Posted on December 15, 2019
If you guys follow me on social media, you’ll know that this week, I posted about going back to therapy and being rediagnosed with OCD…
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So, that basically explains what’s been going on with therapy (I’ll update you on all of that as I continue with therapy) but I wanted to talk a bit more about the OCD diagnosis because that’s kind of a big deal.
Back in 2016, I was diagnosed with depression, anxiety, social anxiety, OCD, and BPD. And then I was diagnosed with ASD. But in the last year, my psychiatrist reorganised my diagnoses and decided that the symptoms he’d originally seen as OCD fell under some of the other diagnoses, particularly the ASD. But recently, it’s become very clear that it really is OCD.
If you remember this post, I talked about having a massive meltdown, which triggered daily, multiple meltdowns. It was awful and one of the most difficult periods of my life, mental health wise and otherwise: dealing with that and trying to manage the beginning of a Masters. It was pretty hellish. I’m not sure when it stopped but it slowly faded and I’m now only having a meltdown every couple of weeks or so – still a bit more than usual but much more manageable.
But that really triggered something in my obsessive diary writing. My diary writing has been pretty compulsive for years: I NEED to write everything down. It’s like, if I don’t record everything that happens to me, I’ll forget who I am. It’s a constant battle, but it suddenly went from manageable to completely overwhelming. It takes up all my time or it would if I didn’t have all this research to do for my Masters. So these two things are constantly pushing up against each other, which causes me a lot of anxiety. But the diary writing usually wins, which only causes me more anxiety, anxiety that I’m going to do badly in my Masters. And even though I know all of this, I still can’t stop writing. And because there’s more life than there is time to write, I’m just getting more and more behind. More anxiety. So I’m just a big ball of anxiety. It’s like a snowball rolling down a hill, getting bigger and bigger and going faster and faster.
It took forever to get an appointment with my psychiatrist (so the anxiety has gone on a lot longer than was necessary or fair, in my opinion), but eventually I got an appointment. And of course, the time was then changed last minute, the sudden change of plan sent me spiralling into a meltdown. So it took a long time but I finally saw him and we talked about all of this in great detail and he decided to re-diagnose me with OCD. I’m so relieved because now it has edges; it’s not some vague, amorphous cloud of stress hanging over me. A diagnosis gives me something to work with.
We talked about the treatment options, medication and therapy. Medication wise, I’m already taking the things he would recommend so that’s that avenue covered. I don’t know much about the therapy route yet. As far as I know, I’ll have to reduce the writing bit by bit, which – in itself – is going to create more anxiety. Hurray. Not. It’s the whole ‘it’s gotta get worse before it gets better.’ But now I’m back in therapy and I have an amazing therapist so although I’m terrified of even more anxiety, I know I’ll have thoughtful, compassionate guidance. I don’t know when we’ll start because, as my psychiatrist pointed out, right before a set of assessments isn’t necessarily the most productive or helpful time to do this sort of stuff. But even though I’m scared, I need to start working on this soon or every semester is going to be like this one: a daily battle of OCD versus real life. And I really, really don’t want that.
Category: animals, diagnosis, medication, mental health, therapy, treatment, university, writing Tagged: anxiety, asd, autism, autism spectrum disorder, dbt, dialectical behaviour therapy, masters, masters degree, masters degree in songwriting, meltdown, meltdowns, obsessive compulsive disorder, ocd, psychiatrist, therapist
Posted on August 10, 2019
Autism is not always the easiest thing to understand. That’s okay. I’m autistic and I don’t always understand it. And that’s why words are wonderful: because they can help us make sense of things we don’t understand. The right words can show you a whole new side of something. That’s why I write this blog.
But for now, I thought I’d have a look at some of the most common analogies for Autism:
Possibly the most common analogy is the comparison of computer operating systems. Being autistic is being a Mac in a world of PCs. Ultimately they do the same thing but there are real differences that put them apart. Not all of the software is compatible, which causes problems when interfacing; you have to learn both to communicate smoothly. Functions require different commands on the keyboard or are found in different menus. To a PC, a Mac is weird and other but it’s just a different operating system. It’s also worth pointing out that the metaphor extends in that both PC and Mac can get viruses as both neurotypical and autistics can have mental illnesses. Mental illness and Autism are not synonymous and it’s important that that is always made clear.
Another analogy I’ve recently come across is being a cat in a room full of dogs. In an attempt to fit in, you try and join in, playing and running after sticks. But none of these things feel natural and in reality, you’d rather do your own thing (or sleep). And you only want attention on your terms. You are obviously not a dog, but that doesn’t mean you can’t get on with dogs; it just takes a bit of patience.
A good analogy for day-to-day life as an autistic person is the coke can analogy. Throughout the day, each task, each thing that requires concentration and energy, shakes the coke can a little. Over the day, that builds and builds until you’re just trying to keep it from exploding, at least until you get home. Sometimes you can release the fizz slowly but sometimes it’s all too much and the can explodes, resulting in a meltdown.
So far these are all I’ve found that make sense to me although I’m sure there are more out there. How do you explain or describe Autism? Do you use variations of these ones or do you have entirely different ones?
Category: autism Tagged: analogy, asd, autism, autism analogies, autism analogy, autism spectrum disorder, describing, describing autism, metaphor, metaphors
Posted on July 13, 2019
Hi guys.
I’m sorry for my extended absence. I never meant to abandon the blog; it’s just been a really, really tough month. I’ve been taking the new medication (or old medication – Phenelzine), which seems to have had no effect other than to upset my stomach. But I’m trying not to give up hope just yet. One of my cats had kittens, which has been incredibly stressful. My depression has reached new lows and I actually started to find it difficult to think at all: sentences would not finish in my brain. It was frustrating and very distressing. I’ve also had quite possibly more meltdowns in the last month than I have had in the previous six. So it’s been hard and writing has just felt impossible. I couldn’t put what I was feeling into words and I didn’t feel like I had anything useful to say, anything anyone wanted to hear.
I don’t quite know what happens now. I love this blog dearly so I have no intention of abandoning it but you may have to be gentle with me as I try to get back to writing. I’m doing my best, I promise.
Category: about me, medication, mental health, treatment Tagged: asd, autism, autism spectrum disorder, blogging, depression, meltdown, meltdowns, mental health blog, mental health blogger, phenelzine, writing

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope