Posted on January 11, 2020
So, for those of you who don’t know, DSA stands for Disabled Student Allowance, something you can apply for as a disabled student to help you get support during your university experience. They can help you with technical support, in uni support like 1-to-1 sessions, and so on. You apply for an assessment and then, if you get one, you talk with the assessor about the support you need, discuss what DSA can provide you with, and then they make a recommendation.
I had an assessment during my undergrad degree and they were really good. They provided me with a load of useful tech, including a macbook, a handheld recorder, and several pieces of software to make doing my work easier. I was (and still am) really grateful, even though the laptop’s memory isn’t actually big enough to run all of the software. It was still a laptop and a much lighter one than the one I had, which made commuting a lot easier – I was coming home with bruises from the bag I was carrying because it was so heavy.
The at uni support was less helpful. The first person I saw acted like a therapist (which I’m not sure she was supposed to be doing) and I already had a therapist so that wasn’t helpful. I spent the hour answering questions about my mental health and my Autism that I’ve answered a hundred times before. So I didn’t continue with that. And the second person upset me so much that I left before the session finished.
So it was a mixed experience but I’m endlessly grateful for the laptop because the old one was causing me serious problems.
I had to redo the application process for my Masters as what they offer is different and today I finally had my assessment – between the disability coordinator being very unhelpful (an understatement) and the semester being incredibly stressful, we’d just kept postponing it. It was too much to manage. But recently we finally managed it and it was a complete nightmare.
The guy was nice and we discussed everything – the problems with the disability coordinator, my first semester, my general experience of life, what would make university easier – but when it came to talking about what support was possible, it was very disappointing and upsetting.
Technology wise:
This is despite the fact that I need a light laptop, due to the chronic fatigue and pain I struggle with and an Apple one to run the software I need for the course. But apparently this is because these are ‘course specific’ needs rather than disability needs, yet I – a disabled student – can’t do my course without them.
Travel wise:
This is because, apparently, I choose to live at home rather than living in London like most students studying in London despite the fact that I am unable to live alone and look after myself because of my disabilities. Apparently, this would give me an advantage above other students, which is bullshit because in reality, it would simply put me on a level playing field because I am disadvantaged by my disability. And the amount of effort that would go in to justifying each cab trip to Student Finance when Mum usually takes me (because they won’t simply give you an allowance for it) would take more effort and energy than I have to spare on something used so rarely.
And uni support wise:
So I will continue to have no specialist support at uni.
There was a moment during the discussion that I just realised that they weren’t going to help me and that I was going to be left unsupported, abandoned, again. And I just started crying. They’re not going to provide me with any support because my needs don’t fit their guidelines, because my disability doesn’t fit with their idea of disability. The assessor said it happens to a lot of people like me. I’m not sure why he told me this. Is it supposed to make me feel better? Because it doesn’t.
We’d run out of things to discuss so the assessor left the room to give us a few minutes to talk and I just started sobbing. I just feel so unsupported. I feel so let down. These are people who are supposed to help me. Their very job is to help me and they are… letting me down. There was nothing to talk about and I was moments away from a meltdown so Mum packed me up and we headed for the door.
I was passing through the door when I saw this:

What a joke. What a fucking joke. I’d walked in there calm and was walking out feeling… I don’t even know how to explain it. Just devastated all over again, I guess. I’m so tired. I’m so tired of working so hard to prove to everyone that I need help only to be ignored time and time again. I’m tired of being dismissed and invalidated because I don’t fit someone else’s arbitrary concept of something they have no real idea of but that I live with and suffer with every day. I’m tired of nobody thinking that researching or training in the understanding of Autism is important. I’m so tired. Of all of this.
Mum pointed out to the assessor how ironic the flyer was. I think offensive or appalling are more appropriate given the previous hour and a half but whatever. I cried all the way home and for a long time afterwards. I don’t know what to do now.
Obviously this is just one person’s experience. I’m not sharing this because I want people to avoid applying for DSA. It helped me during my BA. But I just don’t want anyone going into it without knowing how hard, how upsetting, how traumatic it can be. Getting benefits of any kind can be a real struggle and this one is certainly no different.
Category: anxiety, depression, event, meltdowns, mental health, university Tagged: asd, autism, autism spectrum disorder, benefits, chronic fatigue, chronic fatigue, disability support, disabled, disabled student, disabled student allowance, dsa, dsa assessment, masters, masters degree, student, university support
Posted on January 4, 2020
So the 19 for 2019 was probably overambitious, especially considering the instability of my mental health. I just didn’t realise how fragile it really was until it crashed. A lot of this year is going to be about looking after and rebuilding my mental health. So this year, I’m going for something a little gentler: a handful of goals that aren’t super specific. They’re more about trying than achieving.
GET BACK TO SWIMMING – For a year, I swam almost everyday and I loved it. It made me feel really good in my body. But then the depression, the medication side effects, the fatigue, and the meltdowns all made that impossible. I was either too unwell or too physically weak. But I really miss it. It wasn’t possible during the first semester of my Masters (my anxiety was so high and I was having so many meltdowns that I just didn’t have the energy) and I’ve spent the holidays working on my assignments but I’m optimistic that this next semester will be a bit gentler and I’ll have the time and energy to start building the swimming in again.
START WEARING MY INVISIBLE BRACES AGAIN – Again, I did really well at this for a while but the mental health crash derailed it and it was just one thing too much. I was going through so much during the day that pressure in my face during the night was just more than I could take. But my teeth haven’t completely regressed so at least I’m not starting from the beginning. I’m wearing them again and it’s uncomfortable and hard but I’m trying my best to focus on the end goal: straight teeth that make me feel confident when I smile.
COMPLETE YEAR 1 OF MY MASTERS DEGREE – Because of the way the part time course is set up, I only have one more semester this academic year and from what I understand of it, it shouldn’t cause me the same levels of anxiety as the last one, as much as I enjoyed it. I’m also kind of looking forward to the assessment because it’s an essay where you can write about anything music related. How cool is that?! All the possibilities! And that’s year one done so all things going well, that should be possible. I’m cautiously optimistic.
CONSUME NEW MEDIA RATHER THAN JUST FAMILIAR MEDIA – With all the mental health stuff, it’s been hard to engage with anything that isn’t safe and comforting. It’s been especially difficult in the last few months when my OCD has been so bad, because it’s hard to concentrate on something new when I’m trying to write everything down. I’m going to be working on that specifically but also my mental health in general this year so hopefully those needs won’t take up so much time, leaving some time for watching, reading, and listening to new things.
GET BACK TO THERAPY AND FOCUS ON MY MENTAL HEALTH – I only went to therapy sporadically in the second half of the year last year because my therapist and I couldn’t get our schedules to match up and because of certain things going on in our lives and although I don’t yet know my timetable for the new semester, we (me, my Mum, and my therapist) are all determined – furiously so – to make it work because I really need the support. Things have gotten really bad and I really, really need the support.
WORK ON NOT COMPARING MYSELF TO OTHERS IN MUSIC – This is probably the hardest one and a lot of the time, it feels unbearable to even think about. While I need to work on not comparing myself to others in general – in all situations – I figure that’s too big a task for such a difficult feeling so I just picked one area. Music has always been my happy place and I want it to stay (or go back to being or something) my happy place and it’s not, when I look at other artists and feel lost and sad and lonely and angry and bitter. So I want to work out – probably with therapy – how to focus on me and not worry about other artists beyond a practical, objective sense. This feels really, really hard so I don’t know if I’ll manage it in a year or whether I’ll even manage to start but I want to so I’m trying to think about it and figure out a place to start because I don’t want to feel all of these things. I want my happy place back.
So these are my goals for this year. It’s difficult to really even think about things like this at the moment because everything feels so, so hard that I just feel overwhelmed. I feel like everything chips off pieces of me and at twenty five, I shouldn’t feel so small. I shouldn’t feel like there’s so little left of me. I’m struggling and I don’t know how to keep going and I don’t know what to do and a big part of me wants to just give up but I don’t know how. How do you give up? Because life just keeps going on without you. I guess that’s why my main goal this year is my mental health because I don’t know what to do anymore.
Category: book, mental health, music, therapy, treatment, university Tagged: 2019, 2020, anxiety, books, comparing, comparing myself, dbt, depression, dialectical behaviour therapy, goals, invisible braces, masters, masters degree, masters degree in songwriting, mental illness, movies, new year, new years resolutions, obsessive compulsive disorder, ocd, struggling, surviving, swimming, tv shows
Posted on December 31, 2019
I don’t even know how to sum up this year.
If I’m honest, most of it’s blurry. The first half of it anyway. I was still trying medication after medication so I was kind of living in a haze. It’s scary to look back at a time not that long ago, search for memories and not be able to find them, find the details. Or worse, not even know what memories to look for. I hate it and it’s scary and I try not to think about it. Thank god for photos though. Looking back through my photos helped me to remember and I’m grateful for that.
I got to go to the opening night of Waitress The Musical and to my complete surprise, Sara Bareilles was there, both to introduce the show and to bid us all goodnight. The show was amazing: I loved the music, I loved the characters, I loved the story, and the meaning in the story. And seeing Sara Bareilles in person for the first time since 2014 was extra special.

