylan hays, chronic illness, disability, disabled, discrimination, dog, eras tour, eras tour london, family, family of cats, friends, friendship, friendship goals, grateful, gratitude, halsey, independent artist, ingrid andress, kalie shorr, live music, meltdown, mental health, nashville, new friends, old friends, pomchi, pride of cats, singersongwriter, somatic therapy, talk therapy, tattoo, tattoos, taylor swift, the companion, the great impersonator, the tortured poets department, therapy, therapy trauma, tin pan south, trauma, ttpd
Posted on April 1, 2022
I have been thinking about and wanting to get a tattoo representing my Autism for a really long time now. There is a tattoo I want to get first because the symbolism is important to me but being autistic is such an important part of my identity and I would, at some point, like to get a tattoo to commemorate that. But figuring out what the right one is is taking a while and a lot of thought.
In my search for inspiration, I’ve now seen a lot of different tattoos representing Autism and I thought I’d share what I’ve found as well as some of my own ideas…
I’ve done a lot of searching and as far as I can see, most people go with the obvious symbols…
Puzzle Pieces:
The puzzle piece is definitely the most well known symbol associated with Autism, having been used by Autism charities and organisations for decades. As far as I can tell, most autistic people feel that the puzzle piece symbol is, at best, problematic and, at worst, offensive in that it symbolises something missing, symbolises autistic individuals as being less than neurotypical individuals. But despite this negative view, most of the tattoos I’ve found online involve the puzzle piece in some way.

Top left (x), top right (x), bottom centre (x)
As I said in my post about symbols associated with Autism: “Personally, I don’t hate it as a symbol. To me, the puzzle piece doesn’t represent something that’s missing; it represents the idea that we’re all puzzles and we wouldn’t be complete without every single thing that makes us who we are. We’re mosaics and we are who we are because of each piece that builds up the picture. I know many people feel that Autism isn’t just one piece and I agree but my point is that I don’t see the puzzle piece as something missing but as something fundamental. So I don’t hate it but I think it’s history – it’s original meaning – is too entrenched in society’s consciousness to ever really be changed. I doubt it could ever be a purely positive symbol at this point.” Personally, I wouldn’t choose it for a tattoo that represents my experience of Autism.
Infinity Symbols:
I’ve also seen infinity symbols come up a lot in the symbolism around Autism…

(x)
I understand why people like the infinity symbol and while there are some gorgeous tattoos out there (like this one), it just doesn’t really resonate with me as a symbol for Autism since it relates to so many other things. It doesn’t specifically represent Autism to me and that’s what I need this tattoo to do.
Rainbows:
Some people use rainbows to represent Autism, most likely a reference to the Autism ‘spectrum’…

(x)
While this is my preferred of the common Autism imagery, it feels too close to the LGBT+ rainbow flag. I’m queer and so I wouldn’t feel like I was appropriating the imagery but there’s a reason why these identities and causes have their own colours, right? Being LGBT+ and/or being autistic are both really important parts of who we are and I think, by using the same colours for these two identities, there’s potential for confusion when that’s the opposite of the point of these identifying colours and symbols. Maybe I’m overthinking it but it doesn’t feel like enough if it could be mistaken for something else.
Combinations of the Three:
Most of the tattoos I’ve come across involve at least two, if not all three, of these…
Left (x), centre (x), and right (x)
Some of them are really beautiful but none of them feel right and, for me, being autistic is so much about feeling that it has to feel right – beyond the idea that, if you’re going to have something on your body for the rest of your life, you’re going to want it to feel right.
Takiwātanga:
‘Takiwātanga’ is the Maori word for Autism and translates as ‘in their own time and space.’ This seems to be increasingly popular, I imagine because of the feeling of acceptance it evokes.
I really like the sentiment and I’ve seen some stunning tattoos that incorporate the word, the two above included, but I’m not sure it’s right for me. As much as I loved the parts of New Zealand I’ve visited – I think it’s the country I’ve felt most at home in – I’m not sure a word is what I want or what feels right for this tattoo when, so often, being autistic feels so difficult to describe.
More Unusual Ideas:
While the previous images and symbolism seem to be the most common, I have seen other beautifully creative ways of representing Autism…
To me at least, these tattoos seem more like the individual’s representation of Autism or something symbolic of it and I guess that’s what I’m looking for: my personal symbol or imagery representing my experience of being autistic. I just haven’t found it yet.
Ideas I’m Thinking About:
There are a handful of ideas that I keep coming back to so I thought I’d include those as well, just in case they resonate with anyone else. None of these images are exactly what I’d choose but they do illustrate the general ideas I have.
Circle of Three
The Circle of Three is a symbol for Autism created by Lori Shayew and Kelly Green to represent the different aspects that make up each individual person: “In light of the recent news that the rainbow is not an arc, but a circle. (Thanks for the proof NASA) It’s time to recreate the new model. Colours of the rainbow weaving in motion. We are recognised for all of our colours… It’s time to break down the spectrum (low-mod-high) and allow our innate gifts to bloom and flourish. Don’t we all excel at some things, but not in others? No big deal. We can jump from yellow to red to indigo to green and back again. Maybe then there are no colours, only light.”

(x)
I really like this as a similar but distinct variation of the rainbow and the way that it can be personalised according to each person: all you have to do is assign colours to different areas of your life – as you feel comfortable doing so – and then interweave them in a way that best represents you as a person.
A Whale
A long time ago, before I was diagnosed as autistic, I read the story of The Loneliest Whale – a whale who’s call is indistinguishable to other whales – and I’ve never forgotten it. I related to it at some level and that connection I felt has never gone away. I want to write more about this whale and how multiple communities have felt a connection to it and found solace in the story but now’s not really the time.
I’m not sure the whale alone would be enough to represent my being autistic but for me, that connection is there so it wouldn’t surprise me if the image of a whale found its way into my Autism tattoo.
The Use of the Rainbow or Colour Spectrum
Light and colour are important to me and to my perception of the world, particularly my perception of music, which is possibly the most important thing to me. So, the inclusion of a rainbow or spectrum of colour isn’t out of the question. I’m just not sure how.
Space
Being autistic, I feel so incredibly sensitive to the world around me. Sometimes it feels like I can feel the waves and particles in the air, the vibrations of every thing, the world turning, the frequencies of stars… It’s like all of my senses have been calibrated to be extra sensitive, too sensitive. And for some reason, that makes me feel weirdly connected to space and to stars. So the presence of these in a tattoo representing Autism would make sense to me.
Again, like the whale idea, it couldn’t exist on it’s own but I can imagine it as part of something bigger, although I wouldn’t want it to be a huge tattoo.
A Combination?
At this moment in time, the idea that feels most comfortable – feels most representative of my experience of being autistic – is something like this…
Something along the lines of these tattoos, but that involves some of the elements I’ve talked about or even all of them, is what I’m thinking about currently. But as I’ve said, I want to get it right so I’m taking my time to think through every detail and make sure I’m sure.
Getting a tattoo is not going to be an easy thing for me. I’m sensitive; sensory information is always loud for me. The sound won’t be easy. The pain won’t be easy (I’m sensitive to it but not afraid of it). The ongoing anxiety around COVID won’t be easy. So, yeah, it won’t exactly be fun. That’s part of the reason I want to get a smaller, simpler one first. But this is important to me so I am going to make it happen.
Do any of you guys have tattoos that represent being autistic? Being neurodivergent? I’d love to see them!
Category: about me, autism, body image, identity Tagged: asd, autism, autism spectrum disorder, autism symbols, autism tattoo, autistic, circle of three, infinity symbol, maori, outer space, puzzle piece, rainbow, space, spectrum, symbolism, takiwātanga, tattoo, tattoo idea, tattoo ideas, tattoos, the loneliest whale, whale
Posted on November 23, 2020
For a long time, I avoided all things superhero because they reminded me of my Dad who died suddenly in 2008, when I was thirteen years old. He loved superheroes and passed that love on to me: we’d spend Saturdays watching Justice League and Teen Titans, drawing the characters and designing our own heroes and villains. It was something really special that we shared but when he died, they just became a painful reminder of what I’d lost. So I avoided anything related to superheroes for a long time.
But then, at some point in 2015, I stumbled upon Agents of SHIELD and instead of the hollow ache that I’d come to associate with anything superhero related, something just pulled me in. I loved the characters, I loved the relationships, I loved the stories and the different aspects of sci-fi and drama and action that they explored. I also loved how they didn’t take themselves too seriously, but how they also let the heavier moments rest and breathe. I can’t really explain it but for the first time I felt comforted by the superhero world, rather than saddened by it.
I instantly loved Daisy Johnson. Now, I could write a thesis on her (I’ll try not to, I promise). She’s smart and funny and tough; she also feels her emotions deeply and is incredibly driven, often by those deep emotions and her sense of what’s right and wrong. Over the seasons, we see her go from a foster kid turned hacktivist, trying to find information on her parents to a loyal, dedicated agent and superpowered hero. Of course, she grows up and goes through a lot in that time: she’s betrayed by people she trusts; she develops powers that allow her to manipulate vibrations, to the extent that she causes earthquakes while unable to control her abilities (or emotions); she discovers that she’s a descendant of an ancient race that call themselves Inhumans and finally meets her biological parents, only to be caught in a war between the Inhumans and SHIELD; she guides new Inhumans as more and more gain their abilities (a result of the war); she becomes a leader; she loses more loved ones than anyone should; she isolates herself after she’s brainwashed, unable to forgive herself for the harm she causes; she struggles with trust and guilt and how dangerous her powers make her; she finds herself in a virtual reality, in a dystopian future, far out in distant space, in an alternate timeline… But through all of that, she finds family in her team and a place to belong in SHIELD, two things she’s spent her whole life searching for.

She’s not perfect, of course – she makes her fair share of mistakes and bad decisions. Sometimes she hurts the people she loves. But while every blunder becomes a part of her, she doesn’t allow them to define her. She’s defined by the future, by what she does next. She inspires me to be the same. And above all else, her motivation is to help people and that’s something that’s never changed; it’s something that’s at the very core of her and I find that really inspiring too.
The show ended a few months ago and if I’m honest, I’m still trying to get my head around that. How can my favourite show be over? But if it had to end, they couldn’t have done a better job. The last two episodes of the season are some of the best they’ve ever done (although I’m not sure anything could surpass the legendary time-loop episode) and the final scenes are as heart-warming as they are heart breaking.
*Major spoiler alert* The season (and the show) end with the team meeting (bizarrely enough, through an ultra sci-fi version of Zoom) for the first time in a year. They catch up for a few minutes before leaving one by one, giving us the opportunity to see what adventures they’re in the midst of now. Eventually the only two left are Daisy and Phil Coulson (“It was so special to have that moment with Clark [Gregg].” Chloe Bennet says), without whom the show would never have existed. It’s kind of funny: the show would never have existed without Coulson and neither would Daisy, had he not pulled her out of her van and onto the SHIELD plane. From that moment on, there’s something really special about their relationship. Every relationship in the team is unique and special but there’s just something about Coulson and Daisy’s relationship that has always felt bigger than words. There’s definitely elements of student-teacher, best friends, partners in crime, and father-daughter (the last comes up throughout the show), but again, it seems to transcend all of those. The actors seem to agree, and both have spoken about how similar that relationship is to their relationship in real life.
“It’s such a dynamic friendship in a way that you don’t really see that often in life, let alone on TV. He is a coworker, and people say father figure, but he’s so much more than that. He’s a friend, a mentor, he’s hilarious. I just feel so special to have such a unique, dynamic relationship with this person. And obviously that shows up on camera and it’s nice. It’s really special.” (x)
“From the first interrogation scene with Skye, after we pulled her out of her van, there was just something different about Chloe Bennet. And the way she has a realness and a fire to her as a performer. There are a lot of great actors to work with on that show but the through line of that relationship, that friendship, that family-type relationship… people say father/daughter, and it definitely has that in it, but I think, like my relationship with Chloe, it has so many permutations and it isn’t that simple. Where she’s helping and teaching and rescuing me as much as I’m doing that for her. For me, it was that part of the show where I grew the most as an actor and as a human,” says Clark Gregg. (x)
This relationship has always been one of my favourites on the show and one that’s felt very close to my heart. Maybe that’s due to the loss of my own father and watching a character I love and relate to find that relationship, I don’t know. But I’m grateful that we got one last moment between the two of them. The atmosphere is warm and supportive, and they exchange a few meaningful words before parting. Daisy tells Coulson that he’s still needed out in the world, finding new recruits for SHIELD, commenting on one final thing that has come full circle in this final episode: Coulson was the first person to believe in her, which ultimately led to who she is today and now she is following in his footsteps, the first to believe in her sister (discovered in the alternate timeline) and guiding her on the road to becoming a SHIELD agent. It’s a very emotional moment, even as the actors carry it off effortlessly.
Coulson leaves and Daisy takes a moment to look around at all of the empty chairs. But it’s not the end. She evidently has ongoing secret communications with Simmons and they’ve promised to meet up as a team at the same time and place every year (although, in my head, they meet in various combinations between those full team gatherings). Then she removes her communications device and we discover that she’s on a spaceship – the commander of said spaceship – with Daniel Sousa (her new, taking-it-slow-but-utterly-head-over-heels-for boyfriend) and her sister, Kora. And the last we see of her is the three of them staring out at a stunning nebula.
(Apparently the nebula was never officially named but Jed Whedon, writer of the episode, left it as: “The three look out at the Nebula, an otherworldly multicolored cloud of space dust. A new family.” (x) That made me super emotional: the show began with Daisy searching for her family, finding a completely unexpected family in SHIELD, and the show ends with her building a family, or an extension of her existing family. So that quote felt very special.)

In these final scenes, there’s something different about Daisy. Yes, she’s still Daisy – there’s always been something incredibly consistent about her as a character, right from the beginning – but there’s also something we haven’t really seen before. There’s a sense of calm, a sense of peace. She knows who she is, she has complete faith in herself and her abilities, and she’s surrounded (physically and emotionally) by people who love her and support her. As Chloe Bennet says, “There’s a lot more groundedness within her.” She’s grown into someone her season one self could never have imagined and it’s incredible. I found it more inspiring than I can put into words, considering how much of myself I see in her as a character. Her ‘ending’ gives me hope.
I got caught up with season seven a few days before the finale. It was clear the finale was going to be incredible and I just felt that I wanted to do something to commemorate how much the show and how much Daisy meant to me, how much of an effect they’ve had on my life. I thought about it and decided that I wanted to get a daisy tattoo: to remind me how much this show and this character have meant to me and helped me through hard times; to remind me of Daisy and all of the things about her that inspire me, like her determination, her strength, her resolve to help people, and so on; to honour the love of superheroes I share with my Dad and that connection we will always have.
At some point between that moment and the finale, Chloe Bennet posted on Instagram, asking for suggestions as to what she should do with all the stuff she’s collected from her time on the show. I replied with some ideas but I also thanked her for all the show and Daisy have done for me, as well as my plan to get a daisy tattoo. And then – on the day of the finale, a plan she’d apparently had for a while – she posted a couple of photos on Instagram… of herself getting a daisy tattoo.
I couldn’t believe my eyes. It put the biggest grin on my face. I loved the idea that we’d both had the same thought process over commemorating Daisy, although obviously Chloe Bennet’s relationship to Daisy is on an entirely different level to mine. In one interview, she said: “I definitely would [play her again]. I mean, I have such a soft spot for her. I started shooting the show when I was 20, and then I finished when I was 27. To get this time right now, in isolation, to kind of contemplate the past seven years and how much it’s meant to me – it hasn’t really hit me yet that the show is over, so it doesn’t really feel like I’m done playing her yet.” And in another, she said something similar: “I don’t feel like I’m done playing her. I feel like there’s room in the Marvel Universe for more Quake. So hopefully you’ll see that happen!”
When this fan-made trailer appeared, at least half the internet fell for it, believing that a Daisy centric show was in the works. You’ll see why when you watch it.
It’s stunning, a perfect summation of Daisy’s story so far and an exciting look at how her story could continue. As much as I’d love a show about Daisy, or really just any extra Daisy content, the idea does make me a little nervous. She’s been so beautifully developed as a character that I’m not sure I’d trust her with anyone but Jed Whedon and Maurissa Tancharoen (the main showrunners of the series from the start). But knowing how much Chloe loves Daisy, I doubt there’s any reason to worry; Daisy couldn’t be in safer hands. I love Chloe Bennet and find her hugely inspiring too but I think I’ll save that for another post, otherwise we could be here forever…
And as I said, I probably wouldn’t have had any of this without Dad. And while the loss of him – that scar, that hole – will always be there, having this thing that he loved so much – this love that he passed on to me – back in my life has been a healing experience. The characters, the stories, and the lessons they teach us are his legacy to me and I’m grateful for whatever it was about Agents of Shield that made me feel able to engage with these worlds again.
Today would’ve been his birthday and while I have no way of knowing what life with him in it would have looked like, I like to imagine that we would’ve spent the day together: swimming in the morning (another thing we often did together) and then spending the afternoon and evening curled up on the sofa, taking turns choosing episodes of our favourite superhero shows. And I have no doubt that a great deal of them would’ve been from Agents of Shield.
Category: about me, death, emotions, favourites, video Tagged: agents of shield, agents of shield finale, agents of shield season 7, alternate timeline, bereavement, birthday, canon, chloe bennet, clark gregg, coulsonlives, dad, daisy johnson, daisy tattoo, death, family, fan made, fan made trailer, fantasy, father, favourite, favourite tv show, finale, finale episode, friendship, grief, guilt, headcanon, hope, inhuman, inhumans, inspiration, inspired, inspiring, instagram, jed whedon, legacy, loss, marvel, marvel universe, maurissa tancharoen, memories, phil coulson, powers, quake, quote, relationship, skye, space, superhero, superheroes, superpower, superpowers, tattoo, timeline, trailer, trust, tv show, video

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope