Posted on October 31, 2021
Not long after I learned that October is ADHD Awareness Month, I saw this challenge on Twitter and you know me, I love a good challenge.
I thought it would be annoying to post something every day, especially since I knew just from looking at the prompts that there would be days when I didn’t have much to say, so I decided to do the month as one self-contained post. Having ADHD and everything that comes with that… it’s all still relatively new and I’m still trying to figure it all out, especially considering the crossover with autistic traits. I thought that, maybe, this might help with gaining a better understanding of ADHD and how it affects me individually.
So, here we go…
Day 1 – Introduction
If you’ve been reading my blog for a while, you may know some of this stuff already so bear with me…
My name is Lauren Alex Hooper and I’m a twenty seven year old woman (I use she/her pronouns), although I’m not really sure how I identify in terms of gender and sexuality; up to now, all of my energy has been spent on figuring out and managing my health so there hasn’t really been the time to explore that area of my identity. Between the ages of twenty and twenty six, I was diagnosed with Autism Spectrum Disorder (ASD), Attention Deficit Hyperactivity Disorder (ADHD) (Inattentive Type), Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Tachycardia Syndrome (POTS), Treatment Resistant Depression (TRD), Generalized Anxiety Disorder (GAD), Obsessive Compulsive Disorder (OCD), and Borderline Personality Disorder (BPD). These conditions all affect me daily and I live with both chronic pain and chronic fatigue, believed to be due to my hEDS. Given the often overwhelming challenges that these all present, I’m still living at home with my Mum and our family of five cats (made up of three generations). Two of my other parents live nearby, with my fourth parent in London. My younger sibling, Charlie – who is an amazing artist of many disciplines – is also based there.
In roughly the same time period, I completed a BA and an MA in Songwriting, my biggest and most enduring special interest. In 2018, I released my debut single, ‘Invisible,’ a song that documents my struggle to be seen and heard as I tried to get help for my mental health and ASD; I’m incredibly proud of that song and all of the proceeds go to YoungMinds, a charity supporting young people with their mental health. Then, in 2019, I began the release cycle of my debut EP, Honest, which was completed in late 2020 (delayed somewhat by the pandemic). The EP is a collection of my experiences with mental health, centered around the idea that things only really got better when I started being open and honest about what I was going through. As of October 2021, this little, self released EP that was made in various bedrooms has reached over 120,000 streams with a limited run of physical copies on sale at Resident Music, THE independent music shop in Brighton (UK), where I live. It’s been an absolute rollercoaster but I’m really proud of it and all it’s achieved. And now, with that era all but wrapped up and my Masters done, I’m working on several new projects, including an album about my experiences as an autistic woman.
Day 2 – What I love about being an ADHDer is…
Given the overlap between Autism and ADHD, I’m not entirely sure where which traits come from, if it’s possible to really separate them. I’ve done some research and it seems that there’s too much overlap to truly say that one trait belongs to one and not the other but the following things are what seem to commonly come up in relation to the positives/strengths of ADHD…
I have to say I’m not wild about the term ‘ADHDer.’ It feels very clumsy. It also feels a bit like something I actively participate in, like I chose it, like I’m saying, “I’m a runner,” or “I’m a painter.” I don’t know; I’m not convinced by it as an identifier.
Day 3 – My Identification/Discovery Story
I was being assessed for hypermobility (and was subsequently diagnosed with hEDS) and at the end of the session, it came up in conversation that I was thinking about getting tested for ADHD (I’d been researching the ways I’d been struggling and ADHD had come up as a possibility, which I know often occurs alongside Autism) and the consultant said that she was qualified to do that so we could schedule an assessment if I wanted to. So we did and a few months later, I was diagnosed with Inattentive ADHD.
Day 4 – Reactions to Identification
Since this is just another step on my journey of trying to make sense of myself and why I struggle the way I do, I haven’t really felt the need to make an announcement or anything like that. I told my family and friends, of course, and I’ve brought it up when necessary, like when trying to get accommodations at uni, but otherwise it hasn’t been been a huge thing, not like discovering I was autistic was. So everyone’s just kind of taken it in stride, adding it to their picture of me – those who know about it anyway.
Day 5 – Hobby Graveyard
I’ve never really thought of moving on to a new hobby as leaving them in a ‘hobby graveyard.’ I’ve always felt like it was more that I was prioritising certain stuff or that I was just finding my way to more ‘suitable’ hobbies. Technically, yes, I have multiple hobbies that I’ve stopped doing but rarely because I got bored of them and more because I evolved away from them. But here are some of my past hobbies…
That’s all I can think of off the top of my head. I still love most of these things but I just can’t physically do all of these hobbies: I don’t have the time, they’re expensive, and there are other things I love doing more. But hopefully I can come back to them one day in some way or another.
Day 6 – Supports and Appreciation
I am super lucky to have a lot of great people in my corner. I have a wonderful, close-knit family who have all been deeply supportive; not only have they all been great in general but they’ve all been so incredibly helpful in different areas of my life over the years. I can’t even begin to express how grateful I am, especially to my Mum. She has been a hundred percent with me every step of the way and she’s just been a force of nature in the pursuit of getting people to listen to and help me. And not just that, she supports me every day, helps me to manage just being alive, just being a person in this difficult, inflexible society. I don’t know what I’d do without her. Oh, and there are also my cats who, while they have absolutely no idea about any of this I’m sure, help maintain some level of calm in all the chaos.
I’m also very lucky to have some really great friends. They’ve never been weird about all of my diagnoses, only ever respectfully curious about the parts they don’t know much about. And I’m always open to questions. Once, while in conversation with a friend, I said that I was always happy to answer questions and in reply, she said that all she needed to do to understand me was listen to my songs. I probably looked like a deer in headlights. I mean, that’s what I try to do with my songs but to hear her say it so plainly kind of took my breath away. My friends are really sweet about supporting me and accommodating the issues that make my life hard, that make spending time together hard. I appreciate it so much; a lot of these things that I struggle with make maintaining friendships (from both sides) really hard and it means so much to me that my friends have stuck with me.
And although I’ve had some really supportive tutors over the years, I only recently had a neurodivergent tutor for the first time and it was amazing. It’s like we spoke the same language and she was able to translate this confusing academic world into ideas and words that I understood. I got so much out of my course and out of the work I was doing in the time she was my supervisor; it was pretty amazing to work with the guidance of someone who has a real understanding (and also appreciation as well) of how differently my brain works. And considering how well I did in the module, I think that shows just how well a neurodivergent person can do when they’re understood and supported.
Day 7 – The ADHDer Community
I haven’t really found ‘the community’ yet. After my ASD diagnosis, it was about three years before I sought out any kind of community; I had to figure out what being autistic meant to me first before I could engage further, if that makes sense. So I wouldn’t be surprised if it takes me a while to feel ready to reach out but then maybe it will be quicker this time since I’ve already gone through a similar process. I’m part of multiple Facebook groups relating to Autism, one of which is for women with Autism and ADHD, and I’ve enjoyed those interactions a lot so far. I also have a friend who’s going through the ADHD diagnostic process at the moment so it’s nice to be able to share those experiences with someone I already know since I didn’t go through it that long ago.
Day 8 – Favourite ADHDer Blogs/Comics
I have to say, I haven’t really found any ADHD blogs or comics that really speak to me yet. But I also haven’t been looking in any kind of dedicated way. I’m still making sense of this diagnosis, still trying to manage the struggles, and still trying to get help for it. That’s my main focus at the moment.
Day 9 – Favourite ADHD Owned Business
With Christmas not that far away, I have been looking for present ideas and I do like to buy from independent shops when I can. I’ve found a few autistic owned shops but as of yet, I haven’t found any ADHD owned shops yet. But I’m still looking.
Day 10 – Sensory Seeking/Aversion
I’m generally a sensory-seeking person but they’re very specific sensory experiences that I crave. I love colour and I love lights, especially colourful lights (as long as they’re not in my eyes or face). I love glittery things and shiny things. I also love patterns: smooth curves and crystalline angles. I love the patterns in nature, like the symmetrical patterns in the petals of flowers (Dahlias and Gerberas, for example). They just make my eyes feel good and looking at them relaxes me.
Sound is a bit more complicated (volume can be a real issue for me, especially when I’m stressed) but as a musician, I love the details and nuances in music and in sound. I could talk about music for hours but for this, I think I’ll stick to just distinct sounds. I love the sound of thunder, of heavy rain, the rustle of leaves as you walk through them, snow or frost crunching under foot, the crackle of a fire, the sound of typing. I find all of those sounds so soothing. But then there are also noises that really upset me, that can send me into a meltdown even. Metallic sounds, voices low enough that I can’t quite make out what they’re saying, babies crying, sudden loud noises like fireworks or sirens, shouting or raised voices, mechanical sounds (like buzzing or humming, or that high pitched tone/whine)… they all, at the very least, get the hairs on the back of my neck standing up. Oh, and snoring.
Smell is a really tough one for me. The smells I like, I love: most fruits, especially satsumas; the beach and the sea; forests, pine, cut grass; wood fires and the smell in the air after fireworks (a tough one when the sound of fireworks can cause me to have a meltdown). But the smells I don’t like have me scrambling to get as far from them as possible so that I don’t throw up: metallic, rotten, sickly sweet smells and the way they catch in your throat and leave you choking on them. I’m sure there are more, and more specific ones, but that’s all I can think of right now and it’s not exactly the most enjoyable thing to think about.
Taste is another difficult one, given that food is a complete minefield for me. I crave sweet tastes a lot, especially artificially sweet tastes (although I read recently that that is common in unmedicated ADHD), and I like salty things but anything more complicated than that is unpleasant and overwhelming. Even the lowest point on the spice meter is too spicy for me. (And the texture of food is a whole other issue…)
I’m also super sensitive to what I’m touching. There are sensations that I love, like frost or snow crunching under foot, feeling loud music in your body at a concert, fabrics like velvet, the sensation of being in water, the weightlessness of being in water, how your fingers feel against ice, my cats’ fur, my lovely old dog’s ears, and so on. And there are sensations that I hate, that I can’t bear feeling, that I have to wash off in order to think clearly (and sometimes even that isn’t enough): touching something sticky, clammy, metallic, oily or greasy, slimy, powdery or dusty. They make me shudder just thinking about them.
I’m sure I could talk more about sensory stuff but I think I’ll save it for another day or this post is going to get even longer than it’s already bound to be.
Day 11 – Fidgets and Stims
I go through phases with fidget toys: one will satisfy me for a while and then, out of nowhere, it stops doing whatever it is that helps and I move onto another one. Hence why I have a box of them so I can quickly and easily choose a different one. I’m currently fiddling with two: I tend to play with my tangle one-handed (especially when I’m trying to sleep) and I’m also wearing (or at least trying to remember to wear) a necklace made out of a shoelace with a hairband attached. I’m pretty sure my hair-pulling is how I stim but I really don’t want to be pulling my hair out so I’m trying to redirect the urge; this little set up is as close as I can get to the motion of hair pulling and hoping I can move from hair pulling to that and then a movement that doesn’t put so much repetitive strain on my elbow and shoulder.
From left to right, top to bottom: black tangle, black fidget pad, black fidget cube, two sensory glitter tubes, homemade stimming necklace, three blue magnetic spinning rings, silver elephant spinning ring.
Day 12 – Favourite ADHD Charity
I have yet to go looking for ADHD charities, to be honest. I just haven’t had the headspace but there are a few, local ones especially, that I’d like to investigate further when I feel like I can properly commit to it.
Day 13 – Family
I’ve already talked quite a bit about my family, back in the ‘Supports and Appreciation’ prompt. I have four fantastic parents; then there’s my Dad who died when I was 13. I don’t know much (don’t know enough) about him. Finding out who he was and what he was like is an ongoing project. I also have a younger sibling; we were super close as kids and although we’re not as close now, that’s simply as a result of growing up and building our own lives. We still have a great time whenever we can get together. Due to my various disabilities, I live at home with my Mum and our family of cats. I love them all so much and I’m so proud to call them my family.
Day 14 – Order from Chaos
I feel like I’m more mentally chaotic than physically; I’m not the most organised person in the world but I manage pretty well, particularly with help from my Mum. But my thoughts are another matter. Sometimes my thoughts move so fast that I can’t keep hold of them long enough even to figure out what they are; I find those times really scary. Trying to find something to hold on to in the chaos is hard and it’s easy to feel untethered and panicked. Fortunately it isn’t like that all of the time though. I still feel like I have an overwhelming amount of stuff in my head that I’m constantly sorting through.
Day 15 – Everyone Should Know
It’s not that we’re not trying. We are trying. We’re trying so hard. A big part of ADHD is struggling with executive function, mental skills that help us with organisation, planning, start, stay focussed on, and finish tasks, among other things. What some people assume is laziness or lack of care, is actually difficulty with executive function and struggling with these skills can cause those with ADHD great distress. Being told to ‘try harder’ when you’re already trying so hard is not just frustrating but makes you doubt yourself, wonder whether you actually are lazy. This should never be the case. ADHD is a neurodevelopmental disorder (the debate about whether neurodiversity should involve words like disorder or deficit is ongoing and important but too big to get into here); it’s a medical condition. Difficulties with executive function are ‘part of our wiring.’ That’s not to say that it’s fixed, but telling someone to ‘just try harder’ or ‘just focus more’ when their brain doesn’t respond to that kind of motivation is unhelpful and unkind. They’ve probably already thought of that, you know?
Day 16 – Work/School
Education has been a mixed experience for me. I’ve always been incredibly shy and I struggled socially although no one really realised the extent of it, myself included: I learned to mask very well very quickly, long before I knew what masking was, long before I even knew I was doing it. And being a huge perfectionist, I felt a lot of pressure and anxiety around my grades, sometimes to the point where I made myself unwell. Having said that, I’ve achieved some great things academically and while I’ve never had masses of friends, I get on well with people and have a group of close friends that I absolutely adore. So, yeah, it’s been very mixed.
I think it’s fair to say that the undiagnosed ASD and ADHD clearly contributed to the difficulties I’ve had throughout my time in education, which is most of my life really. And I don’t think it helped that I missed the first two and a half years of secondary school (a period of illness that was half-heartedly diagnosed as Chronic Fatigue Syndrome, diagnosed formally in retrospect, and now it may be that it was due to the hEDS – I’m really not sure what to think now), putting me at a disadvantage academically and socially. But what was probably a combination of natural ability, my terrible fear of getting in trouble, and my perfectionism meant that I did relatively well in secondary school. Sixth form and my A Levels were mostly dominated by the strengthening symptoms of my anxiety and depression: I did well in the subjects that I loved but otherwise I struggled. I couldn’t get information to stay in my brain, I couldn’t understand certain concepts as hard as I tried, I felt like I was running an endless obstacle course that only seemed to get harder, and I was constantly exhausted. It all kind of spiralled and I barely managed my exams. I tried to resit several of them the next year but my mental health was so poor (plus whatever was going on with the undiagnosed ASD and ADHD) that I didn’t do any better. Fortunately though, I did have the grades I needed to pursue my BA in songwriting so it all worked out in the end.
University was, obviously, very different from secondary school and sixth form but I didn’t exactly get the same experience as most of my peers. Because of the challenges I live with (my mental health problems weren’t diagnosed until the January of my first year and my ASD wasn’t diagnosed until the summer break between first and second year), I lived at home and commuted to London for university, staying with family when I had two of more days of classes in a row. It was necessary but hard; I was so tired all the time (I was actually taking naps on the sofas at uni at certain points) and it didn’t help the feeling of separate-ness, being so far away and unable to join the spontaneous meet ups and so on. And again, the classes I loved, I absolutely loved but when it came to the classes I didn’t enjoy or found difficult, I really struggled – I still don’t feel like I have a good grasp of music theory (not that I’ve given up). It felt like there were just some things I couldn’t learn, like my brain just wasn’t capable of processing the information (something I’m working on, especially after learning more about ADHD and hearing similar stories from others). And although it wasn’t a constant feeling, I struggled with feeling invisible and feeling like I was never going to be good enough to do the one thing I wanted to do: write and release songs. As amazing as it was to study my very favourite thing and therefore spend most of my time doing it, doing it surrounded by other people who all want the same thing was really challenging at times: you’re constantly exposed to new, amazing music and as cool as that is, if you’re doubting yourself even the slightest bit, that can just make the feeling ten times worse. It’s easy to slip into comparing yourself and seeing all of the ways in which you aren’t as good as this person or that person. So, yes, it was an amazing experience but it was incredibly hard.
The MA was a very different experience (apart from, you know, doing most of it in a global pandemic). The pandemic definitely played a big part: my anxiety was so high, I felt completely overwhelmed by everything that was going on in the world, and I was adjusting to a whole new way of learning (and cowriting). I’m sure those things affected my ability to take in, process, and use new information. I loved the practical part, the constant writing of songs and constant cowriting; I loved that and I feel like I did a lot of my best work so far. But the modules that included extended research and essay writing were a struggle: I found it incredibly difficult to focus on the research I was reading, to digest it enough to pull out the useful information, and then construct the essays themselves. In the first year, my Mum sat with me for hours and hours, helping me to collect all of the relevant information and painstakingly put it together. In the second year, for the final project, I had an excellent supervisor (who is also neurodivergent and therefore had a personal as well as professional understanding of how I’d potentially need to approach things differently), which made a huge difference. I did still struggle though. Staying focussed, attempting to keep my attention from wandering, pulling together all of the information (it was a lot: four-ish months of work that had to be condensed into an hour’s presentation)… it took every drop of energy I had. I was concentrating through sheer force of will and when it was all finally over, I was beyond exhausted.
While I’ve pretty much considered myself a student up to this point, I guess I am self employed: I am dedicated to being a singersongwriter and even though I love it and it started out as a hobby, it’s now my job and one that I want to spend my whole life doing. I’m dedicated to making that happen but it’s freaking hard work sometimes and there are a lot of challenges. I love the creative side and those related decisions often feel very easy, almost instinctive, but the logistical, business, marketing side is really hard for me. For some reason, I find those decisions and tasks much more likely to overwhelm me and money-related tasks are particularly stressful for me (something I’ve seen other people with ADHD talk about). I’ve had some really great help with this up until now and I’m so grateful for that but I would love – so much – to find a way to make this stuff less challenging. So often the level of stress in response to these tasks isn’t proportional and I have to believe that it doesn’t have to be this hard. Now that I’m not studying (although I still have a lot to do), I’m hopeful that I can dedicate some time to this. And I’m cautiously hopeful that the ADHD meds I should be starting in a few weeks will improve things too. As I said, I’m committed to making this happen so I’m doing my best and I have some good people in my corner to support me.
This one has gotten very long so I’ll stop there, I think.
Day 17 – ADHD People I Admire
Kalie Shorr – I’ve been a fan of Kalie’s for years – she’s a fantastic songwriter and performer, she’s super creative, she’s incredibly hardworking, she’s hilarious, she’s a really lovely and genuine person, and she uses her voice for the things that she’s passionate about (always in creative and interesting ways that emphasise her words, of course) – and then, earlier this year, she made a podcast episode about how she’d been diagnosed with ADHD and what she’d learned about herself and certain past experiences in the light of the diagnosis. She described experiences that I really relate to and her positive experience with medication (which she’s been documenting on Twitter – often hilariously, as is her way) has helped me in my own ADHD journey. And as someone who is pursuing the same career path as am I (and is doing so very successfully), it gives me hope that my ADHD isn’t something that will make this path impossible. It might not be easy but it’s not impossible and I’m really grateful to have someone (and someone I think so highly of) remind me of that at this moment in time. (I love this quote from a recent interview: “That’s why I love co-writing as well, I actually think it has a lot to do with… because I love writing by myself and I’ve written some great songs by myself. It’s not that I can’t, it’s that I love the process of co-writing. I think it’s because I have ADHD with the massive dopamine deficiency. The immediate feedback you get when you put out a good line and the people in the room freak out over it, that feels so much better than when I write a good line in a song I wrote by myself and I’m like ‘I think this is good, but I’d rather wait for someone else to tell me that it’s good.’ I get so energized by all these tiny pings about writing a song, and then you get the big hit of dopamine.”)
Emma Watson – I’m somewhat hesitant to include Emma Watson since she hasn’t spoken personally about having ADHD but the information is out there so, if it’s true, I would have to include her in this list. Growing up with Harry Potter, with the characters and the cast, she was always someone I looked up to and I remember an interview where she talked about how her Dad really didn’t have the money to send her to the school he did and how her birthday presents were her uniform and her school supplies and how she worked hard every day (finishing with nine A*s!) because she wanted to make him proud, to show him how much she appreciated it. Of course I’ll probably never be able to completely detach her from Hermione (as I’m sure is the same for many people and probably for her too), it’s been very cool to watch her grow and experiment with different roles and engage in important social issues (I think a good example is this video interview where she talks about finding the constructive criticism in social media, educating herself and broadening her understanding of feminism, the need for the education system in the UK to revise and improve the teaching around Britain’s involvement in foreign affairs (including how the country profited from slavery), transgender issues, and more) while still remaining a very normal, relatable person. She’s achieved so much, she’s pushed her own limits and challenged her comfort zone, and she’s trying to use what she has to make a positive change in the world (despite feeling like she’s still figuring herself and her life out) alongside the challenges of living with ADHD, whatever they are for her, and I find that really inspiring. (x) (x)
Simone Biles – I think it probably goes without saying that Simone Biles’ talent, skill, and incredible work ethic is enough to consider her a person worth admiring. But she’s also repeatedly shown such incredible emotional strength in very difficult circumstances (this year’s Olympics being the most recent example) and has handled them so thoughtfully and gracefully. At the Olympics, even with so many people criticising her for even considering it (and then for doing it), she put her mental health first and stood by that decision. No doubt she made that choice for herself but by making it and talking about it publicly (and talking about it unapologetically, without any shame), she sent such a powerful message that meant so much to so many people, that sometimes you have to prioritise your mental health regardless of the situation and that that is okay. It’s something even the most self aware of us struggle with, even if we understand why we should to do it; it’s a vicious cycle that, often when you’re struggling mentally, it becomes even harder to remember and/or accept that. Seeing someone actually do it, do it under immense pressure, and continue to stand by it after the fact is very powerful and hopefully it will help a lot of people to remember that it is possible, that the world won’t end if they need to stop and take a break from everything. So I can only admire and respect her strength and her willingness to share her experiences because there’s no knowing how many people she’s helping. (x)
I’m sure there are more people I could add to this list but these three are all I can think of at the moment.
Day 18 – Someday…
On a personal level, I can’t help hoping that – someday – I won’t feel so ‘othered’ by being neurodivergent, that I won’t feel so different and so deficient when and after spending time with neurotypical people. It’s not that I don’t enjoy spending time with these people because I do: almost everyone I know is neurotypical and those that I love, I love dearly. But there are throwaway comments and common experiences that just make me feel so different to everyone around me and it’s just so exhausting to have these constant, endless reminders. It’s so hard to try and accept my ASD and my ADHD when it feels like, everywhere I turn, one thing or another is telling me that I’m… less than or wrong or broken. Someday, I’d like not to feel that way.
Day 19 – I love it when…
I can just totally hyperfocus on something without interruption or pressure to do something else. I just love falling down a rabbit hole and reading everything I can find on a subject, learning as much as I can about a particular songwriter’s process, the theories around alternate universes, the different types of typewriters, why thunderstorms make certain people (myself included) feel so much better… I don’t remember it all but I love the feeling of soaking it all in. And it does mean I have a random fact about almost everything.
Day 20 – Communication Style
I’m not really sure what this prompt is asking of me, to be honest. Googling ‘communication styles’ gives me so many different possibilities that it’s hard to know what the right one for this prompt is. Maybe this is something I’m going to have to investigate further but for now, the way I feel I communicate best is through the songs I write. Being able to use lyrics, melody, harmony, instrumentation, production… the right combination of those things can convey a feeling or an experience in such a pure way. Not long after I met one of my now best friends, we were talking about me being autistic (I think it was in the context of a song she was helping me write, I’m not sure now) and I just made the casual comment that if there was ever something that she wanted to know or something she didn’t understand, she could always ask. And she replied, ‘I just have to listen to your songs to understand you.’ I’m not gonna lie, I was kind of floored by that response (and I still am a bit – it makes me very excited about the music projects I’m currently working on). I mean, that’s the goal – to find connection through the songs I write – and my friend had just confirmed that for me. So that was a big moment and a special one but I think I’d still be saying the same thing had that not happened. Songwriting feels like the way I communicate best and to have that in my life is something very special indeed.
Day 21 – One thing other people don’t understand…
From my admittedly limited personal experience, I think a lot of people find it hard to reconcile ADHD with good grades: if you’re turning in work on time and getting good marks, you couldn’t possibly have ADHD, for example. Thinking like this can prevent those struggling from getting support because they don’t show the stereotypical signs of a condition like ADHD. Apart from 2013 (the year when my mental health problems really started to manifest, resulting in such a crisis that I barely made it through my A Level exams), I’ve always turned in work on time or early (unless I had an extension due to health stuff) and achieved high grades in pretty much all of my classes. Personally, I think that, up until A Levels at least, this was largely due to a natural ability, the fact that I enjoyed learning, and very intense perfectionism. Getting to do a BA and MA in songwriting, my most enduring special interest, helped to balance out my struggles with executive function, I think: because I was so passionate about what I was studying (for the most part at least), it wasn’t as hard as it might’ve been had I been studying something that I was less passionate about. I’ve definitely had areas and periods of time in which I’ve struggled – I wouldn’t have sought out what resulted in my ADHD diagnosis if I hadn’t – but I guess I’m just saying that you can have ADHD and be a good student and the idea that you can’t is a harmful one.
Day 22 – Dispel a myth
I don’t know whether this myth still persists but I definitely grew up with the impression that having ADHD meant an inability to sit still. If that myth does still exist, I’m definitely proof that that isn’t true, as a constant of ADHD at least. I can sit in basically the same position all day without moving because I’m so absorbed by what I’m doing. I forget to move, to the point where it’s actually causing me problems: my chronic pain (thanks to my hEDS) is exacerbated by these long periods of no movement so I’m actually trying to move around more. So, yeah, we can sit still.
Day 23 – Can’t live without…
My family. On any and every level, I could not live without them (and I include my close friends in this circle too). But I’ve talked about them quite a lot so I’m gonna say songwriting as well. When I’m writing a song, the rest of the world goes away and I feel like I can just be me, focussed on something that I love more than pretty much anything else. And then, when I finish a song and feel like I’ve really said what I wanted to say, that feeling is so special. I feel like, for a little while at least, I’m in sync with the rest of the world and all of the usual friction that exists just disappears. I feel calm and relaxed, like I’m finally still; usually I feel like I’m constantly vibrating, which is just so exhausting. So, while I love the creative discipline of writing songs, I love the way it makes me feel. I’ve never experienced anything like it.
Day 24 – ADHD Political Issue
A massive problem with conditions like ADHD, as well as other neurodivergencies, is the lack of support available, for those who appear to be functioning well especially. So many individuals, myself included, have had to fight for support – in education, from medical professionals, sometimes from the government – because, so often, people just don’t understand the challenges that these conditions present or don’t believe those asking for help. I can’t get too deeply into this (especially at the moment, given that I’m overly emotional due to the reduction of my antidepressant medication – an unfortunate but necessary step in order to try medication for my ADHD) because I’ll just get too upset but the society we live in is so deeply ableist, and it’s so entrenched that no one even notices. And worse, a lot of people don’t seem to care about changing it. We’re in the minority, right? Why should society change to make the lives of the few better when the lives of the many are just fine? Honestly, the apathy so many people have towards those with disabling conditions (I know not everyone with ADHD considers themselves disabled but some do) – conditions that are often made worse by how our society is structured – makes me so, so angry and just so sad.
Day 25 – Symbols
To be honest, I’m really happy to stick to ribbons of specific colours; I like the simplicity. But I also understand that, at some point, the various colours are going to get too similar and people aren’t going to be able distinguish one from another. But I’m not sure how an entire community will ever be able to agree on one symbol. I’m more familiar with the various Autism symbols but for ADHD, I’ve seen the orange ribbon, the rainbow infinity symbol (which is often used in the autistic community), the butterfly, the rainbow butterfly. Ultimately, I think that what we experience with ADHD is too broad to be summed up with an image like an animal or a symbol because they have their own associations. This is why I like the orange ribbon.
Day 26 – Favourite ADHD Book
I’ve yet to read any books about ADHD, given that I was diagnosed in the middle of my Masters and had to give everything I had to that. Plus I’ve found it hard to focus when reading books over the last few years. But I have had multiple options recommended and I think these are the ones I’m going to look into first…
Day 27 – Identity Language
Personally, I don’t really have an issue with how people identify themselves; they should use the language they feel comfortable with and respect that in others. As a general rule though, I think identity-first language is important for the neurodivergent community. With conditions like Autism or ADHD, they affect the way we perceive and process the world; they are intrinsic to who we are, to our identities. Having said that, I’m not sure how identity-first language works with ADHD. With Autism, we have the word ‘autistic’ but there isn’t an equivalent for ADHD, at least as far as I can tell. I’ve seen people use ‘ADHDer,’ but I find that awfully clumsy and awkward to say. I don’t have any other ideas though.
When it comes to my own circumstances, I am autistic. Absolutely. But I still feel like I ‘have ADHD,’ maybe because it’s still a relatively new diagnosis and I haven’t had the time and headspace to process what it means and how it fits into my constellation of diagnoses and my identity.
Day 28 – Dealing with Boredom
I’m not sure I’m ever bored; I always have too much to do (or I’ve crashed after trying to do too much). The closest state I get to boredom is not knowing what to do and that’s usually because I feel overwhelmed by all of the things I could do. (@roryeckons’ post on this is great though.)
Day 29 – Favourite Memes
I’ve seen a lot of ADHD memes so choosing a favourite or even favourites is hard.
Day 30 – Hyperfocus
I find the concept and research behind hyperfocus really fascinating. I was about a breath away from hyperfocusing on hyperfocus to write this day’s post (when I realised what was happening, I had to laugh) but I managed to reign it in before I really got lost in it. Some of the stories I read were fascinating. Personally, I love it when my brain hyperfocuses, although it can be annoying when I get sucked into something (or repeatedly sucked into one thing and then another and then another) at the exact moment when there’s something I really need to do. But when there isn’t an impending deadline, it can be so fun. I love going down the rabbit hole of a new subject and learning everything I can about it. Sometimes it’s resulted in essays about the subject and sometimes it even turns into a full blown special interest.
Day 31 – Acceptance means…
I don’t know what real acceptance looks like, if I’m completely honest. Yes, we can learn to and practice accepting ourselves and our friends and family can be understanding and supportive but I think acceptance – real acceptance – is bigger than that. Real acceptance is when ADHD is understood, acknowledged for what it is, and accommodated, and done so without persuading or convincing or fighting for it. But I don’t know if that’s a realistic expectation. How can that kind of acceptance be possible when we, neurodivergents, are the proverbial square peg in the round hole, living in a world that is not only built in a way that doesn’t accommodate us but actually disables us further? As I said before, when so many people don’t want the world to change, it can all feel deeply dispiriting. So I don’t know what we do in that regard. But, to quote Amanda Tapping, “The best thing you can do is to make your corner of the world as good as possible,” and so that’s what I think we focus on. We work on accepting ourselves and using the gifts we have to create as much good as possible, for ourselves and for others. Maybe I’m thinking too big when it comes to this prompt but there have just been a number of things recently that have just highlighted how ableist the world can be and that’s been upsetting. And much as it makes me want to flip tables and scream that the world isn’t fair, I want to focus on the good and the good that I can do.
As I said, this is still all very new and it’s a lot to take in. But I do feel like I’ve learned a lot by doing this challenge, both from my research and from reflecting on my own experiences. It’s been a mixed bag – some of it fun, some of it upsetting, and some of it overwhelming – but I’m learning and I’m figuring stuff out and hopefully it won’t be long before I feel a bit more confidant about it and about how I can manage the challenges that come with it.
Who knows, maybe in a year, I’ll do this challenge again and see how much has or hasn’t changed…
Category: about me, adhd, anxiety, autism, depression, diagnosis, emotions, family, favourites, identity, medication, mental health, music, quotes, response, school, special interests, university Tagged: ableism, acceptance, adhd, adhd acceptance month, adhd awareness month, adhd diagnosis, adhd inattentive type, adhd medication, adhd memes, adhd support, anxiety, asd, autism, autism spectrum disorder, autismadhd, autistic, autistic adult, ba, challenge, creativity, degree, depression, eds, ehlers danlos syndrome, emma watson, family, fidget toys, hairpulling, heds, hyperfixation, hyperfocus, hypermobile ehlers danlos syndrome, identity first language, identity language, independent artist, kalie shorr, ma, masters degree, mental health, mental illness, music industry, neurodivergent, neurodiversity, perfectionism, self acceptance, self employed, sensory information, sensory overload, sensory sensitivity, simone biles, singersongwriter, songwriter, songwriting, special interest, special interests, stimming, trichotillomania, university, unsigned artist
Posted on April 4, 2020
A while back, I had a reading week as part of my university semester, where classes don’t happen and we stay home to focus on our studying. Being a part time student meant that it wasn’t much of a change as I’m only at uni one day a week but not having to expend the energy that that requires allowed me to do more, both in terms of uni work and in other areas. Yes, I researched for my essay, prepared for a presentation, and wrote songs, but I also did a whole bunch of things for my job as a singersongwriter.
I got up, did my hair and makeup, and caught a train to London. I’d booked a slot at the Selfie Factory at The O2 Arena, thinking that Richard (Richard Marc, who also does all my photography – he’s a photographer as well as a writer, musician, and producer) and I might get some good social media content. I get very self conscious having my photo taken but I’m trying to get over that anxiety and it looked like fun.
I used the train journey to send a load of emails, which made good use of the time, and then I met Richard at The O2. The Selfie Factory was small but it had some really fun set ups and we had great fun, especially in the ballpit.
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We got some nice photos and when our time ran out, we headed home. Again, I used the train journey to be productive and worked on a rough script for my university presentation – we all had to give presentations on our essay subjects the next week when we were back in regular classes. I’d already made the slides with the information but I wanted a rough script to keep me on track and provide extra information.
I got home and, even though I was exhausted, I practiced several of my songs as I had a recording session coming up later in the week that I needed to be prepared for. I wasn’t super familiar with the arrangements of the songs I was singing so it was quite hard work but I definitely made progress, getting used to the rhythm and melody. It was a good practice.
I started the day with another big batch of emails: uni stuff, music stuff, gigging stuff.
That took an hour or so and then I spent the rest of the day doing research for my assessment essay. There’s not much to write about here really; I just read relevant sections of books, read articles, and pulled useful quotes, putting them in separate documents to keep everything organised. This session was focussed on imagery, specifically in songwriting, obviously. It’s surprising how few books on songwriting go into any detail around imagery.
At least I had some good company (and entertainment).
I had a gentle evening, working on a blog post and watching old episodes of Grey’s Anatomy. There’s something very comforting about the familiarity of them and the time when I first watched them.
I spent the morning practicing for the recording session, going over the songs, and then, after lunch, I had an appointment with my psychiatrist.
The practice had moved since my last appointment so there was an element of anxiety about going but it was okay and turned out to be a really productive session. My psychiatrist agreed with my decision to come off the Aripiprazole, since it clearly wasn’t working, and we discussed what else we could try to help with my anxiety. We also talked about what could be causing my drowsiness and decided to try reducing my Pregablin as it’s clearly the current medication situation that’s causing it. So we’ll see how that goes. And considering we’re changing that, we decided to stick with the Diazepam for my anxiety so that we’re only changing one thing at a time and can clearly see the results. Otherwise you can’t tell what’s causing what. So that’s progress and we’ll just have to see what the effects are.
Late in the afternoon, I caught a train up to London in preparation for the recording session the next day, using the time to do some more reading for my essay. My frequent train journeys are great for any reading I have to do for my course. From Victoria, I made my way to where I stay in London: the flat belonging to one of my parents. I was suddenly, out of nowhere, overwhelmed with anxiety and although I took Diazepam as soon as the feeling started, it obviously doesn’t kick in straight away so I spent most of the journey talking to said parent, a mix of distraction and reassurance. I’d just started to feel calmer when I got there.
We had dinner together and then I spent the evening in the pursuit of catching up with my diary. It feels like a hopeless task; I’m so behind, what with the time taken up by uni work and managing my mental health. I’m hoping to catch up once I’ve submitted my essay. It’ll take a while though.
I slept terribly. So terribly that I barely got any sleep at all, the worst I’ve slept in years. Maybe I was nervous about the recording. I finally got a solid hour or so just before my alarm went off. But it was an important day so I dragged myself up, got ready, and headed to the University of West London where we were using one of their studios to do the recording.
It was a beautiful studio and we had a lot of fun. Having said that, we worked bloody hard. We worked from about eleven until six, filming and recording for a project that I’m not going to talk about yet. It’s a surprise. It does mean there’s not a lot for me to write about, other than the fact that I’m super grateful to everyone (all tagged below) for the work they put in. I really, really appreciate it.
When we finished, I was so tired that I thought I might throw up. I manage to help pack up a little but eventually I just had to leave. I felt bad for not staying to the very end but everyone was very understanding. I got home and barely made it through dinner before falling asleep at about half past eight.
I slept for twelve solid hours and woke up feeling like an entirely different person. Still, I had a slow, gentle start. I had breakfast, got showered and dressed, and did some reading for my essay.
Around lunchtime, my Mum arrived, on her way home from visiting her Mum (this was when we still thought we were going to Nashville and she’d obviously wanted to spend some time with her before we went). She’d stopped in London because we had a plan to have lunch with one of my best friends, Sharné, and her Mum, who had come to visit her. The four of us had hoped to spend a little time at the songwriters circle I’d played (the one I mentioned in my previous A Week in My Life post) but it was busy and loud and it just wasn’t the right setting. So we’d planned lunch at this awesome Italian restaurant.
It started out quite stressfully due to pouring rain and terrible traffic but once we were all together, it was lovely. They’re both so lovely. We all got on really well and have a lot in common; it was just unfortunate that we didn’t have longer. Hopefully we’ll get another chance at some point.
We said goodbye and me and Mum headed home to Brighton. When we got in, I curled up on the sofa with a couple of the cats and had some diary time. I was exhausted and really just needed some quiet, rest time.
Richard came down first thing because we were performing at the Access Open Day at The Brighton Dome. We picked him up from the station and went home so he could drop off his stuff and we could have a quick run-through, especially of the songs that we’ve only just started to perform like ‘Clarity.’
We headed to The Dome and had everything explained to us, where we could store our stuff, hang out between sets, and so on. We were playing once at 12.30pm and again at 2.15pm so we’d have time to kill between sets. There were other talks and activities going on but I’m never able to concentrate when I’m about to perform.
Both sets went really well. I felt like my voice sounded really good, I didn’t make any (obvious) mistakes, and I felt really confident in my body and how I was moving as I performed. I’ve done a few gigs recently but before a couple of months ago, it had been a long time since I’d performed so it’s felt a bit like starting all over again. But this felt completely natural and quite possibly the best I’ve ever performed. I’m just sad more people didn’t see it because they were performances I was really proud of. But I had a great time, telling the stories behind the songs and singing my heart out. It felt so good. And that’s the important thing.
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I felt very lucky to be invited to perform in the foyer of The Brighton Dome twice today for their great Access Open Day event, an event for people with disabilities. And what was especially magical is that that was the first place I ever performed, with barely enough original material to fill the time. Eighteen year old me was quaking. Twenty five year old me was having a blast.
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This is a picture from the first time I played there:
When we got home, we were both still buzzing with adrenaline so I suggested we write a song since we’re not getting a whole heap of opportunities to write together at the moment with both of us on Masters courses. So we got to work and managed a track and half a song before we ran out of energy. It was really fun and I’m really excited to finish it.
And before the day was up, I put up a blog post as I always try to do on a Saturday. This one was the one about February Album Writing Month, where I tried to write fourteen songs in the month of February. I’m proud of succeeding in the challenge and proud of the post I wrote about it.
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NEW BLOG POST! My attempt at February Album Writing Month… Link in my bio! // “FAWM or February Album Writing Month is an annual songwriting challenge where participants must try to write 14 songs in the 28 days of February. I’ve been attempting this challenge on and off for several years now and I’ve only achieved it once, which was helped by my BA in Songwriting requiring me to write three songs a week (roughly).”
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We had an early dinner and were basically falling asleep on the sofa so we dragged ourselves up and went to bed early. I was asleep within minutes.
We had a gentle morning, watching Friends together and companionably working on different things. I finished a blog post and put it up, #30dayfeb Challenge For Tommy’s. It covered my attempt and completion of Liberty’s Mother‘s challenge to do something positive for your wellbeing from the 1st February to the 1st March. I’d chosen origami.
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NEW BLOG POST! A challenge to raise awareness about baby loss and money for the charity, @tommys… Link in my bio! // “So my university tutor/friend/mentor/super inspiring person, Sophie Daniels, ran a challenge throughout the month of February (including the 1st March to create 30 days) under her artist project name, @libertysmother, about doing something positive for your wellbeing every day for the thirty days.”
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Richard went home because I had a few things to do, as much as I would’ve liked to have him stay and work on the song and chill out together. So we dropped him at the station, came home, and I got to work, practicing my presentation for the following Tuesday. I was confident with the material and the questions I wanted to ask; I just wanted to make sure it was within the time limit. So I ran that a few times and then spent the rest of the day resting. I also have dinner with some of my family on Sunday nights (when we can manage it) so that was really nice.
So that was my reading week. Not as productive uni work wise as I would’ve hoped – I wanted to have started writing the essay rather than still adding research to my structure – but it was very productive in the working-as-a-singer-songwriter sense. And those opportunities don’t come around super often so I’m really grateful for them. So it was a good, if exhausting week.
Category: animals, book, event, medication, mental health, music, sleep, treatment, university Tagged: 30 day challenge, 30dayfeb, a week in my life, anxiety, aripiprazole, best friend, blog post, blogging, cat, cats, challenge, coursework, diazepam, drowsiness, essay, farm 2020, fawm, february album writing month, friend, mental illness, origami, performance, performing, pet, pets, phenelzine, photoshoot, pregabalin, presentation, psychiatrist, reading week, recording session, recording studio, research, richard marc, richard marc music, richard sanderson, selfie factory, side effects, singing, sleepiness, songwriting, songwriting challenge, studio, studying
Posted on March 2, 2020
So my university tutor/friend/mentor/super inspiring person, Sophie Daniels, ran a challenge throughout the month of February (including the 1st March to create 30 days) under her artist project name, Liberty’s Mother. The name Liberty’s Mother comes from the name of her daughter who died very tragically the day before she was born and so Sophie has been working incredibly hard, raising awareness about baby loss and money for baby loss charities, particularly Tommy’s and Sands. And so for this month, Sophie is running a challenge about doing something positive for your wellbeing every day for thirty days.
I know a lot of people are doing physical things, like yoga or going to the gym or something that builds up their physical strength. But due to my chronic fatigue and chronic pain, those aren’t options for me. So I decided to do something good for my brain, something that relaxes my brain because I’m really not good at relaxing my brain. So I decided to make a piece of origami everyday because I’ve always found it calming; I can’t concentrate on anything else while I’m doing it. I guess it’s a form of mindfulness, although I’ve always struggled with the concept. I’m not great at origami but hopefully I’ll get better. The idea is that, if you manage 30 days (or if you’re feeling generous, regardless of how many days), you can donate here and help raise money for Tommy’s.
And I did it. I managed a whole 30 days. Here are my origami creations.
So, if you want to, you can donate to Tommy’s or click here for the JustGiving link for the specific challenge. If you choose to donate and want to include my name in the message, that would be lovely but regardless, thank you for your kindness and your generosity. It’s very, very much appreciated. And if this inspires you to try something similar for 30 days, go for it. It’s a good motivator. And I also encourage you to follow Liberty’s Mother on Instagram because Sophie’s written some amazing things during this challenge. Here’s just one example:
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#babylossawareness #30daychallenge #posttraumaticstress #30dayfeb #babyloss #yogainspiration #psoasrelease #psoas @hotyogahouse @hotyogawimbledon @yogahookuk Why yoga is great for baby loss recovery … today I realised what it is that I am letting go of during this 30 day challenge doing hot yoga. Over 9 years ago now, I gave birth to Liberty. Beforehand I was told that my daughter had died inside me just before she was due. I was told that I must give birth (for the first time) to her dead body, then decide ‘whether’ to hold her. They said ‘we don’t know how she died yet or how she will look, prepare for anything’. During the whole 24hours over which this took place, I remember feeling as though I wasn’t really present but was in a film. Behind the camera watching the action and not feeling what was happening. This is what our minds and bodies do when they fear we cannot handle what is happening to us, that it is too emotionally dangerous to live in real time. Afterwards we have the ‘post traumatic stress’ because we haven’t lived the real time stress. It’s stored in our brains but it’s also stored, like all our difficult emotions, in our bodies. Yoga helps us to gently release the emotions, feelings and tensions that we hold in the muscles and tissues in our bodies. Postures that get down deep into the psoas muscle particularly, really help as we store deep held stress there. It’s been nine years since these events, (I have also had two babies, moved house twice and somehow kept a hold of my mind, my career and my marriage in the meantime), and it feels like the right time to release the last of this deep held stress. If you’ve experienced baby loss, try yoga my friends. I have also benefitted from talking therapy and other physical therapies but yoga is by far the most emotionally healing thing I’ve had in my life. It’s been my greatest friend, energy, support and healing system. Give hot yoga a try. ❤️Liberty’s Mother
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I have to admit, this challenge was hard for me. It was stressful to make sure I managed a piece everyday when I’ve got so much on. There were some days when I hated it. But there were also days where it made me smile. And my Mum has been very funny, filling the mantle piece with every piece I’ve made, even when they’re terrible. I have to say, that while I initially thought it was silly, it’s actually inspired me to keep going. It’s been hard – sometimes really hard – to find the time but I did it and I’m really proud of that.
If you try a 30 day challenge, good luck! And if you donate, thank you! I hope this post has inspired you. I hope you have a great, positive day.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.