Mourning A Public Figure

Last week was the two year anniversary of Claire Wineland’s death. She was a twenty one year old activist, raising awareness around Cystic Fibrosis and founding Claire’s Place Foundation to support children with Cystic Fibrosis and their families. She spoke at many conferences (including TEDx and the International Respiratory Convention and Exhibition) and posted multiple videos on YouTube, talking about her illness but also her life and her thoughts on various subjects.

In 2018, she went into hospital for a double lung transplant. I remember watching the Instagram Live where she announced that she’d received the call as she dashed around her home, gathering everything she needed. It was so exciting and I was so happy for her. She had the surgery and everything seemed to be going well. But then she had a stroke and a week later, according to her advanced directive, was taken off life support. She died on the 2nd September 2018 at the age of twenty one. I wrote several posts about her, including one in remembrance.

I was deeply upset at the news of Claire’s death. When I discovered her YouTube videos in mid-2017, I instantly fell in love with her personality, her eloquence, her thoughtfulness. I really felt a lot of the ideas she expressed and despite the fact that we’d had very different life experiences, it felt like we had something in common, something in the way we thought and felt. And despite only having a few interactions on Twitter, I felt a connection to her – obviously not the same connection as the ones I have with my friends, for example, but a connection nonetheless. She had a big impact on my life and when she died, I felt like I could feel the edges of the space in which she’d previously existed, like there was a hole where she’d been. It was a very distressing feeling.

Two years later and I still feel her loss. She was so full of life. You know how some people just seem bigger than others, have minds somehow more infinite, have something extra special about them? That was always the way Claire felt to me. I’d felt so sure that I’d watch her go on to do even more great things. Her death felt so unfair and it still does. It still hurts. The documentary about her, CLAIRE, came out on the first anniversary of her death and as much as I want to watch it, I haven’t been able to. It’s just felt too hard. One day, I will but I just haven’t felt ready.

Over the last few years, I’ve had several similar experiences. The first, I believe, was Cory Monteith in 2013. I was still watching Glee at the time and he was so young; his death was so sudden. Then there was David Bowie, who has always been incredibly important to my brother, and Alan Rickman, who had been a consistent presence in my life through his role in the Harry Potter films. If you’ve read previous posts of mine, you’ll know how important Harry Potter has been throughout my life. And more recently, there have been the deaths of Cady Groves, a singer I’ve been a fan of for a decade, and Naya Rivera, another Glee alumni.

I struggled with each of these deaths, all of these people having had an impact on my life. But I think the only death that has had as dramatic an effect on me as Claire Wineland’s was that of Christina Grimmie. I’d been following Christina on YouTube for years; I just fell in love with her voice and her piano playing, how unapologetically herself she was. She was about my age and pursuing music so it’s not surprising that I related to her. But with managing both my mental health and university, I’d fallen behind on a lot of people in my social media bubble, Christina included. Then I woke up one day and she was gone; I still remember the moment I found out. I was stuck in a state of paralysed shock for days and I had nightmares that went on for months. Much like with Claire, I felt like there was a hole in the fabric of the universe where Christina had been, should still be. Even now, I still think of her often.

Grieving for a celebrity or public figure can feel like a bit of a minefield, I think. There’s the internal conflict: you didn’t know them personally but the feelings are still very powerful. Plus there are always people ready to tell you that you don’t have the right to mourn someone you never actually knew and because you didn’t know them, whatever you’re feeling can’t be grief. But personally, I don’t agree.

Grief is an incredibly complex emotion. I don’t think anyone truly understands it. Personally, I wouldn’t classify it as a single emotion; I see it more as an umbrella term, a checklist of things you may experience although you won’t necessarily experience all of them. I don’t think there’s a big enough word to describe what we go through when we’re grieving. It’s a natural disaster, an emotional natural disaster. It’s so complicated and having lived through both the losses of people in my life and public figures I cared (and still care) about, it’s my experience that the two are definitely different (having said that, we could have a whole other conversation about how the grief for each person is completely different) but that they’re both real and they’re both profound.

I definitely want to write more posts about grief but I want to keep this one to the grieving of a public figure. As I said, it is, of course, different to losing a person who is physically in your life but if you feel a connection to someone, it is inevitable that their death will be painful. As far as I’m concerned, that connection is the key. Whether they’re an actor, singer, writer, activist… they’re all reaching out, with their stories, their songs, their words. They’re reaching out with the intention of creating a connection with another person, a person who finds meaning in what they have to say. And I think it’s fair to say that – often – the deepest connections are the ones that are built from the most personal places (for example, their presence or their work has gotten you through a difficult time, you relate strongly to something they’ve said or created, etc). So of course we would feel the loss that connection. Of course it would be painful and distressing and maybe even traumatic.

And then there’s the moving forward to consider. There will always be things that remind you of them, such as events they would go to or public appearances they’d make. And in the case of creatives, yes, we will always have their past work but that may be difficult to consume again: the emotions and memories associated with them may be overwhelming; it may be painful because it reminds you that they’re no longer here; if they helped you through difficult times, it may be difficult knowing that they won’t be there to help you through any future hard times; knowing that they’ll never create or release anything new may be distressing, especially when the release of new work was a big occasion in your life.

I think that the only way to truly move through an event like this is to talk about it or, at the very least, express your emotions:

  • Hopefully your loved ones will understand what you’re going through, especially if you’ve mentioned this person before or they’ve seen or heard you consuming their content, whether that’s listening to their music, watching their videos, or reading their works. If you can talk to someone close to you and at least get your emotions out of your body; sometimes I think that keeping the emotions stored inside your body only makes them harder to shift further down the road. (If someone you don’t feel comfortable telling the whole truth asks you why you’re upset, you can always tell them that a friend or someone you know has died – that will explain your mood and they’re unlikely to ask too many questions.)
  • You can express your feelings on social media, if you feel comfortable sharing with an unknown audience. Sometimes that can be too scary but sometimes it can be cathartic to put your thoughts out into the world, not knowing where they’ll go or who they’ll reach.
  • You can write a letter to the person who has died. I’ve always found writing to be a good way of getting my emotions out. If you want to, you could post it online if you keep a blog or something similar, or you could simply keep it for yourself as a reminder of what they meant to you and everything you felt at that particular moment in time. When it comes to such an emotionally charged moment, in the future you may want to remember everything about the experience. You may not, of course, but you can’t know that in the present moment.
  • I’ve always found journaling to be very helpful in coping with and managing the ebb and flow of my emotions. Since it’s just for me, I can feel and say whatever I like without fear of judgement, which I think allows me to move through each emotion with less friction. Putting words to what I’m feeling somehow makes it all easier to process and work through. It doesn’t necessarily mean those feelings go away, but the strength of them does become easier to cope with. And then at some point, they simply become a part of you, a piece in your mosaic.

I’m sure there’s more to say. When it comes to grief, there always is. But I think I’ll leave it there. I hope you leave this post knowing that whoever or whatever you grieve for, your grief is valid and I hope that, if you’re going through any kind of grief, that you’ve found some way to manage it and/or that you have people to support you. I’m not sure if it ever goes away but it does change. Life goes on, even if it feels unbearably unfair. So carry with you the gifts they gave you and try to do some of the good that they would be doing were they still here.

Plans For My Empty Semester

Because of the way my course is organised for part time students, I now have a semester without classes while the full time students do their third semester. I’ve been looking forward to this, not just to take a bit of a break but to work on new music with the skills I’ve learned, return to hobbies I haven’t had the time or energy for while doing the course, and to just generally catch up with things, be productive, and get some long awaited projects done. Of course, everything changed with the pandemic and subsequent lockdown.

So my list is different now, depending on what is possible and what isn’t. I’d started collating this list – this post – before lockdown was announced and I’ve been reluctant to simply scrap it all just because it no longer fits with the future I’d expected. So I thought I’d post it anyway, just divided into different categories, for posterities sake if nothing else. I guess I just want to remember what I’d thought this summer would be like versus what it ends up being like.

Impossible:

  • Get back to swimming regularly – That’s obviously not possible as all the gyms are closed.
  • Mental Health Awareness Week Assemblies – For Mental Health Awareness Week, I was supposed to go back to my old secondary school and do a series of assemblies, talking about mental health, my experiences with it, and play some songs. I was really looking forward to it but then we went into lockdown and schools had closed long before Mental Health Awareness Week.
  • London gigs – I was scheduled to play a couple of shows in London but they were cancelled due to lockdown. Hopefully they’ll happen when it’s safe again.
  • Concerts – I was due to see several shows over the summer including Taylor Swift at Hyde Park and The Shires in London and Brighton but they’ve all been rescheduled or cancelled. I understand it, of course, but I’m still gutted because I was really looking forward to those shows.
  • See Waitress The Musical again – I was hoping to see Waitress at least one more time before it closed but it’s run ended during lockdown and they’ve announced that it will not be returning. I’m so, so sad that I’ll never get to see it again. But I’m grateful that I got to see it as many times as I did and that the last time was Sara Bareilles’ last show. That made it extra special.
  • Get caught up with my photo albums – I’ve wanted to get my photo albums up to date for months but there’s a problem with the external drive that holds my Photos library and since all the shops are closed, including the computer repair shop I go to, I can’t get it fixed until they reopen and it’s safe to go there. And therefore I can’t catch up with my albums yet.

Difficult or Different:

  • Music Theory lessons – I had a plan to improve my knowledge and understanding of music theory during this time, to prepare myself for the next semester but now, my teacher and I can’t meet or even travel to meet for lesson. In theory (pun intended), we can still have lessons using Zoom or FaceTime but it’s definitely more difficult when we can’t sit side by side at the piano, when I can’t lean over to watch his hands, and when he can’t adjust my hands on the keys, and so on. I’m sure we can find a way but it’s definitely more complicated than it was before.
  • Have as many cowriting sessions as possible – I really wanted to spend as much time as possible writing with my friends and course mates. They’re all so amazing and unique. Of course, we can still write using Zoom and FaceTime but it’s not a creative process that I’m super comfortable or productive in. I’ve been doing some but I find them exhausting and just not as much fun as I usually find collaborating.
  • Catch up with my friends – To be fair, I have been catching up with friends but it’s obviously always over Zoom or FaceTime. We can talk and I’m grateful for that but we can’t hang out or hang out in groups and I miss that. I miss just chilling out together, doing things companionably, and my god, I miss hugging them.
  • Sort out my bedroom – This is another project I’ve wanted to do for so long and while there are still aspects I can do (and still plan to do), there are a lot I can’t, which is very frustrating.
  • Create my studio space – Again, this requires changes that aren’t possible right now because having aesthetic building work done obviously doesn’t come under the lockdown advice but there are things I can do and have started to do. Despite the difficulties, I’m creating a space to work – some of which will be permanent and some which are makeshift and I’ll change later when it’s possible – so it’s a start.
  • Create a space to make YouTube content – This project I have yet to figure out and I’m not sure if it’s even possible without certain changes in my room, changes that won’t be possible until life is more normal again. But I’m still turning it over in my head, how and where to create an aesthetically pleasing space to make videos from. So we’ll just have to wait and say when it comes to this one.

Still Possible:

I feel like it’s important to add an extra note to this one because, while all of these plans and activities are physically possible, they’re not necessarily possible. I’ve been seriously struggling with my mental health, especially with my anxiety and depression, and my creativity has taken a serious hit too. So, while I do want to do these things and they are within the rules of what’s allowed and technically possible, I don’t know if I’m going to be able to achieve them, or achieve as many of them as I would like.

  • Write new songs/work on old songs – I’ve been trying so hard at this and I’ve managed some but with my creative and concentration struggles, it takes a lot of hard work and is really emotionally draining. It’s amazing when I can break through the fog though.
  • Sort through my clothes – This is something I’ve started to do but it’s tricky because there’s nowhere to take the clothes I want to pass on. It feels good to be clearing out some of my stuff and creating some space though.
  • Catch up with my diary – I feel like I’m in a perpetual state of ‘catching up with my diary’ but I’d hoped to use this time with limited distractions to really get caught up. But with my concentration in such shambles, it seems to be taking even longer than usual, which is endlessly frustrating. I have to keep going though. My OCD doesn’t take a break just because there’s a pandemic.
  • Start learning the Kalimba – I bought a Kalimba and it was going to be a present to myself for finishing my second semester assessment. I love the sound and I really want to learn how to play but, as I’ve already said, my concentration and motivation haven’t been great so I’m struggling to apply myself to it.
  • See a meteor shower – I have technically done this one already but it wasn’t a very impressive show so I’m looking forward to the big one, the Perseids meteor shower, in August.
  • Update my songwriting book – My songs are all over the place (in various notebooks, my laptop, different hard drives, and random pieces of paper) so I’d really love to compile them all into one book, something I’ve just started to do.
  • Watch some of the things on my To Watch list – I’ve been trying with this one but I’m finding it quite difficult to watch new things. It’s like there isn’t enough space in my brain and I don’t have enough spare emotion to invest in new characters and a new world, etc. Does that makes sense? I’m going to keep trying though. I think it’s going to be a case of just hoping that the trying and a moment of feeling okay will coincide.
  • Improve my guitar skills – I feel like my guitar skills have come to a bit of a halt recently and I really want to get out of that rut and get better. I don’t feel the need to be the best guitarist in the world but I’d love to be proud of what I’m playing when I play solo, rather than feeling like I’m playing a really simple part just to accompany myself.
  • Start coming up with ideas for my Masters final project – It’s not for a while yet but I want to have some potential ideas for my final project so that I have time to think them over and make sure I choose something that’s a good fit, for the exam criteria but also for me as an artist. It will just make me feel more prepared and more inspired when the time to start arrives.
  • Improve my piano skills – Just as with my guitar playing, I want to get better at playing the piano. I love playing the piano but I still feel like a really basic player. I want to be able to play more interesting chords and progressions, with more interesting and unique rhythms and melodies.
  • Read some books from my To Read list – During my course, I don’t tend to have time to read anything other than course related material so I was really excited to read some different stuff, especially fiction. But as with watching new films and TV shows, it just feels too hard to learn a new world and new characters and concentrate enough to get through a book.
  • Take some classes on Skillshare – I love learning. I remember being a kid and someone asked me what I wanted to do when I left education and I was completely mystified by the idea that you’d ever want to leave education, ever want to stop learning (obviously you don’t stop learning things when you leave education but I was very little and that’s what I understood it to mean). I never want to stop learning things and I was excited about having a solid chunk of time where I could focus on learning things outside the sphere of my Masters, as much as I love my course. Having said that, it’s hard to take in new information when I’m struggling with my concentration.

Uncertain:

  • Shooting a music video – It was during this time that Richard and I had planned to shoot a music video and now we don’t know when we’re going to be able to do it, given how far apart we are and the infection risk of travelling there. In theory, we’d be able to do it socially distanced so if we can figure out how to get the two of us there, then we might still be able to create the video I’d always imagined for this song.
  • EP gig – I really wanted to throw an event (a gig and a party rolled into one, I guess) to celebrate the EP and all we achieved with it but I don’t know when gigs are going to be allowed again or, more accurately, when they’re going to be safe again so I’m not whether this plan is possible. I don’t want to do it until it’s completely safe but I also don’t want to wait until months after the EP is complete to have this event. So I’m not sure where we stand with this plan.

I truly have no idea what the next few months will look like (especially with the government making a mess of everything, especially the lockdown) so I don’t know how many of these things I’ll be able to accomplish. Each day is unknown and that’s both terrifying and exhausting. I think that, whether you’re a person with mental health problems or not, just getting through this period of time (and managing your health – physical, mental, and emotional) is achievement enough. So I guess, when the next semester starts, I’ll look back at this post and see what I managed to do while keeping that in mind.

Feeling Good About Feeling Bad

This video has some really good thoughts on how to process negative emotions, one that isn’t forced positivity and doesn’t end with you accidentally dwelling in the negative. The method may be a little cheesy but it’s good advice and let’s face it, we could all do with some self directed gentleness and goofiness.

“Literally every emotion you feel is trying to do something for you.”