Posted on May 13, 2023
So yesterday was the 12th of May, also known in the UK as Mass Observation Day! Every year, the Mass Observation Archive asks people to keep a diary for the day in order to record the everyday lives of the UK population. I’ve been keeping diaries for most of my life and I think that the idea of pulling together all of these accounts in order to get a picture of an ordinary day in the life, whatever that might look like, for a big group of people is really, really cool so I always try to participate. Here is my contribution for this year.
Some important things to know before reading: I’m neurodivergent, autistic and ADHD, and struggle with multiple mental health issues (Depression, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, and Borderline Personality Disorder) and physical health problems (Hypermobile Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome). Having spent eighteen months in the worst depressive episode of my life, I’m recently back on medication and trying to get my feet under me again, working hard at both therapy and hydrotherapy. I’ve also recently released my latest single as a singersongwriter, ‘House on Fire,’ and am working towards several other projects.
I slept through two alarms, completely exhausted. I’d had a really late night in London seeing Ingrid Andress in concert (supported by Nick Wilson), which was absolutely amazing but between the energy expended and how late I got home, I was beyond tired.
When I finally managed to force myself awake around eleven, I lay in bed for a little while: I did a quick check in with social media (I’m trying really hard to find a healthy balance around time on my phone), did some Duolingo practice, and read a little bit of my book (both of these things are habits that I’m trying to practice daily). Then I got up and got ready for the rest of the day.
At one, I had a Zoom date with one of my best friends. We had a good catch up about what’s being going on for each of us, with many a tangent on kind of bizarre topics like alternate universes or the different sounds that insects make. And then we continued watching the TV series we’ve been watching together for the last few months, a series we both enjoyed when we were younger; we love it but we also love making fun of it so we always have a blast. We managed to watch two episodes and had a great time before I had to go. I didn’t have long before my therapy appointment so I got my bag ready and then fiddled around on my guitar until I had to leave (I haven’t been able to play for long stretches of time recently since I hurt a couple of my fingers so I’m trying to build it up again).
I was so tired and really sleepy (one of the ongoing symptoms of my health struggles and quite likely a side effect of my medication), plus my chronic pain was pretty bad (my shoulder and knee have been particularly painful for several days now), but I tried my best to push through and engage the best I could with therapy. In some ways, it was a fairly chilled session (as they go): my therapist had asked me to send her the poetry I’ve been working on over the last month or so, which I did. But it was also hard and I felt really vulnerable because most of the poems are so honest and so revealing. There were some that I said, before we even started, that I couldn’t talk about; just writing about those topics and sharing them (my anxiety about them was so high that I was really tempted to leave them out) was a big step forward. Obviously I want my therapist to know about these struggles but talking about them is beyond difficult (just the thought of it makes me want to scream or run or both); this is the best I can do for now. So we went through the poems, talking about what inspired them and my feelings about those people or experiences or struggles, which inevitably turned into bigger discussions. That meant that we didn’t get through all of them but we did cover some important stuff. I’ve been back at therapy for a while now – several months – but my new therapist is still getting to know me and I’m still getting comfortable with her; there are many things that I can talk about but there are still things that I can’t, things that I’ve never been able to. It’s a process, as I often have to remind myself.
Back home, I talked with my Mum about some of the stuff that had come up in the session but I’m always completely exhausted after therapy – I have been known to fall asleep on the sofa afterwards, hence the late afternoon appointments – so I checked in with the cats, put on The Good Place (my current rewatch), and lay on the sofa for a bit. I called one of my parents for a catch up, had some dinner, and then spent the rest of the evening working on some different things for this blog.

What should’ve been a fairly pleasant evening was complicated a bit by how bad my hair pulling has gotten. That restless, anxious energy that drives me to keep doing it is so hard to resist, especially when I’m tired, and the longer I do it, the more it hurts: my scalp, my neck, my shoulder, my elbow, my hand. But I can’t stop. There have been periods of time where different coping mechanisms have at least reduced the amount of hair pulling but I don’t have one that’s working right now. It’s frustrating and it’s exhausting and painful but I just can’t stop, regardless of how much I want to. I did look into Hypnotherapy briefly a long time ago but didn’t get very far with that endeavour, maybe because it always felt like there were bigger things going on, but maybe I’ll try again because it’s been ten years and it would be really nice not to do this anymore.
Given how tired I was, I tried to go to bed earlier – I’ve been going to bed far too late – and while I did go to bed a bit earlier, I still ended up staying up too late, catching up with my diary. I had multiple cats curled up with me, which was very sweet, so it could’ve been worse and, after all of my problems with sleep, I did at least go to sleep quickly and easily; I’m always grateful for that now, having struggled so much over the last couple of years.

So it wasn’t the most fascinating day of my life but it’s pretty accurate to my life right now and I guess that’s the point of the exercise. It’s a normal day in my life and this is what normal looks like right now, for the most part.
If you keep a diary or want to note down some thoughts about what your 12th of May looked like, the website is here, where you can learn more about this project (and their other work) and submit your entry if you would like to.
Category: animals, anxiety, chronic fatigue, chronic pain, depression, emotions, family, food, medication, mental health, music, response, special interests, therapy, trichotillomania, writing Tagged: 12th may, anxiety, best friend, chronic fatigue, chronic pain, concert, depression, fatigue, friend, hair pulling, house on fire, independent artist, ingrid andress, live music, mass observation, mass observation archive, mass observation day, mass observation day 2023, mental health, music, new music, new therapist, nick wilson, pain, poetry, singersongwriter, songwriter, songwriting, the good person tour, therapist, therapy, trich, trichotillomania, writer, writing, zoom
Posted on May 13, 2022
It’s the 12th of May again, which means it’s Mass Observation Day! Every year, the Mass Observation Archive asks people to keep a diary for a day to record the everyday lives of those in the UK. I’ve written diaries for most of my life and I love the idea of pulling together all of these accounts in order to get a picture of an ordinary day in the life, whatever that might look like, for people in the UK. It’s like putting together the pieces of a puzzle. So here is my piece.
Some important things to know before reading: I’m autistic and live with Depression, Generalised Anxiety Disorder, Obsessive Compulsive Disorder, and Borderline Personality Disorder. More recently, I was diagnosed with Attention Deficit Hyperactivity Disorder (Inattentive Type), Hypermobile Ehlers-Danlos Syndrome, and Postural Orthostatic Tachycardia Syndrome. I’m currently in between things: I finished my Masters Degree in Songwriting and am currently working on my next project for release but, at the same time, I’m trying to get my health (physical and mental) into a more stable place.
It wasn’t (and wasn’t ever going to be) a busy day. I’m halfway through getting off Moclobemide, my most recent antidepressant, so I’m trying to be gentle with myself; I’m trying not to push myself too hard. I’m also trying not to give myself a hard time for not doing more – with varying degrees of success. There’s just a lot going on at the moment, health-wise.
I had a bad start to the day in that I slept really badly, which has been the not so new normal ever since I tried taking medication for my ADHD. Even though I stopped taking them months ago, my sleep still hasn’t recovered fully. Between that, my chronic pain, and the crying baby next door, I didn’t get to sleep for a long time and woke up repeatedly. I didn’t really feel like I’d ever really gone to sleep, to be honest. I woke up around half ten (which is actually pretty good for me at the moment, what with the off kilter sleep schedule) because next door were having their deck worked on and the noise was too much to ignore.
There’s so much pain when I wake up in the morning at the moment. It’s awful. I can’t do anything until painkillers have kicked in and after feeling all of that, I’m generally pretty exhausted. I lay in bed for a while, reading until I felt like I could manage a shower, something that’s especially difficult at the moment as the pain is worst in my arms.
By midday, I was settled in the living room with my laptop. I had a couple of hours before a Zoom session with Richard (one of my best friends, my writing partner, my producer, and more) so I got to work. There were a couple of tracks that I needed to sign off on before they went to be mixed and mastered so I listened to those and did sign off. That done, I worked on a couple of upcoming blog posts until it was time for the Zoom session.
We caught up a bit since it’s been a little while since we last saw each other (although we frequently text each other silly jokes and pictures) and then we got down to business. [While I will be including the details in the version of this that I send in to the Mass Observation Archive, I don’t want to give away the details of new music. I will say that we worked on two tracks that I plan to release soon and discussed another bigger project that will be coming, hopefully, in the not too distant future.] All in all, it was a productive session.
I took a break after that. I put Harrow on (it’s been added to Disney+ so I’ve been rewatching it over the last few days) before having a quick check in with social media and then spending a bit of time reading.
It took a while to reel my focus back in but then I spent a couple of hours working on a couple of different upcoming blog posts. For some reason, my Mental Health Awareness Week blog post has been a struggle right from the start and I still haven’t finished it. I think I’m anxious about getting the balance right, of writing about the loneliness (the theme this year) without sounding ungrateful for the people I do have because I really am so grateful for them. I also just find Mental Health Awareness Week hard, with social media overflowing with vague, trite advice – advice that was vague and trite five years ago. I know it’s Mental HEALTH Awareness Week and not Mental ILLNESS Awareness Week but mental illness is part of mental health and I just feel like this should be a week (and don’t get me started on the fact that so many people and organisations only talk about mental health during this one week of the year) where every part of mental health and mental illness can be talked about, not just the ‘socially acceptable’ parts. But it isn’t. It doesn’t feel safe to do that. Loneliness isn’t a bad theme: loneliness and isolation are real obstacles to staying mentally healthy, to the point where it can be considered trauma. I guess I just feel like Mental Health Awareness Week isn’t enough when you’re trying to stay afloat in the ocean that is mental illness.
I had to stop working on that post after a while. I was just getting too frustrated. And then it wasn’t long before I was interrupted by the announcement of dinner. For those of you who don’t know, I live with my Mum but I have three other parents that I don’t live with. Anyway, one of them came over for dinner – something we do roughly once a week – and we had a good hang out and catch up. Sometimes we watch a movie but since neither she nor I were feeling great, we didn’t this time.
When she left, my Mum and I continued watching Harrow (she loved the show too) and I did another hour or so of work on blog posts – I’ve got a couple that I’ve been pulling together for a long time that I’ll hopefully be able to post soon – before moving over to my diary. Which brings us back to this post.
It wasn’t the most interesting day but I guess that’s kind of the point. It’s a normal day. And this is what normal looks like for me, this week at least. Who knows what next week will look like.
If you keep a diary or want to write down some thoughts about what your 12th May looked like, the website is here, where you can submit your diary entry and learn more about this and their other projects.
Category: about me, chronic pain, family, mental health, music, sleep, writing Tagged: 12th may, chronic pain, day in the life, diary, harrow, journaling, mass observation archive, mass observation day, mass observation day 2022, medication, mental health, mental health awareness, mental health awareness week, mental health awareness week 2022, mental illness, music production, new music, richard marc, richard marc music, singersongwriter, singersongwriter life, sleep, sleeplessness

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope