Posted on November 30, 2023
I really enjoyed doing the photo challenge in September so I couldn’t resist doing another one. It’s been a weird month though; I don’t know if I would’ve committed to it had I known what the month would hold, how exhausted and burned out I’d feel, but once I’d decided to do it, I had to follow through. Between how tired and how focussed on my current writing I’ve been, there haven’t been many opportunities to take unique or exciting photos but I’ve done my best. So here is my November 2023 in photos, as prompted by the Planner & Paper photo challenge on Instagram, Life in Pockets…
1. Thankful for…
How could I not be thankful for this gorgeous little bean? She’s soft and warm and snuggly and she adores me as much as I adore her.
2. Home Decor
My favourite room in my house is the living room and that is largely due to the fairy lights that we hung around the room a few years ago. They give the room a soft, warm glow and it always feel inviting and safe. Sometimes I put them on during the day, regardless of the light level, because it just gives me a little boost to look at them.

3. Selfie
I rarely take selfies anymore, especially alone. I just really don’t like looking at myself if I’m completely honest. But I have taken a few while holding Izzy, if she’s doing something particularly cute, like she did in this moment: falling asleep on my chest and tucking her face into my neck. It was too adorable not to take a photo of.

6. Home Project
I don’t have a home project exactly but my current self-care-craft-project-sort-of-thing is making bracelets, inspired by The Eras Tour. There’s just something really soothing about the repetitive motion, about making something – even something this simple – with my hands.

8. While I’m At Work
If I flip down the lid of my laptop where it sits on my little sofa table, this is my view: Izzy curled up on or against me, a cat or two on various soft surfaces, and sometimes my Mum working similarly. It’s a very companionable, pleasant way to work.

9. Something Not So Fun
After several days of feeling pretty unwell, I took a COVID test. I’d thought it was just exhaustion and over-exertion after a very intense week with a lot of travel and late nights but then I developed a sore throat so I took a test straight away. I don’t love the sensations involved with taking a test – I’m pretty used to them at this point – but then the first test came back void and I had to do it all again; I was not impressed by that and neither were my sore throat and sinuses. It was, of course, worth it: I was negative and while I still had to be careful – I was still sick after all – I was relieved that it wasn’t anything as serious as COVID.

10. Out The Window
Okay, I’m cheating a bit because I didn’t take this photo on the tenth but it is honestly the greatest thing I’ve ever seen outside of my house. How could I not share it?! Not only is the name hilarious for a waste clearance company, but the tag followed by the phone numbers is so fucking funny. Apparently The Lord of the Rings franchise have sent them cease and desist letters and they’re now in litigation: they have to change the colour if they want to keep everything else. That seems ridiculously petty – and pretty pathetic, lacking all sense of humour – for such a wealthy franchise. I’m glad they’re getting to keep everything but the colour because it genuinely made my day.

12. Your Choice!
We had our first evening at puppy school! We met some gorgeous puppies (I’m pretty sure Izzy is still the smallest though) and learned some basic skills, including settling on a blanket, recall training, and the beginnings of walking on a lead. Izzy was picking it up very quickly but she was definitely ready to go home at the end: concentrating for that long was understandably hard for a young puppy and she was quite clearly getting overwhelmed by all of the other dogs. She’s really good at meeting new people but meeting dogs makes her anxious, which doesn’t really surprise me since almost all of them are bigger than her. Anyway, she did well and we have some exercises to practice before next week’s class.

15. A Hug
That day I was working at home, alone, all day so there was no one to hug. Well, no people. Izzy was very snuggly and, as afternoon turned into evening, she climbed on top of me – while I was sitting at my laptop – and curled up on my shoulder. I ended up sliding down to accommodate her and she fell asleep like that. It was so cute that I couldn’t help myself: I stopped working and just stroked her, almost drifting off myself.

17. Your Choice!
I had a session with Richard – Richard Marc, one of my best friends and favourite cowriters, as well as my producer – and we worked on some of the songs for my next project. I’m so excited about it and so keen to get it out in the world; I’m trying my hardest not to let my passion for it burn me out before that point BUT I’M JUST SO EXCITED.

18. Comfy
I feel so lucky that Izzy and I have such a strong, close bond and that she wants to spend so much time as close to me as possible. It’s so cute and I always feel better for it. An extra joy of it is that I catch every adorable or ridiculous position that she adopts, like this snuggle with her toy elephant, Nellie.

21. Preparation
While I love the flexibility of my bullet journal – how I can customise it to exactly what I want or need – drawing it out every month can get a bit tedious. And it doesn’t help that Izzy keeps stealing my pens and then chewing them to death. But it can be quite meditative, if I haven’t left it to the absolute last minute that is.

23. Thankful
The night before, I played a set at a local gig and I had such a good time. As anxious as I can get beforehand and despite how much pain I tend to find myself in afterwards, I love performing so much. I love playing the songs I’ve written – songs that I love so deeply – and sharing them with new people. And it’s so special when people reach out to tell me why they connect to them. Even though I often struggle with not being further along the path than I am, I’m so thankful that I get to do this at all. There’s nothing I love more.
24. Family
Given that my actual family is somewhat scattered at the moment, I thought I’d post about my cats, my gorgeous family of cats. I haven’t seen as much of them as usual because all but Lucy are keeping their distance, still wary of Izzy; Lucy isn’t phased but then she has already bent Izzy to her will. The others are getting bolder but it’s a slow process. At this time of year, they’d usually be draped around the living room so I am really missing them, just having them around. So this little moment with all of them was very nice.

25. Sleep
God, I’ve been so tired this month. I’ve been falling asleep constantly, regardless of where I’m sitting or what I’m doing (now if only I could sleep properly at night). And Izzy, the little sweetheart that she is, is always desperate to snuggle up, to get as close as possible. Hence these pictures. And while they’re very cute, she does actually help me sleep; soft and warm and breathing steadily, she’s better than any weighted blanket.
26. Self Care
While going to the pool for a swim and my hydrotherapy exercises is good for my body, it’s also really good for my mental state. I know that a big part of that will be due to the endorphins from the exercise but I do think that there’s more to it: I’ve always loved the feeling of being in the water but it’s also such a relief to be able to move around without pain, something that just feels so glorious and freeing. I think there’s also some self esteem stuff going on, being able to exercise and get stronger after feeling so physically incapable and broken. But now I’m actually getting fitter and stronger, which I feared I would never be able to do without serious discomfort, pain, and distress. So the pool represents a lot of things to me and swimming really lifts my mood.

27. Weather
We’ve had some amazing weather recently, from glorious sunshine to torrential rain. I’ve seen multiple rainbows and several beautiful sunsets. It’s been a stunning November. This was my second favourite sunset, recently at least.

30. Self Care
While spending time with my cats is always good for my soul, it’s particularly special right now: the cats have – unsurprisingly – been avoiding the whirlwind that is Izzy and, since she’s usually with me, I haven’t been seeing them much. Not to snuggle with, at least. But they are getting braver and although Lucy doesn’t take any shit from her, she’s reluctant to get close enough to me to cuddle if Izzy’s around. But there have been a couple of occasions recently – when Izzy has been hanging out with Mum – where Lucy has taken advantage of the moment and curled up with me, which have just been gorgeous. Running my hands through her fur and listening to her purring, I can feel an internal meter filling up.
* Bonus: In The Distance
Up in London, I was walking back along the Southbank and everything was lit up and beautiful. The London Eye usually is, as far as I know but the lights in the trees and between buildings were stunning and there’s different pieces of art and installations everywhere. I love it.
As well as the lights in these pictures, there was a strip of rainbow neon along the bridge and there were lights spelling out ‘PROUD’ underneath, visible to boats and people walking by. I tried to get a picture but I couldn’t get anything unobstructed by various parts of the bridge.
Unsurprisingly, this month’s photos feature Izzy heavily: between all of the time I’ve spent writing, sitting at my laptop with Izzy curled up against me, and the fact that she’s still very young and thus needs a lot of supervision, she’s been a very obvious subject for my photos. I also haven’t done much outside my normal routine this month – having had so much work to do and having felt so tired and burned out – so there haven’t been many exciting opportunities for new and interesting pictures. But, as I said, I tried my best and hopefully the adorable puppy pictures make up for the lack of variation…
Category: about me, animals, body image, chronic fatigue, chronic pain, covid-19 pandemic, emotions, event, exercise, family, favourites, heds, hydrotherapy, mental health, music, sleep, special interests, writing Tagged: 30 day challenge, actuallyautistic, art, art installation, asc, asd, autism, autism spectrum condition, autism spectrum disorder, autistic, autistic adult, bracelets, bullet journal, cat, cats, challenge, chronic fatigue, chronic pain, covid, covid test, covid-19, crafts, dog, eds, eras tour, fairy lights, family, friends, friendship bracelets, friendships, funny, gig, gigging, grateful, heds, hydrotherapy, hydrotherapy exercises, hypermobile, hypermobile ehlers danlos syndrome, hypermobility, ill, installation, live music, london, new puppy, november, november 2023, organisation, performing, pet, pets, photo challenge, pomchi, pool, producer, production, puppy, richard marc, self care, selfie, showcase, sick, singersongwriter, songwriting, southbank, sunset, swim, swimming, swimming pool, thankful, the eras tour, the lord of the bins, the lord of the rings, weather, work from home
Posted on August 27, 2023
TW: Mentions of ableism, severe depression, suicidal thoughts and ideation.
Us international Taylor Swift fans have been waiting for The ERAS Tour to come and visit us for months and finally, we have dates! (Through some bizarre twist of fate, the announcement, the registration, the extra dates announcement, and the opening of resale tickets all occurred while I was at therapy, so I don’t think it would surprise anyone to learn that I rescheduled the sessions that were booked for the days of the actual ticket sales – thank god for my very understanding therapist).
So the tour is coming – possibly the most exciting event of next year – but before I could be excited about that, the ticket sales had to be navigated. And given how horrific the US sale had been, I was – at the very least – very apprehensive. I hoped that, after the previous fiascos, this sale would be smoother but, having witnessed the anxiety and misery and disappointment, I couldn’t help but worry that this sale would be just as bad, with the added hurdle of trying to get accessible seating.
Having pre-ordered the Midnights album during the period in which it granted you a code for tour dates, I had access to the ticket sales a week earlier than the ticket sales for which you had to register. That was definitely helpful, in some ways at least. In the week leading up to this first sale, my Mum and I spoke to the Wembley accessibility people several times, trying to get the most accurate information about getting tickets through them. My Mum had to actually make the calls since making a phone call is something that is a real struggle for me as an autistic person, especially when the phone call has high stakes or I have anxiety about it (I can handle other forms of communication – I just can’t gather enough information from just a voice to keep up a conversation in real time and the anxiety of screwing up just makes the processing worse and the whole thing snowballs until I become non-verbal or descend into a meltdown). So Mum made the phone calls and we tried to get the clearest picture we could, but the information changed with every call and, on the Friday (with the tickets going on sale on Monday morning), they still weren’t sure of anything. They were really only certain of one thing: they were very, very aware of how high the demand was, part of the reason why they were so reluctant to commit to any of the information they did have. It was very stressful and I spent the weekend consumed with anxiety over whether or not I would be able to get tickets to even one show, having hoped to go a couple of times with different friends and family members. The dread I felt at the thought of not getting to go was paralysing.
Most people don’t seem to understand the intensity of my emotions. Technically, it could be part of being neurodivergent or mentally ill but it’s always just felt like part of me: it’s me, hi, I feel everything at 500%, it’s me. I feel every emotion with my whole body; it’s just always been that way. And people have always been weird about it (especially when it comes to loving Taylor actually – I’ve been mocked and harassed for years for being a fan of hers, often for reasons that completely baffle me). It hurts – and that hurt is very intense too – but I’d always rather love things, regardless of what people say. Taylor and her music (and seeing her live) are and always have been so important to me, getting me through hard times and bringing me such life affirming joy; as hard as it can be, it doesn’t surprise me that the thought of not getting to see her live after waiting so long feels like a lifeline being cut.
Monday morning, I woke up so anxious that I couldn’t eat. I couldn’t do anything. When the time came, when the online queue and phone lines ‘opened,’ Mum rang the accessibility number. It rang and rang until it went through to an automated message before hanging up. We tried again. And again and again and again. We kept getting the same message and we were still calling when the queue moved from the first of the Wembley shows in June to the first of the Wembley shows in August in the early afternoon. We were still calling as the clock inched towards five and the closing of the phone lines. I’d been sitting with Mum, unable to do anything and on the edge of the meltdown all day. I was exhausted, in pain, and swinging between misery and rage, in tears over how awful the experience was. It was (and still is) so desperately distressing that it seemed literally impossible to get a ticket for accessible seating, to access the concerts as a disabled person. It just felt – and feels – like yet another part of the world telling us that we’re not worth the effort, that we don’t matter as much as everyone else. It’s a deeply hopeless feeling. And as if the situation wasn’t hard enough on its own, I’ve been struggling with suicidal thoughts and impulses for a while now and between the dwindling possibility of getting accessible tickets and the crushing display of ableism, those thoughts were only getting louder and more difficult to block out.
Tuesday was more of the same, just with an awful day and awful night’s sleep under my belt. Mum and I were glued to the sofa again, calling over and over and over. Morning turned into afternoon, another show disappearing. Wembley Stadium had tweeted a response to the criticism on social media: “Due to unprecedented demand waiting time for Taylor Swift | The Eras Tour Disabled Access is longer than normal. For those unable to wait on the phone we have a call-back system.” Seeing that filled me with the urge to throw my phone across the room: when we’d spoken to them, the ‘unprecedented demand’ was the only thing they had known about. I wanted to scream.
The night before, a friend had suggested looking at Twitter to see if other disabled fans had posted about having a similar experience. I didn’t remember her suggestion until the afternoon but once I did, I went searching and found my experience repeated over and over. On one hand, it was reassuring because I wasn’t alone but on the other, here was this huge number of people who weren’t able to get tickets because Wembley’s accessibility department wasn’t doing its job. I spent the afternoon tweeting back and forth with this group of people: trying to find a better way, sharing different phone numbers that different people had had success with, updating each other on our progress, sharing the successes and the miseries and frustrations. One fan, Faith Martin (she wrote a great piece for Metro about what the experience was like was disabled fans), spent an amazing amount of time trying to help people get tickets, long after she got tickets for herself; I really appreciated her support and encouragement. (I’m sure there were other fans doing this, helping other fans for other UK venues but Faith is the person I saw doing this, the person who helped me.) Having that little community in such a fraught time was comforting; I’ve never had anything like that before.
Eventually, just before the lines closed for the day, we got through and were finally, finally able to get tickets. When my Mum hung up the phone and triumphantly announced that we had tickets, I collapsed back onto the sofa and burst into tears. I was overwhelmingly relieved but also totally overwhelmed by the exhaustion and anxiety making my hands shake, by the excruciating pain in my limbs, back, neck, and skull. But most of all, I was just completely overwhelmed by how hurt I felt by the ableism of the process (especially compared to the ease of the online general ticket sale), by how little my very existence meant to them even though I was paying them for the space I would be inhabiting. God, you know it’s bad when you’re paying to take up space and still no one cares because of the ‘inconvenience’ you present. I was pleased – of course, I was – but all the other big emotions were drowning it out. I knew I’d be thrilled later on, once I’d recovered from the unbelievable stress of those two days.
And it’s true. It took a couple of weeks to fully return to my day-to-day state but now that I have, I am really, really excited. But having said that – and I know I’ll say it a lot over the next year – I still feel hurt by how Wembley handled it all, how they treated their disabled patrons. I’m hurt and I’m angry and if there was anything I could do that would affect any change, that would be more than me simply shouting into the void, then I’d do it. Without a second thought. But if there is, I have no idea what it would be. So here I am, sharing my experience about, if only to remind people that this sort of thing – and worse, of course, much, much worse – happens every day. Even the processes set up supposedly to help us are failing us, and worse, hurting us.
I’ll leave you with what I tweeted after I got my tickets: “I knew that getting #ErasTour tickets would be hard but I didn’t expect the level of ableism. By making it so much harder for us, they’re essentially telling us that we aren’t as important as everyone else, that we don’t matter as much, and that was deeply, deeply upsetting.”
And here are some of the articles that have been written about this, including the experiences of several disabled fans. (Note: please don’t read the comments sections of these articles because the dismissive, ableist bile coming from people – most of whom are totally missing the point – is honestly painful and there is no reason to subject yourself to that if you don’t have to.)
Category: about me, anxiety, autism, chronic fatigue, chronic pain, depression, emotions, family, heds, meltdowns, mental health, music, special interests, suicide Tagged: ableism, ableist, accessibility, accessible seating, anxiety, asc, asd, autism, autism spectrum condition, autism spectrum disorder, autistic, autistic adult, bullying, carer, carer's ticket, chronic fatigue, chronic fatigue syndrome, chronic pain, companion ticket, concert, depression, disability, disabled, disabled access, eds, ehlers danlos syndrome, emotional rollercoaster, enjoyment, eras tour, eras tour 2024, eras tour london, exhaustion, fan, fans, fatigue, fibromyalgia, fun, heds, hypermobile ehlers danlos syndrome, institutional ableism, joy, live music, mental illness, mum, music, pain, phone calls, recovery, rest, safety, special interest, stress, suicidal ideation, suicidal thoughts, swifties, taylor swift, tension, therapy, ticket, ticket sales, tickets, twitter, wembley, wembley stadium
Posted on May 13, 2023
So yesterday was the 12th of May, also known in the UK as Mass Observation Day! Every year, the Mass Observation Archive asks people to keep a diary for the day in order to record the everyday lives of the UK population. I’ve been keeping diaries for most of my life and I think that the idea of pulling together all of these accounts in order to get a picture of an ordinary day in the life, whatever that might look like, for a big group of people is really, really cool so I always try to participate. Here is my contribution for this year.
Some important things to know before reading: I’m neurodivergent, autistic and ADHD, and struggle with multiple mental health issues (Depression, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, and Borderline Personality Disorder) and physical health problems (Hypermobile Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome). Having spent eighteen months in the worst depressive episode of my life, I’m recently back on medication and trying to get my feet under me again, working hard at both therapy and hydrotherapy. I’ve also recently released my latest single as a singersongwriter, ‘House on Fire,’ and am working towards several other projects.
I slept through two alarms, completely exhausted. I’d had a really late night in London seeing Ingrid Andress in concert (supported by Nick Wilson), which was absolutely amazing but between the energy expended and how late I got home, I was beyond tired.
When I finally managed to force myself awake around eleven, I lay in bed for a little while: I did a quick check in with social media (I’m trying really hard to find a healthy balance around time on my phone), did some Duolingo practice, and read a little bit of my book (both of these things are habits that I’m trying to practice daily). Then I got up and got ready for the rest of the day.
At one, I had a Zoom date with one of my best friends. We had a good catch up about what’s being going on for each of us, with many a tangent on kind of bizarre topics like alternate universes or the different sounds that insects make. And then we continued watching the TV series we’ve been watching together for the last few months, a series we both enjoyed when we were younger; we love it but we also love making fun of it so we always have a blast. We managed to watch two episodes and had a great time before I had to go. I didn’t have long before my therapy appointment so I got my bag ready and then fiddled around on my guitar until I had to leave (I haven’t been able to play for long stretches of time recently since I hurt a couple of my fingers so I’m trying to build it up again).
I was so tired and really sleepy (one of the ongoing symptoms of my health struggles and quite likely a side effect of my medication), plus my chronic pain was pretty bad (my shoulder and knee have been particularly painful for several days now), but I tried my best to push through and engage the best I could with therapy. In some ways, it was a fairly chilled session (as they go): my therapist had asked me to send her the poetry I’ve been working on over the last month or so, which I did. But it was also hard and I felt really vulnerable because most of the poems are so honest and so revealing. There were some that I said, before we even started, that I couldn’t talk about; just writing about those topics and sharing them (my anxiety about them was so high that I was really tempted to leave them out) was a big step forward. Obviously I want my therapist to know about these struggles but talking about them is beyond difficult (just the thought of it makes me want to scream or run or both); this is the best I can do for now. So we went through the poems, talking about what inspired them and my feelings about those people or experiences or struggles, which inevitably turned into bigger discussions. That meant that we didn’t get through all of them but we did cover some important stuff. I’ve been back at therapy for a while now – several months – but my new therapist is still getting to know me and I’m still getting comfortable with her; there are many things that I can talk about but there are still things that I can’t, things that I’ve never been able to. It’s a process, as I often have to remind myself.
Back home, I talked with my Mum about some of the stuff that had come up in the session but I’m always completely exhausted after therapy – I have been known to fall asleep on the sofa afterwards, hence the late afternoon appointments – so I checked in with the cats, put on The Good Place (my current rewatch), and lay on the sofa for a bit. I called one of my parents for a catch up, had some dinner, and then spent the rest of the evening working on some different things for this blog.

What should’ve been a fairly pleasant evening was complicated a bit by how bad my hair pulling has gotten. That restless, anxious energy that drives me to keep doing it is so hard to resist, especially when I’m tired, and the longer I do it, the more it hurts: my scalp, my neck, my shoulder, my elbow, my hand. But I can’t stop. There have been periods of time where different coping mechanisms have at least reduced the amount of hair pulling but I don’t have one that’s working right now. It’s frustrating and it’s exhausting and painful but I just can’t stop, regardless of how much I want to. I did look into Hypnotherapy briefly a long time ago but didn’t get very far with that endeavour, maybe because it always felt like there were bigger things going on, but maybe I’ll try again because it’s been ten years and it would be really nice not to do this anymore.
Given how tired I was, I tried to go to bed earlier – I’ve been going to bed far too late – and while I did go to bed a bit earlier, I still ended up staying up too late, catching up with my diary. I had multiple cats curled up with me, which was very sweet, so it could’ve been worse and, after all of my problems with sleep, I did at least go to sleep quickly and easily; I’m always grateful for that now, having struggled so much over the last couple of years.

So it wasn’t the most fascinating day of my life but it’s pretty accurate to my life right now and I guess that’s the point of the exercise. It’s a normal day in my life and this is what normal looks like right now, for the most part.
If you keep a diary or want to note down some thoughts about what your 12th of May looked like, the website is here, where you can learn more about this project (and their other work) and submit your entry if you would like to.
Category: animals, anxiety, chronic fatigue, chronic pain, depression, emotions, family, food, medication, mental health, music, response, special interests, therapy, trichotillomania, writing Tagged: 12th may, anxiety, best friend, chronic fatigue, chronic pain, concert, depression, fatigue, friend, hair pulling, house on fire, independent artist, ingrid andress, live music, mass observation, mass observation archive, mass observation day, mass observation day 2023, mental health, music, new music, new therapist, nick wilson, pain, poetry, singersongwriter, songwriter, songwriting, the good person tour, therapist, therapy, trich, trichotillomania, writer, writing, zoom

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder, ADHD, OCD, CPTSD, depression, and anxiety, as well as other health issues including hEDS and POTS.
I’m an alt-pop singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) and my most recent EP, Too Much And Not Enough, Vol. 1, is available on all music platforms and is the first in the series of works based on my experiences as an autistic person.
Finding Hope