Finding HopeAutism Dogs – The First Playdate
Posted on April 16, 2025
My first playdate with Daisy – in early July 2024 – came at the end of a very long, busy week and I was absolutely shattered but I wasn’t missing the opportunity to see Daisy again. The playdates are blocks of time where you get to spend time with your dog and start building the relationship that will help them to be the best assistance dog they can be for you. You also learn all of the commands that the dog has already been taught and start practicing them so that you can get comfortable using them and the dog can get used to responding to you. I was both excited and nervous, having officially matched with Daisy.
For this trip, it was Mum and I took Izzy so that Izzy could meet Daisy for the first time. On the previous trip, it had just been my Mum and I: we had been meeting Daisy for the time time, to get to know her a bit and to decide whether or not she would be a good fit for me and for us as a family (spoiler alert: she is!) plus Daisy had had a cough and we’d all agreed that we’d wait until the first official playdate for the two of them to meet.
We started the playdate in the paddock, just me and Mum and Izzy, and then one of the trainers brought Daisy out to meet us. She was so adorable and so excited, practically jumping up and down like she was on a trampoline. The moment the two dogs first saw each other was… A Lot. Izzy was barking. Daisy was barking. I was so glad I had my Loops in because they were very loud. I think Izzy didn’t like another dog encroaching on her person (me) and I think Daisy was just barking because she didn’t understand why Izzy was barking at her when she wasn’t doing anything wrong as far as she could tell. The trainer advised us to let them sort it out between themselves – let them set their boundaries and let them test those boundaries – and let them just get to know each other, something that was easier for them to do in an outside space since it gives them plenty of room to get closer and back off and so on. Based on that first meeting, it’s definitely going to take a while for the two of them to get used to each other.
After some solid time in the paddock, we went inside and I got to have a good cuddle with Daisy, which was lovely. Izzy clearly found that quite hard. While I was reconnecting with Daisy, she did at least have my Mum as a safe space but we also let the two dogs roam around the room and try to figure out how to exist together in a smaller space and figure out how to share me, essentially. That’s certainly going to take some time but we were reassured that it often takes an existing dog and a new assistance dog a while to build a relationship of their own; we just need to give them time and reward them for every positive interaction.
The next part was watching as one of the trainers ran through all of the commands that Daisy has learned so far. It was very cute: she was so eager to please (and to get a treat) that she was very enthusiastic in her responses, sometimes even anticipating them. Then it was my turn to try them all. I have to admit that I found it really hard: there were commands that I’d never used before, different ways to respond depending on how Daisy completed a task, and remembering which hands to use for different commands, etc. And, of course, Daisy knows them all so well that she’d often preempt me, which was very cute but didn’t exactly help me practice the commands. So it was hard, confusing and more than a bit stressful – it was a lot of information at once – but Daisy was so good and so eager to please and there was still plenty of time to go over it all so I wasn’t too worried.
After that, we went outside onto the lane and I was shown how to walk Daisy on a lead as a service dog, compared to how you would walk a pet dog (although she will get that too since there will be many situations, such as daily walking and exercising, where she will walk on a lead like a normal dog). It was a struggle! There are so many components going on at the same time, so many things that you need to remember: I have to check that she’s consistently looking at me and checking in; I have to remember what each of my hands are supposed to be doing; I have to remember when to reward her (while still walking, which I struggled with A LOT). I also have to make sure not to trip over something, or fall over my own feet, or walk into a hedge. Plus Daisy is a dog and she does get distracted so I do have to keep her on task, even if – for the most part – she was incredibly well behaved. Trying to hold onto all of those things at the same time was a real struggle and definitely the most stressful part so far; it is going to take A LOT of practice.
We also spent some more time in the paddock and practiced recall. Since her name had been changed from River to Daisy, the trainers had been spending a lot of time teaching her her new name. Apparently she’d picked up really quickly, which was good to know; the trainer we were working with that day said that they’d all had more trouble with it then Daisy herself had! We also gave Izzy and Daisy another chance to hang out in a big, open space and that didn’t go too badly. There was definitely less barking and they did manage to get closer to each other without Izzy in particular getting freaked out; they were also a little better about the other getting close to me. It was really interesting to watch them try and figure each other out and although it will definitely take a while for them to build a relationship, it felt like they made progress even in that one day. They even had a very brief nose-to-nose before Izzy decided that that was a bit too much too fast and it only resulted in a couple of barks. Izzy will be coming to future playdates so they’ll have more opportunities to get used to each other.
And that was the end of our play date! I think it went as well as it could have. I was quite overwhelmed by how much there is to know and how much there is to remember all at once, but there’s time to get used to that. There’s time to learn. So I’m not worried, just a bit overwhelmed. Me, Mum, and Izzy caught the train home, all three of us exhausted. We stopped in London to have dinner with one of my parents before getting in the car and driving home. I don’t think I’ve ever been so relieved to get home and lie down in my bed; I was absolutely beyond it, physically and mentally.
I basically spent the next few days sleeping; I was beyond exhausted, both from the playdate and the week leading up to it – I’d been part of a team putting on a symposium that I’d then presented at and then I’d worked on the team for a conference the next day, both at my old university. I’d held it together for the playdate but after that, I just crashed. I assumed that the exhaustion and general feeling of unwellness were due to completely overdoing it during that week but then, just to be safe before going out, I took a COVID test and tested positive. I was pretty confident where I would’ve caught it and apart from the playdate, I hadn’t been anywhere or seen anyone (other than my Mum who somehow managed not to catch it from me) so we got in contact with Autism Dogs and let them know; as far as I know, no one there had tested positive, which was a real relief. So hopefully it was only me that suffered and fortunately, my experience of it wasn’t that bad. I was honestly more annoyed that I’d broken my streak of NOT catching COVID, almost five years after news of COVID started spreading. So, for that, I’m very grateful.
Up next is the second playdate!
A Day In My Life (University With Autism Spectrum Disorder)
Posted on November 28, 2020
As opposed to my usual week-in-the-life posts, I thought I’d do something slightly different this time and zoom in on what it’s like to be an autistic student at university (one doing an MA in COVID-19 times anyway). This is obviously just my experience – as the saying goes, ‘if you’ve met one autistic person, you’ve met one autistic person’ – but I thought it might be an interesting post to write. I feel like it’s so important to share our experiences as autistic people, especially when media is being created that can be harmful to us (i.e. everything that’s been going on with Sia’s new film – I feel like I should be writing about that but I still don’t know how to; it makes me so upset that I can’t really write anything that feels articulate enough to represent the significance of the issue). So I hope this is an interesting read.
THE NIGHT BEFORE
Monday was hugely busy, with a production session, two doctors appointments, and working on the essay of the module in the spaces between. I’ve been working on it somewhat steadily but since I have a feedback session coming up, I’ve been a bit more random in my approach to writing it – fitting writing time in wherever I can or just writing about certain things as they occur to me – so that I can get as much out of that session as possible.
So it was one of those days where I barely had time to think.
On Monday evenings, the Masters course have a song sharing session between 7.30pm and 9.30pm. I’ve been a couple of times but I tend to find it too much. I’m most creative at night and so filling my head with new songs and song analysis right before I try to sleep really messes up my ability to sleep, which I have to try to do relatively early with my first class on a Tuesday at 9am. And if I don’t get enough sleep on a Monday night, I’m useless in every class on the one day I have classes. So, unless there’s a really good reason, I can’t really prioritise them.
I also find them quite hard socially: as much as doing the Masters course part time was the right thing for me, it has meant that for both years, I’ve never quite felt part of the group. There’s a handful of us in the same position and I can’t speak for them but it’s always left me feeling a bit ‘other,’ like I don’t really fit anywhere – not quite part of the group in the first year and even less part of the group in this second year. Everyone on the course is lovely but it does have a pretty big impact on the social side of the course. And when you struggle with feeling like you don’t fit in, it’s hard to feel it in yet another area of your life. So sometimes that factor just makes it too hard on my mental health. Maybe it will feel easier when one of my best friends rejoins the course in January.
So, instead, I used the time to do some more work on my essay before emailing everything required for the feedback session to my tutor (I wanted to make sure he had enough time to go through it all before we met on Wednesday afternoon). Then I tried to unwind a bit. Somehow I still ended up going to bed too late – not that 11pm is hugely late but for me, the night before a class, it’s on the border of being dangerously late.
I have a prescription for sleeping pills because my anti-depressants can cause problems with my sleep but I try to avoid them where I can. Having said that, knowing how exhausting a uni day can be, I usually take one the night before to make sure I’ve had enough sleep to give me the best chance of getting through said long uni day.
THE DAY ITSELF
I wouldn’t say I slept well and I struggled to get up but I’ve had worse nights so I just tried to push through the fatigue. I got dressed and made up and then collapsed on the sofa for a rest. Standing for the time it takes to shower, get dressed, and do my make up makes me feel weak, and lightheaded, and sick – something we’re still investigating with, unfortunately, very little progress – but getting up as early as I had meant that I did have enough time for some recovery time. It’s all down to planning. My life is dependent on planning. I also managed to eat some breakfast and take all of my pills. I’m taking quite a few at the moment – more than the ‘normal’ ones that help me maintain my mental health – because of a Vitamin D deficiency and horrible nerve pain down my left side (I’ve been waiting for a hospital appointment for the latter since about April or May, which may be my personal record for appointment waiting times).
My seminar started at nine (if you’ve read my previous university posts, you’ll remember that I’m doing all of my classes online this semester). My normal tutor (who is legitimately one of the loveliest people I’ve ever met) started the class before handing us over to a guest tutor who gave us a two hour class on arranging strings and horns. He was incredibly knowledgeable and engaging and so it was really interesting. Plus, Tiger came and sat with me for most of it, which was very nice. University with cats is a definite advantage of online lectures.
I was struggling to concentrate by the end of the class so I was relieved when we wrapped up. It was a lot of knowledge and sensory information to try to process and sort through and digest. I felt more than a bit dazed. Fortunately, the session was recorded so I can either go back and listen to it in shorter sections or go back and search for something specific.
My next class wasn’t until five so I had rather a lot of time to fill. Pre-pandemic, I’d hang out at uni and do cowrites, go to the favourite local coffee shop with friends, or work on whatever was on the list at the time but I’m finding it much harder to use this time effectively, whether that’s due to having my classes online or down to the pandemic just really screwing with my brain. Stuff that wasn’t hard before is now and the only thing I can put it down to is the pandemic, even if I don’t know precisely why. All I know is that it’s a weird time and so it shouldn’t be surprising that certain things aren’t the same as they were before. But it’s still frustrating to have such a big block of time that I could be using productively and not have my brain cooperate. Early in the semester, I ended up staring at my laptop screen, desperately trying to work on stuff and just not being able to. I got more and more frustrated and demoralised and eventually I just had to accept that this is not productive time. So I’ve been trying to come up with ways to fill it that aren’t too demanding but still feel like there’s a point to them; I don’t want to feel like I’ve wasted it by just staring at my phone or mindlessly jumping between the open windows on my laptop because that’s just not good for my general mental health. So I’ve been trying things like reading or watching new movies or TV shows – these have been good sources of inspiration in a time where I’ve struggled to find inspiration – or having a nap if I need one… Things that don’t require a lot of energy but still feel worthwhile (most of the time).
I did a quick scroll through my social medias to see if there was anything that needed replying to and then did some admin work: replying to emails, updating my bullet journal, and so on. Just as I was about to move onto something else, I got a load of notifications from social media, all Taylor Swift announcing her acoustic concert film going up on Disney+, folklore: the long pond studio sessions. That was so exciting that it temporarily scrambled my brain, in both a good and a bad way. As an autistic person, I’m really not a fan of surprise drops because I just get hit by a tidal wave of emotions and I feel so overwhelmed that I actually feel sick. I don’t want to sound ungrateful for the film because I am so, so grateful for all that Taylor has been putting out during the pandemic (her work really has been one of the things that’s helped me during this time) but the suddenness with which she’s been announcing things has been difficult because that doesn’t give me enough time to do the emotional processing that I need to do. So although I eventually settled into being really excited, I spent a lot of the day feeling painfully twisted up and anxious over the mess of emotion I was experiencing.
That did leave me floundering quite a bit, I have to confess. So, to try and take my mind off of everything I was feeling, my Mum and I caught up with the latest episode of His Dark Materials. It did help a bit. It’s such a great show; the casting, the acting, the sets, the interwoven storylines, etc are all so beautifully done. I loved the first series and I’m really enjoying the second one. I love Dafne Keen as Lyra (I so related to Lyra’s reaction to popcorn – it was freaking hilarious) and Amir Wilson as Will but I think it was Ruth Wilson as Marissa Coulter and Lin-Manuel Miranda as Lee Scoresby who really stole the show this week (pun actually not intended – if you know me, you’ll know I love a good pun). Their big scene together was just so powerful and how Ruth Wilson played the aftermath was particularly emotive.
I spent an hour or so working on a new blog post but after a while, I was just getting slower and slower and eventually I gave up and had a nap. I slept for about two hours before struggling up for my second class at five. I could’ve easily slept longer but I did my best to shake it off and concentrate on the workshop. This is where we (in this case, all of the 100% online students – the rest are blended and do the workshop in person onsite) share the songs we’ve been working on over the week and get feedback from the rest of the group. For most of the semester, we’ve had briefs each week but now we’re just working on whatever’s right for us. So, for example, I didn’t have a song to present because I’ve been working on the feedback for previous songs and the essay, rather than a new song (although I did recently write a rap, although I’m not sure whether I ever want anyone to hear it). Everyone else had songs to play though so I could still participate and give feedback, although I’m not sure how helpful I was because of how tired I was. But I tried. Some days I was just have less energy to work with than others.
I had an hour break before the evening session, which runs from seven to nine; they’re technically extra-curricular but I try to attend them when I can, especially now that they’re online and therefore more accessible. I don’t want to miss out on anything I don’t have to.
During my break, I had a quick dinner and catch up with my parents. The Grammy nominations had also been announced so I went through those. I’m super pleased for Taylor Swift: folklore is such a great album. Six nominations – Album of the Year, Song of the Year, Best Pop Solo Performance, Best Pop Duo/Group Performance, Best Pop Vocal Album, Best Song Written For Visual Media – is incredible and I’m really excited for her. Personally, I think she deserves at least several of those, especially considering the other nominees. I’m absolutely psyched for Ingrid Andress and her three nominations: Best New Artist, Best Country Song, and Best Country Album. I’ve been following her for years, having met her in Nashville at least a couple of years before her album was released. She’s an amazing writer and it would be just so awesome for her to win even one Grammy award this early in her career. But I’m concerned about her chances; she has some serious competition in all of those categories. The Best Country Song category, for example, is incredible, full of so many amazing songwriters that I love so much: Natalie Hemby (‘Bluebird’ by Miranda Lambert and ‘Crowded Table’ by The Highwomen, a group of which she’s a member), Maren Morris (‘The Bones’), and then Ingrid, of course. I want them all to win it. I was disappointed that Halsey still hasn’t been nominated. Manic is such an incredible album, as is Badlands (Live from Webster Hall), and it’s so frustrating that she doesn’t get the industry recognition she deserves. Especially given how popular ‘Without Me’ was, I’m really shocked that she’s never been nominated.
I just made it in time for the late session, which involved two of last years graduates presenting their final projects, one about using songwriting to explore different aspects of personality and the other about the experience of their gender transitioning and how sharing that story has the potential to increase understanding and empathy and break down barriers. They were both really cool projects but it was also massively helpful to see their processes, how they’d developed their ideas and researched them and how that research had lead them to writing the songs they wrote. It was fascinating and I definitely feel more prepared for my own project. I’ve got several ideas I’ve been turning over and the presentations have been helpful in my decision making process too. So I got a lot out of it, even if I was completely exhausted by the time the session finished.
It was about half nine and I probably could’ve gone straight to bed but I went and spent some time with my Mum, watching some TV together as we both wound down from the day. But it wasn’t long before we were both falling asleep so we put the cats to bed (they sleep in the kitchen so that we’re not woken up at five – the time they start demanding breakfast) and headed to bed ourselves.
THE NEXT MORNING
I’m not one of sleeping in so I always set an alarm. Then I can get up and start doing things (I have a real problem with needing to be productive) but usually, the day after a uni day, I sleep through the alarms I set. It doesn’t seem to change anything though. I keep setting alarms and sleeping through them. But that morning was special. I dragged myself out of bed at eight to watch folklore: the long pond studio sessions, as soon as it was available. It wasn’t particularly enjoyable to get up when I was so exhausted but it was absolutely worth it. The film was amazing, so amazing that I still haven’t figured out how to put all my feelings into words yet.
Since this post is just about my day at uni, I won’t write much more but just as I wrote about the Monday night, I thought I’d write about the Wednesday morning. Usually there isn’t a brand new Taylor Swift film to watch so I try to rest and recover my energy – physical, mental, and emotional – from the day before. As I said, I’m struggling with this need to be productive all of the time so with that in mind, I try to schedule undemanding tasks for Wednesdays. That particular day, I had a couple of half hour tutorials with tutors, so I spent the morning making sure I was ready for those. I’d already made notes of what I want to ask and discuss so I spent the rest of the morning going through those to make sure I felt as prepared as possible.
So, as you can probably tell, it takes a lot of planning and prioritising and rationing of energy to make it possible for me to go (or at the moment, ‘go’) to university, to make it possible to live my life in the most positive and productive (to a healthy extent) way. This isn’t an unusual day for me. While stuff like big Taylor Swift announcements and the Grammy nominations don’t happen every day, there’s often something that can cause emotional reactions like the ones described and I deal with fatigue and anxiety everyday. It’s one big juggling act. Every day. One enormous, exhausting juggling act every day.
Finding Hope 