Posted on February 28, 2026
My proudest achievement of 2025 was releasing new music: two singles and an EP! Having not released a project since my Honest EP in 2020 (although I later released the acoustic version in 2021), I’ve been so desperate to release more music but health stuff got in the way and it took a long time to get back to a place where I was even close to capable of managing the stress of putting out a new project (and stressful it was). Given everything that happened between late June and December, I didn’t have the headspace, the physical ability, the time, or any combination of the three to write about it properly. But I didn’t want to skip it because it is so important to me and to the last year so – finally – here is the post about my recent EP, Too Much And Not Enough, Vol. 1. This is – hopefully – the first in a series about my experiences of being autistic, inspired by how lonely and isolating it was to grow up, never seeing or hearing my life represented in books, film, TV, music, and so on. It’s taken a long time to feel ready to take on a project like this but now that I am, I know without a doubt that this is the art that I’m meant to be making.
“What makes Too Much And Not Enough, Vol. 1 powerful is its dual role as personal diary and shared lifeline. Hooper writes for her younger self, for others navigating similar realities, and for those who may be hearing these experiences articulated for the first time. The result is a project that doesn’t just speak – it listens back, offering connection in a world that often overlooks the voices that need to be heard most.” (x)
To reintroduce myself and to lay the foundation of the EP, I released two singles at the beginning of the year called ‘Write This Out‘ and ‘In The Mourning.’ When I was planning the EP and choosing which songs to include on it, which songs felt like the most important to include on a first EP – my first EP – about being autistic, I felt like neither of them were quite the right fit. But they still felt like important parts of the story that I wanted out in the world so they became the two singles released ahead of the EP and its official first single. And even though they’re separate releases, they’re deeply connected on a thematic level and so, to represent that connection, I used photos from the EP photoshoot for the cover artwork of each single.
“Every line in ‘Write This Out’ carries the grounded honesty of someone who has learned to create calm in the middle of chaos. It’s heartfelt without ever feeling heavy, and the sincerity behind her words lands with real clarity.” (x)
(Photography by Thomas Oscar Miles and editing by Richard Sanderson)
“Another personal moment that stood out to me was how the song leaves you with a sense of companionship, as if she’s reminding listeners that they’re not alone in the messier parts of their thoughts… It feels like the beginning of an important new chapter for her.” (x)
I’m so proud of them both, for so many different reasons, and each of them felt so key to setting the scene for the EP. ‘Write This Out’ is driven by the need to get overwhelming emotions out of my body but keep them documented and protected while ‘In The Mourning’ reflects my stream of consciousness after being diagnosed as autistic. I felt like both this feeling and this emotional process were important pieces of the picture that I hoped this EP would paint and releasing them first could only make for a deeper understanding of it. Obviously I can’t ensure that people listen to them ahead of the EP, now that it’s out in the world, but something has to determine in what order the music gets released and when the chronology of this music means a lot to me, why not?
“The songwriting is exquisitely vulnerable, with metaphors and lyrics that cut deep without ever losing hope.” (x)
(Photography by Thomas Oscar Miles and editing by Richard Sanderson)
“And then there’s ‘The Loneliest Whale,’ a track that feels like both a personal lament and a communal sigh – isolation turned into shared understanding.” (x)
The first official single of the EP was ‘The Loneliest Whale.’ As I talked about in the blog post I shared when I put this song out, I wrote it about The Loneliest Whale, a whale that sings at a higher frequency than other whales, making it impossible for them to communicate with each other; I’ve been fascinated by it for as long as I can remember and I’ve always wanted to write a song about it. I deeply related to this idea of feeling isolated from everyone around me, both before and after my diagnosis, and so I used the whale as a metaphor for the loneliness I have experienced as an autistic person. But it’s also about connection.
Before I sat down to write the song, I did some research to make sure all of my facts were up to date and discovered the extensive amount of art that has been made by people who have been moved by the story of The Loneliest Whale. So, so many individuals and communities relate to this story, to the emotions this whale represents, and I was so inspired by that. I’d originally expected the song to be a sad one but, after seeing how many people felt connected to this whale and having the epiphany of how connected we are to each other through these shared feelings, the song transformed into something more positive and uplifting. And because connection is the whole point of this EP, of all of the music I make, it was the obvious choice for the first single.
“With this album, both tender and powerful, Lauren Alex Hooper reminds us that music can be a space of refuge, truth, and connection. A rare and necessary project.” (x)
(Photography by Thomas Oscar Miles and editing by Richard Sanderson)
“In a world where pop often leans into glossy generalities, Too Much And Not Enough, Vol. 1 by Lauren Alex Hooper feels like a rare act of rebellion – not loud or brash, but intimate, precise, and unwaveringly honest. The five-track EP is a deeply personal exploration of Hooper’s experience as an autistic woman, told in vivid lyricism and delicately layered alt-pop production. It’s not just a collection of songs; it’s a lived reality, shaped into art.” (x)
While ‘The Loneliest Whale’ was the lead single, the EP opens with ‘Armour,’ a tumultuous track about the difficulty of masking as an autistic person in a neurotypical society. When I sat down to write this song, I was all set to write about how far I’d come with learning to unmask, only to realise that I hadn’t made as much progress as I’d thought. I’ve done a lot of work on it but I think that’s only made me realise how much more there is to do and that was more than a little bit overwhelming. After that particular revelation, my writing shifted and a theme I kept coming back to was how suffocated I feel by masking and the conflict between wanting to be my true self and the fear of rejecting the protection that masking can and has provided. It was clear to me very early on that this was the opening track because it’s a statement about trying to be more honest and authentic, a process which begins in earnest with this song, and it’s precisely the reason that this EP exists.
“Opening with ‘Armour,’ the artist lays bare the quiet violence of masking and the daily effort to hide neurodivergent traits for social acceptance. It’s a haunting introduction, with delicate instrumentation that mirrors the tension between self-protection and self-erasure.” (x)
Next up is ‘Eye To Eye,’ which builds on the intensity of the first track by digging into the tension and vulnerability of making eye contact, a well documented struggle for many autistic individuals for a whole spectrum of reasons. I’ve always found it difficult and while there were a handful of different things I could’ve focussed on, I most wanted to explore how deeply vulnerable it feels to be eye to eye with someone, to feel like they can see everything you’re feeling and everything you’ve been through. It was hard to write, especially the bridge, and it would’ve been so easy to be less vulnerable but, when that is the whole point of the song, it was really important to me to stay the course and not take the easier road.
“‘Eye to Eye’ and ‘The Loneliest Whale’ are masterclasses in metaphor, turning everyday autistic struggles into poignant pop poetry.” (x)
‘The Loneliest Whale’ sits in the middle of the EP’s tracklist at track three. I’ve already talked about it a bit above and I wrote more about the inspiration behind this song and the creative process – in this post – when it came out. It felt like such a special song right from the beginning and I’m so happy that I was able to release it despite it being pretty unconventional, subject matter-wise, for a pop song.
“‘The Loneliest Whale’ is the metaphor-rich centerpiece, capturing the feeling of calling out into the world and not knowing if anyone is listening.” (x)
The fourth song on the EP is ‘Overexposed,’ which is about my experience of sensory overload, about how overwhelming the world can be, and how hard it can be to exist in the world when it feels so bright and loud and emotional and intense. This is the oldest song on the EP: I wrote the original draft not long after I was diagnosed, on one of my first trips to Nashville with one of my best friends there, Caylan Hays, who is a beautiful songwriter and artist. It’s evolved quite a bit since then: I have a clearer understanding of sensory overload and I’m better at articulating my experience of it and both of those things have, of course, changed the song. But the central imagery of an overexposed photograph always stuck with me so I was keen to revisit it when writing for the EP.
“In ‘Overexposed,’ sensory overload is rendered sonically through layered textures and dynamic shifts, allowing the listener to feel the push-pull of intensity and withdrawal. Hooper’s voice remains the constant – warm, clear, and unwavering, even in the most vulnerable admissions.” (x)
The final track of the EP is ‘Last One Standing.’ I wrote this from the point of view of the Agents of Shield character, Daisy Johnson, who has been one of my special interests from the moment I started watching the show (I’ve written more about her and some of the reasons I love her so much here and here) and, songwriting being my biggest and oldest special interest, I’d been thinking about how to bring the two together for a long time. I must’ve spent hours watching edits and fanvideos on YouTube, noting the scenes from the show that featured repeatedly and analysing the songs chosen, from the emotional undercurrent of the track to the lyrical themes to the production choices. It gave me such an insight into what other fans of the character loved about her, what resonated with them, the themes and sounds they associated with her. When I eventually brought the idea to Richard, I knew exactly what I wanted the song to sound like: an anthem of tenacity and perseverance and strength… all of the things that Daisy Johnson has always represented to me. And as I wrote the lyrics, I tried to channel the hours I’ve spent absorbing the show and so I shaped the language around her speech patterns, deliberately favouring some words and avoiding others. One review called it “unapologetically nerdy” and that may be the biggest compliment I could receive for this song, especially given the creative process behind it. I’m pretty sure it’s the biggest deep dive into not just one but two special interests that I’ve ever done; it’s my truest expression of autistic joy. But regardless of how deeply for me this song – and the creative process behind it – is, it ended up being a song that I really wanted to release because I think there are multiple meaningful messages in it. It’s a celebration of determination and resilience – and of autistic joy, particularly when that joy is a form of resistance and defiance – but it also represents, to me at least, the ongoing struggle that is being autistic in the often resistant, inflexible society that we live in, just to be seen and treated and accepted in the same way that our allistic peers are; you need self-belief and strength of will to keep taking steps forwards, to keep standing up for yourself and fighting for what you need and what you deserve. I needed a song to empower me, to remind me of this when I forget it, to lend me that energy on the days that I can’t find it within myself. It means a lot to me to have that and I hope it can do the same for those who listen to it.
“‘Last One Standing’ closes the set with hope and fierce individuality. It’s a love letter to the passions and inner worlds that sustain so many autistic people – and a powerful reclamation of identity.” (x)
(During the writing of the project)
“Lauren Alex Hooper’s Too Much And Not Enough, Vol. 1 is a raw and open-hearted collection that speaks with quiet strength. Across five tracks, she explores identity, mental health, and neurodivergence without holding back or dressing things up. Her songwriting is honest in a way that feels lived-in, not performative. Each lyric feels like a page from a journal you were never meant to read but are lucky to experience.” (x)
The project started out very solitary as I figured out what I wanted to say and started writing the songs but as it grew, I got to work with more and more awesome people; I love the intimacy and laser focus of a small project but getting to bring in people who believed in the songs and the project… it felt like we were just feeding it more and more oxygen, which was really exciting. I love writing by myself – as evidenced by ‘Write This Out’ and ‘In The Mourning’ – but I also love collaborating: I wrote ‘The Loneliest Whale’ with one of my MA classmates, a super cool artist called lukeistired, and ‘Overexposed’ with my friend, Caylan, as I’ve already mentioned. I also took drafts of multiple songs to my longtime collaborator and writing partner, Richard Marc. Richard and I have been making music together for ten years now: we worked on my first single together, my first EP, and enough unreleased music to fill multiple hard drives. He’s a fantastic producer, songwriter, and guitarist (multi-instrumentalist, really) and we’ve always been good collaborators – and good at having fun while doing it. I’ve always been involved in the production of my songs but, with this project, I really dug into it with Richard, making both micro and macro choices and guiding the songs to sound like the colours I heard when I sang them. I’ve always found production quite overwhelming – and overstimulating – so to take new steps into that space and that process was really empowering and inspiring.
“Light touches of electronic instrumentation sit beside organic guitar parts and minimal beats. Nothing feels too polished, and that’s part of the charm. You’re not listening to a performance; you’re sitting next to someone telling their truth. […] It didn’t scream for attention, and that’s exactly why I kept thinking about it. There’s power in letting things exist without apology.” (x)
(Writing and recording with Richard Marc)
“In a world saturated with processed emotion, Too Much And Not Enough, Vol. 1 by Lauren Alex Hooper is a breath of fresh air – a quiet rebellion told in lush dream-pop textures and honest lyricism. The five-track EP is a deeply personal dive into Hooper’s lived experience as an autistic woman. From the whispering melancholy of ‘Armour’ to the anthemic tenderness of ‘Last One Standing,’ the project feels less like a performance and more like an intimate conversation. Acoustic warmth and subtle folk influences run like threads through each track, anchored by Hooper’s soft, expressive voice. It’s a voice that invites, reassures.” (x)
During the recording process, I was able to bring in several friends to build the sonic world of the songs. Richard and I invited our friend, Lasse Corus – who is an incredible drummer – to record live drums on several of the tracks, going back to Bluebarn Studios where we’ve recorded multiple times before. That was a really lovely way to bring some of the history behind this EP into the creation of it. I also invited my wonderful friend, Luce, to sing backing vocals on some of the songs: she’s a brilliant songwriter and a gorgeous singer, known as LUCE, and it was so special to have her voice on this project. She’s witnessed this project take shape from a core idea to everything it is now along with all of the growth that came with it, not dissimilarly to how I’ve watched her upcoming project blossom from the original idea into something so much bigger and bolder. Creating such personal projects in parallel was so inspiring to me – I truly can’t wait for her to put her project out into the world – and so it meant a lot to me to have her singing on the project.
“It’s vulnerable but never self-pitying, wounded but unafraid to bite back.” (x)
(Lasse recording the drums for one of the tracks // Richard, Luce, and I listening back to Luce’s backing vocals)
The tracks were mixed and mastered by Josh Fielden of Sprogglet Studios, who has worked on all of the music that Richard and I have made together and he always does such a fantastic job. I love the richness he’s able to bring out of my voice and the arrangements. He’s also the patron saint of patience when it comes to my perfectionistic tendencies.
“The EP’s production balances indie-pop accessibility with singer-songwriter intimacy. Electronic elements weave around acoustic foundations, creating a space where personal storytelling meets contemporary sonic design. This balance allows the themes to resonate without feeling didactic; the songs invite empathy rather than demand it.” (x)
(The day of the EP photoshoot)
“Lauren Alex Hooper’s Too Much And Not Enough, Vol. 1 is a revelation. With five strikingly personal tracks, Hooper dismantles the myth of the “universal” pop experience by offering something rarely heard: an unfiltered, autistic lens. The EP is both emotionally raw and musically refined – a delicate balance that showcases her songwriting depth and willingness to confront difficult truths.” (x)
I also had the utter joy of working with Thomas Oscar Miles on the cover art. I’d discovered his photography on Instagram and we talked about collaborating on a project for years – beginning in 2021, I think. Then, in 2024, we finally got to work together on the photoshoot for the EP’s artwork. We spent hours on Zoom, discussing the themes and sending moodboards back and forth, and we got on really well so, in many ways, I was really looking forward to the photoshoot. But I was also incredibly nervous: I was in a really bad place with my issues around body image and I was so anxious that, regardless of how much I was looking forward to working with Thomas, I would end up hating the photos because of those issues. I so wanted to love them and be proud of how they represented the project but I was stuck in an endless loop of anxiety about it, convinced that I would never even be able to like them because they were photos of me.
Fortunately, we got on just as well in real life as we had online. It was absolutely freezing that day – Thomas’ train had actually been delayed because of snow – and I couldn’t feel my face, hands, or feet by the time we decided that we had everything we needed, after almost two and a half hours of taking photos. But I didn’t want it to end! It was such a fun shoot and we laughed so much and it felt so inspiring and creative and collaborative. We did a quick flick through the photos at the end, I was so excited by what I saw. I loved them! Thomas edited them beautifully and then Richard finished them up to be cover art ready. I’ve truly loved the artwork of every project I’ve released but these ones feel beyond special; they’re going to be incredibly difficult to outdo on the next project…
“A powerful five-track EP that marks her most personal and resonant work to date. With this project, Hooper doesn’t just share songs; she shares herself. Drawing from her lived experience as an autistic woman, the EP dives deep into the emotional terrain of neurodivergence with honesty, clarity, and a quiet but undeniable strength. In a pop landscape that too often glosses over complexity, Hooper offers something different: a raw, nuanced, and deeply human portrait of life lived in contrast to the neurotypical norm.” (x)

(Photography by Thomas Oscar Miles)
“In a world that constantly asks autistic people to shrink themselves – to be quieter, more adaptable, more like everyone else – Lauren Alex Hooper is doing the opposite. On her new EP, Too Much And Not Enough, Vol. 1, she’s louder in the best way: more honest, more direct, more herself. The result is one of the most emotionally gripping alt-pop releases of the year. A seasoned songwriter with a delicate but defiant voice, Hooper has always used music as a way to process and communicate her inner world. But this time, she’s not holding back. Each of the five tracks on the EP offers a deeply personal window into the complexities of living as a neurodivergent woman.” (x)
I knew going in that the promotion of the EP was going to be the hardest part for me, both before and during the rollout: I am so grateful to Tahnee, to Abi, and to Amelia and her team at Decent PR for all of their advice and their help and, perhaps most of all, their belief in me and my music. I so appreciate all of the time and effort that they put in to helping me get this EP in front of people who really heard the songs, who connected to them, and who really understood what I was trying to say, what I was hoping people would hear. And as a result of that, I’m so grateful to those people who listened to it and felt so moved by it that they wrote about it and encouraged other people to listen to it, because they felt it mattered that much. There have been so many wonderful reviews that I’m honestly still reeling because I never imagined hearing something I’d made described this way:
And, of course, I cannot say thank you enough to those of you who have listened to the EP, those of you have who have streamed it, bought it, blasted it in the car or cried to it under your duvet… To everyone who has listened to it, watched the videos, and followed my social media over this last year, I am so deeply grateful for you. I can’t believe how many people these songs have reached in just over twelve months: I’m a super small artist – I don’t have thousands of listeners on Spotify or thousands of social media followers – so the fact that these songs have been streamed over 100,000 times is amazing to me. I can only hope that they’ll go on to reach more people over time and that this is just the beginning of something even bigger and more beautiful.
“[Too Much And Not Enough, Vol. 1] feels like a rallying cry wrapped in melody – not loud or angry, but insistent, intimate, and brave. For those who’ve long felt like their stories were too much, or not enough, Hooper offers a reminder that they’re exactly right, just as they are.” (x)
And so, many months later, we have the round up of my most recent EP, Too Much And Not Enough, Vol. 1. It was a cathartic, empowering, and challenging process but I’m so proud of it and I’m so grateful for the love it has received ever since I put out the first single in January 2025. Putting out music, especially as an independent artist, is an expensive, complicated, and risky endeavour and so to have it received so warmly made it all worth it. Calling it a rollercoaster would be an understatement, especially considering the most recent logistical nightmare – all of the music I’ve ever released disappearing from every music platform (years off my life, I swear!) – but I never expected making music as an autistic (and disabled) person to be easy; I always knew that it would take everything I had and then some. But these songs, and the experiences that inspired them, are so important to me and, somewhat unbelievably, I’m starting to see how important they are to other people too. All I’ve ever wanted to do is to make honest and vulnerable music and to help other autistic people feel less alone in the world and if this project has done that for even one person, then all of the difficulties will have been worth it. And going forward, hopefully my music can help two people, and then three, and then four… If that’s how my music career is ultimately measured then I could not be more proud.
“What sets this EP apart is this creative’s refusal to simplify or sanitize her truth. She doesn’t shape her experience into something more palatable. She lets it stand as it is: complicated, beautiful, and often misunderstood. Her lyricism is sharp and evocative, her voice rich with sincerity, and the production choices consistently elevate the emotional core of each track. Too Much And Not Enough, Vol. 1 is a cultural milestone. Lauren Alex Hooper is forging a new path for autistic representation in music, and she’s doing it with honesty, grace, and undeniable talent.” (x)
“This EP doesn’t just tell a story – it reshapes how stories like these are told. Hooper has found her voice, not in spite of her autism, but through it. And with Too Much And Not Enough, Vol. 1, she’s made a compelling case that the future of pop is broader, braver, and more inclusive than we imagined.” (x)
Thank you so much for reading and you can listen to the EP here.
Category: activism, anxiety, autism, body image, chronic pain, diagnosis, emotions, life lessons, mental health, music, ocd, special interests, writing Tagged: 52 hertz whale, agents of shield, album artwork, alt pop, alt pop artist, altpop, altpop artist, armour, asd, autism, autism spectrum disorder, autistic artist, autistic joy, autistic photographer, autistic singer, autistic singersongwriter, autistic songwriter, backing vocals, caylan hays, collaboration, cover art, cowriting, creative process, daisy johnson, ep artwork, ep reviews, eye contact, eye to eye, in the mourning, independent artist, indie artist, indie pop, indie pop artist, josh fielden, last one standing, lauren alex hooper, live drums, luce, lukeistired, marketing, masking, mastering, mixing, music production, new ep, new music, new music uk, new single, overexposed, photoshoot, production, production process, promotion, recording, recording session, recording sessions, recording studio, richard marc, richard marc music, richard sanderson, sensory issues, sensory overwhelm, sensory processing, sensory sensitivities, sensory sensitivity, songwriting, songwriting inspiration, songwriting process, special interest, special interests, sprogglet studios, the loneliest whale, thomas oscar miles, too much and not enough, too much and not enough vol 1, unmasking, unsigned artist, visuals, vocals, write this out
Posted on February 9, 2025
NOTE: Between my brain fog and a WordPress update, I lost track of the post between the first post – The Application – and this post, where I went up to the Autism Dogs farm to discuss the Advanced Tasks my dog would need to learn and met a few of the dogs they’re currently training. That post is here, in case you missed it. This post follows that one.
In April 2024, I went up to the Autism Dogs farm to discuss Advanced Tasks and meet some of their current dogs to get a sense of what breed of dog would be a good fit for me. We came to the conclusion that a female Labrador would be the best choice and not long after, in May, they contacted me to tell me that they had a potential match, a female black Labrador called River. They sent us a couple of photos and although she was very cute, I was reluctant to open myself up to getting attached before I’d even met her. What if I fell in love with her and then we weren’t compatible? I wanted to meet her before I let myself feel anything. So I waited – both excitedly and anxiously – for our next trip up to the farm in early June.
It takes several hours for us to get up to the farm so my Mum and I caught the train to Stoke-on-Trent and I stayed over the night before at the Holiday Inn (they were dog-friendly and had many of my safe foods). We got there without too much trouble, although I do find the travel tiring, and settled into our room – which had the biggest bathroom I think I’ve ever seen. Given how busy my week had been, having a quiet evening before our session with Autism Dogs and before meeting River wasn’t the worst thing.
Originally, the plan had been to bring Izzy so that she and River could meet but, as we got on the train, they called and asked us not to bring her as River had a bit of a cough; she’d be seeing the vet within the next day or two and they weren’t worried but they were reluctant to have the two dogs mixing just in case it was something infectious. But we were already on the train with Izzy so one of the team would look after her while we met River and the two could meet on the next visit should everything go well.
Izzy had never been in a hotel room before and while she initially found it the most exciting thing ever, she did start to struggle with the noises on either side and in the corridor. She found it hard to settle and she barked a bit but she wasn’t too bad, all things considering; it was a completely new experience for her, on top of all the travelling. I mean, I was feeling quite overwhelmed so I’m surprised she wasn’t more unsettled.
The next morning, we got up and – after a breakfast of ALL safe foods! – caught a cab to the Autism Dogs farm. Izzy hung out with a member of the team: given how adorable she is, I’ve yet to find someone who doesn’t want to spend time with her. And once she was settled, Mum and I got ready to meet River. She bounded into the room, this gorgeous black Labrador – bigger than the black Labrador I grew up with – bounded into the room, super excited and running back and forth between me and Mum. Her enthusiasm was infectious. But once she calmed down a bit, she was so sweet and so gentle: she curled up with her head in my lap, soft and warm and snuggly, so quickly. I was in love.
We got to just hang out with her for a bit: play and stroke and cuddle and just really get a feel for each other. It wasn’t a hard decision at all. Mum and I both felt like she was a really good fit: personality wise, good size, her fur isn’t a sensory issue for me, we have experience with Labradors… She was so sweet and affectionate and it just felt really right. The team members who were present for that session said that they don’t often see dogs connect so quickly.
Early on in the process, we had asked whether we would be able to name the dog I was matched with, as I had a specific name in mind – if possible. They said that that was unlike to be a problem, especially if it was the same amount of syllables as the original name. So River became Daisy, my personal superdog, inspired by Daisy Johnson of Agents of Shield (my special interest character for those of you who don’t know). And while I am, of course, biased, I think she looks more like a Daisy than a River.
I can’t get over how lovely she is and I can’t wait to start really working with her and learning the training and really building that bond. Unfortunately, we couldn’t stay there indefinitely so, when our time was up, we said goodbye to Daisy and were reunited with Izzy, who was very excited to see us. We caught a cab to the station and then the multiple trains home. We were all exhausted and so finally, finally getting home was wonderful. My bed had never been so appealing and me and Izzy snuggled down together. She’s handled the whole thing really well, given how many new and potentially overwhelming things she’d encountered over the previous two days; I was really proud of her.
It was a really good day and I can’t wait to visit Daisy again.
It was a long, exhausting day but I felt like we’d made a real leap forward, having matched with Daisy. I do feel pretty overwhelmed and emotional by the whole thing but I only had to talk to Mum to restore my confidence in the choice. It’s just a really big change and I always find big changes very unsettling. But even though it does feel quite overwhelming, the team are great and I have faith in them to guide me through Daisy’s training and then support me once she comes to live with me. So, yes, there’s anxiety but, for the most part, it’s not overwhelming; I know it’s just my brain spiralling because that’s my knee jerk reaction to any upheaval in my life. But I feel well supported and, ultimately, excited about the path we are now absolutely on.

Category: animals, anxiety, autism, autism dog, emotions, family, food, special interests Tagged: agents of shield, anxiety, asd, autism, autism acceptance, autism assistance dog, autism dog, autism dog cic, autism dogs, autism spectrum disorder, autism support, autistic, autistic adult, black labrador, daisy johnson, disabled, disabled travel, mental health, neurodivergent, overwhelm, pomchi puppy, safe foods, sensory issues, special interest, special interests
Posted on December 5, 2023
This week, from 2nd to 8th December, is National Grief Awareness Week 2023, run by The Good Grief Trust. The goal of the week is to create opportunities for people to discuss the loved ones they’ve lost and their experiences with grief in safe spaces and with people who’ve gone through similar events and emotions. After all, it is often easier to talk about difficult things with people who can relate. The organisation encourages people to put on events and arrange group meet ups during the week – online or in person – providing that safe space to talk.
For my part, I thought I’d share something that had a really big impact on my experience of grief, a line of thinking known as the Continuing Bonds Theory of Grief…
When I was thirteen, my Dad died very suddenly. He’d lived with a chronic illness for years but he developed pneumonia and quickly deteriorated (there’s a lot more to this story but I don’t think the post is big enough for all of it and it would distract from the point I want to make – maybe I’ll come back to that another time). Initially I scrambled for ways to remember him, still in a haze of shock and disbelief: I kept candles lit; I wrote letters to him; I bought the CDs of the music we listened to in the car. But after a while, that just hurt too much and I pushed all of those things away. And it was a combination of that, the lack of casual reminders (since I didn’t live with him and therefore didn’t have anything of his around me), and the fact that my family didn’t really know how to talk about what had happened, that resulted in a strange strange period of my life where… it wasn’t that we pretended he never existed; we just seemed to move around the metaphorical empty space with such focus that we didn’t even think about what we were dancing around. And that’s just how things were, from my perspective at least.
For a long time – for years – I didn’t talk about any of it: how much I missed him, how much it hurt, how disconnected I felt. I didn’t know how. I also avoided anything that reminded me of him. It wasn’t until I was in my early-to-mid twenties that I started to willingly – if cautiously – engage with the things that reminded me of him. I rewatched Hot Fuzz, a film we watched together (interesting choice, Dad); I reached out to a friend of his in the hope of getting answers to some of my long held questions; I even started to explore with the world of superheroes that he loved so much. I rewatched the Fantastic Four movies, the second of which we saw in the cinema together (plus there’s definitely a resemblance between Ioan Gruffudd, who plays Reed Richards, and my Dad so I do sometimes see Dad in some of the other characters he’s played, like Daniel Harrow in Harrow). I also watched Teen Titans from the beginning, an animated TV show that we had watched together on Saturdays and spent hours discussing, from the characters and their powers, to the storylines, to the silliest of jokes. All of those have remained special to me and after revisiting them, I moved further into that world. I watched films and TV shows that we most likely would’ve watched together and then endlessly discussed: I watched Supergirl (and I feel certain that he would’ve agreed with me that Season 1 was the strongest, when it was on CBS); we would’ve watched the new Fantastic Four movie and discussed the differences between it and the earlier ones; I would’ve nagged him until he watched Sanctuary with me and, when I inevitably adored Amanda Tapping (and he did too), we would’ve watched the entirety of Stargate SG-1 as well and he would’ve been the one to come to conventions with me (and I can absolutely imagine us dressing up); we would’ve gone to see Wonder Woman as soon as it came out in cinemas, her being my favourite DC character as a kid; we would’ve seen each of the Marvel movies and afterwards we would’ve compared favourite scenes before ultimately complaining how complicated the franchise was getting with every new film; and, most importantly to me, we would’ve watched Agents of SHIELD and Dad would’ve watched as the show, and specifically Daisy Johnson, became a new special interest that changed my life. I’ve always felt that superheroes, and the messages in their stories, are his legacy to me and that means a lot to me, even more so since it led me to Daisy. That’s something I will always be beyond grateful for.
Left collage: Teen Titans (top left), Hot Fuzz (top right), Fantastic Four (bottom left), and Justice League (bottom right).
Right collage: Sanctuary (top left), Black Widow (top right), Supergirl (bottom left), and Agents of SHIELD (bottom right).
Alongside this, I’d also started to write songs about what had happened, songs where I talked to him, songs where we had new experiences together. It took a long time to get to that place – I’d been writing songs for about five years before I felt able to do it – but once I did, writing those songs felt almost sacred, regardless of whether or not they were any good when I finished them. It is, of course, my job to put out music and, while there are multiple songs about my Dad that I’m very keen to release when the time is right, that’s never been something I even thought about when writing these songs: they have always been solely for me and my heart and my voice. That is true, to an extent of all my songwriting – I wouldn’t be writing the song in the first place if it wasn’t an expression of something I felt deeply – but there’s a… I’m hesitant to call it this because it’s such a hard feeling to define… a healing element to writing these songs that is just different to anything else I’ve experienced.
It wasn’t until a friend mentioned the theory of Continuing Bonds to me, a passing comment in the thick of university research projects, that I realised that that was exactly what I was doing. Both in engaging with superheroes and in writing songs about him, but especially the latter. From the first song I wrote, a song about feeling frozen by grief, my relationship with him actively continued, a new chapter in our story.
The Continuing Bonds Theory of Grief was developed by Klass, Silverman, and Nickman and laid out in their book, Continuing Bonds: New Understandings of Grief, in 1996. They questioned the existing models of grief that generally considered the process of grieving to be one where you eventually ‘let go’ of the person who has died, where any behaviour that encourages holding on is viewed as unhealthy and potentially harmful; they disagreed with this and proposed a new model where it’s normal and healthy for a person to hold on to and continue their bond with the person who has died, having observed many cases in their research where a continued bond had helped an individual to cope with loss.
Ask anyone who has any experience of grief and they’ll likely tell you that grief doesn’t just end. That’s a simplistic and frankly silly idea; just because a person is no longer physically there doesn’t mean that they no longer matter to you, that your relationship with them no longer impacts your life. Their death doesn’t cut your life into chapters of ‘with them’ and ‘without them.’ Many people consider grief to be a permanent entity but one that evolves, becoming more than just the pain of losing the person. We carry them with us and find ways to bring them into our present; the relationship – the bond – continues.
In my personal experience, it has been far healthier to engage with my memories of him and make art about my feelings than to try and ‘move on,’ to think of my Dad as belonging only to the first thirteen years of my life; I suffered more in the years when I didn’t think about him compared to the years since I started writing about him and to him. Before, there was only grief but now, even though the loss and the grief are still painful, that isn’t all there is. He might not be physically present in my life but he does have a presence: engaging with the things he loved, as well as the things I feel sure he would’ve loved, and writing the songs that keep him alive and here are, in general, really special experiences. As I said, I’d love to release these songs as a project at some point; I think that would be a really lovely way to honour him and could potentially – hopefully – also help other people to cope with their experiences of grief. Maybe it could inspire and encourage others to nurture that continuing bond rather than suppress it. I wonder what amazing, moving art could be made in the process…
Other than making art to connect with a lost loved one, there are many ways to honour that bond between you…
Latest drawing is about continuing bonds theory: in contrast to narratives about getting over loss, this says keeping a relationship alive in a different way can be healthy and helpful
Share how you have you maintained bonds after loss in comments for others to see… pic.twitter.com/kC8J6cjzPm
— Juliet Young (she/her) (@Juliet_Young1) February 24, 2023
I hope that this week hasn’t stirred up too much distress, not that grief only exists during one week of the year of course. For some people, it can be validating to see so many people talking about grief but I know that it can also be very upsetting to suddenly have your social media feeds flooded with such stark reminders. I hope that, as hard as it may be to think about, that this post has been helpful in some way. The theory of Continuing Bonds – including the practical aspects of it before I knew what I was doing – has had such a big impact on me and I hope that, if it’s something you want, this has given you some ideas for how you might stay connected to your loved one.
Category: about me, autism, death, emotions, family, favourites, music, research, special interests, tips, writing Tagged: actually autistic, actuallyautistic, agents of shield, asd, autism, autism spectrum condition, autistic, autistic creative, autistic creator, autistic songwriter, autistic spectrum disorder, bereavement, childhood bereavement, continuing bonds, continuing bonds theory of grief, dad, daisy johnson, dc, death, family, father, film, grief, grief awareness week, loss, marvel, model of grief, mourning, national grief awareness week, national grief awareness week 2023, ngaw 2023, ngaw2023, sci fi, science fiction, singersongwriter, songwriter, songwriting, special interest, superhero, superheroes, theory of grief, tips

Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Hi! I’m Lauren Alex Hooper. Welcome to my little blog! I write about living with Autism Spectrum Disorder (ASD), ADHD (Inattentive Type), and Hypermobile Ehlers-Danlos Syndrome (hEDS), as well as several mental health issues.
I’m a singer-songwriter (it’s my biggest special interest and I have both a BA and MA in songwriting) so I’ll probably write a bit about that too.
My first single, ‘Invisible,’ is on all platforms, with all proceeds going to Young Minds.
My debut EP, Honest, is available on all platforms, with a limited physical run at Resident Music in Brighton.
I’m currently working on an album about my experiences as an autistic woman.
Finding Hope