Posted on August 27, 2023
TW: Mentions of ableism, severe depression, suicidal thoughts and ideation.
Us international Taylor Swift fans have been waiting for The ERAS Tour to come and visit us for months and finally, we have dates! (Through some bizarre twist of fate, the announcement, the registration, the extra dates announcement, and the opening of resale tickets all occurred while I was at therapy, so I don’t think it would surprise anyone to learn that I rescheduled the sessions that were booked for the days of the actual ticket sales – thank god for my very understanding therapist).
So the tour is coming – possibly the most exciting event of next year – but before I could be excited about that, the ticket sales had to be navigated. And given how horrific the US sale had been, I was – at the very least – very apprehensive. I hoped that, after the previous fiascos, this sale would be smoother but, having witnessed the anxiety and misery and disappointment, I couldn’t help but worry that this sale would be just as bad, with the added hurdle of trying to get accessible seating.
Having pre-ordered the Midnights album during the period in which it granted you a code for tour dates, I had access to the ticket sales a week earlier than the ticket sales for which you had to register. That was definitely helpful, in some ways at least. In the week leading up to this first sale, my Mum and I spoke to the Wembley accessibility people several times, trying to get the most accurate information about getting tickets through them. My Mum had to actually make the calls since making a phone call is something that is a real struggle for me as an autistic person, especially when the phone call has high stakes or I have anxiety about it (I can handle other forms of communication – I just can’t gather enough information from just a voice to keep up a conversation in real time and the anxiety of screwing up just makes the processing worse and the whole thing snowballs until I become non-verbal or descend into a meltdown). So Mum made the phone calls and we tried to get the clearest picture we could, but the information changed with every call and, on the Friday (with the tickets going on sale on Monday morning), they still weren’t sure of anything. They were really only certain of one thing: they were very, very aware of how high the demand was, part of the reason why they were so reluctant to commit to any of the information they did have. It was very stressful and I spent the weekend consumed with anxiety over whether or not I would be able to get tickets to even one show, having hoped to go a couple of times with different friends and family members. The dread I felt at the thought of not getting to go was paralysing.
Most people don’t seem to understand the intensity of my emotions. Technically, it could be part of being neurodivergent or mentally ill but it’s always just felt like part of me: it’s me, hi, I feel everything at 500%, it’s me. I feel every emotion with my whole body; it’s just always been that way. And people have always been weird about it (especially when it comes to loving Taylor actually – I’ve been mocked and harassed for years for being a fan of hers, often for reasons that completely baffle me). It hurts – and that hurt is very intense too – but I’d always rather love things, regardless of what people say. Taylor and her music (and seeing her live) are and always have been so important to me, getting me through hard times and bringing me such life affirming joy; as hard as it can be, it doesn’t surprise me that the thought of not getting to see her live after waiting so long feels like a lifeline being cut.
Monday morning, I woke up so anxious that I couldn’t eat. I couldn’t do anything. When the time came, when the online queue and phone lines ‘opened,’ Mum rang the accessibility number. It rang and rang until it went through to an automated message before hanging up. We tried again. And again and again and again. We kept getting the same message and we were still calling when the queue moved from the first of the Wembley shows in June to the first of the Wembley shows in August in the early afternoon. We were still calling as the clock inched towards five and the closing of the phone lines. I’d been sitting with Mum, unable to do anything and on the edge of the meltdown all day. I was exhausted, in pain, and swinging between misery and rage, in tears over how awful the experience was. It was (and still is) so desperately distressing that it seemed literally impossible to get a ticket for accessible seating, to access the concerts as a disabled person. It just felt – and feels – like yet another part of the world telling us that we’re not worth the effort, that we don’t matter as much as everyone else. It’s a deeply hopeless feeling. And as if the situation wasn’t hard enough on its own, I’ve been struggling with suicidal thoughts and impulses for a while now and between the dwindling possibility of getting accessible tickets and the crushing display of ableism, those thoughts were only getting louder and more difficult to block out.
