Posted on October 24, 2020
Recently I attended a webinar hosted by the Autism research charity, Autistica, about the relationship between Autism and art and it was really interesting. The panelists were Professor Jonathan Green (Autistica Trustee, Professor of Child/Adolescent Psychiatry at Manchester University, and artist), Sarah Jane Bellwood (artist and gallery owner), Lizzie Huxley-Jones (editor and author of Stim: An Autistic Anthology), and Jane Elizabeth Bennett (multi-disciplinary artist and researcher).
Each person introduced themselves and then the discussion began. I found the whole thing really fascinating so I thought I’d pull a few quotes from the video that I thought were particular highlights, but I thoroughly recommend watching the whole video to hear all of the points made.
So here are some quotes that I found really interesting…
JANE ELIZABETH BENNETT: “I think art is the first language that I really kind of learnt. So, for me, art is a way to speak, it’s a way to communicate, it’s a way to convey emotion, and they’re not always things that I’m fantastic at doing in a kind of neurotypical way. For me, art is a very atypical way of communicating. You do it through colour, you do it through gesture, you do it through sound.“
I love this description of art and it’s something I really relate to as an artist. I definitely use my songwriting to tell stories and relay experiences and share emotions. I do that through the lyrics, through the melody, the vocal performance, the arrangement and instrumentation, as well as the production. While, for me, the song is the piece of art in its purest form, the performance, the arrangement, and the production are all a vital part of conveying and enhancing the emotional experience. I definitely experience Synaesthesia to some degree: sounds have colours (and some even have specific tastes) as do emotions and so a big part of my process is trying to bring those experiences together; I’m often only happy with a song when the emotions, sounds, and colours are completely in sync.
JONATHAN GREEN: “And I was totally absorbed in doing this drawing, like nothing else existed except what I was doing. And I came out of it an hour or two later or something and I think I felt, ‘That’s the most real thing that’s happened to me for a long time… is that connection, with that plant through drawing.’ And I think that’s, for me, why I held on to it… was that it felt… it gave me an access to something that was so real… It’s allowed me to feel really real.“
Having just written and finished a song is when I feel most real, most alive. Sometimes I feel like I don’t really exist and when I finish a song I’m proud of, it’s like a realisation that I really do exist. It’s the only time I feel in sync with the universe. I never feel so connected to myself as when I finish a song, or to other people as when I perform a song I’ve written and they respond to it. We’re all in this single moment, experiencing this thing together and it’s magical.
LIZZIE HUXLEY-JONES: “We should have the space within an industry to create whatever we want.“
JANE ELIZABETH BENNETT: “I think it’s very important that as an autistic artist… it’s very important to have that space to make work that isn’t about Autism. Just because I’m autistic doesn’t mean I have to be, like, the voice of Autism but I think my Autism – just as a personality or as a writing style – is gonna be inherent in the work I make.“
LIZZIE HUXLEY-JONES: “The way I describe it is, ‘we experience everything autistically so why wouldn’t everything we create be a little bit autistic as well?‘”
I think these are really important points: just because we’re autistic, it doesn’t mean that we have to create art about being autistic. Many do because it’s an outlet for their individual experiences or because it’s a way to make sense of themselves but we should never be pigeon holed into just creating Autism related work. How much space Autism takes up in our lives is different for everyone and we obviously feel and experience unrelated things that we want to make art about so not all autistic artists will choose to make art about Autism. But as Jane points out, being autistic likely will influence the work we make because it influences the way we perceive the world. Day to day that can be incredibly frustrating but when it comes to art, it can be something that makes our work special and different.
JONATHAN GREEN: “I think, for me, making art or the process of making art does help me make sense of things or sort my mind out in some way. I always feel, kind of, more in harmony after I’ve been making art. Internally, you know? Kind of rebalanced, or something like that.“
I can absolutely relate to this. I definitely feel most calm, in mind and body, when I’ve just finished a song. It’s not too far from the experience I described earlier, about feeling real and alive and in sync. I also feel this real sense of inner calm. It’s like everything within me has been shaking and it’s suddenly stopped. It’s like all these disconnected pieces have come together and everything makes sense. It’s not dissimilar to how I imagine getting high feels.
There were a couple of things that bothered me though. I felt like having three visual artists and one writer wasn’t the best representation of artistry; they could’ve had a musician or sound artist, an animator, a photographer, etc and that would’ve created a more varied discussion because the forms of art were more varied. The discussion was really interesting as it was but I think a wider variation of art forms would’ve only added to that.
There was one thing specifically that I really didn’t like and that was the repeated use of the word ‘obsession’ in place of ‘special interest,’ the term more commonly used in Autism. I know that some people don’t like the phrase ‘special interest’ (I must admit I don’t love it) but I don’t think that that’s a good reason to revert to the word ‘obsession,’ a word that has some very negative connotations. Various definitions of ‘obsession’ involve the terms ‘unhealthy’ and even ‘disturbing’ and while I can’t speak for anyone else, I find those associations with my special interests uncomfortable and actually upsetting. I’ve had a handful of special interests in my life and none of them have been unusual in subject (animals, writing, singing, songwriting, to name some), but the intensity of that interest and fascination is what stood out. Definitions of ‘obsession’ also include the idea that they dominate a person’s thoughts, that they have control over you (which links back to the idea that they’re unhealthy), which, again, I personally wouldn’t associate with my special interests. While I think about my special interest – songwriting – a lot and would prefer to spend all of my time doing it, I can think and do other things and I can recognise when I’m spending too much time doing it and neglecting the other areas of my life. And during my research into the difference between ‘obsession’ and ‘special interests,’ I found several articles about how helpful and positive engaging with special interests are for autistic people (here and here). In the former, the writer, Laina Eartharcher, makes many good points that I feel I should quote rather than attempt to paraphrase:
I relate to all of these statements and fully agree with her. ‘Special interest’ may not be the perfect word but the use of ‘obsession’ can be damaging and create misunderstandings about Autism. So it did really bother me how many times this word came up and the fact that it was never addressed, even briefly. I want to talk about special interests more in the future – I think it definitely deserves its own blog post as a subject – but as it came up here, I felt like it was important to talk about.
But that issue aside, I found the webinar to be a really informative, enjoyable experience and I look forward to similar events that Autistica puts on. I’ve followed several of the speakers on social media and have enjoyed delving deeper into the work they’ve created. As an autistic person, I’m always intrigued by the work of other autistic people and to what degree they experience and interpret the world in the same way I do and then (if they do) how they translate that into art.
Category: autism, book, diagnosis, emotions, music, response, tips, uncategorized, video, writing Tagged: actuallyautistic, art, art and autism, artist, artists, asd, author, autism, autism spectrum disorder, autistic, autistic adult, autistic artist, autistica, communication, creative difference, creativity, emotion, exploring art and autism, jane elizabeth bennett, jonathan green, laina eartharcher, language, language of autism, lizzie huxley-jones, music, obsession, obsessions, perspective, quote, quotes, representation, sarah jane bellwood, songwriting, special interest, special interests, synaesthesia, webinar, writer
Posted on August 26, 2020
I’m sure many of you have seen JK Rowling’s recent comments on transgender people and how including transgender women and cisgender women in the same group erodes the experience of cisgender women. As this all began on Twitter, that is where I’ve been most vocal. I’ve shared articles, shared the experiences and reactions of trans women, and made my stance clear: trans women are women.
(If you’re not up to date with what’s been happening, these two articles – here and here – have been recommended to me as good representations of the timeline of events and some of the reactions.)
But beyond that, I haven’t written much, haven’t written anything more in depth. I’ve wanted to but with my mental health and cognitive skills (including my concentration) so drastically affected and constantly fluctuating due to my pandemic anxiety, I haven’t been able to sit down and finish anything that I felt said much more than ‘I disagree with JK Rowling’s tweets,’ something which I have already said. I would never want my voice to take the space that belongs to a trans person but then I don’t think this post will do that: it’s simply my little corner of the internet where I get to talk about the things that are important to me and this is important to me. And to remain silent feels like a betrayal. If you are transgender, I support you. If you are non binary, I support you. If you do not fit into society’s expectations around sex and gender, I support you. I support your right to explore who you are, be who you are, and live your life unchallenged, unlimited, and unafraid, and I will do all I am able to help that become a reality.
As the topic has, in this case, been brought into the spotlight by JK Rowling, I’d like to write a little about her. My relationship with all JK Rowling is has become increasingly complicated as time has gone on and as I have grown older and more aware of the issues in our world and the discrimination against different groups of people in our world.
As a child – I must’ve started reading the Harry Potter books when I was about seven or eight – I didn’t really connect stories with their writers. They were just glorious worlds to fall into with characters whose journeys you followed. The writers were simply a name on the front cover. I loved the world of Harry Potter and many of the positive experiences of my childhood (and beyond) are connected to it. It had a massive impact on my life and my own desire to tell stories and for that I’ll always be grateful.
Then, as a young teenager, I became more aware of JK Rowling as a person, both in connection to the world of Harry Potter and as a person, and was honestly really impressed by her: her creativity, her dedication to her work, all of her charitable work and contributions (losing her billionaire status after donating more than £120 million to various charities), and how she stayed in the UK and paid her taxes because she believed it was her duty, having received financial support from the government before her writing afforded her such wealth. I really respected her for that and while I still respect those good choices, they do not excuse her recent comments, for which many people (myself included) will never be able to truly forgive or forget, even if she takes it upon herself to apologise, learn, and take serious positive action.
I know that as a cisgender person I cannot truly understand what it’s like to be transgender and I can admit to having limited academic knowledge. But I do have multiple transgender friends who have been generous enough to share their experiences with me and I have been close enough with some of them to have been present during some of the discrimination and difficult experiences they’ve faced. That has made it a very emotional issue for me, having seen my friends hurt like that. I do want to have a more intellectual understanding as well though so, as soon as I can focus enough to read again (as I mentioned earlier, the cognitive symptoms of my mental health problems have worsened since the onset of the pandemic), this is something I really want to pursue. I’ve sourced a collection of recommended books and reputable articles to read as soon as I can actually concentrate and absorb the information.
As nice as it would be, it’s probably naive to believe that we can simply divorce the creation from the creator. Rowling’s prejudiced comments are cause for concern about whether these harmful views are present in her work, are present in the world of Harry Potter. There are certainly problematic aspects, for example the naming of Cho Chang, the anti-semitic stereotype present in the Goblins, and the slavery of house elves – the existence of the latter two could be ‘explained’ by the fact that magic doesn’t automatically make for a perfect society had anyone seriously addressed the prejudice and inequality but they didn’t, apart from the odd comment or throwaway plot line. Having said all of this, the books are out in the world and I think that the best we can do is discuss the issues they raise, how they translate to the real world, and how we can address these prejudices, individually and as a society* – not an easy goal but a worthwhile one nonetheless.
(*in an understandable and digestible way considering the age of the reader.)
I would just like to touch on Fanfiction briefly because I think there’s a certain kind of magic in that it allows us to dig into the holes and stereotypes and problems and write stories to challenge the problematic parts and flesh out the things that weren’t properly explored. I’ve read some great stories that seamlessly integrate transgender characters and how Hogwarts accommodates (i.e. the rules about who’s allowed in which dormitories), some that explore the history of different magic (such as the development of wands in order to control who can use magic and how wandless magic may have evolved so that women could use magic without them), some that have the characters examining why history so often repeats itself, some that challenge the stereotypes of the Hogwarts houses and the repercussions that they can have on impressionable eleven year olds, and so on. Fanfiction allows us to make these worlds bigger and more complex and look at them through different lenses and I think that’s a really wonderful thing to have access to.
But back to the matter at hand, I don’t think that all of this – JK Rowling’s obvious (and harmful) views and actions – necessarily has to ruin the stories or the positive experiences we gained from Harry Potter, especially considering all of the good messages in them. But then I don’t know if I’d be able to say that had I not started reading the books before I connected them to authors with opinions and prejudices and big platforms on social media. I know that for many people this will have irreparably damaged their relationships with the stories and that makes me deeply sad. I’m reminded of what Daniel Radcliffe said in response to the tweets: “To all the people who now feel that their experience of the books has been tarnished or diminished, I am deeply sorry for the pain these comments have caused you.” Wouldn’t it be lovely if we could store away the things we love(d) in a time capsule so that they could remain untouched by the outside world?
I confess that I’m having trouble reconciling my feelings for the woman I admired as a young teenager and the woman I’m now seeing as an adult. I’m grateful for the gifts she gave me, both through the world of Harry Potter and the telling of stories, but I cannot and will not support her while she spreads such harmful and incorrect views. If she’s going to comment on something that has the potential to endanger an already vulnerable group of people, especially with a platform as big as hers, it is her responsibility to be thoroughly educated on the topic. I am deeply disappointed with her lack of empathy.
So, to conclude this post, I’m going to celebrate Rowling’s recent birthday by making a donation to Mermaids (a charity that supports transgender and gender-diverse children, young people, and their families) and to a series of personal fundraisers to help some transgender people get the support they need.
“I think trans women, and trans people in general, show everyone that you can define what it means to be a man or woman on your own terms. A lot of what feminism is about is moving outside of roles and moving outside of expectations of who and what you’re supposed to be to live a more authentic life.” – Laverne Cox
Category: book, quotes, response, writing Tagged: antisemitism, author, daniel radcliffe, fanfiction, feminism, gender, gender identity, harry potter, jk rowling, laverne cox, mermaids, mermaids charity, predjudice, problematic, quote, racism, reading, response, slavery, stereotypes, terf, trans women, trans-exclusionary radical feminist, transgender, transwomen, twitter
Posted on August 15, 2020
It hasn’t been that long since my last week-in-my-life post but life is so different week to week at the moment that I thought I’d do another one once I started to see how the week was turning out. I thought, if anything, it would be interesting to be able to look back and see how different different periods of time could be during this pandemic and the subsequent lockdown.
The week in this post started on Monday 20th July and ended on Sunday 26th July.
MONDAY
I got up around eight, determined to be productive: do admin, send emails, work on blog posts, and so on. But I quickly discovered that the internet was down for the whole street and so I had to adjust my plans. I went back to my photo library and managed to finish sorting out my photo library: I can’t remember if I’ve mentioned this but when I loaded my photo library onto my new laptop, there were multiple duplicates of every single photo and the only way to be sure that I was getting rid of all of them (and not losing any of the originals) was to go through it manually. It took about two weeks of dedicated work but that morning, I finally finished deleting the duplicates, cutting the library down from 85,000 to 30,000 – no wonder Photos was running so slowly… I wasn’t quite done: I had to finish organising the remaining original photos into albums but it was real progress and that was very satisfying.
Since I was filming the music video for my next single, ‘Back To Life,’ the next day, I’d recoloured my hair a couple of days earlier (it had grown out A LOT) but since my usual dye had been discontinued, I’d had to guess at a new one and I wasn’t super happy with it so with my Mum’s help, we dyed it again, using a much redder dye than the previous one. It still wasn’t quite what I wanted but it was better than before.

I spent the afternoon working on (and finishing!) my next blog post, My Lockdown Favourites, and then, in the evening, I tried on the outfits and jewellery for the video, just to make sure that everything matched and was comfortable enough to move freely in. I avoid weighing myself because of my struggles with food – I don’t believe I have an eating disorder but I have gone through phases of disordered eating so I’m careful to avoid things that trigger that, like keeping a frequent eye on my weight – but I don’t think I’ve gained much, if any, weight during lockdown. My weight fluctuates within a certain range and I’m currently wearing the bigger size of jeans but that did happen pre-lockdown times. So I was relieved that everything was comfortable and that I don’t need to spend money on new clothes.
I was happy with the two different looks and as comfortable with our safety plan as I could be, given that I find just going out incredibly stressful, but I still felt very anxious about making the video. We were shooting early to avoid as many people as possible, would be masked (apart from me when I was on camera), and would be socially distanced, but I was still anxious about being out, about acting relaxed and happy for the upbeat song while feeling so anxious, as well as all the normal anxieties about making music videos and being filmed. So it’s safe to say I was struggling. But if we didn’t shoot the video, we couldn’t move forward with the EP, and I would continue to carry all of that anxiety.
In an attempt to relax a bit before bed, I caught up with one of my parents over FaceTime and watched an episode of The Mentalist with Mum. Then we went to bed early, given that we had to get up pretty early for the video shoot. I don’t know how I’ve managed to come up with three music videos (four shoots in total), all that have involved getting up at vaguely ridiculous hours.
TUESDAY
My alarm was due to go off at six but I woke up at five thirty. That was positively luxurious compared to Richard’s ‘call time,’ since he’d had to leave his house before five (he was catching the first train from London – we’d talked about this a lot before we even started planning but he said he felt safe doing it, otherwise we wouldn’t have gone forward with the filming). But that extra time was good: it gave me some time to settle myself and collect my thoughts.
When my alarm went off, I got up and got showered, made up, and dressed in the first outfit I’d be wearing. I had a bit of breakfast and it was all going really well when, of course, I discovered a problem: a white residue had appeared on the frames of my glasses. It’s happened before but Mum had managed to get rid of it using a general household cleaner but nothing seemed to be working this time. We were supposed to be picking Richard up from the train station but I couldn’t do the video with my glasses looking the way they did (it was really noticeable and would look horrible) and I was rapidly spiralling into a meltdown, which I really couldn’t afford to have if we were going to film the video. In the end, Mum had to go and get Richard while I desperately tried to clean them, using anything and everything I could think of. A combination of googling and just experimenting later, I discovered that a thorough scrubbing with toothpaste was the answer. So, just in case you ever find yourself with the same problem…
PRO TIP: If your glasses develop a white residue on the frames, a good scrubbing with toothpaste will make them look as good as new.
I was just finishing when Mum and Richard got back and we headed straight out to the beach. I’d expected it to be pretty quiet, given that it was eight in the morning and a section of the beach a good distance from Brighton, but it was actually quite busy: there was an almost constant flow of people, most of whom weren’t wearing masks. This only added to my stress, in terms of safety and in terms of filming.
I don’t want to give too much away since this post will go up before the video is released. But we shot footage in three different locations (which included a somewhat awkward outfit change) and got everything we needed. I’d been worried about singing and making eye contact with the camera, something I’ve never done before, but that turned out to be much easier than before. It was hard work though, especially considering I’ve been inside for the last several months and my high level of anxiety. But we got it done and I’m cautiously optimistic about it as a finished video.
Here’s what I posted on Instagram afterwards…
Braved my anxieties to work on something special with the lovely @sandersonphoto today 🌊 (x)
After so much physical exertion (for the last year or so, even standing for extended periods of time can make me feel lightheaded and dizzy), it was a struggle to get back to the car. My whole body hurt, particularly my hip and knee joints and my steps got shorter and shorter. It felt like there was broken glass between the bones at each joint. It was horrible.
Eventually we made it back to the car and then home. We sat socially distanced in the garden for some lunch and then, as I watched Richard attempt to reconnect with the cats, I ended up falling asleep in my chair, completely exhausted by the emotion, the anxiety, and the physical activity. Fortunately Richard understands that this does happen – it’s happened before. I didn’t sleep for long and then we had a good catch up before dropping him back at the station around four. We were both really wiped from the early starts and the shoot.
Home again, I flopped down on the sofa and caught up with my other three parents who were all eager to hear how it had gone. Then me and Mum watched a couple of episodes of The Mentalist, had dinner, and went to bed early.
WEDNESDAY
It was a really tough day because I was in a lot of pain after the shoot the day before. My whole body hurt, every single time I moved, every time I even shifted my weight. It was hideous. No one has managed to explain why I experience this level of pain after ‘normal’ levels of activity and our investigation has been stalled by the pandemic. Hopefully one day we’ll be able to find out, or at least find some solid ways of managing it so that I don’t feel so limited (I think the lack of exercise – swimming is the only form of exercise that I can do without pain – hasn’t helped).
I’d planned to have a very gentle day anyway, knowing I’d be tired, so I settled in to watch Absentia Season 3. I knew from watching the first two seasons that I would get so absorbed that I wouldn’t want to stop until I finished it so I dedicated the day to binging the whole thing. I’m finding this to be a really good form of escapism at the moment, especially because I don’t have the concentration to do anything but watch it. Anyway, it was really good and I really, really enjoyed it. Having only started it a month or so ago, it’s already one of my favourite shows. I think the first season is my favourite but I’ve loved all of them and I love Emily Byrne (played by Stana Katic). She’s such an interesting character with such a complex history that I could just watch endless episodes of her. It’s definitely a show that I’ll watch over and over again.
This is the trailer for Season 1 even though I was watching Season 3 – I just don’t want to spoil the show for anyone.
I was so overwhelmed when I finished it that all I could really do was sit and absorb it. But eventually my brain started working again and I had a quick scroll through social media (I haven’t been spending much time on it recently but I do try to check in every now and then so that I’m update to date with what and how my friends are doing) before doing a bit of work, despite my dedication to a day of relaxation. A Dutch journalism student had reached out to me, asking if he could interview me as a new artist dealing with the pandemic. I’d been happy to help and he’d sent me a series of questions that I’d been thinking about so I pulled them up and wrote out my answers before sending the document back to him.
I FaceTimed with one of my parents (it’s hilarious – we talk more now than we did pre-pandemic even though we’re currently doing less and therefore have less to talk about, leading to some pretty bizarre conversations) and then me and Mum had dinner with The Mentalist. And after taking some time to digest, she gave me a massage (I think I’ve mentioned previously that she used to be a massage therapist) to help with all the pain I was in. It wasn’t exactly comfortable but I think it helped in the long run.
Lying on the carpet post massage, I was so relaxed that it was very hard to get up. I didn’t end up going to bed until around eleven.
THURSDAY
Despite the less than early night, I woke up at six and couldn’t go back to sleep. I was still tired but I enjoyed the cool and quiet of the early morning. It’s the time of day when I feel most calm, I think.
I stayed curled up in bed but I got to work, answering all of my outstanding messages (and there were A LOT of them). Over the last month or so, I’ve found that taking a couple of days away from social media can be really good for my mental health but then almost all of my socialisation with my friends is through social media so I’ve been working at finding a comfortable and healthy balance. The messages do pile up every now and then though so I’m not there yet. But I’m trying.
That done (and it felt like a real achievement considering how many messages there were), I got up and went downstairs to feed the cats. I was still in pain but it was mainly just in my joints and where the body bends, rather than absolutely everywhere like it had been the day before. So that was progress.
I spent the morning updating my bullet journal and working on various blog posts with Friends on the TV with volume turned down low (background noise helps me work and it seems to be the only thing that doesn’t distract me). I was just getting on with that when I got a handful of notifications from Taylor Swift’s social media accounts, announcing that she was releasing a new album at midnight (or 5am for me in the UK).
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My brain basically short-circuited. It was such a shock – a good one, yes – but a shock nonetheless. I was incredibly excited but I also had this weird mix of adrenaline and anxiety rushing through my system; I think the only way I can describe it is that it’s like when my plans suddenly get derailed and I’m left scrambling to try and figure out what the new plan is. It’s not a comfortable feeling. Having said that, I don’t want to come across as negative because I was genuinely immensely excited but sudden changes are a lot to handle when you’re autistic so I was dealing with a lot of overwhelming emotions.
Given this news, my concentration was shot for the rest of the day. Usually, we have a lot longer to wait between announcement and release so the anticipation builds over months but this time, it felt like it was all compressed into less than a day. It took hours to get back into a headspace that wasn’t just ‘OH MY GOD! OH MY GOD! TAYLOR SWIFT IS RELEASING A NEW ALBUM AND WE’LL HAVE IT IN LESS THAN TWENTY FOUR HOURS!’ and even then, the thought would leap up out of nowhere and smack me in the face, derailing my thought process. So it wasn’t the most productive day ever.
I spent (or tried to at least) the rest of the day trying to catch up with my diary so that I could immediately write down my thoughts on the new album the next day. I didn’t quite make it but I got close enough that I would still be writing about it on its release day.
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Something that I started doing with the ‘Red’ album was predicting which songs I would like based on the titles. Obviously that’s not much to go on and there’s no logic to it really but it’s a fun exercise. My guesses for ‘folklore’ were ‘the last great american dynasty,’ ‘exile’ (I mean, a collaboration with Bon Iver?!), ‘my tears ricochet,’ ‘seven,’ ‘august,’ ‘this is me trying,’ and ‘epiphany.’ So I wrote those down, set multiple alarms to wake me up for my traditional 5am first listen, and went to bed early.
FRIDAY
My alarm went off at 4.45am and I flipped through various apps on my phone, just trying to wake myself up for the 5am release. But when the time came around, the album wasn’t available on iTunes. Fortunately lyric videos for each song had been uploaded to YouTube so I watched those according to the track listing. It’s always really important to me to listen to a new album in order because that’s a creative decision the artist made when they put it together. I often continue to listen to albums like that (unless I’m in a specific mood and need the validation that songs of a similar emotion provide).
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As I listened, I noted down my thoughts about each track. I love how our relationships to songs change over time and as we discover all the layers within them so I always find it really interesting to look back and see what my original thoughts were for comparison. I don’t know if anyone cares but I’m going to stick them in here because I love the album and loved it from the first listen.
I’m really looking forward to hearing ‘the lakes’ and seeing how that fits into the album and I’m just really excited to listen to the album over and over and over again, until I know every little detail. Again, because I love it so much (and because I’m a Songwriting Nerd), I’ll probably make a whole post about it at some point once I’ve listened to it more and have a better understanding of the stories. If that’s not your thing then I absolutely won’t be offended if you skip that post.
I bought some merch (the international shipping is atrocious but I’m trying not to beat myself up since I’ve barely spent any money since lockdown began) and spent the morning on Tumblr, reading people’s reactions and theories and analyses of the new songs. This is always one of my favourite parts of a new Taylor album, everyone coming together to peel back all of the layers in each of the songs. It reminds me of this Daisy Johnson quote from Agents of Shield (my favourite TV show): “Usually one person doesn’t have the solution, but a hundred people with one percent of the solution? That will get it done. I think that’s beautiful… pieces solving a puzzle.”
Early afternoon, I had a Zoom session with my therapist. We talked through the week since my last session, discussing the difficulties and how I’d dealt with them. She also let me ramble about Taylor Swift for a little bit because she knows how much I love her and how important her music is to me, both as a person and as a songwriter. For the most part though, we talked about how much I have and still am struggling with the different reactions people have had and are having to the pandemic and lockdown. I’ve never been able to get my head around the way some people have managed to be super motivated and productive during this time while I feel like I can’t move past the fact that we’re in a pandemic, that tens of thousands of people have died, hundreds of thousands of people are mourning, and so on. It’s like this giant roadblock that I just cannot navigate around. Yes, I’ve been able to do bits and pieces here and there but this is always in the middle of my brain, making it impossible to be much more than minimally functional. I don’t think a person is bad or wrong for being able to compartmentalise or manage however they are managing; I just don’t understand how someone actually does it. Usually I can understand how someone might approach a situation differently even if I can’t actually do it myself but right now, I can’t. I wish I did; I wish I knew how to not feel constantly overwhelmed by distress and grief and fear.
By the time we finished, I was really starting to flag; the early start, the emotions of ‘folklore,’ and the difficult discussions in therapy. I was TIRED; I was struggling not to fall asleep on the sofa. I lay there for a while, just processing everything, and when Mum came upstairs to check on me, we ended up watching The Mentalist together while I did some diary writing. My emotions were all over the place and I just needed some gentle time.
Dinner and another episode later, me and Mum got in the car and went for a drive. I always introduce her to new albums on long drives and it’s a tradition we both really love (something we haven’t done since before we went into lockdown). We didn’t have anywhere to drive to so we just decided to drive up to a particular junction on the motorway and back, listening to the album beginning to end. For some reason, it feels like an album that sounds best in the dark, hence why we’d waited until the evening. It was really fun and we both really enjoyed it. Mum’s initial favourites were ‘illicit affairs,’ ‘this is me trying,’ and ‘mad woman.’ After a day of listening to it, my top three were ‘this is me trying,’ ‘mirrorball,’ and ‘exile.’ But I really, really love a lot of them. It’s mostly a case of which ones do I love more or less and which ones do I connect to more or less.
There was a diversion due to roadworks so we ended up getting home pretty late. We were sorting out the cats and getting ready for bed when we came to a decision on something we’ve been discussing for a while: we decided to buy the one thing I wanted for my birthday, a Gretsch hollow body electric guitar. I’ve wanted one for months and it was going to be my birthday present but me and Mum had discussed it and decided to buy it a couple of months early so that I can make the most of it before university starts again in early October (my birthday is at the very end of September). I want to improve my skills and also just play for fun as much as possible before I have to start factoring in university work, in whatever form that takes. We’ve been talking about it for a while now but that evening, we decided to finally stop talking about it and actually do it. It was very exciting and would be arriving in just a few days (the picture below is from when it arrived).

SATURDAY
I woke up feeling tired and unsettled and anxious and it just got stronger and stronger throughout the day. I just felt really overwhelmed by all the things I feel I still need to do before uni starts again, which ironically and frustratingly made it harder to get anything done.
It was a rainy day so the cats spent a lot of time indoors with us, which was a comfort. They’re usually busy playing in the garden so it was nice to have them around. They were all pretty affectionate but Sooty was especially snuggly and I gratefully accepted every invitation to cuddle.

I posted my weekly blog post, My Lockdown Favourites, and then spent most of the day catching up with my diary. It’s so easy to get behind and that causes me such anxiety. I also spent a bit of time at the piano and continued messing around with a couple of song ideas I’ve been working on recently. I’ve been experimenting with writing from the point of view of fictional and historical characters over lockdown and although I find it much harder than writing about my personal experiences, it’s a fun challenge and one that I think is improving my songwriting skills, as well as resulting in some interesting songs. So, all in all, it was an okay day.
In the evening, one of my parents came over for dinner in the garden. We’d also planned to watch Hamilton together but given how stressed and anxious I’d been, we decided to postpone that until next time so that I’d actually be able to enjoy it. I’ve really been looking forward to seeing it so I was grateful for the flexibility; I wanted to be able to really get stuck in and engage with it and I just didn’t feel able to that day. Still, it was really nice to see her in really life and hang out together.
When she left, me and Mum watched a couple of episodes of The Mentalist while I did some diary writing and then we went to bed, far too late as usual. Sleeping badly has got me all twisted up about going to bed so I dread it and put it off and usually end up sleeping worse because of it. It’s a habit I’m trying to break but so far I haven’t done very well. It’s just so easy to get sucked into trying to finish whatever I’m doing.
SUNDAY
I slept restlessly (as is my new normal) and woke up feeling tired and low. But I dragged myself up and me and Mum fed the cats – it really is a two person job with five very eager cats. They’re so cute though and watching them practically inhale their food and then skip out into the garden to play is a good way to start the day.

Mum headed out straight away and drove to our gym since she hasn’t been able to get anyone on the phone. Because of my Chronic Fatigue and the ongoing problems with my joints, weight bearing exercise can be really painful so swimming is really the only serious exercise I can do. I’m really concerned that gyms are opening too early but as they are, I at least wanted to know what the safety precautions are and what my options might be. Our gym has a therapy pool that was always empty first thing in the morning so we would use that but when she returned, she reported that the therapy pool wasn’t an option because they didn’t have enough life guards yet. And when it came to their safety precautions, I just didn’t feel like it was worth the risk. But we’re going to keep talking to them and try to work out an arrangement as a disabled member. So it’s not the end of the road but it was very disappointing and didn’t help my mood.
I was supposed to have a music lesson (via Zoom) but my anxiety was even worse than the day before so, in the end, I cancelled it. Fortunately my teacher is one of my parents and so she understands that if I say I can’t do something, I really can’t. I’d really tried to motivate myself and push through my anxiety but I just felt like I was going to start crying at any moment. It was just too much.
So I curled up on the sofa with the TV on low and continued catching up with my diary. I always get behind when Taylor Swift releases an album because I end up writing so much about it – the lyrics, what I like and what I’d do differently, the production, my overall thoughts – and sticking in interesting analyses from Tumblr. I’m always amazed at how quickly some people are able to analyse a song and see all the layers while I’m still overwhelmed by the amount of layers and all the emotions the songs evoke.

I also did a bit more work organising my photo library but I hadn’t got very far before I was interrupted (very pleasantly) by one of my parents dropping in to say hello. She hadn’t planned on staying long but then we got talking about ‘folklore.’ She’s a huge music nerd so she’s always interested to know what I’m listening to. I played her a couple of the songs and that turned into a full album listening party, which was really fun, although I’m always a little anxious about playing her music that’s special to me because she can have really strong opinions. But she was really into it (she particularly liked ‘mad woman’) and asked me to share it with her so she could listen to it some more. So that was very cool.
I ended the day having dinner and watching The Mentalist with Mum (we are both complete saps when it comes to the Jane and Lisbon relationship in the final season) while I continued writing my diary.
So that’s another week of my lockdown experience. I feel like, aside from unexpected difficulties with my mental health or an autistic meltdown, I’m finding a groove where I’m as productive and comfortable as I can be. It’s far from what I would’ve wished for during this period (apart from the new Taylor Swift album) but I’m cautiously optimistic that I’m managing a bit better, in the sense that I’m better at taking things day by day.
So I hope this was interesting to read, interesting to see someone else’s experience and maybe escape your own life for a bit. I hope you’re all doing well, staying safe and coping the best you can.
Category: autism, body image, covid-19 pandemic, emotions, event, favourites, meltdowns, mental health, music, therapy, video Tagged: a week in my life, absentia, agents of shield, anxiety, back to life, behind the scenes, blog writing, blogging, cat, cats, cfs, chronic fatigue, chronic fatigue, coronavirus, covid-19, daisy johnson, dbt, diary, disordered eating, disturbed sleep, ep, face mask, facemask, facetime, family, fatigue, folklore, food, friends, glasses, gretsch, guitar, gym, hair dye, honest ep, interview, journal, laptop, lockdown, low mood, making a music video, mask, massage, me/cfs, mood, music lesson, music theory, music video, music video shoot, new guitar, new music, new single, organisation, pain, pandemic, photo albums, photo library, pool, quarantine, quote, safety, safety precautions, singer, singersongwriter, singersongwriter life, sleep, stress, swimming, taylor swift, the mentalist, tumblr, tv show, university, video shoot, wear a mask, week in my life, weight

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope