I Finally Left My House

On Monday, for the first time in over a hundred days, I left my house.

I was already self isolating when the UK lockdown went into effect. My university classes had moved online, I have friends and family that I could put at risk if I caught the virus, and it generally seemed like the safest, most socially responsible thing to do. Then the lockdown was officially put in place and it was me and my Mum in the house together. Struggling with Chronic Fatigue Syndrome, I don’t go out a whole lot because I physically can’t manage it but I had previously had university classes, seeing friends and family, and swimming at the gym (the only exercise that doesn’t cause me physical pain – probably because it’s non weight-bearing), all of which were suddenly gone. My Mum went out only to food shop and pick up medication prescriptions as necessary.

I’ve only been out once since then and that was to rescue my kitten who got stuck up a tree in a neighbour’s garden – we think she’d been up there for more than twelve hours. And when we did go to get her, all involved socially distanced and wore masks. It was stressful in the face of the virus but my kitten would not come down  by herself and we were all getting really worried about her.

Ever since then, I’ve stayed in the house. My mental health has been a monumental struggle during this time, especially my anxiety – to the point that something as simple as laughing from outside or looking through the window at the street can cause severe anxiety and autistic meltdowns. And the longer this goes on, the worse it’s getting. I’m in contact with my psychiatrist, taking my medication, and having online sessions with my therapist but I don’t feel like it’s making much difference to my anxiety.

The easing of lockdown only increased my anxiety. With the scientists and Public Health England still warning of the dangers of Covid, it seemed (and still seems) incredibly irresponsible of the government to be making such changes. When it was announced that hairdressers would be opening on the 4th July, my anxiety sky-rocketed. Ever since the pandemic began moving into Europe, my Trichotillomania has escalated dramatically. It’s been a problem for years but with the recent extreme levels of stress, I’m now pulling my hair out more than I ever have. It’s not only causing pain in my scalp and damage to my hair, it’s also causing terrible pain in the fingers, hand, arm, and shoulder on the side I pull from, as well as tingling and numbness that often doesn’t pass for most of the day. So while I did, of course, want a hair cut (as I think everyone did), I was also desperate for advice and help with this problem. Plus, I go to an independent hairdresser and wanted to support them.

But despite all of that, I just as desperately didn’t want to go. Even with the all the strict safety measures they’d informed their clients of, I still felt overwhelmingly unsafe going out, especially into town. To make it feel more possible, we spoke to them and they arranged my appointment to be as stress free as they could possibly make it: we cancelled the colour to reduce my time there (it felt unnecessary as it was something I could do at home – I’d booked it way back when when it had looked like it would be (or feel) safer, they scheduled my appointment first thing on a Monday morning so the environment would be as clean and safe as possible, and they were happy to have my Mum come with me in case my anxiety got too bad. When we made those arrangements, it felt as good as I thought it was ever going to  and we moved on, the appointment still a few weeks away.

But as it got closer, my anxiety grew and grew until I was having panic attacks over it. I didn’t want to go. I really, really didn’t want to go. It felt so unsafe to be going out, even with a mask, gloves, hand sanitiser, and safety measures in place. I didn’t want to go. The anxiety was unbearable and I had multiple awful panic attacks.

In the end, my anxiety just wiped me of all my energy and on the morning of the appointment, I just didn’t know what to do. I had nothing left. So Mum took over, got me up, and took me to the appointment. Even being outside felt terrifying: I felt so unsafe and exposed and vulnerable. We got there and the hairdressers was almost empty, as planned, and my hairdresser was as lovely as always. I’ve been camouflaging my Autism and my anxiety for so long – I’ve spent my life building a mask to help me manage in difficult situations, something that I want to write about more in the future – that most people see the ‘usual’ me but in reality, I was so anxious that I felt like I couldn’t breathe properly (and that had nothing to do with the facemask). I almost destroyed the fidget toy I’d brought with me and the whole experience was just exhausting. It felt like it only added to the trauma of the pandemic and lockdown.

(I do want to make it absolutely clear that that has nothing to do with them as people or a business. It was all about going out and feeling so unsafe outside my house.)

My hairdresser is awesome and so lovely and we had a good conversation about the condition of my hair and the textures that trigger my pulling. We talked about what might improve the condition of my hair and therefore lessen the textures that trigger me, which products might be helpful. So we’ll see how that goes. And simply cutting off the dry ends of my hair will hopefully help with the pulling too.

We were there less than an hour but I was completely exhausted. I was barely functional all day and ended up falling asleep on the sofa at about 10pm, hours earlier than I usually get to sleep at the moment. And it’s taken days to regain enough energy to concentrate and actually do things again. Even now I’m not sure whether I made the right choice or the safest choice but it’s done and I can’t go back and change it. Several people have said to me that going out would make going out again easier but if anything, it’s made it feel even scarier so, for the moment at least, I’m not going anywhere.

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The next challenge, I guess, is when gyms reopen. As swimming is the only non-painful exercise I can do, my exercise has been severely limited during lockdown and on a personal level, I’m desperate to get back to it. I love it, I miss it, and I miss how it makes me feel, physically and mentally. But I just can’t imagine how on earth it can be safe. So there’s a lot of investigating to do, a lot of thinking and weighing the pros and cons to do. I’ve never been so jealous of people having their own private pools.

365 Days of Kittens 2.0

A year ago today, we were unexpectedly blessed by two new kittens, Sooty and Sweep, also known as “the beans.” And what a year it’s been.

Last spring, my Mum and I were toying with the idea of a last round of kittens before we had our younger two cats spayed. The experience of raising kittens had always been such a positive one and we liked the idea of doing it one more time. Of the two cats, we thought Mouse would be the better choice and so we had Tiger spayed but left Mouse to wander. But a couple of months later, my mental health plummeted and the idea of getting attached to kittens only to have to let them go just felt too much so we took Mouse to the vet for the pre-spay check up. The vet was happy with that but said she could probably do with losing a little bit of weight. I did wonder if she was pregnant but the vet categorically disagreed and explained the spaying process to us again.

Less than a week later, my Mum and I came home from a family dinner to find Mouse pacing on the doormat just inside the front door. As soon as she saw us, she started yowling and headed upstairs, pausing every few steps to make sure I was following. I wasn’t a hundred percent sure but it was exactly the same behaviour that Lucy had displayed when she had her two litters of kittens. So I followed Mouse up to my room where she curled up in the cat bed and within a couple of hours, our two little black furballs were born. Girls was my guess and I was right.

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So that was a bit of a shock.

But, of course, they were gorgeous and I was immediately in love. Unfortunately, Mouse wasn’t the natural mother that Lucy had been to her and her sister. She’d curl around them, feed them, and clean them, but then she’d get up and leave them for fairly considerable periods of time. And since kittens can’t regulate their own body temperatures, I was worried, even though it was summer and the weather was very warm. So we had to take somewhat drastic measures: I set up camp on the floor next to the cat bed and every time Mouse went to leave, I turned her around and nudged her back inside. Most of the time, she simply climbed back in and curled up with them; it was like she just didn’t know that that was what she was supposed to do but with a bit of encouragement, she started to get the idea. I stayed there for two weeks until I was confident that she didn’t need my direction although I didn’t stray far, just in case.

To make matters more complicated, we were in the middle of a heatwave and I was worried about them all overheating (we even ended up at the emergency vet at one point). Mouse – a very fluffy cat – did have to leave from time to time, just to stretch out and cool down, although she had by that point gotten the hang of things and didn’t leave the kittens for long. I struggle with the heat and so we’d just bought a pretty expensive fan but we ended up mostly using it to keep the general room temperature down. It was a stressful balancing act.

The arrival of the kittens also changed the general cat dynamic in the house, as well as my relationship with them. The living room (where we’d moved the bed with the kittens – it was easier to manage the temperature in there and still allowed me to work while I kept vigil) had always been the central hub of the house, where we all – cats included – hung out. But suddenly Lucy and Tiger were nowhere to be found and since I was on kitten watch, I barely saw them. That was quite upsetting as I was used to Lucy always sticking close and Tiger constantly climbing all over me. I missed them. I just had to hope that things would return to normal once the kittens went to their new home (the plan my Mum and I had discussed and felt comfortable with, especially if they could go to the same home).

Then Mouse started trying to move the kittens out of the bed, into different corners of the living room. It would have been cute if she didn’t keep trying to stash them in potentially problematic hidey-holes: amongst the wires behind the TV, behind the sofa… She even got one of them half way down the stairs a couple of times. That wasn’t exactly ideal. In the end, we managed to compromise – yes, I was compromising with my cat… I built her a new nest under the TV, carefully covering all of the wires with a blanket and then another in the crate we still had from the last litter.

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The best part of having kittens is when they open their eyes and started stumbling around, exploring and playing clumsily. They’re so in the moment, all of their focus on what they’re doing. It’s so mindful and so calming to watch. And their innocence is just good for the soul. There’s something magical about knowing that you’re giving these open, trusting little creatures the best possible start in life, giving them as much love and attention and care as you can.

While I do kind of love the idea of having a big litter of kittens running around, there’s something really special about just having two. They were partners in crime, always  snuggled up together, playing together, or getting into trouble together. They were constantly getting stuck in ridiculous places, no doubt due to their boundless curiosity. There was one particularly memorable incident where I scraped up my arm, forcing it behind the bookshelf to retrieve one of them when she got trapped behind it. How she got behind it in the first place I have no idea. Safely rescued, she shook herself off and was off playing with her sister, no worse for wear.

We did end up naming them, for ourselves at least. It wasn’t like we could refer to them by colour since they were both ‘the black one.’ So they became Sooty and Sweep (I’d always wanted to do matching names – even if it was just going to be for a little while and just for me), Sweep being the fluffier of the two. Due to their birth order, it should really be Sweep and Sooty but oh well. You can’t win ’em all.

(In the second photo, they’re watching the TV.)

Mouse has slowly become a really good mother and to this day (spoiler alert: we kept them, as the title suggests), she’s still very close to them, especially Sweep. We often find the two of them cleaning each other or curled up together. It’s very cute. She’s close to Sooty too but more often than not, Sooty snuggles up with me. They’re both very people friendly cats, inquisitive about new people, obliging when we want affection, and downright cuddly when they want affection. They have really lovely characters, both of them.

Lucy and Tiger eventually stopped avoiding them, curiously checking them out. Sooty and Sweep were very enthusiastic, always wanting to play or snuggle. The older cats were more reserved but after a while, they formed a little pack: we call them our pride of cats. Now they eat together, play together, and contently share the cat tree.

Lucy and Tiger also returned to their normal behaviour. Lucy spends her days stretched out on what she considers ‘her’ chair, hanging out with me while I work or write or practice, and Tiger, while fairly independent, comes to lie on me every day, sometimes multiple times. That always makes me really smile-y; I’d missed that.

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They weren’t quite old enough to go to new homes when my mental health suddenly plummeted, my depression dropping to new gut-wrenching levels and my anxiety through the roof: sometimes it was so bad that I could barely speak. And in the middle of that, I started my Masters and started the release cycle of my first EP, both of which were incredibly stressful. But the kittens helped in a way nothing else did or could, their mindful behaviour very soothing.

As I said, we hadn’t intended to keep them but with the stress I was under, Mum was happy to leave the process of finding them a new home until I felt a bit more settled and emotionally stable. But I continued to struggle – having meltdowns almost everyday, leaving me physically and emotionally drained – and it turned into a landmine of its own. The thought of them going was physically painful and I couldn’t bear to bring up the subject, knowing that the conversation would just cause yet another meltdown. And with the amount I was having, I was desperate to avoid actively causing them.

Weeks after they originally would’ve gone, me and Mum had had a few brief conversations about the situation and how difficult and overwhelming I was finding it (on top of everything else) and we realised that, somehow, the decision had made itself. We were keeping them. I sobbed and sobbed and sobbed with relief and Mum held me until I was all cried out. I was exhausted but a weight had been lifted and during this awful period where everything felt wrong, something finally felt right. I don’t think either of us have regretted it for a moment (well, except maybe when it seemed to take Sooty forever to transition from using the litter box to the garden).

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I’ve loved every second with our pride of cats but they’ve truly been a life saver during this pandemic, one of the very few things that have helped with my mental health, helped calm (or at least manage) my overwhelming fears; cuddling or stroking them, even just watching them, can pull me out of an anxiety spiral. They’re completely unaware of the pandemic, of the bigger picture, and when I get lost in my panic, watching them exist in their own little world – waiting for their next meal, chasing bugs in the garden, stretching out on the cat tree, or demanding my attention – helps me rein in all the ‘what if’s and reestablish a sense of perspective. As much as possible anyway.

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And now they’re a year old. I kind of can’t believe it. Somehow it’s simultaneously flown by and been the longest year of my life. But as I said, I’ve loved every moment with them. My family of cats is one of the most precious things to me and the addition of Sooty and Sweep has been a true, if unexpected, gift.

(One second a day of Sooty and Sweep’s first year.)

Living with Autism During a Pandemic

I know that everyone is talking about this right now and I’d rather not because it makes me so anxious but there are a couple of things I want to say and then hopefully this blog can go back to being a Coronavirus free zone. I know it’s scary for a lot of people and there’s a lot of information and advice being thrown in your face so I just want to document my experience so far and write about the things that are helping me to minimise my anxiety.

I think the first thing to say is that I hate change, as I know many autistic people do. I especially hate sudden change because it gives me no time to process what’s going on, which causes me a lot of anxiety. It also messes with my emotions, leaving me feeling unsettled and sick and empty and twisted up. I can’t really explain it properly; it’s such a specific feeling.

The first big thing to happen was Tin Pan South, the festival we were going to Nashville for, was cancelled, which meant we had to decide whether or not still to go as it could be more expensive to cancel our flights. But as the news from other countries got more serious, we decided that we didn’t want to go and get stuck there so we had to make the difficult decision to cancel. I was gutted. I am gutted (we were supposed to be flying out today). I was so looking forward to the trip and to the festival that, not only was the change stressful, it was very distressing too. And then, of course, there was the stress of getting the money back. With the travel ban, we have since managed to get everything refunded or in credit but it was incredibly stressful, in addition to all the stress coming from the news about the virus. I have family who would be in serious danger if they caught it so, even though I’m in much less danger, I was  terrified of unknowingly transmitting the virus to them. I still am so we’ve all been self isolating apart from essential trips like picking up extra medication and so on.

And then, suddenly, everything started happening. All of the concerts I was going to got cancelled, which isn’t a big deal in the grand scheme of things but they are the bright spots in my life that get me through when I’m in a bad place, which I arguably am right now. So that’s been difficult, especially the suddenness, as I mentioned earlier. Then one of my best friends was suddenly on a plane home, which was very upsetting (although, of course, I understand and support her in wanting to be with her family); one minute we were making plans for the next day and the next she was messaging me from the plane. That change has been hard and I’ve cried a lot about it. Plus, just as I’ve  started to get into the groove of going to therapy again, we’re having to switch to video sessions, which I thought I was fine with but turns out I’m struggling with. And then there’s just all the not knowing what’s going to happen or how long this is going to last. So there’s been a lot of change really fast.

I actually feel quite traumatised by all the changes. Stuff like this always messes with my head and with my emotions and I end up feeling like it’s causing brain damage, like parts of my brain are being permanently warped and will never recover.

The week after all of these changes happened (most of them happened over the weekend and into the Monday), I wasn’t going to go to uni. Many of my friends and classmates weren’t going, having gone back to their families abroad and within the UK, and I just couldn’t bear to be there and see it without them all with so little time to adjust. I just felt so unsettled and restless and anxious. I don’t think I’d’ve been able to concentrate if I’d been there.

My course discussed it through our WhatsApp group (we’re a small course) and ended up emailing our programme leaders to say that we didn’t feel safe and that we didn’t feel it was responsible for us all to be there, to travel in on public transport, and so on. Very few people went to the classes and I think it was later that day that it was announced that the course would be moving to online classes. I’m yet to see how smoothly that goes. They’re not moving our assessment deadlines, which many people are very upset about, something I definitely understand. There are a lot of reasons to feel an extension is necessary. My mind changes from hour to hour; I don’t know whether I’d want an extension. Yes, there’s massive anxiety affecting my life that makes it hard to work but at the same time, we don’t know how long it’s going to go on for and I’d rather just get the assessment over, if that makes sense. I don’t know. I don’t know what I want.

Me and my Mum – my household – are self isolating, apart from necessary trips out (getting the necessary supplies to stay in, getting supplies for the cats, getting what we need to allow us to work from home, and so on – making it possible to self isolate for as long as we need to). It’s weird: I usually spend days at a time inside but suddenly I’m really claustrophobic and restless and anxious and it’s been less than a week. I don’t know where that’s coming from. Maybe I’m just so full of anxiety that everything is making me anxious.

So, having said that, I wanted to list for you a few of the things I’m doing to try and minimise my anxiety:

  • Keep a routine – I’m not talking about being really ambitious. If you’re like me and you struggle with Autism and/or mental health problems, diving into a really ambitious schedule just means I end up crashing and burning and then feeling terrible. So when I say ‘keep a routine,’ I’m talking about the little things. I’m talking about getting up at a reasonable time, showering, remembering to eat, getting fresh air (even if it’s only opening the windows and getting out into the garden, if you have one)… Things like that. Yes, it’s motivating to be productive so if that feels possible, go for it, but it’s also important to be gentle with ourselves during a time of such great stress.
  • Keep to a regular sleep schedule – With nowhere to go (if you’re self isolating), it’s easy to just stay in bed, get up late, and then end up going to sleep at four in the morning. It’s really, really easy. But I’m trying to go to bed at my normal time and get up early, like I do everyday. It’s much better for my mood than if I stay in bed for hours. A regular sleep schedule is actually proven to reduce stress, help you to avoid getting sick, help you think more clearly, and a multitude of other things, all useful at a time like this.
  • Stay on top of my medication – This is a fairly obvious one but if you take medication, make sure you’re stocked up and that you take it diligently. I take a regular antidepressant, a regular anti-anxiety, and then I have an anti-anxiety to take as needed. And, as you can imagine, I’m needing it a lot right now. So I’m constantly listening to my body so that I’m aware of when I need to take it as early as possible, so that I avoid the unnecessary anxiety. Of course, there’s huge anxiety going around but there’s also anxiety that we don’t need to feel and if we can avoid it, then I’m all for that.
  • Start and end the day with something calming – I’m dealing with a lot of anxiety (as we all are) so I find it helpful to start and end the day with something that relaxes me. For me, this is usually writing my diary because it empties some of the stuff out of my brain and helps me feel like I’m not trying to hold onto so much. It’s all safe, but I don’t have to actively hold it in my head. So letting some it go is like being able to breathe deeply again.
  • If the news is too much for you, ask someone in your support system to keep you up to date on the important announcements – My anxiety has always been triggered by the news and it’s even worse now so my Mum listens to it, filters out all the noise and fear and things I don’t need to know and gives me the important, relevant information. This has been so helpful since there’s been so much confusion and misinformation and fear mongering. If this isn’t possible for you, check your national news once a day and then try not to look at it again. Because there isn’t as much information as there is news time, there’s a lot of speculation and opinion and it doesn’t do any good to get sucked into that spiral if you’re already really struggling with anxiety.
  • If you have to work or study, try to do it in manageable chunks (which will be specific to you) – As I’ve already mentioned, I still have an assessment deadline. I still have an essay due. So, even though I’m really struggling to focus because of all the anxiety (which means it’s taking so much longer than it normally would), I’m trying to work on it everyday so that it doesn’t pile up and so I don’t end up overloaded and overwhelmed (it hasn’t helped that I’ve had multiple problems with my laptop in the last few weeks). It’s hard, especially since it’s now much more difficult to get help with it, but hopefully the slow and steady approach works.
  • Indulge in simple things that improve your mood – This is not a trick question. If there’s something simple that makes you feel better, let it make you feel better. Some of the things that boost my mood (even temporarily) are having the fairy lights on, burning my favourite candle, spending time with my cats, watching my favourite movies and TV shows… You’re allowed to feel good, to try and feel okay even in the face of this big, scary thing and if something really simple does the job, then go for it.

If there was ever a time for looking after yourself mentally (and obviously physically), it’s now. I hope some of these tips are helpful and let me know if there’s anything that you find helpful in stressful times such as these. As I said at the beginning, hopefully this blog can go back to being a Coronavirus free zone after this post because I know it’s triggering for a lot of people, myself included. But if I find any helpful resources for getting through this, I’ll definitely share them because I figure we could all use all the help we can get.