Posted on April 17, 2023
TW: Mentions of depression, suicidal thoughts, and a school shooting.
I’m still trying to pull together a post about my mental health before I went to Nashville. I was really, really struggling and even though I was still agonising over taking the Phenelzine again, it was this trip that pushed me to do it; I knew I wouldn’t be able to handle it if I didn’t. But I was still struggling with what felt like surrender, like failure, when we left; I was still very depressed and having suicidal thoughts, not even two full weeks in; and I was fighting some pretty intense side effects from the meds throughout the whole trip. It was not an easy time.
GETTING TO NASHVILLE
The travel is usually somewhere between exhausting and a complete nightmare; I think many, many disabled people would say the same thing about travel, especially transatlantic travel. This year, it was hard for all of the reasons that it’s usually hard – I find airports stressful, I’m not a fan of flying, I find the whole experience uncomfortable and actually painful depending on the length of the trip, and so on – but it actually wasn’t terrible. For the first time, I was able to get a direct flight from Heathrow to Nashville and that made such a difference; I’ve always found the changeover and everything that that entails to be a particularly exhausting element of the trip. I didn’t sleep but then the eight hour flight was – the complicatedness of crossing timezones aside – during the day; I even managed to get some work done on the flight, something that I always plan but never achieve. And having the Meet and Assist service at the airports was, as always, a great help, making the whole thing easier, quicker, and less stressful. So it was definitely better than expected.
Unfortunately, I had the worst jet lag I’ve probably ever had going to Nashville. Usually I’m over it in a few days but I was struggling to sleep, waking up at all hours, constantly falling asleep on the sofa, and fighting exhaustion until about the last day. So that was frustrating and made some days more of a struggle than others but fortunately I was able to manage well enough that it didn’t ruin the trip.
THE COVENANT SCHOOL SHOOTING
We weren’t even halfway through our first full day in Nashville when the news of The Covenant School shooting broke.
I’ve spent a lot of time thinking about what to write for this section because, honestly, I’m still processing how I feel about it; it’s been a very overwhelming thing to be even tangentially a part of because things like this just don’t happen at home. At home, you obviously hear about the mass shootings in America and you do stop and think all of the same things – “it’s a tragedy” and “no one should be able to buy automatic weapons” and “how do these awful things keep happening?” – but it’s so, so different to be there when it happens. And not just in America but a neighbourhood or so over from where it happened. (Not to mention that I know people who live around there; I didn’t know if their kids went to that school or whether they had family there.) It was very distressing and I couldn’t help feeling just overwhelmingly hopeless because more people are dead – more children are dead – and nothing will change. I didn’t know what to do with myself and all of my feelings; here were all of these lives being changed forever and I could feel my life being rocked by that. I was really shaken.
The festival hadn’t started yet but the two shows that I had tickets to that night were cancelled and I know that many others were too. I didn’t know what the right thing would’ve been and I didn’t know how I felt about any of it so I was kind of glad that the decision was taken away from me. That night, I ended up staying home and just feeling my feelings before I had to go out and face the world all day everyday for the next week and a half.
The festival itself went ahead, although it seemed that there had been some serious thought about whether or not to cancel at the very least the shows at the beginning of the week. I think that, ultimately, the consensus they came to was that music is a great healer and a great uniter of people and that, of the two options, going ahead was the right choice. Initially, the mood was heavy and somber and everyone performing had clearly thought very seriously about what they were going to play, what energy a song would be putting into the room and how it would impact everyone listening. The shows didn’t suffer for it though, the performances sincere and heartfelt. The mood did lighten somewhat as the week went on but the shooting was clearly still present in everyone’s minds, reflected in their song choices and in the heart they put into their performances. There were some cancellations which was a shame but obviously completely understandable; there was no ill will from anyone.
It was scary, being reminded that anyone could be carrying a gun, and so deeply sad that I’ve only just started to really process it, only just been able to pull the time together to do so. Having said that, it was really quite heartening to hear so many people – in Tennessee, a deeply red state – rage against gun ownership and criticise the country’s approach to gun control, including some who I would’ve assumed felt differently. I know that tragedies like these, especially in communities like Nashville, impassion people but I’m not sure if that would be possible if people were firmly at the other end of the scale.
I’m sure there’s more I could say but, as I said, I’m still working through it all. It’s a lot to process.
TIN PAN SOUTH
Over the years, my motivations behind choosing Tin Pan South rounds have changed. Sometimes I want to see my heroes and want to be inspired; sometimes I want to find new, exciting writers; sometimes I want to see friends who are playing; sometimes there’s a networking aspect; sometimes I want to see writers who’ve been recommended; sometimes it’s a mix. After everything this last year and the stress associated with the trip (and the Phenelzine), I’ve really struggled with music: my love of it, my trust in it. So, this year, I just wanted to go and see people that I knew would put on amazing shows; I wanted to be reminded of how much I love music and how much it means to me. So those were the shows I chose, the ones with people who I knew would blow me away to aid that. And they did.
It was a really, really great year; there were so many amazing people with so many awesome songs, all with interesting and inspiring stories. Listing everyone would take forever so here are a select few that really blew me away, that really made the festival for me…
Honourable mentions to Kassi Ashton, Barry Dean, Nicolle Galyon, Bethany Joy Lenz (she is just a born performer), Jeff Cohen, Ben Earle, Jenn Bostic (what an incredible voice she has), Phil Barton, and Jeffrey Steele. I mentioned many of these in my Nashville Playlist (2023) post.
It was a really amazing year with so many amazing people. I don’t think I can choose a favourite round but my two favourite were the Madeline Edwards round and the round with Michael Logen, Bethany Joy Lenz, Jeff Cohen, Jenn Bostic, and Ben Earle. Those two rounds were just off the freaking charts. All of the rounds were good (even the ‘less good’ ones were still really good – it’s just that the bar for ‘good’ was so incredibly high) but those two were some of the best I’ve ever been to.
TORNADO WARNING
On the Friday night, there was a tornado warning; some of the venues cancelled their shows and the tutors warned us to be home early. None of the locals I spoke to were worried (and neither was I to be honest, having been in town for multiple warnings over the years, all of which came to nothing) but I understand why the tutors were being cautious; even though we’re adults, they do feel some degree of responsibility over us and more so, I think, in potentially dangerous situations that we have no experience of at home, like tornado warnings. So we were encouraged to go home and stay there but those of us who were feeling brave (or just not worried) ended up hanging out together at one of the group’s Airbnbs, having a chill little party. Calling it a party is probably a bit generous given that we just sat in the courtyard in the pre-storm heat, talking shit and having a good time, but it was so nice: at the beginning of the week I’d known one person and there I was, hanging out with a group I was only just getting to know, having a really nice time and just feeling so normal. That was kind of amazing because I never feel normal; I cannot remember the last time I felt normal. So not only was it good fun but that made it yet another special experience in a very special week. Phenelzine was definitely a big part of making that happen but there’s something special about Nashville that has always made things possible for me that I’d never imagined would be.
Even though I wasn’t seriously worried about a tornado, I did keep an eye on the weather and ended up leaving a bit earlier than I otherwise might’ve because things did start to get a bit wild – wind and rain and the air was only getting heavier. I’d been invited to stay but my Airbnb was only a few minutes away so I said my goodbyes and zipped home. Before going inside though, I stood out in the wild weather. It wasn’t any worse than the storms we occasionally get at home and I love storms: there’s something about them that makes me feel so alive, like everything is heightened, like every atom in my body is in tune with the storm. It kind of makes me feel like I have superpowers, like I could control the weather myself; I love it.
So it was actually a really good end to the day and apart from some pretty strong winds and heavy rain, we were all no worse for wear in the morning.
SONG SUFFRAGETTES 9TH ANNIVERSARY SHOW
Song Suffragettes is one of my favourite parts about going to Nashville and getting to go to an anniversary show only makes it more special. They play two shorter rounds instead of the usual longer one, plus they honour an incredible female songwriter with the Song Suffragettes Yellow Rose of Inspiration Award; she gets interviewed by another very cool female songwriter. This year Natalie Hemby (yay!) was being honoured, interviewed by Maggie Rose, so it was a very special show to be at.
The first round was Morgan Johnston, Valerie Ponzio, Carter Faith, Robyn Ottolini, and Shelly Fairchild with Grace Bowers on guitar (she was an incredible, incredible guitarist and that’t not even taking into account how young she is), plus Mia Morris on percussion plus a song of her own. They were all great and I’d seen both Carter and Robyn before when they came to London on the Song Suffragettes tour last year. So it was cool to have some familiar faces and some brand new ones. I wrote about several of the songs played in my Nashville Playlist (2023) post but I want to include my favourites here too. I love Carter’s ‘Leaving Tennesse.’ It’s so gentle and comforting to listen to, simple and sweet but so heartfelt. I wrote in my earlier post that I think the reason it resonates with me so strongly is that, while I’ll likely never be able to live in Nashville – for multiple reasons that aren’t worth getting into here – it does feel like a part of me stays in Nashville every time I go home, a part that I reunite with every time I return. So, in a way, I don’t ever leave Nashville, don’t ever leave Tennessee. I also loved Robyn’s ‘Heart Less’ and I loved the twist in the chorus lyric; it was beautiful and I hope she releases it.
The second round was made up of Jessica Willis Fisher, Carmen Dianne, Haley Mae Campbell, Gina Venier, and Victoria Banks, with Mia on percussion and with her own song on the round. I’ve heard her song, ‘No One Cares,’ but it honestly never gets less funny; it’s so snarky and sarcastic and fun and her ability to play with rhythm, both in her melodies and her instrumentation, is amazing. My two favourites songs of the night are a tie between ‘Giving Up’ by Carmen Dianne and ‘Nora Jane’ by Gina Venier. Carmen was playing bass, which was really cool (the musicianship of this show was the most impressive I’ve ever seen from Song Suffragettes – it was amazing), and her vocals were fantastic. Her song, ‘Giving Up,’ had some really strong parallels to a painful experience I’ve been in but it was really empowering, with compelling lyrics and a bold, rebellious melody; I’m obsessed with it. My other favourite was ‘Nora Jane’ by Gina Venier, a song about the fear of coming out to her family that ends with her family accepting her and her girlfriend fully. It’s a beautifully written song and a story that is still incredibly uncommon in country music; I can see why so many people feel validated by hearing her story and why they feel like she’s telling their story too. I can only imagine how much bravery it took to write and perform this song – with America, the South, Tennessee, ‘Christian Values,’ and so on being the way they are – and so it felt like a real honour to be trusted with her story, with her opening up and being vulnerable.
Then Maggie and Natalie and came out to rapturous applause. Maggie asked a lot of really interesting questions, which Natalie answered, her usual dry, irreverent self; as always, she was full of funny stories, like writing for A Star is Born and a room full of highly successful, highly thought of songwriters all passing on what became ‘Shallow.’ I’ve always loved Natalie for her openness and her sincerity, even though she’s full of jokes and sly humour, and I love that while she is confident in her abilities, there’s no ego: she’ll talk to you and engage with you, especially about songwriting regardless of how ‘good’ you are – you don’t need to be the next whoever to be worthy of her attention. She’s just a lovely, genuine human being – how could you not love her?
After the interview, she played three songs. The first was a new song that was really beautiful. The second was ‘Rainbow,’ which Kacey Musgraves released (the two of them wrote it several years back with Shane McAnally). She’d just played it at the funeral of one of the girls killed in The Covenant School shooting; it was apparently her favourite song. I think, as a song, it’s always meant a lot to her and that has only grown over the years as people have attached their own stories to it. And the third and final song she played was ‘Crowded Table,’ which she wrote with Lori McKenna and Brandi Carlile for her group project with Brandi Carlile, Maren Morris, and Amanda Shires. She started to play it but then changed her mind, unplugged her guitar, and started the song again, climbing down from the stage and walking through the audience as she played. I don’t think I’ve ever seen anyone do that and apparently no one has ever done it at The Listening Room. It was a very sweet, special moment, perfect for the last performance of the trip.
When the show was over, I got to catch up a little with the people I know from Song Suffragettes and I finally got to see Natalie, the two of us not having being able to catch up while I’d been there. We were both just so happy to see each other and it was a really lovely moment. It would’ve been nice to have a bit longer to catch up properly but I’m not complaining; it’s such a long way and a long time between visits that I’m always delighted to see her at all.
OTHER THINGS
GETTING HOME
Despite all of my negative emotions leading up to the trip, I found leaving to be very, very hard, even if I was looking forward to seeing my cats and sleeping in my own bed again. There had been so many magical moments and, for the first time in so, so long, moments of actual joy; I didn’t want to go home, go back to the real world, and lose those. So, yeah, it was just hard.
The Meet and Assist service made the airport experience much easier, as I said earlier and the flight was fine, if quite a bit bumpier than on the way out. We flew direct through the night and luckily, the flight wasn’t full and I managed to lie down with a full row to myself. It still wasn’t hugely comfortable and the sleep I got was more like a series of light naps but it was definitely better than I would’ve gotten had I been sitting up in a single chair. Having said that, being in that one position with my legs bent for so long meant that I almost couldn’t get up when we landed; I’ve never needed the airport wheelchair so much. We had some problems getting a coach back but then finally – finally – we were home. I don’t think I’ve ever been so excited to walk through my own front door (yes, I’m aware of how conflicted my feelings were and are).
I had hoped to go out in the evening – I thought it might actually help stave off the jet lag – but I was asleep within about ten minutes of sitting down on the sofa, where I slept on and off for the rest of the afternoon and evening, despite Mum’s attempts to wake me up. The thought that I’d ever have made it out to London (and back) was laughable by the time I dragged myself up for some food. I just couldn’t keep my eyes open; I was just so unbelievably tired. The nap completely screwed up my sleep schedule (which still hasn’t completely recovered) but the next morning, we retrieved the cats from the cattery, which was wonderful for me even if they were more interested in re-establishing their claim on the garden. I’d missed them desperately so I was delighted to have them around again (and I think they were actually quite pleased to have us back too since they’ve all spent most of the days since in whatever rooms we’re in).
CONCLUDING THOUGHTS
Even though I’ve been back for a couple of weeks, I still feel more than a bit floored by the whole trip. There were obviously the awful parts, like the school shooting, and the big uncertainties, like the tornado warning; I was struggling with my mental health and with the side effects of the Phenelzine and with all of the anxieties that always come with this trip, like plans changing at the last minute and adjusting to the way Nashville does everything compared to how we do them at home; there was the absolute exhaustion of doing so much after having been so flattened by my depression. The bad was bad – and scary and upsetting and overwhelming – but the good was so incredibly good. I got to see and spend time with people that I love; I got to meet and make friends with new, fun people; I got to hear some amazing music; I got to do some cool things that I don’t get to do at home; I got to feel normal; I got to feel joy for the first time in longer than I can remember. The spectrum of emotion was overwhelming and I’m still processing most of it and what it all means to me but I do know that I’m grateful that I got to be there; I will hold onto the memories forever.
This post turned out to be much longer than I intended it to be; I guess I didn’t realise how many thoughts and feelings I had about the different parts of the trip (and there are even more in my diaries!) until I started trying to sum it all up. But this was a really special experience. I couldn’t not write about it, not after everything it gave me.
Category: anxiety, autism, chronic pain, depression, emotions, event, favourites, food, heds, medication, mental health, music, sleep, special interests, suicide, university, video, writing Tagged: accessibility, airport, america, anxiety, asd, autism, autism spectrum disorder, cassidy daniels, depression, disabled accommodation, flying, friends, jet lag, lori mckenna, madeline edwards, medication, michael logen, nashville, nashville songwriters association international, nashville tennessee, natalie hemby, nsai, pancake pantry, phenelzine, school shooting, seth ennis, side effects, singersongwriter, skip black, song suffragettes, song suffragettes yellow rose of inspiration award, songwriter, songwriters festival, songwriting, tennessee, the candle bar, the covenant school shooting, tin pan south, tin pan south 2023, tin pan south songwriters festival, tornado warning, travel, trigger, trigger warning, tw, university, usa
Posted on March 12, 2022
TW: Mentions of self harm and suicidal thoughts.
In the last week of January, my psychiatrist told me to stop taking the Bupropion since it was so obviously having such a detrimental effect. In theory, after the wash out period was complete, I’d start taking a new antidepressant, Moclobemide. It’s an MAOI, like Phenelzine (the antidepressant that I’ve ever had the best response to – the only one I’ve had a halfway decent response to), so my psychiatrist thought it was the best option. But I was so depressed that I just couldn’t take it: knowing how these medications affect me, I just didn’t feel emotionally capable to handle the change.
But then, after a hellish few days and some kind of breakdown, I started taking Moclobemide. At that point, it was self preservation: I didn’t want to but I knew that I couldn’t keep feeling that awful – or worse – because something terrible was going to happen if something didn’t change.
This change was somewhat complicated by the fact that I was taking other medications at the same time. I was taking a lot of Diazepam with my anxiety so bad and I was also taking 20mg of Propranolol (recommended for anxiety and POTS – which was diagnosed by a cardiologist after a first round of tests – although I’m not sure it’s doing anything for either).
As is always the case with posts about medication, this is just my experience. Please don’t start, change, or stop taking any medications without the advice and support of a medical professional.
WEEK 1 (150mg twice daily)
The first week was bad. I was completely overwhelmed by my anxiety and needed constant Diazepam to be even vaguely functional, just to get out of bed. I was very depressed, feeling exhausted and hopeless and worn down. I was still having thoughts about self harm and suicide although not as much as I had been but I just felt utterly overwhelmed, by everything the world wants from me. Life just felt like too much.
I was still struggling to fall asleep (there was one night when I was still awake at seven thirty am). My sleep schedule was completely fucked up; I was almost nocturnal. And even then, I was falling asleep in the day, regardless of how hard I tried not to. As I said, it was a whole mess. I was exhausted all of the time.
My struggles with food continued too. I could barely eat and on the rare occasion where I did feel able to eat, nothing appealed – at all – or satisfied the feeling. But between my mental health and my sleep issues, food felt like the least of my problems.
I also spent more than half the week with at least a low level migraine, which wasn’t exactly pleasant.

WEEK 2
The second week was also pretty tough, although in a few different ways.
I was still feeling very anxious – the Diazepam was only doing so much – and my depression was still very present. I just couldn’t engage. I was miserable. I felt very overwhelmed; life just felt like it was too much.
At the beginning of the second week, I started taking Temazepam – prescribed by my GP – to help with my sleep. It gave me a couple of good nights but after that it didn’t seem to do much. Most nights, I was still awake for hours and struggling up in the afternoons; waking up was miserable. I was exhausted and sleepy and kept falling asleep in the day, despite drinking Red Bull, something I haven’t felt I needed in ages.
I did have one pretty intense day: despite only getting about three hours sleep, I was up early and writing a song from start to finish – something I haven’t been able to do in months. It’s usually a sign of how good or bad my mental health is: things are getting bad if I can’t write. I’m not jumping for joy just yet but I am cautiously optimistic that if this is possible, things are improving. I felt really good for a couple of hours but then all of the bad stuff crept in again: I went to bed feeling exhausted and overwhelmed by my anxiety and depression.
At the end of the week, I spent two days in and out of a hospital in London, having tests done (I wasn’t taking the Propranolol for a few days as advised so that it wouldn’t affect the results). Just being in the hospital and the staff’s general lack of understanding around Autism was stressful and frustrating and exhausting. The first day was quiet but it was hard to relax with the blood pressure monitor going off every twenty minutes. The second day was more involved with more than three hours of tests. It was exhausting – I could barely stay awake for the rest of the day – and my whole body hurt afterwards, so badly that even getting upstairs when we got home was a struggle. I don’t have a whole lot of faith that these tests will show anything different than the first round (which resulted in the POTS diagnosis) or in medical tests in general anymore but I guess we’ll find out what they say in a few weeks.

WEEK 3
At the beginning of the week, I officially gave up on Temazepam since it didn’t really seem to be doing anything. My GP had prescribed melatonin for when the Temazepam ran out so, with her blessing, I started taking that instead. It definitely improved my ability to sleep: after months of being awake for hours on end, I was falling asleep within half an hour every night. But I was still sleeping late – into the afternoon – and feeling sleepy in the day. I had several RedBulls in a week for the first time in months, which is a step backwards that I’m not happy about. I don’t know whether it was the melatonin or a side effect of the Moclobemide (not unlikely since I had the same side effect with Phenelzine) but, regardless, I hate it. This was one of the reasons I was so excited to try the ADHD meds; I thought I might finally feel something other than exhausted or sleepy or tired.
My chronic pain kicked up again, which was deeply unpleasant. My whole body hurt all week: every joint felt ache-y and crunchy and grind-y. I took painkillers throughout the day but the pain woke me up at night almost every night. But the only painkillers that help are ones that I can only take for a few days at a time and when those three days ran out, I was back to Ibuprofen and Paracetamol – neither of them do much – which was miserable and so frustrating: this has been going on – on and off – for almost two years and all I have are sporadic three day periods where I’m somewhat pain-free. The lack of progress is enough to reduce me to tears.
Mental health wise, things were up and down. Some days were okay and I actually got things done for the first time in ages, but some days were really hard. My anxiety was still bad and I was restless and uneasy; I didn’t know what to do with myself. I just felt like I was making everything I worked on worse. I was depressed, feeling overwhelmed and hopeless.

WEEK 4 (450mg daily)
I was sleeping but sleeping restlessly and waking up a lot. And come morning, it was such a struggle to wake up. I would fall asleep again and again; staying awake felt impossible. I don’t know if that’s the melatonin or something else but it’s pretty miserable. I feel like I cannot open my eyes, cannot make my hands work. It’s not fun. At the other end of the day, things are generally better. It can take a while to get to sleep but it’s nothing like it used to be. It can take a while to get comfortable, wind down, relax but I’m still getting to sleep easier than I was without the melatonin.
In the daytime, I was getting sleepy within an hour of getting up and drinking Red Bull almost daily again. It’s not something I want to make a habit of but I was just too tired to figure out what the right thing to do was so I just focussed on getting through the day. But even with the Red Bull, I was tired and sleepy and all I wanted to do was close my eyes. Again, I don’t know if this is the melatonin or the Moclobemide but either way, I don’t know what to do. If it’s the melatonin, I can stop taking that and hope my sleep stays okay but if it’s the Moclobemide, then I’m pretty stuck. I really don’t want to spend my whole life feeling tired and sleepy because this is the only medication that works.
I’ve started working again – a bit, given how unpredictable everything’s been recently – after being completely unable to since the end of last year. That’s been good and hard (and completely exhausting) in equal measure, socialising too. It’s nice to be in contact with people again but so often, at the moment at least, it also makes me feel defective and broken. My friends are telling me about their jobs and their relationships and so on and all I have to talk about are the new meds I’m trying and the new therapy I’ve been thinking of trying. When you’ve been depressed and suicidal for the past four months, there aren’t a lot of light and fun conversation topics to reach for. So I just felt very lonely. I’m not putting that on my friends – I want to hear about their lives – but the disconnect is hard.
My chronic pain was bad too. My whole body was hurting, my joints aching, even my fingers. I still haven’t heard anything from the Pain Clinic so all I’ve got are over the counter painkillers that I can only take for a few days at a time. What I’m supposed to do on the other days, I don’t know; nothing else helps at all.
I’ve realised that I’ve been feeling cold a lot, pretty much all of the time. I’m not sure when it started but it’s been going on for a while. Even with a thick jumper, a scarf, wooly socks, and a blanket, I’m freezing.
Mentally, it was a tough week. I felt very anxious and overwhelmed. My depression was pretty bad too, although not as crippling as it has been, and I was just miserable really. I cried a lot. So, yeah, a tough week.
WEEK 5 (600mg)
My energy and sleep continues to be troublesome. It’s so hard to wake up in the morning: I keep going back to sleep, I can’t keep my eyes open, and my hands won’t work. I’ve found that eating right away helps but I hate it as a strategy; food is the last thing I want right after I wake up. Despite the difficulty, I have been managing to wake up earlier than I have been over the last few months and getting to sleep has been a bit easier (with the help of the melatonin – although it does sometimes feel like I have to focus really hard on falling asleep sleep, which seems to be somewhat counterproductive). But I was still very sleepy during the day, falling asleep accidentally a couple of times, and so tired, although it was a busier week. I was doing more, socialising more, and feeling everything more intensely. There were some really good moments but it was hard too.
And, of course, more activity has resulted in more pain. I’ve been in pain constantly but it’s gotten worse. Multiple long car journeys and more time on my feet has caused problems with my back; I’m sure that with time, sensible exercise, and slowly building up my stamina, things will get better but it’s really hard to be patient. The pain has also been really bad in my hands (from my elbows down to my finger joints), which instantly instills a cabin fever-like feeling inside my own skin. I’m still waiting to hear from the Pain Clinic but experience doesn’t exactly encourage high hopes for what they’ll come back with, if they ever do.
My mental health has been all over the place. Five weeks of this medication and I still don’t feel like I’ve got my head on straight. As I said, I’ve had some good moments this week but I’m still struggling, more than I feel like I should at five weeks of a medication. I’ve had a lot of anxiety and my depression is still very present. My suicidal thoughts aren’t as constant as they were but they are still there. I guess, I just would’ve hoped that, at this point, I’d be feeling better mentally. It’s hard to not lose hope.
So, I’ve been taking Moclobemide for five weeks and while things are very different from day one, I’m still not feeling great. My depression is still a constant, day-to-day battle, which is one thing if I’m waiting for medication to kick in and for it to get better but if this is it, it’s not enough. I’m grateful that things are better – that I can write songs again – but living like this is really, really hard. I just want to feel better. I don’t want every day to feel like a mountain that I have to climb. I guess, I just want to feel normal. Although, having said that, I don’t know if I even know what normal feels like.
Category: adhd, anxiety, autism, chronic fatigue, depression, emotions, food, heds, medication, mental health, music, self harm, sleep, suicide, treatment Tagged: adhd medication, antidepressants, anxiety, bupropion, caffeine, chronic fatigue, chronic pain, creative block, depression, diazepam, drowsiness, eds, heds, hypermobile ehlers danlos syndrome, hypermobility, insomnia, loss of appetite, maoi, maois, medication, mental health, mental illness, migraine, migraines, moclobemide, pain, pain clinic, pain management, pain medication, phenelzine, pots, propranolol, red bull, self harm, self injury, sleep, sleep schedule, sleep wake cycle, sleepiness, songwriting, suicidal, suicidal ideation, suicidal thoughts, suicide, temazepam, trigger, trigger warning, tw, writers block, writing
Posted on November 20, 2021
The decision to change my medication has been a long time coming. I was diagnosed with ADHD back in January but, for various reasons, I haven’t been able to take any medication for it up to this point. As I said in this post, my specialist wouldn’t allow me to take any of the classic, stimulant medications for ADHD while I was still taking my current antidepressant, Phenelzine. So, in order to take anything for my ADHD (other than the less common medications that would only make me even drowsier than I am currently), I would have to come off the Phenelzine and either try a different antidepressant or try going without one. That all felt too much to manage while I was doing my Masters – it feels like a lot to manage now – but now that the Masters as is over and I’m already in a period of transition, it felt like it was time to come off the Phenelzine. The side effects were going to throw a wrench in several plans but that was going to be the case regardless of when I decided to do it and I hated the feeling of having it hanging over me. I know I need to do it but a big part of me really didn’t want to (and is still sceptical to a certain degree): over the last ten years, I’ve found it all but impossible to write songs during the periods when I wasn’t taking Phenelzine so it’s not surprising that it’s not exactly an easy decision. But if I want to get out of this limbo state, then I need to try.
So, beginning the 18th November, I started to reduce the dosage of the Phenelzine. For two weeks, I took half my normal dose and then I went another two weeks without anything in my system, giving my body the time to filter out any traces of the Phenelzine (known as the wash out period) and ensuring that way any new drug I take won’t result in a negative interaction. As always, it’s important to point out that this is a plan I’ve worked out with my psychiatrist and my ADHD specialist and is specifically tailored to me. If you’re making any changes around any medication you’re taking, please consult your doctor first.
REDUCTION PERIOD
WEEK 1 (Monday 18th October – Sunday 24th October)
For most of the week, I felt fine, which surprised me: usually, if I miss a dose of Phenelzine, I get hit with a headache pretty quickly but for some reason, that didn’t happen this time. I was tired and a bit more emotional than usual but nothing that out of the ordinary, nothing that couldn’t just happen anyway. I think those first four days lulled me into a false sense of security.
It hit me on the Friday. I felt weak and shaky and had a really unpleasant headache. And that turned into feeling absolutely awful over the weekend: I had debilitating migraines; I felt nauseous, shaky, and lightheaded; I thought I might faint every time I stood up. I also developed an annoying cough and, after multiple COVID tests, I had to assume it was part of the withdrawal and not COVID related (thank goodness – I don’t think I could’ve coped with that as well and I’m glad my family didn’t either).
WEEK 2 (Monday 25th October – Sunday 31st October)
The cough and the migraines continued into the middle of the week and then, fortunately, they started to let up. My sleep schedule was utterly screwed up: I was struggling to get to sleep and not drifting off until between two and five am and then, because I was so exhausted, I was sleeping in to the middle of the afternoon. And as hard as I tried, I couldn’t correct the schedule. I also had really weird, really vivid dreams that took me a while to drag myself out of and separate dream from reality. I did have a sudden, deep dip in mood where I felt really awful and discouraged about the various things I’m currently working on, which was scary: my big fear about coming off the Phenelzine has been returning to that really depressed place I was in before so to feel it happening was horrible. But fortunately it didn’t last and I’ve tried to just stay away from things that trigger those kind of feelings, for the duration of this changeover at least.
By Sunday, things had started to improve and I was feeling a bit more human. Having said that, I was not looking forward to the rollercoaster that the next two weeks were likely to be.
WASH OUT PERIOD
WEEK 1 (Monday 1st November – Sunday 7th November)
The beginning of the week was okay with just minor headaches and some nausea, both of which were pretty ignorable. And apart from sleeping really deeply and the continuation of the weird, vivid dreams, I felt okay. But by the end of the week, I was feeling very tired and just generally unwell again. The cough had faded but it picked up again and then, on Sunday, the nausea was back in full force.
WEEK 2 (Monday 8th November – Sunday 14th November)
This was a very big week. Unfortunately. It was a really bad time to be coming off a medication but, as I said, it’s almost always a bad time. There’s always something happening so I just had to get it over with. But this week held both my graduation from university (I had a great time but physically, I did spend the day counting down to the next dose of painkillers and – on several occasions – actively focussed on not throwing up) and my Granny’s Celebration of Life service (thankfully, by that point, I was feeling a bit better and was able to just focus on the day without too much distraction). Given those two huge things, I spent a lot of the week dealing with a lot of physical exhaustion and pain.
The cough was ongoing and I had migraines for most of the week, although they did lessen in intensity by the end of the week. I was nauseous, shaky, and overly emotional but, again, that had mostly passed by the weekend. On the Sunday, I was a bit weak and nauseous but I felt a lot more human than earlier in the week.
So, four weeks later, I’m finally starting medication for my ADHD. I’m excited but I’m also nervous; I haven’t had many good experiences with medications and it’s taken a lot of trial and error to find the only one that’s helped so far. So it’s a bit scary to be starting over with a whole new category of medications but I’m trying to stay… cautiously optimistic. I’ve started Xaggitin XL and now, I guess, I just have to wait and see.
Category: adhd, depression, diagnosis, heds, medication, mental health, treatment Tagged: adhd, adhd inattentive type, adhd medication, antidepressants, anxiety, attention deficit hyperactivity disorder, depression, inattentive adhd, inattentive type, maoi, maois, medication, medication withdrawal, mental health, mental illness, mono amine oxidase inhibitors, nardil, phenelzine, wash out, withdrawal, withdrawal symptoms, xaggitin xl

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope