Finding Hope2018 in Review
Posted on December 31, 2018
This year has been a struggle. Almost eighteen months ago, I made the decision to change my medication and that has basically been my life ever since. Lots of pills and doctors appointments but mostly dealing with the side effects, everything from nausea to shaking to a complete inability to think clearly. I don’t think I realised what a huge undertaking it was going to be but it’s not exactly surprising: you’re throwing all the chemicals in your brain and body out of whack. I tried Venlafaxine, Lithium, and Lamotrigine; I weaned myself off Venlafaxine, tried Amitriptyline, and now I’m taking Pregabalin and Clomipramine. This is the most promising combination so far and I’ve actually had a few really good days so I’m cautiously optimistic. But it’s been a long, hard road, sometimes so difficult that I wasn’t sure I’d survive it. And I don’t really feel able to acknowledge the good bits without paying tribute to the really tough things I had to go through and so got through.
The first of The Big Difficult Things was moving house. God, that was a struggle. Having thought that I’d found some sort of peace around it, when it came to the day, I was absolutely devastated. There were a lot of tears – from all of us. That house was my home for fifteen years – home to the greatest triumphs and tragedies of my life – and so, to some extent, it will always be my home. I think I could probably walk into my old bedroom twenty years from now and fall right back into that old rhythm.
I’m still learning the rhythms of the new house. There are days where it feels normal and then others where I hate it so much I could scream. Most of the time, it still feels like someone else’s house. Someone else’s house with all our stuff in. But every day is a step in the right direction. We’re filling all the empty space with memories, slowly but surely.
I’ve been writing a lot about Claire Wineland of late but I couldn’t write about this year and not mention her. Her death was another of The Big Difficult Things of this year. I stumbled across her YouTube channel late last year and have been following her on social media ever since. She was – and still is – a big inspiration for me and her death hit me really hard. It just makes no sense to me and never will and I’m still struggling to cope with that.
And through all of this, depression has been my constant, oppressive companion. While I had experienced depression before, this was a whole new kind of prison. The lows were lower than I’d ever experienced and there were several pretty scary moments. And as well as affecting my mood, my depression made it almost impossible to write songs. I’ve had many discussions about writer’s block over the years and I’ve always thought that there are things that can make writing difficult and so you have to figure out what’s causing the block and address it. In my case, it feels like depression suppresses the creative part of my brain: I don’t get random sparks of inspiration, I can’t solve problems creatively, and any active creativity – like songwriting – is like pulling teeth. It feels like writing songs requires a certain level of functioning that I’m just not capable of reaching while depressed. I want to write more about this – about depression and writer’s block – but that’s for another post.
Having said all of that, there have been good days, as well as good experiences on bad days.
By far the best part of this year has been the time spent with my friends and family, whether that be online or in the physical world, in Nashville, London, or Brighton. Or anywhere in between. These people have kept me going through the hardest period of my life so far and I’m so ridiculously grateful to them for that.
I got to travel a little bit this year, which was amazing. I managed to get back to Nashville where I had the most intense ten days possibly of my life. I got to see some lovely people, write songs (or try to), listen to some of the best songwriters in the world, and play a Song Suffragettes show. Even though I was incredibly anxious about it, that may very well have been the best day of my year.
I also travelled to Iceland for the first time and saw so many beautiful things, including a 60m waterfall, the Diamond Beach, and the Northern Lights. The natural scenery in Iceland took my breath away time and again. It felt like the first breath you take after being underwater. Of course, there was a lot of anxiety during the trip but it helped me in a way that only the magnificence of nature is able to.
There have been more wonderful live music events than I can count: Paramore, Kelsea Ballerini, Sugarland, Kacey Musgraves, Natalie Hemby (and all of Tin Pan South in Nashville), Frank Turner, Betsy Lane, The Shires, Sinead Burgess, The Brummies, Halsey, Kina Grannis, Aislin Evans, Maren Morris, and of course, Taylor Swift. Despite the anxieties around concerts, these are the places where I feel most alive and so, throughout this difficult period, I’ve always tried to ensure that there was another concert to look forward to.
And despite my musical struggles this year, I’ve actually played a few gigs and played shows that I am so proud to have been a part of. I got to play with WRTW again and it was even more fun than the first time (if that’s possible). I played Autism’s Got Talent in London, which was such a great opportunity. I played for Brighton Soup and Disability Pride in Brighton, two amazing organisations that I can’t praise enough. I also played Summer Fest in Worthing, my first show with my awesome friend, Richard Sanderson. And of course, I got to play a Song Suffragettes show when I was in Nashville.
I’ve also managed to do a handful to Autism research studies, as well as giving blood. I’ve been feeling so useless so I tried to contribute as best I could during this time where I’ve felt incapable of contributing anything at all.
Another big part of this year was getting used to the kittens: my cat had two kittens in February and me and my Mum just fell in love with them so we ended up keeping them. I love them dearly but it has been a major adjustment and a real struggle, especially with the daily battle that is depression. So this has been both a good and a bad thing. I want to write more about this whole experience because there were – and still are – a lot of complicated emotions involved. But above it all, we have Lucky and Lucy and the kittens and I love them more than life itself.
So, that’s it: 2018. It has been a hard, hard year, and one I’m very happy to leave behind but I’m cautiously optimistic about the next few months and the next year. I’ve felt better in the last couple of weeks than I have all year and I’m hopeful that this is characteristic of what’s to come.
“2018, the year of living, fighting, but ultimately, surviving depression. There was a lot of gold in the grey but I’m so ready to move on to 2019.” (x)
Things I’d Tell My Younger Self
Posted on September 29, 2018
Have you seen the book where various different celebrities or famous people write letters to their younger selves? Some of them write pages and pages and some of them write a sentence, maybe two. But the majority of them reveal very little about their lives because they believe that the journey to the major events is as important as those major events. I don’t disagree with that but considering my levels of anxiety, it wouldn’t be the worst thing in the world for my younger self to have a little more certainty. Most of my stresses, then and now, are about the future so this would’ve been the perfect thing to calm younger me. Obviously this is a hypothetical exercise since we haven’t actually invented time travel and therefore don’t have to worry about causing a paradox that dramatically alters human history. We’ve all seen enough sci fi to know that that always ends badly.
- Your grades are only important for the next step. I know everyone keeps talking about how universities and jobs all look at your GCSE results and maybe in some fields – like medicine or if you wanted to be an astronaut (yes, I know, there’s a little bit of you that really does want to be an astronaut but, spoiler alert, that hasn’t happened yet) – that’s true but for the most part, your GCSEs only matter until you have A Levels and then your A Levels only matter until you’ve got a degree. Hopefully, you get my point. Try not to stress too much. If you get a grade that wasn’t as good as you wanted, feel it, process it, and let it go. Move on to the next thing. It will be okay. There’s always more than one way to get somewhere.
- Try not to worry about fitting in. I know you wish that you could be like the beautiful girls who all seem to have it so together but it won’t always be like that. The years will pass and you’ll be glad that you have your life and not theirs, not because there’s anything wrong with their lives but because you are where you’re supposed to be. I hope.
- You will get to Nashville. I know how much you want it. I’m not going to tell you how it happens because that journey is important but I promise you that you’ll get there and it will be worth the wait and the effort. I know it’s stressful and you’re terrified that you’ll never get there but you will. And it will be magical. Take it from someone who knows.
- Don’t let people treat you badly. You don’t deserve to be treated that way. There will always be people who think it makes them superior (*cough* or a better teacher *cough*) but it doesn’t. I know it’s really emotionally overwhelming but you are strong enough to stand up for yourself. I promise you, you are.
- It’s okay if you feel like you’re never going to get through something or if you feel like things are never going to get better. People will tell you that you will and you won’t believe them but that’s okay. There are things in life that you can’t know until you’ve experienced them. You can’t take pathways in your brain that you haven’t forged yet. So, when people tell you that time heals everything, try not to despair. They can say that because they have had that experience. It’s okay that you don’t yet. So keep going, keep living, and try to remember that everything you do and everything you experience is shaping you into the person you have the potential to be. And, chances are, a person who knows that time heals and a person who will annoy the shit out of a younger person by saying that time heals.
- You are so much stronger and can endure so much more than you think you can. I know that that’s not always a blessing but we have to believe it is, you and me. You’re gonna go through the wringer and it will feel really unfair but you’ll get through it. At the very least you’ll make it to twenty-four.
- There’s a reason you’re feeling the way you are. This is the point I’ve thought about most, about whether or not I should include it, but my gut says that I should. You’re autistic. I know that seems like a weird idea but you’ve always felt like your brain works differently to everyone else’s and this is why. Your only experience of Autism is the boy who was always being told off for being disruptive in primary school and most of the time, it’s really different for girls. You’ll figure it out, you’ll create a relationship with it, and what you learn will help other people.
Ultimately, there’s not much to be gained from wishing you could change the past and while there are things I wish had been different, I don’t think I’d change almost any of the things I had control over: the people, the pursuits, the loves… I’d choose them all over again.
A First Attempt at Bullet Journalling
Posted on September 15, 2018
As you guys have probably guessed, I’m a stationary enthusiast and over the years, I’ve gone through many, many notebooks and diaries and planners. I’m pretty picky about the kind of books I like and that’s probably why I’ve never found a planner that really works for me. The layout didn’t work or the writing spaces weren’t big enough and so on. So I was always on the lookout for the right one.
I started looking into bullet journaling after seeing photos and videos of bullet journal ‘spreads’ on social media: pages to track spending, sleep, mood… As well as monthly and weekly logs to keep track of what they were doing. It seemed to be a way of creating a very personal, tailored planner and that appealed to me, although I’m definitely not artistic enough to compete with the ones I’ve seen on Instagram and YouTube. But since it seemed to work for so many people, I thought I’d give it a try.
A lot of thought went into the bullet journal format (the official website is very informative) but in short, it’s a flexible system to “track the past, organise the present, and plan for the future.” Most people seem to use dotted notebooks (like the ones that Leuchtturm make) and dedicate pages to calendars (future log, monthly log, daily log) and trackers (habits, sleep patterns). I’ve found this incredibly helpful so I thought I’d share how I use it. Maybe this would be more easily done in video format but here we are.
At the beginning of the year, I bought a Leuchtturm notebook (dotted, navy blue, A5 – available here) and got to work. I looked at photos on Instagram and watched a tonne of videos on YouTube (AmandaRachLee is my favourite) and that really helped me to figure out what bullet journalling could be for me. I set up the index at the front and created several general spreads, including my new years resolutions, all the birthdays in the year, books to read, and things to watch. Carrying all of this around is so helpful and it has definitely made me more organised. And motivated.
One of my favourite spreads is the one for blog post ideas (and it actually spilled over into a second spread because I ran out of space). I find it so inspiring and motivating to look at. I’ve always been a list maker and I LOVE being able to tick things off a list; I’m always more motivated and productive when I’m working from a list. Having all of these ideas in one place has made blog writing much more efficient.
Many people do a monthly mood tracker but I did one for the whole year because I thought it would be easier to detect any trends in my mood and compare month to month. If I could do it again, there would be less categories. It took a while to figure out how broad each emotion had to be and as someone who feels emotions (and their subtleties) very strongly, it was very easy to create more categories than I necessarily needed. And I think a smaller spectrum of colours would make the whole thing clearer.
I found this particularly helpful when trying to judge my reaction to a medication: I could literally track my mood through each dose increase and assess how helpful it was. Sometimes it’s easy to get lost in one side effect or judge it based on the most recent feelings rather than the overall experience. So it was really helpful in regards to that.
Now to the month-to-month, week-to-week stuff.
It’s pretty standard to do a monthly log: a month at a glance of sorts so that you can see everything you’re doing during that period of time.
One thing that I love about bullet journalling is that you can refine your style and system as you go, to make it more useful to you. I went through several different layouts before I found the one that really works for me, at the moment at least. And you can be as creative as you want or feel capable of being. I’m not very artistic – in the drawing/painting sense of the word – but it’s been fun (and oddly empowering) to try my hand at something I don’t usually do.
Again, it took me a while to find a weekly set up that I liked. But I really like the one I’m using at the moment. It’s simple and quick to fill out and not overwhelming to look at.
The official bullet journalling style involves a system of categorising all the information (tasks, events, appointments, etc), checking off tasks, ‘migrating’ them to a later date… Personally I found it overcomplicated and just not necessary. I know that there are people who like it, people who don’t, and people who have either simplified the official key or created their own version. But this is what’s great about this whole format: you can tailor it to what you need.
And lastly, I’ve recently started using trackers as part of my monthly set up. I kept the list of tracked things short so that it was actually doable and I ended up finding it really useful. Having that list of things written down made it easier to remember to do them and to build the habit. And as I said, I love ticking things off a list so the idea of filling in the boxes at the end of the day was really motivating.
So I hope this was interesting. If any of you guys use bullet journalling or any other system for organising your life, let me know what works for you!