Tuesday was more of the same, just with an awful day and awful night’s sleep under my belt. Mum and I were glued to the sofa again, calling over and over and over. Morning turned into afternoon, another show disappearing. Wembley Stadium had tweeted a response to the criticism on social media: “Due to unprecedented demand waiting time for Taylor Swift | The Eras Tour Disabled Access is longer than normal. For those unable to wait on the phone we have a call-back system.” Seeing that filled me with the urge to throw my phone across the room: when we’d spoken to them, the ‘unprecedented demand’ was the only thing they had known about. I wanted to scream.
The night before, a friend had suggested looking at Twitter to see if other disabled fans had posted about having a similar experience. I didn’t remember her suggestion until the afternoon but once I did, I went searching and found my experience repeated over and over. On one hand, it was reassuring because I wasn’t alone but on the other, here was this huge number of people who weren’t able to get tickets because Wembley’s accessibility department wasn’t doing its job. I spent the afternoon tweeting back and forth with this group of people: trying to find a better way, sharing different phone numbers that different people had had success with, updating each other on our progress, sharing the successes and the miseries and frustrations. One fan, Faith Martin (she wrote a great piece for Metro about what the experience was like was disabled fans), spent an amazing amount of time trying to help people get tickets, long after she got tickets for herself; I really appreciated her support and encouragement. (I’m sure there were other fans doing this, helping other fans for other UK venues but Faith is the person I saw doing this, the person who helped me.) Having that little community in such a fraught time was comforting; I’ve never had anything like that before.
Eventually, just before the lines closed for the day, we got through and were finally, finally able to get tickets. When my Mum hung up the phone and triumphantly announced that we had tickets, I collapsed back onto the sofa and burst into tears. I was overwhelmingly relieved but also totally overwhelmed by the exhaustion and anxiety making my hands shake, by the excruciating pain in my limbs, back, neck, and skull. But most of all, I was just completely overwhelmed by how hurt I felt by the ableism of the process (especially compared to the ease of the online general ticket sale), by how little my very existence meant to them even though I was paying them for the space I would be inhabiting. God, you know it’s bad when you’re paying to take up space and still no one cares because of the ‘inconvenience’ you present. I was pleased – of course, I was – but all the other big emotions were drowning it out. I knew I’d be thrilled later on, once I’d recovered from the unbelievable stress of those two days.
And it’s true. It took a couple of weeks to fully return to my day-to-day state but now that I have, I am really, really excited. But having said that – and I know I’ll say it a lot over the next year – I still feel hurt by how Wembley handled it all, how they treated their disabled patrons. I’m hurt and I’m angry and if there was anything I could do that would affect any change, that would be more than me simply shouting into the void, then I’d do it. Without a second thought. But if there is, I have no idea what it would be. So here I am, sharing my experience about, if only to remind people that this sort of thing – and worse, of course, much, much worse – happens every day. Even the processes set up supposedly to help us are failing us, and worse, hurting us.
I’ll leave you with what I tweeted after I got my tickets: “I knew that getting #ErasTour tickets would be hard but I didn’t expect the level of ableism. By making it so much harder for us, they’re essentially telling us that we aren’t as important as everyone else, that we don’t matter as much, and that was deeply, deeply upsetting.”
And here are some of the articles that have been written about this, including the experiences of several disabled fans. (Note: please don’t read the comments sections of these articles because the dismissive, ableist bile coming from people – most of whom are totally missing the point – is honestly painful and there is no reason to subject yourself to that if you don’t have to.)
Category: about me, anxiety, autism, chronic fatigue, chronic pain, depression, emotions, family, heds, meltdowns, mental health, music, special interests, suicide Tagged: ableism, ableist, accessibility, accessible seating, anxiety, asc, asd, autism, autism spectrum condition, autism spectrum disorder, autistic, autistic adult, bullying, carer, carer's ticket, chronic fatigue, chronic fatigue syndrome, chronic pain, companion ticket, concert, depression, disability, disabled, disabled access, eds, ehlers danlos syndrome, emotional rollercoaster, enjoyment, eras tour, eras tour 2024, eras tour london, exhaustion, fan, fans, fatigue, fibromyalgia, fun, heds, hypermobile ehlers danlos syndrome, institutional ableism, joy, live music, mental illness, mum, music, pain, phone calls, recovery, rest, safety, special interest, stress, suicidal ideation, suicidal thoughts, swifties, taylor swift, tension, therapy, ticket, ticket sales, tickets, twitter, wembley, wembley stadium
Posted on June 10, 2023
Back in 2018, I wrote a post about travelling as an autistic person and my personal tips for making it smoother and less stressful and anxiety-inducing. In that post, I included:
I still stand by all of these strategies but since then, having travelled more and gained more experience (apart from the lockdown and pandemic times – the latter of which we are arguably still in but obviously travel is now more possible for many, many people), I have more thoughts that I thought might be helpful to share.
FIND A GOOD TRAVEL AGENT – I wrote about talking to a travel agent last time but I wanted to share my personal experience with our travel agent, a guy we first met when we travelled to the US in 2016. Since then, we’ve booked every trip we’ve taken with his help – we go to him for everything – and developed a solid relationship. It really helps, I think, that he has a working knowledge and understanding of Autism so, even though he didn’t know me and my struggles personally, he picked up what I could and couldn’t handle very quickly, which has made things so much smoother than they might’ve been otherwise. He always goes above and beyond for us, something I would attribute to the working relationship we’ve built with him, and I so, so appreciate it.
TAKE INSPIRATION FROM YOUR MOST EXTREME NEEDS WHEN YOU PACK – It’s easy to optimistically assume that you’ll have a normal day every day you’re away but that’s not only unlikely because our minds and bodies don’t cooperate just because we want them to but also because the stress and anxiety of travelling and being in a new, unfamiliar place can do a number on us. I always find being away from home for more than a few days incredibly stressful, which can screw up my energy, my pain, my anxiety, my sensory issues… So packing with bad days in mind is probably a good idea; I’ve started carrying my heat pad (for pain), my joint supports (which I don’t always need but, of course, always seem to need when I’ve left them at home), a number of different fidget toys, medication for migraines (not a super common occurrence but debilitating when they do happen) and so on…
LEARN SOME BASIC PHRASES – If you’re planning to go somewhere where the language is different to that of your home country, it’s definitely worth learning at least a few common phrases. I know this is often considered to be common courtesy and I don’t disagree but when you have a lot of health stuff to deal with or get really overwhelmed in new environments, it’s not that simple; with all of your other preparations, it can just slip down the priority list and then off the list altogether. I recently went to Germany and between the ridiculously long hours trying to get everything done before I left and then the total overwhelm when I got there, I somehow didn’t clock that I didn’t speak any German until a couple of days in. How bizarre is that?! Then, of course, I panicked and did my best to speed learn words and phrases like, “Yes, please,” “No, thank you,” “English please,” “Excuse me,” and “I’m sorry.” Fortunately for me, German isn’t completely alien and the spellings and pronunciations – at least for the simple stuff – are relatively close, or at least they felt that way in my brain. So I picked those up easily, which was a relief. I think that having some language can really reduce your anxiety because you don’t feel so lost (and potentially helpless) and it makes moving around and engaging with where you are a little easier.
ASSISTANCE SERVICES AT THE AIRPORT – I’ve now done multiple trips through airports where we’ve arranged for the assistance services to help us out. So now I get wheeled (in a wheelchair or one of those electric buggies) from check out to not just the gate but down the gangplank to the actual plane. Because I struggle with standing and walking for extended periods of time, this has not only reduced both my pain and fatigue, it’s also reduced my anxiety about the time it takes and the recovery time I’ll need later. Apart from a few mix ups (uncommon but it has happened), they’ve been super efficient and very nice. I’ve found a couple of them to be a bit intimidating but I think that’s just because they’re utterly focussed on the job (and the next one and the next one); no one has ever been anything but polite and even funny. On my recent trip to Germany, one of the women was really, really nice and we had a good laugh despite the language hurdles to navigate. The one confusion that I’ve experienced is that, at some airports (and always in the US), they operate on a tip system but no one’s ever told us that one way or the other. Maybe it’s the straightforward, autistic approach to things but, to me, a service provided by the airport implies that the airport pays them for the work they’re doing but clearly not. So that did take me by surprise and I haven’t always been prepared for that, financially or emotionally.
IF YOU’RE TRAVELLING FOR A SPECIFIC EVENT, FAMILIARISE YOURSELF WITH WHERE YOU ARE AND WHERE YOU NEED TO BE – If you’re travelling for an event like a wedding or a birthday, it’s well worth doing things like checking out and practising the route (or routes you’ll have to travel) so that you know how to get where you’re going and how long it will take. You don’t want to be stressing about being late or getting lost on the important day itself. And if you have to let go of everything else just to make sure that you can attend and engage with the event you’re there for, then that’s what you need to do; it’s hard not to feel guilty or upset about not ‘taking advantage’ of the opportunities that travelling has presented you with but most likely, if you’ve travelled for a particular event, it’s really important to you and has to be your priority. Chances are that you’ll feel better for putting it first.
HYDRATE – If I have learned anything over the last few years, it is how important it is to stay hydrated. We all know this, of course – we’re told often enough that none of us are drinking enough water – but autistic individuals often struggle with it specifically due to problems with our interoception (plus, thirst signals are generally weaker than other internal signals, making them harder to recognise). Being dehydrated can make everything so much harder, causing headaches and exhaustion to name a few, and when you’re away in an unfamiliar place, that’s the last thing you want.
IF YOU HAVE TO GO HOME EARLY, THAT’S OKAY – Sometimes shit happens and plans have to change. And that has to be okay. Whether it’s your physical health, your mental health, something going on at home, sometimes you just have to figure out how to accept the need for change and go home. Sometimes it’s a case of choosing the ‘lesser of two evils’ – staying is hard but so is leaving – and making the choice that feels the most right, even if both of them feel wrong to a certain extent. I usually need some time to come to terms with what the right decision is but then, once I know what I need to do, I just have to figure out how to make it happen.
Friedrichshafen in Germany: Lake Constance (known as Bodensee in German) and some gorgeous flowers I saw. (x)
As always, I feel sure that I’ve missed some. But hopefully these will be somewhat helpful to somebody. If any of you guys have any tips you’d like to share, please stick them in the comments!
Category: anxiety, autism, chronic fatigue, chronic pain, emotions, event, holidays, medication, mental health, tips Tagged: accessibility, actuallyautistic, airport, airport assistance, anxiety, anxiety disorder, asd, assistance, autism, autism awareness, autism resources, autism spectrum disorder, autism tips, autistic, autistic adult, chronic fatigue, chronic illness, chronic pain, dehydration, event, flying, holiday, home, language, meet and assist, mental health, mental illness, packing, tips, travel, travel agent, travel tips, travelling
Posted on April 17, 2023
TW: Mentions of depression, suicidal thoughts, and a school shooting.
I’m still trying to pull together a post about my mental health before I went to Nashville. I was really, really struggling and even though I was still agonising over taking the Phenelzine again, it was this trip that pushed me to do it; I knew I wouldn’t be able to handle it if I didn’t. But I was still struggling with what felt like surrender, like failure, when we left; I was still very depressed and having suicidal thoughts, not even two full weeks in; and I was fighting some pretty intense side effects from the meds throughout the whole trip. It was not an easy time.
