Finding HopeChanging Therapist
Posted on November 5, 2023
TW: Mentions of self harm and suicidal thoughts and urges.
It’s been a year since I started therapy again after an unintentional break, essentially starting again with a new therapist. It’s been a hard and emotional process, and at times a distressing one; just going to therapy can make you feel so vulnerable and so open to further hurt as you dig into the hard stuff – wading into dark waters that you’d rather ignore and pretend don’t exist, even as they’re eroding your mental health – that adding difficulties to that already difficult thing can feel unfairly cruel. So, given that I’m me, I thought that, perhaps, writing about it might be helpful and maybe not just for me but for anyone going through a similar transition. And if not helpful, then hopefully validating in some way.
I’d been seeing Therapist A for almost seven years when everything changed. She was taking leave and I was on my own.
Pre-2021, I’d seen Therapist A once or twice a week pretty consistently since early 2016. Even when the UK went into lockdown due to COVID-19 at the beginning of 2020, we continued our sessions online; I didn’t find them as productive but it was better than nothing. We continued that way for a while, trying to manage my crippling anxiety over the pandemic, working on issues that came up as I persisted with my now online Masters classes, and continuing to work on the issues that had landed me in therapy in the first place. But then the schedule began to slip: Therapist A’s home life was pulling her away from work and I was working myself into the ground in order to complete the final project of my Masters. I barely saw her in the last four months of the course, which I really struggled with: I was digging into some pretty hard stuff, writing song after song about my experience of being autistic, and I craved that safe space to play them to her, to hear her perspective on what I was saying, talk about the feelings they were bringing up, and she wasn’t there. I told myself that it was a short term thing and that, once the Masters was over and her stuff was resolved, the schedule of our sessions would go back to normal. I think it’s safe to say that, given the title of this post, it didn’t.
I finished the Masters in September 2021 and officially graduated, walking the stage, a few months later in November. I had reduced and stopped taking Phenelzine at this point, in preparation for trying ADHD meds (and we all know how appallingly that went), and my depression was creeping back in; the situation was getting pretty desperate. But luckily, that was when Therapist A reached out and we started having sessions again. We had a lot of catching up to do but, by mid-December, we were up to date. Unfortunately, the ADHD medication was already hitting me hard and my depression had gone from a state I recognised to a whole new level of despair with increasingly overwhelming suicidal thoughts. My most vivid memory from that time is sitting in Therapist A’s new office, staring at the unfamiliar rug and hearing my voice in my ears as I confessed to those thoughts, my voice completely flat (this is known as ‘flat affect,’ a recognised symptom of depression and other mental health conditions). It still makes me nauseous to think about, even though so much time has passed and my depression has gotten so much worse since; I think, in my head, that was the beginning of this awful, awful time.
My last session was on New Years Eve and I was drowning, all of the impending new beginnings feeling more like a threat than a promise. When we hung up, I felt achingly hollow and that was only the beginning of a terrible night. But that’s a story for another time. January was passing around me, aimless and anxious, when I finally heard from Therapist A. But instead of setting up our next session, she was letting me know that she was taking leave indefinitely. Her reasons aren’t mine to tell but, between those, my ongoing abandonment issues, and my overwhelmingly bad mental health, I was devastated, spiralling into some grotesque hybrid of a meltdown and a panic attack that went on for hours: I screamed, I cried, I scratched at my face, I tore at my hair, I shrieked like an animal in pain. I guess that’s what I was. I felt like I was trying to exorcise a corrosive demon from my body but nothing helped, nothing alleviated the pain. I was shattered as brutally as if I’d been hit by a wrecking ball. That’s what it felt like, what my life felt like.
Eventually I physically ran out of energy and fell asleep, too tired and emotionally drained to even engage with the world. My depression became more and more overwhelming, compounded by the devastating effects of the ADHD medications and the loss of a massive source of support in my life, and, for months afterwards, I barely got out of bed, barely ate, barely talked. I abandoned social media and I avoided mirrors at every opportunity, to the point where I started to forget what I looked like. The suicidal thoughts were only getting stronger, stronger than they’d ever been in my life, and the feeling of being intrinsically, irreparably broken was – and is – a constant weight in my chest.
I’m not sure when or why I started getting out of bed, why I decided that I needed to go back to therapy. I think I knew I was getting into a very precarious position mentally and the excruciating pain of being inside my head was getting so unbearable that I was willing to do anything to lessen the pressure. I did see a consultant at the local mental health unit but the experience was another traumatic one: after a panic attack at the front door, a junior doctor took my history and then brought in the consultant who told me about ECT and the Ketamine trials before telling me why I shouldn’t do them and recommending doing more of the things I love (which I’d already told him I couldn’t engage with because I was so depressed). So that didn’t improve my relationship with doctors and the medical profession.
For a short while, I worked with a therapist I’d met several years previously but the sessions only made me feel worse and while I have no doubt that it wasn’t intentional, I ended up feeling more broken and more traumatised by some of the things he said, trauma that I’m still carrying around with me. So I stopped seeing him and met with several new therapists, trying to get a feel for them and their methods before committing to someone new. But, just like with Therapist A, Therapist B was the first of the group that I met (a year ago yesterday, I believe) and between her therapeutic approach, her personality, and the fact that she’d brought along a dog she knew in order to put me at ease, she was the obvious choice.
As therapists, they both trained in several of the same disciplines and their skillsets overlap to a certain degree but, when discussing a particular issue, there were differences to how they’d approach it; there has been a fair amount of whiplash in getting use to Therapist B’s approach after so many years with Therapist A. But the point of this post isn’t to compare them – they’re both lovely people and very good at what they do, at least as far as I can tell – but rather to reflect on the process of moving from one to another and the feelings that that kicked up. And a lot of feelings there were – I even wrote a song about it called ‘Grave Digger.’ During the early sessions with Therapist B, we made a timeline of my life and discussed some of the biggest moments, many of which were difficult and distressing (and remain so to this day). Revisiting and recounting the hardest parts of my life was gruelling but I did my best to push through the internal resistance and breathe through the resulting turmoil; between that and the ongoing mental anguish, it was a difficult few months. I don’t mean to make it sound like one continuous torture because that isn’t true -we’ve talked about the good experiences that’ve made me who I am, of course, and there have been sessions where we’ve laughed a lot – but I think that building a strong relationship with a therapist and making progress will always involve periods of incredible vulnerability, which is always scary and, at times, painful.
Sometimes – okay, often – I feel like I’m not making any progress at all, partly because of all the disruption and the distress it’s caused. A year ago, I hadn’t expected to see 2023 and my depression and chronic suicidal thoughts haven’t lessened, even though I am taking Phenelzine again (at a higher dose, in fact) – after many discussions with Therapist B. It has made me more functional, to a certain degree, but the decision came with a price tag: my self harming escalated from cutting my arm to cutting my face. I’m not convinced anything’s changed; I don’t feel any better. But I can see that some things have changed and changed for the better, even though I can’t feel the effects yet: something has allowed me to start talking about some of the worst stuff in my brain, even if only a little. It’s something I could never have imagined doing so I know that that’s progress, even though I struggle to feel it.
I have heard from Therapist A several times now; the news has generally been positive, which has been a great relief (and I appreciate having a little less uncertainty in my life). Therapy is continuing as normal – the current version of normal at least – which I’m pretty sure is a good thing: the idea of trying to work my way through all of the emotions that I know would come up as a result of any potential change makes me feel physically nauseous.
I’m not always convinced that I’ve adjusted and sometimes I forget that I’m not going to see Therapist A, my body moving in the direction of that office as the car turns down a different road; that experience is more ingrained than I had realised at the time. And I know I’m still carrying a lot of hurt and anger over the whole thing, even though over a year has passed. I’m not angry at the people involved – nobody chose any of this – but there is anger and, although I’ve been slower to realise it, hurt too. I think it’s easier to be angry than to be hurt. Not always but sometimes. And, as I said, I have abandonment issues, issues that I’ve struggled with for a long time, which – unsurprisingly – have been exacerbated by this whole thing. It’s hard to lose someone that you trusted to never leave (a naïve ideal, I know) and it’s hard to trust someone new, ignoring the whispers that they’re just another person who will inevitably walk away. I think these issues are important to mention but they probably need their own blog post rather than taking up space here: when talking about changing therapists, it’s not something that everyone has mixed into the equation. All of that said, I’m trying to trust and I think that, for the most part, I am, even if it does sometimes feel like a conscious, concentrated effort. The progress isn’t as fast as I’d hoped it would be when I committed to therapy again last year but the proof is there. I’m sharing things I never thought I’d share and that’s certainly not nothing.