I also got up stupid early to see her do a surprise set in St Pancras station. Apart from the fact that she has an incredible singing voice and is a great performer, even just sitting at a piano, there’s something magical about seeing a person you admire so much in real life. And my Mum was a trooper, running after her team (my medication meant I could barely stand up for the whole performance) and making sure she got my letter. So that was a good morning, even if I felt very unwell for the rest of the day (I’d overstretched, given the meds I was taking).
We had a nerve-wracking few weeks where our dog, Lucky, was incredibly unwell. I saw it happen: his head just tilted to the side and he stood there, looking so… wrong. I was convinced he was having a stroke. Plus his eyes were moving back and forth really quickly; I couldn’t imagine how he could even see. Despite a trip to the emergency vet then and there, we didn’t find out until the next day that he had Geriatric Vestibular Disease, which is basically vertigo. He was really, really sick. He wouldn’t eat and that’s really the sign that a labrador is sick. Mum was feeding him pieces of boiled chicken by hand just to keep him going. They gave him a morphine patch but that just made him sicker so they eventually removed it. It took a long time but eventually he was back to his old self. It’s not the same: he has a permanent head tilt, his balance is terrible, he can have trouble walking. But he seems to be happy and he’s certainly loved. So we’re getting through. Day by day, we’re getting through.

I was fortunate enough to go to Nashville again, which was amazing, even though I was really, really struggling on my medication. I was depressed, overwhelmingly anxious, and my hands felt thick and clumsy, making playing guitar a real ordeal. As wonderful as it was to be in Nashville, I felt very guilty for not being as happy as I felt I should be.
Having said that, I had some really great experiences while I was there. I got to go back to my favourite places, see two Song Suffragettes shows (which are always such special experiences for me), and hang out with my friends who I only get to see once a year. I didn’t get to see everyone but I had a lovely time with the people I saw. I even got to see the awesome Caylan Hays play a show and hear all of her new songs. That was really, really special.

Tin Pan South was amazing as usual, although I had to make some tough decisions over which shows to go to. They were all amazing though. My favourite was Nick Wayne, Hannah Ellis, Josh Kerr, and Natalie Hemby. Natalie is another person I hugely admire and she actually knows who I am now, which I’m honoured by. We got to have a proper conversation, which was one of my favourite moments of the trip. And I’d love to write with her one day: that’s a bucket list write.


I also got to see Kelly Clarkson (who I’ve always, ALWAYS wanted to see live) in concert and Kelsea Ballerini was the opener, which was awesome because I love her. It was an amazing concert and I loved every second of it.
It was an amazing trip but I hope that next year I’ll be in a better place, a place where I can enjoy it properly and effortlessly. I think that’s gonna be one of my goals for 2020.
Here at home I also got to see some amazing concerts. My favourites were Maren Morris (I saw her twice but the second time was front row at the Royal Albert Hall, which was the most surreal, amazing experience) and Ingrid Andress, who had the whole crowd singing despite only having released a few singles. It was amazing. And she remembered me and we talked about writing together when I’m next in Nashville, although I’m now not sure it’s going to happen. But it was amazing to know that she was up for it. Hopefully one day.
I also saw Halsey in a super small venue and she was fantastic. We had trouble with the accessibility, which caused me a lot of anxiety, but the show was incredible. She’s an amazing, amazing performer. I love her. But I feel very out of place at her concerts, which is hard.

I, with Richard Sanderson (Richard Marc on social media), spent most of the year working on my first EP. It was such a learning curve but I loved it, for the most part. It took an exceptional amount of work and I have to give so much credit to Richard and to Josh Fielden who mixed the songs because part way through, I tumbled into a really deep depression, accompanied with the worst anxiety I think I’ve ever experienced. It took a long time for me to get back to a place where I could work on it. It’s part of my musical story so I’m really glad it’s coming out, even if I still have a lot of anxiety about it. If you’ve been following this blog, you’ll know the story of the first single and you’ll know more about the rest of the songs soon.

I spent several months in a deep, deep depression, the worst I’ve ever experienced. I basically lay on the sofa and thought about dying. It was awful. I don’t really know what else to say about it. It was just still, but with a mess of agonising turmoil underneath.

Then, in the middle of the summer, one of my cats had kittens, despite the vet telling us in her vet check the week before that she absolutely wasn’t pregnant. We came home from dinner and Mouse was waiting for us. She took me upstairs to my room, curled up in one of the cat beds, and over the next few hours, she had a couple of tiny, adorable kittens. She got distressed every time I tried to leave so I stayed through the whole thing (and saw some pretty disgusting stuff that I never needed to see).
Having the kittens in my life has done wonders for my anxiety. Watching them grow and play and explore was so calming and mindful for me. And now that they’re older, all five cats play as a family. They’re a pride. It’s gorgeous. I don’t know what the future holds but having them in my life has been one of the most, if not the most, positive thing this year. I’m really, really grateful for them. Having said that, everyone’s spayed now so there won’t be any more surprises, which is probably – definitely – a good thing, as adorable as kittens are. The stress is just too much.
Somewhere in the middle of the holidays of kittens, I started taking Phenelzine again, which was a really difficult decision. I’m still struggling with the side effects but I am better than I was. I still have moments of depression but it’s not constant and I’m managing the anxiety with other medications. And best of all, I can write songs again. That is the best possible outcome.
September loomed and I spent time with the Disability Coordinator at my uni, something they had never had before. I actually felt hopeful about having someone who understood me. And then, she became extremely unreliable and that resulted in one of the worst meltdowns I’ve ever had – in the middle of Victoria Station. That triggered a period of multiple meltdowns a day, which turned the weeks into a blur. It was awful. I started my Masters Degree in Songwriting in one of the worst states I’ve ever been in.
Despite being part time, the Masters took up every day of the week, working on songs and trying to research while battling my OCD, which had suddenly spiked. I had no time off, no time to breathe. I felt like I was failing at everything. I think I’ve gotten better at managing it (and it’s going to be a focus in therapy when we start again in the new year) and I managed some research and I wrote some songs I’m really proud of. I enjoyed the course and classes but balancing everything with Autism and mental health problems was a nightmare. I’m going to write a post about the course in more detail but it still needed to be included in this post.
Oh, and somewhere in there, I turned twenty five. My Mum bought me twenty five yellow roses.

The first single of the EP came out a few weeks into the course and it was a complete surreal – if incredibly stressful – experience. I had no idea what to expect, especially since I’m an independent artist, but for what was really a first, first single (considering ‘Invisible’ had no marketing and so on), I think it did pretty well. It got added to several playlists on Spotify and had radio play, local and BBC Introducing. That’s been amazing and I’m excited to see where the next one goes.
And now I’m finishing the year with basically no Christmas break because I’m working on the assessments for my course everyday. They’re causing me so much stress I feel like I can’t breathe. I’m also terrified of the fireworks tonight (another story I’ve talked about before) and don’t know what I’m going to do to avoid them because I have work to do and they cause awful meltdowns. So, all in all, not the best way to end the year. I’m cautiously optimistic about 2020.

“2019 has been an incredibly difficult year. I feel broken. I feel like I was shattered into a thousand pieces and then put back together wrong. And if I’m honest I don’t know what to do about it. But there were good moments too and I’m so grateful for those. 2020, please be kind.” (x)
Category: about me, animals, diagnosis, emotions, holidays, medication, mental health, suicide, therapy, treatment, university Tagged: 2019, 2019 in review, 2020, antidepressants, anxiety, bad night, birthday, cat, caylan hays, concert, debut ep, depression, dog, halsey, ingrid andress, kelly clarkson, kelsea ballerini, kitten, kittens, maren morris, masters, masters degree, masters degree in songwriting, meltdown, meltdowns, mental illness, nashville, natalie hemby, obsessive compulsive disorder, ocd, phenelzine, reflection, richard marc, richard sanderson, sara bareilles, song suffragettes, songwriting, suicidal, tin pan south, waitress the musical

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope