Behind the Mask: Autism for Women and Girls (TEDx Talk)

While I have talked about my experience of being autistic (and will be doing more of this week), I also wanted to share this video because it’s a very good summary of Autism in women, covering multiple important topics.


In this TEDx talk, Kate Kahle talks a little about her experience as an autistic woman but she also talks about some of the history behind Autism and Asperger Syndrome, the evolution of the different labels used in relation to Autism, the differences experienced by women, masking, special interests, the mental health implications, and some of the ways to support autistic individuals.


The rest of my posts for this week are more substantial but I really wanted to share this video this week. I wanted to post a range of things: word, photos, and video. We all process information differently and I wanted to make sure there was something for everyone.

And So Begins World Autism Acceptance Week 2022…

The newly renamed World Autism Acceptance Week begins today! I’m not sure I agree with the name change – I’m not convinced that neurotypical society has progressed beyond awareness (something I wrote more about here) – but I am on board with a week that provides information about and celebrates being autistic. So, every day this week, I’ll be posting something Autism related. And to start, I thought I’d pull together everything I’ve written about Autism and my experience of being autistic so far…


  1. Eye Contact – My thoughts on eye contact as a person with Autism.
  2. One Woman With Autism – My experience of Autism Spectrum Disorder.
  3. Tired – My history of fatigue and how it relates to Autism.
  4. Christmas and Autism – Some thoughts on Christmas and how to make it an enjoyable experience as a person with Autism.
  5. A Study of Autism – Why I love doing Autism research studies.
  6. When I Said I Wanted Superpowers, This Isn’t What I Meant – Just me rambling about the use of superpower metaphors in mental health.
  7. World Autism Awareness Week 2018 – Introducing World Autism Awareness Week and Autism itself, as well as some useful links and the video for the awareness campaign.
  8. The Consequences of an Autism Diagnosis – My personal pros and cons of being diagnosed with Autism.
  9. Living With The Volume Up Loud – My experience of being highly sensitive to the world around me and what can cause me to go into sensory overload.
  10. Learn With Me – My experience of being diagnosed with Autism at 20.
  11. Introducing My Autistic Self – How I told people about my diagnosis.
  12. Introducing my Mum – My Mum is my hero and she needs her own post, plus she may be writing some of her own pieces in the future.
  13. When Anxiety Is The Only Thing On The Menu – My experience of food and eating as an Autistic person.
  14. Autism Awareness Day 2018 – A round up of my Autism Awareness Week posts and some encouraging words for anyone struggling.
  15. Moving House When You’re Autistic – Tips for moving house from a person with Autism.
  16. Autistic and Afraid of the Dentist – My experience with dentists as a person with Autism and how seeing a specialist dentist helped me.
  17. Travelling as an Autistic Person – Some of the things that help me when travelling.
  18. Getting A Diagnosis – The Autism Edition – My experience of getting an Autism diagnosis.
  19. ‘Is Autism a Gift?’ (At New Scientist Live) – Dr Anna Remington’s talk about some of the positives of Autism.
  20. My Experiences with Therapy – CBT, EMDR, DBT, and my experience of them.
  21. Meltdowns, Halsey, Halsey, and Meltdowns – A really intense weekend where I saw Halsey twice and had multiple meltdowns.
  22. What Women With Autism Want You To Know – A video about women with Autism.
  23. Metaphors For Autism – A handful of metaphors for Autism.
  24. My DSA Assessment – The traumatic experience of being assessed for Disabled Student Allowance.
  25. Living With Autism During A Pandemic – My experience of living through this pandemic so far and some tips for coping, both for those with Autism and those without.
  26. Seeing Yourself In The World Around You – The importance of the representation of mental health and neurodiversity.
  27. The DSA Process For My Masters Degree – How I got Disabled Student Allowance and tips for those going though the process.
  28. Going Back To University During A Pandemic – My feelings on the new academic year while we’re still in the middle of a pandemic and the choices I’ve made to make it as safe and anxiety-free as possible.
  29. Creative Difference: Exploring Art and Autism – A webinar held by Autistica where four autistic artists talk about the relationship between their Autism and their approach to art.
  30. An Assessment with a Difference – My hypermobility assessment.
  31. A Day In My Life (University with Autism Spectrum Disorder) – A day in my life as an autistic university student.
  32. Autistic Students: Coping With Change – Speaking at a Conference! – I got to speak about my experience as an autistic student at a conference.
  33. World Autism Awareness Week 2021 – An introduction to WAAW2021 with links to good organisations and all the posts I’ve written about being autistic.
  34. Quotes That Helped Me (Autism Edition) – A collection of quotes about Autism and from autistic individuals.
  35. Parenting A Young Adult With Autism Spectrum Disorder: I Interview My Mum – Asking my Mum about her perspective on my journey with Autism, which has obviously involved her to an enormous degree as we’ve really tackled this process and the management of my struggles as a team.
  36. Parenting A Young Adult With Autism Spectrum Disorder: My Mum Interviews Me – A follow up to the previous post, my Mum asked me a set of similar questions, about my experience with Autism, particularly in the context of the late diagnosis.
  37. Everything Changed For Me This Year (Autism Awareness Day) – Learning that all of my physical and mental health issues are connected.
  38. How I Improved My Social Skills – How I learned to manage my social struggles (to a degree) and the tips I still use to make socialising easier.
  39. Autism Awareness and/or Autism Acceptance – My two cents on the debate over whether Autism Awareness Month/Week/Day should be Autism Acceptance Month/Week/Day.
  40. The Pros and Cons of Winter – The good parts and the difficult parts of winter from my perspective as an autistic person.

These posts are ones specifically about being autistic or Autism-adjacent experiences but there are a lot of other posts where I do talk about how being autistic affects one thing or another. So if you’re not seeing what you’re looking for, check out my complete list of posts and if you can’t find it there, shoot me a message. I’m working on a lot of Autism related posts at the moment so what you’re looking for may well be in the pipeline.

Mental Health Update (March 2022)

TW: Mentions of self harm and suicidal thoughts.

It’s been a while since I did one of these updates and the last few months have been A LOT. An update is somewhat necessary, if only for blog cohesion. It’s all been pretty awful, hence all of my posts about medication: we’ve been desperately trying to get a handle on things. I’m not sure we have but there’s a natural point here, around medication and my upcoming trip to the US, so I figured now was probably the best time to do it…


The end of last year and beginning of this year was bad. Really, really bad. I was the most depressed I’ve ever been, self harming and suicidal. I’ve been suicidal in the past but never like this, never to this extent. It was awful but it was also kind of cozy and cotton wool-y, especially compared to what came next. I had a kind of anxiety-induced breakdown, something beyond and different to a meltdown, that just wrecked me. Like, it was so bad that I missed being suicidal. The anxiety was paralysing and the whole thing completely wrung me out. It was unbearable but it was probably the only thing that would’ve forced me onto the new medication – something I’d been resisting out of sheer exhaustion and hopelessness. But I couldn’t go on feeling like that. I was scared the medication would bury the stuff that needs dealing with and I still am but I couldn’t go on like that.

So I started taking Moclobemide but I was also taking Diazepam pretty consistently, given how bad my anxiety was. Things are better than they were – and I’m writing again, which is a good sign – but they’re still not great. I’m still struggling with a lot of stuff. I haven’t been able to go to therapy for a while now and I’m not sure when I’m going to be able to go back – that unexpected twist in the road certainly hasn’t helped. So I’m feeling kind of stuck in terms of how to move forward.

Physically, things haven’t been awesome either. My appetite hasn’t recovered much from the battering it took from the ADHD meds; I’m still not really eating but I am doing better than before so that’s something (the whole thing definitely hasn’t helped my already complicated relationship with food). And after a short break, my chronic pain is back with vengeance. It’s throughout my whole body but my arms, wrists, hands, and fingers in particular have been especially painful. I’m still waiting to hear back from the Pain Clinic. I haven’t written much about my experience with them; I guess I’ve kind of been waiting to have something to write about but so far, I haven’t received any proper support. They said they’d get back to me after their next team meeting but that was early November at the latest so I’m not exactly holding my breath. The Chronic Fatigue Service gave up on me – they literally told me my case was too complicated – and I don’t have high hopes about this experience either. I’ve been waiting for some sort of support for this pain since May 2020 and I know that the NHS have been overwhelmed but that is a really, really, really long time when you’re in pain.

My sleeping is better but still not great. The melatonin helped somewhat and I managed to wrestle my sleep cycle into something a bit more reasonable: rather than lying awake all night and then sleeping through the day, I am now at least sleeping mostly at night. But I’m incredibly tired all the time and I’m drowsy in the day again, just like I was when I was taking Phenelzine. I’ve picked up my Red Bull habit again – although not to quite the same degree (yet) – which I really never wanted to do again.

Between the sleepiness and the not feeling that much better, I’m not convinced by the Moclobemide. It’s pretty reasonable to assume – at this point – that MAOIs are the only antidepressants that help at all but as I said in my Moclobemide review, this level of better doesn’t feel like enough. I still don’t feel great; I don’t even really feel good. And I’m so sleepy, all the time. I don’t feel like it’s that much to ask for: to feel functional, to write songs, to have the capacity to feel good, to even be happy sometimes. Is that really more than I should hope for?


It’s been a long few months and it’s all left me feeling very raw. And, as excited as I am to get back to Nashville, I’m also terrified. The COVID risk aside, the whole world has been through this huge thing so how could going back not be different, feel different? It also just feels very soon to be out in the world for so much of every day when I still feel so… fragile, I guess. It’s like I’ve just started putting myself back together and I’m not ready for the Jenga tower to get toppled again, to start over. I don’t know if I have it in me. I just really hope – really, really hope – that everything goes as well as it can while I’m still getting my feet under me.