GETTING TO NASHVILLE
The travel is usually somewhere between exhausting and a complete nightmare; I think many, many disabled people would say the same thing about travel, especially transatlantic travel. This year, it was hard for all of the reasons that it’s usually hard – I find airports stressful, I’m not a fan of flying, I find the whole experience uncomfortable and actually painful depending on the length of the trip, and so on – but it actually wasn’t terrible. For the first time, I was able to get a direct flight from Heathrow to Nashville and that made such a difference; I’ve always found the changeover and everything that that entails to be a particularly exhausting element of the trip. I didn’t sleep but then the eight hour flight was – the complicatedness of crossing timezones aside – during the day; I even managed to get some work done on the flight, something that I always plan but never achieve. And having the Meet and Assist service at the airports was, as always, a great help, making the whole thing easier, quicker, and less stressful. So it was definitely better than expected.
Unfortunately, I had the worst jet lag I’ve probably ever had going to Nashville. Usually I’m over it in a few days but I was struggling to sleep, waking up at all hours, constantly falling asleep on the sofa, and fighting exhaustion until about the last day. So that was frustrating and made some days more of a struggle than others but fortunately I was able to manage well enough that it didn’t ruin the trip.
THE COVENANT SCHOOL SHOOTING
We weren’t even halfway through our first full day in Nashville when the news of The Covenant School shooting broke.
I’ve spent a lot of time thinking about what to write for this section because, honestly, I’m still processing how I feel about it; it’s been a very overwhelming thing to be even tangentially a part of because things like this just don’t happen at home. At home, you obviously hear about the mass shootings in America and you do stop and think all of the same things – “it’s a tragedy” and “no one should be able to buy automatic weapons” and “how do these awful things keep happening?” – but it’s so, so different to be there when it happens. And not just in America but a neighbourhood or so over from where it happened. (Not to mention that I know people who live around there; I didn’t know if their kids went to that school or whether they had family there.) It was very distressing and I couldn’t help feeling just overwhelmingly hopeless because more people are dead – more children are dead – and nothing will change. I didn’t know what to do with myself and all of my feelings; here were all of these lives being changed forever and I could feel my life being rocked by that. I was really shaken.
The festival hadn’t started yet but the two shows that I had tickets to that night were cancelled and I know that many others were too. I didn’t know what the right thing would’ve been and I didn’t know how I felt about any of it so I was kind of glad that the decision was taken away from me. That night, I ended up staying home and just feeling my feelings before I had to go out and face the world all day everyday for the next week and a half.
The festival itself went ahead, although it seemed that there had been some serious thought about whether or not to cancel at the very least the shows at the beginning of the week. I think that, ultimately, the consensus they came to was that music is a great healer and a great uniter of people and that, of the two options, going ahead was the right choice. Initially, the mood was heavy and somber and everyone performing had clearly thought very seriously about what they were going to play, what energy a song would be putting into the room and how it would impact everyone listening. The shows didn’t suffer for it though, the performances sincere and heartfelt. The mood did lighten somewhat as the week went on but the shooting was clearly still present in everyone’s minds, reflected in their song choices and in the heart they put into their performances. There were some cancellations which was a shame but obviously completely understandable; there was no ill will from anyone.
It was scary, being reminded that anyone could be carrying a gun, and so deeply sad that I’ve only just started to really process it, only just been able to pull the time together to do so. Having said that, it was really quite heartening to hear so many people – in Tennessee, a deeply red state – rage against gun ownership and criticise the country’s approach to gun control, including some who I would’ve assumed felt differently. I know that tragedies like these, especially in communities like Nashville, impassion people but I’m not sure if that would be possible if people were firmly at the other end of the scale.
I’m sure there’s more I could say but, as I said, I’m still working through it all. It’s a lot to process.
TIN PAN SOUTH
Over the years, my motivations behind choosing Tin Pan South rounds have changed. Sometimes I want to see my heroes and want to be inspired; sometimes I want to find new, exciting writers; sometimes I want to see friends who are playing; sometimes there’s a networking aspect; sometimes I want to see writers who’ve been recommended; sometimes it’s a mix. After everything this last year and the stress associated with the trip (and the Phenelzine), I’ve really struggled with music: my love of it, my trust in it. So, this year, I just wanted to go and see people that I knew would put on amazing shows; I wanted to be reminded of how much I love music and how much it means to me. So those were the shows I chose, the ones with people who I knew would blow me away to aid that. And they did.
It was a really, really great year; there were so many amazing people with so many awesome songs, all with interesting and inspiring stories. Listing everyone would take forever so here are a select few that really blew me away, that really made the festival for me…
Honourable mentions to Kassi Ashton, Barry Dean, Nicolle Galyon, Bethany Joy Lenz (she is just a born performer), Jeff Cohen, Ben Earle, Jenn Bostic (what an incredible voice she has), Phil Barton, and Jeffrey Steele. I mentioned many of these in my Nashville Playlist (2023) post.
It was a really amazing year with so many amazing people. I don’t think I can choose a favourite round but my two favourite were the Madeline Edwards round and the round with Michael Logen, Bethany Joy Lenz, Jeff Cohen, Jenn Bostic, and Ben Earle. Those two rounds were just off the freaking charts. All of the rounds were good (even the ‘less good’ ones were still really good – it’s just that the bar for ‘good’ was so incredibly high) but those two were some of the best I’ve ever been to.
TORNADO WARNING
On the Friday night, there was a tornado warning; some of the venues cancelled their shows and the tutors warned us to be home early. None of the locals I spoke to were worried (and neither was I to be honest, having been in town for multiple warnings over the years, all of which came to nothing) but I understand why the tutors were being cautious; even though we’re adults, they do feel some degree of responsibility over us and more so, I think, in potentially dangerous situations that we have no experience of at home, like tornado warnings. So we were encouraged to go home and stay there but those of us who were feeling brave (or just not worried) ended up hanging out together at one of the group’s Airbnbs, having a chill little party. Calling it a party is probably a bit generous given that we just sat in the courtyard in the pre-storm heat, talking shit and having a good time, but it was so nice: at the beginning of the week I’d known one person and there I was, hanging out with a group I was only just getting to know, having a really nice time and just feeling so normal. That was kind of amazing because I never feel normal; I cannot remember the last time I felt normal. So not only was it good fun but that made it yet another special experience in a very special week. Phenelzine was definitely a big part of making that happen but there’s something special about Nashville that has always made things possible for me that I’d never imagined would be.
Even though I wasn’t seriously worried about a tornado, I did keep an eye on the weather and ended up leaving a bit earlier than I otherwise might’ve because things did start to get a bit wild – wind and rain and the air was only getting heavier. I’d been invited to stay but my Airbnb was only a few minutes away so I said my goodbyes and zipped home. Before going inside though, I stood out in the wild weather. It wasn’t any worse than the storms we occasionally get at home and I love storms: there’s something about them that makes me feel so alive, like everything is heightened, like every atom in my body is in tune with the storm. It kind of makes me feel like I have superpowers, like I could control the weather myself; I love it.
So it was actually a really good end to the day and apart from some pretty strong winds and heavy rain, we were all no worse for wear in the morning.
SONG SUFFRAGETTES 9TH ANNIVERSARY SHOW
Song Suffragettes is one of my favourite parts about going to Nashville and getting to go to an anniversary show only makes it more special. They play two shorter rounds instead of the usual longer one, plus they honour an incredible female songwriter with the Song Suffragettes Yellow Rose of Inspiration Award; she gets interviewed by another very cool female songwriter. This year Natalie Hemby (yay!) was being honoured, interviewed by Maggie Rose, so it was a very special show to be at.
The first round was Morgan Johnston, Valerie Ponzio, Carter Faith, Robyn Ottolini, and Shelly Fairchild with Grace Bowers on guitar (she was an incredible, incredible guitarist and that’t not even taking into account how young she is), plus Mia Morris on percussion plus a song of her own. They were all great and I’d seen both Carter and Robyn before when they came to London on the Song Suffragettes tour last year. So it was cool to have some familiar faces and some brand new ones. I wrote about several of the songs played in my Nashville Playlist (2023) post but I want to include my favourites here too. I love Carter’s ‘Leaving Tennesse.’ It’s so gentle and comforting to listen to, simple and sweet but so heartfelt. I wrote in my earlier post that I think the reason it resonates with me so strongly is that, while I’ll likely never be able to live in Nashville – for multiple reasons that aren’t worth getting into here – it does feel like a part of me stays in Nashville every time I go home, a part that I reunite with every time I return. So, in a way, I don’t ever leave Nashville, don’t ever leave Tennessee. I also loved Robyn’s ‘Heart Less’ and I loved the twist in the chorus lyric; it was beautiful and I hope she releases it.
The second round was made up of Jessica Willis Fisher, Carmen Dianne, Haley Mae Campbell, Gina Venier, and Victoria Banks, with Mia on percussion and with her own song on the round. I’ve heard her song, ‘No One Cares,’ but it honestly never gets less funny; it’s so snarky and sarcastic and fun and her ability to play with rhythm, both in her melodies and her instrumentation, is amazing. My two favourites songs of the night are a tie between ‘Giving Up’ by Carmen Dianne and ‘Nora Jane’ by Gina Venier. Carmen was playing bass, which was really cool (the musicianship of this show was the most impressive I’ve ever seen from Song Suffragettes – it was amazing), and her vocals were fantastic. Her song, ‘Giving Up,’ had some really strong parallels to a painful experience I’ve been in but it was really empowering, with compelling lyrics and a bold, rebellious melody; I’m obsessed with it. My other favourite was ‘Nora Jane’ by Gina Venier, a song about the fear of coming out to her family that ends with her family accepting her and her girlfriend fully. It’s a beautifully written song and a story that is still incredibly uncommon in country music; I can see why so many people feel validated by hearing her story and why they feel like she’s telling their story too. I can only imagine how much bravery it took to write and perform this song – with America, the South, Tennessee, ‘Christian Values,’ and so on being the way they are – and so it felt like a real honour to be trusted with her story, with her opening up and being vulnerable.
Then Maggie and Natalie and came out to rapturous applause. Maggie asked a lot of really interesting questions, which Natalie answered, her usual dry, irreverent self; as always, she was full of funny stories, like writing for A Star is Born and a room full of highly successful, highly thought of songwriters all passing on what became ‘Shallow.’ I’ve always loved Natalie for her openness and her sincerity, even though she’s full of jokes and sly humour, and I love that while she is confident in her abilities, there’s no ego: she’ll talk to you and engage with you, especially about songwriting regardless of how ‘good’ you are – you don’t need to be the next whoever to be worthy of her attention. She’s just a lovely, genuine human being – how could you not love her?
After the interview, she played three songs. The first was a new song that was really beautiful. The second was ‘Rainbow,’ which Kacey Musgraves released (the two of them wrote it several years back with Shane McAnally). She’d just played it at the funeral of one of the girls killed in The Covenant School shooting; it was apparently her favourite song. I think, as a song, it’s always meant a lot to her and that has only grown over the years as people have attached their own stories to it. And the third and final song she played was ‘Crowded Table,’ which she wrote with Lori McKenna and Brandi Carlile for her group project with Brandi Carlile, Maren Morris, and Amanda Shires. She started to play it but then changed her mind, unplugged her guitar, and started the song again, climbing down from the stage and walking through the audience as she played. I don’t think I’ve ever seen anyone do that and apparently no one has ever done it at The Listening Room. It was a very sweet, special moment, perfect for the last performance of the trip.
When the show was over, I got to catch up a little with the people I know from Song Suffragettes and I finally got to see Natalie, the two of us not having being able to catch up while I’d been there. We were both just so happy to see each other and it was a really lovely moment. It would’ve been nice to have a bit longer to catch up properly but I’m not complaining; it’s such a long way and a long time between visits that I’m always delighted to see her at all.
OTHER THINGS
GETTING HOME
Despite all of my negative emotions leading up to the trip, I found leaving to be very, very hard, even if I was looking forward to seeing my cats and sleeping in my own bed again. There had been so many magical moments and, for the first time in so, so long, moments of actual joy; I didn’t want to go home, go back to the real world, and lose those. So, yeah, it was just hard.
The Meet and Assist service made the airport experience much easier, as I said earlier and the flight was fine, if quite a bit bumpier than on the way out. We flew direct through the night and luckily, the flight wasn’t full and I managed to lie down with a full row to myself. It still wasn’t hugely comfortable and the sleep I got was more like a series of light naps but it was definitely better than I would’ve gotten had I been sitting up in a single chair. Having said that, being in that one position with my legs bent for so long meant that I almost couldn’t get up when we landed; I’ve never needed the airport wheelchair so much. We had some problems getting a coach back but then finally – finally – we were home. I don’t think I’ve ever been so excited to walk through my own front door (yes, I’m aware of how conflicted my feelings were and are).
I had hoped to go out in the evening – I thought it might actually help stave off the jet lag – but I was asleep within about ten minutes of sitting down on the sofa, where I slept on and off for the rest of the afternoon and evening, despite Mum’s attempts to wake me up. The thought that I’d ever have made it out to London (and back) was laughable by the time I dragged myself up for some food. I just couldn’t keep my eyes open; I was just so unbelievably tired. The nap completely screwed up my sleep schedule (which still hasn’t completely recovered) but the next morning, we retrieved the cats from the cattery, which was wonderful for me even if they were more interested in re-establishing their claim on the garden. I’d missed them desperately so I was delighted to have them around again (and I think they were actually quite pleased to have us back too since they’ve all spent most of the days since in whatever rooms we’re in).
CONCLUDING THOUGHTS
Even though I’ve been back for a couple of weeks, I still feel more than a bit floored by the whole trip. There were obviously the awful parts, like the school shooting, and the big uncertainties, like the tornado warning; I was struggling with my mental health and with the side effects of the Phenelzine and with all of the anxieties that always come with this trip, like plans changing at the last minute and adjusting to the way Nashville does everything compared to how we do them at home; there was the absolute exhaustion of doing so much after having been so flattened by my depression. The bad was bad – and scary and upsetting and overwhelming – but the good was so incredibly good. I got to see and spend time with people that I love; I got to meet and make friends with new, fun people; I got to hear some amazing music; I got to do some cool things that I don’t get to do at home; I got to feel normal; I got to feel joy for the first time in longer than I can remember. The spectrum of emotion was overwhelming and I’m still processing most of it and what it all means to me but I do know that I’m grateful that I got to be there; I will hold onto the memories forever.
This post turned out to be much longer than I intended it to be; I guess I didn’t realise how many thoughts and feelings I had about the different parts of the trip (and there are even more in my diaries!) until I started trying to sum it all up. But this was a really special experience. I couldn’t not write about it, not after everything it gave me.
Category: anxiety, autism, chronic pain, depression, emotions, event, favourites, food, heds, medication, mental health, music, sleep, special interests, suicide, university, video, writing Tagged: accessibility, airport, america, anxiety, asd, autism, autism spectrum disorder, cassidy daniels, depression, disabled accommodation, flying, friends, jet lag, lori mckenna, madeline edwards, medication, michael logen, nashville, nashville songwriters association international, nashville tennessee, natalie hemby, nsai, pancake pantry, phenelzine, school shooting, seth ennis, side effects, singersongwriter, skip black, song suffragettes, song suffragettes yellow rose of inspiration award, songwriter, songwriters festival, songwriting, tennessee, the candle bar, the covenant school shooting, tin pan south, tin pan south 2023, tin pan south songwriters festival, tornado warning, travel, trigger, trigger warning, tw, university, usa

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope