Posted on June 3, 2023
TW: Mentions of self harm and Trichotillomania.
So the theme set by the Mental Health Foundation for Mental Health Awareness Week this year was anxiety. They pushed the hashtag #ToHelpMyAnxiety to raise awareness but I didn’t see it once on social media so I decided to write a whole blog post on the topic, on what helps my anxiety as well as what I’ve heard from others about what helps them. I ranted recently about how people engage with Mental Health Awareness Week, and awareness days in general, but I do think that sharing coping mechanisms for anxiety is a useful thing to do and a good use of those days.
I live with very severe anxiety, so bad that nothing I do actually banishes it, but I have found certain things that help to manage or reduce it. And I’ve spent a lot of time talking with friends and acquaintances about anxiety, discussing how we all try to cope with it. So I have a lot of tried and tested methods that have all worked for at least one person and therefore will hopefully be useful to at least one of you. If any of these ideas help just one person, then it’s worth the work to compile them. (Some of these have been pulled from my experience as an autistic person but many of them are useful for anxiety so I figured it was worth including them.)
I do think it’s worth mentioning that not all of my coping mechanisms are good, healthy ones. I’m focussing on the healthy ones because those are the ones we should all be aspiring to practice but I felt it would be remiss to not even mention them.
General Tips:


At Home:
Out and About:

Other People’s Tips:
Other notes:
So I hope this has been helpful. Hopefully there are enough ideas here that there’s something for everyone, to try at least. If you’re reading this and struggle with anxiety, I feel for you and I’m in this with you and I hope that you find something to help you manage it. Severe anxiety is not something that we just have to accept, just have to live with. There are ways to make it easier – maybe there are even ways to shed it – and I hope you find them because you deserve to enjoy your life. You deserve to feel everything, not just anxiety.
Category: about me, animals, anxiety, autism, chronic fatigue, chronic pain, exercise, family, favourites, food, hydrotherapy, medication, mental health, music, ocd, self harm, sleep, therapy, tips, trichotillomania, writing Tagged: anxiety, anxiety disorder, anxiety medication, asd, autism, autism spectrum disorder, autistic, autistic adult, breathing, chronic fatigue, chronic illness, chronic pain, coping mechanism, coping mechanisms, coping skills, diazepam, exercise, gad, generalised anxiety disorder, generalized anxiety disorder, hair pulling, health, mental health, mental health awareness week, mental health awareness week 2023, mental illness, mhaw, relaxation, self care, self harm, self harming, sensory issues, sensory overload, sensory overwhelm, sensory sensitivity, stim, stimming, stress, swimming, therapy, tips, trich, trichotillomania
Posted on August 13, 2022
When I was first diagnosed with Hypermobile Ehlers-Danlos Syndrome back in October 2020, hydrotherapy was recommended both for general fitness and muscle strength (which would, in theory, help with the back and leg pain I was struggling with) and to build up my core muscles, which are a notoriously weak area for hypermobile people. I was up for that since I’ve always enjoyed being in the water but COVID made the whole process very complicated and very slow.
As far as I can tell, with the way things currently are, it seems that the way to get a referral for hydrotherapy is to be referred for physiotherapy and then a physiotherapist assesses you and refers you on to the hydrotherapy department. I’d been referred for physio three times, I think, by three different doctors between May 2020 and when I finally got an appointment in November 2021. I find myself feeling a level of righteous indignation over waiting eighteen months for a simple referral, especially when I was in pain pretty much every day, but I know it was all more complicated than that. COVID was the obvious cause for the delay but the NHS waiting lists are also incredibly long anyway. But, as soon as it all started happening, it all happened at once.
At the beginning of November 2021, I met with a physiotherapist and he referred me on to the hydrotherapy department and at the end of the month, I had an appointment with them. I will admit that, after waiting eighteen months for an appointment, I was a bit appalled that the appointment consisted of just a half hour run-through of exercises to do without a huge amount of guidance. But this is how the system works and I’ll take what I can get.

While I continued swimming in my ‘normal’ pool, I struggled to find a pool that allowed me to do all of the exercises I’d been assigned: the height of the water needed to be within a certain range, I needed to be able to walk in the water, I needed a step of a specific height and width, and so on. And finding a pool that fitted all of the requirements was difficult, and that was without all of my COVID related anxieties being factored in. We finally found a pool just as Omicron started rearing its head and I had a meltdown leaving the first session; I was massively overstimulated and my anxiety was just overwhelming. Those weren’t exactly fond memories that I was keen to revisit but it wasn’t going to work anyway as the steps didn’t allow me to do the step related exercises and there are too many of those not to have access to the right kind of steps. I was managing a modified version of the exercises in my usual pool while we searched for another hydro-friendly pool but then Omicron hit in earnest and we all retreated inside to insure Christmas could go ahead as planned.
From December 2021 to early March 2022, I was incredibly unwell because of the ADHD medication I’d been trying, too unwell to swim at all. But, in that time, my Mum had found another pool. The first session went well (although it was really hard work after so little movement for a couple of months) and the set up of the pool meant I could do all of the suggested exercises. I got a few sessions in before I left for Nashville in late March.

Back from Nashville and semi-recovered from the jet lag in late April, I got back in the pool, both to swim and to do my hydro exercises. It took a bit of work and scheduling but after a while, I managed to build in two sessions a week while I got used to the routine and started building up my strength and stamina after so little proper exercise for so long. I’ve had multiple conversations with multiple health professionals about my tendency to throw my all into stuff and how I need to take things slowly if it’s going to actually help so, even though it’s very frustrating, I am trying my best to push down that irritation and just focus on the exercises.
So, that was my first six months of hydrotherapy. There’s a few months between where this post finishes and where I am now but I thought those first six months were important to document. Since then, I had to stop using one pool and tried out another – which I love – despite difficulty actually getting out to swim because my mental health has been so bad.
Although it hasn’t been a priority (and still isn’t one really – one thing at a time), I do want to find a new all-round gym since the gym I used to go to closed down after the multiple lockdowns. I want to get fitter; I’m just having to take a longer route than I would’ve previously thought.
Category: anxiety, autism, chronic fatigue, chronic pain, covid-19 pandemic, exercise, heds, hydrotherapy, meltdowns Tagged: anxiety, asd, autism, autism spectrum disorder, autistic, chronic pain, core strength, covid-19, exercise, fitness, heds, hydrotherapy, hypermobile, hypermobile ehlers danlos syndrome, hypermobility, medication, meltdown, nhs, nhs waiting lists, omicron, pandemic, pandemic 2020, physiotherapy, swimming, swimming pool
Posted on February 26, 2022
I had intended to set goals at the beginning of the year but honestly, I was feeling so terrible that I couldn’t even see twenty-four hours ahead, let alone six months or a year. So I decided to shelve the setting of goals until I felt a bit more… like myself, I guess. I’m not sure I’m ready to commit to anything too… much just yet, given that I’m barely back on my feet (something that still feels debatable some days). It’s hard to plan ahead. So, I thought I’d split this post into two this year: goals for the first six months and then goals for the second. Maybe. It does feel a bit like I’m just going through the motions but maybe that’s just what I need to do right now.
GET MY MENTAL HEALTH STABILISED – Between the pandemic stuff I was already carrying around, the burnout post-MA, the disaster that was the ADHD medication, and the anxiety induced breakdown I had at the end of January (plus having been unable to see my therapist pretty much since last May), I’m one big mess. I’ve started the Moclobemide but it still feels too early to say for sure whether or not it’s the right thing. I’m starting to write again though, which is a good sign. Hopefully I’ll be back at therapy in the not too distant future, plus there are some other options for support to consider. I just feel like, until I get my head sorted – or at least a bit more sorted – my life is on hold and I hate it. I can’t have a real life until there’s some resolution here.
GET BACK TO SWIMMING – I haven’t been very mobile at all over the last few months, given how bad my mental and physical health has been, and I’m definitely feeling it. My chronic pain over the last couple of weeks has been awful – back to the levels it was last summer – and now that I actually feel able to leave the house, I really want to get back to swimming and to my hydrotherapy exercises. I want to get fitter and I want to get stronger; the hope is that, the stronger my body is, the better my life with hEDS will be.
RELEASE NEW MUSIC – I’m so desperate (in a good way) to release new music. It’s been so long since the Honest EP came out and even longer since I wrote the songs. So much has changed since then, for me as person and as a songwriter. I am working on an album and that’s my real passion project but it is going to take time and I don’t want to keep anyone waiting that long. Hell, I don’t want to wait that long. So I am working on music to release before the album and while it’s taking a bit longer because of the last few months, it is happening and it is coming.

I don’t have an exact deadline for these goals, especially since mental and physical health don’t always adhere to any schedule you set for yourself. But I’m hoping that I can do these things – and perhaps more – within the first half of the year. Then, maybe, I can set a new series of goals that are a bit more exciting and ambitious once I’m feeling a bit more solid.
Category: adhd, anxiety, covid-19 pandemic, depression, heds, medication, mental health, music, therapy, treatment, writing Tagged: 2022, adhd, antidepressants, anxiety, chronic pain, depression, eds, exercise, goals, heds, honest ep, hydrotherapy, joint pain, lauren alex hooper, medication, mental health, mental illness, music, new music, new years resolution, new years resolutions, pain management, physical health, setting goals, singer, singersongwriter, swimming, therapy

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope