Posted on April 22, 2023
Last week, I had a little moment – relating to being autistic – that just utterly made my week, my month… you get the idea. And I wanted to share that on here.
Sometimes it feels like medical professionals just don’t get it and it’s easy to feel pressured into making decisions that we wouldn’t necessarily have made had our needs been understood and had we been given more time to think about it. But then something like this happens and it just… makes me feel hopeful, I guess. That things will get better, that people will become more aware and more understanding.
If you’ve been following me for a while, you may remember that I’ve been going to a specialist dental clinic for several years now, having had some pretty traumatic experiences at the dentist before that, before my Autism diagnosis. Since then, going to the dentist has been a lot less scary; I think it will probably always be stressful but it is a lot easier than it used to be (and for that I am very grateful).
I was at my appointment last week and after a gentle and patient check, my dentist ran through the potential next steps. Then she paused and acknowledged that I probably needed some time to think about it, that, while I seemed calm, she didn’t want to make any assumptions about what I was actually feeling and what I would be comfortable with. It surprised me in the moment but fortunately it was an easy choice so we moved on quickly. But then, as I was walking out, I processed what had just happened and I was kind of floored by it. I don’t think I’ve ever had a medical professional say something like that to me before, not in the eight years since I was diagnosed as autistic: I probably needed some time to think about it, that, while I seemed calm, she didn’t wanted to make any assumptions about what I was actually feeling and what I would be comfortable with. (I’ve talked about masking and needing time and feeling pressured with therapists but I don’t really put them in the same box as every other kind of medical professional: GPs, consultants (some who work with autistic people and therefore really should know better and some who don’t but should still know better), mental health professionals, dentists, etc.) If I had a pound for every time someone just assumed I was fine because I look fine – even knowing that I’m autistic, even knowing about masking – I would be unbelievably rich. So, having that acknowledged and considered and validated… I don’t even know how to describe how great that feels.
While having this all the time would be amazing, I’m really grateful to have it in a medical space, the kind of space that can be so stressful and pressured. Generally I’m not afraid to tell people that I’m struggling but masking or that I need time to think about things but after so many traumatic experiences in medical settings, I find it very hard; the pressure feels more suffocating and I feel so close to panicking. It would be great to have more people like my dentist with her approach in healthcare but, in this moment at least, I’m just deeply grateful that I have one safe space when it comes to managing my health.
I’ve been thinking about this experience a lot since it happened and while I remain incredibly grateful to have this dentist taking care of me, I just can’t help wondering what it would be like if there were more people like her, not only in medical spaces but in society in general. I can’t even imagine what that would be like. I’m pretty loud and proud about being autistic (even if I don’t always feel proud – I just can’t bear the thought of being even a small part of the reasons why someone might feel bad or scared or ashamed of being autistic) but I don’t always feel safe doing that. And that applies to everything from physical safety to work opportunities to potential friendships. I’m painfully aware that I could be jeopardising those things when I make it clear that I’m autistic (not that it will stop me – after all, it’s going to come up sooner or later). I just can’t help imagining what it would be like to be and talk about my whole self and feel safe doing that.
Category: anxiety, autism, emotions Tagged: actuallyautistic, asd, autism, autism acceptance, autism awareness, autism spectrum disorder, autistic, autistic adult, dentist, masking, specialist dentist, validation
Posted on April 17, 2022
Apparently I’m incapable of doing things halfway: I went from barely leaving the house to going on an almost three week trip to the US. The songwriting festival, Tin Pan South, was starting up again and I’ve been going every year since 2016, to write songs and network and just learn from the best songwriters in Nashville. I was utterly terrified – about the COVID risk, about how even a minor bout of COVID could affect the trip, about all of the uncertainty and anxiety that I was going to feel every day without having a true safe place to return to and recharge, etc – but I felt like I had to go. My Mum and I were as careful as we could be: we wore masks pretty much all of the time (being autistic makes that hard but I did the best I could) and we went through so much hand sanitiser. I was practically showering with it. I cried pretty much every day (whether from anxiety, stress, or exhaustion, I don’t know) and I was on my knees by the end of the trip but it was amazing and a lot of really cool things happened.
BOSTON
We flew from London to Boston, which was relatively simple – my anxiety aside. I’d already burst into tears at least twice before we actually left the runway. I was very anxious about COVID (and there were so many things that already made me anxious that now had an entirely new context because of COVID) and about flying (it’s not my favourite thing) and I think I was just really overwhelmed by everything ahead of me. The flight felt ridiculously long and while I was relieved to be back on the ground (and eventually into the hotel where we could take the masks off after wearing them for so long), I was immediately overwhelmed by being abroad, by all of the differences. Getting to the hotel room and being able to just collapse was a great relief.
Months earlier, I’d bought tickets to the Bleachers show where they’d be playing their album Strange Desire from start to finish in the hope that I’d be able to combine it with the Nashville trip – the date was, after all, pretty close to when Tin Pan South usually took place. So I chanced it and by some stroke of luck, it worked out and we made our connection in Boston with a day in between to go to the concert. I had no idea what the disabled accommodations were going to be like but, on the whole, the venue and staff were great, which made the concert possible for me and it was incredible.
I still don’t know if I can describe the concert, beyond saying how amazing it was. Charly Bliss were a really fun opener and I’m very excited for them to release the new songs they played; those were the ones that I really got into. And Bleachers were just fantastic. Jack Antonoff in particular was just like an endlessly ricocheting ball of adrenaline; I barely got any photos of him that were in focus because he was just in constant motion. It was so incredibly special to hear songs like ‘Wild Heart,’ ‘I Wanna Get Better,’ and ‘Like A River Runs,’ all of which I love so much. It still feels kind of unreal, like I can’t quite believe I was really there.
The next day, we struggled up – I felt completely wrecked by the concert – and caught our flight to Nashville.
NASHVILLE
When we got to Nashville, we took a couple of days just to rest and to allow me to collect myself. I was exhausted and a few days holed up in my Airbnb – where I didn’t have to worry about wearing a mask or the risk of COVID – was absolutely needed. And while there are always things to see and exploring to do in Nashville, we’d decided to keep our excursions to our highest priorities; we wanted to minimise the risk of exposure to COVID so that we could do all of the things that we really, really wanted to do.
So those first few days were spent chilling out, watching TV, catching up with my diary, and listening to Maren Morris’ new album, Humble Quest. I think I’ll forever connect it with Nashville now. Between listening to it as I flew into the city and watching her Amazon Prime show that first weekend, the album’s setting will always Nashville.
The show was great and I cannot wait until she comes back to the UK. I’m already in love with this album.
SONG SUFFRAGETTES
My first show back was a big one: Song Suffragettes’ 8th Anniversary show. Usually a Song Suffragettes show consists of five girls and they go around three times, performing three songs each (in total), before closing the show with the cover song performed together. But for this song, there was the first round of five girls who each performed twice plus a cover, a break in which THE Nicolle Galyon interviewed THE Kelsea Ballerini, and then a second round with five more girls who each performed twice as well as a cover song. It was a long but very excellent show.
The first round consisted of Ava Paige, Autumn Nicholas, Kalie Shorr, Ava Suppelsa, Lanie Gardner, and Mia Morris on percussion (she also played a song in this round – a rewrite of Fountains of Wayne’s ‘Stacy’s Mom’ from the point of view of Stacy, which was hilarious). They were all great but, as I think is the case with every songwriters’ round, there were some that resonated with me more than others. I’ve known and loved Kalie for years so I always know she’s going to be my favourite (if you haven’t listened to her music, please check her out – she’s very special) but I didn’t know the others and found I particularly enjoyed Ava Paige’s songs too. I also loved the cover they did, ‘abcdefu’ by GAYLE, and I’ve had it on repeat ever since (along with ‘Humble Quest’ by Maren Morris).
After the cover, they cleared the stage and set it up for the Nicolle Galyon and Kelsea Ballerini interview. They are both just such cool people and have achieved some incredible things; it was very inspiring. Nicolle asked some really interesting questions and Kelsea shared a lot of fascinating, inspiring, and encouraging stories and advice. And then they played a couple of songs that they’ve written together – ‘i quit drinking’ and ‘half of my hometown’ – as well as telling the stories behind the writing of them. It was a really, really cool experience and I feel very lucky to have been there.
The second round was made up of Emily Brooke, Caroline Watkins, Lauren Hungate, Madeline Merlo, Peyton Porter and, again, Mia Morris on percussion. I particularly liked Emily Brooke; I’ve seen her before and I really like her music. And they all told great stories about what inspired the songs.
It was an amazing show and experience and it was a great reintroduction to Nashville. I also got to reconnect with the people I know at Song Suffragettes (and those who I’ve spoken to online but not met) and that was really, really nice. I was kind of scared that, after three years away, the previous years of building relationships might have ended up meaning nothing but that completely wasn’t the case and I’m really grateful for that.
TIN PAN SOUTH
As I said, Tin Pan South is the big reason for coming to Nashville and I had some amazing shows on my list. There were some very tough choices too, great rounds that I struggled to choose between. But I think I made the right choices, for me, for this trip.
I could write about every single show in a ridiculous amount of detail but then we’d be here forever. So here are my highlights of the week…
AUTISM AWARENESS WEEK / DAY
It was World Autism Awareness/Acceptance Week and World Autism Awareness Day while I was away and, knowing that I’d be busy in Nashville, I’d prepared a series of posts to put up on my blog. I also posted this on Instagram:
OTHER FUN THINGS
While I didn’t do a whole lot more than go to shows, I did do a few things that are specific and special to Nashville…
SONG SUFFRAGETTES
I did manage to get in a second Song Suffragettes show while I was in town, which I was very grateful for. This round was made up of Jillian Dawn, Sam Bowlds, Olivia Faye, Elana Jane, Paige King Johnson, and Mia Morris, Mia being the only one I knew previously. They were all great – they always are – but I think my favourites were Jillian Dawn and Paige King Johnson; their songs just spoke to me more deeply than the others did for some reason.
On the whole, the travel had been good. I had disabled assistance at all of the airports and until the trip home, that was great and had made the whole flying ordeal a lot easier. But on the return trip, everything kind of went to hell and it was a bit reminiscent of ‘a series of unfortunate events.’ I almost had a meltdown on the flight from Nashville to Dallas because of a mix up with the seats, which was horrible.
And while the Dallas to London flight was okay (I mean, it was long and cold and uncomfortable but nothing went wrong), everything went wrong from the moment we landed, from problems with gates to confusion with the disability assistance to the freaking coach home. And by that time, we were both so tired (and I was so overwhelmed and stressed out) that I was definitely moments from bursting into tears. But we did eventually – eventually – get home.
It’s been about a week since I got home now and I’ve been a bit of a mess. The jet lag hit me hard, on top of my exhaustion from the trip itself, and my mental health hasn’t been great. I guess I’m just feeling really overwhelmed, like all of my feelings have been turned up to eleven (I mean, even more so than usual).
Category: anxiety, autism, chronic fatigue, covid-19 pandemic, emotions, event, favourites, food, heds, holidays, mental health, music, sleep, special interests, video, writing Tagged: bleachers, boston, boston ma, candle bar, candle bar nashville, candle making, caylee hammack, charly bliss, chris destefano, chronic fatigue, chronic illness, chronic pain, commodore grille, concert, covid-19, disabled, disabled access, emily shackelton, exhaustion, face mask, face masks, festival, humble quest, jack antonoff, jeffrey steele, jet lag, kalie shorr, kelsea ballerini, madison kozak, maren morris, mask, masking, masks, nashville, nashville songwriters association international, natalie hemby, nicolle galyon, nsai, paddywax candle bar, pancake pantry, pandemic, pandemic 2020, pandemic anxiety, singersongwriter, singersongwriter life, song suffragettes, songwriter, songwriters, songwriters festival, songwriting, strange desire, tin pan south, tin pan south 2022, travel, travelling, waaw, world autism acceptance week, world autism acceptance week 2022, world autism awareness day, world autism awareness week
Posted on March 29, 2022
While I have talked about my experience of being autistic (and will be doing more of this week), I also wanted to share this video because it’s a very good summary of Autism in women, covering multiple important topics.
In this TEDx talk, Kate Kahle talks a little about her experience as an autistic woman but she also talks about some of the history behind Autism and Asperger Syndrome, the evolution of the different labels used in relation to Autism, the differences experienced by women, masking, special interests, the mental health implications, and some of the ways to support autistic individuals.
The rest of my posts for this week are more substantial but I really wanted to share this video this week. I wanted to post a range of things: word, photos, and video. We all process information differently and I wanted to make sure there was something for everyone.
Category: anxiety, autism, mental health, special interests, video Tagged: asd, aspergers, aspergers syndrome, autism, autism awareness, autism history, autism in women, autism spectrum disorder, autistic, history of autism, labels, masking, mental health, mental illness, special interests, ted talk, tedx, video, waaw, waaw 2022, world autism acceptance week, world autism acceptance week 2022

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope