Changing Therapist

TW: Mentions of self harm and suicidal thoughts and urges.

It’s been a year since I started therapy again after an unintentional break, essentially starting again with a new therapist. It’s been a hard and emotional process, and at times a distressing one; just going to therapy can make you feel so vulnerable and so open to further hurt as you dig into the hard stuff – wading into dark waters that you’d rather ignore and pretend don’t exist, even as they’re eroding your mental health – that adding difficulties to that already difficult thing can feel unfairly cruel. So, given that I’m me, I thought that, perhaps, writing about it might be helpful and maybe not just for me but for anyone going through a similar transition. And if not helpful, then hopefully validating in some way.


I’d been seeing Therapist A for almost seven years when everything changed. She was taking leave and I was on my own.

Pre-2021, I’d seen Therapist A once or twice a week pretty consistently since early 2016. Even when the UK went into lockdown due to COVID-19 at the beginning of 2020, we continued our sessions online; I didn’t find them as productive but it was better than nothing. We continued that way for a while, trying to manage my crippling anxiety over the pandemic, working on issues that came up as I persisted with my now online Masters classes, and continuing to work on the issues that had landed me in therapy in the first place. But then the schedule began to slip: Therapist A’s home life was pulling her away from work and I was working myself into the ground in order to complete the final project of my Masters. I barely saw her in the last four months of the course, which I really struggled with: I was digging into some pretty hard stuff, writing song after song about my experience of being autistic, and I craved that safe space to play them to her, to hear her perspective on what I was saying, talk about the feelings they were bringing up, and she wasn’t there. I told myself that it was a short term thing and that, once the Masters was over and her stuff was resolved, the schedule of our sessions would go back to normal. I think it’s safe to say that, given the title of this post, it didn’t.

I finished the Masters in September 2021 and officially graduated, walking the stage, a few months later in November. I had reduced and stopped taking Phenelzine at this point, in preparation for trying ADHD meds (and we all know how appallingly that went), and my depression was creeping back in; the situation was getting pretty desperate. But luckily, that was when Therapist A reached out and we started having sessions again. We had a lot of catching up to do but, by mid-December, we were up to date. Unfortunately, the ADHD medication was already hitting me hard and my depression had gone from a state I recognised to a whole new level of despair with increasingly overwhelming suicidal thoughts. My most vivid memory from that time is sitting in Therapist A’s new office, staring at the unfamiliar rug and hearing my voice in my ears as I confessed to those thoughts, my voice completely flat (this is known as ‘flat affect,’ a recognised symptom of depression and other mental health conditions). It still makes me nauseous to think about, even though so much time has passed and my depression has gotten so much worse since; I think, in my head, that was the beginning of this awful, awful time.

My last session was on New Years Eve and I was drowning, all of the impending new beginnings feeling more like a threat than a promise. When we hung up, I felt achingly hollow and that was only the beginning of a terrible night. But that’s a story for another time. January was passing around me, aimless and anxious, when I finally heard from Therapist A. But instead of setting up our next session, she was letting me know that she was taking leave indefinitely. Her reasons aren’t mine to tell but, between those, my ongoing abandonment issues, and my overwhelmingly bad mental health, I was devastated, spiralling into some grotesque hybrid of a meltdown and a panic attack that went on for hours: I screamed, I cried, I scratched at my face, I tore at my hair, I shrieked like an animal in pain. I guess that’s what I was. I felt like I was trying to exorcise a corrosive demon from my body but nothing helped, nothing alleviated the pain. I was shattered as brutally as if I’d been hit by a wrecking ball. That’s what it felt like, what my life felt like.

Eventually I physically ran out of energy and fell asleep, too tired and emotionally drained to even engage with the world. My depression became more and more overwhelming, compounded by the devastating effects of the ADHD medications and the loss of a massive source of support in my life, and, for months afterwards, I barely got out of bed, barely ate, barely talked. I abandoned social media and I avoided mirrors at every opportunity, to the point where I started to forget what I looked like. The suicidal thoughts were only getting stronger, stronger than they’d ever been in my life, and the feeling of being intrinsically, irreparably broken was – and is – a constant weight in my chest.

I’m not sure when or why I started getting out of bed, why I decided that I needed to go back to therapy. I think I  knew I was getting into a very precarious position mentally and the excruciating pain of being inside my head was getting so unbearable that I was willing to do anything to lessen the pressure. I did see a consultant at the local mental health unit but the experience was another traumatic one: after a panic attack at the front door, a junior doctor took my history and then brought in the consultant who told me about ECT and the Ketamine trials before telling me why I shouldn’t do them and recommending doing more of the things I love (which I’d already told him I couldn’t engage with because I was so depressed). So that didn’t improve my relationship with doctors and the medical profession.

For a short while, I worked with a therapist I’d met several years previously but the sessions only made me feel worse and while I have no doubt that it wasn’t intentional, I ended up feeling more broken and more traumatised by some of the things he said, trauma that I’m still carrying around with me. So I stopped seeing him and met with several new therapists, trying to get a feel for them and their methods before committing to someone new. But, just like with Therapist A, Therapist B was the first of the group that I met (a year ago yesterday, I believe) and between her therapeutic approach, her personality, and the fact that she’d brought along a dog she knew in order to put me at ease, she was the obvious choice.

As therapists, they both trained in several of the same disciplines and their skillsets overlap to a certain degree but, when discussing a particular issue, there were differences to how they’d approach it; there has been a fair amount of whiplash in getting use to Therapist B’s approach after so many years with Therapist A. But the point of this post isn’t to compare them – they’re both lovely people and very good at what they do, at least as far as I can tell – but rather to reflect on the process of moving from one to another and the feelings that that kicked up. And a lot of feelings there were – I even wrote a song about it called ‘Grave Digger.’ During the early sessions with Therapist B, we made a timeline of my life and discussed some of the biggest moments, many of which were difficult and distressing (and remain so to this day). Revisiting and recounting the hardest parts of my life was gruelling but I did my best to push through the internal resistance and breathe through the resulting turmoil; between that and the ongoing mental anguish, it was a difficult few months. I don’t mean to make it sound like one continuous torture because that isn’t true -we’ve talked about the good experiences that’ve made me who I am, of course, and there have been sessions where we’ve laughed a lot – but I think that building a strong relationship with a therapist and making progress will always involve periods of incredible vulnerability, which is always scary and, at times, painful.

Sometimes – okay, often – I feel like I’m not making any progress at all, partly because of all the disruption and the distress it’s caused. A year ago, I hadn’t expected to see 2023 and my depression and chronic suicidal thoughts haven’t lessened, even though I am taking Phenelzine again (at a higher dose, in fact) – after many discussions with Therapist B. It has made me more functional, to a certain degree, but the decision came with a price tag: my self harming escalated from cutting my arm to cutting my face. I’m not convinced anything’s changed; I don’t feel any better. But I can see that some things have changed and changed for the better, even though I can’t feel the effects yet: something has allowed me to start talking about some of the worst stuff in my brain, even if only a little. It’s something I could never have imagined doing so I know that that’s progress, even though I struggle to feel it.


I have heard from Therapist A several times now; the news has generally been positive, which has been a great relief (and I appreciate having a little less uncertainty in my life). Therapy is continuing as normal – the current version of normal at least – which I’m pretty sure is a good thing: the idea of trying to work my way through all of the emotions that I know would come up as a result of any potential change makes me feel physically nauseous.

I’m not always convinced that I’ve adjusted and sometimes I forget that I’m not going to see Therapist A, my body moving in the direction of that office as the car turns down a different road; that experience is more ingrained than I had realised at the time. And I know I’m still carrying a lot of hurt and anger over the whole thing, even though over a year has passed. I’m not angry at the people involved – nobody chose any of this – but there is anger and, although I’ve been slower to realise it, hurt too. I think it’s easier to be angry than to be hurt. Not always but sometimes. And, as I said, I have abandonment issues, issues that I’ve struggled with for a long time, which – unsurprisingly – have been exacerbated by this whole thing. It’s hard to lose someone that you trusted to never leave (a naïve ideal, I know) and it’s hard to trust someone new, ignoring the whispers that they’re just another person who will inevitably walk away. I think these issues are important to mention but they probably need their own blog post rather than taking up space here: when talking about changing therapists, it’s not something that everyone has mixed into the equation. All of that said, I’m trying to trust and I think that, for the most part, I am, even if it does sometimes feel like a conscious, concentrated effort. The progress isn’t as fast as I’d hoped it would be when I committed to therapy again last year but the proof is there. I’m sharing things I never thought I’d share and that’s certainly not nothing.

Preparing for London Film And Comic Con As A Disabled Person

So, earlier this year, I finally felt able to go to Comic Con for the first time ever after several failed attempts (this was mostly due to my own anxiety, which was then compounded by COVID and COVID anxiety). And it was amazing! I had a really, really special experience. Having spoken to them a lot, I was about as prepared as I could be (given that I’d never been before) and that really helped me enjoy the experience so I thought I’d share what I did beforehand and what I learned from the experience that will make it easier next time, whenever I choose to go. With London’s Winter Comic Con coming up, I hope that these can be useful to anyone wanting to go.


Apply for an Extra Help wristband ahead of time – The Extra Help wristband makes you quickly identifiable to the staff at the event so that they know to give you priority and move you to the front of the queues for your photo and autograph, etc. There’s an extra queue just for these wristbands at the talks and reserved guaranteed seating (although it is still first come first served). There’s a specific help desk for the Extra Help wristbands too and all of the staff were lovely and super patient even when I’m sure I was asking really obvious questions. These wristbands do require certain paperwork to get ahold of but all of that information is here.

Apply for Carers wristband – Even if you don’t need literal ‘caring for,’ having someone there to support you with whatever your particular needs are (for example, I needed someone – in this case, my Mum – there to help me keep my anxiety down, to guide me somewhere quiet if I started to get overwhelmed, and to be someone who knows what to do should I have a meltdown or should something unexpected happen) so that you can focus on the experience rather than worrying about what could go wrong and what you’d do if any number of things happened can completely change the experience. A pass doesn’t allow the carer to get photos or autographs but they can join their person in the talks and so on. (I met some members of a group of friends, some abled and some disabled, who’d organised their ticket buying to allow all of them to go for slightly less money, although that only works if members of the group aren’t interested in meeting anyone and only want to look at the stalls and go to talks with the group member they’ve partnered up with.)

Diamond passes are a good investment for seeing someone that means a lot to you – Because the only person I really, really wanted to see there was Amanda Tapping, I bought a Diamond pass because it made access to all of the Amanda-related parts of the event really easy and straightforward. The pass gave me access to the talk, the autograph, and photo, combining and reducing the price. It also improved the accessibility in that it reduced the queuing times and guaranteeing a seat. It made the whole experience less stressful, although I wouldn’t have been able to afford the luxury for more than one person.

Email beforehand if you have questions – Because I was so nervous, I emailed the organisers several times before the event to get as much information as possible. The staff were great, replying clearly and in good time. Having said that, it’s worth remembering that information does change so it’s probably best, should you need to contact them about anything going on during the actual convention, to contact them closer to the event if possible (although they obviously have to set up and so don’t reply to emails in the last few days leading up it).

The line up changes multiple times – The fact that the schedule changes so much has caused me a lot of anxiety in the past, during previous attempts to go, but now that I know that that is what happens, it doesn’t phase me as much. Knowing that the early ones are really only a basic guide and that you’re not going to be sure until the day before, or even the day of, did reduce my anxiety because I stopped panicking every time they changed it.

There are chairs but you have to search for them – I had fully expected to have to sit on the ground between my events (and at times, I did) but there were a handful of empty tables and chairs here and there around the convention space (I assume for events on different days or something like that). So, on the whole, it was a pretty comfortable experience; I could’ve coped with sitting on the floor but it was very nice not to have to. So keep an eye out because chances are, you’ll find somewhere more comfortable to sit than on the ground.

Keep the map on your phone – It’s a huge, huge space with a lot going on and it’s easy to get turned around so keeping the online map (or a picture of the map – I didn’t want to rely on the assumption that the WiFi would be good) does make it easier to navigate that space and to find things more quickly, something that’s especially helpful if you need to find a bathroom or quiet corner as quickly as possible.


An unexpected and beautiful aspect of my Comic Con experience was how many disabled people I saw and, of course, those were just the people with visible disabilities; there were surely many people there with invisible disabilities, just like me. That was so comforting. I’d been so worried about how my disabilities would affect my experience but here were all of these people with disabilities who were, presumably, having a great time. It helped to reassure me that that was possible, not just for that event but for ones in the future. There were also lots of service dogs around – one of which I spent quite a lot of time with – and that gave me a little bit more confidence about what it will be like to have one myself. I just felt very safe and welcome there (even though I’d never been there before), which is not something I often feel out in the world. So it was a really positive experience, on so many different levels.

And although I don’t know whether anyone who’s part of the organisation will actually see this, I still want to say thank you to all of the staff who were so helpful and accommodating and patient – especially when my anxiety rose and I was less able to function – because it made the experience so much better and so special: I was allowed to be myself, to be anxious, to need help. They didn’t for a single moment make me feel weird or stupid for struggling and I appreciated that more than I can possibly express since that is often the world’s default. My Mum and I emailed to express our thanks but I also want to acknowledge them publicly because I really, really appreciated it.

Here is my Instagram post from after the event…

Seeking Help For Chronic Pain (Year Two)

TW: Mentions of being suicidal. 

Year two of dealing with chronic pain. Since it’s Bone and Joint Week, I thought it seemed timely to update this series, although hEDS isn’t bone related. But whatever. I needed to post this at some point and my joints hurt so this seemed as good a time as ever.

Unfortunately, very little changed during the second year. I was incredibly depressed, to the point where I was periods of being consistently suicidal, so I wasn’t capable of much. But we were also waiting for the Pain Clinic to get in touch as they’d promised to.

This post spans from April 2022 to March 2023.


OCTOBER 2022

After finally getting the referral to the NHS Hydrotherapy Department in December 2021, I tried to work that into my routine to get some exercise, strengthen my painful joints, and just improve my quality of living. It was pretty hit and miss for a while (as my post about it reflects) but around August, I found a pool that allowed me to do all of the assigned exercises and managed to work out a schedule. From that point on, I was going at least twice a week, if not more, and I could really feel the difference.

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I wasn’t pain-free by any stretch of the imagination though; I was in enough pain to significantly disrupt my life at least 50% of the time (and a lot of the time it was still there, even if it wasn’t upsetting my day-to-day life). I was getting stronger, with more stability, but still with no word from the Pain Clinic on how to manage or, dear god, get rid of the pain.


Into 2023 and we still hadn’t heard anything. I was working hard at hydro and I could feel the difference – I was stronger and I enjoyed the exercise – but I was still in pain a lot of the time. We’d asked my GP to chase up the Pain Clinic but not heard anything from either of them.