September 2023 in Photos
Posted on October 1, 2023
It’s been ages since I did a photo challenge and I’ve always really enjoyed them so I thought it was about time I revisited the practice. So here we are. This is my September, guided by the Planner & Paper photo challenge on Instagram, Life in Pockets…
Day 1 – Wardrobe Change
Given that the weather hasn’t changed yet, my wardrobe hasn’t really changed. It was a really warm day but I don’t like being uncovered: it makes me feel really exposed and vulnerable. I did wear my brown ankle boots, which I don’t usually wear; they’ve been all but living in my wardrobe up until now but I like them too much to let them just gather dust.
Day 3 – Your Choice!
My Mum bought a new toy for the cats and they were big fans, of the catnip at the very least. It wasn’t long before they were all rolling around on the rug, blissed out on catnip. It was very cute. We don’t usually get all of them inside together at this time of year; they’re usually stretched out in the garden, either in the sun or the shade depending on their preference moment to moment. It’s very cute but it was delightful to have them all back in for while, even if only for a little while.
Day 4 – Listening To
I’m obsessed with The Good Witch by Maisie Peters and have been listening to it on repeat since it came out. I absolutely love pretty much all of them – picking a favourite is actually impossible – but I’ve been having a great time singing along to this song, ‘BSC,’ recently. Maybe because there’s a certain person I’ve been talking about in therapy that I’m reminded of when I sing some of the lyrics to this song. I love the chorus: it’s such a true, relatable, hilarious-but-still-kind-of-heartbreaking statement so succinctly put. Her songwriting is SO clever and I always lose my mind over the genius lyrics like, ‘Mister “I don’t want a label” / You made me ‘Little Miss Unstable.” I also absolutely love the bridge: ‘I am unhinged / I am scaling all these walls I’ve gone within / I am both Kathy Bates and Stephen King / I can write you out the way I wrote you in.’ That last line is so empowering and I think that being a writer myself makes me love it even more. ‘I am unhinged’ is just hilarious and so relatable and ‘I am both Kathy Bates and Stephen King’ is so freaking clever. I could honestly talk about these songs for HOURS.
Day 5 – Cozy
I didn’t take a picture for this one but I wanted to include it here because I find it so hilarious. Here in the UK, we’re experiencing a heatwave and oh my god, the idea of cozy is just so far from my mind; all I want is to cool down. I’m melting in this heat. And suffocating in the humidity.
Day 7 – Reading
I started out listening to this book on my phone, passing the time on a long drive, but ended up continuing it in physical form; I prefer physical books to audiobooks for reading but I can’t deny the convenience of audiobooks when in the car or when swimming, for example. I really enjoyed This Is Going to Hurt so I was keen to read Undoctored. So far I’m really enjoying it; I really like the way Adam Kay writes and he’s utterly hilarious.
Day 8 – On The TV
My Mum and I are currently watching the second series of Annika. My whole family LOVES Nicola Walker and I would honestly watch the worst show ever just for her. This certainly isn’t the worst show. It’s pretty lighthearted most of the time with some heavy moments and Nicola Walker’s character, Annika, is hilarious and awkward in a really endearing way. She’s a mess but all of her relationships with her family and friends and colleagues are really lovely and I honestly never want this show to end; it’s really nice to see her play a character who isn’t deeply and consistently traumatised, as most of her characters seem to be. It also seems like a really fun show to be on, which just adds to the enjoyment of it.
Day 10 – Sunday’s Are For…
In theory, I like Sunday to be for collecting myself for the coming week, recuperating, and doing my favourite things. Having said that, I’m usually frantically busy trying to catch up with things from the previous week before they spill into the next week. This Sunday, however, I was able to just dedicate my time to practicing for the show I’m playing on Wednesday and spend time with Izzy, our brand new puppy: playing when she was awake and snuggling as she slept. It was a very pleasant day.
Day 12 – Below
I had no idea what to do for this prompt until we got Izzy. I keep picking her up like this because she’s just so adorable and so chilled out, when she’s sleepy at least. And she looks so ridiculously cute. As she always does. All the time. It’s very distracting.
Day 13 – From Behind
I mean, with ears this spectacular, how could I take a photo of anything else for this prompt?
Day 15 – Boots
My favourite pair of boots, and the ones I wear practically everyday, are Sorel Joan of Arc lace up boots. They’re the same boots that Daisy Johnson in Agents of Shield wears a lot, especially during Season 2. I always thought they looked super cool and the fact that she was wearing them was an added bonus. They’re really comfortable, they look cool, and I feel like a superhero when I wear them. Is it any wonder I wear them all the time?
Day 17 – Time Alone
Right now, all of my ‘alone time’ is actually ‘Izzy time.’ I’m either playing with her and keeping her occupied so that she doesn’t get into anything she shouldn’t or I’m sitting with her while she naps. Sometimes I try and get stuff done while she sleeps but sometimes all I can do is sit and adore her; the fact that she’s actually real, that this absolutely gorgeous little creature is mine to love is still kind of overwhelming and I just find the time disappearing as I stroke her and cuddle her.
Day 18 – Something Brown
I could’ve easily stuck another puppy picture here but I thought I’d try and come up with something a little more interesting, for one day at least. There’s no such thing as too many pictures of this puppy. So here is my beloved guitar, an electro-acoustic Taylor that I got during my first year at university. It has the most gorgeous sound and I honestly have no desire to ever get a new one, even if I could afford to get a ‘better’ one. This one just sounds and feels so beautiful; it feels like an extension of me, and of my songwriting.
Day 19 – Something For You
A couple of months ago, I ordered this necklace from Etsy. I’ve been looking for one like it for years and having finally found it, I didn’t want it to slip away again – I’ve let that happen far too many times. I have such anxiety around money that I struggle with spending it on myself when there isn’t a ‘productive’ purpose (like learning a new skill) but I’ve been working so hard at my physiotherapy and hydrotherapy that I said, ‘fuck it,’ and bought the necklace. I can get my head around a little reward for over a year’s worth of hard work.
Day 20 – Selfie
I did it for the challenge but I really don’t like taking selfies. I can just about manage selfies if they’re with people or as part of a special event or at a specific place but I’m rarely happy with how I look in them. I think a big part of that is that I’m masking really hard in order for the photo to be a good one and so I think I just don’t end up looking like myself. I like candids because they’re in the moment and honest and real. But, as I said, I have obliged for the challenge.
Day 23 – Lazy Afternoon
Lucy was certainly having a lazy afternoon (while I was busy working away). Of all of the cats, she’s the most unfazed by Izzy’s appearance: she’s not thrilled and they’re not playing (yet?) but Lucy will chill out in the same room and will engage with her to a limited extent. Having said that, she’s not shy about giving Izzy a swipe if Izzy gets overexcited and ends up swerving too close to her. The other cats have barely managed five minutes in the same room; I have to hope that they’ll get used to her over time, especially as she learns what to do and what not to do. Anyway, as well as Lucy’s handling the Izzy situation, she’s happiest when Izzy is downstairs and she can just relax without having to worry that Izzy might bound over to her at any second. So this was a thoroughly blissed out moment, unbothered by a tiny canine.
Day 25 – 11am
This is my physio set up, just before I ran through my personal exercise plan. I feel very lucky to be able to work with a physiotherapist and not just a physiotherapist but an excellent physiotherapist who has a really good, working understanding of Hypermobile Ehlers-Danlos Syndrome. I’ve been working with her for a few months now and have a series of exercises that take about fifteen minutes to do, trying to strengthen and stabilise my body. As of earlier this week, we cut one exercise and added two new ones for my elbow and shoulder because I’ve been experiencing serious pain in them for a really long time now. So I’m still getting to grips with those. Although, having said that, my arm has been sore as a result of my recent COVID jab (my fourth, I think) so I haven’t managed as much as I usually do. If it follows the same pattern as the others, it’ll be fine in a couple of days and I’ll be able to work at normal capacity again.
Day 28 – Book Review
I love Trista Mateer’s poetry and I loved her previous book, Aphrodite Made Me Do It. I loved Artemis Made Me Do It even more. I read it in less than twenty-four hours, folding a ridiculous number of page corners. Her poetry is so visceral, like the earth just spits it out; it’s beautiful and delicate and brutal and fierce and I feel like I could write a song inspired by every poem. I really loved it and I can’t wait to read the next one in the series.
Day 29 – Weather
My birthday was on the 29th and part of that involved doing this really amazing Equine Facilitated Learning session about building confidence and assertiveness so I spent the morning in a field, working with three gorgeous horses. It was a bit chilly but a beautiful day with warming sunshine and big blue skies. It was a good day.
Day 30 – Self Care
One of the things that makes me feel like my best self – physically, mentally, and emotionally – is swimming. And, near where I live, the pool does this awesome thing on weekend evenings where they turn off the main lights and place a few lanterns around, basically lighting the space with the pool lights. They keep the number of people to two per lane so it never feels crowded or cramped and they play music to minimise the potential echoes in the room. All in all, it’s a really amazing way to swim and such a soothing experience, especially for someone like me who often finds swimming pools overwhelming and overstimulating. I’ve always loved swimming so I’ve put up with it, trying to find the quietest times to swim at whatever pool I’m going to but this is just amazing. It’s my favourite place to swim and I never get tired of it. I feel very lucky to have discovered it and to have pretty regular access to it.
I didn’t manage to take photos every day: sometimes I was too busy, sometimes I forgot, and sometimes nothing about the day matched the prompt (like ‘cozy’ in a heatwave or ‘fall leaves’ when we don’t have anything resembling autumn yet). I also didn’t do the bucket list because I find that they trigger my anxiety at the moment. But on the whole, it was really fun to document my days with photos again. I have a fair amount of fun things coming up over the next couple of months so I wouldn’t be surprised if I find myself doing another challenge sooner rather than later.
More Tips For Travelling As An Autistic Person
Posted on June 10, 2023
Back in 2018, I wrote a post about travelling as an autistic person and my personal tips for making it smoother and less stressful and anxiety-inducing. In that post, I included:
- Plan ahead
- Speak to a travel agent
- Choose your accommodation carefully
- Write a list of everything you’ll need and have someone check it
- Pack an emergency kit in your carry on baggage
- Bring your own food
- Prepare specifically for the flight
- Build in time out and don’t feel guilty for it
I still stand by all of these strategies but since then, having travelled more and gained more experience (apart from the lockdown and pandemic times – the latter of which we are arguably still in but obviously travel is now more possible for many, many people), I have more thoughts that I thought might be helpful to share.
FIND A GOOD TRAVEL AGENT – I wrote about talking to a travel agent last time but I wanted to share my personal experience with our travel agent, a guy we first met when we travelled to the US in 2016. Since then, we’ve booked every trip we’ve taken with his help – we go to him for everything – and developed a solid relationship. It really helps, I think, that he has a working knowledge and understanding of Autism so, even though he didn’t know me and my struggles personally, he picked up what I could and couldn’t handle very quickly, which has made things so much smoother than they might’ve been otherwise. He always goes above and beyond for us, something I would attribute to the working relationship we’ve built with him, and I so, so appreciate it.
TAKE INSPIRATION FROM YOUR MOST EXTREME NEEDS WHEN YOU PACK – It’s easy to optimistically assume that you’ll have a normal day every day you’re away but that’s not only unlikely because our minds and bodies don’t cooperate just because we want them to but also because the stress and anxiety of travelling and being in a new, unfamiliar place can do a number on us. I always find being away from home for more than a few days incredibly stressful, which can screw up my energy, my pain, my anxiety, my sensory issues… So packing with bad days in mind is probably a good idea; I’ve started carrying my heat pad (for pain), my joint supports (which I don’t always need but, of course, always seem to need when I’ve left them at home), a number of different fidget toys, medication for migraines (not a super common occurrence but debilitating when they do happen) and so on…
LEARN SOME BASIC PHRASES – If you’re planning to go somewhere where the language is different to that of your home country, it’s definitely worth learning at least a few common phrases. I know this is often considered to be common courtesy and I don’t disagree but when you have a lot of health stuff to deal with or get really overwhelmed in new environments, it’s not that simple; with all of your other preparations, it can just slip down the priority list and then off the list altogether. I recently went to Germany and between the ridiculously long hours trying to get everything done before I left and then the total overwhelm when I got there, I somehow didn’t clock that I didn’t speak any German until a couple of days in. How bizarre is that?! Then, of course, I panicked and did my best to speed learn words and phrases like, “Yes, please,” “No, thank you,” “English please,” “Excuse me,” and “I’m sorry.” Fortunately for me, German isn’t completely alien and the spellings and pronunciations – at least for the simple stuff – are relatively close, or at least they felt that way in my brain. So I picked those up easily, which was a relief. I think that having some language can really reduce your anxiety because you don’t feel so lost (and potentially helpless) and it makes moving around and engaging with where you are a little easier.
ASSISTANCE SERVICES AT THE AIRPORT – I’ve now done multiple trips through airports where we’ve arranged for the assistance services to help us out. So now I get wheeled (in a wheelchair or one of those electric buggies) from check out to not just the gate but down the gangplank to the actual plane. Because I struggle with standing and walking for extended periods of time, this has not only reduced both my pain and fatigue, it’s also reduced my anxiety about the time it takes and the recovery time I’ll need later. Apart from a few mix ups (uncommon but it has happened), they’ve been super efficient and very nice. I’ve found a couple of them to be a bit intimidating but I think that’s just because they’re utterly focussed on the job (and the next one and the next one); no one has ever been anything but polite and even funny. On my recent trip to Germany, one of the women was really, really nice and we had a good laugh despite the language hurdles to navigate. The one confusion that I’ve experienced is that, at some airports (and always in the US), they operate on a tip system but no one’s ever told us that one way or the other. Maybe it’s the straightforward, autistic approach to things but, to me, a service provided by the airport implies that the airport pays them for the work they’re doing but clearly not. So that did take me by surprise and I haven’t always been prepared for that, financially or emotionally.
IF YOU’RE TRAVELLING FOR A SPECIFIC EVENT, FAMILIARISE YOURSELF WITH WHERE YOU ARE AND WHERE YOU NEED TO BE – If you’re travelling for an event like a wedding or a birthday, it’s well worth doing things like checking out and practising the route (or routes you’ll have to travel) so that you know how to get where you’re going and how long it will take. You don’t want to be stressing about being late or getting lost on the important day itself. And if you have to let go of everything else just to make sure that you can attend and engage with the event you’re there for, then that’s what you need to do; it’s hard not to feel guilty or upset about not ‘taking advantage’ of the opportunities that travelling has presented you with but most likely, if you’ve travelled for a particular event, it’s really important to you and has to be your priority. Chances are that you’ll feel better for putting it first.
HYDRATE – If I have learned anything over the last few years, it is how important it is to stay hydrated. We all know this, of course – we’re told often enough that none of us are drinking enough water – but autistic individuals often struggle with it specifically due to problems with our interoception (plus, thirst signals are generally weaker than other internal signals, making them harder to recognise). Being dehydrated can make everything so much harder, causing headaches and exhaustion to name a few, and when you’re away in an unfamiliar place, that’s the last thing you want.
IF YOU HAVE TO GO HOME EARLY, THAT’S OKAY – Sometimes shit happens and plans have to change. And that has to be okay. Whether it’s your physical health, your mental health, something going on at home, sometimes you just have to figure out how to accept the need for change and go home. Sometimes it’s a case of choosing the ‘lesser of two evils’ – staying is hard but so is leaving – and making the choice that feels the most right, even if both of them feel wrong to a certain extent. I usually need some time to come to terms with what the right decision is but then, once I know what I need to do, I just have to figure out how to make it happen.
Friedrichshafen in Germany: Lake Constance (known as Bodensee in German) and some gorgeous flowers I saw. (x)
As always, I feel sure that I’ve missed some. But hopefully these will be somewhat helpful to somebody. If any of you guys have any tips you’d like to share, please stick them in the comments!
Finding Hope 