Posted on April 1, 2024
TW: Discussions of self harm.
Yes, I know I’m late and that Self Harm Awareness Month was March but my recent post (about the disastrous ending of my therapy sessions) took up so much time and energy and emotion that I just didn’t have the space to write anything else and certainly not in time for the end of March. But I did post this as part of my recent foray into TikTok and I thought it summed up my journey pretty well so it seemed fitting to share it here…







It was a moving experience to see so many people sharing such vulnerable stories but I think the experiences posted likely skewed towards: all of the stories that I saw ended positively, with the individual celebrating being clean of self harm for however long. And that’s great, don’t get me wrong; it’s amazing to see people share how hard they’ve worked to move forward, to process and heal and recover. But I think it’s often the case that those who are still struggling don’t feel able to share due to judgement or comparison to those ‘further down the road’ or because their stories aren’t traditional ones. I don’t consider mine exactly traditional and I think that’s because my self harm use has mostly been due to my Autism and my difficulty regulating my emotions. So I think it’s important to share that experience, as well as the fact that I don’t know what it will look like in the future and how that is a frightening concept.
I don’t have the answers and, in this season of my life, I don’t have any poignant, wise words either. I’m just taking it day by day because even a single day can feel overwhelming right now.
Category: about me, anxiety, autism, depression, emotions, mental health, self harm Tagged: adhd, asd, attention deficit hyperactivity disorder, audhd, autism, autism spectrum disorder, complex post traumatic stress disorder, content warning, coping mechanism, cptsd, depression, mental health, mental illness, self harm, self harm awareness, self harm awareness month, self harm awareness month 2024, self injury, self injury awareness, tiktok, trauma, trd, treatment resistant depression, trigger, trigger warning, tw
Posted on March 31, 2024
And I accidentally abandoned this blog again… I’d always intended to take a break over January and February, to clear my head and to catch up on some of my end of 2023 blog posts, and while I obviously did take a break, neither of those things happened. Instead, I had a very traumatic break up with my therapist and I’ve spent the last two months or so in such distress that writing blog posts wasn’t even on my radar. Hopefully I’ll return to those posts and get them finished, posted, and out of my brain but, for the moment, I’m still feeling really overwhelmed and traumatised by those last three sessions and the absolute landslide of emotion and distress that they caused.
I’d been struggling on and off with therapy for a while, which I’m pretty sure was a result of feeling really burned out: with so little energy – physical, mental, and emotional – I found it really difficult to put myself into a position where I knew I’d end up feeling even worse. It was taking everything I had just to get out of bed, let alone go and pour my heart out for ninety minutes only to stuff it back in and walk around for the next week like it wasn’t utterly draining. So my attendance wasn’t deeply consistent but I was trying; I was giving it all I had even though I didn’t have much to start with. And then something changed around October last year.
Whenever I mentioned having a meltdown, she’d question it, to the point where it started to feel like she was trying to determine if I was lying or like she was trying to catch me out in some way, like “Gotcha! I knew they weren’t meltdowns!” And whenever the topic of my family came up, she’d dig, like she was looking for trauma or dysfunction. I also had the vague sense that she was trying to drive a wedge between my Mum and I, which I didn’t understand at all since we were trying to chip away at some really, really hard stuff and my Mum feels like the only person I can just about share this stuff with. As far as I can tell, it’s not uncommon for autistic people to have a ‘safe person’ in their life and destabilising that relationship, especially when I was already feeling so fragile, felt unwise at the very least. At first, I’d brushed it off, assuming I was being overly sensitive or something but it kept happening and was bothering me more and more. After our last session before the Christmas and New Year break, I decided that I’d bring it up when sessions started again.
I really struggled over Christmas and New Year – it’s a time that I’ve been finding increasingly difficult, especially over the last few years – with my depression and suicidal thoughts reaching really scary levels. I did email my therapist but we never worked things out over email: it was more about putting some of those thoughts and feelings somewhere and to keep her informed so that, when I arrived at the next session, she’d at least have a basic understanding of where I was at emotionally. We’d also discussed exploring Brainspotting since I was having such a hard time talking about my core fears, one of which was the main reason I’d gone back to therapy this time.
But we never got to any of those things. The session was an absolute nightmare. I can’t remember the first half of the session because the second half was so traumatic. We were sat on the floor and I had Izzy in my lap – she’d come to several sessions with me since she’s become such a grounding presence for me – and I’d thought we were going to talk about Brainspotting but then, for some reason still unknown to me, my therapist started asking me question after question about this core fear. My anxiety got worse and worse, I couldn’t breathe, and it wasn’t long before I was in verbal shutdown. I couldn’t speak; I could not answer her questions; and she wouldn’t step back, despite my obvious distress (I mean, I thought it was blatantly obvious). I’d lost all sense of time but eventually she slowed down and when she next asked a question, I dredged up my last reserves of energy and, my brain still barely functioning, I forced out a sentence. Maybe it was just inside my head, but it sounded flat and slurred – all off my energy was going into forming the words; I didn’t have anything left for expression or emotion. I had two reasons for forcing myself so beyond my limit: firstly, because I was scared that I’d have a full on meltdown with all of the worst elements (screaming, pulling my hair out, self harming, etc), which I dread having anywhere but at home (and it’s not like I enjoy them at home…) and, secondly, because I was scared she’d touch me, meltdown or not, which I viscerally did not want, especially while I was having so much trouble speaking and wasn’t sure I’d be able to say no. I felt like she was trying to force me into a meltdown and, regardless of the fact that this was coming from someone I was supposed to feel safe with, I felt and still feel deeply traumatised by the experience. The ‘conversation’ that followed only compounded that. We’d run out of time – thank god, because I felt utterly wrecked and wanted nothing more than to get out of that room – and I was packing up my bag and sorting out Izzy when my therapist said that, instead of pursuing Brainspotting, we were going to repeat that experience every week. I don’t know if I can even describe the feeling that that triggered – panic, terror, I don’t know – but, even though I was so drained that I could barely keep my eyes open, I couldn’t let that go. Maybe some sort of survival mechanism kicked in. I said that I knew that that would make things worse but she brushed off my reaction and said that it would help, both dismissing and invalidating my feelings. By that point, I was so overwhelmed with so many blinding emotions that I couldn’t say anything else; I had to get out of the building before I fell apart entirely.
The next several weeks were dominated by meltdowns, paralysing anxiety, crying jags, and the feeling that the ground was constantly shifting under my feet. I felt so traumatised, so completely rocked by the session that all I could do, for weeks, was lie on the sofa and stare blankly at the TV. I’ve experienced dissociation of a sort before but this was far, far worse: whenever I thought about the sessions or even therapy in general, my thoughts would scatter and wouldn’t reconnect until hours later. I couldn’t even engage with the thought of therapy until a month after that awful session. My Mum had been in regular contact with my therapist, letting her know that I wouldn’t be coming in, but it was a month before I could even think about writing to her myself. Even then, a month since that hideous session, I felt like I couldn’t breathe, like I was about to throw up, like my mind was going to get shoved right out of my head and I’d shut down. But the idea of carrying around all of those feelings felt unbearable so I spent a full day shouldering through the nausea and writing her an email, describing my experience of the session. Just the thought of being in the room triggered such an intense flight or flight response that I couldn’t imagine going back there so soon, so I suggested doing a Zoom session (which we’d done before when one or other of us had been abroad) as a stepping stone to getting back there. When she replied, she shot it down without explanation, triggering another tidal wave of anxiety and confusion – she felt like an entirely different person to the one I’d been working with for so many months. It was like she’d had a personality transplant or, probably a more likely explanation, that something had happened in her life and it was creeping into her work. I still wonder if that was the case. (In a later email, she explained why she hadn’t wanted to use Zoom and her reasons were completely understandable but I couldn’t understand why she hadn’t simply said that in the original response, why she’d chosen to leave me confused and upset when she could have so easily prevented that.) That response left me untethered again and I could feel this monstrous, ugly trauma growing and feeding on itself; it was like someone had ripped open the stitches and the tissue that had just started the slow process of knitting itself back together was torn open, messy and raw.
It took me over a week to compose a response but then, before I could send it, I received an email – in the same cold tone as the previous one – where my therapist declared that since ‘we’ hadn’t found a way to meet in person (an interesting word choice since I had been the only one suggesting alternatives), she had decided to terminate therapy. Reading that felt like experiencing a physical trauma, like something dense and heavy impacting my chest and splintering every bone, pulverising every muscle, organ, and blood vessel. I couldn’t tell if I was going to throw up, stop breathing, or completely dissociate. I felt so fragile that I honestly feared that my brain would splinter and that would be it: I’d learn what it means to lose your mind. I couldn’t believe she’d be so cruel; I’d never imagined that she could be so cruel. Part of me wondered if it was a manipulation: she was forgoing the carrot and using the stick to force me back into the room, regardless of my feelings about it. But I couldn’t believe she’d really do that, couldn’t believe that the person I’d known for a year would do that – to anyone. She suggested a session or two to wrap up but I could barely process that concept: the words ‘terminate therapy’ were all I could think about, drowning out everything else in my head. It took a while but when I could eventually form coherent thought, I knew I couldn’t miss the upcoming session, not with this weight hanging over me; I couldn’t carry it around any longer than I had to. So I wrote back, trying to briefly express the hurt and anger I felt to, at the very least, establish a foundation for what I assumed would be the final session. I didn’t know how much I’d be able to say myself so I wanted to get some of it out there before I got into the room: I wanted her to know how abandoned I felt, how ending therapy without so much as discussing it felt like a punishment; I wanted her to know how invalidated I felt, how I felt she’d invalidated my trauma after the previous session; I wanted her to know that this abandonment felt like one more person telling me I’m too complicated, that I’m broken, that I’m not trying hard enough, that I’m not worth putting in the effort. It was a hard email to write and a hard few days waiting for the session.
It took me six weeks in total to go back and even then, I didn’t feel ready. I woke up in the middle of the night – the night before the session – screaming and crying in pain, the trauma and hurt I felt about the whole situation overwhelming me even in sleep. Mum had to sit with me until I calmed down enough to go back to sleep but I could still feel the ghost of it the next morning, along with nausea and shaking. I wanted to skip it so badly but given how that last session had ended, not going back felt worse than going (although it was a very slim margin). I wanted to understand and, if this was the end, I wanted closure, even if closure meant learning that I’d never get the whole truth. I’ve been there before. Everyone I’d told thought I was mad, but I needed to try, despite how awful I felt. So back I went.
My fight or flight response was so intense when I arrived that I don’t know how I walked inside; my whole body was screaming at me to run and it almost felt like gravity was trying to pull me off my intended course. I sat down on the sofa but didn’t take my shoes off as I usually would; if I truly needed to escape – Mum was waiting in the car outside with Izzy – I didn’t want anything to slow me down. My whole body was shaking, so noticeably that my therapist actually pointed it out. For a moment, she seemed so like the person I remembered from before all of this but it didn’t last: the session was a complete mess. It’s tempting to say that it was worse than the previous one but in reality, they’re not really comparable: the January session was traumatic and although this one was a hideous experience, I didn’t feel traumatised by it. I don’t feel traumatised by it. It felt more like a battle of wills: each of us pushing, neither of us willing to give up any ground. (I don’t know if she’d think of it that way but all I could think about when she was – or more accurately wasn’t – answering my questions, was that she was scrambling, desperately trying to protect herself.) I was angry and hurt and she was defensive and reactive, repeatedly turning my feelings and questions back on me with statements like, “well, that wasn’t my intention” or “I can’t help it if you interpreted it that way” and so on. She didn’t outright make everything that had happened in the last session my fault but she was clearly avoiding taking any responsibility for the situation, despite being the therapist in our relationship. For example, whenever I expressed that I felt traumatised – specifically by how I’d felt pushed into a shutdown – her responses only left me feeling more distressed and invalidated, like she didn’t believe me. I felt like she thought I was throwing the word ‘trauma’ around casually, rather than using it to describe a very real emotional injury. When I asked her specifically about the verbal shutdown I’d experienced as a result of her pushing, she said that she didn’t realise how bad my distress was, that it didn’t seem worse than the previous times I’ve become distressed during sessions. I felt it was deeply, deeply obvious but we clearly weren’t going to agree on that.
In my anger, I ground out that I felt that not only terminating therapy but terminating it by email was a punishment for ‘not trying hard enough,’ for not meeting her expectations, for not getting back into the room in her acceptable timeframe (despite the fact that I had no help in doing so). I said that it felt like a manipulation to get me back into the room but she claimed that it wasn’t: she gave me her ‘reasons’ for terminating therapy but, in my opinion, not only were they very flimsy but they were things that she’d never mentioned to me. If she had, there were adjustments we could’ve made and things we could’ve worked on but how could I have done that when I never even knew that she considered these things problems? I’m skeptical that those were the real reasons; I think she had others that she just didn’t want to share. She said that she’d talked extensively about all of this with her supervisor and I couldn’t help thinking what I wouldn’t have done to hear those conversations. I tried to get some clear answers from her, get my most basic questions answered – about the last session, about terminating therapy by email – but it wasn’t long before her answers started spiralling and she couldn’t stop justifying herself. That, to me at least, implied that she wasn’t confident in her decisions but I can’t know that for sure and I’ll probably never know now.
She brought up the fact that she’s self employed, saying that me not coming consistently put her livelihood at risk. I think it’s worth noting that my sessions had always been cancelled in the accepted timeframe and, on the one occasion where I’d left it too late – because I’d really thought I’d be able to go – we’d paid her. That is my only responsibility to her financially; I thought bringing that up was not only unbelievable but also deeply unethical (and everyone I’ve described this moment to have been appalled too). She said that she couldn’t have a client taking “an extended holiday,” a phrase that seemed to suck all of the air out of me: I couldn’t believe that she’d just essentially compared my six weeks of trauma and dissociating to a holiday. The panic attack hit me so hard that I felt paralysed, shaking and hyperventilating. At one point, she asked if she could sit on the sofa beside me but I flinched – from the moment I walked into the room, I hadn’t wanted to be within reach of her – so, fortunately, she didn’t move. I don’t know how long it took but when I was eventually able to breathe and communicate, I told her that she wouldn’t like what I wanted to say. She said that that didn’t matter, that she always wanted me to share what I felt (which felt very ironic considering how the session was going). So I expressed that, whether she’d intended to or not, she’d just compared this incredibly traumatic experience to a holiday. She instantly, vehemently, and repeatedly denied it but it’s what she said; I wish she would’ve just acknowledged that what she’d been trying to say – regardless of it being an appalling point – had come out wrong. It still would’ve hurt but I think it would’ve hurt less. Or maybe the whole thing was already broken beyond repair at that point; maybe it was already too late and I was just trying to get some answers before fleeing the burning building.
I pointed out that, in terminating therapy and therefore abandoning me by email, she’d repeated a trauma that had devastated me at nineteen; it was an experience she knew a great deal about since we’d spent months discussing it. She forcefully disagreed and said that it wasn’t the same at all but apart from a few details, I can’t believe that she couldn’t see the screaming similarities; I don’t believe it. She said that she just needed to get me in the room and I couldn’t help but laugh at the irony: how was that not manipulation? That was another element of what felt like, to me, was her ‘scrambling’ to stay in control, of the session and the party line she was sticking to: she kept contradicting herself. Another example was, despite announcing the end of therapy over email, she repeatedly told me that I had agency, that continuing with therapy was my choice. I found that deeply confusing: one day she was dropping me as a client by email and the next, it was all up to me? I didn’t understand. But I wasn’t sure that it mattered in the long run: I was running through the consequences of everything I thought to say before saying it – on whether or not I should say it at all – because, having threatened to end therapy once, I couldn’t trust that she wouldn’t do it again. I didn’t trust her and I didn’t feel safe with her anymore.
Possibly the only useful thing to come out of the session – apart from a sense of catharsis – was a short exchange about other types of therapy and what other modalities might be helpful. But then, when I said that every therapist I’ve seen has hurt me in one way or another – intentionally or not – and that trusting someone new feels all but impossible, she suggested that I’m letting them hurt me (or inviting them to hurt me – something to that effect). I was astonished that she could say something like that, that she could say – to my face – that it’s my fault that therapists have been traumatising me. I mean, I don’t even know what to do with that. And then she asked me how my dog was, as if she hadn’t just spent more than ninety minutes denying, dismissing, and invalidating the trauma that she was the source of. I was wound so tight that I thought something in my body might snap, despite the exhaustion weighing me down, as if my muscles had been replaced by sand bags.
I escaped to the car, relieved to see Mum and Izzy, who climbed up my body and around my neck; she’s a sensitive little bean, always wanting to make people feel better. I was so exhausted that when we got home, I went straight to the sofa, curled up with Izzy, and slept for the rest of the day. It was a long week; it was a lot to process. I had a lot of interesting conversations with family, friends, therapists, friends who are therapists, all of them horrified that my therapist had treated me the way she had and said the things she’d said to me. In the end, I decided that I needed to go back, most likely for the last time: my therapist had been so reactive and so on edge that I thought, with a week to process everything that had been said, she might be a bit less defensive and therefore able to answer some of my questions. She hadn’t really given me any answers, not sufficient ones anyway.
Before that final session, I emailed her with some thoughts and questions so that she would have time to think about them before we met to talk. I told her that I still didn’t feel clear about the traumatic session in January and how that had gone so wrong, why she hadn’t stopped pushing when I was clearly so distressed; how confused I felt about her terminating therapy by email only to turn around and say that I had agency over the situation; that I felt really distressed and invalidated by her response to how traumatised I felt by the experience. When we’d first met, she was confident that she could help me with this core fear that I was struggling with but suddenly she was saying that she didn’t have the skills and I didn’t understand what had changed.
At some point over the next few days, my Mum emailed her to officially and logistically tie things up. The reply insisted that she’d ultimately been thinking of my best interests, that she felt she didn’t have the skills to help me and that another model of therapy might be more helpful. It was only at this point that she expressed that she was “sorry that the therapy didn’t work,” something she never said to me; I know that an apology wouldn’t have changed anything by that point but it would’ve changed the story a little, to hear that she actually felt something about the crash and burn that was the end of our therapeutic relationship. To me, she’ll always be another mental health professional who abandoned me during a crisis because I was too much, because I was too complicated, because I wasn’t worth the effort. She never contacted me again, not that she necessarily had to as my now ex-therapist, but I can’t help thinking that, had I been in her shoes, I would’ve emailed to say goodbye, to wish me well, to… something. But as I said, now that all is said and done, she’s just another person who didn’t really care.
I’ve had many, many conversations with many, many different people since then and, of course, I’ve thought about it a lot. I even looked up the relevant ethical guidelines but, when I talked about it with another therapist, she advised me not to waste my time and energy: even if I had any proof, therapists have many more protections than their clients. And while the anger that still lingers is tempting, I know that I wouldn’t be able to prove it and my impassioned description of what happened is unlikely to change anything; stories like mine are far too common. I do think about her other clients though and I wonder what their experience over the last six months has been like. But I’ll never know and I don’t think knowing either way would help me.
It’s taken me a long time to write this and, to a certain extent, I’m still processing it; I know that this new emotional injury won’t heal for a long time. But writing things down has always helped me to make sense of my feelings and to let go of some of the weight that I carry. And posting it here… well, this is where I’ve documented the ups and downs of my life for almost a decade (where all of that time went, I have no idea). To leave it out… I might as well give up posting entirely.
I feel lighter already.
Category: animals, anxiety, autism, depression, emotions, meltdowns, mental health, therapy, treatment Tagged: abandonment, abandonment issues, actuallyautistic, asd, audhd, autism spectrum disorder, autistic, autistic meltdown, autistic shutdown, core fear, cptsd, dissociation, fear of abandonment, medical trauma, meltdown, retraumatising, shutdown, therapist, therapy, therapy break up, therapy trauma, trauma
Posted on December 25, 2023
TW: Mentions of depression and suicidal thoughts.
This has been a fucking hard year and there were multiple moments when I wasn’t sure I’d make it to this point; I’m not convinced I’m glad that I have. My anxiety and depression and chronic suicidal thoughts have been doing their best to swallow me whole; several people have suggested that I’m in autistic burnout and I wouldn’t be surprised but I don’t know how to be sure of that with the depression and CPTSD in play. I’m just putting one foot in front of the other, even when I’m not really sure why.
It’s somewhat confusing to still recognise the good things and be grateful for them in amongst all of that. While I never thought depression and suicidal ideation were simple, I never would’ve imagined that they could be this confusing and conflicted. But that’s a train of thought and discussion for another time. For now, these are some of the things I’ve felt grateful for this year…
Mum – I don’t know what else I can say about my Mum that I haven’t already said in my previous Grateful posts (2017, 2018, 2019, 2020, 2021, 2022) but, holy shit, am I grateful for her. Something I’ve thought a lot about over the course of the year is how she always seems to take things in stride. I know it’s not that simple: she’s human and so, of course, she has feelings about everything that happens but the way she handles things with such openness and grace blows me away.
Family and friends – Despite how hard this year has been and how desperately I’ve wanted to just hide away, I’ve managed to spend a surprising amount of time with my family and friends: over Zoom, at music events, at each others homes, even abroad. I honestly don’t know how I got so lucky to find and keep the friends I have but I am so deeply, deeply grateful. I look back at all of the bad things that have happened to me and I find that can’t hate them completely because, if they hadn’t, I wouldn’t have met and become friends with the people I have.
The cats – My gorgeous pride of cats. I love them all so dearly. We’ve had some health scares this year, which have been very scary but, fortunately, everyone has recovered and we’re celebrating Christmas as a healthy family. Izzy has thrown a spanner in the works to a certain degree and the peace of the house has been disturbed dramatically; we’re still finding a new normal and all of these new relationships are still evolving. On the whole, the cats are still avoiding Izzy because she gets so overexcited; she just wants to play but often, that either scares them or they don’t understand and so they take a swipe at her. It’s slow going and although progress is being made, I miss the cats being around and struggle with the frustration of just wanting everything to be okay and peaceful right now. I love them and I don’t like not seeing them as much.

My time and friends in Nashville – My trip to Nashville this year was a serious emotional rollercoaster. There was a school shooting in the city on the first full day we were there; I saw some of the most amazing Tin Pan South shows I’ve ever seen; I became a Madeline Edwards fan; I saw some of my lovely friends; I hung out with new friends; we weathered the edge of a tornado (and had a little party in the motel room we were sheltering in; I got to go to Song Suffragettes’ 9th anniversary show and catch up with the lovely Natalie Hemby; I struggled with some serious chronic pain… It was a lot to take in, a lot to process. It was a really tough trip but the good moments were really good and I am grateful for those.

My therapist (and the dogs that joined our sessions) – It’s been just over a year since I started seeing my new therapist and, if I’m honest, I’m still getting used to her and all the little differences. I saw my previous therapist for eight years and the loss of her from my life was a trauma so it’s not surprising to me that it’s been a really difficult adjustment; I still miss her and our sessions. My new therapist is good and I really like her and we’ve had some really productive sessions but it’s been a very different scenario: my mental health has never been so bad, the worst stuff so close to the surface. That makes therapy really fucking hard. It makes me feel triggered; it makes me feel like a frayed nerve; it makes me feel like I can’t breathe. It’s exhausting. But I know that nothing will change if I don’t go. Part of my experience of depression means that I don’t always want things to change but, as I said earlier, it’s such a confusing, messy, complicated well of feelings that it’s hard to articulate and this certainly isn’t the post to get into it, but it does provide some context as to why therapy is so hard. I can’t seem to clearly explain why I’m grateful for therapy and for my therapist, not with my headspace being the way it is right now, bit I know that I am. Sometimes I think that has to be enough.
The puppies – Over the summer, I got to spend a solid amount of time with a litter of four Pomchi puppies and it was glorious. One of them in particular, the only girl who was nicknamed ‘Skye,’ took to me straight away: it was like she saw me and went, “You. You’re my person.” It was adorable and I loved every second that I got to spend with her. I hadn’t thought I was ready to bond with another dog but Skye showed me that I was (and honestly, the name ‘Skye’ just felt like a sign – one of my biggest special interest characters, Daisy Johnson, having chosen that name for herself before she discovered who she was, who she was supposed to be) and it was such a joy. And then my heart was broken when I wasn’t able to keep her. I was devastated and the pain of it really shook me. I worried about her endlessly and although that has faded over time, it still hits me now and then; I hope she’s safe and happy and loved. And even though it ended in utter heartbreak and a lot of bad feeling, I wouldn’t take it back; it was a really special experience and showed me that I was ready to have a dog in my life again and ultimately lead to Izzy.

Writing songs again – Songwriting has been a difficult for a while now, as it usually is when my depression gets bad (and it’s been the worst it’s ever been). It feels like my creative brain goes into hibernation. Since I started taking Phenelzine again in March, things have gotten better in that regard. I’ve been writing again but it doesn’t feel as fast or as easy as it used to; like it takes actual physical effort to make my brain work when it used to come really easily. So it’s definitely not perfect but I’ve written some songs I’m really proud of and I’m grateful for that.
Getting to reunite with my friends from university – In the Spring, I went to Germany for the wedding of two of my friends and although there lots of stressful aspects to the week away, there were some truly joyful moments too and one of them was seeing some of my wonderful friends. Because we’re scattered around the world, we don’t often get to see each other and we rarely get to see each other altogether and, with COVID of course, it’s been an even longer time than planned so that was really special. It was really emotional too, more so than I’d expected, but then it was a very emotional week.

There’s five of us buried in this huddle.
Acceptance into the Service Dog program – A few years ago, we applied for the Autism service dog program but they didn’t have space for me. This year we applied again and I’ve been accepted! The process from being accepted to actually getting a dog is a long one but that’s okay: it gives me time to get used to it and to learn everything I need to know, with the assurance that support is coming. I’ve met quite a few people who are part of the organisation and they’ve all been so lovely and supportive and warm so I feel like I’m in good hands. I have my anxieties about it – it’s a big responsibility to take on a dog, particularly a specially trained one, and I’m aware that, by having one, I’m representing the organisation and, to a certain degree, disability and neurodivergence – but I think it would naïve and irresponsible not to. So I’m doing my best to prepare and to get into a healthy, balanced headspace about it.
Breathing Room – After years of loving the work known as ‘Breathing Room’ by Anna Berry, I finally got to see it. First in London and then in Croydon. Finally seeing it in real life was magical; it was utterly breathtaking. During each visit, I spent ages just sitting inside it, watching the cones flutter and listening to the gentle creak of the machinery. It was so calming; I could’ve sat there forever. And it had my mind spinning with new ideas for songs, both specifically about the piece and for other songs. I loved that. Both times, I had to all but be dragged out.
The London experience was also incredibly special because I got to help construct it before it opened to the public. It was a viciously hot, airless day (which resulted in a very stupid-looking sunburn, which unfortunately didn’t fade for months) and even with the gloves, I got some pretty nasty splinters that had my fingers stinging for days but I loved every second of it. I loved the repetitive movement, the soothing count, the intense concentration that had the rest of the world fading to nothing. I’d been in excruciating pain and I did struggle with my back during the session but I would’ve happily kept going; I only left because I had a prior commitment. I loved it and it was a really special thing to get to do. I also, by some magical serendipity, got to meet Anna herself and talk with her briefly about my love for the project and the idea of writing a song about it. She was really lovely and it was a very cool cherry on top to the day.
Discovering Maisie Peters – I’ve listened to Maisie a little, on and off, over the years but I think I just felt like I never quite had the brain space to really get into her music. But then I heard ‘Lost The Breakup’ and I was completely hooked. I played it on repeat until The Good Witch came out and then I was just obsessed; I didn’t listen to anything else for weeks and even when I did start listening to other stuff, I still often returned to it. I can’t quite explain what was so magical about it or why it resonated with me so strongly but it really did and I’m still completely obsessed with Maisie’s songwriting; I could talk about it for hours. I’d love to write with her. I also got to see her twice on tour and they were both really special shows: I saw her in Bristol on Halloween at the smallest venue of the tour and I saw her headline at Wembley, the biggest venue of the tour and a real milestone, at the end of the UK leg. She’s a fantastic performer and I absolutely loved the shows. I was also lucky enough to go to the VIP pre-show acoustic sessions and those were really, really special. I have a Week In My Life post half done about that week that I hope to get up soon where I talk more about that so I’ll come back and link it here – it was an exhausting week that took a long time to recover from but it was absolutely, 100% worth it. I saw her perform at the Communion Xmas Party too and got to talk to her briefly afterwards too, which was really lovely (her keys player, Tina, too). It was definitely my Maisie Peters season and long may it continue; I’m so glad to have her music in my life.

Listening to The Good Witch, making bracelets for the tour, dressing Izzy up as the song, ‘BSC,’ Maisie’s acoustic set in Bristol, the Halloween stop of The Good Witch Tour, the acoustic set at Wembley Arena, Maisie’s sold out show at Wembley Arena, Maisie performing at the Communion Xmas Party in London, and meeting her after she performed.
Getting a TENS machine – Given how bad my chronic pain has been this year, getting a TENS machine was a revelation. It has been so helpful and I’m so very grateful to have a way to reduce my pain when it’s really bad. I don’t know how I didn’t come across it sooner but I’m so thankful for the recommendation from my GP (who is an actual miracle worker).
Meeting Amanda Tapping at LFCC 2023 – Amanda Tapping is one of my favourite people in the world and has been since I was about fourteen. She’s played some incredible roles that have inspired me deeply and she is a truly wonderful human being. I met her several years ago and although I was almost paralysed by anxiety, she was so kind and open and it was a really special experience. This year she started doing livestreams with The Companion and it was so, so nice to see her again, regardless of the fact that she couldn’t see me. The livestream was great and I looked forward to the promised future ones. Then, in the summer, I went to my first Comic Con and got to meet her again in person. We had such a lovely conversation – as did she and my Mum, who was with me as my disability support person – and it’s a memory that I will always hold close and keep safe; it was a very special experience. And then, my third Amanda Tapping moment of the year was the second livestream, which was great on its own, but I also had a ‘backstage’ ticket and I was able to talk to her briefly afterwards. She’s so open to big, honest, vulnerable conversations and it feels like she really sees you and hears you when you talk and that’s such a powerful feeling; I remember thinking about that after I met her the first time and it was exactly the same this time. She, and the characters she’s played, have been a constant source of inspiration and strength for me and stumbling across her all those years ago was such a fluke but, my god, I’m so grateful I did.
Getting The ERAS Tour Tickets – Even though, it was incredibly, sickeningly stressful (and caused a fair amount of ableism-based trauma), I am very grateful to have gotten tickets to The Eras Tour in the summer – and not only one but multiple times, since several friends and groups of friends wanted to go and wanted to go with me. That felt very special and I’m both grateful that we were able to get the tickets and that I have been able to afford it, having been saving since The reputation Tour ended. I have a very complicated relationship with the future and with looking ahead but it was a huge relief to know that I wouldn’t have to watch the every show happening without being there even once. So I’m grateful for that. And, as always, I’m just grateful for Taylor herself: for her music, for being a person I can look up to, and for the inspiration and opportunities she has given me.
The Disability-Focussed Writing Workshop run by Sick Stories – I discovered this online workshop on Eventbrite and from the first one I attended, I had an absolute blast. Sophie, the host, is absolutely lovely and the prompts always led me down interesting rabbit roles. The first prompt Sophie suggested resulted in an idea for a novel that I would love to write at some point, my love of writing fiction returning that immediately. The fact that it was disability-focussed, along with Sophie’s excellent hosting, made it feel like a really safe and fun place to explore and share ideas that might’ve otherwise felt too personal and vulnerable, leaving all of the amazing pieces of writing I heard unwritten. I love a lot of the stuff I wrote in those sessions and although I don’t yet have anything to do with them, I hope that I will at some point find a way to share them.
Discovering Juneberry Red Bull – Among my family and friends, my Red Bull consumption is somewhat legendary, despite the fact that it seems to give my no caffeine hit whatsoever (I think I’m still living in denial that one day it will start helping again). But it had kind of waned… until I tried the new summer flavours. The other three didn’t do anything for me but this one has me in a chokehold: I love it so much. I would drink it all day if it wasn’t as unhealthy as Red Bull obviously is. But it’s a nice little treat that I’m very pleased they came up with.
Being able to afford a new laptop when my old one died – My laptop was dying a slow and painful death and, given that I use it for most of my work, that was a very stressful position to be in. But, thanks primarily to disability benefit, I was able to buy a new one and while that was obviously great for work reasons, it’s the first time I’ve had a brand new laptop in a long time so that was very exciting. I love shiny, new gadgets and, since they’re usually very expensive, I don’t get to do the whole “oh my god, a shiny, new gadget!” thing very often.
Nimona – Watching the film, Nimona, was a really emotional moment for me. I loved the story and the world and the animation style and the humour but the character of Nimona really resonated with me. I really related to her and saw a lot of myself in her: her feelings of otherness, her self loathing, her masking – there were so many parallels to being autistic. Seeing that was very moving. And I really, really related to her in her ‘monster’ form. *SPOILERS* The scene below is constantly on my mind and that scream has me in tears every single time: that is what it sounds like in my head, in my soul. That is what it feels like to be me. Being able to point at that and say to someone, “That’s how it feels,” has been so emotional. It’s hard to describe but I’m so, so grateful to have this film. It might mean more to me than any other film, specifically because of this sequence.
Swimming, hydrotherapy, and starting physiotherapy – For most of the year, I’ve kept to a pretty solid schedule with my swimming and hydrotherapy and then, halfway through the year, I met with an amazing physiotherapist and have been pretty consistently working at that too. Having now worked with both a hydrotherapist and physiotherapist who really understand hEDS, I can say with absolute confidence that it is a completely different experience; I’ve worked with good people before but that lack of understanding has always been a major obstacle and I’d find myself burning out and giving up. I’ve always loved to swim but I’ve found that I can really love hydrotherapy and physiotherapy (although I have had some periods of pain so bad that I had to take a break until it faded). We’ve found two really lovely pools to swim in, which makes it even more enjoyable, and I’ve made some real physical improvements. That’s been kind of mind blowing – to actually see that happen. And to the point where I was able to swim 5km for Mind! But more on that in a minute.
Izzy – I still can’t quite believe that I got a puppy this year, that I actually have a puppy now. That’s definitely not something I expected at the beginning of the year; it was probably the last thing I expected. But here we are and I’m madly in love with her. Izzy is a golden Pomchi (half Pomeranian half Chihuahua) and she’s utterly gorgeous: she’s soft and warm and snuggly and amazingly smart. The bond we’re building is already so strong and so special and that means so much to me, even though it’s kicked up some hard stuff. But I want nothing more to love and protect her and she seems to feel the same, guarding me at almost all times and trying to lick away my tears when I’m sad and looking to me when she’s distressed. My relationship with Lucky was incredibly special and always will be but, just as I learned after my first cat was put too sleep and we then got Lucy, I can love another animal and not feeling like the new relationship is replacing the old one. This relationship is new and special in its own ways and I feel lucky and honoured to have a puppy to pour all of that love into.
Getting to fundraise for Mind – Getting to fundraise for Mind felt really, really special, not just because we managed to raise so much more money than I’d expected (over £600 compared to my goal of £200) which was amazing, but because I was finally physically capable of doing it. I swam 5km for Mind, 1km a night over seven nights, partly due to managing my hEDS and partly do the logistics of pool time, but I was really proud of finding a way to make it work. I was exhausted and sore afterwards but it was absolutely worth it. I was so impressed and so touched by the generosity of everyone who donated it and I was so proud of myself for committing to it and competing it. I look forward to doing something similar at some point.
Spending my birthday with horses – My birthdays have been a source of stress for quite a long time now so I’ve taken to either ignoring it completely or trying to find something un-birthday-like but still special to do. And this year, I found myself going on a wellbeing course that centred around horses. I’ve always loved horses so, while the confidence building stuff was hard, it was so nice to spend time with these gorgeous animals again. It was a really cool, interesting way to spend the day.
The excellent books I’ve read this year – I worked really hard to get back into reading this year and I read a lot of really good books. The ones that have most moved and inspired me are Trista Mateer’s poetry, Blythe Baird’s poetry, The Anthropocene Reviewed by John Green, and Tomorrow and Tomorrow and Tomorrow by Gabrielle Zevin. All of these books had a really profound effect on me and they’ve all become so special, each a little piece of my personal creative and artistic mosaic. I don’t know why I picked them up when I did but I’m so thankful that I did.
A year of Duolingo – It’s hard to believe that I’ve now been learning Dutch for over a year. It’s hard to believe how far I’ve come. But I have and I have. It’s so strange to me: I hated learning languages at school but I’ve loved learning Dutch. There are plenty of obvious reasons for why I hated it at school but they’re not really worth dwelling on at this point but I had no idea when I started learning through Duolingo just how much I would love it, how restful I’d find it, how much fun I’d have. I had no idea that learning a language could be such an enjoyable experience – could be enjoyable at all – after my school experiences and it’s even inspired me to think about other languages. But one thing at a time. I love learning Dutch and I feel no need to change the way I’m currently doing things. I don’t know why I thought to download the app that day but I’m really glad I did and I’m proud of myself for opening it and practicing every day since.

As I’ve repeatedly said, to call my feelings a mess is the understatement of the year. I was re-reading my post from last year and I don’t know if I can describe gratitude amidst depression and suicidal thoughts any better than I did then: “When I feel like this, like I’m drowning in my depression with these near constant suicidal thoughts, things to be grateful for feel like a double edged sword. Sometimes they’re things that make me feel like I can keep hanging on, even if just for a little bit longer, and sometimes they feel like weights tied to my ankles, keeping me here when I desperately don’t want to be and I have to admit I resent them for that. So it’s anything but simple. It’s good and bad and hard and confusing; I can feel differently, ten different times in a day sometimes. But these are the objectively good things in my life and I can recognise that. I wanted to honour them for that.”
Category: about me, animals, anxiety, autism, autism dog, book, chronic pain, depression, emotions, event, exercise, family, favourites, food, heds, hydrotherapy, mental health, music, school, special interests, therapy, treatment, video, writing Tagged: 2023, ableism, accessibility, actually autistic, actuallyautistic, adhd, alternative therapy, amanda tapping, anna berry, anxiety, anxiety disorder, asc, asd, attention deficit hyperactivity disorder, audhd, autism, autism service dog, autism spectrum condition, autism spectrum disorder, autistic, autistic artist, autistic burnout, birthday, books, breathing room, cat, cats, charity, charity swim, chronic pain, chronic suicidal thoughts, chronic suicidality, concert, cptsd, depression, disability, disabled, dog, duolingo, dutch, equine facilitated learning, eras tour, family, family of cats, fibromyalgia, friends, friendship, fundraising, gad, generalised anxiety disorder, grateful, gratitude, heds, horses, hydrotherapy, hypermobile ehlers danlos syndrome, hypermobility, installation, juneberry, language, laptop, learning, maisie peters, mental health, mental health charity, mental illness, mind, nashville, neurodivergent, new puppy, pain, pet, physiotherapy, pomchi, pomchi puppy, pride of cats, puppy, reading, red bull, service dog, sick stories, singer songwriter, singersongwriter, songwriter, songwriting, suicidal, suicidal ideation, suicidal thoughts, suicidal urges, swimming, taylor swift, tens, tens machine, thankful, the good witch, the good witch tour, therapist, therapy, tin pan south, travelling, trigger warning, tw, wedding, writing

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope