Posted on March 30, 2021
Given how much I love quotes, I thought this week would be a good opportunity to share a compilation of quotes specifically about Autism and from autistic individuals…
“If you’ve met one person with autism, you’ve met one person with autism.” – Dr. Stephen Shore
“English is my 2nd language. Autism is my first.” – Dani Bowman
“My autism is the reason I’m in college and successful. It’s the reason I’m good in math and science. It’s the reason I care.” – Jacob Barnett, sixteen-year old math and physics prodigy
“Think of it: a disability is usually defined in terms of what is missing… But autism… is as much about what is abundant as what is missing, an over-expression of the very traits that make our species unique.” – Paul Collins, Not Even Wrong: Adventures in Autism
“I don’t really understand why it’s considered normal to stare at someone’s eyeballs.” – John Elder Robison
“Our experiences are all unique. Regardless, I do believe that it is important to find the beautiful. Recognize that there is bad, there is ugly, there is disrespect, there is ignorance, and there are meltdowns. Those things are inevitable. But there is also good.” – Erin McKinney
“Autism is as much a part of humanity as is the capacity to dream.” – Kathleen Seidel
“By holding the highest vision for your child when they can not see it for themselves, you are lifting them up, elevating them and helping them to soar.” – Megan Koufos
“Autism… offers a chance for us to glimpse an awe-filled vision of the world that might otherwise pass us by.” – Dr. Colin Zimbleman, Ph.D.
“My autism makes things shine. Sometimes I think it is amazing but sometimes it is sad when I want to be the same and talk the same and I fail. Playing the piano makes me very happy. Playing Beethoven is like your feelings – all of them – exploding.” – Mikey Allcock, 16-year-old who was non-verbal until age 10
“Vibrant waves of sequenced patterns emerged in my head whenever I looked at musical notes and scores. Like pieces of a mysterious puzzle solved, it was natural for me to see music and its many facets as pictures in my head. It never occurred to me that others couldn’t see what I saw.” – Dr. Stephen Shore
“We contain the shapes of trees and the movement of rivers and stars within us.” – Patrick Jasper Lee, an autistic synaesthete
“I looked up to the stars and wondered which one I was from.” – James McCue
“I see people with Asperger’s syndrome as a bright thread in the rich tapestry of life.” – Tony Attwood
“My mind doesn’t stop; it spins and shifts in different directions creating webs of patterns, linked by varying hues.” – Michael Bowring
“Stop thinking about normal… You don’t have a big enough imagination for what your child can become.” – Johnny Seitz, autistic performance artist
“Rome was not built on the first day. I need time to build the Eiffel Tower of my life.” – Jeremy Sicile-Kira
“As an autistic, I can readily see environmental phenomena of sun particles interacting with moisture in the air and rising up from the ground. I thought of these things I could see as sun sparkles and world tails.” – Judy Endow, Painted Words: Aspects of Autism Translated
“Low pitched notes really make me feel like love might be truly possible. High pitched notes make me feel like I could go crazy with pain and sadness. Great rhythms can make me feel like life is freedom.” – Jeremy Sicile-Kira
“You are not in the mountains, the mountains are in you.” – John Muir
“Our wounds and hurts and fears are in our eyes. Humans think they build ‘walls’ for internal privacy. They think eye contact is about honesty but they mostly lie because they think they can hide their intent. Eye contact is invasive.” – Carol Ann Edscorn
“My fear is that if I don’t mask, push through and show how capable I am, I won’t be offered opportunities in the future or be valued the same.” – Emily Swiatek
“Autists are the ultimate square pegs, and the problem with pounding a square peg into a round hole is not that the hammering is hard work. It’s that you’re destroying the peg.” – Paul Collins
“As soon as a child is capable of understanding, they will know they are different. Just as a diabetic needs insulin, an autistic child needs accommodations. The label gave me knowledge and self-awareness.” – Steve Andrews
“No, autism is not a ‘gift.’ For most, it is an endless fight against schools, workplaces and bullies. But, under the right circumstances, given the right adjustments, it CAN be a superpower.” – Greta Thunberg
“To measure the success of our societies, we should examine how well those with different abilities, including persons with autism, are integrated as full and valued members.” – Ban Ki-Moon, Former United Nations Secretary-General
“No matter how hard I try to learn from other people or copy what others are doing, I can’t quite get it right. It’s like living in a foreign country and not knowing the language.” – Rosie King
“Routine is a pivotal part of my daily life and any deviation, however slight, can cause great discomfort to me.” – Nathan Cornfield
“Avoiding eye contact is one of the things I find myself automatically doing to minimize the quantity of incoming sensory information.” – Judy Endow
“Autism doesn’t have to define a person. Artists with autism are like anyone else: they define themselves through hard work and individuality.” – Adrienne Bailon
“Autism is like a rainbow. It has a bright side and a darker side. But every shade is important and beautiful.” – Rosie Tennant Doran
“I don’t want my thoughts to die with me, I want to have done something. I’m not interested in power, or piles of money. I want to leave something behind. I want to make a positive contribution – to know that my life has meaning.” – Temple Grandin
“I’ve listened enough. It’s time for me to speak, however it may sound. Through an electronic device, my hands, or my mouth. Now it’s your time to listen. Are you ready?” – Neal Katz, Self-advocate
I really enjoyed putting this post together. Or more accurately, putting this blog post together was a very emotional process, with emotions from both ends of the spectrum (no pun intended). It was really positive and also deeply affecting. Some of these quotes hit so close to home that reading them brought tears to my eyes; some of them resonated with me in a way that was deeply inspiring and comforting. Doing this has actually made me feel less alone and more able to understand and express how I feel, something that I already felt like I was pretty good at. So that wasn’t something I expected.
Whether you were as moved by these quotes as I was or not, I hope you found something in this post that spoke to you, that helped you, or that even just made you feel something. Expressing ourselves can be so difficult; sometimes we need a bit of help and sometimes that help can come in the form of the words of others.
Category: autism, quotes Tagged: actuallyautistic, asd, autism, autism awareness, autism awareness week, autism awareness week 2021, autism quotes, autism resources, autism spectrum disorder, autistic, autistic adult, quotes, waaw, waaw 2021, world autism awareness week, world autism awareness week 2021
Posted on March 29, 2021
And World Autism Awareness Week is here again!
Over this week, I’ll be sharing a series of posts focussed on Autism and my experiences with it, as well as resources from various organisations that may be useful for those of you who are autistic or support someone who is autistic.
Here are some great organisations that provide support and/or information:
On this blog, I’ve written multiple posts about or including various aspects of my experience with Autism and so, to begin this week, I thought I’d collate them in one post so that they’re easily accessible…
I hope this post is an interesting and useful start to the week and I look forward to sharing the rest of the posts I have planned for this week in the coming days. I hope you’re all staying safe and looking out for each other!
Posted on March 31, 2018
In this post, I’d like to introduce my Mum, Sandra. We’ve been talking about her writing a post or two for a while because I think she’s got some really valuable stuff to add to the discussion of Autism, and Autism in women. Most of the resources around Autism tend to be written by parents of young children and while that viewpoint is important, the lack of any other viewpoints is something that needs to be addressed. There’s very little written by young people with Autism and I can’t find anything written by the parents of young people with Autism. So we thought we’d throw this out there.
We’ve never had a typical relationship: I’ve never felt the need to rebel and I can probably count on one hand the number of times we’ve really argued. We just get on really well and we share everything; we talk everything through. So she’s been on every step of this whole journey with me, from the moment I realised that what I was feeling wasn’t normal. She must’ve talked to hundreds of people – friends, family, health professionals in multiple fields – and spent hours and hours reading up on every possibility. She’s been to every appointment with me and she came to therapy with me until I felt confident enough to do it by myself. She pushes me when I need pushing and she protects me when I need protecting. I genuinely wouldn’t have made it this far without her. She’s always believed in me and she’s never stopped pushing to get me the help I needed, not for a moment. I am more grateful than I could ever express. She spoke for me when I couldn’t and she still does if I need her too. I only have to ask and she’s there. She is my hero. I couldn’t be me without her.
Here is a little paragraph from her to start her off:
‘Get out and take up dancing!’ was one of the many pieces of well-meaning advice I was given during my search for help for Lauren. ‘Tough Love’ was another suggestion and was just another way of saying the same thing. Because of the age she was when we started seriously looking for answers, many people, both professional and otherwise, saw much of her anxiety and depression as the ‘normal’ behaviour of an adolescent. But I felt there was more to it and knew I had to try and get some answers. So I began researching: talking, reading, anything to better understand what I saw Lauren struggling with. Now, several years later, I still remember my response to that suggestion: ‘I will take up dancing once I find the help my daughter needs’. And I have been lucky. We have been lucky. We have found some extraordinary people to help and support her but it has often been a long and isolating journey and one that I wonder whether might be useful to share for other parents or carers finding themselves in a similar situation.
We’ve been throwing some ideas around but nothing’s written yet. Between work stuff, moving house, and my mental health, there just hasn’t been the time. But we’ll get there. Stay tuned!
Category: diagnosis, mental health Tagged: anxiety, autism, autism awareness, autism awareness week, autism diagnosis, autism in girls, autism in women, autism resources, autism spectrum disorder, autistic, depression, family, mental health awareness, mental health blog, mental health blogger, mental health blogging, mental illness, mother, mum, waaw, waaw 2018, world autism awareness week, world autism awareness week 2018
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, as well as several mental health issues. I’m a singersongwriter (and currently studying for a Masters in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is now available on iTunes and Spotify, with all proceeds going to Young Minds.
I’m currently releasing my first EP, Honest, track by track and all five songs are now available on all major music platforms. However, there’s still more content to come…