Posted on May 13, 2023
So yesterday was the 12th of May, also known in the UK as Mass Observation Day! Every year, the Mass Observation Archive asks people to keep a diary for the day in order to record the everyday lives of the UK population. I’ve been keeping diaries for most of my life and I think that the idea of pulling together all of these accounts in order to get a picture of an ordinary day in the life, whatever that might look like, for a big group of people is really, really cool so I always try to participate. Here is my contribution for this year.
Some important things to know before reading: I’m neurodivergent, autistic and ADHD, and struggle with multiple mental health issues (Depression, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, and Borderline Personality Disorder) and physical health problems (Hypermobile Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome). Having spent eighteen months in the worst depressive episode of my life, I’m recently back on medication and trying to get my feet under me again, working hard at both therapy and hydrotherapy. I’ve also recently released my latest single as a singersongwriter, ‘House on Fire,’ and am working towards several other projects.
I slept through two alarms, completely exhausted. I’d had a really late night in London seeing Ingrid Andress in concert (supported by Nick Wilson), which was absolutely amazing but between the energy expended and how late I got home, I was beyond tired.
When I finally managed to force myself awake around eleven, I lay in bed for a little while: I did a quick check in with social media (I’m trying really hard to find a healthy balance around time on my phone), did some Duolingo practice, and read a little bit of my book (both of these things are habits that I’m trying to practice daily). Then I got up and got ready for the rest of the day.
At one, I had a Zoom date with one of my best friends. We had a good catch up about what’s being going on for each of us, with many a tangent on kind of bizarre topics like alternate universes or the different sounds that insects make. And then we continued watching the TV series we’ve been watching together for the last few months, a series we both enjoyed when we were younger; we love it but we also love making fun of it so we always have a blast. We managed to watch two episodes and had a great time before I had to go. I didn’t have long before my therapy appointment so I got my bag ready and then fiddled around on my guitar until I had to leave (I haven’t been able to play for long stretches of time recently since I hurt a couple of my fingers so I’m trying to build it up again).
I was so tired and really sleepy (one of the ongoing symptoms of my health struggles and quite likely a side effect of my medication), plus my chronic pain was pretty bad (my shoulder and knee have been particularly painful for several days now), but I tried my best to push through and engage the best I could with therapy. In some ways, it was a fairly chilled session (as they go): my therapist had asked me to send her the poetry I’ve been working on over the last month or so, which I did. But it was also hard and I felt really vulnerable because most of the poems are so honest and so revealing. There were some that I said, before we even started, that I couldn’t talk about; just writing about those topics and sharing them (my anxiety about them was so high that I was really tempted to leave them out) was a big step forward. Obviously I want my therapist to know about these struggles but talking about them is beyond difficult (just the thought of it makes me want to scream or run or both); this is the best I can do for now. So we went through the poems, talking about what inspired them and my feelings about those people or experiences or struggles, which inevitably turned into bigger discussions. That meant that we didn’t get through all of them but we did cover some important stuff. I’ve been back at therapy for a while now – several months – but my new therapist is still getting to know me and I’m still getting comfortable with her; there are many things that I can talk about but there are still things that I can’t, things that I’ve never been able to. It’s a process, as I often have to remind myself.
Back home, I talked with my Mum about some of the stuff that had come up in the session but I’m always completely exhausted after therapy – I have been known to fall asleep on the sofa afterwards, hence the late afternoon appointments – so I checked in with the cats, put on The Good Place (my current rewatch), and lay on the sofa for a bit. I called one of my parents for a catch up, had some dinner, and then spent the rest of the evening working on some different things for this blog.

What should’ve been a fairly pleasant evening was complicated a bit by how bad my hair pulling has gotten. That restless, anxious energy that drives me to keep doing it is so hard to resist, especially when I’m tired, and the longer I do it, the more it hurts: my scalp, my neck, my shoulder, my elbow, my hand. But I can’t stop. There have been periods of time where different coping mechanisms have at least reduced the amount of hair pulling but I don’t have one that’s working right now. It’s frustrating and it’s exhausting and painful but I just can’t stop, regardless of how much I want to. I did look into Hypnotherapy briefly a long time ago but didn’t get very far with that endeavour, maybe because it always felt like there were bigger things going on, but maybe I’ll try again because it’s been ten years and it would be really nice not to do this anymore.
Given how tired I was, I tried to go to bed earlier – I’ve been going to bed far too late – and while I did go to bed a bit earlier, I still ended up staying up too late, catching up with my diary. I had multiple cats curled up with me, which was very sweet, so it could’ve been worse and, after all of my problems with sleep, I did at least go to sleep quickly and easily; I’m always grateful for that now, having struggled so much over the last couple of years.

So it wasn’t the most fascinating day of my life but it’s pretty accurate to my life right now and I guess that’s the point of the exercise. It’s a normal day in my life and this is what normal looks like right now, for the most part.
If you keep a diary or want to note down some thoughts about what your 12th of May looked like, the website is here, where you can learn more about this project (and their other work) and submit your entry if you would like to.
Category: animals, anxiety, chronic fatigue, chronic pain, depression, emotions, family, food, medication, mental health, music, response, special interests, therapy, trichotillomania, writing Tagged: 12th may, anxiety, best friend, chronic fatigue, chronic pain, concert, depression, fatigue, friend, hair pulling, house on fire, independent artist, ingrid andress, live music, mass observation, mass observation archive, mass observation day, mass observation day 2023, mental health, music, new music, new therapist, nick wilson, pain, poetry, singersongwriter, songwriter, songwriting, the good person tour, therapist, therapy, trich, trichotillomania, writer, writing, zoom
Posted on May 15, 2021
On the 12th of May every year, the Mass Observation Archive asks people to keep a diary for a day in order to capture the everyday lives of people all over the UK. There’s usually a suggested loose theme; for example, last year, it was suggested that diary entries not focus on exactly but highlight the pandemic and the effect it was having on our lives. This year, the website suggests that “diaries can record 12th May and reflect back over the past year and look forward to the future and life beyond this year.”
I’m a long time diary writer and have been for years so this project was an exciting discovery. I love the idea of so many people’s experiences stored in one place, the idea of collecting as many versions of one day as possible and trying to build the fullest picture of it. So, for the last couple of years, I’ve looked forward to this day, to writing about it, and to sending it off to the Mass Observation Archive. But I also like posting the day here too.
Some important things to know before reading this: I’m autistic and struggle with Treatment Resistant Depression, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, and Borderline Personality Disorder. I was also recently diagnosed with Hypermobile Ehlers-Danlos Syndrome and Attention Deficit Hyperactivity Disorder (Inattentive Type). All of the symptoms get worse under stress; I’m beginning the homestretch of a Masters Degree in Songwriting and while things with the pandemic seem to be improving (the vaccines, the lockdown slowly lifting, etc), it’s hard to let go of so much ingrained fear and hard to know what the ‘right’ level of fear is. So I guess I’m still struggling with the pandemic, although not in the same way as I was struggling with it last year.
What I thought was going to be a relatively chilled out day spent at my laptop, working on stuff for the final Masters module, the Major Repertoire Project, and catching up on all the work I’d planned to do when I got hit with last week’s killer migraine (it lasted six days and involved paramedics being called to the house). But then, last night, I got an email from uni with the upcoming events and realised that the upcoming Song Sharing Session was today, this afternoon. I haven’t been back to uni since the first lockdown, working from home as an online student, so going back – and going into London – felt like a real big deal. But instead of spending hours ruminating on whether or not I should go, letting my anxiety make the decision, I decided that I wanted to go and so me and my Mum started making plans to make it possible. As things go, it felt as safe as anything can be right now: Mum had said she’d drive me there and back, I’ve had my first vaccine, and no one can enter the building unless they’ve tested negative. Mum ran out to get to COVID home tests and after that, all there was left to do was play through my songs to be as ready as possible.
Maybe because my subconscious was processing the idea of going to London, I didn’t sleep well and struggled up, later than I’d planned. And it was kind of chaos from that point on. I had a problem with my computer that sent me into a panic. I managed to sort it out but the anxiety of the situation wasn’t a great way to start the day. And then, before I could even make it to the shower, one of the cats got stuck in the attic and since we were going to be out for most of the day, we had to get her down before we left in case she couldn’t figure out how to do it herself or one of the others decided to climb up too. Even with treats, it took ages to get her down and then settle all five of them.
I did my Lateral Flow Home Test and had a shower, got dressed, and did my hair and make up while it did it’s testing thing. It came back negative, which was great obviously, but trying to register the result and get the confirmation email that would allow me to get into the uni building was overly complicated and much more time-consuming than described – particularly frustrating as I was trying to get out of the door. I’d wanted it to be as up to date as possible and suddenly it was making me really late. So that was just more stress on top of an already stressful morning.
The rush out of the house and the stress of going back to uni for the first time in so long made me nauseous and dizzy and I spent most of the drive breathing deeply and trying to keep my mind from spinning. My Mum had very kindly said she’d drive me to London since I’m still feeling very wary of public transport, especially the underground, so we talked and listened to music and by the time we pulled up outside the uni building, I was more excited than nervous. It felt so strange to be back, like it had only been a couple of days and a century at the same time since I’d last been there.
I’d expected to feel nervous there – I mean, I’ve been nervous everywhere but my house since the pandemic began – but given the strict safety procedures, I felt really safe and relaxed. It took me by complete surprise but it was so nice and being back there kind of felt like coming home; I have been studying there, on and off, for the last six years after all.
Slowly, the ten of us that had turned up to the session congregated and we were all just so excited, like a bunch of seven year olds at a birthday party. Some of us had never actually met each other in real life – as a fully online student, there was only one person I’d met before we went into lockdown – so it was very exciting to finally meet these people who I’d only ever seen on a screen. Having said that, it was somewhat weird to be saying, “It’s so nice to meet you!” to people I’ve had hours of classes, discussions, and laughs with.
We were all hanging out and chatting, catching up since most of us haven’t seen each other – even on a screen – for several weeks, when Sophie, our tutor and course leader, showed up to run the session. She was as excited to see us as we were to see her. It was so lovely to see her: I’ve known her for almost seven years and she’s been so supportive, both of my songwriting and of me as a person. So, yeah, I was super pleased to see her in real life again.
We got ourselves in a circle and had a bit more of an official catch up before taking turns playing songs and talking about our projects. I hadn’t heard music from most of the people there so that was really cool and inspiring and everyone’s working on such fascinating projects. I kept finding myself volunteering as a potential cowriter over and over, despite the voice in my head saying, “You already have so much to do!” The projects were just so fascinating.
I got to play two songs: the first was the song that really got my project rolling, a song I wrote a little over a year ago to a family friend who also has Autism; the second is a new song about my experience of OCD. The newer one was scary to perform but it seemed to go down well, which was reassuring. The whole session was just so fun and so good for me, for my mental health. I wanted to stay and hang out with everyone, even after the session was over, but since my Mum was driving me home, it wasn’t fair to ask her to wait any longer. So I said my goodbyes, made plans to meet up again, picked up my uni’s own facemasks (I mean, that’s the weirdest school merch I’m ever gonna get), and headed out to find my Mum.
On the drive home, I slowly came down from my adrenaline high until I was utterly exhausted. I did manage to catch up with my Mum and then two of my parents on the phone – they wanted to know how my first time back had gone – before I completely ran out of energy. It felt like a very long journey but we finally drove back into Brighton.
We stopped quickly to see one of my parents and her finally finished garden office. It was really nice to see her – we’ve all been incredibly busy (or dealing with an epic migraine) – and her new office looked gorgeous. It could be pretty cool to have a studio like that one day…
Mum and I finally got home, fed the hoard of hungry cats (who seemed to think they’d been abandoned), and crashed in the living room, continuing our rewatch of Grey’s Anatomy. I tried to work on a post for the blog but I was so tired and so drained that I barely managed a handful of sentences in the few hours I sat there. Eventually I just gave up and went to bed but it was still a struggle to sleep, just as it normally is; my thoughts started racing and I just couldn’t grab ahold of any of them long enough to settle. I don’t know how long it took to get to sleep but it was definitely after 1am, possibly even later.
So much has changed in the last three hundred and sixty five days. I look back at my last Mass Observation Day diary entry and my life is so different, in so many different ways. Last year, I was so scared, so terrified that I felt like I couldn’t breathe. I couldn’t do anything because I was so scared. All I could do was sleep and bury myself in the familiar worlds of Fanfiction. I’m still scared but I’m also happy, at least some of the time. I have bad days but I also have good days, even really good days, and just that is a huge deal. I’m writing a lot, researching for my project, and facing my fears around the pandemic. Sometimes I can’t believe that the last fifteen months have happened but I only have to look at myself to see that they did: I’ve been through a lot and changed so much. And that’s just looking inwards. Looking outwards – at people I know, the communities I’m a part of, the world at large – is far too overwhelming to sum up right now in one day’s diary entry.
If you’ve been keeping a diary or still want to jot down some thoughts about the 12th, I would really encourage you to do so and send it to the archive. The page is here, in case you’d like to submit or learn more about this and their other projects.
Category: about me, animals, anxiety, covid-19 pandemic, emotions, event, mental health, music, ocd, sleep, university, writing Tagged: anxiety, anxiety disorder, blog writing, cat, cats, coronavirus, covid test, covid-19, cowriting, diary, diary writing, family, family of cats, friends, lateral flower home test, lockdown, lockdown 2.0, lockdown 2020, lockdown 3.0, major repertoire project, mass observation, mass observation archive, mass observation day, mass observation day 2021, masters, masters degree, masters degree in songwriting, masters degree year two, masters part time, migraine, migraines, pandemic, pandemic 2020, pandemic anxiety, part time masters student, sleep, songwriter, songwriters, songwriting, stress, student, university
Posted on May 13, 2020
On the 12th of May every year, the Mass Observation Archive asks people to keep a diary for a day in order to capture the everyday lives of people all over the UK. This year, 2020, is the 10th anniversary but we are also living in the midst of a global pandemic, making this year a unique one, to say the least.
I’m a dedicated diary writer and have been for years so this is the ideal project for me. I love the idea of so many people’s experiences in one place, the idea of collecting as many versions of one day as possible and trying to build the fullest picture of it. So I was very excited to take part in this day, even if I’ve recently been floored by one of the most awful periods of depression I’ve ever experienced.
Some important things to know before reading this: I am autistic, struggle with depression, anxiety, OCD, and Borderline Personality Disorder. All of the symptoms get worse under stress. I’m halfway through a Masters Degree in Songwriting. I’m really struggling with the Covid-19 pandemic (particularly when it comes to my anxiety, with the fear that my loved ones will get sick), self isolating with my Mum, separated from my three other parents, my brother and my friends.
I slept badly, waking up at eight with my alarm. I’ve been trying to keep to my pre-lockdown routines and on a normal day, I would’ve gotten up and got to work on something but I had a throbbing headache, probably due to the restless night. So I buried my head under my duvet and tried to hide from the light coming in through my curtains.
Being a part time Masters student means I have an empty semester from yesterday until the end of September and I had all of these plans: practice the songwriting skills I’ve learned this year, establish a recording space at home, and get back to swimming, to name a few. But then the pandemic happened and we went into lockdown and all of my plans went out the window. I’m terrified all the time. Everything feels pointless. I can’t focus on anything. And my creativity – my ability to write songs – feels completely blocked. I’m stuck in this frozen state and I just feel like I can’t breathe. I feel like screaming and crying and hyperventilating but I feel like if I start, I’ll never stop. But even distracting myself is hard. I just can’t make myself care about a TV show or whatever. It all feels too big, like there isn’t enough space in my brain for anything other than this howling fear. And this has only been made worse by the government’s most recent, incredibly unclear statement about easing the lockdown. The idea that the government think this is acceptable when hundreds of people are still dying every day makes me sick with fear. I didn’t vote for them but I at least thought they cared about the people they were governing.
The only thing that I’ve found actually helpful in distracting myself is reading fanfiction. It’s something I’ve found effective as a relaxation technique over the last year, dealing with my wildly fluctuating mental health, starting my Masters, and this pandemic. It’s easier than reading a book because I’m already familiar with the worlds and the characters, which is a relief when I’m constantly exhausted by all this fear. Escaping into a comforting world is just that… comforting. So I spent several hours doing that, reading through old favourites from my teenage years when I first discovered fanfiction. It just gave me a break from everything. As much as possible, anyway.
Eventually though I got up and went downstairs. I thought that maybe working on one of my anxieties would help my overall level of anxiety so me and Mum went out into the garden to do some filming for a music video. My original idea is now impossible with the lockdown, which has been very upsetting because I was really looking forward to it, so I’m having to come up with something new, something that’s been difficult and frustrating because the original idea felt so perfect. I’m not super happy with the current back up plan but I need something. So me and Mum spent several hours filming [I’m omitting some bits here because I don’t want to give away the video if this is what we end up using]. I have absolutely no energy at the moment so I was completely exhausted by the end of it, even though I don’t feel like I actually did that much. I ended up falling asleep in the comfy chair in the kitchen, sleeping for a couple of hours.
I woke up, stiff and uncomfortable and just as anxious. Apparently trying to work through an anxiety didn’t help. Maybe I didn’t solve that anxiety, maybe all of this is just too big.
I had a shower and then settled on the sofa in the living room. There are so many things that I could be doing with my time but I just don’t have the motivation, the emotional energy. I just can’t see the point – what does any of it matter when hundreds of people are dying everyday, when people are losing loved ones, drowning in unbearable grief? It’s in moments of quiet that these thoughts overwhelm me and I feel my throat start to close up.
I dived back into fanfiction until dinner snuck up on me. Me and Mum ate in front of a Lucifer rewatch – for some reason, it was the only show that didn’t make me want to scream. We watched until we were both falling asleep, until the cats were crawling all over us for their pre-bedtime snack (otherwise they do their level best to wake us up at five in the morning). So we fed them and headed for bed.
It’s hard to admit – maybe because I’m twenty five and feel I should be stronger than this – but I haven’t been able to sleep without my Mum with me for weeks now, possibly longer. All of my mental health stuff is worse at night, particularly my anxiety. It just builds and builds until I’m in a panic attack or worse, a full autistic meltdown. Having my Mum with me, feeling her heartbeat and hearing her breathe, makes things just okay enough to fall asleep, although sometimes it takes a sleeping pill too.
If you’ve been keeping a diary or still want to jot down some thoughts about yesterday, I really encourage you to do so and send it to the archive. The page is here, in case you’d like to submit or learn more about this and their other projects.
Category: covid-19 pandemic, death, emotions, mental health, response, writing Tagged: anxiety, asd, autism, autism spectrum, autism spectrum disorder, autistic meltdown, autistic meltdowns, cat, cats, coronavirus, covid-19, day in the life, depression, diary, diary writing, fanfiction, fear, filming, hopeless, hopelessness, journal, journaling, lockdown, lucifer, mass observation, mass observation archive, mass observation day, mass observations day 2020, masters, masters degree, meltdown, meltdowns, mental illness, motivation, music video, music video shoot, pandemic, quarantine, singersongwriter, sleep, writers block

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope