Posted on February 20, 2021
It’s a whole new year, a whole new semester… and a whole new lockdown. So I guess it seemed as good a time as any to do another of these week-in-my-life posts. A lot has been going on recently so I thought it might be a good week to document, as much for myself as for anyone else; it’s all been a lot to process and I thought this might help with that.
The week in this post began on Monday 1st February and ended on Sunday 7th February 2021.
I usually like to keep Mondays gentle, given that Tuesday is a long day with my uni classes but this Monday was different. I struggled up (I’m naturally a morning person but between my medication and the pandemic, I’m just tired all the time, which makes getting up in the morning a real battle), had a shower, and managed a bit of breakfast before my first official Occupational Therapy session – I’ve had a consultation but this was the first ‘practical’ session, I guess you could call it.
There were still a lot of questions – all the hows and whens and so ons around the pain in my hands – but the therapist also taught me a series of exercises that I should do daily and how they would help with my pain. She also explained how it all linked in with my hypermobility. So it was really helpful and an encouraging step forward after feeling stuck for so long but despite how little I had to do each day, the exercises caused more pain. I’ve been trying to continue with them as the therapist did say that that could happen but it’s hard to motivate yourself to put yourself through pain. I will have had another appointment by the time this goes up so hopefully I’ll have had some advice on this.
She also had some recommendations on private pools that we could book since swimming is the only real exercise I can do, for the lockdown specifically but also to use until the Hydrotherapy referral comes through. She’d also double checked the Pain Management referral to find that it hadn’t reached the department and so pushed it through personally – apparently, because the pain is impeding my education that puts me further up the list than I might’ve been otherwise. So that was all good but the appointment was pretty exhausting. I actually fell asleep for a couple of hours afterwards.
I woke up suddenly and realised I was ten minutes late for my cowriting session with Richard. That startled me awake, I can tell you that. I scrambled up and logged into Zoom. We had a really good session, finishing a song we’d started the previous week, ‘One More Time.’ I really like it and I’ve been singing it, the chorus especially, ever since we wrote it. It’s one of my favourite songs I/we’ve written recently.
With the demo finished, we talked about the upcoming projects we’re working on, alone and together, for our Masters and for our own projects. That was productive as well, although the creating is always my favourite part of any session.
Several of the cats had been hanging out with me the whole time (I think we were on the call for about four hours in total) and they were being ridiculously adorable. Mouse in particular looked very content with the situation. Having them around all of the time is one of the things that has made this last year bearable; I’m beyond grateful for them.
I was exhausted after that and curled up on the sofa with Criminal Minds. I’ve been rewatching it over the last few weeks and I’d forgotten how much I love it, how much I love the characters; I think Emily Prentiss was one of my first Favourites with a capital F TV show characters.
My mind was wandering and I was thinking about one of my current song ideas, one that hasn’t fully revealed itself to me yet, when the perfect hook popped into my head. Unfortunately, before I could even reach for something in order to record it, it was gone. It was infuriating. I must’ve sat there for an hour, retracing every train of thought I could remember having before the hook occurred to me but alas, I couldn’t get it back. And now, of course, I’m convinced it was the perfect idea: just what I needed to make the song work. So that was very frustrating, which didn’t help with how overwhelmed and stressed I’d been feeling over the previous few days. Part of that was due to the results of the last module being released a few days before. I’m often slow to open results – I like to wait for a moment when I’m feeling stable enough to handle a good or a bad result – but I also had three cowrites and a day of classes in the following days so I didn’t want my emotions about the grade to affect those. That said, I couldn’t forget about them completely and the not knowing was stressful.
Eventually I gave up on trying to conjure back up that perfect hook (*sigh*) and did some writing for the blog. I even managed to finish the post I’d been writing about Lucky. That was a hard one to write so I was glad to have it done.
Mum and I had dinner together and then we had a family video chat, one that specifically included my Granny in Australia because it was her birthday. Since it was a milestone birthday, at the very least some of us would’ve been out there to celebrate with her if not for the pandemic, something that’s been hard for all of us but especially the one of my four parents who’s her daughter. So it was hard, but having a video chat was better than nothing and I think we made the most of it.
After we hung up, Mum and I had a gentle evening, continuing with our Criminal Minds rewatch. I also tried to do some catching up with my diary. I’m so far behind now that it’s more like keeping up: I’m just barely managing to keep bullet points as prompts for some imaginary moment in the future when I have the time to go back and write it all out. I’m finding that incredibly stressful because the need to write everything down is only being partially fulfilled, leaving me with so much anxiety that sometimes I’m left feeling suffocated. But that anxiety is constantly battling with the anxieties of other things that HAVE to get done, like my Masters work. There just aren’t enough hours in the day. Plus, a lot of the time, I feel like my brain is wading through treacle, making it even harder to function. My brain feels a bit like it’s been hit by a hurricane; it’s just a chaotic mess and nothing’s where it’s supposed to be or doing what it’s supposed to do.
I went to bed early-ish, early for me anyway, but then I accidentally stayed up for several hours, watching videos on YouTube. One of the upcoming writing briefs for this module is to write a song based on a fictional story and I’ve wanted to write a song about Daisy Johnson from Agents of SHIELD forever so this seems like a good opportunity; maybe a deadline is what I need to make it happen. So watching all of these Daisy Johnson videos on YouTube and listening to the songs that people associate with her is research of sorts. I’m still trying to work out the perspective I want to write the song from, whether it’s about a particular moment in time, or about her emotional journey, but I found several songs that definitely have potential as inspiration. It didn’t exactly help my brain wind down though.
I managed to sleep through all of my alarms, which meant that I was almost an hour behind in getting ready for the day – my uni classes day. So I had one of the fastest showers of my life, put on minimum make up, and inhaled some breakfast, logging on just in time for my first class. Definitely not the most fun or graceful start to a day.
My first class of the day was our workshop, where we present the songs we’ve written based on the techniques we learned in the seminar the previous week. Due to a meltdown, I’d actually missed the seminar, which had been on the techniques of song maps and pyramiding, but after reading the resources and a long discussion with one of my friends who’d been at the seminar, I felt I understood the theory enough to at least attempt to apply it. I’d written one song with Richard and another with one of my coursemates, both of which I really loved. There was only time for one of them, given how many people had brought songs (some days, everyone brings a song and we have to be really efficient whereas on others days, some people haven’t brought a song and there’s more time and people can present both cowrites and songs for their own projects), and the cowrite with my coursemate got chosen. It was well received with a healthy amount of suggestions for improvement, some of which we agreed with and some we didn’t. We’re planning to work on it again soon, since one of the upcoming briefs is to redraft a song.
There were some other really cool songs played during the session but I don’t want to say too much about them since they’re part of other people’s projects. Having said that, my group is packed full of amazing writers so whenever they release music, I’ll be sure to share it on my social media. So check those out if you want to hear about these awesome up and coming artists and writers…
It was a good class but then we had a four hour break before the seminar in the afternoon, starting at 4pm. Tuesdays are hard for me: they’re long and they require a lot of energy and focus, especially the three hour seminar. So I’ve taken to using the break to have a nap to recharge for that class. I slept for almost three hours, had some food, and quickly recapped the notes from the last seminar before we got started again.
We began by discussing what we’d worked on over the previous week – song mapping and pyramiding – and talked about how we’d implemented songs maps into our work, what impact it had had on our writing process, and what we’d struggled with. Having missed the seminar where song maps had been introduced, I’d struggled initially but having incorporated it in the writing of several songs, I do feel like I’m getting more of a feel for it. We had some interesting (and, at points, entertaining) debates over various elements before moving into the new topic: different approaches to cowriting. In groups, we were encouraged to just talk until one of us said something that might make an interesting song and then start writing that song together.
I’d initially been worried about being dropped into a group of people I didn’t know and asked to create something so I’d spoken to my tutor and we’d worked out a solution that I’d be in a group with at least one person I knew. I’m always keen to write with new people but, being autistic, it’s a lot easier and a much more positive and productive experience if I have, at the very least, spoken to them beforehand. So having one person I already knew just created a safety net in case I got overwhelmed or something. I actually knew two people in my group and then there was another guy I hadn’t previously met; we got on really well with lots of laughing and goofing around but we also came up with a really strong concept and started working on the song. So we did pretty well, I think.
When the class ended, at 7pm, I was exhausted but the nap had helped. I wasn’t completely floored like I often am. I even managed to work on a song I’m currently writing, one called, ‘Astronaut.’ I’m usually barely capable of eating dinner and catching up with my diary so that was quite an achievement. The nap had clearly worked wonders.
There wasn’t much left of the evening but my Mum and I had dinner and continued our Criminal Minds rewatch. I also worked on a couple of blog posts before going to bed far too late, as is my norm at the moment. I just get this weird anxiety when I start getting ready for bed. Maybe it’s to do with anxiety about being unable to sleep, maybe it’s anxiety about a period of unproductive time (that’s something I’m struggling with at the moment)… I don’t know. And it just makes it even harder to get to sleep.
It took me a long time to wake up on Wednesday morning; I just couldn’t open my eyes. I feel like I’m having more and more trouble with mornings; my antidepressants are very sedating, which is one of the reasons I’ve been thinking a lot about trying a new medication. It’s just such a tough process and there never seems to be a good time.
When I eventually managed to keep my eyes open for longer than a minute, I forced myself up and had a shower before settling at my desk in the living room. With Criminal Minds as a backdrop, I spent several hours working on blog posts. I struggled to concentrate though because, in the back of my mind, I was aware of the fact that last module’s grades were still waiting to be opened. They’d come out the week before but I’d had three cowrites and a day of classes ahead of me and if the grades were bad, I didn’t know how I’d manage to be present and productive in those sessions. So they were still sitting there, unopened, and I was very aware that I really should open them and look. But it was really hard to make myself do it.
Eventually I did, when Mum went out to do the food shop. It’s not that I didn’t want her to know or anything; I just find it easier to see results, have my initial emotional reaction in private, and process it a bit before sharing the news with people. I was happy with the grade – for the most part (but then I’m a perfectionist and always somewhat disappointed if I don’t do exceptionally, something I think is an unfortunate consequence of being a really high achiever at a young age) – but I did have some issues with the feedback. Reading through the feedback sections, I felt like we hadn’t been assessed on what we’d been told we’d be assessed on. The more I thought about it, the more upset I got. I’d worked so hard and talked to the tutors so many times in order to get a clear pictures of the module and how it was assessed and then to see feedback that felt fairly unrelated to what I’d been told was actually really distressing. I guess I felt (and feel) like I would’ve done things differently if I’d known the type of feedback the work would receive. I’d worked so hard on my assessment submissions so that was just quite deflating.
I talked about it a lot with my Mum and after that, I was just exhausted. So I put on some Criminal Minds and spent most of the day working on blog posts. Or trying to, at least. Wednesdays are always my least productive days, like my brain and body borrow from Wednesday to get through Tuesday, leaving Wednesdays significantly depleted of… just everything. So I always try to avoid putting anything important on a Wednesday.
So a gentle afternoon turned into a gentle evening, watching Criminal Minds and writing for the blog in front of the fire. The cats love it when we have a fire. They all congregate in the living room and spread out in front of it, occasionally rolling over – ever so casually – to warm a different side of their bodies. It’s adorable.
I managed to go to bed at a reasonable time, watched some more Daisy Johnson videos, and was actually asleep before midnight.
I had to get up painfully early to go to the dentist (my dentist is a safety hub, which apparently means they can be open during lockdowns because they look after people with disabilities, although I didn’t know this until fairly recently), which wasn’t a pleasant experience. They have really strict safety procedures (the only reason that I feel safe going there), like an hour between each patient to sterilise the room and so on, so it takes a long time to get an appointment. Unaware of the fact that I could go to my dentist until a few months ago, it’d been a long time since I’d had a check up and so there was quite a lot to do. I’m not gonna go into detail because I don’t think anyone enjoys descriptions of dental work but it was a difficult experience, moreso than usual. I find the noises of the machines particularly difficult and in excess, they get dangerously close to triggering a meltdown, so by the time the appointment was finished, I was completely exhausted.
Back home, I finally managed to get through the Occupational Therapy paperwork and start doing the exercises for the pain in my hands and wrists. Despite the simplicity of the movements, it was hard work and every joint from my fingertips to my elbows hurt afterwards. I made a note of it to report back to the therapist – I had another appointment in a week – and took some painkillers that eventually took the edge off.
It wasn’t long before my next appointment, by phone this time with the Chronic Fatigue Service, so I lay on the sofa and watched Criminal Minds for a little bit while I recharged and gathered my thoughts for the call. I was already apprehensive about the call as it was a doctor I’d previously had a really bad experience with – one I’m tempted to go as far as saying was traumatic. It was a long time ago now but I was still anxious about the whole thing.
It turned out to be exhausting, upsetting, and a complete waste of time. He had very little of my history so most of the hour was spent taking a very extensive history, involving questions ranging from my parents health to my diet to my mental health diagnoses to my medication. And after all of that, he basically said that my case was too complicated for them, that with the more recent diagnoses – including the hypermobility diagnosis – I was better off with my current specialist. What may have previously been perceived to be Chronic Fatigue Syndrome might actually be Persistent Fatigue associated with hypermobility but it’s hard to be sure. But not only did we hang up with less clarity than when we started the call, the whole thing was just… unpleasant and awful; he claimed that I’d been diagnosed with CFS in 2007 by a doctor I don’t even remember seeing according to a letter that neither my Mum nor I remember getting; he was critical of how much Red Bull I drink (due to the sedating effect of my medication as far as I can tell) and acted like I was doing it for fun, not because it’s the only thing that keeps me awake and functioning; he talked about a set of blood tests that were never discussed with us, which was particularly alarming as one of the results could’ve indicated cancer… And on and on. It was a complete fiasco. Every time I think things can’t get worse with doctors, they do. I could’ve had cancer and no one ever even bothered to mention it. I mean… I don’t have any words.
So that was basically the day written off. I was just too distressed and too exhausted. There was an extracurricular uni session in the evening but I was just too tired. I knew I wouldn’t be able to focus and it would be recorded so I could always catch up later. Instead I spent the evening watching Criminal Minds and very, very slowly adding to some blog posts. I did get some exciting music news but unfortunately I can’t share that yet. So the day did end on a better note.
There’s no particular reason to include this picture other than the fact that I thought it was adorable: cat yoga on a piano.
I went to bed early, watched a few more Daisy Johnson videos (at the moment it feels like the only time I feel able to take the time to watch YouTube videos is right before bed or before I get up in the morning), and eventually went to sleep.
I got to sleep in a little bit and then it was up and out to the hospital for an ECG (echocardiogram). Since a small amount of people with hypermobility develop heart problems, I’ll have to have ECGs every five years or so to make sure everything’s okay. I wasn’t too worried about it but again, it was another distressing medical experience.
I’ve had an electrocardiogram before and just like that, you’re asked to undress so that the ultrasound wand can get a good image of every necessary angle of your heart. But I just couldn’t do that: the idea of being so exposed in front of people I didn’t know was and is nightmarish to me. I don’t know if that’s an ASD thing or or me thing or what. They looked at me for what felt like ages before reluctantly allowing me to keep my bra on, telling me that they likely wouldn’t get as good images. I was trying not to lose it completely so, as you can imagine, that was a super helpful comment. And then, to make matters worse, the doctor pressed the wand against my chest so hard that it physically hurt; part of me wondered whether it was a punishment for being ‘difficult.’ I couldn’t breathe properly and it hurt so much that I was almost crying, especially when she pressed it against my sternum.
When it was finally over, my Mum asked if they’d gotten what they needed and they said that they had. So much for my bra being an issue. When I was fully dressed, Mum asked me to wait outside; she was five minutes maybe and then we were out of there. She told me that she’d just done what she normally ends up needing to do with medical professionals and explain how important the language they use with autistic patients is (because, as usual, they didn’t know how to work with an autistic individual). So, for example, instead of saying they probably wouldn’t get the pictures and therefore making me feel guilty for my anxieties, they could’ve said that they could try and then, if they couldn’t get the pictures, we could all re-evaluate together, which would’ve made me feel like they were at least trying to work with me rather than dismissing my difficulties. Apparently they thanked her for sharing her experience and said that they would take it on board; whether they will, I can’t say.
The whole experience had been distressing and exhausting and I was barely holding it together. I just wanted to get home and curl up under a blanket in the safe little bubble that is my living room, curtains closed and fairy lights on. So that’s what I did. I attempted some blog writing but it was very half hearted; I was just really drained by the experience at the hospital.
Early afternoon, I had a therapy session. It was probably too much on top of the ECG experience but then I hadn’t expected that to be so dramatic and emotional. Again, I’m drawn towards the word traumatic but I guess I’m reluctant to call it that as just a person and not a mental health professional. Had it just been the one time, I wouldn’t think to call it a trauma – I’d call it distressing or deeply upsetting – but as the latest in a long line of deeply distressing experiences at the hands of medical professionals or in medical settings, it feels like it’s bigger than that, that those experiences have built up to create a big ball of trauma.
It wasn’t easy but somehow I managed to pull myself together enough for my therapy session. A lot had happened since my last session so there was a lot of catching up and processing, most especially about the medical stuff that’s been going on. It was really hard, both in the sense that it took a lot of energy to talk about it all and in that it kicked up a lot of emotions. It’s weird: it’s like I’ve been boxing it all up and hiding it under the bed for years and suddenly, the recent appointments have just kicked the lid off and I can’t get it all back in, like when you have to sit on a suitcase in order to zip it closed. So now all those emotions are just everywhere and I can’t move without tripping over one or another of them.
We finished up the session but I knew that if I stopped, I was really going to crash so I did some prep work for a cowrite I had the next day; I really don’t like going into cowrites without anything prepared, even if it’s just a list of relevant words or phrases. Since we ended up writing about something completely different, I think it’s probably fine to talk about the song we were planning to write: we’d been talking about our personal concepts of time and how time feels different since the pandemic began. So that was our concept but we needed to refine it so that it would work in song form. So I spent some time looking up interesting words in the thesaurus, searching for inspiration on quote websites, and free writing about how I’ve been feeling over the last year in relation to time. There were a few quotes that I loved and could’ve drawn inspiration from if we hadn’t jumped ship and worked on a different idea:
I thought those three quotes in particular were beautiful. I could write a song based on each one.
Late afternoon, I logged into Microsoft Teams for our group cowrite – a session to finish the song we’d started during Tuesday’s seminar. We’d already written most of the song but we kept writing and refining. We had a really good time together but we did talk about whether four people were necessarily needed for the first draft of a song. Having said that, I think everyone contributed in their own ways and the song wouldn’t be what it is without all four of us. We ended up being on the call for over two hours before deciding to call it a day. I was a bit frustrated to leave it unfinished again but I think that’s just coming from my issues with productivity; I hate leaving things incomplete. I was still staring at the Google Doc when I had a spark of inspiration and jotted down a full bridge to look at next time. I thought it worked well so I was hopeful that the others would like it too.
Less than ten minutes later, one of my parents (who doesn’t live with us but is in our support bubble) arrived. We try to have an evening a week where we just hang out together and have some real human interaction. We treated ourselves to an Indian takeaway and caught up while we waited for it and then watched a couple of episodes of Lucifer, the show we’re currently watching together. It was very chilled out and I was practically asleep on the sofa when she got up to leave.
Mum and I watched a couple of episodes of Criminal Minds before going to bed and I watched a few more Daisy Johnson YouTube videos. This is one of my favourites so far:
It’s one of several that are sort of building a sonic picture in my mind as I put this song together. Yeah, I’m trying to work out how to write my own Daisy Johnson song but I’m also realising that it’s a form of procrastination too. When I lie down at night, my thoughts start to spiral and the spiral gets tighter and tighter until I can’t think or breathe. I definitely can’t relax enough to sleep. I’ve tried all of my strategies but they don’t seem to be working so I’ve been seeing the early hours of the morning a lot more often recently.
After going to sleep so late, I slept in, hours and hours later than usual. I missed almost half of the day, which was very disconcerting. And even awake, I couldn’t summon the energy to get up for a while so I scrolled through Twitter on my phone. I’ve recently gotten into #ActuallyAutistic Twitter (I knew it existed but hadn’t spent much time looking at it) but I’m still not entirely sure how I feel about it: some of the people on there are really lovely and share valuable tips and information but I’ve also seen some pretty intense debates that make me feel quite anxious, like it wouldn’t be safe to express my opinions or experiences without someone judging me or telling me how [insert word here] I am. So it’s a mixed bag and I’m not sure whether or not engaging with it is good for my mental health, right now at least.
Eventually, at about half twelve, I dragged myself up and into the shower. The points where they’d pressed the ultrasound wand were really tender and painful. There wasn’t any bruising but they hurt to touch.
Shower done, I settled in the living room. Sooty immediately hopped up for cuddles and ended up spending most of the day tucked up against me in one position or another. It was very cute and very soothing.
With so many big posts coming up, I decided to post a short, less intense post, editing and posting another Little Things post. It’s true what I write in those posts: I do want those of you who read my blog to know who I am as a full person, not just a Picasso painting made up of the specific parts I talk about in any given blog post. That’s part of why I write these posts too.
When that was finished and posted, I did some admin stuff, mostly emails: some music stuff, plus some messages around my long term project of tracing my family history (that’s a story for another post). I also continued my attempts at redrafting the lyrics of ‘One More Time’ but I was still struggling to get it right. It was going to be super satisfying when I finally hit the right combination of words but until then, it was somewhere between a really complicated Rubik’s Cube and banging my head against a wall.
Eventually it was just getting too disheartening so I took a break. I went to Tumblr as I often do for inspiration and while I didn’t find anything to help with this song, I did find some cool art, some interesting lyric analysis, and some beautiful gifsets from several of my favourite TV shows. At the very least, it released some of the tension in my brain.
It was an evening of Criminal Minds, dinner, and my physio exercises. Oh, and a further attempt at redrafting ‘One More Time,’ but still no dice. It’ll get there at some point; I just don’t know when. My brain just feels really overloaded and overwhelmed at the moment and that makes it really hard to think when I get stressed or anxious. And it just snowballs, everything getting worse and worse until I feel like I’m so twisted up in this net of my own thoughts that I can’t move, can’t think clearly. It’s exhausting and yet, sleep is such a struggle.
I really struggled to wake up but eventually I managed to drag myself into the shower and then the living room. One of the cats, Tiger, immediately sought me out for attention and paced relentlessly until I gave in and devoted all of my attention to her. The cats are all getting far too used to us being around all of the time…
Late morning, I had a FaceTime call with a friend that went on for over an hour. That was really nice and we had a good laugh, which I really needed after the week it had been. It gave me a much appreciated boost, which was only heightened by the flurries of snow outside. That was very exciting and when I went downstairs after the call ended, I got to enjoy watching the cats in the garden, watch their befuddlement at the snow: the little shakes when it landed on them, the pouncing on the settling snowflakes… It was incredibly adorable.
Back upstairs, I did a bit more thinking and searching for inspiration – in my various songwriting notes, in my diaries, on Tumblr – for my upcoming cowrite and I worked on that until it was time for the video call, about an hour later.
I think it was a good session, especially for a first time cowrite. It was with another of my coursemates and while she and I have known each other a while now, we hadn’t managed to write together up to this point. We had a good time and laughed a lot while still managing to write most of a really promising song in about ninety minutes. So I feel like we did well. I like the song and I like the message behind it; hopefully we can finish it sometime in the near future.
So I finished the session in a really good mood, that is until I saw that Sia’s dangerous, offensive, and incredibly ableist and problematic film, Music has been nominated for two Golden Globes. I was – I am – disgusted and appalled by how little so many people – in this case, the film industry – care about the wellbeing, the opinions, and the happiness of the autistic community. It’s horrifying. It makes me want to scream at someone but there’s no one to scream at. Put me in front of the Golden Globes people and I’d rip them a new one but that’s not gonna happen, not in this reality anyway.
can someone pls with a bigger platform talk about the fact that the golden globes nominated music, sia’s horrifically ableist movie, twice?? and the implications of that for autistic people ?
— maisie (@maiisiesh) February 3, 2021
Sia's 'Music' is a possible Golden Globe winner.
The film glorifies physical harm & inspiration porn for neurotypicals & a neurotypical was cast for a non-speaking autistic role.
Sia's response to #ActuallyAutistic critique with abuse.
Spread word: #NoGoldenGlobeForMusic
— Mx. Charis Hill ♿ (they/them) (@BeingCharisBlog) February 4, 2021
— Lauren Alex Hooper (@laurenahooper) February 7, 2021
Not sorry enough to pull the movie. Not sorry enough to reject the award nomination. Not sorry enough to leave her apology up on Twitter. Not sorry enough to reach out to the people she directly insulted. Not sorry enough to tell her fans to leave #ActuallyAutistic people alone. https://t.co/8zuYKvVqGM
— Julie Atwood (@jmatwood) February 7, 2021
– because Sias movie „Music“ portrays traumatic, deadly prone restraint as the appropriate response to autistic meltdowns.
– because „Music“ erases & harms autistic people, especially non-speakers.
— autistictic (@autistictic) February 3, 2021
I did my best to have a quiet evening since I had another busy day ahead of me but I couldn’t shake off all the unpleasant feelings around Sia’s film. I tried to distract myself and work on ‘One More Time’ but I just couldn’t focus. I was too emotional, too overwhelmed. I wouldn’t have been surprised if I’d spiralled into a meltdown, if not for the fact that I was too tired to even cry.
In the end, my Mum and I watched some more Criminal Minds while she gave me a neck and shoulder massage (one of her many lives was as a massage therapist). The pain is creeping higher and higher, up my neck and into the base of my skull so although it wasn’t the most comfortable experience, I felt better for having it. Less tension, less pain. Some of the time, at least.
Again, getting to sleep wasn’t easy but it was a better night than others so I’m grateful for that. I’ll take whatever I can get right now. I’m waiting on various things that will potentially help but everything’s moving very slowly. My logical brain is very understanding, given everything with the pandemic, but my emotional brain is less rational, struggling to cope with the pain and the anxiety and the lack of sleep. As human beings, we are more than capable of holding two such opposing emotional responses but it being possible and it being easy aren’t the same thing, are they?
Somehow that ended up being a lot longer than I’d planned, than I’d expected it to be. But apparently there was a lot of stuff in my head that was intent on getting out. Life feels pretty complicated at the moment.
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Posted on December 26, 2020
Funnily enough, one of my goals for this year was to consume more new media, to experience new stories, expand my creativity, and just for fun. The first semester of the year didn’t really allow for that very much but then lockdown happened. Initially, my anxiety was so high that all I could do was watch comfortable, familiar, and safe stories, but slowly I started adding in new ones as a means of escape. This basically revolved around film and TV as I just didn’t have the brain space to read with all of the fear and anxiety taking up so much space. But I really started to get into watching new things and enjoyed it more and more; I think I’d gotten stuck in a bit of a rut of rewatching old things because it allowed me to do other things at the same time, namely my constant (and desperate) attempts to keep up with my OCD-induced diary. But with so little going on, I really only had to write about the new things I was watching. Back at university, there’s been less time but I have still managed the odd new thing here and there.
I haven’t included everything in this post – for obvious reasons. I’ve just written about the ones I thought were really good or had something specific that I wanted to say about them. Please don’t feel that you have to read the whole thing in detail; feel free to skim or just look at one section for example. Hopefully there will be something in here that you walk away thinking, “oh, I want to read/watch that…” Fair warning, there will be some spoilers but I will try and mark them clearly.
The Boy, The Mole, The Fox and The Horse by Charlie Mackesy – My therapist gave me this book just before lockdown and I absolutely adore it. I love the beauty and simplicity of it, of the drawings, of the words, of the characters and the little conversations between them, about everything from cake to fear of the future… I can completely understand it not being for everyone – it is a very specific style of book and approach to life – but I loved it and found great comfort in it. I still do. It’s permanently by my bed so that I can just open it at random and read a few passages.
I Would Leave Me If I Could by Halsey – Halsey’s first collection of poetry is described as “In this debut collection, Halsey bares her soul. Bringing the same artistry found in her lyrics, Halsey’s poems delve into the highs and lows of doomed relationships, family ties, sexuality, and mental illness. More hand grenades than confessions, these autobiographical poems explore and dismantle conventional notions of what it means to be a feminist in search of power. Masterful as it is raw, passionate, and profound, ‘I Would Leave Me If I Could’ signals the arrival of an essential voice.” It’s definitely true that she bares her soul: some of the poems are uncomfortably honest, giving you the sensation of reading a person’s diary. She’s sharing things she’s never shared before and she’s never been one to hide the ugly from the ugly sides of life. (It’s worth noting that some of the poems have graphic descriptions in them and she does discuss some really difficult subjects like abuse and sexual assault so if those things are likely to trigger you, it may be important to have a conversation with yourself about whether you’re in the right place to read the book.) Some of the ones I found most powerful were Due Date, Battles, Stockholm Syndrome Pt. 1, Wish You The Best, Eight, With Great Power Comes Great Responsibility, American Woman, Telltale, Tornado, Lighthouse, The Painter, High-Five Kids, A Story Like Mine, I Would Leave Me If I Could, Something For Them, and Seventeen. These aren’t necessarily ‘favourites’ because some of them are practically painful to read, knowing that she has gone through these experiences. But these are some of the ones that gave me that gut-punch feeling, ones that felt so important to the collection. I have such respect and admiration for her in sharing these stories; it’s one of the bravest pieces of personal writing I’ve ever seen. You can feel her passion and her sincerity and her emotions pouring off the page and I think that is what most drew me into this book. Yes, I loved the writing but the emotion was what made it so powerful. The closing lines to Ordinary Boys, I think, sums up the book really well: “You write to calm the craving. / To corner them in fiction / And say / Finally, / I have conquered you.“
(I also read chapters and excerpts of multiple music and songwriting books for my course but as they weren’t for the sake of just reading and I didn’t always read the complete book each time, it didn’t feel right to include them here.)
I would’ve loved to have read more this year and I had so many plans but between my mental health struggles and university commitments, I just haven’t been able to. Hopefully next year will be a better reading year.
What Happened To Monday – In a dystopian future where every family is only allowed one child, septuplets, Monday, Tuesday, Wednesday, Thursday, Friday, Saturday, and Sunday must remain hidden by assuming the singular identity of Karen Settman. They each go out one day a week – the day they were named after – and until the age of thirty, they manage to go unnoticed. But then Monday doesn’t come home and the sisters fear their secret has been discovered. It’s a really great action film (although, be warned, it doesn’t shy away from fairly graphic violence) and Noomi Rapace is incredible, playing seven distinct women, each with their own personalities, their own struggles, and their own emotional reactions (I’ve seen some people call the different personalities less than subtle but, if you’re only real existence isn’t really who you are or want to be, I wouldn’t be surprised by a need to defiantly distinguish yourself from the people ‘sharing’ your identity). From the emotional scenes to the action sequences, she was fantastic and I found myself connecting to each of the sisters in different ways, although I think Friday was my favourite. Despite being an action film, the emotional storyline is what really carries the film, getting more and more intense as the minutes pass. And the ending is really, really interesting but I won’t give it away. I thought the aesthetic was perfect for the story and really effective in elevating the emotions of the story. With the complicated moral debate that the film is based on, the multiple characters, the relationships between them, and the challenges they face, it really is a multi-layered movie, leaving you with a lot to think about after it ends.
(I kind of wish they would make a sequel of sorts because the underlying problem – the rapidly growing population and society’s inability to cope with that – isn’t solved. It wouldn’t have to involve the main characters, apart from maybe a cameo or two to bridge the films, and it could be shot like a documentary, like the ‘The Truth Behind The Child Allocation Act’ (the law that enforces the one child per family policy). Half of it could tell the story of how the Settman sisters revealed that truth (which could be where the cameos come in, the use of ‘crowd footage’ of certain moments, and interviews with scientists, etc) and then the other half of it could be about the committees put in place to find a better solution to the population problem. I think that could be a really interesting way to build on an already existing universe but without it needing to be a direct sequel but more an expansion of that world.)
Isn’t It Romantic – Romantic comedies aren’t usually my thing and I’ve never seen Rebel Wilson in something I enjoyed so I wasn’t expecting to like this film when a friend picked it for a Netflix Party but I ended up LOVING it. I loved how it made fun of romantic comedies (as well as challenging the toxic elements that can appear in them); I thought Rebel Wilson was hilarious; the musical numbers were great; and it was just such a joyful, feel good film. I’ve watched it multiple films since my first viewing and it always cheers me up.
Ocean’s 8 – I really enjoyed this film. Probably more than the original trilogy. I loved all of the main characters and how different they all were and yet, they became this great team. I loved the dynamics between them, even if many of them weren’t given the time or opportunity to be properly fleshed out (it was a big cast so that’s not exactly surprising). There were so many awesome people in the cast, even the cameo parts. Helena Bonham Carter was brilliant and I adored both Sandra Bullock and Cate Blanchett. They were gorgeous and hilarious and they had great chemistry; I wanted them to have their own spin off adventures, just the two of them. I’m not sure if I ship them in the conventional sense (as I know many people do) but there’s definitely a relationship there that would be really cool to see explored. Anyway. I loved the multiple twists and the comedy was right up my alley (most of the time – there were a few moments that made me cringe but that’s still quite impressive since comedy isn’t really my genre). And the ending was just perfect.
Laputa: Castle in the Sky – I love so many of the Studio Ghibli films and during lockdown, a group of friends and I watched a few of them. I hadn’t seen this one before and although it felt quite similar to Nausicaä of the Valley of the Wind, in terms of themes and general storyline, I did really enjoy it. It follows a young girl and her friend in their attempts to keep a magic crystal safe from the power-hungry military and find a mythical floating castle. But the biggest thing for me was how beautiful it was: the design of the castle, the abandoned gardens with all the greenery growing freely, the big, glass rooms… it was just utterly stunning. It was definitely the most beautiful Studio Ghibli I’ve seen.
Fantasy Island – When a group of competition winners land on Fantasy Island, they are given the opportunity to have their greatest fantasy fulfilled. But slowly the fantasies start to spiral out of control, becoming much darker than originally intended. When they start to overlap, the group start to get suspicious that maybe these aren’t their fantasies at all, that they might be in the fantasy of someone else altogether. I was drawn in by the idea of fantasies being fulfilled and because I’m a fan of Maggie Q, Lucy Hale, and Michael Peña. It wasn’t a life-altering film but I enjoyed it and thought it threw out some interesting stuff about the things we fantasise about, whether they’d actually play out that way if they happened in real life, and who we’d be if they did happen. So, yeah, I felt like it was an afternoon well spent.
The Half of It – Solitary, introverted Ellie Chu lives in a small town, practically taking care of her widowed father and making extra money by writing homework assignments for her classmates. When the less than eloquent, dorky football player, Paul Munsky asks her to write a love letter for Aster Flores, a girl who goes to their school, she initially refuses, secretly in love with Aster herself. But when the power company threatens to cut off her house’s electricity, she accepts in order to make the payment. One letter turns into more and Ellie and Aster connect over their shared love of art and literature, although Aster believes it’s Paul she’s connecting with. Ellie and Paul also start to bond over the experience. I won’t say more than that because the story unfolds so beautifully that I don’t want to ruin it. It’s a funny, gentle, and “quietly revolutionary” (as I believe Rolling Stone described it) coming of age story. I’m sure there will be those who find it too whimsical or too Fault-In-Our-Stars-esque but there’s so much more too it than that. I loved it. I loved the characters and I loved the different relationships between them. I loved the ideas they discussed: about longing, about love, about art, about identity, about life… And the ending is perfect. Utterly perfect.
Official Secrets – This is a docu-drama based on Katharine Gunn, a GCHQ analyst, who leaked a confidential memo that exposed an illegal spying operation by American and British intelligence services to potentially blackmail members of the UN into voting for the 2003 invasion of Iraq. It is eventually published but immediately discredited due to someone at the paper accidentally correcting American grammar to British grammar. Meanwhile an investigation is launched at GCHQ and eventually Katharine confesses to what she’s done. War breaks out in Iraq and Katharine seeks help from Liberty, an advocacy group which campaigns to challenge injustice, protect civil liberties and promote human rights. Even though this is about a historical event, I don’t want to give too much away because it’s a really fascinating film and I don’t want to ruin that experience if you’re not familiar with the events. It was a very strange experience to watch because I was alive at the time but far too young to be aware of the politics behind it all. I was aware of the war and went to the protest marches with my parents (so, somewhere, I’m potentially in the march footage that they used) but I didn’t know the details, like the story of Katharine Gunn. So it was a really interesting experience to watch it now and learning about what happened (I researched it more after finishing it) and putting that in the context of the few memories I do have of that time.
The Accountant – I have to admit that I didn’t like this film much, didn’t like how baldly stereotypical the portrayal of Autism was (as an autistic person, I found it so cringe-worthy that I could barely finish it) but there was a moment at the end that I thought was important and so I wanted to include it in this list. A family with an autistic son are being shown around a facility for people with Autism (not hospital or lab like at all though; more like this huge, beautiful country house) where some spend short periods and some live full time. The doctor says something that I think is really important, especially after such a traditional and unchallenging (and, in some ways, harmful) representation of Autism…
NEUROLOGIST: 1 in 68 children in [the US] are diagnosed with a form of Autism. But if you can put aside for a moment what your pediatrician and all the other NT’s have said about your son…
AUTISTIC BOY’S FATHER: ‘NT’s?
NEUROLOGIST: Neurotypicals. The rest of us. What if we’re wrong? What if we’ve been using the wrong tests to quantify intelligence in children with Autism? Your son’s not less than. He’s different. Now, your expectations for your son may change over time, they might include marriage, children, self-sufficiency. They might not. But I guarantee you, if we let the world set expectations for our children, they’ll start low, and they’ll stay there. And maybe… Just maybe… He doesn’t understand how to tell us. Or… we haven’t yet learned how to listen.
Searching – The really interesting thing about this film is how the viewer sees the story entirely through screens: homemade videos, computer screens, FaceTime, news footage, etc. It was really cool, but I can’t imagine that it would work again without feeling like a gimmick. Anyway, for this film, it was a really interesting way of telling the story, what could otherwise be a normal mystery film, albeit one full of unexpected twists. It follows David Kim’s search for his missing daughter, Margot, through which he learns that his daughter was going through much more than he’d realised after his wife and her mother’s death a few years (approximately) earlier. The police come up with multiple theories but continue to hit dead ends but David refuses to give up, leading to some confusing and shocking discoveries.
Enola Holmes – I was really excited for this film and I wasn’t disappointed; I really, really enjoyed it. I never quite got into Stranger Things but I did think Milly Bobby Brown was great from what I did see of it. I absolutely loved her in this role though: the incredibly smart, resourceful, and loyal younger sister of Mycroft and Sherlock Holmes. She had great, effortless chemistry with so many of the characters, including Sherlock himself, her mother (played beautifully and hilariously by Helena Bonham Carter), and the young Viscount Tewkesbury, whose story she accidentally falls into and becomes a part of whilst on her own quest. I loved the story, beginning when Enola’s mother mysteriously disappears, and I loved how it was constantly evolving, starting as one thing and then turning into another and then another. It felt really cohesive and flowed really well as a film: I loved the motifs that kept reappearing throughout, like the meanings of different flowers and Enola paying people to change clothes with her as just two examples. I also really loved how they broke the fourth wall with Enola speaking directly to the audience, looking right at the camera; I think it was a really effective storytelling technique. I really loved it and have watched it several times since my first viewing. It’s an interesting and thought-provoking film while still retaining that feel good factor that makes it so enjoyable to watch over and over again, especially when I’m having a bad day.
Legally Blonde – *Spoilers* It was good fun and I loved that it challenged societal norms: that we should fit in and conform, that others can tell you who you are and who you should be, that your interests determine your intelligence, your character, or your value… It was great to see a film with a demographic of (probably) mainly young girls, pushing back against these ideas. I loved how Elle used her own expertise to her advantage and how it allowed her to draw conclusions that the others wouldn’t have come to (although I’m not sure that her knowledge of fashion and style would win her many cases). I loved how accepting she was and how willing to forgive she was, with Vivian for example. I did struggle with some of the stereotypes portrayed, like gay men knowing fashion, the sleazy professor trying to sleep with his student, and so on but it was made almost twenty years ago; I have to hope that things are better now. Having said that, they did publicly out a gay man (technically they tricked him into outing himself but is it really any different if they were planning on that exact outcome?), which is beyond problematic. And then to have the whole thing treated as so hilarious and outrageous makes it seem like no big deal when it is. Outing someone is not only cruel but potentially dangerous. It’s not something to joke about. So as much as I enjoyed the rest of the film and appreciated the positive messages it focussed on, ultimately it left a bad taste in my mouth.
Close – Noomi Rapace as an action hero with a complicated backstory? Count me in. Close follows Sam, a highly experienced Close Protection Officer, who is assigned to protect Zoe, the young and entitled heiress, after her father’s sudden death when she and her stepmother travel to Morocco to secure the future of the family mining empire. But while there, the house is attacked in an attempt to kill Zoe and prevent her from becoming a powerful figure in the company. It seems that the stepmother is trying to eliminate her competition and ultimately it’s left to Sam to protect Zoe (and to an extent, teach her to protect herself) and both get them to safety and find out what’s really going on. While it might not be a life altering movie, I really enjoyed it. I love Noomi Rapace and thought she did an awesome job as Sam. I thought she brought a lot to what could’ve potentially been quite a one-dimensional role: she shows an incredible control, calm and quick-thinking under pressure, but she also has deeply emotional reactions to some of the events that happen throughout the film. Apparently she did all her own stunts and was trained by Jacquie Davis, the UK’s first female bodyguard, whom the character of Sam was actually based on. I just loved her as a character and the conflict she finds herself in protecting Zoe, even when it’s no longer her job. The relationship between them grows as they have to depend on each other and it’s messy and complicated but they ultimately develop genuine affection for each other, which is particularly heartwarming when both of them have had such a hard time trusting others. So, overall, a film I really enjoyed and a greatly appreciated ninety minutes of escapism.
Cheer – I wasn’t sure that this would be something I would enjoy but multiple people that I like and respect recommended it so I thought I’d give it a go and absolutely loved it from the first episode. I already had a hypothetical understanding of how physical and intense and skilled cheerleading is but to actually see it (and see the process of learning a routine, practicing it over and over, and then taking it to the biggest of competitions) gave me a completely new insight and respect for it, in a way that I don’t think I could’ve had had I only had that theoretical knowledge of it. I got so invested in so many of the team members (Morgan especially – I think I related to her the most and her journey had the biggest impact on me) and I finished almost every episode in tears because I was so moved by their stories and their passion and then where they had ended up when the series finished. It’s not an obvious choice for those without an interest in cheerleading or sports but I thought it was really, really good and highly recommend it.
Noughts + Crosses – I loved the books so I’ll admit I was worried that that would affect how I felt about the show or if the show would affect how I felt about the books. But they were quite different (Callum going to Police Training rather than Sephy’s school, Yaro’s appearance in the story, etc), which actually made the series much easier to sink into: I wasn’t constantly comparing them because the difference in the stories felt so significant. It wasn’t hard to love them both and feel emotional about how the events played out in each version. The show had a much darker vibe than the books but then, in the books, we see this society through the eyes of teenagers. However that’s not possible in television: we see the whole picture. Quite literally. We also see different plot lines from characters we saw very little of in the books as the story was told in first person, either from Sephy or Callum’s point of view.
As challenging and upsetting as many of the scenes were, there were so many things I loved about it as a show. I loved the casting and portrayal of the characters, especially when it came to Callum and Sephy. They had such great chemistry that their relationship felt so natural. The acting – all of the acting – was fantastic and you really felt the emotions of the characters as they went through them. I also thought the two families were portrayed so well; the dynamics were so complex, so layered and nuanced. I also loved how visually rich it was: even in the intentionally grim areas, like the industrial areas and the roof of Callum’s house, which I think is ultimately due to the incredible attention to detail that you don’t really get in the books. But in the show, you can really see the cultural influence in every aspect of life (stemming from an African Empire that colonised Europe hundreds of years prior): clothing styles, hair styles, architecture, interior design, advertising, language (slang, pleasantries, terms of endearment, etc), and so on.
I don’t know if I feel educated enough to make an assessment of the representation, especially considering the race reversal and the fact that certain things don’t line up with the present (in the UK at least, which is where it’s set), such as an inter-racial couple being arrested and the death penalty as a potential punishment. It’s not a straightforward comparison. But having said that, it does very effectively and powerfully highlight a multitude of issues around race and class. “Josh Lee [of The Guardian] gave the television series four out of five stars, describing it as a ‘reverse-race love story that is vital viewing.’ Lee praised the series for highlighting the challenges that working-class white people and people of colour share in the real world through its depiction of racism in an alternate world dominated by African supremacy.”
Criminal Minds (Season 15) – *SPOILERS* It feels so strange to me that this show is over. I started watching it in mid 2009, in the gap between seasons three and four and now it’s over. I can’t believe I’ve been watching this show for eleven years; that just seems so odd to me. Anyway. I must admit that I’ve been expecting someone to pull the plug on Criminal Minds for a while now. I’m not convinced it’s been consistently good since season seven, although there have been good episodes and story arcs since then; it just felt like they were running out of ideas, reusing old stories and villains, or using ideas that in earlier seasons they would’ve considered too ridiculous or traumatising to make episodes out of. I was endlessly happy to have Emily Prentiss back and that’s ultimately what got me back into the show when I was losing interest, especially with her in the position of Unit Chief; I feel like that was a very natural arc and development of here character. Anyway, back to season fifteen. I hated the cliffhanger to season fourteen and was very relieved to see JJ and Reid recover their friendship and I really liked Reid’s relationship with Max; she seemed like a good fit for him. I wasn’t particularly drawn in by any of the episodes, story wise, and I found Everett Lynch to be a pretty uninteresting nemesis, certainly nothing compared to George Foyet or Ian Doyle. But I liked the more character focussed moments throughout the season. The show was obviously coming to a conclusion and they were muddying the waters of who would be leaving the team, creating new paths for multiple characters. While I would’ve loved to see Emily as FBI Director (not exactly likely given all of the trouble the BAU cause), I think it was fitting that Garcia was the one to leave. She struggled with the darkness of it all and going to work for a non-profit seems like something that would’ve been a really positive place for her to be. As much as I was ready for the show to be over, I found those last few minutes really heartbreaking and I definitely cried when she waved them off, everyone aware that she wouldn’t be there when they got back.
Little Fires Everywhere – As soon as I saw the trailer for this show, I wanted to watch it. The mini series begins with Elena Richardson (played by Reese Witherspoon) watching as her big, beautiful home burns down in front of her and I was instantly invested. We jump back four months and the rest of the series is devoted to finding out what led up to that moment. Set in the late 1990s in the midwest town of Shaker Heights, Ohio, two very different families collide: the Richardson family are privileged, wealthy, and white, while the Warren family are transient, artistic, black, and rarely have money to spare. The children become friends, Pearl Warren drawn to the stability of the Richardson home and developing a crush on the oldest son, Trip, while Izzy Richardson identifies with Pearl’s mother, Mia Warren (played by Kerry Washington), as an artist and outsider. Their relationships bring the mothers closer together with disastrous consequences for all. It’s hard to describe the show without giving anything away, which I don’t really want to do with this one; the show does a much better job than I will. I’m still hoping to read the book but something that I found really interesting was that the author had pictured the Warrens as people of colour because she wanted to talk about how intertwined race and class are but hadn’t felt like she was the right person, as an Asian-American, to talk about a black woman’s experience. But then, when Kerry Washington joined the cast and became an executive producer, the showrunner decided to bring race to the forefront of the story and filled the writer’s room “with creatives who could relate to Mia’s kind of Blackness,” a decision the author was happy with. (x) It was also really interesting to watch how the characters developed and changed due to these relationships and how that affected you, as the person watching, and your feelings about the characters. Everyone I’ve talked to about the show has said the same, that their favourite characters at the beginning of the show weren’t the same as their favourites by the end. But overall, I loved Izzy and I particularly loved the scenes between Izzy and Mia. I thought they were particularly powerful. Having said that, the series is packed with incredibly powerful moments.
Absentia (Seasons 1-3) – Six years after disappearing on the hunt for a serial killer, having been assumed dead, FBI Emily Byrne is found in a cabin in the woods, barely alive and with almost no memory of the years she was missing. Recovering in hospital, she learns that her husband has remarried and that he and his new wife are raising her son. Her former colleagues at the FBI investigate her disappearance again but when they start to find evidence that Emily may have faked her abduction, Emily launches her own investigation and it becomes a race. Will Emily find out the truth before the FBI reach the end of the path they’re being led down? I loved this show. It’s one of my favourites of the year and I may very well rewatch it over the Christmas holidays. I just fell in love with the character of Emily Byrne (played by Stana Katic) – she’s a really well developed character and a total badass – and I was just blown away by how the show portrayed the trauma of what had happened to her, consistently and realistically and with the gravitas it deserved. I also thought it was great that they explored the psychological effects that her disappearance had had on her family and her relationships and how, even though they were incredibly grateful to have her back, their previous issues and their issues stemming from her disappearance didn’t go away and had to be dealt with. So there was a lot of interesting character development throughout the whole show, not just the first season. Fair warning, there’s some serious violence so if that’s not your thing, then you won’t enjoy this. But it’s an incredible psychological-thriller-mystery-drama with great characters. And while I don’t want to talk about the later seasons because that would give away the end of Season 1, I do want to shout out the introduction of the character of Cal Isaac. He’s a really interesting character and I really liked him straight away. The development of his relationship with Emily is done really well too. Anyway, I’m gonna stop here. It’s great. I love it. I can’t wait to watch it again.
Broadchurch (Series 1-3) – Broadchurch follows the partnership of the mysterious and grumpy DI Alec Hardy (played by David Tennant) and the bright and cheerful DS Ellie Miller (played by Olivia Colman) as they attempt to solve cases (one per series) in the small, seaside town of Broadchurch. It was incredibly gripping and the cliffhangers at the end of each episode were almost unbearable. We watched all three series very quickly because we kept finding ourselves watching almost a whole series in one night. Looking back at it though, I’m not sure I could rewatch it: the stories were so painful and emotional that I’m not sure I could bear to, although I guess that’s a testament to how fantastic the acting is. But I absolutely adored Hardy and Ellie’s relationship; the contrast between their personalities was utterly hilarious but their shared commitment to the job and finding the truth made them a remarkable, if unusual, pair.
Agents of Shield (Season 7) – *SPOILERS* I was so upset when I learnt that this year’s season was going to be the last (I legitimately called my Mum in tears when I heard the news) but if there had to be a last, this was the best possible last. It was just incredible, from start to finish. I was a bit wary about it, with the previous season ending with them in the past but then, as they moved towards the present, episode by episode, I really got into it and I loved watching the new timeline develop, story by story. Every episode was excellent but a handful of them were real standouts, not just of the season but of the whole show (7×09 is probably my absolute favourite episode). I loved the references to previous seasons and I loved seeing old characters return as we got closer to the present. I also loved the development of the characters: Coulson, May, and Yoyo all had particularly interesting journeys that I found myself very invested in. And of course, I loved Daisy’s storyline throughout the season. I wasn’t sure a love interest was a good move but they handled it so intuitively that the way it played out felt very natural. And I loved the return to her earlier focus on family and where she came from and what that meant for who she ended up becoming. She was already a powerful figure (powers aside) but she really came into herself in this season and I wouldn’t have thought I could love her more but I did. But then Daisy Johnson is my hero and I will love her forever. I also loved that she was the voice of the audience in the sense of her grief over the team’s story ending; that felt really important and special. And despite it being the end. I loved the ending. It was just absolutely perfect. I sobbed through the last few episodes because it was so powerful and so emotional. A part of me will always want more but I don’t think they could have created a better ending. So I’ll be grateful for what an amazing seven seasons and for all the show has given me. I think it’ll probably be important to me for the rest of my life.
The Fix – I was so happy to have Robin Tunney back on my screen, especially as a main character. I thought her acting, especially when it came to the emotions she was experiencing (or when she had to shut off those emotions), was fantastic. I really enjoyed that the series followed one legal case, allowing the show to really delve into the details and the relationships between all of the characters, as well as side stories that fleshed out the bigger picture. It might not reinvent the wheel but I really did enjoy it and as I said, it was such a delight to see Robin Tunney again, especially in such a beautiful nuanced and complex role.
Lucifer (Season 5: Part 1) – *Spoilers* I love Lucifer and this season certainly didn’t disappoint. I love how much work goes into evolving the characters and their own personal journeys. No one in the ensemble feels like a side character; they’re all beautifully fleshed out, more and more as time goes on. I also thought there were some really great storylines in this season. Michael’s introduction was certainly interesting, although I was glad when he was outed as Michael and not Lucifer so quickly as the idea of Chloe starting a relationship with him, thinking he was Lucifer, made me feel seriously uncomfortable. Both Maze and Dan have really powerful storylines and I felt for them so deeply, even though I hadn’t initially liked Dan. I just wanted to hug Maze the whole time. I also thought the ongoing story of Ella and her boyfriend was a really cool addition. But with so many storylines going on at once, I never felt like the show was unbalanced or that any of stories were treated as filler. And yet it never felt too busy.
There were so many amazing scenes but there were a few that really topped the list. One of them was in the first episode when Maze destroys Lucifer’s piano because she feels so hurt and so angry that Lucifer abandoned her for Hell. Lesley-Ann Brandt’s acting is just incredible; I swear I could feel everything she was feeling. And I’m also really freaking curious how the show made the scene possible, what they did to make it possible for her to tear a piano into pieces. My other favourite is the final fight scene, in episode eight. The choreography is awesome and the special effects, particularly Maze throwing Lucifer through a glass wall while time is frozen, are stunning. The glass seems to hang rather than falling to the floor but they can still sweep it aside. It’s beautiful.
And that cliffhanger. Oh my god.
Away – *Spoilers* This is a ten episode season about a group of astronauts on the first manned mission to Mars. I’m a sucker for anything about space and I’ve always really liked Hilary Swank so I was excited when it popped up on Netflix one day. I felt like it started a little awkwardly but I thought the cast were fantastic and I loved the characters, especially the astronauts. I found them all really interesting and complex and I loved seeing how their lives had lead them to that point and I loved the relationships between them, as a group and in the various combinations. I don’t know if that many disasters is realistic or not but I think they conveyed the emotions of the characters really well. I was crying by the end of every episode, if not before. My favourite part without a doubt was the end when, in the last episode, they land on Mars and everything that’s been building through the show (the relationships between the astronauts, their evolving emotions about the mission, the complicated concept of duty, their relationships with their friends and family on Earth) all come to a head. It’s a stunning end and I was just sobbing. Even my Mum, who’d only seen snatches of it as she came and went, found it emotional.
Dare Me – *SPOILERS* I’ve been finding this one really difficult to write about, I think because there are so many layers to the story and the relationships between the characters are so complicated. The story follows best friends, Beth and Addy, who’ve been inseparable for years until the new cheerleading coach Colette French arrives, removing Beth’s captainship and completely shaking up the team. Beth, a wild and reckless but ultimately lonely girl, distrusts her immediately while Addy, the loyal follower and peacekeeper, becomes more and more infatuated by Coach French, something that drives a wedge between the two friends. The storyline requires some suspension of disbelief (I doubt a real cheerleading coach would encourage parties and underage drinking in her own home but then, given that she’s bringing positive attention to the cheerleaders and therefore the pretty fucked up little town they’re living in, who knows…) but it’s definitely a wild ride from beginning to end. When I first finished it, I thought, “okay, cool, that was interesting,” but a week later, I realised that I was still thinking about it a lot, especially about the characters and their relationships. They were so complex and intriguing. I was fascinated. I even ended up writing a song based on the show.
The Queen’s Gambit – *Spoilers* I know a lot of people found this show really gripping right from the start but it was more of a slow burn for me. I don’t think I absolutely fell for it until the last episode. Like an elastic band being pulled, it was almost like I got more and more frustrated with the show and then all of that tension was released in the final episode when I felt it all come together. I loved every second of that episode: her friends coming together to help her with her strategy, her win against Borgov and his grace over her victory, all of her people supporting and celebrating her, and then it ending with her walking the Russian park with all of the old men playing chess and how excited they were to meet her and honoured to play with her. It was fantastic. I do have my criticisms of it as a show but that final episode especially was so powerful that ultimately my experience of it was positive.
The Split (Series 2) – I started watching this back at the beginning of the year but then the pandemic derailed everything and I forgot about it. But recently I found it on BBC iPlayer and had to finish it. I love Nicola Walker and while the whole cast was great, she just delivered incredible performance after incredible performance. The dual storylines of the legal case her character, Hannah, was working and the difficulties in her personal life were balanced beautifully and they informed each other in a powerful but still realistic way. I loved Series 1 but this series really upped the emotional intensity and Nicola Walker’s acting – the subtlety of the emotional spiral – as the pressure mounted and her life started coming apart around her was just breathtaking. And even though she wasn’t innocent, she also wasn’t the only guilty party and the complexity of the story, the emotions experienced, and the relationships between the characters felt very true to life. The pain that Hannah was going through by the end was completely and utterly heartbreaking and the final episodes had me in floods of tears. I just wanted to hug her. It was an absolute masterclass in acting and I only love Nicola Walker more after watching it. I really, really hope there’s another series and I can’t wait to have her back on my screen, whether in a third series or when Series 4 of Unforgotten airs. She’s fantastic in that too.
Little Voice – I didn’t watch this straight away; the idea of watching a TV show about a struggling singersongwriter felt a little too close to home when I was already struggling with my mental health. And the likelihood that it would probably have a really positive ending for her, music wise, just felt like more than I could handle. So I kept it on my ‘To Watch’ list; I mean, it was co-created by Sara Bareilles so I knew that, in the right frame of mind, I’d really enjoy it. But after hearing Sara’s album of the songs in the show and falling in love with so many of them, I had to watch it. And I did, I really did enjoy it.
*SPOILERS* I got really invested in lots of the characters, especially Bess, Prisha, and Samuel, and I loved the relationships between all of the characters; they all felt really different and natural, based on the characters personalities and experiences together. I especially loved Bess’ relationship with the other characters, particularly with her father, her brother, Prisha, Samuel, Benny, her boss at the bar, one of the elderly women at the senior centre she also works in, and so on. I felt like she had a really special way to connect with people. There were some really touching moments – watching Bess write songs, the first time she performs and it goes well, Bess and Ethan’s conversation about hope, etc – but then there were a handful of moments that made me cringe with secondhand embarrassment – Bess’ early stage banter, watching her father rant during her first studio experience, etc. Overall, it was a positive experience but when I cringed, I really cringed.
It was great to see such a diverse cast and for the show to have a disabled character who’s disability wasn’t brushed aside but also wasn’t his only character trait; he was pretty well developed (considering how many characters there were) with his own storyline, involving his relationship with Bess, his love of musical theatre, and his journey to be more independent, to which he had both positive and negative reactions. There were also some very relatable music industry experiences, like producers trying to mould a song to their own vision or telling you what you want to hear, industry people saying good things and then telling you all of the reasons why they can’t work with you, people making promises that never come to anything, and so on. I haven’t experienced all of these situations but I’ve definitely experienced some of them.
My only real issue with it was that I felt like there was just too much going on, too many storylines that ended up not getting the time they deserved. I loved so many of them that I don’t know which ones I would’ve cut but it was too much for nine episodes and what could’ve been really beautifully developed stories ended up being glossed over. I don’t want to say any more because I don’t want to totally ruin it but I would recommend it if you have Apple TV+. I loved the music and I loved how well it matched the story and the characters. Oh, and I loved Sara Bareilles’ cameo and how Bess and Louis fangirled over meeting her.
His Dark Materials (Series 2) – *SPOILERS* I loved series 1 so I was really, really excited for series 2 of His Dark Materials. I don’t want to give too much away since it’s literally just finished and so a lot of people may not have seen it yet but I thought it was excellent and looked forward to it every week. I thought the city in the ‘middle world,’ Cittàgazze, was really intriguing and so beautiful. And it was very cool to see characters from Lyra’s world in Will’s world (which I believe is also our, the reader’s, world?) and how they tried to fit in. Sometimes the jumps between worlds was a bit confusing or jarring but I loved how some elements matched up beautifully and how some were in such stark contrast. And that was just background as it was the strength of the characters and their relationships that really drove the show. I thought the chemistry between Lyra and Will (and Pan, of course) was great and I loved their friendship; even with only seven episodes to the series, we really saw it grow and develop as they got to know and trust each other. I also really liked Mary Malone and her relationship with Lyra (and the scenes with Lyra and Mary’s machine were incredible). As much as I love Lyra (Dafne Keen really was the perfect choice), I couldn’t help but be absolutely blown away by Ruth Wilson in every episode. Her performances as Marisa Coulter are just awesome. She’s such a complicated character (I’m desperate to understand how she can do what she can do and why her relationship with her dæmon is so different to everyone else’s: why he doesn’t speak, why she’s so cruel to him, how they can be so far apart – something that does seem to distress him but not her – and so on) and Ruth Wilson does such an amazing job playing her. I admit that a part of me was waiting throughout each episode for the moment where we saw how awesome she is, because there was one in pretty much all, if not all, of the episodes: her interrogation of Lee Scoresby (and the painful moment with her dæmon afterwards), the moment when Lyra sets Pan on her dæmon but she is able to fight off the affects – that whole scene is amazing, not to mention intriguing – her ability to control the spectres, the moment where she almost turns on her own dæmon… She’s a force of nature. I’m kind of obsessed with her because she’s such a fascinating character. I did feel like the end was quite rushed: they spent most of the series looking for Will’s father and then he’s just suddenly there, but it wouldn’t surprise me if the pandemic had played a part in that. It just felt like it was suddenly over and I was completely unprepared for that. I have just seen that it’s been renewed for the third and final series so I’m really looking forward to that, whenever it may come. This team and this cast have done such an incredible job with these stories so I’m really glad that they’ll be able to finish them.
Miss Americana – I don’t know if I can sum up this documentary in just a paragraph or two but, between them, Taylor Swift and Lana Wilson created a beautifully honest and emotionally revealing documentary about Taylor’s life so far, the period of transformation she had found herself in, and what she wanted for her future. It shows footage and discusses the history and the fall out of everything with Kanye and the infamous phone call in 2016 (the full recording of which has since been revealed, proving that Taylor was telling the truth all along), the toxicity of social media and how the response to Kanye’s attacks on her continue to affect her, addressing her need to please and how damaging that had become, the harrowing experience of the sexual assault trial, her body image issues and eating disorder, the making of reputation, the reputation tour, her mother’s cancer, beginning to voice her political opinions and arguing with her father and management team about it, the making and release of Lover, the writing of ‘Only The Young,’ and basically her journey of growing as a person. There’s a lot in there and it was a real eye-opening experience, even for someone who considers themselves an avid Taylor fan. I loved her even more than I already did for putting out this documentary and deliberately including details that she knew would help people, like her previously unknown struggles with her body image and the experience of her sexual assault trial. She didn’t have to discuss these things but she did because she knew that there would be people who needed to hear her talk about it. I admire her so much for that. I would highly recommend watching it, fan or not.
City of Lover Concert (Taylor Swift Show) – I was gutted that I couldn’t be at this show when it happened so I was really excited that Taylor was putting it on Disney+. It wasn’t the same and the flow of it felt quite jerky as they had to cut around the songs caught up in the Masters situation (she can perform them but they can’t be recorded and distributed in a film like this one) but it was still really cool and a lovely tribute to the Lover album since we didn’t get a tour for the album (and probably never will since the release of folklore and evermore). You can feel the joy radiating off Taylor as she performed the then new songs and it’s hard not to smile, watching her do this thing that she loves so much. I still wish I could’ve been there for the actual show but I’m so grateful that we got this, especially with the pandemic and the resulting loss of live music.
Hamilton – I’d been planning to see the show in London but then the pandemic hit and obviously that plan was scuppered but then it went up on Disney+ just as my phone contract offered me a free subscription. The timing was beautiful. From the first note, I was absolutely entranced. I loved it. I loved the music, the acting, the set, how the actors interacted with the set… everything. I’ve watched it over and over and read so many articles explaining different aspects of it because I just find the whole production so fascinating. And as both a songwriter and a songwriting nerd, my mind was just exploding. It really is mind-blowing work and I’m sure there are still things I’m missing because it’s so clever and so layered. I could talk about the music for hours but I won’t, I promise. So, yeah, I found it really inspiring as a writer (and I did actually attempt to write a song in the style of it although I’m not sure it’ll ever see the light of day). It was amazing and I love it. I love it more every time I watch it.
folklore: long pond studio sessions – I loved this so much. I love Taylor Swift and I love the folklore album and in a time where we can’t have real concerts, I so appreciated that this film gave us the next best thing. The studio was gorgeous (I would love somewhere like that to write and record music one day) and the performances were stunning; Taylor’s vocals in particular were just breathtaking. She can convey so much emotion just through her eyes and I found watching the film a really emotional moving experience. I also loved getting to learn more about the songs, what they were about, the context in which they were written, and so on. We’ve been speculating and theorising for so long that it was so satisfying to find out where fans had guessed right and get some insight into the ones where we’d been so confused (‘hoax,’ for example). And the whole thing is so beautiful and intimate. It was just so good and I knew from the first watch that I’d be watching it over and over again.
So I hope that was of some interest and that you’re maybe even leaving with a few new things to read or watch. I’m quite proud of how many new things I discovered this year, after being stuck in a rut of just rewatching the same things. I definitely want to continue this approach into next year, although hopefully it will include more books. As I said, I just haven’t been able to concentrate enough to get into a novel. But having said that, I feel really good about pushing myself out of my comfort zone, exploring genres I don’t generally favour, and expanding my creative brain by filling it with new stories, new characters, and new ideas. So I’m proud of this list and I’m excited for the new discoveries that 2021 will bring.
Category: book, covid-19 pandemic, emotions, favourites, music, quotes Tagged: absentia, agents of shield, autism, autism awareness, away, book, broadchurch, castle in the sky, charlie mackesy, cheer, chloe bennet, city of lover concert, close, criminal minds, daisy johnson, dare me, documentaries, enola holmes, fantasy island, favourites, film, folklore: the long pond studio sessions, hamilton, his dark materials, i would leave me if i could, isn't it romantic, laputa: castle in the sky, legally blonde, little fires everywhere, little voice, lucifer, milly bobby brown, miss americana, musical, new, nicola walker, noomi rapace, noughts + crosses, ocean's 8, official secrets, poetry, review, rewatching, ruth wilson, sara bareilles, searching, spoilers, stana katic, taylor swift, the accountant, the boy the mole the fox and the horse, the fix, the half of it, the queen's gambit, the split, tv show, university reading, what happened to monday
Posted on December 12, 2020
Since my last week-in-my-life post didn’t include any time ‘at’ university, I thought I’d write another one this semester, one that included uni time and all that that entails.
After three really bad mental health days, I was a bit wary about the week ahead – starting it feeling so depleted. It ended up being a very mixed week, as they’ve all been recently. Maybe it’s an end of term thing: I start off strong but then I hit a wall somewhere in the middle and it doesn’t always take much. I’ve worked hard this semester so hopefully I’ll be able to finish all of my assessment stuff fairly quickly – it’s mostly just polishing now – and get some proper holiday time. Last year, I had to work every day of the Christmas break, only taking Christmas Day off. So some time off would be really nice.
The week in this post began on Monday 30th November and ended on Sunday 6th December 2020.
I slept badly so I took my time getting up and having a shower. I had some breakfast (and ALL of my pills – there’s so many at the moment, what with my normal medication, extra supplements, and some antibiotics) and then I got myself sorted for my session with Richard.
We spent about three hours on the call, working on the production for a new song I’d written, and then just chilling out together, chatting about our uni work, the various projects we’re working on, the tv shows we’re watching, and so on… We’re always texting and we have our Zoom sessions but we haven’t hung out together in months and I really miss that.
When we finally hung up, I was exhausted and what started as an episode of The Split while I recovered turned into finishing the second series. It was really, really good – even better than the first series. Nicola Walker and Stephen Mangan were particularly fantastic. I love Nicola Walker; she was incredible in Spooks, Scott & Bailey, River, and now in Unforgotten and The Split. Her performances throughout this second series have been breathtaking and the ending had me in floods of tears. She blows me away every time.
I spent what was left of the afternoon and early evening working on my assessment essay. Then Mum and I had dinner together before starting a rewatch of Unforgotten (yes, we’re on a bit of a Nicola Walker kick at the moment), while I did some diary writing. I’m so far behind, what with everything I’ve been dealing with healthwise and doing for uni. My anxiety over it is so high but so is my anxiety over my uni work so the two are constantly pushing against one another. I never have any respite from it and it’s exhausting.
I managed to go to bed reasonably early, which was an achievement, especially since I had to get up early the next morning for uni.
Again, I slept restlessly but with disturbing dreams that I couldn’t quite remember when I woke up; it just left me feeling kind of uneasy for most of the day, which wasn’t fun. I swear, I’ve had as many nightmares or disturbing dreams since the pandemic began than in my whole life up to that point. It’s horrible; I really feel for anyone who deals with this generally, independent of the pandemic.
I got up, got showered and dressed, had breakfast and pills before logging into my first class of the day. I could only stay an hour of the two (pre-arranged with my tutor) but we spent that hour identifying and discussing different kinds of hooks and how they’re used in songs. Then I had to sign off for a call about my rheumatology referral. It seriously cannot come quickly enough; the pain in my arm, hand, back and legs is only getting worse as time passes.
Before I got down to work, I checked my Spotify stats and saw that the Honest EP has surpassed 30,000 streams. It’s a weird feeling, knowing that so many people have heard these songs. A good feeling, but a weird feeling. I can’t really describe it.
I spent several hours working on my essay, all but finishing the first draft. So that was a good bit of work done – more than I can usually manage between classes. I had some lunch, some time to dedicate to my diary writing, and then I was signing back into class.
The afternoon’s workshop was a productive one. We got through a lot of songs and we had some really good discussions, despite only having an hour. Everyone was really lovely about my song, which meant a lot since it was such a personal one. I also had questions about the grading criteria and learning outcomes because I find the language very unclear and that lead to a good conversation about the assessment as well as inclusivity and accessibility of the course. So it felt like a really positive class, in all sorts of ways.
When my class finished, my Mum and I FaceTimed with my Granny for her birthday and I also got to see my aunt (they’re in a bubble together), which was really lovely. I don’t think I’ve seen either of them in person since Christmas, which has been hard, even knowing that it’s the right, responsible thing to do. It a weird world – a difficult world – when the best way to love someone is to stay away from them.
I also FaceTimed with one of my parents who’d had a particularly rough day. So it was a very social day! It was good to do but I definitely felt drained afterwards.
I was having some downtime, doing some blog writing and watching TV, when another of my other parents called me and told me to change channel to a very cute programme about puppies. It was indeed very cute and it did make me wish for a puppy again, not that we intend to get one in the foreseeable future – we don’t have enough time to properly devote to one so it wouldn’t be fair. But I’m always up for any puppy time I can get.
But the best bit was how one of my cats, Mouse, reacted to it. She was fascinated by the puppies, even patting the screen, trying to touch them. It was utterly adorable. She sat patiently through the advert break and was just as absorbed by the puppies when they returned to the screen. She watched intently for the rest of the programme and then, when the credits rolled, she got up and walked away. It was the funniest thing.
So that was very adorable.
Mum and I had dinner with another few episodes of Unforgotten and I finished my essay. Well, the first draft anyway. It needed a read through and a tidy up before I sent it off but what I’d wanted done for my tutorial session was essentially done. A productive day’s work and in bed before eleven: not bad at all.
So Lockdown 2.0 has ended, not that it felt like much of a lockdown. If you’re going to call it a lockdown, then you have to do what you did in the first lockdown and shut everything down. Otherwise it’s not going to make a difference, people are going to have even less faith in it as a safety measure, and they’ll flaunt the rules because they don’t think it matters. It’s been driving me up the wall. I’m so frustrated: with the government, with the people ignoring the rules (and boasting about it), anyone who is putting casual convenience over the safety of others… Yes, that’s a generalised statement. I’m aware that there are important and necessary reasons to go out but there just seem to be so many people who just don’t care that we’re still in a pandemic and I find that incredibly distressing.
I woke up at eight and intended to get up but then suddenly it was quarter past nine so I must’ve accidentally gone back to sleep. I did manage to get up then and headed straight for my desk to record the vocals for the song I’d been working on with Richard. Even though I love it, for some reason, I find it really hard to motivate myself to start recording so it seems that the easiest way is to just get up and do it before I can get into a procrastinating mindset.
That done, I had breakfast and a shower, leaving me with just enough time to tidy up my essay and send it to my tutor before heading out to have a blood test. I had one a month or so ago and it showed dangerously low Vitamin D levels so I’ve been on a high dose Vitamin D supplement to try and build them up again. This blood test should tell us whether they’ve helped and what the next steps are.
It was almost dark by the time we got home so we settled down in the living room, lit a fire (one of my favourite things about this time of year and about this house – the fireplace) and continued watching Unforgotten. I also kept working on my Lockdown 2.0 blog post. I’d been keeping the list updated throughout the lockdown so it was just a case of tidying it up, adding all the right links, and writing an introduction and conclusion.
I had to stop in the middle to sign in to my tutorial. I had a really good session with my tutor. He was complimentary about what I’d already done and had some really good feedback so I feel pretty good about my next steps. I know what I need to do and now I just need to do it. Then I get one more tutorial before the holidays for any final feedback or guidance. The deadline is in sight, which is more than a bit scary. I just really, really want to do well.
I was exhausted afterwards but I still managed to finish and post the Lockdown 2.0 blog. So I guess it was a pretty productive day.
That done, I had a quick scroll through social media and saw that people had started to post their Spotify stats of the year, both as listeners and as artists. I always find this difficult, regardless of any rational talking to I give myself, regardless of whatever I’ve personally gone through or achieved that year; it just taps into my lifelong insecurity of not doing well enough, not being ‘good enough.’ So it’s not easy. This year should’ve been different, with four of the five tracks from my EP being released since January, but Spotify doesn’t count anything after 31st October and with ‘Honest‘ coming out on 30th October, only one day of its streams were counted. So my most successful song wasn’t a part of my Spotify Wrapped, making it completely inaccurate. So I haven’t shared it – haven’t wanted to – and I feel a little bit robbed of that. I have included the percentage increases here but in reality, they’re a good bit higher since ‘Honest’ did so well.
Hopefully next year, or whenever it is that I release more music, the figures will be more accurate and I’ll feel confident in sharing them. This ‘comparison anxiety,’ as my friend called it, was something I really wanted to work on in therapy this year but even when I’ve felt able to ‘go’ to therapy, it’s been difficult to get much further than damage control around the pandemic. That’s been really difficult – a real frustration – this year. I’ve just felt completely stuck at therapy: while I want to move forward, I’ve only felt able to maintain the fragile balancing act I’ve managed to create. And I haven’t even been able to do that a lot of the time.
Early evening, my Mum and I FaceTimed with my Granny before having fish and chips with one of my other parents. We watched the new episode of His Dark Materials (Series 2 Episode 4) and it was so good. Oh my god, that cliffhanger!
I was just getting ready for bed when I felt the pain in my back. It had been aching all afternoon but that’s not unusual right now but then it started to get worse, sharper and higher. It came on so suddenly that I couldn’t get from the bathroom to the bedroom without Mum’s help and then, when I collapsed on the bed, I couldn’t move because the pain was so bad. It seems to come in waves: there’s the pain and then it surges like a series of electric shocks before finally (FINALLY) receding back to the original pain level. And I never know how long it will go on for; sometimes painkillers seem to make a difference and sometimes it seems to go on for ages regardless. I’m not entirely sure how long this one went on for but it was at least half an hour. And then it always takes quite a long time for me to get my body to relax afterwards, my muscles having been so tense while the electric shock pain was so bad. So even though I was exhausted, it took me a long time to get comfortable and drift off.
It took me a long time to get up because I was so stiff and sore. The rheumatology appointment can’t come soon enough. I struggled through breakfast and a shower and then had a Zoom production session with Richard, continuing to work on the song we’d started on the Monday. Considering how out of our normal styles the song was, I think we did a good job, especially for a demo and I’m definitely interested to hear what my class have to say when they hear it.
We also had some chill time, just chatting and hanging out, almost like we would if we were actually together, which was really nice. We’re coping with remote sessions but I cannot wait to hang out again properly, have face-to-face writing sessions, and actually do things together. Or not do things together but do that together in the same room, if you know what I mean.
When we finished, I did a couple of FaceTime calls with family and then collapsed on the sofa. I was completely exhausted. Me and Mum watched the last episode of Unforgotten Series 3 and oh my god, it gets me every time (if you know, you know – I’m not going to spoil it but the acting is incredible). Nicola Walker does not get the credit she deserves, although from what I’ve read in interviews, she seems to be pretty happy just buckling down on great projects and not doing the whole spotlight thing. (I’m so annoyed with myself that I missed seeing her in The Curious Incident of the Dog in the Night-Time – I would love to see her on stage and it’s such a great book.)
Mum and I were having a relatively chilled evening until I asked her about her call with my doctor. There had been multiple things to update her on and ask about but some of the advice she’d given was just really triggering and upsetting. I will talk about it at some point because I think it’s an important thing to have conversations about but it’s not something I’m personally ready to talk about yet. But it really upset me and just killed the warm, cozy mood of the evening.
And then, to make matters worse, Mouse (the cat) brought in a dead mouse, which is something that almost always sets off a meltdown (fortunately Mum understands this and is okay with dealing with it while I do my best to avoid said meltdown). I managed to remove myself quickly enough that I didn’t have one but it was just the final straw on what I could handle that evening so even though it was still quite early, I went to bed. It was all just too much.
I slept for about twelve hours but I still woke up feeling exhausted, depressed, and miserable. I feel like I spent most of the first lockdown working really hard to get my mental health into some sort of box so I felt like I wasn’t constantly overwhelmed but most days, it still feels like I’m walking on a tightrope and it takes so little to knock me off and back into that suffocating depression. And that’s exactly what the night before did.
I really struggled all day. I just felt completely unmotivated and so, so tired. I was also having to deal with side effects of my antibiotics – they left me with a disgusting taste in my mouth all the time – which was just an extra strain. I only had one day left so I tried to focus on that but it just felt so much harder than it would’ve had I not already been feeling so awful. I did manage to finish and post the blog post about What’s Next for the Honest EP so that was good to do and helpful for my mental state – ticking stuff off my list always gives me at least a bit of a boost.
The good news of the day was that Kalie Shorr had re-released (I guess) her debut album, Open Book (which I wrote about here), but as Open Book: Unabridged, the original album plus four more songs. ‘My Voice’ and ‘Lying To Myself’ had already been released as singles and she’d played ‘Eighteen’ during her livestream concert but ‘Out Of It’ was completely new, which was really cool. They’re all stunning songs and all in their own way. ‘My Voice’ is empowering and unapologetic, as well as a very effective middle finger at the Country labels in Nashville. ‘Lying To Myself’ paints an aching authentic picture of insecurity after a break up with incredible lyrics like, “I picked out all my favourite things you said, then like a delusional architect, I built you up like a house of cards” and “You liked it up on that pedestal ’cause damn, you looked incredible, but coming down’s inevitable.” ‘Eighteen’ is a brutally honest, heartbreaking song about looking back at a relationship that really wasn’t okay, where you were all in but you were only ever treated badly. And ‘Out Of It’ is similar to a previous Kalie song, ‘Awake,’ but this time, she’s saying ‘no’ and isn’t going to get pulled into the bullshit; this time, she’s cutting the cord between herself and the other person. And because I’m a lyric nerd, here is my favourite (or one of my favourites) from each song:
My Voice: “Too rock for country, too country for punk / But who said I had to pick either one / Tattoos at the Opry / I could cover em up but it’s not me”
Lying To Myself: “I’m a little out of touch with reality, it’s never been that nice to me / I like the pictures I paint the best”
Eighteen: “I see you out with younger versions of me / While I’m trying to find who I used to be / I’m terrified that you and I will always be chasing eighteen”
Out Of It: “Your mom and dad put you through hell / You tell your secrets ’til you scare yourself / It’s a big dramatic entrance then you leave / And now I’m the girl I said I’d never be”
Late afternoon saw me dragging myself through some preparation for a mental health assessment that I have coming up, which was another thing I needed to do. But I was so tired that it took forever and I spent a lot of the time it took with my head on my arms, just trying to think. It was just a really bad mental health day. There was no way around it so I just tried to get through it. I was too tired to do anything really but I still tried to write my blog post about the UniversitiesUK Conference. I find it so hard to just do nothing; it causes me a lot of anxiety so even when I’m exhausted, I’m still desperately trying to do something.
By necessity, it was a quiet evening and I went to bed early, all too aware of how soon I had to wake up again to watch Maren Morris’ livestream concert.
After MANY alarms, I struggled up at 2am to watch Maren Morris’ livestream concert. It felt very strange to not be a part of the crowd, singing (or screaming) along with her but it was so good to see her perform and hear her gorgeous voice again. It was very comforting, like a reminder that some things don’t change. The world might’ve turned upside down but Maren Morris is still Maren Morris, an exceptional songwriter, singer, and performer. So I was really grateful that she and her team put together this show for us.
I didn’t get back to sleep until about five and couldn’t be roused for anything. I eventually woke up at twelve and then I felt so tired and heavy that I could barely get out of bed. I spent several hours unable to do anything but lie on the sofa and watch TV. Disrupting my sleep patterns always throws me for six and with the depressive feelings still very overwhelming, I was really struggling.
Eventually I managed a shower, which completely exhausted me. It also makes me feel sick and dizzy to stand up for the amount of time it takes to sort the shower, have the shower, and then get dried and dressed. One more thing on the list of things being investigated.
Back in the living room, I put on Lucifer and attempted to do something productive. Mostly I ended up jumping between this and my diary, writing a few sentences here and there before switching back, just too tired to think enough to write anything decent. So that was frustrating, plus I had the nerve pain in my leg again – not the electric shock version but the bit that always comes before that (even if it doesn’t turn into said electric shock feeling) where it aches deeper than feels physically possible. So that didn’t help.
Mum and I had an early dinner and then she went for a swim. I really wanted to go and felt like I should – I’d been looking forward to it ever since the pool closed for lockdown – but I just had absolutely no energy. So she went and hopefully I’ll feel able to go next time. I got some good writing done though, so at least the time didn’t go to waste.
Having gotten up so late, I ended up going to bed too late, which was a bit of a pain. My sleep schedule is so easily knocked off course and then so difficult to correct. It was worth it though. Seeing Maren Morris perform is always good for my soul.
I slept restlessly and struggled up around ten. I still felt incredibly depressed and it took a huge amount of effort to just get out of bed, into the shower, and up into the living room. I had a quiet day, not that that I think I could’ve managed anything else. I managed to finish and post my blog post about speaking at the UniversitiesUK Conference. I also finished all the paperwork for the upcoming mental health assessment and worked on the interview questions my university had sent me about doing the conference (that interview has since been posted). So, considering how awful I felt, I did manage to get something out of the way and check some things off the ongoing list, which – as I think I’ve said – at least helps me to keep my mental state from sinking lower. Having said that, I don’t want to promote the idea that being constantly productive is essential for your mental health; I’ve just found that, if I can tick something off of my to do list, even if it’s something tiny, then that can help me to keep moving forward, help me not to get stuck in my depression. It doesn’t always work; sometimes I just have to surrender to a bad day and hope that the next one will be better. But trying , even if not succeeding, does seem to do something positive.
In the evening, one of my parents came over and the three of us had a chilled evening, eating dinner in front of the fire and continuing our rewatch of Lucifer. It was gentle and undemanding and I did feel better for it. I often simplify my mood into two levels: surface and deep. And in this case, even though my deep mood was still very depressed and twisted up, my surface mood was a bit lighter. Calling it a surface mood doesn’t, to me at least, make it any less important than the deeper mood; it just means that it’s the mood that deals with the day to day stuff while the deeper mood is the one that you carry inside you and the one that sits with all the big, important stuff in your head and in your life. I guess, I see this mood as the one that’s so intricately intertwined with a person’s overall mental health. For example, in the previous few days, I was depressed on both levels (I’m not sure how good a job I’ve done of illustrating that but it’s the truth) but after the Sunday evening, my surface mood started to lift out of that depressed place. My deeper mood was still there though (and still is as I post this). But the lightening of my surface mood did make it a bit easier to face Monday and the coming week.
I tried to go to bed early but as usual, failed. I swear, I’m desperate to sleep all day and then, at about seven o’clock in the evening, my brain snaps on and starts firing wildly, almost too fast for me to keep up with my own thoughts. It’s so frustrating. It’s almost as if my brain has got day and night confused.
So there you have it: another week completely different from the last. I think I’m grateful for that – it must be better than feeling like you’re stuck in a hamster wheel surely – but it’s not without it’s difficulties. When planning is the thing that makes life easier to bear, it can be hard when each new week seems to bring something unexpected.
You guys seem to like these posts so I’ll be sure to do another one soon but probably not until the new year. Touch wood, I can get all of my coursework done in the next ten days and then I can have some time off (although I’m not exactly sure whether it will feel like time off – my brain already has an anxiety fuelled to-do list waiting for me – but I’m going to try my best.) Anyway, I hope you enjoyed reading this and I hope to see you in the next post.
Category: animals, anxiety, body image, chronic fatigue syndrome, covid-19 pandemic, depression, emotions, favourites, holidays, medication, mental health, music, ocd, sleep, therapy, treatment, university, writing Tagged: a week in my life, anxiety, asd, assessment, autism, autistic, autistic adult, autistic spectrum disorder, autistic student, blog writing, cat, cfs, christmas, christmas holiday, chronic fatigue, chronic fatigue syndrome, chronic pain, comparing, comparing myself, comparison anxiety, compulsive writing, concert, coproducer, coproducing, coronavirus, coursework, covid-19, depressed, depression, diary writing, doctor, emotions, essay, essay writing, facetime, family, family of cats, fatigue, favourite lyrics, feedback, his dark materials, holidays, home recording, honest, honest ep, insecurity, interview, kalie shorr, livestream, lockdown, lockdown 2.0, lockdown 2020, logic pro x, lucifer, lyrics, maren morris, masters, masters degree, masters degree in songwriting, masters degree year two, masters part time, medical advice, medication, mental health, mental illness, mood, my cat, nerve pain, nicola walker, obsessive compulsive disorder, ocd, online concert, open book, open book: unabridged, pain, pandemic, pandemic 2020, part time masters student, part time student, production, productivity, recording, remote writing session, richard marc, richard marc music, sleep, songwriting, spotify, spotify streams, spotify wrapped, the split, triggered, unforgotten, university, vitamin d, vitamin deficiency, week in my life, writing, writing partners, zoom, zoom calls, zoom writing
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.